New here

[Guest guest]

I am offended by the religious drivel on this group. 9-11 shows clearly

nobody up " there " is looking after us, as if that weren't plain already.

If you religionists want to put your faith in prayers, God, Jesus, the sweet

Virgin or Allah, that's fine, and your right. I wish you well. Why did

they let you get cancer in the first place? If you have cancer, obviously

faith isn't doing the job.

I expect this newsgroup to be oriented toward getting well by alternative

methods. There are religious newsgroups you can join. My vote is to keep

this one down to earth and suitable for all, talking about nutrition,

conventional therapies and mind therapies---not religious views.

Loren Parks.

.

Re: [ ] New Here

>

> Hello Marie...

> Since I am also rather new here, I won't be of much help for you, but I

just wanted you to know I will have your partner in my paryers to God and to

our sweet mother, the Holy Virgin.

> I got into this list searching for alternative ways of treatment for

cancer. And I've seen some mentioned here, but maybe not as much as I

expected.

> Nevertheless, the power of real honest love can help a lot, since cancer

appears to be somehow related with immune system confusion, and this can

very easily be associated with high levels of stress. So, being real love a

strong stress remover, this real love can help our immune system to get

stronger and smarter again.

> As for what I've heard, chemo and/or radiation alone can even hurt more

than help if the person is not having a possitive attitude. I mean,

depression and stress, may block immune system normal work, and actually all

cells normal work, because stress and depression makes difficult for the

body to synthetise proteins, which are the bacic building blocks for

antibodies and cells in general. If you add some chemo and radiation

attacking the reproduction of cells (if I am not wrong, radiation is

supposed to attack more the cancer cells, because their reproduction cycles

are very fast an disordered and thus very safe or strong. But although it is

more effective on these more, it attack crazy and normal cells in the same

way)... imagine how hard would be for the body to find its equilibrium

again!

> From what I've said you can also conclude another point: good and healthy

alimentation is another element in the treatment and cure of cancer. Within

this line of thoughts, there are doctors who believes that even AIDS is not

what we have been told: http://www.robertogiraldo.com/ and that can have its

origins in weak humans from Africa. I know it sounds almost crazy, but the

point is that there is another possible way of seeing things, not so

fatalistic.

> I am not a scientist. I'm just a guy which mom was diagnosed with breast

cancer. Actually I once studied medicine (3 years), but didn't finished it,

because I decided better to study computers, and that's what I do for a

living now.

> So, I only mention things about I've heard or read, for you, list-members

to give your opinions...

> Thanks for all the informaton you send.

> And pray with love and happyness to God, so He can bless all of us.

> Adrián.

> Marie wrote: Hi everyone.. I am new to the group. My partner was just

diagnosted

> with cancer of the doudenum (lower stomach) which is inoperable. She

> has had surgery to bypass the area so that she can digest normally

> but will be starting radiation treatments soon. As her 'care giver'

> I would like to know what to expect during her treatment... Can

> anyone give me some advise

>

> Thanks and God Bless All of You

>

> Marie

>

>

> ---------------------------------

> - We Remember

> 9-11: A tribute to the more than 3,000 lives lost

>

>

[Guest guest]

Look up Essiac on the internet

Look up vitamin b-17 (apricot seeds) also.

These are two very powerful approaches to cancer.

also for excellent nutrition in support of current treatment protocols:

go to www.mannapages.com/smreitz

from:

sherrylynn7@...

Re: [ ] New Here

There is a lot of great info within this site. Make

sure you make good use of the " search archive " space

to go back and review what topics may have already

been discussed in the past.

Like you, I have the privledge of taking care of

someone who is going through conventional treatment

first, rather than trying the alternatives first and

using the conventional as the last resort.

If she must go through chemo, there a few supplements

that need to used right away. I'll list them and you

can find all of the info on each of them.

Coenzyme Q10: The will protect her heart from the

damage of the chemo, act as an antioxidant and help

oxygenate tissue.

Digestive or proteolytic enzymes, preferably

WobezymeN.: These help decrease inflammation, help

shed the protective coating of the tumors and can also

help break down food to provide better digestion.

These will help her tolerate the chemo.

L-Glutamine - helps avoid mouth sores

Make sure you purchase the book Antioxidants Against

Cancer by Ralph Moss. He gets into explaining in

detail with references which supplements work with

which chemo agents. Its a short book that is important

since she should avoid mixing some supplements with

certain chemos.

As everyone else will tell you, make sure she avoids

sugar and alcohol. There are several combinations of

teas which may help but I don't want to overwhelm you.

Chin up, you're a good friend.

Marty

--- Marie <mnmwon@...> wrote:

> Hi everyone.. I am new to the group. My partner was

> just diagnosted

> with cancer of the doudenum (lower stomach) which is

> inoperable. She

> has had surgery to bypass the area so that she can

> digest normally

> but will be starting radiation treatments soon. As

> her 'care giver'

> I would like to know what to expect during her

> treatment... Can

> anyone give me some advise

>

> Thanks and God Bless All of You

>

> Marie

>

>

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute

[Guest guest]

Thanks Marty ... you were very helpful

Deering wrote:There is a lot of great info within this site. Make

sure you make good use of the " search archive " space

to go back and review what topics may have already

been discussed in the past.

