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Dear , Welcome to the group. I'm sad to hear that your daughter is not well, but you've come to the right place for support and advice. We also are new here. This group has kept me sane during the most difficult time of my life. I'm sure it will help you to deal with things too. I have found myself laughing and crying while typing and/or reading posts. Feeling and sharing my emotions with the wonderful people here has been so helpful and felt so safe. You will meet a lot of great people here. My 4 year old daughter was diagnosed with polyarticular JRA earlier this month. We have started a NSAID, but we won't be starting Methotrexate until next Saturday because she had to have 3 live vaccines yesterday before she started meds. So we are also in a stage of the waiting game. Ask your pediatrician if your daughter is up to date on her immunizations because she might have to stop her meds if she needs them once she's started.

If you need to vent feel free to email me. I, along with so many people hear know just how you feel. Warm supportive hugs to you and your family.

Eli and Riley 4 poly

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Dear , Welcome to the group. I'm sad to hear that your daughter is not well, but you've come to the right place for support and advice. We also are new here. This group has kept me sane during the most difficult time of my life. I'm sure it will help you to deal with things too. I have found myself laughing and crying while typing and/or reading posts. Feeling and sharing my emotions with the wonderful people here has been so helpful and felt so safe. You will meet a lot of great people here. My 4 year old daughter was diagnosed with polyarticular JRA earlier this month. We have started a NSAID, but we won't be starting Methotrexate until next Saturday because she had to have 3 live vaccines yesterday before she started meds. So we are also in a stage of the waiting game. Ask your pediatrician if your daughter is up to date on her immunizations because she might have to stop her meds if she needs them once she's started.

If you need to vent feel free to email me. I, along with so many people hear know just how you feel. Warm supportive hugs to you and your family.

Eli and Riley 4 poly

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Hi ,

Welcome to the group! Sorry to hear about your daughter having jra. I know how hard it is and my daughter was diagnosed at 10 months old and is now 2 yrs. I hope you find out soon what type she has. And I hope she gets releif soon. You will find that this group is very smart and supportive and nice and will help you any time you need it. So welcome and feel free to ask anyone anything. Jona mom of na 2 poly

mommyby3 <mommyby3@...> wrote: Hi my name is and I live in West virginia with my DH and 3 blessings.Our oldest son is 4yr. old,our daughter is 19 months old and our youngest son is 8 months old.Our daughter is the one with JRA.We found out about a week ago.We spent a week in Children's Hospital in DC.Her dr. hasn't decided what type of JRA she has,the dr. feels it's systemic but she said we'd have to wait and see.I feel very lost and confused right how. also has duodenitis and food allergies.Her dr. says everything with become routine after awhile,we just need to find the right meds.and the right amounts.Any amount of info and support anyone can give would help make this easier to handle.Thank you very much.

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Hello and welcome! Sorry to her about your daughter..she is young.

My daughter Tabitha has polyarticular jra and was diagnosed with back in 89' at the age of four and a half. She is now 17..it has been a long road..but with trying times and good times. She has had both hips and knees replaced and lots of joint damage but right now has very low arthritis activity.

Your doctor said the right thing when she said about getting a diagnosis and getting started on the right meds. But please know..if your doctor does something you don't agree with please speak up..I have learned from the years just because they have a degree does not mean they know everything that is necessary. You should keep a journal of your daughters progress..and her results etc..something i didn't and wished i had. Would come in handy to fall back on when i need to remember certain dates and stuff.

As for support..you can call your local arthritis foundation or the one nearest to you..they have pamphlets and might even have a support group near you. These people are my support..along with my family. I only wish i had this list when Tab was first dx. For these people and this list gives knowledge and support when needed..no matter if you need to vent, cry, share good news..or just need a friend.

Take care and good luck..yall will be in my thoughts!

karen(tab17..poly)

From: "mommyby3"

Reply- Subject: New Here Date: Sat, 25 May 2002 11:14:37 -0000

Hi my name is and I live in West virginia with my DH and 3 blessings.Our oldest son is 4yr. old,our daughter is 19 months old and our youngest son is 8 months old.Our daughter is the one with JRA.We found out about a week ago.We spent a week in Children's Hospital in DC.Her dr. hasn't decided what type of JRA she has,the dr. feels it's systemic but she said we'd have to wait and see.I feel very lost and confused right how. also has duodenitis and food allergies.Her dr. says everything with become routine after awhile,we just need to find the right meds.and the right amounts.Any amount of info and support anyone can give would help make this easier to handle.Thank you very much.

