New here

March 13, 2008

Hi !

I came across a Parent Support Group in Loudoun County. It's run by

Pam Escobar and the next meeting is April 8th - I plan to attend. We

had a nice conversation yesterday about the group and what they do at

the meetings. It's sounds like a really great resource (the group has

been meeting for 11 years or so)

Let me know if you would like the info - or heck - we can start our

own social group. I'm about to try anything at this point!

Lynn

> Hi - I'm Lynn. My daughter, 11 has Asperger's. She was

diagnosed when

> she was 8.

> We live in Northern Va and basically here to see if there is anyone in

> our area to connect with.

>

> Lynn

>

> ---------------------------------

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>

March 19, 2008

Welcome !

Take a look at the Files section for this group. It's very informative. There

are quite alot of us chelating using the Cutler protocol so feel free to ask

questions.

Maggie

natalie peterson <natbill7@...> wrote:

Hi,

My name is and I guess the newest memeber here.I have 6

children and one son, my 6 year old runs the gamut of asd and my 5 year

old son is just being diagnosed with a learning disability.

Both had extremely high levels of lead and mercury and we are in the

process of chelating now.Our doctor has been using the DAN! protocol

but I am more interested in the Cutler protocol that some of you

practice.

The thing I notice and this is why I want to switch over is that every

time we do a round of chelation my 6 year old is at the top of his game.

Usually I get a litany of complaints about his attention and behavior

from the school,but on the days of and the first couple of days

following chelation he is a different kid.

He is so much better after we get some metals out of him that the

change is startling,but after a few days he regresses back to his old

behaviors.So I am thinking that a longer and slower approach would be

more beneficial.

Any thoughts on this or advice would be welcome.

I hope to be able to learn from and contribute to this group.

Warmly,

------------------------------------

=======================================================

March 24, 2008

> We just started peptizyde and zyme prime a week ago. The first few

> days, we saw a smidge of change, now it sort of is back to normal. I

> also started giving him CLO(nordic naturals) The question i have is,

> is there an amount of all this stuff that could hurt him instead of

> help?

You can give too much of *anything* and it will cause problems.

>>He's for the most part non-verbal.

What my son needed for speech is written here

http://www.danasview.net/issues.htm

>>i was also wondering if anyone has used Carn-aware? If so,

> please, i'd love to hear you advice, tips, stories.

I used it for about a month, it seemed to help for a month and then

did nothing.

Dana

March 25, 2008

which thyroid medication are you on?

nancie

From: Kathie

Sent: Tuesday, March 25, 2008 9:22 AM

hypothyroidism

Subject: New Here

I joined this group hoping to get information about hypothyroidism. My

biggest problems are lack of concentration, " foggy brain " ,

forgetfulness, low energy levels, tiredness. I am an " otherwise "

healthy, professional woman. I take care of myself physically. I did

gain twenty pounds over the past five years and within the last three

months have forced myself to do something about the weight gain and

have lost ten pounds. I just don't feel as sharp and alert as I used

to be. Is this all related to the thyroid problem? I have been taking

Levoxyl for five years at 100m. Because of my last lab work my doctor

increased my dose to 125m a month ago. I feel no difference at all.

Thanks for any input.

Kathie

March 26, 2008

Kathie,

You wrote:

> ... My biggest problems are lack of concentration, " foggy brain " ,

> forgetfulness, low energy levels, tiredness. ... Is this all

> related to the thyroid problem?....

Yes.

> ... I have been taking

> Levoxyl for five years at 100m. Because of my last lab work my doctor

> increased my dose to 125m a month ago....

I assume you mean 100 mcg and 125 mcg. Some people need as much as 200

mcg. Are you taking it properly, one hour before and two hours after

food and four hours away from vitamins and supplements that might have

calcium or iron in them? Please share specific lab results. Otherwise we

are just guessing what is wrong.

Chuck

March 26, 2008

> > ... My biggest problems are lack of concentration, " foggy brain " ,

> > forgetfulness, low energy levels, tiredness. ... Is this all

> > related to the thyroid problem?....

>

> Yes.

>

> > ... I have been taking

> > Levoxyl for five years at 100m. Because of my last lab work my

doctor

> > increased my dose to 125m a month ago....

