New Member

[Guest guest]

Hello Jan,

I checked your membership and saw that your message delivery box said

" no email. " I changed it for you to " individual emails. " I assume

that is what you are asking for although if you belong to several

, you may want to come to each group website to read the

messages rather than have so many posts coming to your inbox.

keeps a list of the groups you have joined so that you can see them

any time you click on . If you decide to change your

message delivery status in the future, you can go to the homepage

of each group and above the banner with the group's name are small

letters that say " Edit my Membership. " By clicking on that you can

make various choices.

Moderator

" jinglejan2001 " wrote:

>Dear all,

>I became a member of a week or so ago but have not

received any posts, although I see that posts have been written now

that I am on the site. Any suggestion that might get me up and

running? I am a member of 3 other , all of which seem to

be working smoothly for me.

> Warm wishes to all,

> Jan B.

>

[Guest guest]

Thank you so very much for your help. Already I have two messages from the

group. I am encouraged now and will change the individual delivery of posts to

digest.

My best,

Jan

moderator wrote:

Hello Jan,

I checked your membership and saw that your message delivery box said

" no email. " I changed it for you to " individual emails. " I assume

that is what you are asking for although if you belong to several

, you may want to come to each group website to read the

messages rather than have so many posts coming to your inbox.

keeps a list of the groups you have joined so that you can see them

any time you click on . If you decide to change your

message delivery status in the future, you can go to the homepage

of each group and above the banner with the group's name are small

letters that say " Edit my Membership. " By clicking on that you can

make various choices.

Moderator

" jinglejan2001 " wrote:

I became a member of a week or so ago but have not

received any posts, although I see that posts have been written now

that I am on the site. Any suggestion that might get me up and

running? I am a member of 3 other , all of which seem to

be working smoothly for me. Warm wishes to all, Jan B.

>

[Guest guest]

Hey, how come no one mentioned " Digest " mode? Get all your messages

bundled in one convenient and tasty daily serving.

        Posted by: " Jan Buskell " jinglejan2001@...

jinglejan2001   Date: Sat Jul 28, 2007 4:05 pm ((PDT))

Thank you so very much for your help. Already I have two messages from

the group. I am encouraged now and will change the individual delivery

of posts to digest.

    My best,

    Jan

moderator wrote:

          Hello Jan,

I checked your membership and saw that your message delivery box said

" no email. " I changed it for you to " individual emails. " I assume that

is what you are asking for although if you belong to several

groups, you may want to come to each group website to read the messages

rather than have so many posts coming to your inbox. keeps a list

of the groups you have joined so that you can see them any time you

click on . If you decide to change your message delivery

status in the future, you can go to the homepage of each group and above

the banner with the group's name are small letters that say " Edit my

Membership. " By clicking on that you can make various choices.

Moderator

" jinglejan2001 " wrote:

I became a member of a week or so ago but have not received

any posts, although I see that posts have been written now that I am on

the site. Any suggestion that might get me up and running? I am a member

of 3 other , all of which seem to be working smoothly for

me. Warm wishes to all, Jan B.

[Guest guest]

Dear ,

Thank you!! That's exactly what I'll do. It'll be ever so much more

convenient, and I think I'll see continuity of thought better by going this

route.

Jan B.

robert-blau wrote:

Hey, how come no one mentioned " Digest " mode? Get all your messages

bundled in one convenient and tasty daily serving.

Posted by: " Jan Buskell "

Date: Sat Jul 28, 2007 4:05 pm ((PDT))

Thank you so very much for your help. Already I have two messages from

the group. I am encouraged now and will change the individual delivery

of posts to digest.

moderator wrote:

Hello Jan,

I checked your membership and saw that your message delivery box said

" no email. " I changed it for you to " individual emails. " I assume that

is what you are asking for although if you belong to several

groups, you may want to come to each group website to read the messages

rather than have so many posts coming to your inbox. keeps a list

of the groups you have joined so that you can see them any time you

click on . If you decide to change your message delivery

status in the future, you can go to the homepage of each group and above

the banner with the group's name are small letters that say " Edit my

Membership. " By clicking on that you can make various choices.

