New here

[Guest guest]

In a message dated 6/16/2003 10:04:58 PM Eastern Daylight Time,

deverslady@... writes:

> Right now I don't really

> have any questions just letting of steam and looking for others

> dealling with the same things. Hoping for the best with the meds,

> will let you know how it goes.

Welcome to our board. You will find that we are all in the same boat as you.

some better and some worse but we all have our share of good and bad days.

If there are any specific questions, please ask away. We feel your pain.

Janet

[Guest guest]

-Hi Gail,

Welcome! I have read that PA can appear after accidents. I don't

mind being on medicine the rest of my life as long as it helps and

the side effects are monitored. When I first had PA I thought the

same as you. That was a long time ago. Good Luck!

Marti

[Guest guest]

Gail, give the Enbrel time. It used to be a difficult,

frustrating and painful process to get up and going in

the morning. I've been on Enbrel for almost 5 months

now and it has made a world of difference. Hope it

works for you!

[Guest guest]

In a message dated 6/17/2003 8:58:15 AM Eastern Daylight Time,

janekarsten@... writes:

> Gail, give the Enbrel time. It used to be a difficult,

> frustrating and painful process to get up and going in

> the morning. I've been on Enbrel for almost 5 months

> now and it has made a world of difference. Hope it

> works for you!

How long did it take the Enbrel to work for you? It is about 2 1/2 months

straight for me now and I don't think it is helping too well. My rheumy said

to give it more time. Today I went to try on shoes and I made an attempt to

try one with a heel other then a flat shoe. No good!!!! Unfortunately, my heel

days are over.

Janet

[Guest guest]

> Gail, give the Enbrel time. It used to be a difficult,

> frustrating and painful process to get up and going in

> the morning. I've been on Enbrel for almost 5 months

> now and it has made a world of difference. Hope it

> works for you!

thanks Jane, I do my 5th injection today. the others were hard to do

but I made out ok. I keep chickening out with this one, I have two

silver dollar sized red patches from the last injection. which I knew

was a possiblity but did not know until yesterday that each shot can

affect all the other sites. The shots themselves are not bad, I don't

even feel them. Just having a hard time today, if I can't get it done

myself will have hubby do it when he gets home. Hoping for the best

out of this for myself and wishing and praying for the best for

everyone else that is dealing with the same.

[Guest guest]

I had quarter size red patches where I would g ve myself the enbrel shots.. at

first. After about two months those went away and I haven't had any trouble with

them since. I have been on enbrel since Feb.

Teri

[Guest guest]

Hi,I know an original method of treatment cancers but it is sounds so strange

that I hardly believe somebody will believe in it.

sun_angel00 <sun_angel00@...> wrote:Hi I am new here I am 18 I have

ovarian Cancer. I was diagnoised may

and I have been on Alesse to stop the growth of the tumors. durning

the testing time it had spread from my left ovaries to my right.

Thats all I really have to say about that.

Cheryl

[Guest guest]

HI Cheryl,

I'm sorry to hear about your cancer at such a young age. Welcome to the

group. Feel free to ask questions and we'll help you as much as possible.

How's your energy level? Have you made any diet changes? The most important

thing to know is that cancer feeds on sugar. You need to get some books and

make big changes in your diet. Learn about the glycemic index and choose

foods that are low glycemic. You should also stay away from fried foods

because the oils are bad for your system. Many of us here eat a combination

of cottage cheese and flax seed oil. Here's some links on that diet:

Dr Johanna Budwig diet

http://home.online.no/~dusan/diseases/cancer/cancer_dr_budwig.html

Budwig diet to treat cancer

http://www.cancure.org/budwig_diet.htm

Duke Univ. Boasts New Study

(the URL is correct: " dukestudyignorsbudwigwork " ,-)

http://educate-yourself.org/fc/dukestudyignorsbudwigwork15aug01.shtml

Case reports

http://www.beckwithfamily.com

Budwig Flax Oil Diet

http://www.positivehealth.com/permit/Articles/Nutrition/turner60.htm

Getandstaywell Budwig

http://www.getandstaywell.com/archive28.shtml

What are Essential Fatty Acids?

http://waltonfeed.com/omega/ess_fat.html

Phytoestrogens, lignans

http://ethesis.helsinki.fi/julkaisut/laa/kliin/vk/mazur/phytoest.pdf

Goggle hits " Budwig AND cancer " : 1750

Books:

Flaxoil as a True Aid Against Arthritis, Heart Infarction,

Cancer And Other Disease*

0-9695272-1-7

The Oil-Protein diet*

I also recommend Bill 's book to help you sort through all the

information of alternative cures. See getandstaywell.com. If you can't

afford the book, ask him for a discount.