>

> I assume you mean 100 mcg and 125 mcg. Some people need as much as

200

> mcg. Are you taking it properly, one hour before and two hours

after

> food and four hours away from vitamins and supplements that might

have

> calcium or iron in them? Please share specific lab results.

Otherwise we

> are just guessing what is wrong.

>

> Chuck

>

March 28, 2008

my ND, based on a few tests, finds NO candida! I'm still worried that the test have gotten mixed up as it seemed impossible I don't have it.

From what I've heard from Dr. Natasha -McBride as well as others

on various lists, that there is no true test for candida. I'm not sure if that

means there are false-positivies or false-negatives, but I do remember her

saying that the way she diagnoses it is simply from symptoms.

Katy

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March 29, 2008

The Candida test my ND gave me was from Genova Labs (smokie labs). . .does this mean the results aren't accurate if there isn't any true candida test? From what I had read, that lab is one of the most reliable ones, but I was lead to believe, just from reading online that if a woman has a chronic yeast infection, it begins in the gut rather than the other, so this is why I wasn't sure about the test results.

I do have a full bottle of Nystatin pure powder and am not sure if I should be taking it a few times a day. It's horrid tasting and I've almost thrown up when taking it! Also, I wonder about it killing off the probiotics I'm taking.

RE: [ ] new here

my ND, based on a few tests, finds NO candida! I'm still worried that the test have gotten mixed up as it seemed impossible I don't have it.

From what I've heard from Dr. Natasha -McBride as well as others

on various lists, that there is no true test for candida. I'm not sure if that

means there are false-positivies or false-negatives, but I do remember her

saying that the way she diagnoses it is simply from symptoms.

Katy

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March 29, 2008

You probably need more meds. Get new blood results.

demand ree t3, t4, TSH for fun, and antibodies.

Good luck,

--- Kathie <josephs_kathie@...> wrote:

> I joined this group hoping to get information about

> hypothyroidism. My

> biggest problems are lack of concentration, " foggy

> brain " ,

> forgetfulness, low energy levels, tiredness. I am

> an " otherwise "

> healthy, professional woman. I take care of myself

> physically. I did

> gain twenty pounds over the past five years and

> within the last three

> months have forced myself to do something about the

> weight gain and

> have lost ten pounds. I just don't feel as sharp

> and alert as I used

> to be. Is this all related to the thyroid problem?

> I have been taking

> Levoxyl for five years at 100m. Because of my last

> lab work my doctor

> increased my dose to 125m a month ago. I feel no

> difference at all.

> Thanks for any input.

>

> Kathie

>

________________________________________________________________________________\

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March 29, 2008

My understanding is the stool test tries to culture the yeast. If it

grows, you know there was yeast. But sometimes it doesn't grow for

other reasons. In the autism community some doctors are finding that

the yeast is creating a biofilm that may inhibit positive stool

tests. I'm not sure what the science is behind this though.

My sons stool tests came up negative, but his Organic Acid Test (OAT)

showed results high in acids produced by yeast. Also, if there are

low numbers of the healthy microflora, it doesn't matter what your

yeast is, you need probiotics. I would focus on these either way and

not focus as much on the antifungals.

Connie

>

> The Candida test my ND gave me was from Genova Labs (smokie

labs). . .does this mean the results aren't accurate if there isn't

any true candida test? From what I had read, that lab is one of the

most reliable ones, but I was lead to believe, just from reading

online that if a woman has a chronic yeast infection, it begins in

the gut rather than the other, so this is why I wasn't sure about the

test results.

>

> I do have a full bottle of Nystatin pure powder and am not sure if

I should be taking it a few times a day. It's horrid tasting and

I've almost thrown up when taking it! Also, I wonder about it

killing off the probiotics I'm taking.

>

> RE: [ ] new here

>

> my ND, based on a few tests, finds NO candida! I'm still worried

that the test have gotten mixed up as it seemed impossible I don't

have it.

>

> From what I've heard from Dr. Natasha -McBride as well as

others

> on various lists, that there is no true test for candida. I'm not

sure if that

> means there are false-positivies or false-negatives, but I do

remember her

> saying that the way she diagnoses it is simply from symptoms.

>

> Katy

>

> No virus found in this outgoing message.