Moderator

[Guest guest]

low dose naltrexone/

Love & Blessings,

Crystal

LDN_Users Group Owner

Crystal's MS,TM & LDN Website Crystal's LDN Support Group

MS & TM Spouse & Caregiver Support Group

Crystal's MySpace

[low dose naltrexone] New member

Hi all,I joined up a while back and so cannot remember the link that I used to join up - I have a friend who was just DX last week with MS who would like to join our group. She asked her neuro yesterday about LDN and got laughed at - she now has a script for Copaxone...but she's going to hold off until she can find a doc who wil giver her LDN.......so, the link I can send her to join here....??CheersKelli - Australia

Choose the right car based on your needs. Check out Autos new Car Finder tool.

[Guest guest]

>

> Hi all,

>

> I joined up a while back and so cannot remember the link that I used

> to join up - I have a friend who was just DX last week with MS who

> would like to join our group. She asked her neuro yesterday about LDN

> and got laughed at - she now has a script for Copaxone...but she's

> going to hold off until she can find a doc who wil giver her

LDN.......

>

> so, the link I can send her to join here....??

>

> Cheers

>

> Kelli - Australia

>

Your friend can go here to join this group:

low dose naltrexone/join

[Guest guest]

Thanks Art....

I want her to join up and see straight

away how positive and great LDN is.....and how useless the Copaxone will be

for her.....

Kelli

From:

Art Hansen [mailto:rtee54@...]

Sent: Friday, 3 August 2007 12:52

PM

low dose naltrexone

Subject: [low dose naltrexone] Re:

New member

>

> Hi all,

>

> I joined up a while back and so cannot remember the link that I used

> to join up - I have a friend who was just DX last week with MS who

> would like to join our group. She asked her neuro yesterday about LDN

> and got laughed at - she now has a script for Copaxone...but she's

> going to hold off until she can find a doc who wil giver her

LDN.......

>

> so, the link I can send her to join here....??

>

> Cheers

>

> Kelli - Australia

>

Your friend can go here to join this group:

low dose naltrexone/join

[Guest guest]

wow...see the ignorance of the people we put our trust in for our life???barbara

[low dose naltrexone] Re: New member

>> Hi all,> > I joined up a while back and so cannot remember the link that I used > to join up - I have a friend who was just DX last week with MS who > would like to join our group. She asked her neuro yesterday about LDN > and got laughed at - she now has a script for Copaxone...but she's > going to hold off until she can find a doc who wil giver her LDN.......> > so, the link I can send her to join here....??> > Cheers> > Kelli - Australia>To join this group your friend can go here to join:low dose naltrexone/join

[Guest guest]

Yep, and these so called Experts.....earn

the Big bucks to mis-DX and prescribe DRUGS that DO NOT work......I hate

to say this as I believe in Karma but.....god forbid one of thee doctors

sons or daughters is DX with MS one day - if not themselves....wonder

how their thinking would change then .....

From:

barbie [mailto:barbieiam@...]

Sent: Friday, 3 August 2007 3:04

PM

low dose naltrexone

Subject: Re: [low dose naltrexone]

Re: New member

wow...see the ignorance of the people we put our trust in

for our life???barbara

[low dose naltrexone] Re: New member

>

> Hi all,

>

> I joined up a while back and so cannot remember the link that I used

> to join up - I have a friend who was just DX last week with MS who

> would like to join our group. She asked her neuro yesterday about LDN

> and got laughed at - she now has a script for Copaxone...but she's

> going to hold off until she can find a doc who wil giver her

LDN.......

>

> so, the link I can send her to join here....??

>

> Cheers

>

> Kelli - Australia

>

To join this group your friend can go here to join:

low dose naltrexone/join

[Guest guest]

Welcome :

Boy, you are gong to be doing one awful lot of scanning, to go through them

all.

It is NOT Lyme Aid BUhner. Look for Healing Lyme, by H. Buhner. I

got mine from Amazon.com almost two years ago. I doubt if they ran out yet.

Jim.

###

<richardsonqh@...> wrote:

Hello,

I am a new member, and first thing I would like to ask is where can I

buy Lyme Aid Buhner by Buhner? I looked on Amazon and couldn't

find it. I am not going to ask any questions or take part in any

discussions until I am able to scan through all of the messages that

are already here. Looking forward to talking with all of you.

[Guest guest]

The name of the book is Healing Lyme: Natural Healing And Prevention

of Lyme Borreliosis And Its Coinfections by Harrod Buhner

Welcome to the list!

ellen

[Guest guest]

Hi ,

I got it on Amazon. Try googling the book and see what comes up.

