Re: (unknown)

[Guest guest]

For Debbie:

We are all behind you. What a great letter! I agree with you. If PTU is

working, why do RAI? I plan to never do RAI. I'm doing fine finally, after

up and down since August. It might not last, but it's good now. Good for

you, going back to work and thinking about being an EMT! We'll all be

rooting for you!

Marsha

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

[Guest guest]

Joy,

That is exciting! You never know who you will come across. My neibour's

grandson was born with clubfoot. He is nine months old. Any way I told my

neibour about Ivy and her treatment w/ Dr. Ponseti and she told her daughter

in law. Last week she called and asked to come over because she want to

know more. Bruce her son is scheduled for surgery March 30th at the

Shriners Hosp in St Louis. She was impressed with Ivy's feet, but didn't

know if they could help her because Bruce had surgery at 10wks old. I

printed off some key information from Dr. Ponsetis web site. (Kim your

photo album of 's feet is nice.) The choice is hers, but I am

blessed to meet another mommy with a child with clubfoot.

Sara and Ivy

(unknown)

> From: joybelle15@...

>

> I am so excited! Today I received a message from a woman with a child

> who has clubfoot. She had seen my webpage a couple of weeks ago and saw

> Rose on tv!! She only lives about 30 miles from me, so I " m hoping to

> meet her soon. She's going to write to Sandidge, and I think

> she's going to join this list. I hope so! I just had to share

> because it was pretty exciting to find someone this close and finding

> out that Rose's page is being found on search engines!

>

> Well, thanks for letting me share.

>

> Joy

>

> P. S. Where is everybody lately? We're being kinda quiet here!

>

>

> http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE

>

>

> ------------------------------------------------------------------------

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>

[Guest guest]

Joy,

That is so exciting! I've put 's website on a couple search

engines, so I'm hoping people will find his, too.

In Him,

Kim, wife to

mother to Kaelyn, Chandler, Corey, and

http://albums.photopoint.com/j/AlbumIndex?u=254581 & a=1892774

[Guest guest]

Hello, can you explain what is CPM machine, how it works etc..

Vesna

[Guest guest]

The CPM machine just works one foot at a time. It works in 3 different

planes...off the top of my head, I'm not certain of the terminololy except that

I know it works dorsiflexion and abduction. I can't remember the 3rd plane

that my son was using. It has variable speed settings. At bedtime, I would

tape my son's foot to a plate, then when he fell asleep, I would put him in bed

and attach his foot to the machine via the plate and turn it on. While he

slept, the machine slowly moved his foot thus helping to loosen it up. The

machine is used in conjunction with physical therapy where we manipulate his

foot to stretch or lengthen the ligaments that hold the foot in the clubfoot

position. Since he is not in serial casting, he has been able to move his foot

on his own and develop muscle tone. His physical therapist could really tell

the difference after he had been on the machine because she didn't have to work

with him as much in order to physically move his foot into the neutral

position. It allowed more time for her to manipulate his foot. The machine

works best for newborns and is difficult to use after about 3 months of age due

to the child's movement and strength. My son doesn't mind any of the treatment

and has only cried when his ortho examines him because the dr. is more

aggresive to see just how far the foot will move.

The CPM is a scaled-down version of what is commonly used on adults. CPMs are

used after knee surgery, etc. to gain range of motion in the affected area.

Even after surgery, the passive motion is normally painless.

The hospital where my son goes for treatment is trying to purchase some more

machines, but has not been able to as of yet. The machine my son used was

donated and was kind of experimental (although, this particular machine made

for infants is, to my knowledge, used quite a bit in France where the machine

is manufactured). We were extremely fortunate to have been able to use it.

The results are tremendous.

I want to get this information out there in hopes that other children can

benefit from it as our son has. I'd welcome any questions anyone has and will

answer them as best I can.

Thanks,

Traci Merkel

Vesna Lokar wrote:

> Hello, can you explain what is CPM machine, how it works etc..

>

> Vesna

>

> ------------------------------------------------------------------------

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> more each month? Join beMANY! Our huge buying group gives you Long Distance

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>

[Guest guest]

Now I know what you mean...I've seen them used on adults. It sounds very

interesting. My daughter had strapping as a baby, but still needed the

ligaments lenghtened at 9 months. Now I'm beginning to see that it just

isn't 'aggressive' enough by itself...your treatments sounds good.

--

www.clubfoot.co.uk

www.hostedscripts.com/boards/MJM/ - Message board.

