Newbie with Questions

December 3, 2005

Thanks for everyone's replies and help.

>

> Challenge tests can be dangerous and really hard on the kids

because docs

> are using such high doses of the chelators.

We did 2 challenge tests. The first one, I hardly got any urine, so

we had to do it again (used a urine collector bag because my 2 1/2 yr

old isn't potty-trained yet & it leaked into his diaper). But

Nicolas is fine.

Also, a lot of kids don't pull

> mercury until months down the road, so this is not a good TEST of

whether or

> not the child got mercury.

Really? High mercury showed up in the test results. Interesting

that no lead showed up.

> Re: [ ] Re: Newbie with Questions

>

> > Hi Anne,

> > My son can't say " fan " either. He cannot pronounce the F sound.

> > Why is the challenge test not helpful? Is it not accurate

enough? We

> > already did the hair test, and a ton of other tests. The urine

toxic

> > elements test showed no lead. What do you mean most of you are

on here

> > because you listened to the doctor w/o doing research first.

Isn't that

> > what the DAN doctor is for? I can read up on this and do

research, but

> > I'm not a doctor and don't feel qualified on what method to use.

Why do

> > you all prefer DMSA to DMPS? Is it because it's FDA approved and

DMPS

> > isn't? The more I think about this, the more I am convinced that

he has

> > mercury in his brain... just listening to him trying to talk. I

think the

> > chelation is definitely worth a try.

> >

> > Patty

> >

> > anneecbrynn <abrynn@s...> wrote:

> > Hi Patty,

> >

> > I am chelating my son who has a diagnosis of Apraxia and would

have a

> > PDD diagnosis if I sought one. My son is 3.9. From what you have

> > said, my son sounds more severe than yours. At 2.5 my son

couldn't

> > say " fan " because he couldn't figure out how to motor plan the " f "

> > sound followed by the " an " sound. I have only chelated him for 8

> > rounds of low dose DMSA and ALA, but between that and

supplementing

> > him, my son is now speaking in sentences. There is an inorganic

> > element to his speech that we are overcoming, but that is no

surprise.

> > He can pronounce anything he is asked to pronounce, so it seems

to me

> > that we have seen the apraxia start to fall away. Interestingly,

the

> > more the apraxia falls away, the more PDDish he seems. I'll take

it!

> > I would definitely think you should consider chelating your

son....

> >

> > BUT, and this is a big BUT! You should do your research and be

> > careful. Most or many of us are on this board because we

listened to

> > the doctors without doing our research first. Don't make that

mistake

> > again just because the doctor you are dealing with is a DAN

doctor. I

> > use one too, but that is no substitute for research. I see DAN

docs

> > recommend dangerous stuff all the time. You need to know when to

say

> > yes and when to say no, and to drive your son's therapies

yourself. In

> > fact, many on this board chelate their kids without docs.

> >

> > The reason I bring this up so fervently in this post is because I

see

> > you did a DMSA challenge test on your son. Many people on this

board

> > think not only that this is not helpful for diagnosic purposes,

but is

> > downright dangerous in that you can cause metals in the system to

be

> > unnecessarily redistributed, including to the BRAIN. Not

something we

> > need to do. On this board it is generally recommended that you

opt in

> > for 5 rounds of low dose DMSA (with or without ALA) on a 3 day on

and

> > at least an equal amount of days off cycle. If you see progress,

then

> > chelation is a good idea. If you don't it might not be.

> >

> > Have you had a Doctor's Data hair test (for essential elements)

done?

> > This is an incredibly helpful test. And I would also have a

> > comprehensive blood test done (CBC, Comp. Metabolic Panel, Free

T3,

> > Free t4, ferritin). I am sure there is other stuff that I can't

think

> > of, but hopefully someone else will chime in on this. The blood

work

> > should be able to be done at your local lab.

> >

> > And finally, where apraxia is at issue, I would use DMSA and not

DMPS.

> > Some have found that many apraxic kids have high lead, and this

is true

> > for my son. DMSA is a very effective lead chelator (moreso than

DMPS,

> > I think).

> >

> > I am sure this is too much information, but hopefully it helps.

> > Further recommendations: buy Andy Cutler's Hair Test

Interpretations

> > book, read the files section, post any questions, and DON'T RELY

ON

> > ANYONE OTHER THAN YOURSELF to make decisions for your son.

> >

> > Sorry if this is rambling. I just feel strongly about this stuff.

> >

> > Best,

> >

> > Anne

> >

> >>

> >> Has anyone who has a child with speech apraxia done chelation?

