New here

[Guest guest]

Hi Kathy-welcome to the group!

It sounds like you are getting the help that you need - at least your

doctor is trying to be somewhat aggressive with your treatment. Has

he mentioned any of the biologics like Remicade, etc? I hope you have

great results with your meds, but don't be disappointed that they

don't kick in right away, especially the MTX. And yes, the pain and

stiffness are horrible, but you do eventually learn to cope with them

day to day. Everyone has days that they CAN " T cope and just want to

cry and pull their hair, but try not to pull your hair too much-some

of it will probably fall out on it's own! And remember, when you

are in that shape we are here to be your whining boards!

I hope for the best for you!

Rita

>

>

[Guest guest]

WElcome Penny, It does sound like you finally got a good dx. I will

bet every person on this list has had our ability to parent

questioned hundreds of times by others as well as ourselves! Your son

sounds like mine in many ways, has great days and horrible ones, lots

of information here. Welocome again -

, " tyhan9698 " <pcondren@a...> wrote:

> Hi all,

>

> Although my son is almost 7, he has been evaluated and labeled as

> HFA. He has never had any friends, doesn't have

> a clue as to how to make them, is alternately depressed b/c he

doesnt

> have any and non-chalant saying he doesnt need any. He is very

smart,

> either at grade level or above in all subjects. Math, history,

> science and geography are his favorite so far. He hates reading

> although he's pretty good at it. He can be very combative, but very

> loving, within minutes of each other. He can talk well with adults,

> but doesnt usually acknowledge kids from his class when they are

> talking to him. His teacher says he is bright, but disorganized. He

> cannot usually follow verbal instructions well at all. If his

teacher

> tells him to put his work on her desk, he will get up and wander

> around the room, when she asks him what he is supposed to be doing,

> he says he doesnt know. Although I have suspected some problems

since

> he was very young, his first visit to Psychiatrist came when he was

> 5 Dx was OCD with anxiety. He was put on zoloft which did no good.

> When I asked to have some testing done, dr told me he didnt need

> testing, that he has ADHD and suggested more meds. I didnt feel the

> DX was correct and didnt think he needed more meds. After another

> horrible episode at Psych's office where he questioned my

> intelligence, I quit taking my son. Found a wonderful

> new group that takes my concerns seriously. After about 8 hours of

> testing over 4 days they said he is HFA (I still suspect AS but

they

> said his language isn't pedantic so the diagnosis doesnt fit, but

> just about everything else does). My son, loves lists (making them

> and reading them in any form. - schedules, maps graphs charts, etc.

> He growls when he is irritated or excited, shakes his head without

> knowing it, and sniffs his fingers. He is starting to become

> extremely bossy with his NT sister who is 5. He will hurt her if

she

> doesnt listen to him or do what he says. He doesnt lie even if he

> knows he will get in trouble. He is extremely loud all the time. He

> lives in a black and white world where there is no room for gray -

> ever. If I say is gonna snow and it doesnt I am a liar, etc....

> Doesnt understand sarcasm. Doesnt care if he gets punished. If I

had

> a dime for everytime I was stared at in public when I try to get

him

> to behave appropriately I would be rich. I am glad to have finally

> recieved a diagnosis so that the self doubt about my ability to

> parent can be assured.

>

> Penny

> Penny

[Guest guest]

Patti wrote:

>He is starting to become

> extremely bossy with his NT sister who is 5. He will hurt her if

she

> doesnt listen to him or do what he says. He doesnt lie even if he

> knows he will get in trouble. He is extremely loud all the time. He

> lives in a black and white world where there is no room for gray -

> ever. If I say is gonna snow and it doesnt I am a liar, etc....

> Doesnt understand sarcasm. Doesnt care if he gets punished. If I

had

> a dime for everytime I was stared at in public when I try to get

him

> to behave appropriately I would be rich.