-- [ ] New Member

Hello,

I am a new member, and first thing I would like to ask is where can I

buy Lyme Aid Buhner by Buhner? I looked on Amazon and couldn't

find it. I am not going to ask any questions or take part in any

discussions until I am able to scan through all of the messages that

are already here. Looking forward to talking with all of you.

[Guest guest]

the book is called Healing Lyme and is available at amazon.com

Edith

>

> Hello,

>

> I am a new member, and first thing I would like to ask is where can

I

> buy Lyme Aid Buhner by Buhner? I looked on Amazon and

couldn't

> find it. I am not going to ask any questions or take part in any

> discussions until I am able to scan through all of the messages that

> are already here. Looking forward to talking with all of you.

>

>

>

[Guest guest]

I am also new and I just got my copy of Healing Lyme

today. I got it for $14.25, and very fast free

shipping here:

http://search.deepdiscount.com/search?w=healing%20lyme &

I am not connected with them in any way! I had bought

Dvd's from them in the past.

Off to read my book...

Val

[Guest guest]

hi sherrie

glad you joined! i am a new member myself. im still in the process of finding

a lyme literate doctor here in the bay area, california.

i'm happy to hear that your doctor sounds like she's knows what she's doing

and hopefully it will work for you!

i'm sure and hope your heart test results will come back all clear.

keep us posted and don't give up!

shefy

Sherrie Engler <sherrielee@...> wrote:

I am a new member here. I live in Greenfield, Tennessee which is in

Western TN and we are up in the corner part only about an hours drive

from the Boothill of Missouri. We were hit by the big tornado that

went through Dyersburg and Bradford last spring, I'm sure many of you

saw it on the news. Thats when I picked up my deer tick was while we

were cleaning up tree limbs etc from our 6 acres.

I missed getting one tick off of me, just under my breast! Several

weeks later, the huge bullseye rash appeared. I didn't even know Lyme

was in the south and I'm well read, college educated, watch the news

every day! I was confirmed by my family doctor and reported to the

CDC, I had every symptom on the list, and boy I felt like a train had

ran me over. They gave me 2 weeks of Doxy ABX and when I came back

for a return they gave me 2 more weeks because I was no better. After

that dose, I felt maybe 20% better, but after that I have just went

downhill, and I have never recovered. My family doctor thought

perhaps I had developed chronic fatigue syndrome from the bite, but in

the past 5 months lots of neurological symptoms have started to appear

and are progressing. Short term memory loss, fatigue overwhelming!,

loss of balance, muscle weakness, I drop things a lot, light and

hearing hypersensitive, can't find words, easily confused, transpose

words, muscle cramping and twitching, just to name a few! I have

spent most of the last year and a half in bed and I'm tired of

sleeping, resting, and watching the world go by.

My family doctor referred me out to and infectious disease doctor in

TN, Dr. Sioson, she's very nice and trained up north, so my

husband and I bravely decided to give her a try. With a confirmed CDC

criteria from my family doctor who is well respected here, she set me

up for a battery of tests...none of which were fun. Spinal tap, must

have been a pint of blood that went to the Mayo, ekg, echo cardiagram,

nerve induction and emg. My return visit 4 days after the tests

confirmed I have quite a bit of nerve damage and muscle damage, so she

is continuing the 30 days of 3000 mgs of amoxicillan she started me on

with my first visit to her. My rash took 4 months to go away after

being bitten, and she seem to believe that I was not treated long

enough when I was first bit a year and a half ago. I've learned a lot

in researching Lyme in the past couple of months with my husband, he

teaches middle school history, and he was home for the summer and

really noticed how bad my symptoms were becoming and decided to find

some answers.

I haven't gotten my test results for my heart back yet, but she has

confirmed my diagnosis as 2nd stage Lyme disease. She seems to be a

evidence based doctor, which is good, some of the tests she ordered

were multi functional, to rule out other causes and she's ruled out

everything but Lyme damage. I don't know what she will do from here,

but she said we would take it one visit at a time and go from there

with treatment until she could improve my quality of life and get me

better. She even mentioned possible IV's, yuk, but at this point I'll

try anything to get me out of my bed for one whole day would be a

miracle!