----- Original Message ----- |

| The CPM is a scaled-down version of what is commonly used on adults. CPMs

are

| used after knee surgery, etc. to gain range of motion in the affected

area.

| Even after surgery, the passive motion is normally painless.

[Guest guest]

, I just got a roll of film developed and had a picture of Caleb on the

CPM...I've added it to his web page. If you want to take a look at it, the link

is below.

Traci

http://sites.netscape.net/jmerkelfamily/clubfoot

wrote:

> Now I know what you mean...I've seen them used on adults. It sounds very

> interesting. My daughter had strapping as a baby, but still needed the

> ligaments lenghtened at 9 months. Now I'm beginning to see that it just

> isn't 'aggressive' enough by itself...your treatments sounds good.

>

>

> --

> www.clubfoot.co.uk

> www.hostedscripts.com/boards/MJM/ - Message board.

>

> ----- Original Message ----- |

> | The CPM is a scaled-down version of what is commonly used on adults. CPMs

> are

> | used after knee surgery, etc. to gain range of motion in the affected

> area.

> | Even after surgery, the passive motion is normally painless.

>

> ------------------------------------------------------------------------

> 72% off on Name brand Watches!

> Come and buy today and get free shipping!

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>

[Guest guest]

,

We are in San , TX. We knew nothing about clubfoot when Caleb was

born. In fact, we were told by 4 different professionals in the hospital that

Caleb didn't have a clubfoot, that it was just turned in and would probably

correct on its own...we were referred to our ped ortho just to have it looked

at. Fortunately, the dr we were referred to is the only one (that we are aware

of) in San that uses this method. We met with the physical therapist

that day and started treatment the next. The dr is in a group practice, but

the only one in the group that uses this method.

Anyway, the dr had sent our physical therapist to France to learn from the

Demeglios. She is very good. I believe she also knows Holly in Dallas. The

name sounds familiar, I think she had called to ask Holly some questions about

Caleb.

It seems to me that many physicians don't want to use this type of treatment.

There was another family that I met here that was driving 4 hrs one way to see

our PT. It was getting too costly and time consuming for the family. PT tried

to get their physician to send their PT for even one day to learn how to do the

manipulations, but I don't think the dr was willing. This is one reason why I

wanted to get our information out to people. We are extremely blessed to have

had this opportunity pretty much fall in our lap. But, had we not gone to this

particular dr, we wouldn't have known this particular treatment was available.

If you're like us and don't know that your child will have a clubfoot ahead of

time, you don't have much time to research different types of treatment.

Sorry if I said more than you wanted to know. I thankful to be able to share

this information.

Traci

Egbert wrote:

> , and Caleb,

>

> Welcome. We are all interested in learning more about alternative

> treatment methods, especially ones that can help to avoid surgery. I

> am curious to know where your doctor practices if you wouldn't mind

> sharing that information.

>

> We have previously had some other web sites listed through links

> here with some limited information about French Physiotherapy

> methods. Most of those sites and information is listed on the

> Masoner's site at

> http://www.clubfoot.net/treatment.php3

>

> Also I have previously talked to Holly at the Dallas Scotish

> Rite Hospital about their use of one of the French Physiotherapy

> methods. That information can be found at

> http://boards2.parentsplace.com/messages/get/ppclubfoot22/47.html

>

> >From a site the Masoner's found reporting on a 1997 Symposium on

> Clubfoot treatments in Paris, there is some information on some of

> the French methods and a brief report by Dr. Dimeglio (who it

> appears is the doctor that developed the use of the Passive Motion

> Machine) That site is at http://www.afcp.net/EFAS_97.html

> Supposedly, one of the other main French Physiotherapy methods is one

> developed by a Dr. Bensahel.

>

> >From these sites it appears that the French Physiotherapy methods

> have success with non-surgical treatment between 50% to 75% of the

> time, which is a lot better than most other doctors have been able to

> achieve. And also, like the Ponseti method, if they are not

> successful in eliminating the need for surgery, their use allows for

> fewer surgical procedures to have to be used should that need arise.

> We are glad that it is working well for Caleb and welcome

> to our group.

>

> and (3-17-99)

>

>

[Guest guest]

SME456@... wrote:

> His foot seems pretty straight now, but

> the heel won't come down. Our orthapedic doctor wants to do a heel

> cord lengthening and we have that scheduled for the 17th of August.