Patti, I hope you won't take this the wrong way, but I couldn't help but smile

when reading this, because you could be describing my son in the above

paragraph. With the exception of the sister part (which he doesn't have) my son

Elias is EXACTLY like this! Especially the part about him being loud - I always

wondered why Elias always spoke in a very loud, piercing monotone all the time,

until I read that AS kids tend to do that! What a relief to know that you're

not overreacting or being too picky or too strict or too lenient. Now you have

to prepare for a lifetime of " All your kid needs is more/less discipline " and

" Oh, my husband is exactly like that, it's perfectly normal! " Anyway, welcome to

the group. =)

[Guest guest]

bacterial and yeast overgrowth has to be addressed as the toxic

metabolite load from this creates a myriad of problems including

leaky gut and sensitives to foods. gfcf does NOT address this.

enzymes, mineral supplementation, scd emphasis, OoO etc does.>>

Hi all,

I am new here but I pretty sure this is what we are dealing with...

bacterial and yeast overgrowth... with my 4.5 yr old son. As I said I am

new to these concepts <enzymes, mineral supplementation, scd emphasis, OoO

etc does.>but can't wait to figure out where and what to start.

Any information would be greatly appreciated!

Thanks

Biro

jaam1224@...

Memory Keeping at Its Best

Don't your priceless memories and photos deserve

more than a shoe box? I can help quick and easy.

Just ask, " How? " !

[Guest guest]

RE: new here

bacterial and yeast overgrowth has to be addressed as the toxic

metabolite load from this creates a myriad of problems including

leaky gut and sensitives to foods. gfcf does NOT address this.

enzymes, mineral supplementation, scd emphasis, OoO etc does.>>

Hi all,

I am new here but I pretty sure this is what we are dealing with...

bacterial and yeast overgrowth... with my 4.5 yr old son. As I said I am

new to these concepts <enzymes, mineral supplementation, scd emphasis, OoO

etc does.>but can't wait to figure out where and what to start.

Any information would be greatly appreciated!

Thanks

Biro

jaam1224@...

Memory Keeping at Its Best

Don't your priceless memories and photos deserve

more than a shoe box? I can help quick and easy.

Just ask, " How? " !

------------------------------------------------------------------------------

[Guest guest]

Welcome kelli and richard.I am Tammie and live in south La..I am past

shot # 2 of Pegasys and am taking rebetol.I am very familiar with the

area you are from.For 10 years my husband and I drove a big truck

from here to Cali.with seafood and picked up produce from so many

places over there we no longer need a map.Welcome to this group.I can

tell you honestly---you stumbled upon a fantastic group of humans.

> Hi, everybody....

>

> I'm new to this group...

>

> Three years ago, (in Jan) my HCV became chronic and I couldn't work

anymore.

> That March my husband (who we had no clue was even sick)

had a bleed

> and it was discovered he has cirrhosis. Talk about being

blindsided!

>

> Our lives now are about appointments, tests and procedures. Since

the

> beginning of Dec. we have been up to the hospital 9 times. It's a

helluva

> life.

>

> is on the combo therapy. The idea is to halt the liver

disease, he

> been on now, 50 weeks. He officially " cleared " at 10 weeks, but

when they

> did the more comprehensive testing at a year they found traces of

the

> disease in his blood. He'll now be on treatment indefinitely. It

is so

> difficult that most days we aren't even sure how it is that we are

both

> still here.

>

> I live with two people, " " , my husband and " Dick " the guy on

> treatment. It's not gotten better over the months but I think I

have gotten

> better in dealing with it. The small stuff doesn't bother me so

much anymore

> and I find myself being grateful more than not. We have learned

to " go to

> our separate corners " too and that helps.

>

> I just recently had a biopsy; I don't have cirrhosis but they are

unclear as

> to the stage of fibrosis. I'm suppose to get the results on that

tomorrow.

> My viral load is three times higher than 's and he has

cirrhosis. So,

> like someone else here said, viral load doesn't count for much.

>

> When all this first happened we were living in the Central Valley

(Fresno)

> here in California. We opted out of that antiquated system and

decided to

> move back to the Bay Area where they know what they are doing. It's

only

> been by God's grace that we've been able to be here, it's

expensive...but

> somehow we pay the bills and eat. My faith has been lifted to a

whole new

> level.

>

> I like what I've been reading here so far. You guys really seem to

support

> and keep each other busy! I'm glad to be here...

>

> Kelli

[Guest guest]

Sorry to hear that, Terry. Does she have a muscular disease? I'm lucky, Mom is fairly light, I'd be surprised if she went much over 100 lbs. Now she knows about my back problems and doesn't want me to lift her up. Bad back or not, you got to do what you got to do. Like the Greatful Dead said..