Chinese Medicine also has a good track record helping ovarian cancer. Do

you live near a city with a China Town?

Blessings,

Virginia

At 08:52 PM 6/15/2003 +0000, you wrote:

>Hi I am new here I am 18 I have ovarian Cancer. I was diagnoised may

>and I have been on Alesse to stop the growth of the tumors. durning

>the testing time it had spread from my left ovaries to my right.

>Thats all I really have to say about that.

>

>Cheryl

>

>

>

>

[Guest guest]

Cheryl.

Please contact me directly. I have information that may interest

you regarding an all natural product that has been beneficial to

others dealing with your type of cancer.

leskruse@...

-- Re: [ ] new here

HI Cheryl,

I'm sorry to hear about your cancer at such a young age. Welcome to the

group. Feel free to ask questions and we'll help you as much as possible.

How's your energy level? Have you made any diet changes? The most important

thing to know is that cancer feeds on sugar. You need to get some books and

make big changes in your diet. Learn about the glycemic index and choose

foods that are low glycemic. You should also stay away from fried foods

because the oils are bad for your system. Many of us here eat a combination

of cottage cheese and flax seed oil. Here's some links on that diet:

Dr Johanna Budwig diet

http://home.online.no/~dusan/diseases/cancer/cancer_dr_budwig.html

Budwig diet to treat cancer

http://www.cancure.org/budwig_diet.htm

Duke Univ. Boasts New Study

(the URL is correct: " dukestudyignorsbudwigwork " ,-)

http://educate-yourself.org/fc/dukestudyignorsbudwigwork15aug01.shtml

Case reports

http://www.beckwithfamily.com

Budwig Flax Oil Diet

http://www.positivehealth.com/permit/Articles/Nutrition/turner60.htm

Getandstaywell Budwig

http://www.getandstaywell.com/archive28.shtml

What are Essential Fatty Acids?

http://waltonfeed.com/omega/ess_fat.html

Phytoestrogens, lignans

http://ethesis.helsinki.fi/julkaisut/laa/kliin/vk/mazur/phytoest.pdf

Goggle hits " Budwig AND cancer " : 1750

Books:

Flaxoil as a True Aid Against Arthritis, Heart Infarction,

Cancer And Other Disease*

0-9695272-1-7

The Oil-Protein diet*

I also recommend Bill 's book to help you sort through all the

information of alternative cures. See getandstaywell.com. If you can't

afford the book, ask him for a discount.

Chinese Medicine also has a good track record helping ovarian cancer. Do

you live near a city with a China Town?

Blessings,

Virginia

At 08:52 PM 6/15/2003 +0000, you wrote:

>Hi I am new here I am 18 I have ovarian Cancer. I was diagnoised may

>and I have been on Alesse to stop the growth of the tumors. durning

>the testing time it had spread from my left ovaries to my right.

>Thats all I really have to say about that.

>

>Cheryl

>

>

>

>

[Guest guest]

My wife has recurring ovarian cancer and has just started on the Budwig Diet of

Flax seed oil and cottage cheese. she is doing very well at the moment but time

will tell. Try acts@...

Ray Kennedy

Re: [ ] new here

Hi,I know an original method of treatment cancers but it is sounds so strange

that I hardly believe somebody will believe in it.

sun_angel00 <sun_angel00@...> wrote:Hi I am new here I am 18 I have

ovarian Cancer. I was diagnoised may

and I have been on Alesse to stop the growth of the tumors. durning

the testing time it had spread from my left ovaries to my right.

Thats all I really have to say about that.

Cheryl

[Guest guest]

I would love to hear the original method of treatment!

Cheryl

Hi I am new here I am 18 I

have ovarian Cancer. I was diagnoised may

> and I have been on Alesse to stop the growth of the tumors.

durning

> the testing time it had spread from my left ovaries to my right.

> Thats all I really have to say about that.

>

> Cheryl

>

>

>

>

[Guest guest]

I have thought about it and I can't eat cottge cheese, I just don't

like it.