Chat with friends online, try MSN Messenger: Click Here

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Hi ,

Welcome to a wonderful group of helpful folks. I have been a part for

less than a year but have learned so much. Our daughter was diagnosed

last August of 2001 after 4 months of frustration at the age of 14.

We are fortunate to have found a wonderful doctor who has made such a

difference in the whole ordeal. Finding the right medications to help

her to function at her best possible spot can be a challenge at

times, but we are all fortunate that these children who are currently

being diagnosed have many medications to choose from. It will make an

incredible difference for them (as you will find from others with

more experience.)

Try not to get dicouraged. It can be difficult to deal with

everything your child is going through especially in the beginning.

This is a great place to vent with people who understand. And if you

have a question someone always has a helpful answer. Wishing you luck

in finding that right combination to help your little one feel as

good as she can soon.

e, with a 15 year old with poly (who always remains nameless

in my posts because of my weird quirk with her and the Net)

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Welcome to the group and , You've come to the right place...there are alot of friendships formed here...friends that have and are currently walking in your's and s same shoes. My name is Theresa but i use the name Tree most of the time. I live in Louisville, Kentucky so I don't know what part of WV you are but we might not be too far away lol! I've had JRA for over 32 years and am just one of the many JRA Vets on this list.What Rhuematologist(rhummy for short) does see???? Wow your little angels are so close together, you really have your hands full. I have one son now 14 and hubby 45 going on 10 lol I helped start a support group for the kids and young adults with arthritis of Kentucky and Southern Indiana. We are called FACES (Facing Arthritis with Compassion, Encouragement and Support. We send out newsletters and have our own sight now where you can go to see some of us and what we are up to and read the newsletter too! Here's the address if you'd like to have a look: http://www.calky.org/faces/ Please keep us updated on and yourself and take care ! Keep Smilin' :):):)Tree:):):) New Here Hi my name is and I live in West virginia with my DH and 3blessings.Our oldest son is 4yr. old,our daughter is 19 months oldand our youngest son is 8 months old.Our daughter is the one withJRA.We found out about a week ago.We spent a week in Children'sHospital in DC.Her dr. hasn't decided what type of JRA she has,thedr. feels it's systemic but she said we'd have to wait and see.I feelvery lost and confused right how. also has duodenitis and foodallergies.Her dr. says everything with become routine after awhile,wejust need to find the right meds.and the right amounts.Any amount ofinfo and support anyone can give would help make this easier tohandle.Thank you verymuch.

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Hi ,

Welcome. And I do hope that our group will be able to offer you some information and support to help make things a bit easier. We understand how it feels, as we've all been in similar circumstances. It sounds like you have found a good doctor to work with. That's a great first step. It does usually get easier as time goes on.

Aloha, Georgina

----- Original Message -----

From: mommyby3

Hi my name is and I live in West virginia with my DH and 3 blessings.Our oldest son is 4yr. old,our daughter is 19 months old and our youngest son is 8 months old.Our daughter is the one with JRA.We found out about a week ago.We spent a week in Children's Hospital in DC.Her dr. hasn't decided what type of JRA she has,the dr. feels it's systemic but she said we'd have to wait and see.I feel very lost and confused right how. also has duodenitis and food allergies.Her dr. says everything with become routine after awhile,we just need to find the right meds.and the right amounts.Any amount of info and support anyone can give would help make this easier to handle.Thank you very much.

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<<<<<<<<<<<<<<<<<<<<<<<Hi everyone,

I just joined this group hoping to get some information. I bought an

Internal Cleansing kit at a health food store a couple of weeks ago. Colon

cancer runs in the family so I figured cleaning my colon and bowel would be

a good thing. I haven't been able to find much info on side effects of

cleansing though. I took the supplements ( a herbal pill called Anti-Toxin

and fiber FOS and acidophilus) as the brochure explained. This is a 7 day

cleanse. I started on Monday June 10 and took the supplements until June

14th (5 days) On the third day I began experiencing headaches. I had a

headache from Wed-Sat so I stopped the supplements.

Now onto my question. On the Sunday after I stopped taking the pills I had

dirrahea all day and just thought it was from what I ate the night before.

