prednisone

[Guest guest]

Oh, boy. Heavy duty drug. What else have you tried to reduce any inflammation?

I assume that is the thought behind the use?

Curcumin? Can your son tolerate phenols? If so, higher doses of curcumin (in

turmeric) might help. Enhansa is the big curcumin product out there now.

Fish oil? High doses (1.5+ grams/day) jump started my son's language.

Anti-viral therapies? Olive Leaf Extract really helped increase my son's

language.

Methylation support? Methylguard (Thorne Research) helped increase my son's

language beyond single words. This contains mB12, TMG, folate and B6 (P5P). I

see he didn't do well with mB12, but my guess is it was the shots?

Chelation? DMSA/ALA.

Pam

>

> We are going to use it for improving speech. My son's main issues are

expressive language and tip toe walking

> Sent from my BlackBerry® wireless device

>

> Re: [ ] prednisone

>

>

> Hi All, I would like some advice on prednisone. my son is 6 and he has a dx of

PDD NOS (lately the MD says he is looking more like speech disorder) he is doing

better in all areas, but his speech still very delayed. now his DAN wants to try

prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

> thanks a lot!Fernanda

>

>

[Guest guest]

Pam we have tried all of that including ldn spirolactone galantamina... No

effect the only thing it worked was valtrex that helped with his social life

Now that my son has been off all supplements he is doing better in language but

improving very slowly...

Sent from my BlackBerry® wireless device

Re: [ ] prednisone

>

>

> Hi All, I would like some advice on prednisone. my son is 6 and he has a dx of

PDD NOS (lately the MD says he is looking more like speech disorder) he is doing

better in all areas, but his speech still very delayed. now his DAN wants to try

prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

> thanks a lot!Fernanda

>

>

[Guest guest]

Well, we've seen many off-label uses of drugs that have had positive effects.

There is no way to predict who will benefit and who will not, so I hope your

child is a responder if you choose to try this out.

The whole theory behind the use of Prednisone in Autism does make sense to me,

just too bad the drug has so many side effects. I see it is used for several

months and is tapered down after an initial high dose?

Good luck with your decision. Do they advise an MRI prior to starting? What

tests are recommended? Has your doc used this before?

Pam

> >

> > We are going to use it for improving speech. My son's main issues are

expressive language and tip toe walking

> > Sent from my BlackBerry® wireless device

> >

> > Re: [ ] prednisone

> >

> >

> > Hi All, I would like some advice on prednisone. my son is 6 and he has a dx

of PDD NOS (lately the MD says he is looking more like speech disorder) he is

doing better in all areas, but his speech still very delayed. now his DAN wants

to try prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

> > thanks a lot!Fernanda

> >

> >

[Guest guest]

There are other options to try if you are not comfortable with the prednisone to

reduce inflammation. You could look up ISOCORT which is a natural adrenal

corticol herbal supplement made from sheeps adrenal glands. It is the only

natural product that actually has cortisol. It also has aldosterone and has

worked quite well for both myself and daughter in attempt to reduce the

hydrocortisone we need. The other thing you could add is licorice drops which

help to slow the breakdown of cortisol. Increasing either celtic sea salt or

himalayan salt will also help. Epsom salt baths also work really well to reduce

inflammation. Increasing magnesium intake has also helped reduce my daughter's

swelling.

I would try all these things before doing the prednisone. Keep in mind the

strong adrenal medications will send a negative feedback loop to the HPA

(hypothalamic, pituitary and adrenal) axis. Trust me, this is not fun to try

and correct and balance.

The other thing to know is that 5mg of prednisone is equal to 20mg of the

hydrocortisone, so it is easier to go the least possible amount of steroids as

possible with the hydrocortisone.

In my daugher's case, we had no choice to put her on the steroids. She had a

headache every day for 8 months, was dizzy upon standing, immediate car/motion

sickness, photosensitivity, intolerant to any stress, irritable, depressed, had

constant joint and muscle pain and was only making it to school 1 and 1/2 days

per week. The hydrocortisone, florinef and thyroid meds have been a life saver

for her. However, I do want to get her off the hydrocortisone and florinef.

