New Member

[Guest guest]

Thank you I appreciate the information.

Re: rheumatic New Member

Welcome Pam,

People on this list are treating rheumatic diseases with antibiotics. If

you go to

www.rheumatic.org<http://www.rheumatic.org/>

you can learn about AP (antibiotic protocol)

Also check " medical histories " . There are stories of people, some of them

with Ankylosing

Spondylitis, who have done well on AP

Take care,

Ute

[Guest guest]

Thanks Jon, I appreciate it. Pam.

rheumatic New Member

Hi, My name is Pam. A few weeks ago I was diagnosed with Ankylosing

Spondylitis and have started Remicade treatment. My primary diagnosis

is Crohn's Disease. I joined this group to learn more about my new

diagnosis as I don't know very much about it. Thanks! Pam.

[Guest guest]

Hi & welcome to the group.

I think mosts of us are disappointed in our doctors regarding plagio.

It is good that you found out so early. In terms of repo the are a lot

of tips in the files section of the group. One good thing is a bumbo

chair. you can get it at babies-r-us or target ($40). it allows babies

to sit before they have learned to do it on their own. also using the

baby carrier instead of stroller is good. lots of tummy time! you need

to do a few minutes at a time until your baby is used to it, but

babies do begin to like it. it is great for strengthening their upper

body and neck. I'm sure others will chime in as well.

take care.

-christine

sydney 17 mo starband grad

>

> Hi everyone,

>

> I have a 4 month old baby who almost certainly has plagiocephaly. I was

> looking at some of the photo's from this group, they look just like my

> little boy. I am just waiting to see a specialist. I am kinda angry

> that I am only really just finding out about this, angry with myself

> for not knowing and angry with the medical profession for not

> highlighting this a problem. I consider myself quite up to date with

> baby issues being a mother of two, so I can't belive this issue has

> escaped my attention until now. Surely they need to let parents know as

> soon as they bring up the issue of back sleeping?

>

> Anyhow I am trying to not dwell on the past, and try and look forward.

> I wonder if anyone could give me a run down of the techniques of

> repositioning - I have been trying to keep him from lying on his back

> when he's awake, but at 4 months its not always easy, and I have a 18

> month old to take care of too. Thanks in advance for your help!

>

[Guest guest]

For repositioning at night you can try the NightForm mattress:

www.nightform.com

Also, check our Files section for great repositioning tips:

Plagiocephaly/files/Repositioning%20Hea

dquarters/

http://f1.grp.fs.com/v1/0MZeRjgBvD1mG1R-GpxjfHEmq35Xty7-8RkvPn7YdN2qHs4

y0mnpg8RA5UX10WiD5j6D_zy4s_N2zMi7odg/Repositioning%20Headquarters/Reposition

ing%20Information%20and%20Strategies/Aggressive%20Repositioning%20Strategies

..doc

Molly

California

Nicolas, 19.5 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate!

, 4

, 7.5

New Member

Hi everyone,

I have a 4 month old baby who almost certainly has plagiocephaly. I was

looking at some of the photo's from this group, they look just like my

little boy. I am just waiting to see a specialist. I am kinda angry

that I am only really just finding out about this, angry with myself

for not knowing and angry with the medical profession for not

highlighting this a problem. I consider myself quite up to date with

baby issues being a mother of two, so I can't belive this issue has

escaped my attention until now. Surely they need to let parents know as

soon as they bring up the issue of back sleeping?

Anyhow I am trying to not dwell on the past, and try and look forward.

I wonder if anyone could give me a run down of the techniques of

repositioning - I have been trying to keep him from lying on his back

when he's awake, but at 4 months its not always easy, and I have a 18

month old to take care of too. Thanks in advance for your help!

For more plagio info

[Guest guest]

While I was waiting for the danmar helmet, I did the Bumbo a lot and I would put a rolled, dry washcloth under his neck if I needed to put him in the bouncy seat. It kept his head from resting on the chair.

I would also put a washcloth under one shoulder when I changed him to keep him tilted away from the flat side.

I also used the baby bjorn for walks instead of the stroller.

I limited car rides to doctor visits.

During the night I had him sleeping on his side and put rolled towels on either side of him to keep him that way.

If he rolled, I would go in and put him back.

I don’t know how the rest of the group feels about side sleeping, but I’m fine with it.

Maybe it’s a touchy issue, so I don’t want to advocate it. It just worked for me.

Noah (almost 5 months) 3rd week in danmar helmet

On 5/31/07 6:43 AM, " christineashok " <christineashok@...> wrote:

Hi & welcome to the group.

I think mosts of us are disappointed in our doctors regarding plagio.

