Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Bonnie, Actually Propranolol is for high blood pressure. None of the meds you mention are for Parkinson's. The side effects you mention could be caused by the meds you are on actually any of the meds you are on. Have you told your doctor about the problems you are having with the meds? It would be best to tell the doctor. They can try different meds. Take care, Bill and Charlotte -------------------------------------------------------------------- Bonnie Curlew wrote: > hi there: > > I've been reading your letter hopefully to get anwers for myself to. > > Too start of my name is Bonnie and diagnoised with Parkinsons 2 weeks ago. I > wrote before terrified but now I am at the can't read enough stage. > > Maybe someone can explain the drug compination I have > Wellbrution, celexa, propranolol( I think for tremors) > The Propranolol is making me very nausea and dizzy plus extremely tired. > I'm at the beginning stage of Pd. I would truely be gratefull. > > The sounds of this group most are the caregivers of there spouses and a view > pd.msa people. > > Talk to you later.I always read my mail and this forum > thanks Bonnie > > The Propran > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Bonnie, Actually Propranolol is for high blood pressure. None of the meds you mention are for Parkinson's. The side effects you mention could be caused by the meds you are on actually any of the meds you are on. Have you told your doctor about the problems you are having with the meds? It would be best to tell the doctor. They can try different meds. Take care, Bill and Charlotte -------------------------------------------------------------------- Bonnie Curlew wrote: > hi there: > > I've been reading your letter hopefully to get anwers for myself to. > > Too start of my name is Bonnie and diagnoised with Parkinsons 2 weeks ago. I > wrote before terrified but now I am at the can't read enough stage. > > Maybe someone can explain the drug compination I have > Wellbrution, celexa, propranolol( I think for tremors) > The Propranolol is making me very nausea and dizzy plus extremely tired. > I'm at the beginning stage of Pd. I would truely be gratefull. > > The sounds of this group most are the caregivers of there spouses and a view > pd.msa people. > > Talk to you later.I always read my mail and this forum > thanks Bonnie > > The Propran > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Hello , I don't understand how this could have happened by mistake. The log file from the Shydrager mailing list clearly indicates that you or someone with access to your email account requested to be subscribed. 11/1/2000 8:41pm scherereh@... Subscription requested via email 11/1/2000 8:47pm scherereh@... Subscription confirmed via email In order for this to have happened someone would have had to send an email to: shydrager-subscribeegroups from your account. Then a message would have been returned to your account asking you to reply to confirm your subscription. According to the logs this is what happened. If you look in your outbox you should see these sent messages unless they have since been deleted. I thought you should know that if you did not do this yourself then there is someone else using your account. I will remove your email from the subscription list immediately. Regards, Pam Scherer wrote: > At 09:43 AM 11/2/00 -0400, you wrote: > >Please take my name and email off your list. There has been a mistake. I > >have no interest in shydrager disease. I am getting thousands of these > >emails daily. Please forward this email to otherpeople, so that they > >won't email me. Thank you. > > Scherer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 Suzanne, My daughter does not have any allergies that we are aware of. We live in Colo and go to a hospital near our home but are considering Children's Hospital for any of her further care. I am so sorry to hear about your son. I thought it was hard for me to look at my daughter in so much pain...I just can only imagine what you are going through. Have they made the link of allergies to the pancreatitis? They have no idea why my daughter has it. It would be nice to keep in touch as I know of no other child who has pancreatitis. Thank you for responding to me and sharing your story. > > > I'm very sorry to hear about your daughter. I have a son, who is now > 11-years-old. He had reflux when he was a baby which was caused by > severe food allergies. He also had constant stomach pain and vomiting. > He had a Nissen fundoplication when he was 16 months old. He also began > having symptoms and was diagnosed with pancreatitis when he was > 5-years-old. Unfortunately, he has had a rough time since then. He has > had to spend hundreds of days (each year) in the hospital, as well as > months at home on TPN, unable to have anything at all by mouth. He has > had procedures for pain control. I'm sure you've heard that this disease > is extremely rare in children. I have never heard of another child that > developed pancreatitis after a fundoplication, until now. Does your > daughter have allergies? What hospital do you go to for her care? > > Suzanne > > On Fri, 10 Nov 2000 14:36:13 -0000 clipp6422@a... writes: > > Hello. I do not have pancreatitis, my 7 year old daughter has been > > diagnosed with it. I am searching here for some support, answers, > > advice, tips etc. Here is our story: > > My daughter has had medical problems her entire life. She has a > > hearing loss in the left ear as well as hypothyroidism. When she > > was > > 3 she began to have chronic stomach pain combined with vomiting and > > diarrhea. After some testing she was diagnosed with chronic > > esophogitis and had a nissen (stomach wrap) which stopped the reflux > > > > or heartburn. At the age of 5, she started having stomach pain > > again. The GI doctor ran some testing and her amalyse and sed rate > > was elevated everytime she had the stomach pain. She had a battery > > of tests including an ERCP, HIDA scan, CT of the stomach as well as > > an abdominal ultrasound. The only thing revealed was a " slightly " > > inflammed pancreas. He diagnosed her with chronic pancreatitis when > > > > she was 6. She was placed on Creon, the