Cheryl

Hi I am new here I am 18 I

have ovarian Cancer. I was diagnoised may

> and I have been on Alesse to stop the growth of the tumors.

durning

> the testing time it had spread from my left ovaries to my right.

> Thats all I really have to say about that.

>

> Cheryl

>

>

>

>

[Guest guest]

I have thought about it and I can't eat cottge cheese, I just don't

like it.

Cheryl

Hi I am new here I am 18 I

have ovarian Cancer. I was diagnoised may

> and I have been on Alesse to stop the growth of the tumors.

durning

> the testing time it had spread from my left ovaries to my right.

> Thats all I really have to say about that.

>

> Cheryl

>

>

>

>

[Guest guest]

Cheryl, you can use natural yoghurt instead.

Ray

[ ] Re: new here

I have thought about it and I can't eat cottge cheese, I just don't

like it.

Cheryl

Hi I am new here I am 18 I

have ovarian Cancer. I was diagnoised may

> and I have been on Alesse to stop the growth of the tumors.

durning

> the testing time it had spread from my left ovaries to my right.

> Thats all I really have to say about that.

>

> Cheryl

>

>

>

>

[Guest guest]

Waht is the original method of treatment.

Ray K

[ ] Re: new here

I would love to hear the original method of treatment!

Cheryl

Hi I am new here I am 18 I

have ovarian Cancer. I was diagnoised may

> and I have been on Alesse to stop the growth of the tumors.

durning

> the testing time it had spread from my left ovaries to my right.

> Thats all I really have to say about that.

>

> Cheryl

>

>

>

>

[Guest guest]

Cheryl,

There is a big risk of your being confused by the many protocols that

will be suggested to you by myself and many others. All with the best

intentions. Actually IMHO most of them can cure or put in remission various

types with certain individuals. What is important is for you to believe

that there is one that will fit your particular need.

I have been interested in alternative treatment for cancer since 1963

when my wife was diagnosed as having Stage 4 Ovarian Cancer. She Underwent

surgery and radiation. After which I wanted her to start on the Gerson diet

as well as go to the Hoxsey clinic(I had just made the acquaintance of a man

who's liver cancer had metasticised all over and was told he had 3 Mos.

left. He went to Hoxey's. When I met him 2 years later, he was the picture

of health. His Drs. could not find a trace of cancer and said that he was

one of the few were lucky enough to have a spontaneous remission. They

ridiculed the idea that anything but surgery, radiation, or chemo could cure

cancer. Because they fed my wife the same line, she lasted 1 year and a day

from her first surgery. Only when she was in the hospital for the last time

and too far gone to do anything did she realized the bill of goods those

skunks had fed her.

During her illness I heard of a number of protocols but could never get

their specific formulas. One of them was a combination of flax seed oil

and cottage cheese.

Three years ago I was diagnosed as having Stage4 small B Cell Non

Hodgkins Lymphoma. I started takng every supplement you can immagine. My

blood gradually started to slip until a year ago last June I was on a

weakened condition. At this time I was warned by one of the supplement

mfgrs. that taking their product within 2 hours of any several of the others

would neutralize the effect of theirs and possibly the others. At the same

time I ran acrost the Budwig Flax Oil/Cottage Cheese formula on s

site. He recommended going to the Flax Seed Oil site for more specific

details. This was the best thing I could have done. As of last Fri. My blood

is nearly normal and a cat scan in Jan. showed no trace of cancer in the

lymph glands.

Of all the different protocols I believe it is the easiest and cheapest

to follow Go to FlaxSeedOil2 . You will get many first hand

testimonials as to it being effective. The diet changes are simple.

Barlean's sells their flax oil(none better) for wholesale to anyone with

cancer.

If there is anything else I can offer, don't hesitate to ask. Bob

[ ] Re: new here

> I would love to hear the original method of treatment!

>

> Cheryl

>

> Hi I am new here I am 18 I

> have ovarian Cancer. I was diagnoised may

> > and I have been on Alesse to stop the growth of the tumors.

> durning

> > the testing time it had spread from my left ovaries to my right.

> > Thats all I really have to say about that.

> >

> > Cheryl

> >

> >

> >

> >

[Guest guest]

Oh i can I thought it had something to do with the cheese...Alright

I will try it.

Cheryl

Hi I am new here I am

18 I

> have ovarian Cancer. I was diagnoised may

> > and I have been on Alesse to stop the growth of the tumors.

> durning

> > the testing time it had spread from my left ovaries to my

right.