It is good that you found out so early. In terms of repo the are a lot

of tips in the files section of the group. One good thing is a bumbo

chair. you can get it at babies-r-us or target ($40). it allows babies

to sit before they have learned to do it on their own. also using the

baby carrier instead of stroller is good. lots of tummy time! you need

to do a few minutes at a time until your baby is used to it, but

babies do begin to like it. it is great for strengthening their upper

body and neck. I'm sure others will chime in as well.

take care.

-christine

sydney 17 mo starband grad

>

> Hi everyone,

>

> I have a 4 month old baby who almost certainly has plagiocephaly. I was

> looking at some of the photo's from this group, they look just like my

> little boy. I am just waiting to see a specialist. I am kinda angry

> that I am only really just finding out about this, angry with myself

> for not knowing and angry with the medical profession for not

> highlighting this a problem. I consider myself quite up to date with

> baby issues being a mother of two, so I can't belive this issue has

> escaped my attention until now. Surely they need to let parents know as

> soon as they bring up the issue of back sleeping?

>

> Anyhow I am trying to not dwell on the past, and try and look forward.

> I wonder if anyone could give me a run down of the techniques of

> repositioning - I have been trying to keep him from lying on his back

> when he's awake, but at 4 months its not always easy, and I have a 18

> month old to take care of too. Thanks in advance for your help!

>

[Guest guest]

Hi Welcome to the group. We started to really notice my son's plagio at 4 mths as well, after his diagnosis, we agressivly repo'd him the best we could with a wiggle worm child. Night time was the hardest (that and trusting that his babysitter was cooperating as well), but we safety pinned a rolled bath towel to his jammies under the flat side so that the end rested to the side of his head so he couldnt' roll onto the flat side at night.....I believe it helped a LOT. I also put his toys to the opposit side of his flat spot in his car seat and tried to keep him off his head as much as possible, in a bumbo or exersaucer. Hope this helps, good luck. Mother to , 10 mths, plagio, Starband graduate (worn from 1/11/07-5/23/07) "In the depths of winter, I finally found there was in me an invincible summer."

[Guest guest]

Welcome to the Group!  This is a wonderful group of parents who are here to help and be helped on the journey of plagio!

Unfortunatly you are not alone in the lack of knowledge that is passed on to parents bout thier babies and this condition.  I too had to do a TON of research so that I could show the DRs what was wrong.  I'm a mom to 5 kids and it wasn't until my 5th that I had ever heard of tort or plagio.

Anyway - Don't get mad at yourself - you are being proactive now that you know and that is what matters!

There are files in the file section about repoing.  Also, if you need to get him off his head and don;t have 4 arms :-) try the Bumbo seat - it really helped me.  They can be a bit spendy but sometime you can find that baby resale shops or in the penny saver or ebay.

HTH!!!

 Jen and Luli - 18 mo.

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

www.babiesonline.com/babies/j/jens5th/

New Member

Hi everyone,

I have a 4 month old baby who almost certainly has plagiocephaly. I was

looking at some of the photo's from this group, they look just like my

little boy. I am just waiting to see a specialist. I am kinda angry

that I am only really just finding out about this, angry with myself

for not knowing and angry with the medical profession for not

highlighting this a problem. I consider myself quite up to date with

baby issues being a mother of two, so I can't belive this issue has

escaped my attention until now. Surely they need to let parents know as

soon as they bring up the issue of back sleeping?

Anyhow I am trying to not dwell on the past, and try and look forward.

I wonder if anyone could give me a run down of the techniques of

repositioning - I have been trying to keep him from lying on his back

when he's awake, but at 4 months its not always easy, and I have a 18

month old to take care of too. Thanks in advance for your help!

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Please get her evaluated. The earlier the better for all delays. The

worst they will do is tell you she is fine. She sounds like my son at

that age and he needed and still needs services. Plus, there is usually

a wait for the eval, a wait for services to start (2 months for us). Do

not be afraid of hearing the bad thing. Getting to it earlier makes all

the difference. As for your dr., they often take a wait and see

approach. This is your child. You call. No need for a referral. I asked

my doctor twice and she blew it off. As a result he started 8 months

after he should have. I still regret not going with my gut, to his

deetriment.

Liz

wrote:

>Hello All,

>

>I have a 17 month old daughter who has no real words as of yet. Her

pediatrician told me that if she wasn't saying 7 words by her 18 month

appointment that she would give me a referral for Early Intervention. I'm

familiar with the whole process as my 5 year old began physical therapy with EI

at 5 months of age for gross motor skill delays and sensory issues. I'm on the

fence as to whether or not I should have my DD evaluated. One one hand I think

she just needs a little more time, but I'm afraid that waiting to give her help

might not be the best route to take? Is speech delay better addressed as soon

as possible? My biggest concerns are that she says no real words consistantly.