However, this past week I've been having cramping, pain in my lower left

side of my abdomen, having the urge to push and have a bowel movement

frequently. When I do go my stools are narrower than before I started the

cleanse and sometimes have mucus in them. The urge to go feels like I

should have a large movement but it's just alot of smaller stuff. I'm not

going every day though - usually every other day. I also have gas pains and

gas today. I haven't taken the supplements now for over a week. Did they

start the cleansing process and this is what I'm experiencing? I'm curious

to hear other people's experiences. I am going to go to my Doctor this week

becasue with colon cancer in my family it scares me. I'm 28 years old with

a 3 year old son.

Thanks for any advice or help,

>>>>>>>>>>>>>>>>>>>>>>

;

Your situation is classic of someone trying to do something good for themselves

and then having the " side effects " of which you've described as having. This is

called the Herxhiemer Reaction and is often the greatest reason why people start

to do a body detoxification and then quit after the various symptoms for which

they may have started a detoxing become worst or acquire new problems with their

body.

http://www.pureliquidgold.com/candidadiet.htm

A colon cleansing is a process that takes more than just a supplement to do

correctly. It is a life style change too. Most colon cancer can be related as

having occurred with people who have had high meat and fat diets. Now fat diets

by itself isn't' the main cause it is the type of fat that causes the problems

and can be aggravated by various other dietary intake.

http://nutrition.about.com/library/weekly/aa021999.htm

http://www.animalliberation.org.au/vegocolo.html

http://www.med.virginia.edu/cancer/colonrisks.html

To better deal with the potential side effects of doing a colon cleanse it would

behoove you to research a bit more on eating foods that will work towards that

end without necessarily using supplements to do so. There is a synergetic

interplay between the small intestines, colon, liver, gallbladder and pancreas

regarding the cleansing processes that take place during a colon cleansing.

Understanding these will go a long way towards dealing with the potential

discomfort of the body adjusting to a new and healthier lifestyle.

These cleansing plans all work, for the most part. However, eating the right

types of foods on a daily basis will go a lot further in the long run towards

the goal of a clean and healthy colon. I have a 64-year-old friend who makes her

own breads that contain no refined wheat flour or other refined and enriched

products. Her bread is probably the most fibrous that anyone could eat. She had

a check up not too many months ago and was told that her colon was as pure as

the doctor had ever seen. She had the colon of child like quality. This is

attributed to the fact that much of the foods she cooks are quite fibrous

containing soluble and insoluble fibers.

From what you wrote it sounds like you are also dealing with a condition known

as Irritable Bowel Syndrome possably brought on by the cleanse. This can

certainly occur as part of a cleansing process if there isn't' enough water

intake as well as enough extra fiber to help in the whole of the cleansing

procedure. The most common cause is dairy products while dong a cleanse. If you

think you can eat pizza and take the colon cleansing supplements you're going to

be having problems like you've described. It can also occur from cheeses and

milk products causing constipation.

There is quite a bit to understanding the whole synergetic process of nutrition

and waste. But if I were to advise as to one or two books to read regarding this

they would be Dr. Cabot's, " The Liver Cleansing Diet " or " The Healthy

Liver and Bowel Book " . Following the advise in either will be technically

cleansing the bowels because of the interrelationship of the liver to the bowel.

I personally think " The Liver Cleansing Book " is much more simpler for a person

to start getting an understanding of a diet by which to cleanse the liver and

thereby the colon by understanding how the liver works with the bowels. It is

the gateway in and out of the body cavity. It feeds the organs as well as

cleansup after them. It is the cook and dishwasher.

http://www.liverdoctor.com/

Dale

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Don't worry so much how your going to miss sugar, concentrate on the diet,

always know and have your food in the house, buy fresh or organic foods,

Stevia is a sweetener you may use for sugar, Take a fresh squeezed lemon,.

add a touch of stevia & you've got the best lemonade and lemons are good for

you, this helps crave sugar for me, take each day & limit your sugar more and

more as the days go on, once your off the sugar DO NOT TAKE THE FIRST BITE OF

ANY SUGAR! it used to be i couldn't walk past the bakery without getting

weak. remember the yeast is in control of your body and YOU want to be. do

not give in. we all have our different views of fungals and vitamins,

you'll have to see which makes you feel better.

keep in touch with us and we are here for you. Good Luck Mog

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Jane-

Welcome to the group. I know that there are at least a couple in the group who live in the UK. Hopefully, they'll post. My daughter is 3, has pauci and iritis, and is on methotrexate, folic acid and Relafen. I actually wasn't sure one form of jra could turn into systemic if it wasn't initially. How awful for Ben. There are numerous members who have children with systemic jra and whose kids are on oral steroids. I'm sure they can give you some good information

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Hi Jane, First of all Welcome to the group!