Like you, I have the privledge of taking care of

someone who is going through conventional treatment

first, rather than trying the alternatives first and

using the conventional as the last resort.

If she must go through chemo, there a few supplements

that need to used right away. I'll list them and you

can find all of the info on each of them.

Coenzyme Q10: The will protect her heart from the

damage of the chemo, act as an antioxidant and help

oxygenate tissue.

Digestive or proteolytic enzymes, preferably

WobezymeN.: These help decrease inflammation, help

shed the protective coating of the tumors and can also

help break down food to provide better digestion.

These will help her tolerate the chemo.

L-Glutamine - helps avoid mouth sores

Make sure you purchase the book Antioxidants Against

Cancer by Ralph Moss. He gets into explaining in

detail with references which supplements work with

which chemo agents. Its a short book that is important

since she should avoid mixing some supplements with

certain chemos.

As everyone else will tell you, make sure she avoids

sugar and alcohol. There are several combinations of

teas which may help but I don't want to overwhelm you.

Chin up, you're a good friend.

Marty

--- Marie <mnmwon@...> wrote:

> Hi everyone.. I am new to the group. My partner was

> just diagnosted

> with cancer of the doudenum (lower stomach) which is

> inoperable. She

> has had surgery to bypass the area so that she can

> digest normally

> but will be starting radiation treatments soon. As

> her 'care giver'

> I would like to know what to expect during her

> treatment... Can

> anyone give me some advise

>

> Thanks and God Bless All of You

>

> Marie

>

>

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute

[Guest guest]

Let's not overlook Dr. Johanna Budwig's successful protocol..... you

can subscribe to a list, too. Send a blank email to

flaxseedoil2-subscribe

mjh

In a message dated 9/11/02 3:52:02 PM Eastern Daylight Time, mnmwon@...

writes:

> Thanks Sherry

> SherryLynn7 - mindsrping wrote:Look up Essiac on the internet

> Look up vitamin b-17 (apricot seeds) also.

> These are two very powerful approaches to cancer.

> also for excellent nutrition in support of current treatment protocols:

> go to www.mannapages.com/smreitz

>

>

> from:

> sherrylynn7@...

>

[Guest guest]

Thanks Sherry

SherryLynn7 - mindsrping wrote:Look up Essiac on the internet

Look up vitamin b-17 (apricot seeds) also.

These are two very powerful approaches to cancer.

also for excellent nutrition in support of current treatment protocols:

go to www.mannapages.com/smreitz

from:

sherrylynn7@...

Re: [ ] New Here

There is a lot of great info within this site. Make

sure you make good use of the " search archive " space

to go back and review what topics may have already

been discussed in the past.

Like you, I have the privledge of taking care of

someone who is going through conventional treatment

first, rather than trying the alternatives first and

using the conventional as the last resort.

If she must go through chemo, there a few supplements

that need to used right away. I'll list them and you

can find all of the info on each of them.

Coenzyme Q10: The will protect her heart from the

damage of the chemo, act as an antioxidant and help

oxygenate tissue.

Digestive or proteolytic enzymes, preferably

WobezymeN.: These help decrease inflammation, help

shed the protective coating of the tumors and can also

help break down food to provide better digestion.

These will help her tolerate the chemo.

L-Glutamine - helps avoid mouth sores

Make sure you purchase the book Antioxidants Against

Cancer by Ralph Moss. He gets into explaining in

detail with references which supplements work with

which chemo agents. Its a short book that is important

since she should avoid mixing some supplements with

certain chemos.

As everyone else will tell you, make sure she avoids

sugar and alcohol. There are several combinations of

teas which may help but I don't want to overwhelm you.

Chin up, you're a good friend.

Marty

--- Marie <mnmwon@...> wrote:

> Hi everyone.. I am new to the group. My partner was

> just diagnosted

> with cancer of the doudenum (lower stomach) which is

> inoperable. She

> has had surgery to bypass the area so that she can

> digest normally

> but will be starting radiation treatments soon. As

> her 'care giver'

> I would like to know what to expect during her

> treatment... Can

> anyone give me some advise

>

> Thanks and God Bless All of You

>

> Marie

>

>

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute

[Guest guest]

Thanks for the info. I will look into this as well.

Re: [ ] New Here

Let's not overlook Dr. Johanna Budwig's successful protocol..... you

can subscribe to a list, too. Send a blank email to

flaxseedoil2-subscribe

mjh

In a message dated 9/11/02 3:52:02 PM Eastern Daylight Time, mnmwon@...

writes:

> Thanks Sherry

> SherryLynn7 - mindsrping wrote:Look up Essiac on the internet

> Look up vitamin b-17 (apricot seeds) also.

> These are two very powerful approaches to cancer.

> also for excellent nutrition in support of current treatment protocols:

> go to www.mannapages.com/smreitz

>

>

> from:

> sherrylynn7@...