>

> Now, here are my questions: First, our doctor seems to think that

> after the heel cord surgery, that Sam will probably only need a few

> more weeks of casting. Then he feels that a velcro fastening leg

> brace and then normal shoe wear will be all he needs to hold the

> correction. He doesn't think the bars will be necessary. Have other

> people done this also? Are the bars only needed when the child has

> two clubfeet?

Heel cord lengthening is a fairly minor procedure, and is the

standard thing to do to bring the heel down. It's done with just

about every case of clubfoot.

There are some doctors who advocate the use of the " Denis Browne "

type bar (DBB) after casting is complete instead of AFOs (the

velcro-fastened leg braces). The theory is that the DBB does a much

better job of preventing recurrence of the clubfoot, as well as

preventing other problems that are associated with clubfoot such as

tibial torsion. can provide much more information about the

reasons DBBs should be used over AFOs.

For more information, I would recommend that you read:

<a href=http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Clubfeet.html>

To Parents of Children Born with Clubfeet</a>, written by Dr.

Ponseti at the University of Iowa.

Masoner

http://www.clubfoot.net/

[Guest guest]

Suzanne,

My daughter Anne is now 4 1/2 months old. She has a right clubfoot. She

wore the casts for about seven weeks then had surgery. She was in a cast

for 2 1/2 weeks after that and now wears a DBB (shoes with a bar attaching

them). At seven weeks she had the anethesia and surgery for heel cord

lengthening. She did fine with it. I remember her smiling at me in the

recovery room and also the next morning after everything had worn off. Our

doctor and the nurses were great with her and she did very well. She spit

out the tylenol they recommended for pain, but I don't think she was in much

pain. Our doctor used to use the brace, but now feels that the DBB is

better at keeping the correction. Good luck!

> (unknown)

>

> Hello. This is the first time I've written in this egroup, but I've

> been reading your postings for a few weeks now, and I've found them

> very helpful.

>

> I guess I should introduce myself. My name is Suzanne and I live in

> Wisconsin. My husband was born with both feet having

> clubfoot, but his were very severe. One was so bad that they

> practically had to take the foot off and put it back on in the proper

> position. Because of this he has no ability to flex or rotate his

> foot. My son is 16 weeks old and was born with a moderate

> left clubfoot (nothing like his dad). He has been in a full leg cast

> since he was two weeks old. His foot seems pretty straight now, but

> the heel won't come down. Our orthapedic doctor wants to do a heel

> cord lengthening and we have that scheduled for the 17th of August.

>

> Now, here are my questions: First, our doctor seems to think that

> after the heel cord surgery, that Sam will probably only need a few

> more weeks of casting. Then he feels that a velcro fastening leg

> brace and then normal shoe wear will be all he needs to hold the

> correction. He doesn't think the bars will be necessary. Have other

> people done this also? Are the bars only needed when the child has

> two clubfeet?

>

> My second question is concerning the surgery itself. A big part of

> me is happy to get it over and done with, but then I'm also scared of

> the surgery, mainly the anestetic. Have others had their child

> operated on at four months, and if you have, do you have any

> reccomendations on how to get through it?

>

> Lastly, my mother-in-law and I have had a falling out of sorts

> because had all of his work done at Shriners, so she thinks

> Sam should go there too. We have had a lot of success with this

> doctor, so we feel this is unecessary. Our doctor comes highly

> reccomended. In fact, his own son had a clubfoot that he corrected.

> I guess Shriners offers more comfort to her because that's what she

> knows. I guess instead of a question, I'm looking for more support,

> especially now that Sam's surgery is coming up, because I've all of a

> sudden lost the support I did have because she doesn't agree with

> us. Bless her heart, she's a good woman who has gone through a lot,

> but when she feels she's right, there's no contradicting her. She

> feels we're disrespecting her because we're not doing it her way.

>

> Thanks for reading my awfully long posting. I'll be looking forward

> to hearing your response.

>

>

>

>

>

[Guest guest]

Hi :

Wow your son must be raring to go if he was able to crack his casts. He will

certainly keep you busy when he learns to walk. I am glad is doing well

and everything for the hell cord tenotomy went well. Why did he have to go

under anathestic? I thought this was done under local freezing? My son will

be 4 1/2 mths by the time we see Dr. Ponseti, does being an older baby have

something to do with going under?

I have had oral surgery that required myself to go under and coming to was

not a lot of fun I can not imagine a small baby going through this. How did

do when he came to?