pancreactic enzyme and we > > were told to go on a low fat diet. Everything seemed to go ok, she > > finally started to gain weight and the stomach aches were mild. > > Last Friday she had her first attack. The thing that I do not > > understand is, it is only her amalyze that elevates. So, the doctor > > > > in the ER put her on IV Fetinol. He said he doubted it was a > > pancreatitis attack since her lipase was not elevated (which it has > > never done). He sent her home several hours later on 24 hours clear > > > > liquids. The day we started her diet back up she was in severe pain > > > > that radiated into her back. She described it as a pain that went > > through her whole body. Again we go to the ER and get a doctor who > > agrees she is having a pancreatic attack and placed her on IV > > Nubain. She was admitted to the Pediatric floor. The pediatrician > > on call for the hospital that night said it was not her pancreas > > since it was only her amalyze that was elevated. He took her off > > the > > IV Nubain and just put her on anti-nausea medication. She had a > > horrible night. The GI doctor on call the next day looked at her > > and > > said the spots she was pointing to on her stomach and her back were > > exactly where he would expect pain with a pancreatic attack. It > > seems to be where the tail of the pancreas is. Well, after the > > attack her amalyze level goes back down. > > Has anyone ever had just the amalyze level go up and not the > > lipase? Her GI doctor says she has chronic pancreatitis and treats > > her with the enzymes, but I do not understand why other doctors do > > not believe this since her lipase remains normal. > > I am just looking for a little support. This has been hard on > > our > > family and watching my daughter in pain just breaks my heart. This > > is no way for a child to live, but she has accepted it and lives > > with > > it. In two years of having chronic pancreatits, this was her first > > attack. The GI doctor seems confident with an increase in the > > enzymes and avoiding the fatty foods hopefully this will be the last > > > > attack she has for a very long time. Her ERCP was normal, no > > calcifications or stones. Her pancreas has no damage, just the one > > ultrasound which showed it " slightly " inflammed and the elevated > > amylase. > > Any advice, tips or other stories would be greatly appreciated. > > > > Thank you for listening, > > > > > > > > -------------------------- eGroups Sponsor > > > > PANCREATITIS SUPPORT NETWORK > > Online e-mail group > > > > To reply to this message hit " reply " or send an e-mail to: > > Pancreatitisegroups > > > > To subscribe to this e-mail group, simply send an e-mail to: > > Pancreatitis-subscribeegroups > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 I'm very sorry to hear about your daughter. I have a son, who is now 11-years-old. He had reflux when he was a baby which was caused by severe food allergies. He also had constant stomach pain and vomiting. He had a Nissen fundoplication when he was 16 months old. He also began having symptoms and was diagnosed with pancreatitis when he was 5-years-old. Unfortunately, he has had a rough time since then. He has had to spend hundreds of days (each year) in the hospital, as well as months at home on TPN, unable to have anything at all by mouth. He has had procedures for pain control. I'm sure you've heard that this disease is extremely rare in children. I have never heard of another child that developed pancreatitis after a fundoplication, until now. Does your daughter have allergies? What hospital do you go to for her care? Suzanne On Fri, 10 Nov 2000 14:36:13 -0000 clipp6422@... writes: > Hello. I do not have pancreatitis, my 7 year old daughter has been > diagnosed with it. I am searching here for some support, answers, > advice, tips etc. Here is our story: > My daughter has had medical problems her entire life. She has a > hearing loss in the left ear as well as hypothyroidism. When she > was > 3 she began to have chronic stomach pain combined with vomiting and > diarrhea. After some testing she was diagnosed with chronic > esophogitis and had a nissen (stomach wrap) which stopped the reflux > > or heartburn. At the age of 5, she started having stomach pain > again. The GI doctor ran some testing and her amalyse and sed rate > was elevated everytime she had the stomach pain. She had a battery > of tests including an ERCP, HIDA scan, CT of the stomach as well as > an abdominal ultrasound. The only thing revealed was a " slightly " > inflammed pancreas. He diagnosed her with chronic pancreatitis when > > she was 6. She was placed on Creon, the pancreactic enzyme and we > were told to go on a low fat diet. Everything seemed to go ok, she > finally started to gain weight and the stomach aches were mild. > Last Friday she had her first attack. The thing that I do not > understand is, it is only her amalyze that elevates. So, the doctor > > in the ER put her on IV Fetinol. He said he doubted it was a > pancreatitis attack since her lipase was not elevated (which it has > never done). He sent her home several hours later on 24 hours clear > > liquids. The day we started her diet back up she was in severe pain > > that radiated into her back. She described it as a pain that went > through her whole body. Again we go to the ER and get a doctor who > agrees she is having a pancreatic attack and placed her on IV > Nubain. She was admitted to the Pediatric floor. The pediatrician > on call for the hospital that night said it was not her pancreas > since it was only her amalyze that was elevated. He took her off > the > IV Nubain and just put her on anti-nausea medication. She had a > horrible night. The GI doctor on call the next day looked at her > and > said the spots she was pointing to on her stomach and her back were > exactly where he would expect pain with a pancreatic attack. It > seems to be where the tail of the pancreas is. Well, after the > attack her amalyze level goes back down. > Has anyone ever had just the amalyze level go up and not the > lipase? Her GI doctor says she has chronic pancreatitis and treats > her with the enzymes, but I do not understand why other doctors do > not believe this since her lipase