>

[Guest guest]

Hi Cheryl,

Welcome, there is always room here! When you feel comfortable, let us know your story.

I was already diagnosed with Sjogren's syndrome and my dr. suspected lupus when I ended up in the hospital for an emergency gall bladder removal. After the surgery the surgeon came dashing out to the waiting room to say the surgery had been fine but I had cirhossis of the liver. He of course asked if I was a heavy drinker, which I never had been. He even took pictures to share!

I was referred to a GI who tested me and found that I had AIH. Luckily the surgeon did a biopsy at the time of the gall bladder so I haven't had to have any more of those.

From there I didn't fine with plaquenil and being monitored every few months, worked full time, did union work for my school district and got a master's degree. About the end of my masters, I ended up in the hospital with severe peritonitis that my GP didn't pay attention to 3 days earlier when I went in about the bloating - he "prescribed" Gas-X. So it's no surprise that my fever when to 103.5 and my GI put me in the hospital where I spent 5 days and lost 28 pounds (they dry you out well!). After that I've been having one thing and then another until last fall when I got a severe infection in my blood stream, acites fluid everywhere including my lungs, and very high ammonia levels. I haven't been back to work since. I was already being monitored by the transplant clinic at the "U of WA" so they redid the necessary tests and put me on the active list in March.

Sorry to talk your ear off, but sometimes it's nice to know a bit about what others have gone through. I hope we can be of support to you.

Amy

[Guest guest]

In a message dated 10/29/02 2:34:34 PM Eastern Standard Time, holzboog@... writes:

Sorry to talk your ear off, but sometimes it's nice to know a bit about what others have gone through. I hope we can be of support to you.

Amy

Thanks Amy.

Cheryl

[Guest guest]

Flouride is very neurotoxic and establishes a poor blood brain barrier

system. It also acts in constortium with aluminum to form complex matrixes

against the thyroid. Check her thryoid to see if it is functioning. Get

Williss paper on this at willissl@... for further details on an iodine

test more accurate then the TSH tests. The Flouride can also wipe out good

bacteria in the gut and flatten the villae, in essence, setting up a shop of

malapsorbtion which then leads to toxins being leaked into teh system. .

Look also into KEFIR. I am just learning about this so don't ask me, it is

new and very very intriguing for cessation of not only autism, but seizures!

I would take all flouride sources off of her, including the toothpaste,

water supply (get reverse osmosis), fruit juices and even canned foods. I

would also see if the pattern coincides with ingestion of MSG laden foods

(www.truthinlabeling.com ) and clean up the home and expose her less and

less to any of the following below

Also think that the immune system and the brain are inseperably connected.

Whatever is loading the immune system is affecting the brain. If the system

is overactive, then I would go for biological response modifiers,

glyconutrients, monolaurin, lauricidin, transfer factors etc. Look for

things that overactivate that system, as in some kind of way out of whack

immune response, anything from too much iron, too little iron, too much

copper, not enough zinc, not enough metallothioneins, anti oxidants, etc etc

etc. Look at Dr Walshes MT promotor at Pfieffer Treatment Center. Think of

the sulphar metabolism, does she have enough sulphar detox? Have you tried

EPSOM BATHS? Magnesium sulfate cream? (www.kirkmanlabs.com )

Avoid or work on the following: (this greatly helped my son)

1. Shampoos with ALS or MSG in it

2. Fabric softners, clorox, disinfectants, bleaches, dyes, etc.. etc

3. See if she is mercury poisined, does she have amalgams? do hair, urine

or blood test if recently done some dental work especially

4. Look through her childhood vaccine schedule and repeat after me, MERCURY

is in CHILDHOOD VACCINES. Is this good for my child? What was her levels of

Mcg of mercury during this process? Find out what EPA standards of safe

are. Usually in one foul sitting with three vaccines you go over the limit

of safe.

5. Perfumes, Odors, Outgoassing, Lawn Pesticides etc-read anything by

Slimack on this subject-make clean rooms in your home

6. Does she have high urinary Peptides of Gluten or Cassien morphine

substances, what

is her IAG levels? Does she have leaky gut syndrome? Does she have

antibodies against myelin or other parts of the brain? These can be tested

with immunoscience labs in hollywood california (I think the website is

www.immunosciencelabs.com )

7. Does she have delayed sensitivity to anything she eats?

8. What kind of mattress does she sleep on?

9. Stress levels, emotional patterns, lighting at school, exposures at

school

10. Does she have the stealth virus (www.ccid.org )

11. Does she have ongoing viral childhood chronic infections, from MMR to

DPT to HEP B-find out titres, even EBV or CMV or Parvo?

12. What is her copper level, zinc level, iron level (total body iron)

13 What is the function of her MEtallothioeins? Antioxidants? Is she

oxidatively stressed?

14. What does her diet consist of? What is the level of her fatty acids,

omegas-I am really liking the following... www.coremaga.com

? What part of her heme is not converting?

15. Does she eat carbs that have high iron in them?

16. Does she expose her self to phenolic foods and substances?

www.feingold.org

17. Does she have any blockages or irriattions in the gut, does she has

small signs of celiac or IBD?