> Checked by AVG.

> Version: 7.5.519 / Virus Database: 269.22.1/1347 - Release Date:

3/27/2008 7:15 PM

>

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April 6, 2008

Hi Caren,

I'm a 65 year old Female I had my left knee replaced a week ago

Friday. I'm home now and using a cane, The pain in my left knee

and leg is nothing compared to the pain I had before the surgery, I

have been bowling and playing golf for about 50 years so I guess I

just wore it out! The Dr. sent me home with a Machine that moved my

knee back and fourth for 3 hrs. 3 times a day. which really helped

me start moving it then when I sat in a chair I was to try to touch

the back of my calf to the chair. I'm hopping to be able to start

driving by Friday which is the day I see the Dr. first time after

surgery. I sure hope you can start to get rid of some of the pain

you are having. If you have any questions please let me know I would

love to try to help if I can.

Sue in So. sdale.

April 7, 2008

Tara,

Please read the book, The Late Talker. Also make sure you get this child

into Speech Therapy. At this rate they should qualify for government

services. Then try the fish oil, pleaese check the files.

It is great you are catching this now. Dont turn away and ignore it. I am so

greatful I did. There is so much info and support ont his site.

We are here to help.

Colleen

Mother of Charlie 2. 5 years

[ ] New here

Hello Everyone:

I'm glad I found this forum. I have a 17-month old son who is

not talking. He can say momma (rarely) and often dada. He once

or twice said 'ball.' that's it. He doesn't wave or say bye-bye. He

does grunt a lot and make sounds to try and get what he wants.

He has been pointing when he wants something. He makes eye contact

and we did the M-Chat (autism checklist) and he doesn't really seem

to fit criteria for that. He was a late walker, 15 months, and I'm

wondering if he's just a late talker, or if it might be something more

serious. Any suggestions on what more I should be looking for? The

pediatrician has said that he should have 10 words by 18 months, but

my gut tells me that there should be a bit more going on by now.

Thanks for sharing your experience.

Tara

April 14, 2008

Joi,

You definetly need an MRI of your low back. When all my pain first

started almost all the pain was in my hips & buttocks; but the pain

was coming from a herinated disc in my back that did not show up good

on x0ray but very well on the MRI. Is your Dr sensitive to your pain?

Have you tried any pain meds and did they help? I definetly would not

be able to get through my days without pain meds. Your bed didn't

cause your pain but could contribute to it if it doesn't support your

body. I sleep on my side with a long pillow between my knees and legs

and that's supposed to help keep the spine in a neutral position. It

is more comfortable for me too. I wish you the best of luck and

really think once you get an MRI of your lumbar spine that you will

know what is causing your pain. Take care!

>

> I'm new to the group and searching for a reason or reasons for the

hip pain

> I experience. I do also have upper back and neck pain and am on

muscle

> relaxers (can only take at night because it says they can make you

drowsy so

> I don't want to take any chances during the day when I need to

drive). I do

> also have lower back pain, but it's more like a sore back, not the

sharp

> pain I have in my upper back and neck area. I had an MRI done for

the hip

> pain, thinking there was something wrong in there, but the doc

didn't find

> anything. He suggested an MRI for my back because he said that can

cause hip

> pain, but he's not a back doc so I didn't have it done. I'm

wondering if

> that was not a good thing.he may have been able to find something.

I've had

> bad knees for over 20 years and have had several surgeries on both

of them.

> The hip pain began about 5 years ago, so I had to change jobs as I

couldn't

> continue the physical job I had.I was in too much pain. I've been

told over

> and over there is nothing they will do for my knees other than

scope them

> every couple years. After this last scope (a year ago this coming

June) on

> both knees, I don't ever want to do that again. They still aren't

better, in

> fact they are worse! So, aside from the neck/back pain, I do have

other

> problems and pain issues.

>

> I do have a couple questions. What kinds of things/tests do they do

to

> figure out what is causing the pain? Do they also consider the

quality of

> one's bed if back problems are evident? Our bed isn't very old, but

it has

> not held up like we expected it to. Is this something I should ask

about?

>

> Joi

>

> Gizmo, Max, Jazzy, Artemis, Maui, the GC and Painted breeders

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April 14, 2008