Re: (unknown)

[Guest guest]

Hi Gang, my father was bipolar. He was always manic never depressed. He

was hyperthyroid.

[Guest guest]

Dear Jen

I hope your sister is getting better and the Drs are able to find the correct

combination of medication for her.

From the other posts I agree that it seems to be connected to the thyroid

problems.

All the best

Caroline

Bill/ Fleming wrote:

> Hi all,

>

> We had to put my sis in the psych unit of one of our local hospitals this

> past weekend. They think she might be bipolar. Do you all know of any

> connection between GD and bipolar disorder? As you can imagine my family is

> greatly distressed. For the last ten years my sis has been battling GD and

> we thought that was the reason behind her mental instability. This new

> diagnosis explains A LOT.

>

> Thanks for listening.

>

> Jen

>

> _________________________________________________________________________

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>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

[Guest guest]

on 1/1/01 1:01 PM, Shanna at sherbahn@... wrote:

> Now who is this supposed to be addressed to?

If the shoe fits.......

> Shanna

> (unknown)

>

>

>> This is exactly what I was talking about in my last post. The

>> aggressiveness, pettyness, I don't know what has gotten you on

>> the defensive, but grow up and move on. You are ruining this

>> board. I have better things to do than read nasty, SCREAMING

>> posts from you . So what if there was a misunderstanding.? Let it

>> go. You don't have to have the last rude word in. I was sure you

>> would get bent out of shape by my post and be aggressive to

>> me too. I found a few posts that demonstrate my point. #4772,

>> 4777, 4778, 4780. I'm sure there is more , but it is a waste of my

>> time , since I don't think you will see yourself as being wrong. I

>> am glad I was part of this board, it helped me get through a lot of

>> rough times and got some questions answered, but if this is the

>> future of this board, I'm outta here.......Windie Lilly

>>

>>

>>

[Guest guest]

Hi -

You can have Graves' ophthalmopathy without having thyroid involvement. Or

maybe you are heading that way too. If you're seeing your TSH levels drop

from what they were when you were healthy, even if they're still in the

normal range, it might make a difference for you. Some people are very

sensitive to any changes at all and maybe you are one of those which could

explain your anxiety disorder (anxiety can be a symptom of Graves').

I don't think you could file a successful lawsuit against your MD since your

TSH came back as normal. But, perhaps, you could be tested for Graves'

antibodies. Elaine knows far more about antibody testing than I do and I'm

sure she'll answer too.

Take care,

(unknown)

> Hello everyone. I have some questions. Thank you so much for your time,

should anyone chose to answer!

> I am wondering if I have a lawsuit against my MD. (I think that might

get the interest of the medicos and the insurance companies: If enough of us

recognized our injury and sued for it!) I was diagnosed with anxiety

disorder in the mid 80s. I have been off work since then. My doctor sent me

to an ophthalmologist when I reported double vision. I was diagnosed with

Graves' ophthalmopathy on the 22 of February, 2001. I made sure my doctor

got the news right away. It is now March 16th. Isn't there something they

should be doing right now? Some tests? (My thyroid tested normal recently)

The eye guy said he will wait and see if surgery will help when it's all

over. But what about the rest of me??? Is it really possible that I haven't

had anxiety disorder at all? Or is this another disease on top of anxiety

disorder? Is there any way I could possibly tell??? Does anyone out there

have any answers???

> Thanks,

> K

>

>

>

[Guest guest]

Hi ,

I sure don't have the answer, but one thing I would really push for with

your dr. is for the antibody test for GD...don't let him settle for just the

results of a TSH. Others will respond too I am sure.

Good luck,

Jody

_________________________________________________________________

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[Guest guest]

Hi K,

Graves' ophthalmopathy (GO) can occur without any thyroid involvement,

although most patients do at least have thyroid antibodies and many of them

go on to later develop hyperthyroidism. Having GO in the absence of thyroid

disease is known as " euthyroid graves' disease. " So that could be your case.

20% of the cases of GO occur in patients who have Hashimoto's thyroiditis and

not Graves' disease, and GO can also occur in patients on lithium therapy.

Or you may have only had one thyroid test ordered when you were tested for

anxiety, such as a total T4, and that could have been normal...but you could

have had an elevated T3 and suppressed TSH and these weren't tested at the

time--this is what happened to me years before my GD diagnosis. For years I

was treated for high blood pressure. When my doc finally ran a TSH and T3,

these tests were abnormal although my T4 was never elevated. I don't think

you have cause for a lawsuit unless you can prove that you were hyperthyroid

at the time you were diagnosed with anxiety and your hyperthyroid condition

progressed since you weren't properly treated.