Every one in a great while she will say a new word but it's gone the next day,

never to be said again. For 3 days she was calling DH, " daddo " but then she

never used that word again. She said " mama " a long time ago, but only once.

She does have a couple of made up words that she uses

> daily, " bah gah " means all gone, " caca " is something yucky. That's about it.

She understands everything that we say to her and will follow simple directions.

She babbles like she is carrying on conversation but it's all just different

variants of noises. Should I be concerned?

>

>

> Marie (3.19.02)

>Audrey (12.30.05)

>Molly Anne (5.13.07)

>

>(click on names for pics)

>

>

[Guest guest]

Hello - and welcome. I would have someone test her to be on

the safe side - we wished we would have been taken more seriously when

we had some concerns when our son was 15 months. I babysat another

little boy along with my son (while I was pregnant with my daughter now

21 months old). We felt something was off with but his then

pediatrician told me it was because I was a stay at home Mom and he was

not in daycare - well neighter was the other boy I babysat and my son

was still drinking out of a bottle instead of sippy cup. He cannot

hold a regular cup even now at 3.5 yrs old whereas our daughter can.

So it doesn't hurt to have things checked out, I recommend a

Neurodevelopment pediatric specialist/neurologist that will run a

series of age appropriate testing - which was actually a lot of fun for

our son. We could have had our son into the 'system' a year earlier

making more progress but we were dismissed.

April

[Guest guest]

Is speech delay better addressed as soon as possible? Should I be

concerned?

,

Starting EI just to be sure that your child is getting all the

assistance needed can be beneficial. Rather than worrying about

whether or not to be worried it can not hurt to introduce additonal

stimulation and intervention. Typically, the earlier the

better...particularly with language delays. Getting assistance to help

your child communicate as soon as possible can reduce some of the

frustrations and consequently " behaviors " that can result from an

inability to communicate what the child needs or wants. EVERY child

could benefit from EI...even if it ends up that your child is

developing typically...it will give an " edge " with regards to the

develpmental growth of your child in comparison with peers with no

intervention.

Kari

[Guest guest]

Hello ,

My feeling is that it is better to be safe than sorry. I never believed in

mother's intuition until I had children. Now I always trust my feelings

whenever my children are concerned. If your daughter needs intervention then

getting it earlier is better than waiting as well you will probably have to wait

for an evaluation from EI anyways. They may say that your daughter is

developmentally appropriate for speech but let them do the evaluation to

determine if anything needs to be done at this time.

Let us know what you decide to do and any outcomes please. I would love to

hear.

9 years, Dx dyspraxia, hypotonia, SID, DCD, feeding and growth issues

almost 7, Dx dyspraxia, hypotonia, SID, DCD, feeding and growth issues

16.5 months suspected dypraxia, dysarthria, DX hypotonia, SID & definite feeding

[ ] New Member

Hello All,

I have a 17 month old daughter who has no real words as of yet. Her pediatrician

told me that if she wasn't saying 7 words by her 18 month appointment that she

would give me a referral for Early Intervention. I'm familiar with the whole

process as my 5 year old began physical therapy with EI at 5 months of age for

gross motor skill delays and sensory issues. I'm on the fence as to whether or

not I should have my DD evaluated. One one hand I think she just needs a little

more time, but I'm afraid that waiting to give her help might not be the best

route to take? Is speech delay better addressed as soon as possible? My biggest

concerns are that she says no real words consistantly. Every one in a great

while she will say a new word but it's gone the next day, never to be said

again. For 3 days she was calling DH, " daddo " but then she never used that word

again. She said " mama " a long time ago, but only once. She does have a couple of

made up words that she uses

daily, " bah gah " means all gone, " caca " is something yucky. That's about it. She

understands everything that we say to her and will follow simple directions. She

babbles like she is carrying on conversation but it's all just different

variants of noises. Should I be concerned?

Marie (3.19.02)

Audrey (12.30.05)

Molly Anne (5.13.07)

(click on names for pics)

[Guest guest]

Hi Andy, Welcome to the group. Have you read, " The Out of Synch Child " ?

Sorry I can't remember the author. It is a great book on Sensory Issues.

Also a great book on Enzymes is DeFlice's book. Enzymes for Autism and

other Nuerological Disorders. This is a great book.

Magnesium is very good for relieving constipation. Magnesium Citrate I think

is the best for constipation.

HTH

Rhonda in CA

[Guest guest]

Thank you for your info on the books and magnesium.

I also have a longtime friend who has a company which has an appropriate

name to try to find solutions to health conditions where it may be a " puzzle " ..