This is why I am wanting to chelate her. I am hoping that all she will be left

with is her natural desiccated thyroid.

Every child is different. What works for one kid may not work for another.

This has just been my experience, but may not be your answer.

> >

> > We are going to use it for improving speech. My son's main issues are

expressive language and tip toe walking

> > Sent from my BlackBerry® wireless device

> >

> > Re: [ ] prednisone

> >

> >

> > Hi All, I would like some advice on prednisone. my son is 6 and he has a dx

of PDD NOS (lately the MD says he is looking more like speech disorder) he is

doing better in all areas, but his speech still very delayed. now his DAN wants

to try prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

> > thanks a lot!Fernanda

> >

> >

[Guest guest]

the MD (DAN) wants to try prednisone for 3 weeks in total, but he told me that

after 5 to 7 days we should see great results with language otherwise we should

stop. if it works we should do 3 weeks tops, and then he will look for other

options. the idea is to confirm the hypothesis that my son has inflamation on

his brain and this is what is stopping his language from progressing...

From: Pamela H <phaselow@...>

Subject: [ ] Re: prednisone

Date: Monday, June 14, 2010, 10:28 PM

 

Well, we've seen many off-label uses of drugs that have had positive

effects. There is no way to predict who will benefit and who will not, so I

hope your child is a responder if you choose to try this out.

The whole theory behind the use of Prednisone in Autism does make sense to me,

just too bad the drug has so many side effects. I see it is used for several

months and is tapered down after an initial high dose?

Good luck with your decision. Do they advise an MRI prior to starting? What

tests are recommended? Has your doc used this before?

Pam

> >

> > We are going to use it for improving speech. My son's main issues are

expressive language and tip toe walking

> > Sent from my BlackBerry® wireless device

> >

> > Re: [ ] prednisone

> >

> >

> > Hi All, I would like some advice on prednisone. my son is 6 and he has a dx

of PDD NOS (lately the MD says he is looking more like speech disorder) he is

doing better in all areas, but his speech still very delayed. now his DAN wants

to try prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

> > thanks a lot!Fernanda

> >

> >

[Guest guest]

Well, the 5-7 days is the same as a taper dose pack my MD husband uses for his

back flare ups. That is 'safe'... as far as not having those long term

negatives. Honestly, with all the other things we try with our kids, I would

not back away from that trial period if nothing else had worked.

So you did try the high dose curcumin plus the high dose fish oil? How high did

you go?

How long did you chelate, and how?

Your child was vaccinated, I assume? Is this language LOST language or language

that never developed?

Curious question: have you ever noticed that your child is better with a fever?

Less autistic? Just curious.

Pam

>

> > >

>

> > > We are going to use it for improving speech. My son's main issues are

expressive language and tip toe walking

>

> > > Sent from my BlackBerry® wireless device

>

> > >

>

> > > Re: [ ] prednisone

>

> > >

>

> > >

>

> > > Hi All, I would like some advice on prednisone. my son is 6 and he has a

dx of PDD NOS (lately the MD says he is looking more like speech disorder) he is

doing better in all areas, but his speech still very delayed. now his DAN wants

to try prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

>

> > > thanks a lot!Fernanda

>

> > >

>

> > >

[Guest guest]

I am surprised also. Cortisone lowers the body's immune system, making you more

susceptible to get/catch an illness.

I do not recommend it for speech.

My son has severe verbal apraxia (speaks, but apraxic), history of severe asthma

and bilateral pulmonary infiltrates, along with immuno- deficiency; he used to

be on pulmicort along with his albuterol in his nebulizer. I realized it was

making him more sick. We discontinued the pulmicort and now he is much better.

He has not had any of his asthma meds in months (six or more); I think he has

been healed from a lot of things, including asthma.

> >

> > Hi All, I would like some advice on prednisone. my son is 6 and he has a dx

of PDD NOS (lately the MD says he is looking more like speech disorder) he is

doing better in all areas, but his speech still very delayed. now his DAN wants

to try prednisone for a short time to see if it helps, we have tried many things

including MB12, spirolactone, etc he did really bad on them.could any of you

share your experience on prednisone?