remains normal. > I am just looking for a little support. This has been hard on > our > family and watching my daughter in pain just breaks my heart. This > is no way for a child to live, but she has accepted it and lives > with > it. In two years of having chronic pancreatits, this was her first > attack. The GI doctor seems confident with an increase in the > enzymes and avoiding the fatty foods hopefully this will be the last > > attack she has for a very long time. Her ERCP was normal, no > calcifications or stones. Her pancreas has no damage, just the one > ultrasound which showed it " slightly " inflammed and the elevated > amylase. > Any advice, tips or other stories would be greatly appreciated. > > Thank you for listening, > > > > -------------------------- eGroups Sponsor > > PANCREATITIS SUPPORT NETWORK > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: > Pancreatitisegroups > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 In a message dated 11/10/00 9:40:24 AM Eastern Standard Time, clipp6422@... writes: << Hello. I do not have pancreatitis, my 7 year old daughter has been diagnosed with it. I am searching here for some support, answers, advice, tips etc. Here is our story: My daughter has had medical problems her entire life. She has a hearing loss in the left ear as well as hypothyroidism. When she was 3 she began to have chronic stomach pain combined with vomiting and diarrhea. After some testing she was diagnosed with chronic esophogitis and had a nissen (stomach wrap) which stopped the reflux or heartburn. At the age of 5, she started having stomach pain again. The GI doctor ran some testing and her amalyse and sed rate was elevated everytime she had the stomach pain. She had a battery of tests including an ERCP, HIDA scan, CT of the stomach as well as an abdominal ultrasound. The only thing revealed was a " slightly " inflammed pancreas. He diagnosed her with chronic pancreatitis when she was 6. She was placed on Creon, the pancreactic enzyme and we were told to go on a low fat diet. Everything seemed to go ok, she finally started to gain weight and the stomach aches were mild. Last Friday she had her first attack. The thing that I do not understand is, it is only her amalyze that elevates. So, the doctor in the ER put her on IV Fetinol. He said he doubted it was a pancreatitis attack since her lipase was not elevated (which it has never done). He sent her home several hours later on 24 hours clear liquids. The day we started her diet back up she was in severe pain that radiated into her back. She described it as a pain that went through her whole body. Again we go to the ER and get a doctor who agrees she is having a pancreatic attack and placed her on IV Nubain. She was admitted to the Pediatric floor. The pediatrician on call for the hospital that night said it was not her pancreas since it was only her amalyze that was elevated. He took her off the IV Nubain and just put her on anti-nausea medication. She had a horrible night. The GI doctor on call the next day looked at her and said the spots she was pointing to on her stomach and her back were exactly where he would expect pain with a pancreatic attack. It seems to be where the tail of the pancreas is. Well, after the attack her amalyze level goes back down. Has anyone ever had just the amalyze level go up and not the lipase? Her GI doctor says she has chronic pancreatitis and treats her with the enzymes, but I do not understand why other doctors do not believe this since her lipase remains normal. I am just looking for a little support. This has been hard on our family and watching my daughter in pain just breaks my heart. This is no way for a child to live, but she has accepted it and lives with it. In two years of having chronic pancreatits, this was her first attack. The GI doctor seems confident with an increase in the enzymes and avoiding the fatty foods hopefully this will be the last attack she has for a very long time. Her ERCP was normal, no calcifications or stones. Her pancreas has no damage, just the one ultrasound which showed it " slightly " inflammed and the elevated amylase. Any advice, tips or other stories would be greatly appreciated. Thank you for listening, >> Hi , I am so sorry for your little girl. Pancreatitis is such a painful disease and when an adult has it is bad enough but for a little child to have it, well it is just horrible. I want to let you know that if she is having pancreatitis pain she is really suffering. Don't ever take her pain lightly. If she says she hurts she is having terrible pain. I do know that one can have a pancreatitis attack and many do without the amalaze and lipase going up. I would think the GI is right and she is having a pancreas attack. I have heard thru this support group and also from my church of children having pacreatitis attacks. Have they looked for a gene that would cause chronic pancreatitis? The boy in my church had hereditary pancreatitis so they removed his pancreas and transferred the islet cells in the pancreas to the liver so he would not have the attack again and the islet cells in the liver would keep him from becoming a diabetic. I know of a little girl from another support group who is 10 years old and she had her pancreas removed with the islet cells transferred to the liver. I am going to have this surgery done on Dec. 8 if my medical ins. will cover the transfer. One can only have this surgery if one is not a diabetic. I am going to MN to have it done since they have been doing it since the 1970s. I would never go to another hospital and have it done. Many hospitals around the country are starting to do this surgery but I don't trust them since they are new to it. The most important skill the doctor has to have is knowing just how to remove the islet cells from the pancreas. They are very fragile and it takes someone with a lot of experience to do the extraction. I will send you a web site to read. I think it would be wise to keep the web site for the future just in case your daughter continues to have attacks. If she continues to have attacks you should talk to Dr. Sutherland in MN before she becomes a diabetic. I don't want to scare you I just want you to have an alternative if she does have chronic pancreatitis. If she ever becomes very ill with chronic pancreatitis expect her doctor to be against the pancreatectomy and islet cell transfer. The web site is....http://www.insulin-free.org/stories/rebello.htm I hope and pray that your dear little girl gets well and doesn't have to have any surgery. I don't mean to frightened you with the thought of surgery. I just wanted you to be informed about what is being done today that many people do not know about. The islet cell transfer is becoming a procedure with hospitals all over. In Cincinnati, where I live they just started it a few months ago and have had three successes. Please let me know if you have anymore questions or just need to cry, vent or worry. Good luck . Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 --- Shirley, Thank you for all the information!! I do appreciate it and I am sure I will need to cry and vent. Good luck with your surgery, my family will pray for you. In pancreatitisegroups, shirlf3542@a... wrote: > In a message dated 11/10/00 9:40:24 AM Eastern Standard Time, > clipp6422@a... writes: > > << > Hello. I do not have pancreatitis, my 7 year old daughter has been > diagnosed with it. I am searching here for some support, answers, > advice, tips etc. Here is our story: > My daughter has had medical problems her entire life. She has a > hearing loss in the left ear as well as hypothyroidism. When she was > 3 she began to have chronic stomach pain combined with vomiting and > diarrhea. After some testing she was diagnosed with chronic > esophogitis and had a nissen (stomach wrap) which stopped the reflux > or heartburn. At the age of 5, she started having stomach pain > again. The GI doctor ran some testing and her amalyse and sed rate > was elevated everytime she had the stomach pain. She had a battery > of tests including an ERCP, HIDA scan, CT of the stomach as well as > an abdominal ultrasound. The only thing revealed was a " slightly " > inflammed pancreas. He diagnosed her with chronic pancreatitis when > she was 6. She was placed on Creon, the pancreactic enzyme and we > were told to go on a low fat diet. Everything seemed to go ok, she > finally started to gain weight and the stomach aches were mild. > Last Friday she had her first attack. The thing that I do not > understand is, it is only her amalyze that elevates. So, the doctor > in the ER put her on IV Fetinol. He said he doubted it was a > pancreatitis attack since her lipase was not elevated (which it has > never done). He sent her home several hours later on 24 hours clear > liquids. The day we started her diet back up she was in severe pain > that radiated into her back. She described it as a pain that went > through her whole body. Again we go to the ER and get a doctor who > agrees she is having a pancreatic attack and placed her on IV > Nubain. She was admitted to the Pediatric floor. The pediatrician > on call for the hospital that night said it was not her pancreas > since it was only her amalyze that was elevated. He took her off the > IV Nubain and just put her on anti-nausea medication. She had a > horrible night. The GI doctor on call the next day looked at her and > said the spots she was pointing to on her stomach and her back were > exactly where he would expect pain with a pancreatic attack. It > seems to be where the tail of the pancreas is. Well, after the > attack her amalyze level goes back down. > Has anyone ever had just the amalyze level go up and not the > lipase? Her GI doctor says she has chronic pancreatitis and treats > her with the enzymes, but I do not understand why other doctors do > not believe this since her lipase remains normal. > I am just looking for a little support. This has been hard on our > family and watching my daughter in pain just breaks my heart. This > is no way for a child to live, but she has accepted it and lives with > it. In two years of having chronic pancreatits, this was her first > attack. The GI doctor seems confident with an increase in the > enzymes and avoiding the fatty foods hopefully this will be the last > attack she has for a very long time. Her ERCP was normal, no > calcifications or stones. Her pancreas has no damage, just the one > ultrasound which showed it " slightly " inflammed and the elevated > amylase. > Any advice, tips or other stories would be greatly appreciated. > > Thank you for listening, > > >> > Hi , I am so sorry for your little girl. Pancreatitis is such a > painful disease and when an adult has it is bad enough but for a little child > to have it, well it is just horrible. I want to let you know that if she is > having pancreatitis pain she is really suffering. Don't ever take her pain > lightly. If she says she hurts she is having terrible pain. > > I do know that one can have a pancreatitis attack and many do without the > amalaze and lipase going up. I would think the GI is right and she is having > a pancreas attack. > > I have heard thru this support group and also from my church of children > having pacreatitis attacks. Have they looked for a gene that would cause > chronic pancreatitis? The boy in my church had hereditary pancreatitis so > they removed his pancreas and transferred the islet cells in the pancreas to > the liver so he would not have the attack again and the islet cells in the > liver would keep him from becoming a diabetic. I know of a little girl from > another support group who is 10 years old and she had her pancreas removed > with the islet cells transferred to the liver. > > I am going to have this surgery done on Dec. 8 if my medical ins. will cover > the transfer. One can only have this surgery if one is not a diabetic. I am > going to MN to have it done since they have been doing it since the 1970s. I > would never go to another hospital and have it done. Many hospitals around > the country are starting to do this surgery but I don't trust them since they > are new to it. The most important skill the doctor has to have is knowing > just how to remove the islet cells from the pancreas. They are very fragile > and it takes someone with a lot of experience to do the extraction. I will > send you a web site to read. I think it would be wise to keep the web site > for the future just in case your daughter