18. Have you tried cranial sacral treatments? Polarity treatments?

19. Spinal Adjustmants

20. Does she have G-alpha protein defects related to insufficient Vitamin A

Status? Does she need some assistance with this? www.megson.com

I am working on several of these routes, one especially is promising of

late, and that is eliminating all sources of MSG. A very simple change here

or there could be the difference between the hell of seizures, and the joy

of seeing a child off all medications and WITH IT.

Kathy

www.childscreen.org

[ ] New Here

> Hello,

>

> I am new here. I am looking for help for an 11 year old with

> seizures. She started to have pettit mal siezures when she was 7.

> They were so mild that she seemed to be day dreaming. This sort of

> behaviour ran in her mothers family, and was out-grown without

> problems, so her family wasn't concerned.

>

> When she got to be 8 they got longer, and she would often wonder

> while having them. By 9 they were seriously affecting her attention

> span, as you couldn'talk to her without her kind of fazing out.

>

> Then when she was 10, less than a week after having her first floride

> treatment from the dentist, and being put on a daily floride gel from

> the dentist she had her first grand mal.

>

> Her parents put her on a mostly raw diet, with cooked vegan dinners,

> and B & B tincture. Also Liver formula, kidney formula, and NA (nerve

> formula). At one point when they weren't sure the diet was helping

> her much they let her go back to a SAD, and after she had a cluster

> very close severe seizures they made her go back to the special diet,

> and her condition improved again. She seems to have four seizures a

> week to 10 days apart, and then she goes 4 to 5 weeks without one.

> Lately though she has broken her pattern by having 4 a week apart,

> and then going 2 weeks, and then another 2 a week apart.

>

> Please any natural suggestions would be greately appreciated!!!

>

> Thank you,

>

> Wit

>

>

>

[Guest guest]

Wit,

Have you used the Internet to gather " second opinions " from qualified

professionals who treat epilepsy? If not, you have come to right

place. If you have, there may be some resources here you have yet to

try. Check out our group website which is listed below under

" Group Page. " One of those resources which may prove very beneficial

is s-Reiter . This is one clinic which does not try to get their

patients hooked on prescription drugs. If that is good news to you, I

suggest you contact them via e-mail and make your case. You may be

surprised by what you learn. As they say, nothing ventured, nothing

gained.

Good luck.

Lamar

wit25sun wrote:

> Hello,

>

> I am new here. I am looking for help for an 11 year old with

> seizures. She started to have pettit mal siezures when she was 7.

> They were so mild that she seemed to be day dreaming. This sort of

> behaviour ran in her mothers family, and was out-grown without

> problems, so her family wasn't concerned.

>

> When she got to be 8 they got longer, and she would often wonder

> while having them. By 9 they were seriously affecting her attention

> span, as you couldn'talk to her without her kind of fazing out.

>

> Then when she was 10, less than a week after having her first floride

> treatment from the dentist, and being put on a daily floride gel from

> the dentist she had her first grand mal.

>

> Her parents put her on a mostly raw diet, with cooked vegan dinners,

> and B & B tincture. Also Liver formula, kidney formula, and NA (nerve

> formula). At one point when they weren't sure the diet was helping

> her much they let her go back to a SAD, and after she had a cluster

> very close severe seizures they made her go back to the special diet,

> and her condition improved again. She seems to have four seizures a

> week to 10 days apart, and then she goes 4 to 5 weeks without one.

> Lately though she has broken her pattern by having 4 a week apart,

> and then going 2 weeks, and then another 2 a week apart.

>

> Please any natural suggestions would be greately appreciated!!!

>

> Thank you,

>

> Wit

>

>

>

[Guest guest]

> I would take all flouride sources off of her, including the

toothpaste,

> water supply (get reverse osmosis), fruit juices and even canned

foods.

She has been completely off of flouride, since the grand mals

started. That is except flouridated salt in Mexico durring a family

vacation. Her parents didn't know it was flouridated, and she

consumed it for about 3 or 4 days, and then had a rash of 4 seizures

in 24 hours. She had never done that before, and hasn't since. When

they tried to find what the problem was they looked into the salt

because it was the new element, and found the flouride.

I

> would also see if the pattern coincides with ingestion of MSG laden

foods

She doesn't consume MSG, her family read lables even before her

problem started.

> (www.truthinlabeling.com ) and clean up the home and expose her

less and

> less to any of the following below

>

> Also think that the immune system and the brain are inseperably

connected.

> Whatever is loading the immune system is affecting the brain. If

the system

> is overactive, then I would go for biological response modifiers,

> glyconutrients, monolaurin, lauricidin, transfer factors etc. Look

for

Can you tell me where we can read up on this stuff? I haven't heard

about them before.

> things that overactivate that system, as in some kind of way out of

whack

> immune response, anything from too much iron, too little iron, too

much

> copper, not enough zinc, not enough metallothioneins, anti

oxidants, etc etc

She was on an iron baby formula from about 9 months to 11 months,

before her mother took her off of it, because it turned her bright

blue eyes black-brown. Her eyes have gradually lightened, and are

almost grey now, but have a lot of rust around the pupil.