> > thanks a lot!Fernanda

> >

> >

> >

> >

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> >

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> >

> >

> >

> >

> >

> >

> >

> >

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> >

> >

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> >

[Guest guest]

my rheumy said no to take prenisone because it will make the skin problems

worse. i always felt better on the prednisone . just don't know what to do

anymore.  hope you feel better.

[Guest guest]

I had to stop it as it caused me to balloon up to 305 lbs from 214.Also, it

caused me to suffer a certain amount of irritability. I had to wean off it

slowly and am still having trouble losing all the weight. I am now down to 273

and hopefully will be able to lose the rest. Good luck

Walt

[Guest guest]

Carmy,

I can so relate to what you said. I am on 2.5 mg of pred every other day now.

I have never been on super high doses (20 mg for short time) but even at 5 mg I

would have anxiety, my first panic attack, emotional variability and even

difficulty functioning day to day at times. I am having the same

anti-inflammatory results on the 2.5mg every other day as every day. I drink

very little coffee, try to stay away from sugar and exercise is essential for

me. That is probably the most important thing for my sanity. Getting enough

sleep is major for me too. As with anything, a healthy diet: low fat, low

sugar, high in fiber, fruits and veggies. Also, plenty of water. Are you on

any other meds. They may also be affecting your emotions.

You have been through a really rough time and that can, like you said, make

things so much worse. Be gentle on yourself, find someone you trust who you

can be real with and who will watch out for you. Keep in touch, we are here for

you. God bless, Patty

[Guest guest]

I am not on prednosone, but am always very stressed and emotional. I am by

nature emotional, but never as bad as now. I lost my husband last year too, and

am alone a lot. I was on Humira twice a month, but when Simponi came out my Dr.

changed me. It is a once a month injection. I take cymbalta for fibro, and it is

supposed to be for depression, but doesn't seem to help. I also take metho,

folic Acid, and b vitamins. I have managed to stay in my home for a year and a

half, but will soon have to move out, as I can't afford to keep it up, and pay

taxes and insurance. Gonna turn it over to my kids and let them take the

responsibilities... 

God never said we'd only see rainbows , that storms would never rage in our

lifetime.  But, He did promise the reaping of blessings that come with the new

morning sunshine.

Have a blessed Day,

Ann

[Guest guest]

when i take prednisone for flares after a few days i start to become anxious and

i get agitated very quickly at things that don't normally bother me. I suffer

from depression and PTSD and the prednisone makes those symptoms worse as well.

I usually don't take the full course fue to these side effects. Lori in az

[Guest guest]

I can see not taking it because it can cause bone loss but I don't get why he

said no to pred because of skin problems. For me it helps keep the psoriasis I

do have in check. I don't have much just some on my head but when I'm not

taking pred it gets a whole lot worse. I take 5mg of pred daily because if I

don't i get an immediate flare which starts on the top of my feet it feels like

I slammed them with a sledge hammer. I've tried to cut it back and even

alternating 5mg then 2.5 the next and it makes no difference I still get a

flare.

Celeste

[Guest guest]

Hi Carmy,

I have been taking 5 mg of Prednisone for about 5 years, now. I get a bone

density scan every year or two and take 1000 mg calcium and Vitamin D. I always

try to take my prednisone at sometime between 10:00 AM and Noon - always with

food so as to ameliorate the effects of the epinephrine (adrenaline) boost

associated with the predisone and to have it early enough in the day so that I

can sleep. I like to spend the first few hours of the day prednisone-free so

that I can feel emotionally at ease with myself and my surroundings.

I work in a position as a teacher of emotionally/behaviourally-challenged teens,

so I understand the compounding effects of stress and prednisone on one's

emotions. I am forever working to create calmness in my surroundings - for

myself as well as my students. Even though I forewarn them that I am very slow

to anger and have only truly gotten angry with students but a few times in 20

years, some of my students forget at-times that the fire in my eyes is not

anger, but it is the result of my taking prednisone. We work on their learning

to listen to my words more than reading my body-language, and i work to relax

tension in my body. It has been an interesting learning experience for me to

look for peace when my neurons are screaming to fire. The alternative is so much

pain that my body is producing it's own epinephrine to get me though each

painful moment. And the pain is more exhausting. At 55, I will retire in 4

months; perhaps then I can wean myself down from the 5 mg per day. I never enjoy

my prednisone, but it has kept me mobile and my joints from becoming deformed. I

eat as healthily as possible - lots of organic veggies, fish and rice. Low

portions of sweet, highly refined, animal protein or high high acid foods.