I will be thinking of you on the day gets his casts off. I am sure you

are anxious to see his feet.

Take care and I will keep you posted.

Suzane and Family

[Guest guest]

Suzane,

My son had his tenotomy done by Dr. Ponseti at 4 1/2 months old

and had local anesthetic. I think it depends on the doctor more than the age.

In Him,

Kim, wife to

mother to Kaelyn, Chandler, Corey, and

http://albums.photopoint.com/j/AlbumIndex?u=254581 & a=1892774

[Guest guest]

Hi Toby,

Welcome to our group. Do you take any other medication besides the

Prednisone?

Deana

[Guest guest]

Hi Chaber and welcome to our group! You are in the right place! I'm

particularly itchy as of late...with that nasty angioedema, today primarily

in my feet. Take care!

-Judy in Virginia

[Guest guest]

Unfortunately, welcome Toby. Can you tell us what medications you are taking

now, is it just the prednisone? We definitely understand all the symptoms you

described. I myself have had hives for about 7 yrs. Have you ever had any

times of remission since the hives occurred? You will find lots of

information from this group as well as understanding. We have not cure, but

some of us have found combinations of medications that do help. I take zyrtec

& zantac in the morning and zantac, allegra, doxipen and singulair at night.

I am currently in remission for about the last month, but for how long no one

knows. I have had remission for as long as 4 months, only for them to return.

Zelma

[Guest guest]

zelma..how do you know you are in remission if you are still taking your

meds....isn't remission considered remission only if you are off your med

and still don't get hives or swelling????

Re: (unknown)

>

>Unfortunately, welcome Toby. Can you tell us what medications you are

taking

>now, is it just the prednisone? We definitely understand all the symptoms

you

>described. I myself have had hives for about 7 yrs. Have you ever had any

>times of remission since the hives occurred? You will find lots of

>information from this group as well as understanding. We have not cure, but

>some of us have found combinations of medications that do help. I take

zyrtec

> & zantac in the morning and zantac, allegra, doxipen and singulair at

night.

>I am currently in remission for about the last month, but for how long no

one

>knows. I have had remission for as long as 4 months, only for them to

return.

> Zelma

>

>This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

>We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria.

>

>Any posting that is off the main topic of Chronic Urticaria, we post with a

prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

[Guest guest]

Hi Toby,

My name is Cara and i would like to welcome you to our group. This is a

wonderful group of people who offer support and share information re: chronic

urticaria. I have had this for almost 5 months now and this group is such a

life saver!! Also, we have a chat group at Paltalk.com under Health and

Urticaria if you are interested. Some of the others in the group such as

Phil (one of the moderators) and can provide technical support if you

need it. Paltalk is fun because a group of people can share and we can put

voices to names. All of us have stories about doctors, meds, natural

rememdies, etc, but each individual and physicians need to discover the most

effective treatment. Are you taking anything besides the pred? As a group,

we decided that the nasty side effects are not worth it to some of us. I

took pred for about 3 months and had some side effects including weight gain.

Not good for the self-esteem, huh?? Anyway, right now I take Allegra/Zantac

in the morning and Zantac/Doxipan in the evening. A tea tree cream from the

health food store provides some itch relief. That remedy was suggested on

this site.

I like your advice about a low stress job. I recently left a high stress

one for a part time job. I start the new job in a few weeks. I think that

has had a positive effect on my hives.... Sorry to ramble. Hope to talk

more soon. Since there is another Cara...I'll sign this Cara J. in OHio

[Guest guest]

Hello ,

You are not the only couple from Wisconsin; Joy on this board is from there

also. If you ask her any questions she will sure be of help. Her daughter

went for treatment in Iowa maybe she can help out this directions and things

to do when your there. My son also was born with clubfoot and is now nine

months old. Before we transferred to a trained Ponseti doctor we had casts

for five months with no corrections by another hospital in Rhode Island. The

best thing we ever did was to seek out a Ponseti doctor trained by Dr.

Ponseti and recommended by him. I also found your questions will be answered

by Dr. Ponseti if you e-mail him. Best of luck, Kathy

[Guest guest]

Oh, , I am SOOO glad to hear from you! Congratulations on baby ,

too! Any pictures?