I don't know, but I've been told, if the horse don't pull, you got to carry the load... -dz-Terry Long <pawpawto3@...> wrote:

Dave, Susy's Mom is unable to get in & out of the wheelchair. Last week she was able to help you some what, to get her in & out of the chair/ But not so now. She is like dead weight. Lifting her up turning her into one chair or another & the bed. It now take both of us to get Mom in & out of the shower. She has been going steadly down hill, this last month. Terry

[Guest guest]

Take advantage of those offers! It's too bad you can't go to church together, but I guess the one that stays home is doing God's work, as much as going to church. You can't help but be blessed for the sacrifices you're making. -dz-Terry Long <pawpawto3@...> wrote:

Thank's Lynne. I thank one of the hardest things, is seeing this once vibrant lady this way & there's not one thing we can do to change things for her. All the Doctors can do is give her sleeping & pain pills. So she isn't in pain & is able to sleep at night "also mean's Mom will let Susy sleep. We are living with not being able to go to church together for now. One week I go & Susy stay's with Mom, the next week Susy goes & I stay with Mom. Several friends at church have offered to stay with Mom a few hours on a Friday or Saturday night. So we can have a few hours out together. We haven't took them up on it yet, but we will some time. Terry

[Guest guest]

Wow, what a story. Did she also have recollections of the time between losing her memory and regaining it? -dz-Lynne Dunham <lynne@...> wrote:

You should really take them up on the night out. At least do it once a month even if it is only for a couple of hours. It will do you two world of good, plus it will give Mom some other company. She knows how hard it is on you two and probably feels like a burden at times and having people she knows visit improves their spirits. So it can really work two folds for you.

My Mom had a stroke a few years ago and she lost most of her memory. Dad tried so hard to keep her home and wouldn't leave her side. The church friends came by twice a week at our (children) insistence to make Dad go out to the senior center for lunch. Those were the few days Mom smile the rest of the day, she didn't remember in an hour but was still smiling and Dad felt better to see friends and chat. Mom finally went into a nursing facility after 2 falls and broken hips and pelvic. But this past Thanksgiving had another serious stroke and regained her memory after all these years. You just never know in life what can happen.

[Guest guest]

No she never has so far. Which is a blessing.

Luckily the Nursing home is close so Dad can visit everyday and have lunch with her.

I think this stage of our lives when our parents get older and can no longer take care of themselves is the hardest of all stages. We turn into their parents and vise versa with a very fine line in between to keep every ones dignity.

-----Original Message-----From: Dave [mailto:dhz920@...]Sent: Thursday, January 29, 2004 12:06 PM Subject: RE: [ ] new here

Wow, what a story. Did she also have recollections of the time between losing her memory and regaining it? -dz-Lynne Dunham <lynne@...> wrote:

You should really take them up on the night out. At least do it once a month even if it is only for a couple of hours. It will do you two world of good, plus it will give Mom some other company. She knows how hard it is on you two and probably feels like a burden at times and having people she knows visit improves their spirits. So it can really work two folds for you.

My Mom had a stroke a few years ago and she lost most of her memory. Dad tried so hard to keep her home and wouldn't leave her side. The church friends came by twice a week at our (children) insistence to make Dad go out to the senior center for lunch. Those were the few days Mom smile the rest of the day, she didn't remember in an hour but was still smiling and Dad felt better to see friends and chat. Mom finally went into a nursing facility after 2 falls and broken hips and pelvic. But this past Thanksgiving had another serious stroke and regained her memory after all these years. You just never know in life what can happen.

