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,

I hear ya on the getting tired of going to doc after doc! YUCK! It

sometimes seems as if your whole life is consumed with doc offices!

Sorry your blood work did not turn out well. I love your dream of

winning the lottery, beaches, drinks and ahh the oh so cute cabana

boy! I want my own cabana boy too! LOL Thanks for sharing how you are

doing. Here's to better tomorrow's!

Sincerely,

Barb

-- In , " Climer " <climers4@a...>

wrote:

> Just when you start having a nice day...your feeling a little

better, the

> kids are behaving (a little), you have a nice afternoon planned.....

> something has to come along and just mess it up for you. I just got

a call

> from my internist and he told me one of my samples I sent in for

occult

> blood is positive. I'm afraid to ask whats next anymore, cuz I

usually find

> out.LOL! My blood work last week showed I was anemic and this is

why he did

> the occult tests, but I honestly thought it was going to come back

negative.

> Boy was I surprised. The only problem I have been having is alot of

acid

> reflux lately. So I am hoping this is where the blood is coming

from. I don

> t want to think of the alternative.

>

> Now I have to go and see a GI specialist. Can't get into see him

until

> November 8. I am so tired of going from one specialist to another.

I wish

> there was only one doctor that could take care of everything. Like

in the

> good ol days. And when you could pay them with chickens. LOL!

>

> Well thats my daily update. I hope tomorrows update is that I won

the

> lottery and I will be sending my emails to my groups from Cancun,

while

> sitting on the beach with my cabana boy fanning me and rubbing

me with

> suntan oil, and refilling my pina colada. Aaaaahhhhhh.....what an

update

> that would be;)

>

>

>

> Hugs to all

>

>

>

>

>

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> > Just when you start having a nice day...your feeling a little

> better, the

> > kids are behaving (a little), you have a nice afternoon planned.....

> > something has to come along and just mess it up for you. I just got

> a call

> > from my internist and he told me one of my samples I sent in for

> occult

> > blood is positive. I'm afraid to ask whats next anymore, cuz I

> usually find

> > out.LOL! My blood work last week showed I was anemic and this is

> why he did

> > the occult tests, but I honestly thought it was going to come back

> negative.

> > Boy was I surprised. The only problem I have been having is alot of

> acid

> > reflux lately. So I am hoping this is where the blood is coming

> from. I don

> > t want to think of the alternative.

> >

> > Now I have to go and see a GI specialist. Can't get into see him

> until

> > November 8. I am so tired of going from one specialist to another.

> I wish

> > there was only one doctor that could take care of everything. Like

> in the

> > good ol days. And when you could pay them with chickens. LOL!

> >

> > Well thats my daily update. I hope tomorrows update is that I won

> the

> > lottery and I will be sending my emails to my groups from Cancun,

> while

> > sitting on the beach with my cabana boy fanning me and rubbing

> me with

> > suntan oil, and refilling my pina colada. Aaaaahhhhhh.....what an

> update

> > that would be;)

> >

> >

> >

> > Hugs to all

> >

> >

> >

> >

> >

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Dear ,

I sure understand where you're coming from! How 'bout I send you a

nice big feather fan (sorry, can't help with the cabana boy) and I'll

go scrounge up a couple of chickens for you? I hope things go better.

Take care,

Judi

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LOL!!!!! THE CABANA BOY IS THE MOST IMPORTANT INGREDIENT!! BUT WE WILL MAKE

DO WITH WHAT WE HAVE, AND HAVE A GRAND OL TIME

HUGGERS

SUSAN

-- [ ] Re: Hi all

Dear ,

I sure understand where you're coming from! How 'bout I send you a

nice big feather fan (sorry, can't help with the cabana boy) and I'll

go scrounge up a couple of chickens for you? I hope things go better.

Take care,

Judi

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Jaxx Brown <hippygal@...> wrote:

Hi my name is Jackie and my son has been unofficially diagnosed with

Aspergers, we go to another doc in about 1 month for more tests etc for

confirmation or at least hopefully they can help me deal with the problems......