> etc. Look at Dr Walshes MT promotor at Pfieffer Treatment Center.

Think of

> the sulphar metabolism, does she have enough sulphar detox? Have

you tried

> EPSOM BATHS? Magnesium sulfate cream? (www.kirkmanlabs.com )

How do you tell if they have enough sulphar?

Her parents talked about epsom baths to pull out heavy metals, but

haven't started yet, they do have her on the Bugal weed chaparrel for

the heavy metals though. The water she lived on for the first 7

years of her life was (unbeknown to them) filled with high levels of

arsenic. It was so high that older adults living there for most of

their life tested with 20 times the leathal dose in their bodies, and

were somehow still walking around.

>

> Avoid or work on the following: (this greatly helped my son)

>

> 1. Shampoos with ALS or MSG in it

She has been on natural shampoos.

> 2. Fabric softners, clorox, disinfectants, bleaches, dyes, etc..

etc

Her mother is multipul chemical sensitive, and so they have been off

of chemical products for 8 years now.

> 3. See if she is mercury poisined, does she have amalgams? do

hair, urine

> or blood test if recently done some dental work especially

She has never had metal fillings.

> 4. Look through her childhood vaccine schedule and repeat after

me, MERCURY

> is in CHILDHOOD VACCINES. Is this good for my child? What was her

levels of

She has never had any vaccines, was born at home, and her only visit

to the doctor was when she broke her leg, last year. The only drug

they gave her was morphine.

> Mcg of mercury during this process? Find out what EPA standards of

safe

> are. Usually in one foul sitting with three vaccines you go over

the limit

> of safe.

> 5. Perfumes, Odors, Outgoassing, Lawn Pesticides etc-read anything

by

> Slimack on this subject-make clean rooms in your home

Her mother cannot handle any perfumes, or chemical scents, unless it

is a natural essental oil.

> 6. Does she have high urinary Peptides of Gluten or Cassien

morphine

> substances, what

> is her IAG levels? Does she have leaky gut syndrome?

She doesn't test for any infections, or leaky gut, she has been to a

kenesiologist for that.

Does she have

> antibodies against myelin or other parts of the brain? These can

be tested

> with immunoscience labs in hollywood california (I think the

website is

> www.immunosciencelabs.com )

> 7. Does she have delayed sensitivity to anything she eats?

Yes, she seems to have problems with sugar, but is diabetic, so she

has been mostly off of it all her life. The three times she had it

after her GMs started she had a seizure with in an hour or so.

She also seems to be sensative to wheat. She isn't alergic, just

can't digest it well.

She also seems to have problems with baking powder, even the no

aluminum kind.

> 8. What kind of mattress does she sleep on?

right now she sleeps on a sleeping bag, are there mattresses that

cause problems?

> 9. Stress levels, emotional patterns, lighting at school,

exposures at

> school

She is home-schooled.

> 10. Does she have the stealth virus (www.ccid.org )

> 11. Does she have ongoing viral childhood chronic infections, from

MMR to

> DPT to HEP B-find out titres, even EBV or CMV or Parvo?

She doesn't test for any viruses.

> 12. What is her copper level, zinc level, iron level (total body

iron)

> 13 What is the function of her MEtallothioeins? Antioxidants?

Is she

> oxidatively stressed?

How do you test these things?

> 14. What does her diet consist of? What is the level of her fatty

acids,

> omegas-I am really liking the following... www.coremaga.com

> ? What part of her heme is not converting?

> 15. Does she eat carbs that have high iron in them?

> 16. Does she expose her self to phenolic foods and substances?

> www.feingold.org

I will have to go to the sights you listed and read up on this stuff,

but she does take flax daily which seems to have improved her

health. She was off of it for a couple of months, and that could

account for some of her increase in seizures. She is back on it now

though.

> 17. Does she have any blockages or irriattions in the gut, does

she has

> small signs of celiac or IBD?

her bowels seem fine.

> 18. Have you tried cranial sacral treatments? Polarity treatments?

> 19. Spinal Adjustmants

She has had spinal adjustments.

> 20. Does she have G-alpha protein defects related to insufficient

Vitamin A

> Status? Does she need some assistance with this? www.megson.com

>

> I am working on several of these routes, one especially is

promising of

> late, and that is eliminating all sources of MSG. A very simple

change here

> or there could be the difference between the hell of seizures, and

the joy

> of seeing a child off all medications and WITH IT.

> Kathy

> www.childscreen.org

Thank you for your help, I will -----

> From: wit25sun <wit25@h...>

> < @y...>

> Sent: Monday, Novstudy on some of these things you have suggested.

If you see any pattern in this info, please let me know.

Thank you,

Wit

>

[Guest guest]

Dear Wit,

There is a book called, " Treating Epilepsy Naturally, " by A. ,

which may give you some good information. Pat also edits The Epilepsy Wellness

Newsletter which can be accessed at www.epilepsywellness.com. Another book,

called " epilepsy: a new approach, " by Adrienne and Reiter, M.D. has

good information, too.