> > Thats all I really have to say about that.

> >

> > Cheryl

> >

> >

> >

> >

[Guest guest]

Lyme disease.........unless the blood and urine tests come back

positive.....is truly a diagnosis of exclusion.

I'm sure your Daughter has had tons of tests......all coming back negative.

I hope she was given a Western Blot Test for Lyme and checked her for the

Co-infections Erlichiosis and Babisosis.(sp)

Good Sites to Look At:

http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html

http://www.geocities.com/HotSprings/Oasis/6455/bartonella-links.html

http://www.lymenet.org/

http://www.ilads.org/

If her symptoms continue after all the tests for lyme and all the exclusion

tests come back negative, then putting her on Doxycylcline is probably a good

idea.

Don't forget antibiotics is just as damaging as the lyme disease.

She will know within a few days if she has Lyme because as the spirochetes

are killed off they release toxins into the body ( this is a good thing) but

she will feel horrible.

Most call this herxing. So DRINK LOTS OF WATER.

Exercise too, helps to kill these buggers off.

Ask you doctor lots of questions and take him/her information to help guide

him in his/her treatment of your daughter. (or just find a Lyme literate MD)

I would certainly support the body during this time of being on abx .

Sue M can guide you in that area.......its not my expertise.

Well actually none of this is my expertise.......I'm only speaking from

experience.

I supported my immune system (especially my liver) with Milk thistle and

Lemon in water......great cleansers.

I also believe that taking high amounts of Olive Leaf extract also helps to

kill off the spirochetes.....I take a tremendous amount. (its a natural abx)

Remember I'm not a Dr. ........just sharing my experiences. I am cured of

lyme........but do have lasting damage that I am trying to deal with.

Other useful information when you are researching

http://www.freemedicaljournals.com/

http://www.pubmed.nl/

http://www.medbioworld.com/med/journals/med-bio.html

http://www.sicklehut.com/infectiousdis/links.htm

Drug info:

http://medlineplus.nlm.nih.gov/medlineplus/druginformation.html

http://www.rxlist.com/

Drug interactions

http://vm.cfsan.fda.gov/~lrd/fdinter.html

http://www.fda.gov/medwatch/safety.htm

ConnieKnwnj

When our bodies & minds are out of balance.......

........we suffer!

[Guest guest]

I'm so sorry to hear your daughter has been so very ill. Unfortunately, her

story sounds all too familiar to me. Lyme is a " clinical diagnosis " and many

times it doesn't show up in blood tests.

If it were my daughter, I'd get her to a LLMD right away. If you need help

finding one, go to http://www.lymenet.com They saved my life by helping me

to find a doctor and get treatment right away. There are tons of people

there with this dreaded disease and archives of files supporting what I'm

telling you.

I sure do wish you and your daughter the best! If you'd like to talk with me

further, my e-mail address is uaw_union_girl@... I'm here for you.

Take care,

Indiana Lymie

[Guest guest]

Connie

Thank you for your reply. My daughter has had the Western Blot. There

were some positives, but according to the Lyme expert, not enough to

positively say Lyme. I am not sure if she had a urine or if she was

checked for the other co infections. I appreciate all your suggestions.

We are in the Boston area. If anyone knows a Lyme knowledgeable doctor,

we would appreciate the referral.

Libby

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

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[Guest guest]

hi libby

pressure behind eyes, headache, and stiff neck are all common symptoms of lyme.

stiff neck that is not changed thru activity is the most unique symptom.

not all, but most get this.

if she has lyme than she should experience a significant change in symptoms

on the doxy. look for an increase in symptoms on day 4,5,6, or 7.

this would be a " herx " reaction from partial die off of organisms.

ultimately, a lyme diagnosis for your daughter has to come from clinical

symptoms and should be made as soon as possible.

if she has enough symptoms, she MAY need more agressive abx oral dose, or

combinations of oral abx to get the herx.

the herx is considered by those who deal with this, very strongly diagnosive.

>My daughter, age 40, has been having 9 weeks of unusual

>headaches,dizzyness, low grade fever and fatigue. She has seen 7

>doctors in assorted specialties. She has had no answers. Based on

>her bloodwork, two doctors think she may have Lyme, and based on the

>same bloodwork, two were sure she does not. She is starting a three

>week course of doxycycline. Any input on how to combat the side

>effects would be greatly appreciated as would any input on how to

>actually get this thing diagnosed.