With Graves' ophthalmopathy, surgery is generally held off until your eye

symptoms stabilize. Otherwise, several surgeries may be required to keep

correcting changes.

[Guest guest]

Hi K,

Graves' ophthalmopathy (GO) can occur without any thyroid involvement,

although most patients do at least have thyroid antibodies and many of them

go on to later develop hyperthyroidism. Having GO in the absence of thyroid

disease is known as " euthyroid graves' disease. " So that could be your case.

20% of the cases of GO occur in patients who have Hashimoto's thyroiditis and

not Graves' disease, and GO can also occur in patients on lithium therapy.

Or you may have only had one thyroid test ordered when you were tested for

anxiety, such as a total T4, and that could have been normal...but you could

have had an elevated T3 and suppressed TSH and these weren't tested at the

time--this is what happened to me years before my GD diagnosis. For years I

was treated for high blood pressure. When my doc finally ran a TSH and T3,

these tests were abnormal although my T4 was never elevated. I don't think

you have cause for a lawsuit unless you can prove that you were hyperthyroid

at the time you were diagnosed with anxiety and your hyperthyroid condition

progressed since you weren't properly treated.

With Graves' ophthalmopathy, surgery is generally held off until your eye

symptoms stabilize. Otherwise, several surgeries may be required to keep

correcting changes.

[Guest guest]

Hi Jody, I did have a test called...a pyroxidase antibody test...is this the

one you mean? The result was a level of greater than 70 when normal is to

be less than 2. Is this the only clear indication of Graves? thanks, Ruthie

Re: (unknown)

> Hi ,

> I sure don't have the answer, but one thing I would really push for with

> your dr. is for the antibody test for GD...don't let him settle for just

the

> results of a TSH. Others will respond too I am sure.

> Good luck,

> Jody

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

[Guest guest]

Hi ,

Your results for anti-microsomal antibodies are negative, that is none were

seen at a titer of 2 which is the detection limit. The microsomal antibody

test is essentially the same test as the thyroid peroxidase antibody test in

most labs. These antibodies are more likely to be seen in hypothyroidism.

When they're seen in euthyroid patients who have a steadily rising TSH it's

considered a risk factor for hypothryoidism.

Since these are not the antibodies associated with Graves' disease or

symptoms of GO, a negative result doesn't tell you anything. Had the test

been positive you would have at least known that your disorder was likely an

autoimmune thyroid disorder. A positive test for thyroid stimulating

immunoglobulins will tell if your orbital tissue changes are due to

autoimmune thyroid disease. A test for blocking antibodies would be good too

because a positive titer would explain why you're euthyroid...that is if both

tests are positive.

[Guest guest]

Hi ,

What a fascinating comparison. Wonder if the stress related to the panic

triggers the GD or if the panic is a manifestation of Graves' disease. I

suppose it could be a combination, but I suspect that many people who were

treated for panic disorders actually had hyperthyroid disorders. While I was

never diagnosed with a panic disorder, it's only because I never mentioned my

panic to a doctor. I used to get into such a panic about driving in snow I'd

break out into hives, get up two hours early to take the bus, and beg people

for rides.

[Guest guest]

Hi ,

Plasmapheresis was used experimentally for GO for a while in the 80's but it

didn't prove very promising. The problem is that immunoglobulins are short

lived and constantly being produced in active GO. So removing one's plasma

does reduce your immunoglobulin level, but the effects only last a few weeks.

I'm interested in your daughter's migraines. My daughter also gets them and

nothing has really helped them except beta blockers. She was put on beta

blockers for elevated blood pressure at age 24 (and my son went on them at

age 25, and they're both athletes, otherwise very healthy). While on the beta

blockers she never had migraines. Then her blood pressure dropped and she was

taken off them. The migraines are back.

Before my GD diagnosis, in my late 20's when my symtoms were actually at

their worst, I was treated with beta blockers for high blood pressure which

mysteriously disappeared after a few years. In retrospect, I think the beta

blockers kept my GD symptoms in line.

[Guest guest]

Hi -

I had to retrieve an echocardiogram that I had done for a heart murmer (I

didn't want to have to take antibiotics unneccessarily for dental work). My

doctor had " retired " (she had had a baby and wanted to be a homemom). It'd

been years since she had gone and I had no idea where to start. So I went

to the old office where she worked and asked where old records would be (I

couldn't find her anywhere). They weren't sure that they would be there but

they told me to try another office and, sure enough, they were there. They

photocopied them and handed them over immediately. It sure wasn't a very

organized way to find my old records but it worked and it didn't take much

time.