[Guest guest]

You should be up here in the great white north! We're still trying to climb up over zero. Wind chills this morning 30-35 below. I've had more than enough. I keep wondering, where is all this global warming? I can't even get my house warmed up. Keep hanging in there. I think you're right, you have to expect no support from your friend and his son, and any you get will be a plus. Hopefully they will come around. -dz-Lynne Dunham <lynne@...> wrote:

Hi Tammie, I live in Florida, Oklahoma and Missouri. Now I am in Virginia and it isway to cold for my liking at the moment. Your Hep Doc is what I want, someone who care just a little about me. Irealize they are busy and have more important patients than me. But to sitdown with you children is treating the whole family, and by doing that hetreated you the best possible way medically. I feel good this week, he gave me some Xannax for sleeping and it has workwonders. The itching is still driving me bonkers, and I am about to run outof my 2 big bottles I bought before tx. My legs still hurt me some. I didforce my self after work today to go and take the puppy out to a friendspuppy to play for an hour in the snow. He really needed to burn off someenergy. So I didn't get

my nap in, so will be heading to bed shortly. Most of my emotional sides I had before treatment, I think it was thedenial, grieving period and asking for help, for this couldn't be happeningto me. This group was my lifeline. I have come to the realization in mymind about Steve and his non support though out that period as over and donewith. Now I just concentrate on me, and if he is around fine. He is beingnice and everything, but will never understand how someone can stand idly bywhile someone is crying their heart out. But that is in the past and havelearn a new life experience. And I like life experiences and plan to havemany of them.Aren't those Reba rave fun. Only had two so far and sure gets your blooda pumping out of control. So far my 1st and 3rd week were the worst so itall should be downhill from here.Your really are doing good Tammie. Just remember to spoil

yourself, buyflowers, enjoy the quiet moments and it will all come together. Hey howmany more weeks to you have to go now?

[Guest guest]

Hi Tracey and welcome!

When you say articulation problems still can you give us an

example? How does she communicate say what movie she wants to see?

Does she tend to keep sentences short -or can she talk in long

utterances and it's just that she articulates certain words

incorrectly? If she is asked to repeat back a long sentence

like " the bunny rabbit hopped into the field of long grass and then

through the woods " how would she repeat that back?

When did she start talking? Has she ever been evaluated by a

neuromedical MD? Was she ever diagnosed or misdiagnosed with any

other condition? What is her classification in the school and how

are her grades? Does she have lots of friends?

Age doesn't appear to matter with the EFAs, which is exciting to

know. EFAs may be best to start as young as possible, however there

are positive reports at all ages -the oldest so far is for teens

like

http://www.cherab.org/news/.html

There are actually quite a few archives on children older than yours

who have had the same amazing reports. The good thing is that with

the older children not only will you see the difference -but they

can tell you themselves when they feel " different " and how. Most

will ask for it once started (so to all those who worry about

children " having " to take it for the rest of their life) For

example here is one 7 year old who asks for " magic fish oil "

http://www.cherab.org/information/familiesrelate/letter.html

Looking forward to hearing back from you. Again welcome!

=====

[Guest guest]

Hi Alison,

We are also in the U.K. - we are a growing crowd )

Did you try the HNI enzymes before ? I wonder if they might be helpful for

you, think they might well be worth a go.

We use the caprylic acid alongside garlic for candida and they work well.

Have you tried these ? Apparently not the odourless ones as they are not so

good.

Is there a specific reason you give him fluoride ? You mention for his

teeth - I would give a calcium supplement if I was worried about the teeth

but not fluoride personally, bit worrying.

You might find the following sites useful:

http://www.enzymestuff.com/

http://216.114.78.114/webcenter/sites/hni/

http://www.danasview.net/asrecovr.htm

http://www.tonyattwood.com.au/

http://www.nexusmagazine.com/fluoridebomb.html

Good to have you here.

Julea )

http://www.Emagforall.netfirms.com

This months edition now ready !

It's simply the best !

[Guest guest]

the fluoride by itself will have been considerably retarding his

progress.

fluoride can cause low iodine and is an intrumental factor in rising

breast cancer levels since iodine is needed to keep the breast from

becoming fibrous

iodine in the index of

http://members.tripod.com/mueller_ranges/links/compendium/compendium.h

tml

> Hi everyone

>

> My son Oliver, aged 7, has ASD. We have just won a fight with our

LEA (we

> live in the UK) to get him into an autism specific independent

school. He

> will be starting there in a few weeks time. We also have a

daughter Sophie

> aged 10 NT.

>

> Oliver has a very restricted diet. We did the GFCF thing a few

years ago

> with no improvements. He was just restricting his foods even

more! It was

> a nightmare for the whole family so we gave up.