If

> > so,

> >> did it help.....is your child speaking normally now? My 2 1/2

yr old

> >> was diagnosed with PDD and speech apraxia. He is at the very

mild

> > end

> >> of the spectrum, but he can't put more than 2 words together, and

> > just

> >> says single words. We've been seeing a DAN doctor and did the

> >> challenge test for chelation with DMPS. It showed a high amount

of

> >> mercury, yet it wasn't in the red zone, so I am not sure whether

to

> > do

> >> chelation. I would appreciate any feedback.

> >>

> >> Thanks,

> >> Patty

> >>

> >

> > =======================================================

> >

April 3, 2006

Hi

What I have learned you need to follow these steps to good health

Cleanse

Nourish

Heal

Here's an example would you run your car without ever changing your oil your

body is no different you have to flush it out.

About discontinuing your drugs that is a personal decision you will have to

make that call. It is not an absolute necessity to stop doing what your doing

but as you said take responsibility for your own health figure out what you are

doing wrong and change it.

At first when you get into this natural healing it is a bit overwhelming but

really it is pretty simple.

The closer and organic that you can eat from the earth is what going to give

you your optimum nutrition, just always remember fresh is always best.

The thing with gluten and sugars people eat way to many of those items it is

meant to be eaten in very small quantity what happens with Gluten/wheat it will

stick to your intestinal walls like wallpaper glue and it will build up over the

years to the point your body will no longer be able to absorb nutrients. The

good news is you can get rid of this problem. When I did a 37 day fast I really

worked hard on the colon and I got 14 ft worth of old dried black gunk out of

me, it was that unreal. This is a major reason why people are sick there not

flushing the organs. Only if people paid as much attention to there bodies as

they do there cars.

The way nuts and grains are meant for consumption is to soak them from 8-12

hours reason they have enzyme inhibitors so if you soak them your body can

utilize the enzyme properly a great cookbook is by Sally Fallon " Nourishing

Traditions " she explains the why and how it all began with food and why you

prepare it the way she explain, she is very knowledgeable.

I have healed myself of MS if you would like to read my first story go to

www.ginakopera.com . My son started with seizures 1 1/2 ago and know It has been

2 months since a simple headache, we are on a roll. Let me know if you have more

question.

agnesnow <agnesnow@...> wrote:

Hi all -

I just found this group from curezone where I've been looking into

some cleansing suggestions. Then got a bit nervous starting a

cleanse after reading that meds should be stopped, and also the

change in absorption that would occur. I hope someone might have

some suggestions on where to start, what works, and some of your own

personal experience.

Here's my story: I've had 3 seizures in my life. First when I was

19, after taking too many antihistamines for a cold, then driving all

night (no worries, I was not driving, but sleeping in the back seat

and as the sun came up it created a strobe effect through the

trees). I was diagnosed at that time. Then I had two in one year

when I was 24. One at the beginning of the year, another towards the

end. I've been on lamictal 300mg/day ever since. I'm now 30 and

thinking it's time to take some responsibility and action. I was

told that my type has to do with hormonal change, hence it started in

late puberty, and that in 80% of cases the epilepsy hides again

during another hormonal change later in life. I think in a way I've

been in denial about it all these years thinking I would be one of

the 80% - but i'm now realizing that even if I was, my seizures will

be with me always lurking somewhere. I just had another EEG, but

haven't gotten the results yet. In either case I am wanting to know

what I can do for myself, and maybe get off the meds at some point.

There's so much conflicting info out there, no gluten, yes gluten but

sprouted, no nuts, yes nuts for the good oils etc. I've also read

about the ketone diet for children, but that doesn't sound inherently

good for my body. What I've done so far over the years: Switched

completely over to organic foods, make sure I sleep enough, try to

keep stress levels down and keep my alcohol intake to a minimum.

Ideally, I'd like to find some kind of " partner " be it this group, or

perhaps an acupuncturist/naturopath that specializes in seizure

disorders. I live in San Francisco, so if anyone has suggestions,

I'd greatly appreciate it.

What do I do next?

Many thanks in advance your insight and advice (and for reading my

long post!).

Agnes

April 4, 2006

Hi -

Thanks so much for your reply. Is there a product or regimen you

recommend for colon cleanse? Should I do it the same time as a

parasite cleanse? I know the order should be colon, liver, kidney.

Is that correct?

Agnes

> Hi all -

>

> I just found this group from curezone where I've been looking into

> some cleansing suggestions. Then got a bit nervous starting a

> cleanse after reading that meds should be stopped, and also the

> change in absorption that would occur. I hope someone might have

> some suggestions on where to start, what works, and some of your

own

> personal experience.