Take care,

(unknown)

> I am writing this time to see if anyone has actually had to retrieve

medical records from the past and how easy is it? I am especially interested

in getting records that were used in my worker's comp case against the state

of California's insurance company for refusing my comp claim. Based on

several doctor's opinions I had developed a generalized anxiety disorder

while working in a state hospital for the developmentally disabled, under

dreadful, illegal, conditions. So, there is, or was, a ton of stuff. Mostly

psychological tests, but also physical exams, too. This was in '87 or so.

Would they be a part of a public record or something that I could just

request?

> Also, I read somewhere that beta blockers are the only intervention

used by some doctors. They protect the heart and other organs while waiting

for the attack of the immune system to be over. Doesn't this sound like a

reasonable treatment course? Perhaps with some yoga, meditation and massage

thrown in, it would be do-able. Any thoughts on this?

> http://www.suite101.com/article.cfm/graves_disease/51468

> The above is an article by Elaine about beta blockers. Anyone use

them without feeling side effects?

> One more thing, my mom had migraines. I don't, but my daughter does.

Are migraines linked to autoimmune diseased families?

> Oh, yeah, and how come people with myasthenia gravis get

plasmapheresis, a procedure in which abnormal antibodies are removed from

the blood and we don't?

> Oh my God! This is starting to take all my time!

Must......walk.......away.................

[Guest guest]

karen,

I'm a migraine sufferer as was my my, is my daughter and one of my sons--my

mom had thyroid cancer. Don't know the answer for anyone else, but if this

helps...

Terry

>

> Reply-To: graves_support

> Date: Fri, 30 Mar 2001 13:54:08 -0800

> To: <graves_support >

> Subject: (unknown)

>

> One more thing, my mom had migraines. I don't, but my daughter does. Are

> migraines linked to autoimmune diseased families?

[Guest guest]

karen,

I'm a migraine sufferer as was my my, is my daughter and one of my sons--my

mom had thyroid cancer. Don't know the answer for anyone else, but if this

helps...

Terry

>

> Reply-To: graves_support

> Date: Fri, 30 Mar 2001 13:54:08 -0800

> To: <graves_support >

> Subject: (unknown)

>

> One more thing, my mom had migraines. I don't, but my daughter does. Are

> migraines linked to autoimmune diseased families?

[Guest guest]

Hi Elaine,

I also get migraines, have had them since I was a teenager. All the females

in my family get them. From my dads side and moms. Since my two daughters

have started their periods they also get them, but the 13 yr. old I believe

has had them since she was 2 or 3 yrs and I believe my 3 yr. old son gets

headaches. She's always complained of her head hurting. Chuck and I both get

them, we all have hay fever, Chuck, the youngest girl, my son and I get them

the most. My husband and I both grew up having nose bleeds, the youngest

daughter and my son get nose bleeds. Strange?!

This doctor I started going to this week, when I started going to him the

before I got pregnant the first thing he did was put me on beta blockers for

my high heart rate, my blood pressure was higher than normal but not high.

At the time I started going to him I'd had a headache for 6 wks., he called

it a cluster headache and said it was unusual for GD patients to get them. I

was told that the beta blockers were found to help migraine suffers, but

that drug companies at that time in 1996 wouldn't pay for people with

migraines to use them. After having my son and went to the maintenance dose

of 50 mg. of PTU I couldn't take the beta blockers because it made my blood

pressure go too low During my pregnancy they took me off them. The funny

thing was after having such a high pulse rate for so many years and once on

the beta blockers it went to between 70-75 I felt great, that's when I got

pregnant. I hadn't felt that good in 5 yrs.

I didn't tell any of you, but they are doing a pregnancy test on me. I am

trying not to get excited about it, my husband don't think I am because I am

still having periods. Me, I've been so tired, wouldn't be surprised. I am

44 yrs. old, and know if I am I will be in bed my entire pregnancy. But, it

did scare my husband, he is going to see the doctor April 10th, I told him

if I am it is too late. It is going to be a long wait, until the results are

in.

I also have another question, I tore a tendon in my elbow, the inside,

didn't know it, now I have scar tissue and it hurts sometimes. Does anyone

know what causes a tendon to tear, or what to do for it?

Debbie

[Guest guest]

,

I had to retrieve records twice, once from my doctor who cared for me as a

child. It wasn't easy, she had retired, but did keep her records in the

basement, and did find them.

The second time I tried to retrieve records the doctor wouldn't cooperate,

it took months, by then they weren't very useful because the doctors had to

treat me without them. I learned that time, if you need your medical

records and the doctor is still in practice, but won't release them. Take

legal action immediately to get them. My friend is a private investigator

and she told me to get law enforcement to go with you and demand they make

copies while you wait.