I just thought you all might be interested to know that there is a

doctor here in , TN and though she may not be considered Lyme

Literate, she seems to be on the right track from our research. She

has treated Lyme patients successfully in the past, I'm on a TN lyme

group and one of the members remembered her as the one who healed her

cousin in law from Lyme 3 years ago. I don't know if she can heal me,

but I'm willing to try, and hopefully she'll be able to figure out

what combinations I need to heal me. She thought I might have been

exposed to Stari, not lyme, but I remember the tick and it wasn't a

lone star tick, it was the little deer tick with the black looking

legs. After the tests came back, I think she now believes it was a

Lyme deer tick too. So many doctors here in the south think every

Lyme looking reaction is Stari, and not actually Lyme. It's very

frustrating!

Sherrie Engler

Greenfield, Tennessee

For free up to date information about Lyme disease and the known

co-infections delivered to your email address see:

Robynns_Lyme_List/

[Guest guest]

Sherrie,

IV sounds like what you need. It sounds a lot worse then what it is. You

will get a permanent catheter inserted that does not really hurt after the first

few days. All you have to do is put your IV meds through the catheter. I

did this twice already so far, once for one month, then for two. Some folks

have been treated this way for 6 to 9 month. It sounds like a big pain, but it

is the only thing that truly treats neurological symptoms.

Dagmar

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Dagmar:

Did you have a PIC line in you rarm or a catherter in you chest? I

am suppossed to be getting aPIC line and they told me I cannot

liift anything over 10 loubds or ever get it wet. I have two young

kids and lots of laundry etc. so this concerend me.

Thanks for your input!

KK

>

> Sherrie,

>

> IV sounds like what you need. It sounds a lot worse then what it

is. You

> will get a permanent catheter inserted that does not really hurt

after the first

> few days. All you have to do is put your IV meds through the

catheter. I

> did this twice already so far, once for one month, then for two.

Some folks

> have been treated this way for 6 to 9 month. It sounds like a big

pain, but it

> is the only thing that truly treats neurological symptoms.

>

> Dagmar

>

>

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

>

[Guest guest]

KK,

Hope you don't mind me chiming in here. Nothing over 10 lbs., don't put your

arm over your head and don't get it wet are definites. Saran wrap your arm when

giving the kids a bath or your own. You'll really have to try and pick up the

kids with one arm. How young are they?

You really don't want to do anything that willl undermind the effectiveness of

your IV. It may work its way out a little...mine has...you don't want it to get

to the point where it is in a smaller part of your vein and the meds take

forever to get through or you need the iv reinserted.

Please try and get some help with the kids so it will be easier on you.

Especially so you can rest and let the meds work better. I've been talked to a

couple times by my doctor and the nurse who changes my dressing to make sure to

rest as much as possible to let the meds work better. Most days I'm in bed, but

on my good days tend to overdue.

Good luck with your IV.

Jaye

knkeek1013 <karenknosher@...> wrote:

Dagmar:

Did you have a PIC line in you rarm or a catherter in you chest? I

am suppossed to be getting aPIC line and they told me I cannot

liift anything over 10 loubds or ever get it wet. I have two young

kids and lots of laundry etc. so this concerend me.

Thanks for your input!

KK

[Guest guest]

Hi KK,

The PICC line goes in your arm if you have good vessels and you hook up your

own bags, but it goes all the way into your chest. They have you get a chest

X-ray afterwards for exact placements.

Dagmar

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

You are also in the region where one of the few reported cases of

Chagas disease occurred, which is usually vectored by triatomines.

Since artemisinin is implicated in lyme borreliosis, it should be

mentioned that the original locus for Chagas' disease (Trypanosoma

cruzi) is likely the Cochabamba region of Bolivia. Since we are

speaking of endoperoxides and their use against T. cruzi by

indigenous ethobotany (Kallawaya, for example), we point to the

endoperoxides found in Vernonia spp., whose African representative is

deliberately chosen by chimpanzees for self-medication. Just because

Bush's lyme treatment remains elusive, does not mean that a certain

Indian named Joe-Pye was not also using endoperoxides in

Massachusetts against malaria.

Artemisinin used against Borrelia compares with the pharmacodynamics

of docking. This same parameter applies docking od triclosan and to

malaria (Plasmodium), though comparing it with Trypanosoma

encompasses (better than does Plasmodium in cardiac problems) a north-

south axis that should cause even a northern-educated physician to

set up and take notice. Especially since we now have a report on EEGs

and triphasic waves (see Pubmed for [apparently] the first ever

report), it would be highly interesting to some to get a 'snapshot'

of the differences in the reaction of both B. burgdorferi and T.

cruzi from Tn, because then one could compare similarities and

differences with both lyme and Chagas' as well as the efficacy

of 'north-south' axis molecules: Vernonia should also be found in Tn.