continues to have attacks. If she > continues to have attacks you should talk to Dr. Sutherland in MN before she > becomes a diabetic. I don't want to scare you I just want you to have an > alternative if she does have chronic pancreatitis. If she ever becomes very > ill with chronic pancreatitis expect her doctor to be against the > pancreatectomy and islet cell transfer. > > The web site is....http://www.insulin-free.org/stories/rebello.htm > > I hope and pray that your dear little girl gets well and doesn't have to have > any surgery. I don't mean to frightened you with the thought of surgery. I > just wanted you to be informed about what is being done today that many > people do not know about. The islet cell transfer is becoming a procedure > with hospitals all over. In Cincinnati, where I live they just started it a > few months ago and have had three successes. > > Please let me know if you have anymore questions or just need to cry, vent or > worry. Good luck . Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 In a message dated 11/10/2000 9:40:32 AM Eastern Standard Time, clipp6422@... writes: << Hello. I do not have pancreatitis, my 7 year old daughter has been diagnosed with it. I am searching here for some support, answers, advice, tips etc. Here is our story: My daughter has had medical problems her entire life. She has a hearing loss in the left ear as well as hypothyroidism. When she was 3 she began to have chronic stomach pain combined with vomiting and diarrhea. After some testing she was diagnosed with chronic esophogitis and had a nissen (stomach wrap) which stopped the reflux or heartburn. At the age of 5, she started having stomach pain again. The GI doctor ran some testing and her amalyse and sed rate was elevated everytime she had the stomach pain. She had a battery of tests including an ERCP, HIDA scan, CT of the stomach as well as an abdominal ultrasound. The only thing revealed was a " slightly " inflammed pancreas. He diagnosed her with chronic pancreatitis when she was 6. She was placed on Creon, the pancreactic enzyme and we were told to go on a low fat diet. Everything seemed to go ok, she finally started to gain weight and the stomach aches were mild. Last Friday she had her first attack. The thing that I do not understand is, it is only her amalyze that elevates. So, the doctor in the ER put her on IV Fetinol. He said he doubted it was a pancreatitis attack since her lipase was not elevated (which it has never done). He sent her home several hours later on 24 hours clear liquids. The day we started her diet back up she was in severe pain that radiated into her back. She described it as a pain that went through her whole body. Again we go to the ER and get a doctor who agrees she is having a pancreatic attack and placed her on IV Nubain. She was admitted to the Pediatric floor. The pediatrician on call for the hospital that night said it was not her pancreas since it was only her amalyze that was elevated. He took her off the IV Nubain and just put her on anti-nausea medication. She had a horrible night. The GI doctor on call the next day looked at her and said the spots she was pointing to on her stomach and her back were exactly where he would expect pain with a pancreatic attack. It seems to be where the tail of the pancreas is. Well, after the attack her amalyze level goes back down. Has anyone ever had just the amalyze level go up and not the lipase? Her GI doctor says she has chronic pancreatitis and treats her with the enzymes, but I do not understand why other doctors do not believe this since her lipase remains normal. I am just looking for a little support. This has been hard on our family and watching my daughter in pain just breaks my heart. This is no way for a child to live, but she has accepted it and lives with it. In two years of having chronic pancreatits, this was her first attack. The GI doctor seems confident with an increase in the enzymes and avoiding the fatty foods hopefully this will be the last attack she has for a very long time. Her ERCP was normal, no calcifications or stones. Her pancreas has no damage, just the one ultrasound which showed it " slightly " inflammed and the elevated amylase. Any advice, tips or other stories would be greatly appreciated. Thank you for listening, >> Hi ! I am so sorry to hear about your little girl. Please give her a great big hug for me. What are they saying is the actual cause for her pancreatitis? I don't know if this will help or not, but I also have a underactive thyroid and have been on medication for it since age 5 and I am now 35. My pancreatitis was caused from high triglyceride levels (fats in my blood). A little over a year ago I had 2 or 3 attacks and the last one put me in a coma for 9 weeks at which time my lungs and kidneys failed. They had basically told my friends and family that they were just waiting on my heart to give up. I fooled them all and came out of it. It has been a hell of a road though. I had lost the ability to walk, all of my motor skills were just gone, and I ended up with a trach from the life support and was unable to talk for a while. I am back on my feet now pretty much, but I still fight the triglyceride problem and am taking like 17 different pills a day. When they told me about the triglyceride problem, I asked them if it was related to my thyroid condition since my metabolism was and always had been little to none and they told me at that time that it didn't have any relation. I have since learned otherwise. I believe that the inibility for my body to burn fats from the underactive thyroid problem definately contributes to the triglyceride problem as well. Just wondering if you had ever been told about her tri's possibly being elevated. Best of luck to you and your family . My heart really goes out to your little one. If I can help in any way, let me know Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Hi , I am new at this too, having just been diagnosed in March of this year. I have been through hell this past month however. I am sorry that your daughter has to go through this nightmare at such a young age-or really at any age. That doctor sounds like a real case. I would request someone else whenever you run into him again. I