It is called _www.jigsawhealth.com_ (http://www.jigsawhealth.com)

I went to his site yesterday and noticed info on enzymes. I am not sure if

these are in line with what you currently are using here. I would be interested

to know if any of his products, might be of use, so I can let him know.

Andy

In a message dated 6/17/2007 7:30:59 P.M. Eastern Daylight Time,

Rhons44@... writes:

Hi Andy, Welcome to the group. Have you read, " The Out of Synch Child " ?

Sorry I can't remember the author. It is a great book on Sensory Issues.

Also a great book on Enzymes is DeFlice's book. Enzymes for Autism and

other Nuerological Disorders. This is a great book.

Magnesium is very good for relieving constipation. Magnesium Citrate I think

is the best for constipation.

HTH

Rhonda in CA

[Non-text portions of this message have been removed]

************************************** See what's free at http://www.aol.com.

[Guest guest]

Another resource is www.enzymestuff.com

For the chronic constipation, consider encopresis. my son had this and

it took forever to figure out how to help him. Here is the program for

that:

http://www.enzymestuff.com/rtencopresis.htm

I used magnesium as the stool softener instead of miralax or something

else. He needed about 600 mg of magnesium a day at 7 years old.

.

[Guest guest]

Andy,

There is a file in the files section called " Constipation " It may have

some information for you.

Anita

>

> I am a new member to the group and literally this is the first day I

> have heard about Enzymes connected to this.

>

> I am looking for some direction and resources for my 11 year old son.

>

> He has sensory integration issues (hypersensitive hearing, reading,

> focussing/following instructions, transition issues, sleep issues (he

> oversleeps).

>

> He has also had " constipation " for years and we can not seem to find

> the answer. Most of his doctors just prescribe a stool softener or

> laxative. This does not seem to be the answer.

>

>

> Andy

> Charlotte, NC

>

[Guest guest]

> He has sensory integration issues (hypersensitive hearing, reading,

> focussing/following instructions, transition issues, sleep issues (he

> oversleeps).

For my son, hypersensitive hearing meant yeast overgrowth

http://www.danasview.net/yeast.htm

Sleep issues were caused by yeast overgrowth or phenol intolerance

http://www.danasview.net/phenol.htm

> He has also had " constipation " for years and we can not seem to find

> the answer. Most of his doctors just prescribe a stool softener or

> laxative. This does not seem to be the answer.

Here are some constipation ideas

http://www.danasview.net/constip.htm

Dana

[Guest guest]

I had a vasectomy. My urologist (not the guy who did the vasectomy)

believes that the back pressure from the sperm causes an auto-immune

response, wherein the body starts to attack the sperm that's still in

the testes, cause atrophy and damage there.

I regret my vasectomy. When my wife goes into menopause, I plan to get

it reversed. Meanwhile I take hcg to keep the nuts working.

Chris

--- sjrost <sjrost@...> wrote:

> Hello men,

> Thank you for this group. I have learned a great deal but have much

> to learn about my condition. I will try to keep my story brief. I

> crashed in April, suffering from depression and anxiety and stopped

> sleeping more than an hour or two a night. I was put on Zoloft and

> was told that I was overstressed from teaching and coaching

> basketball. Things improved very little and I was incapable of

> teaching as I was not myself at all. My wife and I came up with the

> idea of checking my T levels and were told by a Urologist and my

> family Doctor that we wouldn't find anything.

> My total T level was 217 in a range of 200 to 1200, and my free was

> 5.8, in a range of 6.7 to 26. I have been on 1% Androgel for about 3

> to 4 weeks. I feel like my depression and anxiety have improved in

> the last week, although today was a little rough. I hope I am on the

> right track. I had a vasectamy in December. Is this a possible cause

> of my condition? Believe it of not, a friend of mine had one in the

> same clinic in January and is also suffering similar symptoms. Odd

> coincidence or big alarm? He has not had his blood tested yet but

> said that he was going to do it.Unfortunatly, my Urologist started me

>

> on TRT before they tested by testicles, but I did have my pituitary

> scanned and that looks fine.

> As you all know, this had been the toughest few months of my life. I

> have really felt better reading your stories and the information

> provided. I have a very good Doctor, but I don't believe that he has

> much of a background in this. Should I be going to an Endocronologist

>

> to monitor this closely? I am in the Kansas City area. Thank you,

>

>

>

________________________________________________________________________________\

____

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

http://autos./green_center/

[Guest guest]

I talked to a guy at webMD that had a vasectomy and his testosterone levels went

down he was posting to the Uro Dr. there on the boards. The Dr. told him some

men get a low grade infection that requires a special test to find and a special

med to cure it. This was his probelm.