And, yes, I get migraines. I wrote it all in a note to Elaine. I had

missed your post in my email.

Debbie R.

[Guest guest]

Bernie,

First let me say I am sorry for your father's troubles. I know what you are

going through because I too have a parent who has recurrent colon cancer.

As for support groups, I would call the American Cancer Society... maybe call

the closest Cancer research Hospital in your area for leads. Perhaps he would

benefit from one on one support with a counselor??

My Mom is the same way, although she reads the posts here, she is not

comfortable with talking about her illness.....I am hoping that will change

because these people here are just wonderful people. Maybe a crash course in

computers so your Dad can read theese posts ???

a

boyimissu wrote: Hello,

My father has colon cancer. He had 18 " removed but is now

fighting the cancer as it has moved to his liver. He is pursuing an

unconvetional method. Here is what I am looking for, My father is not

into technology and though this is a great format he would not

benifit from talking to people on line. I was looking for a colon

cancer support group in the Cleveland Ohio area.

Bernie

[Guest guest]

Hi , welcome to the group. We've heard all about you! This is a friendly

place full of support and encouragement, we learn from each other every day.

This group guided me into my fourth and final round of chemo; I was ready to say

NO to going back in, they were gentle with me, but firm and honest and I'm

really glad I asked and listened. They encouraged me to follow through with

every available treatment, because, as you know, recurrence is no picnic.

After tomorrow's dose, I will be half way through the last round; just three

more to go after tomorrow! yippee! And I'm feeling pretty good, most days.

So don't be shy, - you have an incredible story to tell and you're a

survivor! We need to hear from you.

Blessings,

Terri

Dx Stage 3 rectal cancer Sept 2001

[Guest guest]

This is so sweet, mom and daughter. Makes me cry. What a team!

tg.

[Guest guest]

my joisy girl.I was heavy smoker since the 60s I stopped

in 94 it was the neuro sarc but I thought it was the wacky

weed that had me waking up on the floor in the morning the

weed was the only thing that would stop my headaches.Parents

do not understand and will not condone the weed all they see

is something that they think is bad for you.But they have not

had to deal with the sarc monster.so if that helps you

fine.Have a good summer and take care......Quint

[Guest guest]

0

carrots!

I think you should get beyond the guilt and if it helps you bear this

life of ours a little bit better, then more power to you.

Love,

nicole santiago-rolon wrote:

>hey guys,

> well, carrots here reporting in. i have moved into my own apartment,

>love it. got a promotion at my job and i am now the supervisor of my own

>department . manager of policies and final docs. so i am for the most part

>happy. dont have a car yet but, i am working on that. bf and i are ok, still

>a little argumentative but, guess that comes along with the whole growing

>pains thing. i have been pretty stressed though. from just about everything

>especially us fighting so much and what to do about it.

> my confession,

> i smoked weed last night. i dont like to do things like

>that , but i felt that i was at the point of a relapse with my nerves and

>headaches and numbness and not sleeping. i know that when i smoke it makes

>me feel like everything just slows down for a minuted, in a way paralyzing

>all the tension so i could really " relax " and calm my nerves. i feel bad

>cuz im sure my parents wouldnt condone this but, honest to everything i

>know, it really helps when it gets that bad for me.

>what do u all think?

> carrots/nicole

>

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[Guest guest]

Hi dear a good lung doc I know is Dr Monroe Karetzky

at Newark Beth Israel Medical 201 Lyons ave

phone- hope this helps...... Quint

[Guest guest]

oh god, I am so sorry you are so sick..........I know this drug is dreaded by all but you sound as if you may need a short course of steroids to get your inflammation down. Has Mr. Dr. mentioned?...also, what type of specialist have you gone to?...if its just pulmonary, then you need to get to a rheumy..........

Good luck, and feel free to ask any of us more questions, that is what we are all here for

Stacie

[Guest guest]

you need a good rheumatologist......

[Guest guest]

Specialists

internist

neurologist

vascular

I live in a small town called MIdland Texas

the closest clinic is and White and I have to fly to get there

> oh god, I am so sorry you are so sick..........I know this drug is

dreaded by

> all but you sound as if you may need a short course of steroids to

get your

> inflammation down. Has Mr. Dr. mentioned?...also, what type of

specialist have

> you gone to?...if its just pulmonary, then you need to get to a

> rheumy..........

>

> Good luck, and feel free to ask any of us more questions, that is

what we are

> all here for

>

> Stacie