Whenever I hear that someone is on a vegan diet, I do get a little concerned

because some people don't know how to undertake that diet while getting the

proper nutrients. Extra effort has to be employed to get B-vitamins, for

example. In addition, some people eat a higher amount of wheat products when

utilizing a vegan diet, and gluten can be a trigger for seizures in some people.

(Please understand that I know some people do very well with a vegan diet and

with wheat, so I don't want to over-generalize.) B-vitamins and gluten would be

two areas I'd look at very carefully.

Wit, I've learned so much from the people in this group, and have to say I have

the highest respect for them. While they are living the " real-life " drama of

battling with epilepsy themselves, or for their precious children, they take the

time to share information and insights that you'd never hear from a " normal "

doctor. Over time, if you keep reading and writing, you'll learn a lot from

this group.

Best wishes,

Carrol

wit25sun <wit25@...> wrote:Hello,

I am new here. I am looking for help for an 11 year old with

seizures. She started to have pettit mal siezures when she was 7.

They were so mild that she seemed to be day dreaming. This sort of

behaviour ran in her mothers family, and was out-grown without

problems, so her family wasn't concerned.

When she got to be 8 they got longer, and she would often wonder

while having them. By 9 they were seriously affecting her attention

span, as you couldn'talk to her without her kind of fazing out.

Then when she was 10, less than a week after having her first floride

treatment from the dentist, and being put on a daily floride gel from

the dentist she had her first grand mal.

Her parents put her on a mostly raw diet, with cooked vegan dinners,

and B & B tincture. Also Liver formula, kidney formula, and NA (nerve

formula). At one point when they weren't sure the diet was helping

her much they let her go back to a SAD, and after she had a cluster

very close severe seizures they made her go back to the special diet,

and her condition improved again. She seems to have four seizures a

week to 10 days apart, and then she goes 4 to 5 weeks without one.

Lately though she has broken her pattern by having 4 a week apart,

and then going 2 weeks, and then another 2 a week apart.

Please any natural suggestions would be greately appreciated!!!

Thank you,

Wit

[Guest guest]

I agree, I have had to be very careful to get enough B vitamins. We

eat plenty of greens, super food, and bean sprouts. Thank you for

the info on the book, and newsletter.

Wit

>

> Dear Wit,

> There is a book called, " Treating Epilepsy Naturally, " by

A. , which may give you some good information. Pat also edits

The Epilepsy Wellness Newsletter which can be accessed at

www.epilepsywellness.com. Another book, called " epilepsy: a new

approach, " by Adrienne and Reiter, M.D. has good

information, too.

>

> Whenever I hear that someone is on a vegan diet, I do get a little

concerned because some people don't know how to undertake that diet

while getting the proper nutrients. Extra effort has to be employed

to get B-vitamins, for example.

[Guest guest]

- you shouldn't be living with this much pain. Get more treatment.

Get a new rheumatologist.

If any rheumy gives the argument about starting toxic drugs at your age,

you should point out that the picture is changing rapidly. Remicade and

Enbrel are just the first of a battery of directed drugs that will

provide better relief in coming years. Treatments like the complete

'reboot' of the immune system will be here soon so you won't have to take

MTX and other drugs for more than a few years.

Get some control of your disease - you have a lot of living to do!!

On Tuesday, November 12, 2002, at 04:48 PM, wrote:

> Hi everyone,

>

> I joined this list a couple months ago. I have both P and PA. I am

> 23 years old. I wrote about living with this and put it on a

> website. It is here

> http://www.geocities.com/butterfly_forces/index.html

>

> I try to update it as often as I can. So I'll keep this short my

> story is there.

>

>

>

[Guest guest]

Hi ,

I visited your website and read your story. It must be very difficult

to have to deal with so much at such a young age. Young people and

adolescents are very cruel. Unlike you, I was 40 when my P & PA

started so although I have a sense of what you are dealing with, I

was much older and adult peers are often more mature and

understanding. I know you haven't asked for advice, but I believe you

really need to seek out some medical help. Or if you already have a

rheumatolgist, you need to press for a way to manage your pain. A

good Rheumatologist can help make your pain and flaking much more

manageable and possibly even put it out of your life. There are lots

of choices, not all are tablets. Keep looking until you find a way

to address your symptoms.

Please remember that you are your own best advocate.

Stay Well.

> Hi everyone,

>

> I joined this list a couple months ago. I have both P and PA. I am

> 23 years old. I wrote about living with this and put it on a

> website. It is here

> http://www.geocities.com/butterfly_forces/index.html

>

> I try to update it as often as I can. So I'll keep this short my

> story is there.

>

>

[Guest guest]

Hi - welcome! I'm relatively new here too. Have you taken the candida

questionnaire? There are copies of this all over the internet - if you

score highly, it's very likely that you have candida!

I'm not sure about OCD being related to the immune system - but I do know

that nutritional supplementing can be beneficial for it. Sorry I don't know

enough to say what supplements, herbs or diet would be more beneficial than

medication. Perhaps do an internet search on herbal remedies for anxiety -

my guess would be that if you can ease the underlying anxiety with

vitamins, minerals and maybe herbs, then the compulsions would take over a

lot less.