Homebrewer MSP <homebrewermsp@...> wrote: I had a vasectomy. My

urologist (not the guy who did the vasectomy)

believes that the back pressure from the sperm causes an auto-immune

response, wherein the body starts to attack the sperm that's still in

the testes, cause atrophy and damage there.

I regret my vasectomy. When my wife goes into menopause, I plan to get

it reversed. Meanwhile I take hcg to keep the nuts working.

Chris

--- sjrost <sjrost@...> wrote:

> Hello men,

> Thank you for this group. I have learned a great deal but have much

> to learn about my condition. I will try to keep my story brief. I

> crashed in April, suffering from depression and anxiety and stopped

> sleeping more than an hour or two a night. I was put on Zoloft and

> was told that I was overstressed from teaching and coaching

> basketball. Things improved very little and I was incapable of

> teaching as I was not myself at all. My wife and I came up with the

> idea of checking my T levels and were told by a Urologist and my

> family Doctor that we wouldn't find anything.

> My total T level was 217 in a range of 200 to 1200, and my free was

> 5.8, in a range of 6.7 to 26. I have been on 1% Androgel for about 3

> to 4 weeks. I feel like my depression and anxiety have improved in

> the last week, although today was a little rough. I hope I am on the

> right track. I had a vasectamy in December. Is this a possible cause

> of my condition? Believe it of not, a friend of mine had one in the

> same clinic in January and is also suffering similar symptoms. Odd

> coincidence or big alarm? He has not had his blood tested yet but

> said that he was going to do it.Unfortunatly, my Urologist started me

>

> on TRT before they tested by testicles, but I did have my pituitary

> scanned and that looks fine.

> As you all know, this had been the toughest few months of my life. I

> have really felt better reading your stories and the information

> provided. I have a very good Doctor, but I don't believe that he has

> much of a background in this. Should I be going to an Endocronologist

>

> to monitor this closely? I am in the Kansas City area. Thank you,

>

>

>

__________________________________________________________

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

http://autos./green_center/

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

---------------------------------

Boardwalk for $500? In 2007? Ha!

Play Monopoly Here and Now (it's updated for today's economy) at Games.

[Guest guest]

Phil, would you mind sending a link to that discussion? I went to

webmd.com, but could not easily find what you were referring to.

Thanks,

Chris

--- philip georgian <pmgamer18@...> wrote:

> I talked to a guy at webMD that had a vasectomy and his testosterone

> levels went down he was posting to the Uro Dr. there on the boards.

> The Dr. told him some men get a low grade infection that requires a

> special test to find and a special med to cure it. This was his

> probelm.

>

________________________________________________________________________________\

____

Building a website is a piece of cake. Small Business gives you all the

tools to get online.

http://smallbusiness./webhosting

[Guest guest]

I could not find anything about it but it was some yrs ago try a search or post

to the Dr.

http://boards.webmd.com/webx?14488 (DOT) O4zka6MTdIA.0@.5987f442

Homebrewer MSP <homebrewermsp@...> wrote:

Phil, would you mind sending a link to that discussion? I went to

webmd.com, but could not easily find what you were referring to.

Thanks,

Chris

--- philip georgian <pmgamer18@...> wrote:

> I talked to a guy at webMD that had a vasectomy and his testosterone

> levels went down he was posting to the Uro Dr. there on the boards.

> The Dr. told him some men get a low grade infection that requires a

> special test to find and a special med to cure it. This was his

> probelm.

>

__________________________________________________________

Building a website is a piece of cake. Small Business gives you all the

tools to get online.

http://smallbusiness./webhosting

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

---------------------------------

Building a website is a piece of cake.

Small Business gives you all the tools to get online.

[Guest guest]

Thank you for writing back. Is there a way to test to see what caused

my levels to drop as a result of the vasectamy, even after I have

started treatment? I just got a new round of blood results back and

my free is at 9.7 and my total is at 309. I guess I will keep

plugging away.

>

> > Hello men,

> > Thank you for this group. I have learned a great deal but have

much

> > to learn about my condition. I will try to keep my story brief. I

> > crashed in April, suffering from depression and anxiety and

stopped

> > sleeping more than an hour or two a night. I was put on Zoloft

and

> > was told that I was overstressed from teaching and coaching

> > basketball. Things improved very little and I was incapable of

> > teaching as I was not myself at all. My wife and I came up with

the

> > idea of checking my T levels and were told by a Urologist and my

> > family Doctor that we wouldn't find anything.

> > My total T level was 217 in a range of 200 to 1200, and my free

was

> > 5.8, in a range of 6.7 to 26. I have been on 1% Androgel for

about 3

> > to 4 weeks. I feel like my depression and anxiety have improved

in

> > the last week, although today was a little rough. I hope I am on

the

> > right track. I had a vasectamy in December. Is this a possible

cause

> > of my condition? Believe it of not, a friend of mine had one in

the

> > same clinic in January and is also suffering similar symptoms.