I'm sorry to hear Ben isn't doing so well.

I want you to know you have joined a wonderful support group here,

everybody here is so kind.

My little girl is 4 & has Polyarticular arthritis.

I hope all the best for you & Ben.

Take care,

& Cheyanne4 Poly

> Hi, Im new to here so thought I would introduce myself.

> Im Jane mum to Ben who is 6 and was diagnosed last August with

poly

> and yesterday told he had developed systemic.

> We live in UK so would love to here from other parents in our area.

> He is currently on methotrexate and brufen for his fevers, next

step

> is steroids but specialist is not too keen as Ben is a very large

boy

> already due to mobility probs.

>

> its nice to know were not alone

>

> Thanks for listening

>

> Jane and Ben

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Welcome Jane and Ben,

I am sorry that your son has developed this, but you

have found an amazing group of people. My daughter

and I are not from UK but I am here to listen to

anyone regardless of where you are. I wish you all

the best.

Teddy bear hugs and love,

Casaria and Tas (3)

__________________________________________________

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Hi Jane - Welcome!

I'm a fellow Brit and my 3 yr old daughter (Calista) was diagnosed

with Poly at the beginning of the year. She takes Methotrexate and

Prednisone and has had the steroid injections into her joints twice

(in January and last week).

We are not living in the UK at the moment but are stationed in

Germany so my daughter sees a lovely doctor at the Olga KinderKlinik

in Stuttgart.

I too didn't realise that a child could start off with Poly and then

have it turn into Systemic - poor little Ben.

Anyway, just wanted to welcome you and even though I dont post

messages very often I really enjoy reading all of them and get a lot

of support just from knowing that we are not the only family going

through this!

Vicky

(Mum to Calista - 3yrs - Poly)

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Hi Jane,

Im from the states but would enjoy ytalking to you.I never knew Poly could

turn into systemic.My son was diagnosed with systemic JRA june of last

year.He was put on 30mg prednisilone,his Ibuprofin was increased and 2 weeks

later started MTX.13 months later he is maxed out on Ibuprofin,800mg a

day,he is maxed out on MTX,25mg sub que on Fridays,200 mg Plaquenil a

day,added that one 3 months ago,and finally down to 5mg prednisilone.He is

doing great now.It took a long time to find the right doses of meds,the

Plaquenil isnt even working yet,that we know of.Pred is bad for weight.

weighed 34lbs when he was diagnosed and now weighs 59lbs.It was really

heartbreaking watching his apperance change so much.I hope for Ben the MTX

and Ibuprofin control the systemic aspects of this disease.Our rheumy has a

systemic patiant that never had to be put on steroids and the MTX alone done

the trick,that is very rare though.Glad you joined this list,its such a

great group of people.

Becki and 4systemic

New here

>Hi, Im new to here so thought I would introduce myself.

>Im Jane mum to Ben who is 6 and was diagnosed last August with poly

>and yesterday told he had developed systemic.

>We live in UK so would love to here from other parents in our area.

>He is currently on methotrexate and brufen for his fevers, next step

>is steroids but specialist is not too keen as Ben is a very large boy

>already due to mobility probs.

>

>its nice to know were not alone

>

>Thanks for listening

>

>Jane and Ben

>

>

>

>

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Hi Jane,

My son Damien has had systemic JRA for about 7 years and we are based in

North Kent/SE London. We attend Gt Ormond St Hospital in London. Where are

you and Ben?

Oliver

New here

Hi, Im new to here so thought I would introduce myself.

Im Jane mum to Ben who is 6 and was diagnosed last August with poly

and yesterday told he had developed systemic.

We live in UK so would love to here from other parents in our area.

He is currently on methotrexate and brufen for his fevers, next step

is steroids but specialist is not too keen as Ben is a very large boy

already due to mobility probs.

its nice to know were not alone

Thanks for listening

Jane and Ben

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Hi Jane, just wanted to welcome you (belatedly) to the group. This has been a

tremendous source of support and information for me - you found the right place.