These endoperoxides are not necessarily identical structurally, nor

are they found having the same ratios between other, possibly

synergistic, compounds.

'Compositae: Tubiflorae: Vernonieae: Vernonia scorpioides (Lam)Pers.'

(Jimenez AM, Flora de Cochabamba, Santa Cruz de la Sierra,

Imprents 'Los Huerofanos' (1984))

Ima usqutaq muyapayamun kay wakeha, kichkasapa chukllallayta?

Quien ronda, felino, mi humilde chozuela de miseria y espinos?

Who prowls like a cat around my humble hut of thorns and poverty?

(Porfirio Menese Lazon (Quechua), Pim Chay?)

>

> I am a new member here. I live in Greenfield, Tennessee which is in

> Western TN and we are up in the corner part only about an hours

drive

> from the Boothill of Missouri. We were hit by the big tornado that

> went through Dyersburg and Bradford last spring, I'm sure many of

you

> saw it on the news. Thats when I picked up my deer tick was while

we

> were cleaning up tree limbs etc from our 6 acres.

>

> I missed getting one tick off of me, just under my breast! Several

> weeks later, the huge bullseye rash appeared. I didn't even know

Lyme

> was in the south and I'm well read, college educated, watch the news

> every day! I was confirmed by my family doctor and reported to the

> CDC, I had every symptom on the list, and boy I felt like a train

had

> ran me over. They gave me 2 weeks of Doxy ABX and when I came back

> for a return they gave me 2 more weeks because I was no better.

After

> that dose, I felt maybe 20% better, but after that I have just went

> downhill, and I have never recovered. My family doctor thought

> perhaps I had developed chronic fatigue syndrome from the bite, but

in

> the past 5 months lots of neurological symptoms have started to

appear

> and are progressing. Short term memory loss, fatigue overwhelming!,

> loss of balance, muscle weakness, I drop things a lot, light and

> hearing hypersensitive, can't find words, easily confused, transpose

> words, muscle cramping and twitching, just to name a few! I have

> spent most of the last year and a half in bed and I'm tired of

> sleeping, resting, and watching the world go by.

>

> My family doctor referred me out to and infectious disease doctor in

> TN, Dr. Sioson, she's very nice and trained up north, so my

> husband and I bravely decided to give her a try. With a confirmed

CDC

> criteria from my family doctor who is well respected here, she set

me

> up for a battery of tests...none of which were fun. Spinal tap,

must

> have been a pint of blood that went to the Mayo, ekg, echo

cardiagram,

> nerve induction and emg. My return visit 4 days after the tests

> confirmed I have quite a bit of nerve damage and muscle damage, so

she

> is continuing the 30 days of 3000 mgs of amoxicillan she started me

on

> with my first visit to her. My rash took 4 months to go away after

> being bitten, and she seem to believe that I was not treated long

> enough when I was first bit a year and a half ago. I've learned a

lot

> in researching Lyme in the past couple of months with my husband, he

> teaches middle school history, and he was home for the summer and

> really noticed how bad my symptoms were becoming and decided to find

> some answers.

>

> I haven't gotten my test results for my heart back yet, but she has

> confirmed my diagnosis as 2nd stage Lyme disease. She seems to be a

> evidence based doctor, which is good, some of the tests she ordered

> were multi functional, to rule out other causes and she's ruled out

> everything but Lyme damage. I don't know what she will do from

here,

> but she said we would take it one visit at a time and go from there

> with treatment until she could improve my quality of life and get me

> better. She even mentioned possible IV's, yuk, but at this point

I'll

> try anything to get me out of my bed for one whole day would be a

> miracle!

>

> I just thought you all might be interested to know that there is a

> doctor here in , TN and though she may not be considered Lyme

> Literate, she seems to be on the right track from our research. She

> has treated Lyme patients successfully in the past, I'm on a TN lyme

> group and one of the members remembered her as the one who healed

her

> cousin in law from Lyme 3 years ago. I don't know if she can heal

me,

> but I'm willing to try, and hopefully she'll be able to figure out

> what combinations I need to heal me. She thought I might have been

> exposed to Stari, not lyme, but I remember the tick and it wasn't a

> lone star tick, it was the little deer tick with the black looking

> legs. After the tests came back, I think she now believes it was a

> Lyme deer tick too. So many doctors here in the south think every

> Lyme looking reaction is Stari, and not actually Lyme. It's very

> frustrating!