Odd

> > coincidence or big alarm? He has not had his blood tested yet but

> > said that he was going to do it.Unfortunatly, my Urologist

started me

> >

> > on TRT before they tested by testicles, but I did have my

pituitary

> > scanned and that looks fine.

> > As you all know, this had been the toughest few months of my

life. I

> > have really felt better reading your stories and the information

> > provided. I have a very good Doctor, but I don't believe that he

has

> > much of a background in this. Should I be going to an

Endocronologist

> >

> > to monitor this closely? I am in the Kansas City area. Thank you,

> >

> >

> >

>

> __________________________________________________________

> Looking for earth-friendly autos?

> Browse Top Cars by " Green Rating " at Autos' Green Center.

> http://autos./green_center/

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

> ---------------------------------

> Boardwalk for $500? In 2007? Ha!

> Play Monopoly Here and Now (it's updated for today's economy) at

Games.

>

>

[Guest guest]

No none that I know of and it may have nothing to do with your vasectamy. If

your under a lot of stress this kills your T levels big tiime even when your on

T meds it will eat up the meds and you will have lower levels. Your test on I

take it 5 grams of Androgel is to low ask your Dr. to up the does to 10 grams.

If I were you I would look into checking for Adrenal Fatigue if your not putting

out enough Cortisol this can lower your T levels and Stress is the big cause of

AF. The best way to check this is to do a saliva test that checkes you 4x's in

a day. We use the Canary Club at STTM site.

You should have the following tests.

* TSH

* Free T4 and Free T3 (note the word “free”)

* Thyroid Antibodies (anti-TPO and TgAb. YOU NEED BOTH.)

* Ferritin (and do stress FERRITIN, not just RBC)

* Adrenals Cortisol levels (but we strongly recommend saliva tests, not the one

time blood test your doctor will do. See below, because you don’t need a

prescription)

* B-12, estradiol, progesterone, testosterone, DHEA

http://www.stopthethyroidmadness.com/recommended-labwork/

To rule out everything possable.

sjrost <sjrost@...> wrote:

Thank you for writing back. Is there a way to test to see what caused

my levels to drop as a result of the vasectamy, even after I have

started treatment? I just got a new round of blood results back and

my free is at 9.7 and my total is at 309. I guess I will keep

plugging away.

>

> > Hello men,

> > Thank you for this group. I have learned a great deal but have

much

> > to learn about my condition. I will try to keep my story brief. I

> > crashed in April, suffering from depression and anxiety and

stopped

> > sleeping more than an hour or two a night. I was put on Zoloft

and

> > was told that I was overstressed from teaching and coaching

> > basketball. Things improved very little and I was incapable of

> > teaching as I was not myself at all. My wife and I came up with

the

> > idea of checking my T levels and were told by a Urologist and my

> > family Doctor that we wouldn't find anything.

> > My total T level was 217 in a range of 200 to 1200, and my free

was

> > 5.8, in a range of 6.7 to 26. I have been on 1% Androgel for

about 3

> > to 4 weeks. I feel like my depression and anxiety have improved

in

> > the last week, although today was a little rough. I hope I am on

the

> > right track. I had a vasectamy in December. Is this a possible

cause

> > of my condition? Believe it of not, a friend of mine had one in

the

> > same clinic in January and is also suffering similar symptoms.

Odd

> > coincidence or big alarm? He has not had his blood tested yet but

> > said that he was going to do it.Unfortunatly, my Urologist

started me

> >

> > on TRT before they tested by testicles, but I did have my

pituitary

> > scanned and that looks fine.

> > As you all know, this had been the toughest few months of my

life. I

> > have really felt better reading your stories and the information

> > provided. I have a very good Doctor, but I don't believe that he

has

> > much of a background in this. Should I be going to an

Endocronologist

> >

> > to monitor this closely? I am in the Kansas City area. Thank you,

> >

> >

> >

>

> __________________________________________________________

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> Browse Top Cars by " Green Rating " at Autos' Green Center.

> http://autos./green_center/

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

> ---------------------------------

> Boardwalk for $500? In 2007? Ha!

> Play Monopoly Here and Now (it's updated for today's economy) at

Games.

>

>

[Guest guest]

Hi

I am not sure if the vesectomy caused ths but it could be a

possibility as sometimes there can be an infection of sorts in the

testicle or just due to swelling or scar tissue blood supply can be

decreased in that are after surgery.

It would be a good idea to see if any of that is present.

Secondly there are a whole host of reasons you could have low T

levels so I would get a complete physical and blood work done to

exclude any other causes.