>

> The BIG problem we have always had with Oliver is taking any

supplements for

> medication. For the last few years though he will chew and swallow

a tiny

> flouride tablet for his teeth and a chewable (orange) multi

vitamin. I even

> tried him with the enzymes mixed in with chocolate spread but it

burnt his

> mouth and put him off for good! Well it put me off too to be

honest!

>

> I have returned here for some answers for my son. His current diet

is bread

> and chocolate spread (a lot!) turkey dinosaurs, the occasional

yoghurt (he

> has to peel the lid off himself), the occasional wheetos cereal

with milk,

> cream crackers with butter (a lot!). For drinks he will have

orange squash

> and the occasional hot chocolate drink.

>

> I want to start afresh and persevere with enzymes and supplements

for

> Oliver. Where do I start? BTW he had a stool test done with Great

Smokies

> a few years ago and his candida score hit the roof!

>

> with many thanks

> Alison

[Guest guest]

Hi! I have been reading posts and trying to decide if this all pertains to

us. (What is Dando????Stalinist???? I am lost on that one.)

What we are dealing with is Hypotonia and DD. My daughter has a diagnosis of

Sotos Syndrome, and I notice a few others from the Sotos group that are also

here.

is 8 years old, and has been in some type of therapy all of her life.

She was 6 when she got her Sotos diagnosis, due to the doctors inability to

diagnose her.

Hypotonia is very common in children with Sotos Syndrome. (Poor fine motor

skills). After coming across the word DYSPRAXIA, and researching it, it seems

to fit 's description.

was 2 when she walked, 4 when she finally began saying words and

sentences. I have her enrolled in a private school, and she gets speech therapy

at the public school, 30 minutes, once a week. She is in a regular ed class,

struggling in some areas but her teachers are great and are able to spend extra

time with and even allow extra time on her work.

Her speech problems are far fewer now than when we began therapy at age 2, but

she just can't get some sounds out correctly. She talks often, not always using

the correct words, but uses a variety of words and several not pronounced

correctly. She easily gags, has a problem with certain textures of food, and

can no way hold a thermometer under her tongue. I can sit here and think of so

much, and go on and on all day.

I am having her tested in several days by someone other than the public school

pathologist. I don't feel she has been getting the therapy needed for the type

of problems she deals with.

I would love to hear some of the techniques used for dyspraxia.

Thanks,

Tracey

[Guest guest]

Hi Tracey!

For those that post their child is " just " a late talker that may be

so. But as I've posted for all to see -that's what all of us

thought of my son Tanner too. Not just us, and family and friends -

but his pediatricians at that time and the SLP who worked with

Tanner at one of NJ's leading hospitals!

Tanner has mild hypotonia throughout his body and mild sensory

issues -pretty much resolved now thanks to therapy but not 100%, and

fine motor planning aspects in his body also pretty much resolved.

Most aspects didn't show till later, as he got older.

It was once said to me that children with apraxia are typically very

bright and " know " what they should be doing because their receptive

skills are so superior to their expressive skills. In preschool

years it's quite easy for most of them to push themselves enough to

keep up " to blend " -it's as they get older and the pressures become more

intense of what is expected of them -they break down.

While the average person can go through life perfectly fine with

mild hypotonia -the child with a communication impairment that has

hypotonia in the truncal area will greatly benefit from

interventions to strengthen their truncal area to support breath

control which is crucial for speech.

In addition -the child with hypotonia in the truncal area will have

trouble sitting at a desk for hours -upright- holding a pencil and

expected to write. They will be the children laying on the desk -

and viewed negatively by teachers and all as " lazy " etc. Not good

for self esteem -not your child's academic career either.

An apraxic child like my son Tanner can be the one that passed all

developmental milestones on time -but due to hypotonia needs a

stroller long after the other children his age don't. A child who

can climb to the top of the monkey bars, and throw a baseball like a

pro... at three -but due to the bizarre motor planning aspects of

apraxia -many times could not put on his socks or catch a ball even

when large and thrown from a short distance. Doesn't make sense all

the time -anything about your child -take them to a

neurodevelopmental MD just to make sure it's not apraxia.

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

http://www.cherab.org/information/speechlanguage/oralapraxia.html

Better to take your child to a comprehensive neurodevelopmental exam

by experts who are experienced at picking up subtle soft signs than

waiting until they are school age and taking the chance they will

suffer from self esteem and academic and social damage that could

have all been prevented at preschool age.