I am from New Zealand and is 10 years old, and it is finally great to be

able to realise his behaviour is not just come from me being a bad parent. I was

really thinking it must have been me and the way I was bringing him up even

though his twin sister is fine with no real major problems.

Now that I am getting some help I am hoping that I can now have some help with

dealing with situations and have a somewhat relaxing time ahead.

Anyway just wanted to come in and say Hi and thanks as I have learnt so much

over the past few days reading old posts etc.... and it is so cool to know it is

not just my son who has these issues, and I am not alone.

Cheers Jackie

Hi Jackie!

Welcome to our group and feel free to jump in whenever you like!

Roxanna

Always Remember You're Unique

Just Like Everyone Else

---------------------------------

Music Unlimited - Access over 1 million songs. Try it free.

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Jackie great to meet you, I am new to the list also w/ my 6 yr old son being

unofficially diagnosed as well. I have the same feelings as you. I thought it

was all our fault for his behavior.

Holly

Roxanna Neely <roxanna_neely@...> wrote:

Jaxx Brown <hippygal@...> wrote:

Hi my name is Jackie and my son has been unofficially diagnosed with

Aspergers, we go to another doc in about 1 month for more tests etc for

confirmation or at least hopefully they can help me deal with the problems......

I am from New Zealand and is 10 years old, and it is finally great to be

able to realise his behaviour is not just come from me being a bad parent. I was

really thinking it must have been me and the way I was bringing him up even

though his twin sister is fine with no real major problems.

Now that I am getting some help I am hoping that I can now have some help with

dealing with situations and have a somewhat relaxing time ahead.

Anyway just wanted to come in and say Hi and thanks as I have learnt so much

over the past few days reading old posts etc.... and it is so cool to know it is

not just my son who has these issues, and I am not alone.

Cheers Jackie

Hi Jackie!

Welcome to our group and feel free to jump in whenever you like!

Roxanna

Always Remember You're Unique

Just Like Everyone Else

---------------------------------

Music Unlimited - Access over 1 million songs. Try it free.

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Hi Holly,

Yes it is great to know what we are not to blame. has had it pretty

tough, he also has Perthes Disease, and was wheelchair bound and on crutches

for 3 years. He was on full restrictions for physical activity for nearly 5

years. I felt his behaviour was because we gave in to him a lot throughout

this time.

He also has dyslexia and audio processing disorder. But I am hoping there

will be some light now at the end of the tunnel.....

Cheers Jackie

Re: ( ) Hi all

> Jackie great to meet you, I am new to the list also w/ my 6 yr old son

> being unofficially diagnosed as well. I have the same feelings as you. I

> thought it was all our fault for his behavior.

>

> Holly

>

> Roxanna Neely <roxanna_neely@...> wrote:

>

>

> Jaxx Brown <hippygal@...> wrote:

> Hi my name is Jackie and my son has been unofficially diagnosed with

> Aspergers, we go to another doc in about 1 month for more tests etc for

> confirmation or at least hopefully they can help me deal with the

> problems......

>

> I am from New Zealand and is 10 years old, and it is finally great

> to be able to realise his behaviour is not just come from me being a bad

> parent. I was really thinking it must have been me and the way I was

> bringing him up even though his twin sister is fine with no real major

> problems.

>

> Now that I am getting some help I am hoping that I can now have some help

> with dealing with situations and have a somewhat relaxing time ahead.

>

> Anyway just wanted to come in and say Hi and thanks as I have learnt so

> much over the past few days reading old posts etc.... and it is so cool to

> know it is not just my son who has these issues, and I am not alone.

>

> Cheers Jackie

>

> Hi Jackie!

>

> Welcome to our group and feel free to jump in whenever you like!

>

>

>

>

> Roxanna

> Always Remember You're Unique

> Just Like Everyone Else

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs. Try it free.