>Libby

>

>

>

>

>

[Guest guest]

There are a lot of SO-CALLED lyme experts. If you feel comfortable sharing

his name, I can tell you if the folks at LymeNet believe he's an expert or

not. Did you post on LymeNet?? I looked for you!!

Your daughter is very lucky to have you helping her. I'll see what I can

find out about a Boston LLMD. I believe there are quite a few near you.

I can assure you 3wks of treatment doesn't " cure " this disease. Lyme infects

a person's blood. Your blood travels to every organ and tissue in your body

Some organs are harder to cleanse than others.

There are a lot of supplement and diet changes that go along with abx

treatment!! Just using abx alone is just as dangerous as having lyme, if not

more!! That's why a REAL LLMD, not an infectious disease specialist,

hematologist, rheumatologist, neurologist, etc! They claim to know about

lyme, but they don't.

Ask them this:

" What kills the cyst form of lyme? "

It's the easiest answer in the world, and all LLMD's know the answer. Most

MD's say they didn't know there was a cyst form or they'd have to look it up

You don't want your daughter and grandchildren to be anyone's guinea pig!!

They deserve treatment from a REAL LLMD who knows his stuff so she can get

well and enjoy their lives together.

Documentation and web sites are listed in the archives at lymenet.

Please let me know if I can help you further.

Carol Kerr

-- Re: [ ] new here

Connie

Thank you for your reply. My daughter has had the Western Blot. There

were some positives, but according to the Lyme expert, not enough to

positively say Lyme. I am not sure if she had a urine or if she was

checked for the other co infections. I appreciate all your suggestions.

We are in the Boston area. If anyone knows a Lyme knowledgeable doctor,

we would appreciate the referral.

Libby

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

Do you have access to a fax machine. I have documentation from my LLMD that

explains why a western blot called negative by an MD is actually positive by

LLMD standards. Having lyme is like being pregnant!

Nobody is a little pregnant. Either you are, or you aren't. No matter how

much lyme they find, if it's there, it's there!! Plus their are many

co-infections that a duck is never going to check for. Please try to get

her to an LLMD!!

Carol Kerr

-- Re: [ ] new here

Connie

Thank you for your reply. My daughter has had the Western Blot. There

were some positives, but according to the Lyme expert, not enough to

positively say Lyme. I am not sure if she had a urine or if she was

checked for the other co infections. I appreciate all your suggestions.

We are in the Boston area. If anyone knows a Lyme knowledgeable doctor,

we would appreciate the referral.

Libby

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

Carol,

You said ... " That's why a REAL LLMD, not an infectious disease specialist,

hematologist, rheumatologist, neurologist, etc! They claim to know about

lyme, but they don't. "

Please don't lump all of those categories into one non-LLMD pot because it's

just not true. A rheumatologist did more for me than any other Dr. did.

Some not only *claim* to know about Lyme but they actually do. Imagine

that.

I just hate to read posts like yours that run down every single Dr. that

*you* think is not Lyme literate. Have you been to every single Dr. in the

country? I think not. You are basically telling all the newbies and newly

diagnosed, that unless they go to a specific Dr., and *not* a

rheumatologist, neurologist, etc., they won't get well when you have no clue

if that's really true.

Everyone needs to do the research, ask the questions, and then make the

choice that is right for them, not right for someone else. Some swear by

natural products, others hate them. Some swear by antibiotics alone, others

hate that idea. Obviously, some swear by one type of Dr. while others have

found help from non-traditional Lyme literate specialties. We're all

different and different things work for different people. Just because it

worked for one doesn't mean it will work for you. Just remember that!

Jean

[Guest guest]

If they helped you, I'm thrilled for you. And you are correct, sometimes

they do help. Apparently, the " lyme doctor " this young lady has isn't having

success at helping her, or her mother wouldn't be looking for another avenue

right? Plus she mentioned that this " specialist " gave her three weeks abx

treatment. Sounds like a duck to me!

Though it is true there are lyme-literate MD's in these other professions

they are few and far between. But, in my experience and many others, their

misdiagnosis and mistreatment hurt me far more than they helped!

I don't think it's unreasonable to suggest that a LLMD, well known to the

lyme community, would be the best place to start for initial treatment of

LYME, especially when the person is very ill.

I didn't come here to argue or hurt anyone's feelings. I was just offering

my opinion on the subject in an open forum because I saw the post.

Sincerely,

Carol