do know that with chronic pancreatitis, sometimes the amylase and lipase don't go up at all, however, I am not sure why only one rises while the other stays the same. Good luck to you and yours. You are in the right place. Be well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 Ellena, What are your dad's major problems, we may be able to suggest medicines for your doctor to try. You want to look for a neurologist specializing in movement disorders. Take care, Bill and Charlotte ------------------------------------------------------------------------ EllenaEndsley@... wrote: > Hi, I'm new to this group and just want to find out all I can about > Shy Drager. My Dad is 61 and was actually diagnosed about 2 years > ago He is getting worse and the only doctor in this area that knew > any thing about shy drager has only read about it and has not really > been of much help. We need to despirately find a doctor in the Ark- > La-Tex area. So please if anyone knows of one we are located approx. > 50 miles from Shreveport LA and approx 175 miles from Dallas, TX. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 Dawn, Did you mean to send this? If so what is it? Right now we should not be opening unknown files that are attached to emails. If you did not send it, you have the virus. You need to look at the message from Barbara Knight " " The last two downloads of my email have had a message in it from: with the subject (MSA) unknown. It has an attachment with it. My virus-checker (McAffee) stopped this message twice, because it contains a viurs called w95/mtx@m. Don't open this message or your computer will get infected. If you already have go to for more info and instructions on what to do: http://www.antivirus.com/vinfo/virusencyclo/default5.asp?VName=TROJ_MTX.D barb k " " " " " " " " " " " I strongly suggest you buy a good virus checker that updates itself. Take care, Bill and Charlotte dawnmorley@... wrote: > Name: FEITICEIRA_NUA.JPG.pif > FEITICEIRA_NUA.JPG.pif Type: Shortcut to MS-DOS Program (application/x-unknown-content-type-piffile) > Encoding: base64 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Pat, I would love a copy of the letter Normals also if you could find it. Please let me me know I would appreciate it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 --- PAT HARRAH wrote: > , > I would love to have a copy of " NORMALS " if you're > able to find it. As we > all know, no one other than someone suffering with > it understands what its > like to have FMS/CFS! Since I am living with > family, I would like for them > to be a bit more understanding. I get the > impression, at times, that my > daughter thinks I've just gotten lazy and have > become a > hypochondriac....*S*. > > As far as losing weight taking Lasix to help with > water retention, I'm not a > good one to ask. I initially lost some weight > (about 20 lbs.), but then > came steroids, I quit smoking and the problem with > the fluid increased. > Therefore, I've been up and down in weight so many > times, I've lost track. > If all your weight gain is from fluid retention, it > should take it off. > > Meg - Hang in there, lady! I also suffer from > depression, and it doesn't > help during a flare. I just TRY to keep remembering > it will pass. A very > big problem I had was accepting the fact I had this > " disease " in the first > place. Then, as it progressed, learning to deal > with my entire life > changing. I lost insensitive friends (happily), > could no longer work, had > to have help with most things, had to face attitudes > of EVERYONE, felt > totally worthless, etc. These are things we all > feel. Counseling has > helped me tremendously to make the adjustments and > the acceptance. I still > suffer from depression, but it is very well > controlled now with Wellbutrin. > I just needed a major change in my way of thinking > to get it under control. > > Gentle Hugs, > Pat (aka AliveAgain1951) > > > Have you ever seen > >the > > letter written, posted to " NORMALS " ? It says > >alot, > > I'll try to find a copy, every time my husband > >gets > > insensitive, I make him read it, he actually > cried > > once, which he doesnt do often. Let me know if > >you > > are interested. > ______hi pat, found the letter and its kind of long, so bear with me thru the typos. My husband got it off of the internet. Letter To Normals Having FMS/Msp means many things change, and a lot of them are invisible. Unlike having cancer, or being hurt in an accident, most people do not understand even a little about FMS/MSP and it's effects, and of those that think they know, many are actually misinformed. In the spirit of informing those who wish to understand..... These are the things that I would like you to understand about me before you judge me.... Please understand being sick does not mean I am not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me, stuck inside this body. I still worry about wschool and work and my family and friends, and most of the time, i would like to hear you talk about yours too. Please understand the difference between happy and healthy. When you have the flu, you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact, I work hard at not being miserable. So if you are talking to me, and I sound happy, it means I " m happy, thats all. It doesn't mean I am not in pain, or extremely tired, or that I'm getting better, or any of those things. Please don't say " Oh, you sound better! " I'm not sounding better, I am sounding happy. If you want to comment on that you are welcome to. Please understand that being able to stand for 10 minutes doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And just because I did stand up for 30 minutes yesterday doesn't mean that I can do the same today. With a lot of diseases, you are either paralyzed, or you can move. With this one it gets a little more confusing. Please repeat above paragraph substituting sitting, walking, thinking, being sociable, and so on...it applies to everything. Thats what FMS/MPS does for you. Please understand that FMS/MPS is variable. It's quite possible that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying " But you did it before! " If you want me to do something, then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, don't