>

>

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Hi Ann..I am Jan..I am so sorry for your disappointment but like we all have heard and tell one another...you usually die with it not because of it..So keep having faith..We have a few of us in here that after TX it reocurred..It is disappointing..There is another group member that pops up from time to time that can't even take TX..So you are not alone and please feel free to talk about your feelings..We all do..I usually talk about my disrupted family life cause I quit talking much about my ailments..That was my choice but this is a wonderful group that can bring you lots of info and laughter!! Welcome and stay with us!!perky rose <agann_01@...> wrote:

Hi. My name is Ann- I was diagnosed in 94 and went through the entire 48 weeks of interferon/ribavarin treatment. Within the first 6 weeks the virus was gone. At the end of treatment ( a month after) it had RELAPSED. I was devastated. So now, they tell me - wait - in 5 years there may be a cure. Yeah right.

Anyway, hope to find some people to share with on here . TY for listening.

Music Unlimited - Access over 1 million songs. Try it free. Jan

FareChase - Search multiple travel sites in one click.

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Joanne,

So glad to hear you are OK, eventhough your Freezer stuff is not! I can certainly feel withyou, for all the work it takes to grow vegetables and fill the freezer. I admire all the people who have the courage to live in areas that are regularly bombarded by nature. Now that I think of it who isn't?? But maybe some areas do not get blasted as often as Fla and the southern states.

If and when OR gets the Big Earthquake, we will just simply ( or not so simply) slide into the ocean, glub, glub.............. NOt to mention the Tsunami that could easily wipe out the coast. All this nature stuff is better ignored ( at least by me), it is too scary! Clara from OR

[ ] Hi all

First.Pain meds. No you can't go without for that long.you can also get VERY ill be not slowly reducing any pain med ( or any med for that matter! ) Well.we got our electric back.and I of course lost all my food in the freezers. Not a happy person. I had worked hard growing the veggs then freezing them and had the freezer full.but 4 1/2 days with no power finished them all...all in the compost pile now. Very upset.. not to mention was planning on being able to save some money this winter by not having to buy so many veggys. We went shopping Sat night.and had to re buy all those things like mayo etc.. along with some meat and stuff. But.we were blessed that not a single tree fell on our house and we lost LOTS of trees. My girlfriend prayer for the entire time that our birch trees right next to the house wouldn't fall on us. and they didn't. Amazing as bir h trees are not sturdy. We lost many other birches.and a big apple.along with a multitude of other trees....................... Joanne

Jj Cathcart

jjcathcart@...

EarthLink Revolves Around You.

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Oh Joanne, what a blessing you are OK, but how frustrating that you lost all of your food. People who don't have a garden or can, or freeze, can't always understand the work one puts into doing all of that! But at least you are safe.

Now about the pain meds...I am finding that I am either adicted to the pain meds of they are not working. It seems that when it is time for some more meds, I get all shivery and cold and shake and shake. I just cannot get addicted to this stuff, but the pain fromt he back surgery is driving me nuts. Is this common? Or is it just in my head? i really don't know who to turn to!

Debby

[ ] Hi all

First.Pain meds. No you can't go without for that long.you can also get VERY ill be not slowly reducing any pain med ( or any med for that matter! ) Well.we got our electric back.and I of course lost all my food in the freezers. Not a happy person. I had worked hard growing the veggs then freezing them and had the freezer full.but 4 1/2 days wih no power finished them all...all in the compost pile now. Very upset.. not to mention was planning on being able to save some money this winter by not having to buy so many veggys. We went shopping Sat night.and had to re buy all those things like mayo etc.. along with some meat and stuff. But.we were blessed that not a single tree fell on our house and we lost LOTS of trees. My girlfriend prayer for the entire time that our birch trees right next to the house wouldn't fall on us. and they didn't. Amazing as bir h trees are not sturdy. We lost many other birches.and a big apple.along with a multitude of other trees....................... Joanne

Jj Cathcart

jjcathcart@...

EarthLink Revolves Around You.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.12.6/151 - Release Date: 10/28/2005

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please give me answer.thanksniki bhardwaj <niki_b_2005@...> wrote:

hi.

iamm new hear.yester day my son arnav got his star band.i fill its not proper fit him .i did t saw any red spot on in head after wearing.when i put him sleep i saw some spece i put my fingur in between his helment.can any one tell me how did u gye know its fit perfect or not cause i have fix his appiontment today evening again.please reply soon.thanks love all kiddoos

FareChase - Search multiple travel sites in one click.