Hang in there!

Val

Rob's Mom (4,systemic)

In a message dated Wed, 31 Jul 2002 5:16:10 PM Eastern Standard Time,

janemud@... writes:

>

>

> Hi, Im new to here so thought I would introduce myself.

> Im Jane mum to Ben who is 6 and was diagnosed last August with poly

> and yesterday told he had developed systemic.

> We live in UK so would love to here from other parents in our area.

> He is currently on methotrexate and brufen for his fevers, next step

> is steroids but specialist is not too keen as Ben is a very large boy

> already due to mobility probs.

>

> its nice to know were not alone

>

> Thanks for listening

>

> Jane and Ben

>

>

>

>

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Hi Steffi,

I am also a vegetarian who has a difficult time

following the diet. but, keep in mind that you don't

have to be incredibly strict about it forever. I'm

sure you eat a lot of vegetables anyway, but try to up

it even more. I think though, that since we are

vegetarian and may eat more simple carbs than others,

it provides a healthy environment for candida to grow.

I have just started eating bread again, but only

whole wheat. i do a lot of whole wheat pitas as well.

i just started eating tofu and beans again too. i

only went without these for a couple weeks, and am so

happy to eat things i love again. just do your best

and remember that this diet will not be forever. good

luck.

-dawn

> Hi! My name is Steffi and I've been recently

> diagnosed with candidiasis, although I've never had

> problems with thrush and also my problems (which

> include head aches, dizziness, feeling as if my

> brain was swollen, fatigue, muscular pain

> -especially shoulders, neck and upper back, VERY

> intense cravings for sweet stuff and bread, mild

> depression and wicked mood swings, bla bla) seem to

> come and go so I'm still not 100% sure that candida

> is my problem (the naturopath used something called

> a Vega machine to diagnose me). Still, I'm sure if

> it's not that then I've got some serious intolerance

> problems, but I'll give this treatment a go first.

> I've been on antifungals for about 2 weeks (one to

> go) and keep trying to do the candida diet but I'm

> having a hell of a time because I'm a vegetarian and

> going low carb just seems almost impossible. Is

> anyone here a vegetarian or can give me some ideas?

> I'd really appreciate it!

> Thanks,

> Steffi.

> Life is a journey, not a destination.

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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Hi Steffi,

I am also a vegetarian and can really empathize with you. I have taken

a drastic step however and gone onto chicken and a little

fish-----temporarily--- since there is practically nothing to eat. (It

isn't really helping that much though and making me feel terrible about

going against my principles)----you are supposed to rotate every single

item you eat and only have it every 4-7 days which is impossible since

there are so few of them.

I have brown rice almost every day. I try to eat green salads but find

it difficult since I miss the yummy salad dressings I used to enjoy.

My understanding is that nuts are perfectly fine, except for peanuts,

cashews and pistachios. I buy them raw and roast them myself---it's my

only snack besides rice cakes. Plum said she's doing plain corn chips:

I don't know if they are the tostado type for salsa or what but they

ususally prepare them in hydrologized oils which we cannot have.

I think it's much harder for vegetarians because since the choices are

even fewer than for the others, there's a much greater chance for us to

cheat more and thereby slow things down or to fail completely. So hang

in there. Oh---have you tried tempeh? I buy it at the health food

store, cut it into cubes and stir fry it with vegetables. I only buy

the soybean or brown rice types with no tamari.

Diane

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Steffi--

Have you asked your heath food store if they can order unsweetened soy

milk for you? Alot of stores here don' t have it on the shelves but

they can order it.

Also have you ever tried falafel with tahini sauce? There are many

recipes on the web for it---it is permissable and quite yummy especially

if you like Middle Eastern food. It's ground garbanzo beans shaped in

patties or balls fried and served with salad and the sauce. Tahini is

ground sesame seed paste. You can buy it in--- the US anyway and mix it

with water and lemon juice to desired consistency for sauce, dip or

salad dressing.

I would love to visit your country some day. It sounds so beautiful and

wonderful and I wonder if it is as swarming with people as this country

is getting to be.

Happy Cooking!!