take this personally. Please understand that getting out and doing things does not make me feel better, and can often make me seriously worse. Telling me I need a treadmill, or that I just need to lose or gain weight, get this exercisre machine, join this gym, try this class, may frustrate me to tears, and it is not correct...if I was capable of doing these things, don't you know that I would? I am working with my doctor and other professionals and am already doing what I am suppose to be doing. Another statement that hurts is " You just need to push yourself more, exercise harder..... " Obviously FMS/MPS deals directly with muscles, and because our muscles don't repair themselves the way your muscles do this does far more damage then good, and could result in days, weeks, or even monthes of recovery time. Also this disease causes secondary depression(wouldn't you get depressed if you were hurting and exhausted for years on end?) but FMS is not created by depression. Please understand that if I say I have to sit down/take this pill/ etc/ that I have to do it right now it can't be put off or ignored because I'm out for the day. FMS/MPS does not forgive. If you want to suggest a cure to me, don't. Its not because I don't appreciate the thought, and its not because I don't want to get well. It's because I have had every single one of my friends suggest something at one point or another. At first, I tried them all, but then realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with FMS/MPS would know about it. This is not a drug company conspiracy, there is worldwide networking(both on and off the internet) between people with FMS/MPS, if something worked, we would know. If after reading that, you still want to suggest a cure, do so, but don't expect me to rush out and try it. I'll take what you said and discuss it with my dr. In many ways I depend on you...people who are not sick...I need you to visit me when I am to sick to go out...Sometimes I may need you to help, shopping cooking cleaning? I may need you to take me to an appointment, I need you on different levels...you're my link to the outside world...if you don't come to visit..then I might not get to see you. And as much as possible. I need you to try to understand me. > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 , The pool therapy is great. Do you have insurance that will pay for it. My insurance pays all. I could never handle a 94 mile trip. Your a lot stronger than me. God Bless Kathy D, .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 > , > The pool therapy is great. Do you have insurance that will pay for it. > My insurance pays all. I could never handle a 94 mile trip. Your a lot > stronger than me. > God Bless > Kathy D, > . > > >Dear Kathy D., My insurance does not pay all. I must pay a $15 co-pay. I don't know how much longer I can continue with this therapy because of the expense and drive. Just I have to do what I can. Thanks for the reply. Love to ya, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 In a message dated 5/10/01 1:56:17 AM Eastern Daylight Time, jspraker@... writes: > Just I have to do what I can. > > That's right. We can only do what we can. Have a great day , (that was my sister's name) Love ya, Kathy D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Kathy, I am imprssed! 94 miles?? I can barely drive 20 without needing to nap. (I had to change to the passenger seat on I66 down in VA one day...it wasn't pretty!) Age: 34 Dx'd: early 1990s Location: southeastern Vermont Children: 1 four-legged furry one named Missy Siblings: 3 sisters, 1 brother (I am the youngest) Currently renting from mom, working for mom, and typing at home. I am divorced and been with SO since 1997. > >Reply-To: >To: >Subject: (unknown) >Date: Wed, 09 May 2001 15:44:45 -0000 > >Dear , > >Thanks for the quick reply. I needed an uplift this morning and your >message helped. > >I live in southwest Virginia, in Wythe County, in a very small >community called Speedwell. I just recently moved from our small >town called Wytheville. We have lots of Grosecloses here. I >wondered if you have any family connections here. > >Thanks again. I have to leave for pool therapy. Anyone else take >exercise and whirlpool in a full body heated pool. First go around >for me. I am getting some relief from pain and stiffness from this >particularly bad flare-up. As always, money is a factor in how long >I can keep going. Also, it is a 94 mile round trip. Some days I >have to cancel because the drive alone is just too much to handle. > >Love ya all, > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 First of all, CONGRATULATIONS!!! I am 30 and having kids was not in the game plan for my husband and I, but we are both very excited. My doctor gave me a bag with a ton of samples for prenatal vitamins, I take the nestabs because they are the smallest and they go down the easiest. I also take flintstones vitamins as well. They do have flintstones with added iron, but ask your doctor first. The only problem that I had with those was my teeth turned black, but the dentist was able to clean them in no time. Just follow your doctor's orders and if you have any other questions, this group is very helpful as well. Take care and please keep us posted. =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Carla, I don't think there is anything wrong with big families! We only have 2 living children here and they're 11mos 6 days apart in age and yes I got dirty looks and the " better you than me " comments but thats exactly it! I LOVE my " irish twins " and wouldn't have it any other way and we're planning on another child (even though my current OB (looking for another) said that I have a boy and a girl two is enough more than that is expensive.. what does he care I have great insurance that pays him on time!) You might *think* you're too old but you're not! Go for it! :0) *~Joy~* Lap RNY 2/26/01 Dr. N. Bertha, D.O. @ town Memorial Hospital town, NJ Down 161lbs as of 9/14/01 Seeing the weightloss in MY eyes for the FIRST TIME! Mommy to: 1-9-99 & Saralyn 12-15-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 I have three children too, although they are my step-children. But in their eyes and