Again -we all though Tanner was " just " a late talker -and ends up he

was one of the more severe apraxic children in our group due to all

the multifaceted aspects he had. Thankfully due the removal of the

pretty rose glasses which led to early intervention -Tanner today is

a success story. He's doing better than I ever imagined. And

Tanner has a new " girlfriend " this year -Emma (used to be Brittany and

prior to that for years it was ) Emma and Tanner are

buddies at school -and Tanner colors pictures for her to bring to

her. Just bought her a Skittles valentine's day heart at the dollar

store out of his own money too! (And...at 7 years old -bought it

himself!) Tanner is just doing amazing in first grade -he's now

doing word math problems where he needs to read the question and

figure out the answer like " If has 30 cents, how many trucks

can he buy? " and then there is a picture of a truck with a price tag

of 13 cents. He knows how to figure this, and much harder but

longer to write here ones out! Go Tanner!

http://www.cherab.org/information/familiesrelate/letter.html

Oh and one other thing -when you say " What is Dando????Stalinist????

I am lost on that one. " I'm lost on that one too! What was that

posted in regards to -I checked the archives and couldn't find it.

=====

[Guest guest]

Okay, I have figured this Dando and Stalinist thing out. What I have done is

joined both groups, childrensaprixianet AND dyspraxia groups and they both come

into the same folder in my Outlook Express and I was assuming it was all from

the same group. Sorry for the confusion.

Tracey

Re: [ ] Re: NEW HERE

Hi! I have been reading posts and trying to decide if this all pertains

to us. (What is Dando????Stalinist???? I am lost on that one.)

What we are dealing with is Hypotonia and DD. My daughter has a diagnosis

of Sotos Syndrome, and I notice a few others from the Sotos group that are also

here.

[Guest guest]

Hi Members,

Please DO NOT respond to this " Bonehead. " He, like so many other loosers have

nothing better to do with their time.

These creeps are so repulsive that they are unable to attract a girl and in all

probability, they DO NOT even have a job.

Since their character worth is Zilch, they go to a list like this and say

things, with the hope of getting someone to acknowledge their existence.

In conclusion, if you ignore ignorance it will go away.

Sharon

New here

I was wondering, is this a group which censors dissenting opinion

about ?

Can I post what I really beleive she is all about (quackery and

larceny)?

Or, is this the amen chorus, where only adoration is allowed?

[Guest guest]

Why would you want to belong to a newslist that is about

treatment that you don't agree with?? You won't change

anybody's mind and we surely aren't going to bother with

you. If you're concerned people are being mislead here,

well, they're adults and perfectly capable of discerning the

truth from lies. They don't need or want your help.

If you have legitimate questions that question her

treatments then please post them. But if all you're going

to do is say it's bad, then yes, you will be kicked off the

list. It's not about censorship, it's about providing a

place for folks to exchange ideas, etc. about a therapy that

we believe and have personal experience is good.

We will not defend what Dr. does. It's not necessary.

*Your Health Is In Your Hands*

New here

* I was wondering, is this a group which censors

dissenting opinion

about ?

Can I post what I really beleive she is all about (quackery

and

larceny)?

Or, is this the amen chorus, where only adoration is

allowed?

[Guest guest]

Why would you want to belong to a newslist that is about

treatment that you don't agree with?? You won't change

anybody's mind and we surely aren't going to bother with

you. If you're concerned people are being mislead here,

well, they're adults and perfectly capable of discerning the

truth from lies. They don't need or want your help.

If you have legitimate questions about her treatments then

please post them. But if all you're going to do is say it's

bad, then yes, you will be kicked off the list. It's not

about censorship, it's about providing a place for folks to

exchange ideas, etc. about a therapy that we believe and

have personal experience is good.

We will not defend what Dr. does. It's not necessary.

*Your Health Is In Your Hands*

New here

* I was wondering, is this a group which censors

dissenting opinion

about ?

Can I post what I really beleive she is all about (quackery

and

larceny)?

Or, is this the amen chorus, where only adoration is

allowed?

[Guest guest]

Jela,

Your playing with dynamite. Please, don't trust your

doc's. Do the research, please.