-Kris

- (unknown)

hi guys

just wanted to let you know the news.

its a girl!!!

kristen elizabeth was born aug 29th at 856pm by emergency c-section.

she weighed 7 lbs 5 oz and was 20 inches. she was put into icu and

was there about 10 days. we are both home now and doing much better

but what a way to start. the inductions were unsuccessful and my

water broke on its own the night before. i was in labor for about

19 hrs and they had to take her because of complications. glad its

over thats for sure and i love her to pieces. i can honestly say she

is beautiful....she looks like her daddy.

better go...grandma is babysitting. will be back in a month or so.

i miss you guys terrible and hope everyone is doing well. lenore, i

think of you everytime i watch the millionaire show wondering if you

are in the audience.

take care,

julie

______________________________________________

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Sign up at http://www.mail.com/?sr=signup

[Guest guest]

Jen,

Bipolar is more related to hypoT. Didn't your sister recently stop taking her

thyroid meds after becoming hypothyroid post RAI?. " Excaberation of the

psychosis may occur soon after T4 treatment is initiated, and thus, severely

distrubed patients should be hospitalized for managing replacement

thyroxine.......When a hypothyroid patient has a strong family history of

affective distrubance, especially bipolar in character, the initiation of

treatment may precipitate manic excitement. "

" thyroid dysfunction is particularly important in the clinical course of

bipolar illness, especially rapid cycling disease, a malignant form of the

illness. Patients with rapid cycling disease, 85% of whom are

women,........have a much higher incidence of hypothyroidism....High doses of

T4 added to the established treatment and other psychotropiic drugs can

reverse this rapid cycling pattern. "

Seems like there is a fine relationship between thyroxine replacement therapy

and bipolar disorders in people who have this tendency. It's good that she's

being cared for. Once they get her thyroid hormone levels straightened out,

things should look better.

[Guest guest]

Hi Jen,

Yes, light sensitivity is one of the symptoms of TED. Pain isn't ususally

associated, but I must admit that most lights hurt my eyes. Hope your sister

gets better soon.

[Guest guest]

Elaine, Thanks for the info. I will give it to my parents immediately to

give to her docs. She is definitely in a state of MANIA. It is TERRIBLE!!!

She has done some very embarrassing things and is trying to give away all of

her assets to prepare for being a martyr for Jesus Christ. I am not

kidding!!!!! We are terrified!!!!! On top of this she has just cancelled

medical insurance that she had just been accepted into because she believes

she will die SOON.

She also is complaining of light sensitivity and her eyes are hurting her.

Is that TED?

Jen

Re: (unknown)

Jen,

Bipolar is more related to hypoT. Didn't your sister recently stop taking

her

thyroid meds after becoming hypothyroid post RAI?. " Excaberation of the

psychosis may occur soon after T4 treatment is initiated, and thus, severely

distrubed patients should be hospitalized for managing replacement

thyroxine.......When a hypothyroid patient has a strong family history of

affective distrubance, especially bipolar in character, the initiation of

treatment may precipitate manic excitement. "

" thyroid dysfunction is particularly important in the clinical course of

bipolar illness, especially rapid cycling disease, a malignant form of the

illness. Patients with rapid cycling disease, 85% of whom are

women,........have a much higher incidence of hypothyroidism....High doses

of

T4 added to the established treatment and other psychotropiic drugs can

reverse this rapid cycling pattern. "

Seems like there is a fine relationship between thyroxine replacement

therapy

and bipolar disorders in people who have this tendency. It's good that she's

being cared for. Once they get her thyroid hormone levels straightened out,

things should look better.

eGroups Sponsor

<http://click./1/9661/6/_/585824/_/972937338/>

<http://adimg./img/9661/6/_/585824/_/972937338/WarningHome468x602

E.gif>

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

[Guest guest]

Hi Jen-

As Elaine has said bipolar disorder is associated with hypothyroidism.

My cousin had a total thyroidectomy at 15 (she's now 40). She is bipolar

and hasn't done very well. She didn't have GD. She had multinodular goiter

(hot). But she doesn't have a thyroid gland either and is hypothyroid.

Take care,

> Hi all,

>

> We had to put my sis in the psych unit of one of our local hospitals this

> past weekend. They think she might be bipolar. Do you all know of any

> connection between GD and bipolar disorder? As you can imagine my family

is

> greatly distressed. For the last ten years my sis has been battling GD

and

> we thought that was the reason behind her mental instability. This new

> diagnosis explains A LOT.

>

> Thanks for listening.

>

> Jen

[Guest guest]

Jen,

I believe Dr. Arem's book, the Thyroid Solution talks about the association

between hyperthyroidism and bipolar disease. Perhaps it can occur with

hyper and hypo. Fortunately, both the thyroid and the bipolar and very

treatable diseases.