Diane

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-Hi Keri

Welecome, to answer your questions about efa's It will not hurt him

if he does not have apraxia, if anything will benefit him, It has

helped my son Jack who at the time of supplementation was at about 10

words and is now at 7-8 word sentenses, right now there is a big ? on

wether he has apraxia at all which is what we will find out next week

with a appt. with a SLP who specializes in Apraxia. But at the time

he was diagnosed he certaintly had all the characteristics of apraxia

and was diagnosed with severe Oral apraxia. I also give EFA's to

Jack's brother 1.8 and started him at 11 months, when for 1

months he stopped babbling and I was panicking. So I wrote to the list and one

of the Dr's said it was fine, I started him on them imediatley

and he started babbling again 2 weeks later and he is now at 4 word

sentences. I doubt he is apraxic but I refuse to take him off of them

he is doing fine with the acids and so is Jack with or without

actually having Apraxia.

Eileen

-- In @y..., " keri_cabrera " <cdc210@b...> wrote:

> Hello everyone

>

> My name is Keri and I am new to this group. > I have been online looking for

info about apraxia and speech

> disorders for the past 2 weeks and have found alot....2 days ago we

> started nicholas on EFA supplementation...Question if it turns out

> that he does not have apraxia and will the EFAs still be

beneficial???

> Is there anything else...therapy or supplementation that anyone

else

> is trying????

>

> Thanks Keri

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Depending on your state they have a certain number of days to

respond. Start calling, the squeaky wheel gets the grease!!

We are also waiting to hear from

> our town's school system...I hand delivered a letter to them

> requesting an evualation but was told that the child study team

> wasn't working in the summer????

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Hi there! I have to agree with Eileen in that even if he doesnt have

true apraxia, it will not hurt him and he may still benefit. I really

believe this because my son started off with moderate apraxia about 2

years ago and now it has resolved (I started the suplmnts about a yr

ago). I still give my son (he's 5) the ProEFA/EPA because there is

something his brain is getting from it to help that language blossom

and shoot, if anything his cholesterol level will probably stay low

because of all the good omega oils he is getting! HTH.

Vivian

> >Question if it turns out that he does not have apraxia and will the EFAs

still be > beneficial???> > Is there anything else...therapy or supplementation

that anyone > else > > is trying????

> >

> > Thanks Keri

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and Marie

Logon to the website for this groupt, study the archived messages and the

FILES section and any BOOKMARKS.

Also, although I am not of African descent, I am offended by the

comment below that AIDS is caused by weak genetic material of that genetic

line. That is so racist and divisive, I can't believe I'm reading this on a

list geared toward support and healing. I thought the message of the Holy

Virgin and her son was inclusion, love, compassion and support!

mjh

In a message dated 9/10/02 5:21:18 PM Eastern Daylight Time,

magoalter@... writes:

> Hello Marie...

> Since I am also rather new here, I won't be of much help for you, but I

> just wanted you to know I will have your partner in my paryers to God and

> to our sweet mother, the Holy Virgin.

> I got into this list searching for alternative ways of treatment for

> cancer. And I've seen some mentioned here, but maybe not as much as I

> expected.

> Nevertheless, the power of real honest love can help a lot, since cancer

> appears to be somehow related with immune system confusion, and this can

> very easily be associated with high levels of stress. So, being real love a

> strong stress remover, this real love can help our immune system to get

> stronger and smarter again.

> As for what I've heard, chemo and/or radiation alone can even hurt more

> than help if the person is not having a possitive attitude. I mean,

> depression and stress, may block immune system normal work, and actually

> all cells normal work, because stress and depression makes difficult for

> the body to synthetise proteins, which are the bacic building blocks for

> antibodies and cells in general. If you add some chemo and radiation

> attacking the reproduction of cells (if I am not wrong, radiation is

> supposed to attack more the cancer cells, because their reproduction cycles

> are very fast an disordered and thus very safe or strong. But although it

> is more effective on these more, it attack crazy and normal cells in the

> same way)... imagine how hard would be for the body to find its equilibrium

> again!

> From what I've said you can also conclude another point: good and healthy

> alimentation is another element in the treatment and cure of cancer. Within

> this line of thoughts, there are doctors who believes that even AIDS is not

> what we have been told: http://www.robertogiraldo.com/ and that can have

> its origins in weak humans from Africa. I know it sounds almost crazy, but

> the point is that there is another possible way of seeing things, not so

> fatalistic.

> I am not a scientist. I'm just a guy which mom was diagnosed with breast

> cancer. Actually I once studied medicine (3 years), but didn't finished it,

> because I decided better to study computers, and that's what I do for a

> living now.