>

> Sherrie Engler

> Greenfield, Tennessee

>

[Guest guest]

Hi Cheri,

Welcome to the group. I did look at logan's pics. It does look like he

has plagio. Sometimes there is nothing you can do to prevent it.

is on this board, and has her second child in a band now. In her case

it was molding in the uterus. Does your little one have torticollis?

that makes it much harder to prevent plagio. if this is the case Logan

would also need PT.

I'm in california. From this board I've heard mixed things about

children's in boston. I believe they use a NOPCO helmet at children's.

But one of the mom's on this board was getting a Hanger band in

Methuen recently. I'm not sure how that is going (hopefully she'll

reply). Some boston area people (including who I mentioned who

lives in cape cod) choose to go to cranial tech in conn. You would

still need an Rx for the band, but they feel the travel is worth it.

Also cranial tech does free consults, not sure if you might get

something before Oct 1. Hopefully some people with first hand

experience will also respond to your post.

You are lucky you know about plagio and are doing what you can to

prevent/minimize it.

take care and let us know how Logan progresses.

-christine

>

> Hi, My name is Cheri. I have 3 month old boy/girl twins. I am a

> pediatric RN. I have always been aware of plagiocephly and often

> referred pt's to follow up with their MD if I saw the slightest flat

> area. My friends and coworkers thought I was nuts! My twins were born

> with perfect round heads and I took every precaution such as

> repositioning and tummy sleeping in the day time with supervision. You

> can imagine my anxiety to discover a flat spot on my son Logan's back

> right lower scalp. It progressively got worse. At their 2month check

> up I asked for a referral for Boston Children's Hospital. My

> appointment is Oct 1st. I will attempt to post pictures, I'm not so

> good on the computor. Does anyone live in the area south of Boston or

> has anyone gone to Children's Hospital?

>

> Thanks Cheri

>

[Guest guest]

I am so sorry you are going through all this. Most, if not all, on this list

can identify with this problem. It is hard to understand especially when you

are in pain. There is help however.

What you need to do is find a Lyme Literate Medical Doctor ASAP. I don't

know where you live put if you tell this group you will get suggestions. You

will find that some have closed practices - just cannot handle more patients

and many aren't within a short distance unless you are on the east coast.

Let us help you - tell us where you live so you can find a LLMD.

Ann

-- [ ] New member

I got bit prob sometime in June. Had a swollen rash in the groin

area, swollen lymph nodes and flu like symptoms. Went to the Doc on

June 22, he put me on Doxy for 14 days. I felt better. Lyme test came

back neg.

Started feeling crappy in July. went back to the doc Aug 6 with

arthritis type pain all over my body and could barely get out of bed.

Doc put me back on doxy for 14 days. Retested for lyme and she did a

sed rate. Lyme came back pos and sed rate was slightly elevated at 28.

Never really felt 100 % after bite. Now I have pain in my back, neck

and hips, tired all the time and a dull headache that never goes

away. I feel like crap.

Went to the doc yesterday. Unbelievably he said he doesnt think its

the lyme!!! Gave me muscle relaxants and moore blood work... a sed

rate and a hla B27. They are not back yet. I feel like crap Ive been

in bed all day. I took the muscle relaxant (Tizanidine)just knocked

me out didnt help anything! Oh ya and he was nice enough to make an

appointment with a Rhumatologist in OCT!!! Im so frustrated but when

I call around to other docs they cant take me now either.

[Guest guest]

If you had received 14 days of Minocycline at the same dosage as the

Doxy you might have had a chance, but really 14 days is just not

enough with any oral abx. I'll go out on a limb and suggest that you

request 30 to 60 days of minocycline at 200 to 400mg per day

(preferably the high figure) pending your visit to the Rheumatologist.

You can tell the Doc that Minocycline is commonly used to treatment

arthritis...not mention adult acne, so maybe you can wangle some. Be

persistant!

cheers

Duncan

>

> I got bit prob sometime in June. Had a swollen rash in the groin

> area, swollen lymph nodes and flu like symptoms. Went to the Doc on

> June 22, he put me on Doxy for 14 days. I felt better. Lyme test came

> back neg.