(Unfortunately I've lent my trusty book on vitamins and minerals to

someone, and I won't be getting it back until January.)

Have you looked into physical therapies that balance the body and mind?

Reflexology might be good.

Good luck finding something,

Ali

At 10:07 p.m. 4/12/2002 +0000, you wrote:

>Hello everyone,

>

>I'm not sure if I even belong in this group. I've been doing some

>research and I think that candida is a problem I may have. I am 23

>years old, 40 pounds overweight, feel tired all the time, have

>chronic aching joints (these pains wander all over my body). I also

>always have a sore throat, get new canker sores weekly and I have a

>tendency toward depression. What are small steps I can do to help

>clear this up? Also, my husband has suffered from OCD for most of

>his life and I have read some things that indicate that it may be

>related to immune system defeciencies. Does anyone know anything

>about this?

>

>Thank you very much!

>

>

>

>

>

[Guest guest]

Hi Ali,

I'm going to find the questionnaire right now!

Court

Alison <ali-may@...> wrote:Hi - welcome! I'm relatively new here too. Have

you taken the candida

questionnaire? There are copies of this all over the internet - if you

score highly, it's very likely that you have candida!

I'm not sure about OCD being related to the immune system - but I do know

that nutritional supplementing can be beneficial for it. Sorry I don't know

enough to say what supplements, herbs or diet would be more beneficial than

medication. Perhaps do an internet search on herbal remedies for anxiety -

my guess would be that if you can ease the underlying anxiety with

vitamins, minerals and maybe herbs, then the compulsions would take over a

lot less.

(Unfortunately I've lent my trusty book on vitamins and minerals to

someone, and I won't be getting it back until January.)

Have you looked into physical therapies that balance the body and mind?

Reflexology might be good.

Good luck finding something,

Ali

At 10:07 p.m. 4/12/2002 +0000, you wrote:

>Hello everyone,

>

>I'm not sure if I even belong in this group. I've been doing some

>research and I think that candida is a problem I may have. I am 23

>years old, 40 pounds overweight, feel tired all the time, have

>chronic aching joints (these pains wander all over my body). I also

>always have a sore throat, get new canker sores weekly and I have a

>tendency toward depression. What are small steps I can do to help

>clear this up? Also, my husband has suffered from OCD for most of

>his life and I have read some things that indicate that it may be

>related to immune system defeciencies. Does anyone know anything

>about this?

>

>Thank you very much!

>

>

>

>

>

[Guest guest]

I can't stress how important it is for you to consider a TNF Drug

immediately. I had 9 joints in my fingers affected in the course of a year.

I went on Enbrel and it stopped the joint damage cold. All of the joints

resolved but 2 because those joints were seriously damaged before I went on

Enbrel while messing around with Sulfasalasine, MTX, and finally Minocine.

I got the most serious joint damage while on the antibiotic. I am weaning

off Enbrel now because my RD says I'm in remission. I have no doubt I would

have lost the use of my hands. My RD says we treated the PA aggressively

early in the disease and turned it around. My immune system normalized over

time without any more serious damage to my joints because of the Enbrel.

Hopefully it is permanent. Don't suffer. Don't mess around. See what your

RD will do. I had to insist. RGDS R.E.

[ ] new here

> I just was told that I probably have this form of arthritis...after

> going to a couple Dr's who weren't at all helpful.

>

> Now....I have at least 4 seriously deformed fingers and it has all

> happened in a period of less than 6 months !

>

> what IS this disease and does it act this fast as a rule? I have no

> other skin related symptoms.....only deformed and painful joints in

> the fingers.

>

> they put me on Methotrexate but it is not doing

> anything.....Prednisone helped one time when I first had the

> inflammation but now it does nothing, so I stopped it.

>

> I am going to a different Rheumatologist this week and hope to get

> some help .....

>

> What happens to your hands? All I can see is that they are fast

> becoming deformed and I cannot use them......Has anyone had joint

> surgery once it got so bad? this is what I am hoping for, I guess.

>

> I would appreciate any advice from anyone whoi knows

>

>

>

> Please visit our Psoriatic Arthritis Group's informational web page at:

> http://www.wpunj.edu/pa/ -- created and edited by list member

aka(raharris@...).

>

> In August 2001 list member Jack aka(Cornishpro@...) began to

conduct extensive research which he publishes as the Psoriatic Arthritic

Research Newsletter monthly in our emails and digest format. Many thanks to

Jack. Back issues of the newsletter are stored on our PA webpage.

>

> Also remember that the list archives comprise a tremendous amount of

information (Over two years of messages and answers).Feel free to browse

them at your convenience.

>

> Let's hear from some of you lurkers out there! If you have a comment or

question chances are there is a person who has been around a while who can

help you out with an educated guess for an answer. If not we can at least

steer you in the right direction with a good website to go to for the

answers.

>

> Blessings and Peace,

>

> Atwood-Stack, Founder

> Alan , Web & List Editor

> Jack , Newsletter Editor

> Pat Bias, List Editor

> Ron Dotson, List Editor

> and many others who help moderate (thank you!)