> So, I only mention things about I've heard or read, for you, list-members

> to give your opinions...

> Thanks for all the informaton you send.

> And pray with love and happyness to God, so He can bless all of us.

>

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Hello Marie...

Since I am also rather new here, I won't be of much help for you, but I just

wanted you to know I will have your partner in my paryers to God and to our

sweet mother, the Holy Virgin.

I got into this list searching for alternative ways of treatment for cancer. And

I've seen some mentioned here, but maybe not as much as I expected.

Nevertheless, the power of real honest love can help a lot, since cancer appears

to be somehow related with immune system confusion, and this can very easily be

associated with high levels of stress. So, being real love a strong stress

remover, this real love can help our immune system to get stronger and smarter

again.

As for what I've heard, chemo and/or radiation alone can even hurt more than

help if the person is not having a possitive attitude. I mean, depression and

stress, may block immune system normal work, and actually all cells normal work,

because stress and depression makes difficult for the body to synthetise

proteins, which are the bacic building blocks for antibodies and cells in

general. If you add some chemo and radiation attacking the reproduction of cells

(if I am not wrong, radiation is supposed to attack more the cancer cells,

because their reproduction cycles are very fast an disordered and thus very safe

or strong. But although it is more effective on these more, it attack crazy and

normal cells in the same way)... imagine how hard would be for the body to find

its equilibrium again!

From what I've said you can also conclude another point: good and healthy

alimentation is another element in the treatment and cure of cancer. Within this

line of thoughts, there are doctors who believes that even AIDS is not what we

have been told: http://www.robertogiraldo.com/ and that can have its origins in

weak humans from Africa. I know it sounds almost crazy, but the point is that

there is another possible way of seeing things, not so fatalistic.

I am not a scientist. I'm just a guy which mom was diagnosed with breast cancer.

Actually I once studied medicine (3 years), but didn't finished it, because I

decided better to study computers, and that's what I do for a living now.

So, I only mention things about I've heard or read, for you, list-members to

give your opinions...

Thanks for all the informaton you send.

And pray with love and happyness to God, so He can bless all of us.

Adrián.

Marie wrote: Hi everyone.. I am new to the group. My partner was just

diagnosted

with cancer of the doudenum (lower stomach) which is inoperable. She

has had surgery to bypass the area so that she can digest normally

but will be starting radiation treatments soon. As her 'care giver'

I would like to know what to expect during her treatment... Can

anyone give me some advise

Thanks and God Bless All of You

Marie

---------------------------------

- We Remember

9-11: A tribute to the more than 3,000 lives lost

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There is a lot of great info within this site. Make

sure you make good use of the " search archive " space

to go back and review what topics may have already

been discussed in the past.

Like you, I have the privledge of taking care of

someone who is going through conventional treatment

first, rather than trying the alternatives first and

using the conventional as the last resort.

If she must go through chemo, there a few supplements

that need to used right away. I'll list them and you

can find all of the info on each of them.

Coenzyme Q10: The will protect her heart from the

damage of the chemo, act as an antioxidant and help

oxygenate tissue.

Digestive or proteolytic enzymes, preferably

WobezymeN.: These help decrease inflammation, help

shed the protective coating of the tumors and can also

help break down food to provide better digestion.

These will help her tolerate the chemo.

L-Glutamine - helps avoid mouth sores

Make sure you purchase the book Antioxidants Against

Cancer by Ralph Moss. He gets into explaining in

detail with references which supplements work with

which chemo agents. Its a short book that is important

since she should avoid mixing some supplements with

certain chemos.

As everyone else will tell you, make sure she avoids

sugar and alcohol. There are several combinations of

teas which may help but I don't want to overwhelm you.

Chin up, you're a good friend.

Marty

--- Marie <mnmwon@...> wrote:

> Hi everyone.. I am new to the group. My partner was

> just diagnosted

> with cancer of the doudenum (lower stomach) which is

> inoperable. She

> has had surgery to bypass the area so that she can

> digest normally

> but will be starting radiation treatments soon. As

> her 'care giver'

> I would like to know what to expect during her

> treatment... Can

> anyone give me some advise

>

> Thanks and God Bless All of You

>

> Marie

>

>

__________________________________________________

- We Remember

9-11: A tribute to the more than 3,000 lives lost

http://dir.remember./tribute

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