>

> Here's my story: I've had 3 seizures in my life. First when I was

> 19, after taking too many antihistamines for a cold, then driving

all

> night (no worries, I was not driving, but sleeping in the back seat

> and as the sun came up it created a strobe effect through the

> trees). I was diagnosed at that time. Then I had two in one year

> when I was 24. One at the beginning of the year, another towards

the

> end. I've been on lamictal 300mg/day ever since. I'm now 30 and

> thinking it's time to take some responsibility and action. I was

> told that my type has to do with hormonal change, hence it started

in

> late puberty, and that in 80% of cases the epilepsy hides again

> during another hormonal change later in life. I think in a way

I've

> been in denial about it all these years thinking I would be one of

> the 80% - but i'm now realizing that even if I was, my seizures

will

> be with me always lurking somewhere. I just had another EEG, but

> haven't gotten the results yet. In either case I am wanting to know

> what I can do for myself, and maybe get off the meds at some point.

> There's so much conflicting info out there, no gluten, yes gluten

but

> sprouted, no nuts, yes nuts for the good oils etc. I've also read

> about the ketone diet for children, but that doesn't sound

inherently

> good for my body. What I've done so far over the years: Switched

> completely over to organic foods, make sure I sleep enough, try to

> keep stress levels down and keep my alcohol intake to a minimum.

>

> Ideally, I'd like to find some kind of " partner " be it this group,

or

> perhaps an acupuncturist/naturopath that specializes in seizure

> disorders. I live in San Francisco, so if anyone has suggestions,

> I'd greatly appreciate it.

>

> What do I do next?

>

> Many thanks in advance your insight and advice (and for reading my

> long post!).

> Agnes

>

April 4, 2006

The person for the colon Dr Schulze www.herbdoc.com and if you get his product

the formula #2 helps smother parasite too. What I did for my son after Dr Hulda

es http://curezone.com/diseases/parasites/clarkia.asp parasite program then

I did Dr Schulze Formula #2 to sweep up the left over parasites. He has not as

much as have a headache since and it has been 2 months, so it is looking good so

far. Yes the parasite can be done in conjuntion with the colon cleanse. You also

can get started on the kidney's at the same time just by drinking water with

lemon in it is an excellant kidney cleanser but I would wait till the end to

add herbs if your health is not in trouble. Let me know if you have any more

questions

agnesnow <agnesnow@...> wrote:

Hi -

Thanks so much for your reply. Is there a product or regimen you

recommend for colon cleanse? Should I do it the same time as a

parasite cleanse? I know the order should be colon, liver, kidney.

Is that correct?

Agnes

> Hi all -

>

> I just found this group from curezone where I've been looking into

> some cleansing suggestions. Then got a bit nervous starting a

> cleanse after reading that meds should be stopped, and also the

> change in absorption that would occur. I hope someone might have

> some suggestions on where to start, what works, and some of your

own

> personal experience.

>

> Here's my story: I've had 3 seizures in my life. First when I was

> 19, after taking too many antihistamines for a cold, then driving

all

> night (no worries, I was not driving, but sleeping in the back seat

> and as the sun came up it created a strobe effect through the

> trees). I was diagnosed at that time. Then I had two in one year

> when I was 24. One at the beginning of the year, another towards

the

> end. I've been on lamictal 300mg/day ever since. I'm now 30 and

> thinking it's time to take some responsibility and action. I was

> told that my type has to do with hormonal change, hence it started

in

> late puberty, and that in 80% of cases the epilepsy hides again

> during another hormonal change later in life. I think in a way

I've

> been in denial about it all these years thinking I would be one of

> the 80% - but i'm now realizing that even if I was, my seizures

will

> be with me always lurking somewhere. I just had another EEG, but

> haven't gotten the results yet. In either case I am wanting to know

> what I can do for myself, and maybe get off the meds at some point.

> There's so much conflicting info out there, no gluten, yes gluten

but

> sprouted, no nuts, yes nuts for the good oils etc. I've also read

> about the ketone diet for children, but that doesn't sound

inherently

> good for my body. What I've done so far over the years: Switched

> completely over to organic foods, make sure I sleep enough, try to

> keep stress levels down and keep my alcohol intake to a minimum.

>

> Ideally, I'd like to find some kind of " partner " be it this group,

or

> perhaps an acupuncturist/naturopath that specializes in seizure

> disorders. I live in San Francisco, so if anyone has suggestions,

> I'd greatly appreciate it.

>

> What do I do next?

>

> Many thanks in advance your insight and advice (and for reading my

> long post!).