>

>

>

[Guest guest]

In a message dated 12/16/2002 6:36:56 AM Eastern Standard Time,

merlinsden@... writes:

> I have recently lost my marriage to this disease and depression; my

> husband was never able to come to terms with it and the losses that

> we had to our lifestyle because of it

My heart goes out to you - I wish you would have had the support of a caring

spouse to help you with this as it is of great value in coping. However, now

you have the support of over 400 members online

Coming to grips with the losses is very difficult. I heard a good line on

here last week - that we now must learn a new definition of " normal " .

Keep posting and reading here - it will get better!

[Guest guest]

Hi Barb,

I was just reciently diagnosed with PA in June and

have been having a hard time convincing myself that

whether I exercise or not I am still in pain. I don't

know if this is the right way to think of things but

right now it is working for me. Maybe you can try that.

Charlie

--- " Barb <merlinsden@...> "

<merlinsden@...> wrote:

> Hi, I am a new member here... I've got a lot of reading to do

> to so I don't ask dumb questions that have been asked before;

> so I'll just say a little about me if that is ok..

>

> I am a 41 year old female and I have had PA for about 8 years.

> It wasn't " officially " diagnosed until about 5 years ago.

> Within that time it had time to do a lot of damage,

> especially to my hands. I am on methotrexate, prednisone,

> celebrex, and for pain, morphine. Morphine is the only thing

> that tackles the pain at all but there is still a fair amount

> of pain.

>

> I find the fatigue overwhelming a lot of the time, and have

> been battling sever depression on and off (more on than off)

> since the PA started. I am taking AD's for that.

>

> I have recently lost my marriage to this disease and

> depression; my husband was never able to come to terms with

> it and the losses that we had to our lifestyle because of it.

> I am still having great difficulty dealing with the losses as

> well, as I was extremely physically active and that was the

> source of enjoyment in my life. I am still searching for

> purpose and a reason to go on.

>

> I hate what this disease has done to me. I know

> no-one else with it personally and was hoping

> to get some guidance and support here.

>

> Thanks for listening!

>

>

>

> [Moderator's note: Welcome to the group Barb!

> Remember the old adage: " There is no such thing as a

> dumb question - only the one not asked. " One of the

> most difficult things about this disease is getting

> past the denial stage, and learning to accept it and

> adapt accordingly. Once you've done that, you'll

> find many new sources of enjoyment in your life. As

> one member put it, you now have a new " Normal. " Ron]

>

>

[Guest guest]

Welcome April! Here's a coincidence...I too have a son (8 mths) named Chase

as well. I don't often hear that name. How is Reis doing? How many words,

if any, does he have? Are you getting speech therapy? You'll like this

group....a lot of great people with VERY helpful information. Looking

forward to hearing more from you.

(mom of 35 mth old (dx severe verbal apraxia) and 8 mth old

Chase)

[ ] New here

> Hi,

> My name is April. I have 2 sons....Chase is 4 y/o & Reis (sounds

> like Reese) is 27 months. Reis was dx with Verbal Apraxia. I would

> like to chat with some of you about your kids. I am on AOL & MSN.

> Thanks so much,

> April

[Guest guest]

Welcome! You are in the right place. Ask away!!

denise

> Hi,

> My name is April. I have 2 sons....Chase is 4 y/o & Reis (sounds

> like Reese) is 27 months. Reis was dx with Verbal Apraxia. I would

> like to chat with some of you about your kids. I am on AOL & MSN.

> Thanks so much,

> April

[Guest guest]

Hi ,

You came to the right place!!! Ask all the questions you can think

of!!!!!!!!!!!

________________________________________________________________________________\

___________________

new here

Hi my name is melissa and i am taking the national test in march. I

look forward to reading all the posts and taking in as much info from

all of you pros out there as I can.

[Guest guest]

Welcome ,

Looking forward to your posting of your questions as soon as you have

had a chance to look over/study and read the emails and tutorials

that I have sent you .

Take care and write us a bit about your self.

Working? Teching? school?state?

Respectfully,

Jeanetta Mastron CPhT BS Chemistry

Pharmacy Technician Educator

Founder/Educator

> Hi my name is melissa and i am taking the national test in march. I

> look forward to reading all the posts and taking in as much info

from

> all of you pros out there as I can.

>

[Guest guest]

I work part time for CVS. I am position certified and MA licensed as

a tech. I am also finishing up my BA in management. Toying with the

idea of pharmacy school when my children get older (4 & 1 1/2 now).

I have been with CVS since 93 and have always loved the feeling you

get from helping customers when they are in need. honestly, most of

the customers that I see are usually ill.

actually another bit for Jan, being a cashier can be very rewarding.

even though you are not getting the hands on work that you expected,

you get to learn so much about your customers. before long they get

to know you also. it is just such a great people feild. sorry i am

rambling now.

thanks

melissa

> > Hi my name is melissa and i am taking the national test in march.

I

> > look forward to reading all the posts and taking in as much info

> from

> > all of you pros out there as I can.

> >