FareChase - Search multiple travel sites in one click.

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please give me answer.thanksniki bhardwaj <niki_b_2005@...> wrote:

hi.

iamm new hear.yester day my son arnav got his star band.i fill its not proper fit him .i did t saw any red spot on in head after wearing.when i put him sleep i saw some spece i put my fingur in between his helment.can any one tell me how did u gye know its fit perfect or not cause i have fix his appiontment today evening again.please reply soon.thanks love all kiddoos

FareChase - Search multiple travel sites in one click.

FareChase - Search multiple travel sites in one click.

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Niki,

Normally after first getting the band or having an adjustment, the

band will fit big. Not huge, but loose. The rule of thumb is that

it should not move more than an inch or cover the eyes. My son has

gone through 3 adjustments and each time, for about a week-10 days,

it is loose. The band will slip forward when he looks down and will

shift side to side on his head. After a little bit of growth, it

stops moving and fits well by the next appointment. The band cannot

fit tightly after the adjustment or there will be no room for the

head to grow and round out! My son has had his starband for nearly 3

months and we have rarely had any red marks but his head has still

grown properly and we should be done next week.

hi.

> iamm new hear.yester day my son arnav got his star band.i

fill its not proper fit him .i did t saw any red spot on in head

after wearing.when i put him sleep i saw some spece i put my fingur

in between his helment.can any one tell me how did u gye know its fit

perfect or not cause i have fix his appiontment today evening

again.please reply soon.thanks love all kiddoos

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

> For more plagio info

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Guest guest

Niki,

Normally after first getting the band or having an adjustment, the

band will fit big. Not huge, but loose. The rule of thumb is that

it should not move more than an inch or cover the eyes. My son has

gone through 3 adjustments and each time, for about a week-10 days,

it is loose. The band will slip forward when he looks down and will

shift side to side on his head. After a little bit of growth, it

stops moving and fits well by the next appointment. The band cannot

fit tightly after the adjustment or there will be no room for the

head to grow and round out! My son has had his starband for nearly 3

months and we have rarely had any red marks but his head has still

grown properly and we should be done next week.

hi.

> iamm new hear.yester day my son arnav got his star band.i

fill its not proper fit him .i did t saw any red spot on in head

after wearing.when i put him sleep i saw some spece i put my fingur

in between his helment.can any one tell me how did u gye know its fit

perfect or not cause i have fix his appiontment today evening

again.please reply soon.thanks love all kiddoos

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

> For more plagio info

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Guest guest

The bands typically are a little looser when they are new. Neither

of my kids had nearly enough space for me to stick my whole finger

in there though. How experienced is your ortho with bands?

Hopefully another STARband mom will chime in here soon :)

Good luck at the appointment tonight.

Mom to Dane 4 yo (DOC Grad) and Cece 10 mo (DOC 9/05)

>

> hi.

> iamm new hear.yester day my son arnav got his star band.i

fill its not proper fit him .i did t saw any red spot on in head

after wearing.when i put him sleep i saw some spece i put my fingur

in between his helment.can any one tell me how did u gye know its

fit perfect or not cause i have fix his appiontment today evening

again.please reply soon.thanks love all kiddoos

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

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Guest guest

The bands typically are a little looser when they are new. Neither

of my kids had nearly enough space for me to stick my whole finger

in there though. How experienced is your ortho with bands?

Hopefully another STARband mom will chime in here soon :)

Good luck at the appointment tonight.

Mom to Dane 4 yo (DOC Grad) and Cece 10 mo (DOC 9/05)

>

> hi.

> iamm new hear.yester day my son arnav got his star band.i

fill its not proper fit him .i did t saw any red spot on in head

after wearing.when i put him sleep i saw some spece i put my fingur

in between his helment.can any one tell me how did u gye know its

fit perfect or not cause i have fix his appiontment today evening

again.please reply soon.thanks love all kiddoos

>

>

> ---------------------------------

> FareChase - Search multiple travel sites in one click.