Best wishes to you,

Brent

[Guest guest]

prednisone...

I went from 215 to 245.....

2 years after back to 215.. takes a while.

[Guest guest]

>

> Hello Friends,

> I have a worried mom of a 10yr. old who is randomly fainting. Today she was

fainting and throwing up and developed hives. The doctor gave her Finnegan and

Prednisone based on it being viral. So far she has only taken 1 of the

prednisone pills and does not want to give her another after I told her it just

suppresses whatever is trying to detox. I don't know if you can just stop after

one pill? Would love any feedback about symptoms and drugs, thanks so much,

> P.S. I was going to recommend she have a consultation with you BEE.

+++Hi ,

There can be many reasons for fainting which aren't necessarily viral at all!

Doctors are jumping to conclusions and dispensing drugs right, left and center

more and more these days.

Yes, it is okay to stop prednisone after only one pill!

All drugs are poisons to us! Hormones like prednisone are particularly harmful

because they manipulate the body more easily, forcing it to respond in ways that

cause more health issues. I think it is horrible children are given drugs and

no advice about eating healthy!

I'd be happy to have a consultation with her, however it is a waste of her time

and mine if she doesn't read first so she understands how foods are so important

for health, etc. - she should read Foods That Damage, Foods That Heal:

http://www.healingnaturallybybee.com/articles/heal13.php

First, she needs to get her child off of sugars, fruit juice and fruits, pop,

soy of any kind, and junk foods.

Have her read the success autistic children have had with my candida program,

which is amazing and the dramatic changes happened in only 2 weeks:

http://www.healingnaturallybybee.com/success/ss80a.php

http://www.healingnaturallybybee.com/success/ss80b.php

All the best, Bee

[Guest guest]

Hi, have you any idea why this may be happening yourself? Has something changed

in her diet or enviroment recently? What is her medical history in terms of

related symptoms? If she has a mother suffering from candida( I'm assuming

that's why you are on the group) then she is bound to also be a sufferer. Very

good idea to have a consultation and get her learning about her health. I used

to be a fainter as a child myself and now know it was related to detoxing. My 11

year old daughter is recovering beautifully from autism, hyperactivity,life

threatening asthma and major league 'allergies'(healing and detox reactions)

that required the constant carrying of epipens. If you talk to kids about what

is happening to their bodies and how they can take charge themselves they will

really get into it!

All the best

>

> Hello Friends,

> I have a worried mom of a 10yr. old who is randomly fainting. Today she was

fainting and throwing up and developed hives. The doctor gave her Finnegan and

Prednisone based on it being viral. So far she has only taken 1 of the

prednisone pills and does not want to give her another after I told her it just

suppresses whatever is trying to detox. I don't know if you can just stop after

one pill? Would love any feedback about symptoms and drugs, thanks so much,

> P.S. I was going to recommend she have a consultation with you BEE.

>

[Guest guest]

's message reminded me that I, too, used to faint as a kid. It was because

of low blood sugar. I'd eat sugar, get that sugar high, then crash and faint.

If that's this child's problem, Bee's diet would fix it.

Lilac

> >

> > Hello Friends,

> > I have a worried mom of a 10yr. old who is randomly fainting. Today she was

fainting and throwing up and developed hives. The doctor gave her Finnegan and

Prednisone based on it being viral. So far she has only taken 1 of the

prednisone pills and does not want to give her another after I told her it just

suppresses whatever is trying to detox. I don't know if you can just stop after

one pill? Would love any feedback about symptoms and drugs, thanks so much,

> > P.S. I was going to recommend she have a consultation with you BEE.

> >

>

[Guest guest]

I took 1.0mg for 2 weeks, then down to a 1/2 a tablet

i am like a new person,it sure worked for me, and no side effects

yet,thanks Billie from Tex