> Started feeling crappy in July. went back to the doc Aug 6 with

> arthritis type pain all over my body and could barely get out of bed.

> Doc put me back on doxy for 14 days. Retested for lyme and she did a

> sed rate. Lyme came back pos and sed rate was slightly elevated at 28.

>

> Never really felt 100 % after bite. Now I have pain in my back, neck

> and hips, tired all the time and a dull headache that never goes

> away. I feel like crap.

> Went to the doc yesterday. Unbelievably he said he doesnt think its

> the lyme!!! Gave me muscle relaxants and moore blood work... a sed

> rate and a hla B27. They are not back yet. I feel like crap Ive been

> in bed all day. I took the muscle relaxant (Tizanidine)just knocked

> me out didnt help anything! Oh ya and he was nice enough to make an

> appointment with a Rhumatologist in OCT!!! Im so frustrated but when

> I call around to other docs they cant take me now either.

>

[Guest guest]

How frustrating.

Have you found an LLMD (Lyme-Literate MD) in your area? If not, post

back to the group with your location in the subject line, looking for

an LLMD. Hopefully someone close to you can give you a pointer.

Meanwhile, you might want to try some herbal antibiotics. The book,

_Healing Lyme_ by Harrod Buhner is a wonderful resource for

those who can't find a doctor to help them, or who have other reasons

for preferring to treat their Lyme without antibiotics. This is the

protocol I am currently using, and for me, it is working very well.

There is also the Salt/C protocol, Rife machines, heat therapy,

hyperbaric oxygen... many, many things you can try.

Good luck!!

D.

" jagermeisterbiach " <jagermeisterbiach@...> wrote:

>

> I got bit prob sometime in June. Had a swollen rash in the groin

> area, swollen lymph nodes and flu like symptoms. Went to the Doc on

> June 22, he put me on Doxy for 14 days. I felt better. Lyme test came

> back neg.

> Started feeling crappy in July. went back to the doc Aug 6 with

> arthritis type pain all over my body and could barely get out of bed.

> Doc put me back on doxy for 14 days. Retested for lyme and she did a

> sed rate. Lyme came back pos and sed rate was slightly elevated at 28.

>

> Never really felt 100 % after bite. Now I have pain in my back, neck

> and hips, tired all the time and a dull headache that never goes

> away. I feel like crap.

> Went to the doc yesterday. Unbelievably he said he doesnt think its

> the lyme!!! Gave me muscle relaxants and moore blood work... a sed

> rate and a hla B27. They are not back yet. I feel like crap Ive been

> in bed all day. I took the muscle relaxant (Tizanidine)just knocked

> me out didnt help anything! Oh ya and he was nice enough to make an

> appointment with a Rhumatologist in OCT!!! Im so frustrated but when

> I call around to other docs they cant take me now either.

>

[Guest guest]

Welcome to the group, Suzilly! This is a knowledgable, friendly group.

Your starting dose of doxy is kind of low (it's usually 400 mg a day),

but you may still herx. If you haven't read about herxes yet, you

should. It's a basically a bacterial die-off that makes you feel worse

for a while.

Unfortunately, there can be no timeline for your recovery. It depends

on so many things, including whether you have any co-infections.

Feel free to ask as many questions as you need to here.

Jessie

>

> Hi. I was diagnoised about 3 weeks ago (Not from a blood test- from

my symptoms) Lucky I have a good doctor with some experiance. I am now

on doxycycline 100mg 2x aday. My doctor told me to go off all vitamins

and feel that I should be on some type of vitamen to boost up my

energy level. Aside from my aches and pains (mostly knees and right

wrist, now my back...pain seems to travel at times!) the " foggy "

feeling is horrible. I could almost put up with the aches and pains if

I could get out of this fog!!! I am really glad I found this site. I

am reading the book " Confronting Lyme Disease " and it is very scarey.

I feel fortunate that my doctor listened to me and began treatment

fairly soon. I started out with what I thought was some arthritis

about 2 months ago...and went downhill from there. I never saw a

bullseye rash, so was tested for all kinds of things at first. My

first Lyme test was negative. I am still waiting for my 2nd test

results that have been sent out. I have been out of work now since

August 22. I do have saved sick time to use. I hear everyones recovery

is differant. I wish someone could put a time line on my recovery. I

have been told " there is no magic pill " and to rest rest rest. Any

suggestions? Thank you!

>