>

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sure are!!!! looove it! I hope we have no school tomorrow so we could play in

it.

chris

jbmistletoe <jbmistletoe@...> wrote:

I hope you are enjoying the snow.

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Hi Meagan,

Welcome to the group! Good luck at the casting, let us know how you

make out. Bring a lollipop with you to distract your baby.

-- In Plagiocephaly , " Meagan " <meaganhope@...> wrote:

>

> Hi my name is Meagan and I recently just joined this group. My

> daughter Eydie is six and a half months old and she is getting casted

> on Saturday the 8th. We were sent to a PT after her four month

> appointment for torticollis. After all the neccesary steps they are

> suggesting a Doc Band her head is 16cm off from side to side. My

> husband and I are relieved there is a way to fix this. However I am

> nervouse about the way people are going to react to her.Anyway I

> really love this group so far, It's nice to know we aren't the only

> ones out there. The decorating tips are also a plus.Glad to be

> aboard........Meagan McNichol

>

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> thanks for the tip!

> From: " stripes6060 " <taime@...>

> Date: 2006/04/05 Wed PM 05:46:40 EDT

> Plagiocephaly

> Subject: Re: hi all

>

>

Hi Meagan,

Welcome to the group! Good luck at the casting, let us know how you

make out. Bring a lollipop with you to distract your baby.

-- In Plagiocephaly , " Meagan " <meaganhope@...> wrote:

>

> Hi my name is Meagan and I recently just joined this group. My

> daughter Eydie is six and a half months old and she is getting casted

> on Saturday the 8th. We were sent to a PT after her four month

> appointment for torticollis. After all the neccesary steps they are

> suggesting a Doc Band her head is 16cm off from side to side. My

> husband and I are relieved there is a way to fix this. However I am

> nervouse about the way people are going to react to her.Anyway I

> really love this group so far, It's nice to know we aren't the only

> ones out there. The decorating tips are also a plus.Glad to be

> aboard........Meagan McNichol

>

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Hello Meagen

Welcome to the group. I just want to tell you that more people are

curious than rude. So if someone stares at you engadge in

converstation and tell them what the band is for. You will find out

that alot of folks are just afraid to ask.

Then ignore the rude ones and have FUN decorating the band. I think

that our kids are sooo cute in these bands and no one can tell me

otherwise. For example go to the W pictures and pull up Willow. That

is my daughter. take a look at her with the band and tell me she

wasn't adorable. :o) I think they all are.

Good luck with the casting and let us know how it went

Sandy Willow's mom

Torticollis resolved

Cranio Germany Grad

>

> Hi my name is Meagan and I recently just joined this group. My

> daughter Eydie is six and a half months old and she is getting

casted

> on Saturday the 8th. We were sent to a PT after her four month

> appointment for torticollis. After all the neccesary steps they are

> suggesting a Doc Band her head is 16cm off from side to side. My

> husband and I are relieved there is a way to fix this. However I am

> nervouse about the way people are going to react to her.Anyway I

> really love this group so far, It's nice to know we aren't the only

> ones out there. The decorating tips are also a plus.Glad to be

> aboard........Meagan McNichol

>

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Welcome to the group. Good luck at casting. Hopefully she doesn't

cry at all. Let us know how it goes.

Haylee

mom to andre doc band grad

>

> Hi my name is Meagan and I recently just joined this group. My

> daughter Eydie is six and a half months old and she is getting

casted

> on Saturday the 8th. We were sent to a PT after her four month

> appointment for torticollis. After all the neccesary steps they are

> suggesting a Doc Band her head is 16cm off from side to side. My

> husband and I are relieved there is a way to fix this. However I am

> nervouse about the way people are going to react to her.Anyway I

> really love this group so far, It's nice to know we aren't the only

> ones out there. The decorating tips are also a plus.Glad to be

> aboard........Meagan McNichol

>

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Guest guest

Hi Meagan. welcome to the group. People are, of course going to look

at you and your dd, but I believe we learn not to even notice when

someone is looking. And most people who say something to you are just

curious rather than trying to be rude, even though what they ask may

not come out right and may sound rude. You can have a snappy comeback

at the ready or you can just tell them what the band is really for and

most people just say " oh, " and keep on going. Good luck and let us

know how things are going.