Hope this helps

Manraj

>

> Hello men,

> Thank you for this group. I have learned a great deal but have

much

> to learn about my condition. I will try to keep my story brief. I

> crashed in April, suffering from depression and anxiety and

stopped

> sleeping more than an hour or two a night. I was put on Zoloft and

> was told that I was overstressed from teaching and coaching

> basketball. Things improved very little and I was incapable of

> teaching as I was not myself at all. My wife and I came up with

the

> idea of checking my T levels and were told by a Urologist and my

> family Doctor that we wouldn't find anything.

> My total T level was 217 in a range of 200 to 1200, and my free

was

> 5.8, in a range of 6.7 to 26. I have been on 1% Androgel for about

3

> to 4 weeks. I feel like my depression and anxiety have improved in

> the last week, although today was a little rough. I hope I am on

the

> right track. I had a vasectamy in December. Is this a possible

cause

> of my condition? Believe it of not, a friend of mine had one in

the

> same clinic in January and is also suffering similar symptoms. Odd

> coincidence or big alarm? He has not had his blood tested yet but

> said that he was going to do it.Unfortunatly, my Urologist started

me

> on TRT before they tested by testicles, but I did have my

pituitary

> scanned and that looks fine.

> As you all know, this had been the toughest few months of my life.

I

> have really felt better reading your stories and the information

> provided. I have a very good Doctor, but I don't believe that he

has

> much of a background in this. Should I be going to an

Endocronologist

> to monitor this closely? I am in the Kansas City area. Thank you,

>

>

[Guest guest]

Hi Ann,

I know that some of the moms who had children without words

used a special therapy called PROMPT which you may want to

search and inquire about...

I cannot pretend to know what its like to have a child

without words; my son, while his speech required an

interpreter, did speak so... take anything I suggest as

merely... a fools suggestion, ok?

You say that his hearing is okay but how would an

audiologist eval. his tonal processing since he has no words

to be accurately tested? Look into AIT, auditory

Integration Stimulation Programs such at Berrard, Tomatis

etc. We use a home program called The Listening Program but

if I had a little one with no words, I would want the 'bone

conduction stimulation' to really attack those ears.

Look into 's vitamin protocol of EFA supplementation

and get the girls who have 'legitimate' late talkers to

chime in here and help you! (My area of experience is

therapy and I am a relative 'newbie' to the nutrition side.)

Think of getting rid of milk and casien products for at

least a trial run. So many of us on this board have had

such success with regard to eliminating milk that it just

must be suggested. Milk products were congesting my child's

ears and taking out his hearing, giving him diarrhea,

desensitizing his lips and tongue, etc.

When something 'happens' to our children and the natural

movement forward of the brain is halted in any way, that

particular area goes into what is called homeostasis and

will 'stay' at that level of function until and outside

force 'stimulates' the barrier and the brain kick-starts and

moves past it.

You are going to have to use a multi-prong approach and

'attack' this from all angles. Nutrition, supplementation,

achieving voice ie. mouth and lips and ears ie. hearing, as

well as exercise will all play a key role. You must address

each one and work each one to find success.

Start here... with making a plan on how you are going to

attack each area with absolutely all of your might. You

need a Listening Therapy of some sort, research and pick one

that best suits you and proceed (not cheap but necessary),

you need to develop a nutritional plan, (do you give up milk

or change your diet at all to support therapy?), a

supplement plan (a lot of the gals are finding success with

ProEFA), a therapy plan (PROMPT, an SLP who specializes in

late talkers?)

Of course, all of this takes money... but create your wish

list first. Sometimes Easter Seals helps out by lending

Listening Resources for our kids etc.... That will come,

first get a plan!

I have to ask, does your little guy make any sounds at all

or make any attempts to articulate? Your pediatrician

sounds like a real jerk btw, I would think about shopping

for one who is more in tune with your philosophy (like

looking at the medical issues!) Your son should also see a

neurologist, developmental pediatrician, etc. You are not

alone in this, my pediatrician really should be sitting

outside the school in an old Buik alongside the other drug

dealers as far as I'm concerned.

Take care, and welcome from your new friends!

Janice

[ ] New Member

Date: Tue, 17 Jul 2007 21:04:24 -0000

> Hello Group.

>

> I'm Ann, mom of two. My daughter will be six, and my son

> will be 4 at the end of October and still is not

> speaking. Our pediatrician has been convinced up until

> recently that he did not speak because he has an older

> sibling that does his speaking for him.

>

> Obviously this is not true. His hearing checks out fine,

> though he is unable to form words. According to evals

> he's had there is nothing wrong with his mouth or jaw

> muscles. He is a typical boy, though he shows

> exceptional prowess with athletics and puzzles. He is

> very well physically coordinated and catches onto ideas

> and concepts quickly. He plays well with other children.