> Agnes

>

March 1, 2007

I hope all your answers are posted to the group. I would love to see the

responses since I'm new to this group!

My 7 year old is my unofficially diagnosed Aspie/ADD. No food allergies,

had him tested after having child #2. But..I want to share with you what I

know about food allergies.

I have a " normal " son with severe food allergies, now age 4. Showed from

the beginning on breast milk. This site was on and now they

have their own web site. It is POFAKS, parents of food allergic kids. It

is awesome. They have an excellent recipe area. Sadly I'm not a member

since I use my same recipes over and over and have found what works for use.

We follow a dairy, soy, wheat, gluten, oats, peanuts, peas, all legumes,

eggs, bananas, strawberry free diet. There is a cost to join and will do so

again when we start doing more food allergy challenges and I feel like we

need more ideas and support. I could not have gotten through it without

that support system, they are awesome. Many will also share with you

behavior issues with food allergies too. Very interesting. We also had

eczema issues but with his diet, no issues. We also have seasonal maybe

cats too.

We also did a little of the Feingold for my 7 year old about 4 years ago.

Joined, got the material, didn't get totally there, but honestly, I didn't

see it affecting my son at all. Didn't see no changes with diet. Great

success stories and would still recommend. I think basic home cooking,

staying away from processed foods, fresh fruit and veggies. Just basic

food.

But I would like to ask. This book, Enzymes and Autism. Is this a good

place to start? We tried Daytrana for only three days last week, his

behavior at school, they saw no changes and I thought I had one ugly kid

each night. We need for focus, attention. He has no desire to complete a

task if at all challenging, won't focus, constant reminders, spacing out.

Thanks, I'm looking forward to learning more.

Tammy

Newbie with questions

Hello, My name is H. I just finished reading 's book on

Enzymes and Autism. I have a 6 year old son who is not autistic, but is

definitely ADHD. He also has some moderate to severe sensory issues (as does

his father and grandfather, interestingly enough...there has to be a genetic

predisposition with the SI, in my opinion). Jack also has some behaviors

that I could only classify as " odd " , and which may push him a little farther

onto the Autistic Spectrum, in my opinion. He has never been evaluated

formally, because he is homeschooled. He is in K this year, and already we

are having some big learning problems. He is extremely bright, but has

difficulty with attention, learning, focus, behavior, and his overall desire

to learn (i.e. he doesn't want to!).

He has had eczema since about 4 months old, at which time he was tested for

food/environmental allergies. He came up positive to just about everything

under the sun (wheat, corn, egg, dairy, peanut, molds, grasses, trees, cats,

dogs, etc.). Once I removed peanuts from my diet (he was breastfed for 2 1/2

years), the eczema was dramatically reduced, though not eliminated. He is

anaphylactically allergic to peanuts, but eats all other foods. We've

retested his allergies every year using blood tests, and new

foods/environmental allergens keep appearing. Just last month, we discovered

a latex, cantaloupe, and banana allergy. I understand that these three are

all connected...cross reactive, etc. He doesn't seem to suffer much effect

from eating these allergic foods, except for a very stuffy nose a lot of the

time, and of course, his behavior. I tried eliminating all these foods, but

it was too much for me. I just couldn't do it. However, we are

well-established on the Feingold diet, to which his behavior responded

dramatically. Incidentally, dh with sensory integration issues also

responded dramatically, so we are on FG as a family now.

SO. That brings me to my newbie questions! I've read the entire Enzymes

and Autism book, and I'm ready to begin. We are using classical homeopathy

with Jack, and we are seeing slow improvement in some areas. But I'm hoping

that enzymes will also be a piece of the puzzle for him, too. So here we go

with the millions of questions...

1. Could all his allergies be from leaky gut? Will enzymes likely help with

these multiple allergies if it heals the leaky gut?

2. Will enzymes help with his learning problems at all? I intend to pursue

other roads here...I think he may have some learning disabilities that need

diagnosis and treatment. But will enzymes help with the ADHD aspect of his

learning?

3. Where do I start? From my reading, I think that starting Peptizyde on the

low and slow method is what I should do first. Correct? Then adding

Zyme-Prime in slowly as well? I'm thinking I should avoid fruit based

enzymes, due to his salicylate sensitivity...correct?

4. When should I try the No-Phenol for the salicylate foods that Feingold

eliminates in Stage 2. He currently does not tolerate any stage 2 items, but

just being able to add these in would be like heaven for us. I can live the

rest of our lives without artificials, but would love to add in all the

stage 2 fruits and veggies. Anyone using No-Phenol for sals, would love you

experience and input here.