Lois in Indiana

>

> Reply-To: graves_supportegroups

> Date: Mon, 30 Oct 2000 15:34:35 -0500

> To: " 'graves_supportegroups' " <graves_supportegroups>

> Subject: RE: (unknown)

>

> Elaine, Thanks for the info. I will give it to my parents immediately to

> give to her docs. She is definitely in a state of MANIA. It is TERRIBLE!!!

> She has done some very embarrassing things and is trying to give away all of

> her assets to prepare for being a martyr for Jesus Christ. I am not

> kidding!!!!! We are terrified!!!!! On top of this she has just cancelled

> medical insurance that she had just been accepted into because she believes

> she will die SOON.

>

> She also is complaining of light sensitivity and her eyes are hurting her.

> Is that TED?

>

> Jen

>

> Re: (unknown)

>

>

> Jen,

> Bipolar is more related to hypoT. Didn't your sister recently stop taking

> her

> thyroid meds after becoming hypothyroid post RAI?. " Excaberation of the

> psychosis may occur soon after T4 treatment is initiated, and thus, severely

>

> distrubed patients should be hospitalized for managing replacement

> thyroxine.......When a hypothyroid patient has a strong family history of

> affective distrubance, especially bipolar in character, the initiation of

> treatment may precipitate manic excitement. "

> " thyroid dysfunction is particularly important in the clinical course of

> bipolar illness, especially rapid cycling disease, a malignant form of the

> illness. Patients with rapid cycling disease, 85% of whom are

> women,........have a much higher incidence of hypothyroidism....High doses

> of

> T4 added to the established treatment and other psychotropiic drugs can

> reverse this rapid cycling pattern. "

>

> Seems like there is a fine relationship between thyroxine replacement

> therapy

> and bipolar disorders in people who have this tendency. It's good that she's

>

> being cared for. Once they get her thyroid hormone levels straightened out,

> things should look better.

>

>

> eGroups Sponsor

> <http://click./1/9661/6/_/585824/_/972937338/>

>

>

> <http://adimg./img/9661/6/_/585824/_/972937338/WarningHome468x602

> E.gif>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

[Guest guest]

Jen,

I believe Dr. Arem's book, the Thyroid Solution talks about the association

between hyperthyroidism and bipolar disease. Perhaps it can occur with

hyper and hypo. Fortunately, both the thyroid and the bipolar and very

treatable diseases.

Lois in Indiana

>

> Reply-To: graves_supportegroups

> Date: Mon, 30 Oct 2000 15:34:35 -0500

> To: " 'graves_supportegroups' " <graves_supportegroups>

> Subject: RE: (unknown)

>

> Elaine, Thanks for the info. I will give it to my parents immediately to

> give to her docs. She is definitely in a state of MANIA. It is TERRIBLE!!!

> She has done some very embarrassing things and is trying to give away all of

> her assets to prepare for being a martyr for Jesus Christ. I am not

> kidding!!!!! We are terrified!!!!! On top of this she has just cancelled

> medical insurance that she had just been accepted into because she believes

> she will die SOON.

>

> She also is complaining of light sensitivity and her eyes are hurting her.

> Is that TED?

>

> Jen

>

> Re: (unknown)

>

>

> Jen,

> Bipolar is more related to hypoT. Didn't your sister recently stop taking

> her

> thyroid meds after becoming hypothyroid post RAI?. " Excaberation of the

> psychosis may occur soon after T4 treatment is initiated, and thus, severely

>

> distrubed patients should be hospitalized for managing replacement

> thyroxine.......When a hypothyroid patient has a strong family history of

> affective distrubance, especially bipolar in character, the initiation of

> treatment may precipitate manic excitement. "

> " thyroid dysfunction is particularly important in the clinical course of

> bipolar illness, especially rapid cycling disease, a malignant form of the

> illness. Patients with rapid cycling disease, 85% of whom are

> women,........have a much higher incidence of hypothyroidism....High doses

> of

> T4 added to the established treatment and other psychotropiic drugs can

> reverse this rapid cycling pattern. "

>

> Seems like there is a fine relationship between thyroxine replacement

> therapy

> and bipolar disorders in people who have this tendency. It's good that she's

>

> being cared for. Once they get her thyroid hormone levels straightened out,

> things should look better.

>

>

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> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

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>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>