>

> He just does not speak! We received results back from a

> blood panel today that showed negative for T1, T3, and

> TSH for thyroid malfunction. Grave's runs in my family

> and a goiter was discovered on his thyroid last week

> during a routine checkup, which would explain the many

> symptoms he's had since birth and his mild attention

> deficit (not diagnosed) and " antsy " issues. I found it

> ironic that our ped has failed to address our concerns for

> his lack of speech (and those who have done evals in the

> past as well) but wanted to prescribe him Risperdal

> because she though he was ADD/ADHD - without any

> referrals or diagnosis by someone with appropriate

> training. Our school district will also not help him

> until he is in kindergarten!

>

> He's also below height and weight averages and has been

> since shortly after birth. Both of my children had

> reflux, which we attributed to some of his issues...He is

> potty trained and has been for over a year now,

> thankfully. Dad's side had speech delays, but only in

> minor areas - nothing like what we're currently dealing

> with.

>

> At this point, I'm just very frustrated and doing what I

> can to help him myself since it seems the system picks

> and chooses what to offer and to whom. I will also be

> taking my son for a second opinion on the speech and

> possibly another blood test. We are also planning to pay

> out of pocket if necessary for a non-biased speech eval.

>

> Anyhow, thanks for listening. It's been especially

> difficult not comparing my son with his sister, as she

> literally spoke in sentences and paragraphs with proper

> grammar by a year old. She began stringing words

> together at 9 months. To have my little boy going on four

> without speech and/or assistance with the lack thereof,

> has been very difficult. Despite all of my efforts to

> encourage communication and get the help for him he very

> clearly needs, we've repeatedly hit brick walls.

>

> When I have a quiet moment I plan on getting back onto the

> site and exploring the archives for additional

> information. Thank you to those who have created this

> group, and those who have contributed to it as well. It

> serves as a hopeful resource for all parents facing these

> types of challenges.

>

>

> Ann

>

>

[Guest guest]

Have you looked into food allergies, specifically milk? The thyroid

stuff is big in my family as is the below avg ht and wt (in extended

family). There's more but my point is milk was our main beast.

ann_catherine0602 wrote:

>Hello Group.

>

>I'm Ann, mom of two. My daughter will be six, and my son will be 4

>at the end of October and still is not speaking. Our pediatrician

>has been convinced up until recently that he did not speak because

>he has an older sibling that does his speaking for him.

>

>Obviously this is not true. His hearing checks out fine, though he

>is unable to form words. According to evals he's had there is

>nothing wrong with his mouth or jaw muscles. He is a typical boy,

>though he shows exceptional prowess with athletics and puzzles. He

>is very well physically coordinated and catches onto ideas and

>concepts quickly. He plays well with other children.

>

>He just does not speak! We received results back from a blood panel

>today that showed negative for T1, T3, and TSH for thyroid

>malfunction. Grave's runs in my family and a goiter was discovered

>on his thyroid last week during a routine checkup, which would

>explain the many symptoms he's had since birth and his mild

>attention deficit (not diagnosed) and " antsy " issues. I found it

>ironic that our ped has failed to address our concerns for his lack

>of speech (and those who have done evals in the past as well) but

>wanted to prescribe him Risperdal because she though he was

>ADD/ADHD - without any referrals or diagnosis by someone with

>appropriate training. Our school district will also not help him

>until he is in kindergarten!

>

>He's also below height and weight averages and has been since

>shortly after birth. Both of my children had reflux, which we

>attributed to some of his issues...He is potty trained and has been

>for over a year now, thankfully. Dad's side had speech delays, but

>only in minor areas - nothing like what we're currently dealing with.

>

>At this point, I'm just very frustrated and doing what I can to help

>him myself since it seems the system picks and chooses what to offer

>and to whom. I will also be taking my son for a second opinion on

>the speech and possibly another blood test. We are also planning to

>pay out of pocket if necessary for a non-biased speech eval.

>

>Anyhow, thanks for listening. It's been especially difficult not

>comparing my son with his sister, as she literally spoke in

>sentences and paragraphs with proper grammar by a year old. She

>began stringing words together at 9 months. To have my little boy

>going on four without speech and/or assistance with the lack

>thereof, has been very difficult. Despite all of my efforts to

>encourage communication and get the help for him he very clearly

>needs, we've repeatedly hit brick walls.

>

>When I have a quiet moment I plan on getting back onto the site and

>exploring the archives for additional information. Thank you to

>those who have created this group, and those who have contributed to

>it as well. It serves as a hopeful resource for all parents facing

>these types of challenges.

>

>

>Ann

>

>

>

>