mine I am the only Mom they have. They have no contact with their birth mom and the two girls, aren't even to the point they realize I am not their birth Mom. We plan on trying to conceive in April. We also get the 3 kids is enough speech. I look at it this way, as long as I am not asking for help in raising them, I should be able to have as many children as I can/want. Good Luck to you (unknown) Hi everyone, I am new to this group. I had open rny on June 8 2000. I have done wonderfully, lost 127 pounds and I am now in a size 8 to 10. I worked hard for it and exercise everyday. Ok for the last couple of weeks I am having a maternal instinct. Plain and simple I want another baby. As you all don't know I have 3 kids 2 boys (7 & 5) and a 2 year old girl. I have been saving money to have my tummy tuck and some other surgeries for this coming January. I have to make up my mind now on whether we should have this child, cause I need to do it before a tummy tuck or it would be a waste of money. When we got married almost 7 years ago (to my high school sweetheart) we wanted 4 kids, but after loosing all this weight I had my mind going the other way. Now I am feeling like having another baby. I know my work and family would have a fit, because the world thinks 3 kids are enough. My husband says the hell with what everyone thinks. We also wanted to have all are kids young (by the time we were 32). I am now 31 and hubby is 32 so we are out of time (by our book). We are financially ok have a big house 5 bedrooms 3 baths. Both have good jobs and we still have all the equipment needed for a baby, cause my little one is only 2 (will be 3 in March) so we still have all her stuff. The con is the daycare bill will be expensive and we just got that down (both boys are in school, and it is just her). My husband and I are split down the middle on should we go for it or not(leaning a touch more to having one). Here is where you all come in. Give me your opinion and what you think, like real soon..........NOW, cause I am running out of time. We want to get pregnant right away and with my cycle I will be ready in 2 weeks. Thanks for all your help. Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Thanks for your words. > I have three children too, although they are my step-children. But in their eyes and mine I am the only Mom they have. They have no contact with their birth mom and the two girls, aren't even to the point they realize I am not their birth Mom. We plan on trying to conceive in April. We also get the 3 kids is enough speech. I look at it this way, as long as I am not asking for help in raising them, I should be able to have as many children as I can/want. Good Luck to you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Carla hi I am Pam I had my surgery in DEC of 1999. I was 37 when my last daughter was born 6 months ago and my husband is 43. I am 38 and my husband is still 43 and we will be having another baby in 6 months. number 4. So your time is not running out clock whys. You just have to figure out what you want more a baby or a tummy tuck. Which you can have after the baby. Just my input. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 In a message dated 10/1/2001 5:02:24 PM Eastern Daylight Time, pkr63@... writes: > Carla hi I am Pam I had my surgery in DEC of 1999. I was 37 when my last > daughter was born 6 months ago and my husband is 43. I am 38 and my husband > Pam, Being a mom of babies close in age I'm curious how far apart your little ones will be? Mine are 11 months and 6 days apart (born pre-op when I was around 420lbs and was 22 & 23yrs old :0)) Their info is below :0) BTW its not as hard as some might think! *~Joy~* Lap RNY 2/26/01 Dr. N. Bertha, D.O. @ town Memorial Hospital town, NJ Down 170lbs as of 9/27/01 Seeing the weightloss in MY eyes for the FIRST TIME! Mommy to: 1-9-99 & Saralyn 12-15-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Pam, By all means I do not think we are old. Our plans were to be done by this time. Those were our personal plans. We wanted all the kids on their own by the time we were 50 so we could have some time to ourselves. We have gone off of birth control and if it happens before December then great if not then I will probably go on with my tummy tuck plans for the end of January. Thanks for your input. I am grateful to have it. Carla Re: (unknown) Carla hi I am Pam I had my surgery in DEC of 1999. I was 37 when my last daughter was born 6 months ago and my husband is 43. I am 38 and my husband is still 43 and we will be having another baby in 6 months. number 4. So your time is not running out clock whys. You just have to figure out what you want more a baby or a tummy tuck. Which you can have after the baby. Just my input. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hubby and I have recently been discussing our options as far as how many children we'd like to have, how far apart we'd prefer to have them etc. It's really such a strange thing for us. Being childless for so long, and not sure that we'd ever be able to have children, we've not had these sorts of conversations before. Now that we've successfully conceived, and are fast approaching the half-way mark, I'm very optimistic that we will have a baby...and maybe even more than one! This has been such a wonderful blessing for us...I can't express it strong enough just how grateful we are. We are thinking of having 3 or 4 (if we are physically able to) and leaving the spacing up to God. I would love to hear people's opinions about spacing and numbers of children. Blessing, in California EDD March 20, 2002 with baby #1 ********************************************************************** Being a mom of babies close in age I'm curious how far apart your little ones will be? Mine are 11 months and 6 days apart (born pre-op when I was around 420lbs and was 22 & 23yrs old :0)) Their info is below :0) BTW its not as hard as some might think! *~Joy~* Lap RNY 2/26/01 Dr. N. Bertha, D.O. @ town Memorial Hospital town, NJ Down 170lbs as of 9/27/01 Seeing the weightloss in MY eyes for the FIRST TIME! Mommy to: 1-9-99 & Saralyn 12-15-99 Quote Link to comment Share on other sites More sharing options...
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