Connie

--- jela <artist60164@...> wrote:

---------------------------------

I have been on Paxil for about 10 years, now I am

going on

Welbutrin. My doctor said to take the welbutrin with

my paxil for

two weeks and then one week with prozac and welbutrin.

And then only

the Welbutrin.

Any thoughts?

jela

---------------------------------

[Guest guest]

Check out;

http://psychrights.org/index.htm

http://www.uea.ac.uk/~wp276/psychiatryanti.htm

http://mindfreedom.org/

and many others;

In my humble opinion you and your Dr. are tampering with an already

potentially dangerous situation.

10yrs on Paxil; why switch, did it stop " working " ?

I helped my brother through SSRI withdraw, ( our story is at

http://psychrights.org/Stories/ForCurtisGrogan.htm )

he was hooked for less than two years and no matter how much I broke

the dose down to " wean " him; withdraw still ensued and was a

traumatic experience to say the least.

You may find yourself in a more vulnerable situation that you

already are, and if your Dr. is stamped out of the same mould as

most, you may find yourself inquiring about a host of new drugs. It

is a very slippery slope you are about to embark on, at a minimum

you should try to find a Dr. that does not use psychotropic drugs as

his first line " treatment " and seek a second professional opinoin.

I receieved 4 different opinion from 4 different doctors, so don't

take the second (or third) as gospel either; ultimatly you are

responsible for you. As this board illustrates, probably yours and

most doctors and psychiatrists are bedfellows of big drug companys,

so to them you are a trip to Boca, a new benz, and if you get

sicker, college tuition for his kids.

Good Luck,

Dan

dangro311@...

" What we think is a gesture of freedom is a symptom of our cage "

> I have been on Paxil for about 10 years, now I am going on

> Welbutrin. My doctor said to take the welbutrin with my paxil for

> two weeks and then one week with prozac and welbutrin. And then

only

> the Welbutrin.

>

> Any thoughts?

>

> jela

[Guest guest]

This is a group of people who are practicing Dr. 's methods, sharing our

successes and questions, supporting each other in doing such. Your presentation

is rude and inappropriate, and further posts from you will be deleted by me,

with not only no response, but no reading of them. I hope others follow suit.

Joy

New here

I was wondering, is this a group which censors dissenting opinion

about ?

Can I post what I really beleive she is all about (quackery and

larceny)?

Or, is this the amen chorus, where only adoration is allowed?

[Guest guest]

>From: " jela " <artist60164@...>

>Reply-SSRI medications

>SSRI medications

>Subject: new here

>Date: Sun, 15 Feb 2004 16:49:05 -0000

>

Hi, please be careful, and if you can, get a second or third opinion...when

a doctor prescribed me multiple meds, I got serotonin syndrome, a very

dangerous and potentially fatal condition. Obviously, we cannot dispense

medical advice here, but only discuss our own experiences. It is necessary

that you at least become aware of some of the possible adverse drug

interactions of multiple ssris...

http://www.drugawareness.org/Archives/Miscellaneous/SSRIreactions.html

If you scroll down you'll find some vital info...

Please let us know how you are doing, and peace be with you!

_________________________________________________________________

Let the advanced features & services of MSN Internet Software maximize your

online time. http://click.atdmt.com/AVE/go/onm00200363ave/direct/01/

[Guest guest]

>From: " jela " <artist60164@...>

>Reply-SSRI medications

>SSRI medications

>Subject: new here

>Date: Sun, 15 Feb 2004 16:49:05 -0000

>

Hi, please be careful, and if you can, get a second or third opinion...when

a doctor prescribed me multiple meds, I got serotonin syndrome, a very

dangerous and potentially fatal condition. Obviously, we cannot dispense

medical advice here, but only discuss our own experiences. It is necessary

that you at least become aware of some of the possible adverse drug

interactions of multiple ssris...

http://www.drugawareness.org/Archives/Miscellaneous/SSRIreactions.html

If you scroll down you'll find some vital info...

Please let us know how you are doing, and peace be with you!

_________________________________________________________________

Let the advanced features & services of MSN Internet Software maximize your

online time. http://click.atdmt.com/AVE/go/onm00200363ave/direct/01/