Becky

, repo grad

Pittsburgh, PA

>

> Hi my name is Meagan and I recently just joined this group. My

> daughter Eydie is six and a half months old and she is getting

casted

> on Saturday the 8th. We were sent to a PT after her four month

> appointment for torticollis. After all the neccesary steps they are

> suggesting a Doc Band her head is 16cm off from side to side. My

> husband and I are relieved there is a way to fix this. However I am

> nervouse about the way people are going to react to her.Anyway I

> really love this group so far, It's nice to know we aren't the only

> ones out there. The decorating tips are also a plus.Glad to be

> aboard........Meagan McNichol

>

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awww sandy she is adorable!!!! thanx for the advice......Meagan

>

> From: " Sandy " <samipa74@...>

> Date: 2006/04/05 Wed PM 10:54:55 EDT

> Plagiocephaly

> Subject: Re: hi all

>

>

Hello Meagen

Welcome to the group. I just want to tell you that more people are

curious than rude. So if someone stares at you engadge in

converstation and tell them what the band is for. You will find out

that alot of folks are just afraid to ask.

Then ignore the rude ones and have FUN decorating the band. I think

that our kids are sooo cute in these bands and no one can tell me

otherwise. For example go to the W pictures and pull up Willow. That

is my daughter. take a look at her with the band and tell me she

wasn't adorable. :o) I think they all are.

Good luck with the casting and let us know how it went

Sandy Willow's mom

Torticollis resolved

Cranio Germany Grad

>

> Hi my name is Meagan and I recently just joined this group. My

> daughter Eydie is six and a half months old and she is getting

casted

> on Saturday the 8th. We were sent to a PT after her four month

> appointment for torticollis. After all the neccesary steps they are

> suggesting a Doc Band her head is 16cm off from side to side. My

> husband and I are relieved there is a way to fix this. However I am

> nervouse about the way people are going to react to her.Anyway I

> really love this group so far, It's nice to know we aren't the only

> ones out there. The decorating tips are also a plus.Glad to be

> aboard........Meagan McNichol

>

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,

Was at Sidney Bakers talk at the DAN conference..and the symtptons you mention

seem indicative of a gut/yeast problem...the holy grail of chelation is that you

heal the gut before chelation or the yeast will feed on the chelating agents

with no positive results. Am not an expert but my gut feeling is that you need

to stop chelation and face the gut. I have use Candex from pure essence and Pro

Gold from Kirkman in the past.

Know how you feel and best wishes for your son's quick turnaroud.\

Kind Rgds,

Chidi

<plzpray4myson@...> wrote:

Hi everyone,

I have a question about my son who is 3 years old, ASD and been

chelating since November. It's a little personal and I'll try not to

be graphic. Tonight when I was changing my sons diaper I noticed

that his penis is red. Just the area he urinates through, not the

entire penis. When I tried to do a touch test he began crying and is

awfully raw apparently. I tried to check for tenderness in

surounding areas and he still cried. I have never encountered this

before. I would think if it's that raw it would have bothered him to

urinate but he didnt cry or anything when he went in his diaper. (he

is not yet potty trained)

He had pneumonia in February and they put him on antibiotics. He was

okay for a couple weeks, we started the chelation again then he came

down with this cough that was the worst I'd ever seen. I had to take

him to the pedi again and they put him on more antibiotics saying

he " may " have some sort of viral issue. He is on Probiotics as well

but I wonder............could he have developed a yeast issue from

all the antibiotics. Is that what this redness could be? I was not

sure if the above is a sign of yeast. He has never had a yeast issue

so I am not really sure of the signs to look for.

Just wanted some experienced advice until I get to contact his DAN

doctor about post-poning his chelation treatments.

Thanks so much.....

=======================================================

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