5. I'm assuming I should start with the Houston Nutriceuticals products

here. They were the ones mentioned most often in the book, and seem to be

the gold standard. Any reason not to?

6. I also want to start him on regular Culturelle...any good online

resources for the cheapest price? I've used it before for myself, but always

bought it at Walgreens..very expensive.

Thank you all SO much for indulging all my questions. Much thanks in

advance...and more questions to come, I'm sure.

in CA

Wife of 9 years to Phil

Mother to Emma (8), Jack (6), baby Graham b/d 6-2-05, and Liam

(11 months)

Homeschooling for our 4th year

Our blog about our kids: http://philhalpin.

<http://philhalpin.com/blog/kidsstuff.html> com/blog/kidsstuff.html

" Be gentle to all, and stern with yourself. " --St. Theresa of Avila

March 1, 2007

Hi ,

Welcome. I have been here for just a month or so and am facing the

same challenges you are. Your son sounds just like my 7 yr old who

can learn but doesn't care to in any conventional way. Hates to write

and can't pay attention long enough to a 'work' task to show what he

can do. We have tried meds, but they only worked for a little while

and I hated giving them to him.

We started enzymes because milk was always a problem for my son and

once we took milk out, we had great behavior improvements. I wanted

to try enzymes before I attempted a gluten free diet for my very

picky, very thin little man. We have been on for them about 6 weeks

with some improvement in appetite and but no major changes in

behavior yet. However, I believe he may have a yeast problem, so we

just started that and he got the flu. I'm not stopping there.. I

intend to investigate viruses, bacteria, and metal toxicity, but one

step at a time.

We started with pep... then added zyme... then added no fenol and he

now has one of each with every meal. I just started a yeast protocol

of threelac, which is the only thing I can get him to take. He then

got the flu and we see possible signs of yeast die off with the white

coating on his tongue actually getting worse. I am hopeful. Since

being on the yeast protocol, he has been a much happier child,

despite having the flu.

My next step is to try metal toxicity. That is a big issue as well

that some people have said needs to be cleared (if you have it)

before any yeast or gut issue will ever work in the long run.

Again, this is just what I have summized for my reading, I am a work

in progress. But just wanted you to know we are in the same boat and

I'm gonna keep trying until I find the answer. I would start with

the enzymes and don't look back.

Have a good one,

Laurie

>

> Hello, My name is H. I just finished reading 's book

on

> Enzymes and Autism. I have a 6 year old son who is not autistic,

but is

> definitely ADHD. He also has some moderate to severe sensory issues

(as does

> his father and grandfather, interestingly enough...there has to be

a genetic

> predisposition with the SI, in my opinion). Jack also has some

behaviors

> that I could only classify as " odd " , and which may push him a

little farther

> onto the Autistic Spectrum, in my opinion. He has never been

evaluated

> formally, because he is homeschooled. He is in K this year, and

already we

> are having some big learning problems. He is extremely bright, but

has

> difficulty with attention, learning, focus, behavior, and his

overall desire

> to learn (i.e. he doesn't want to!).

>

> He has had eczema since about 4 months old, at which time he was

tested for

> food/environmental allergies. He came up positive to just about

everything

> under the sun (wheat, corn, egg, dairy, peanut, molds, grasses,

trees, cats,

> dogs, etc.). Once I removed peanuts from my diet (he was breastfed

for 2 1/2

> years), the eczema was dramatically reduced, though not eliminated.

He is

> anaphylactically allergic to peanuts, but eats all other foods.

We've

> retested his allergies every year using blood tests, and new

> foods/environmental allergens keep appearing. Just last month, we

discovered

> a latex, cantaloupe, and banana allergy. I understand that these

three are

> all connected...cross reactive, etc. He doesn't seem to suffer much

effect

> from eating these allergic foods, except for a very stuffy nose a

lot of the

> time, and of course, his behavior. I tried eliminating all these

foods, but

> it was too much for me. I just couldn't do it. However, we are

> well-established on the Feingold diet, to which his behavior

responded

> dramatically. Incidentally, dh with sensory integration issues also

> responded dramatically, so we are on FG as a family now.

>

> SO. That brings me to my newbie questions! I've read the entire

Enzymes

> and Autism book, and I'm ready to begin. We are using classical

homeopathy

> with Jack, and we are seeing slow improvement in some areas. But

I'm hoping

> that enzymes will also be a piece of the puzzle for him, too. So

here we go

> with the millions of questions...

>

> 1. Could all his allergies be from leaky gut? Will enzymes likely

help with

> these multiple allergies if it heals the leaky gut?

>

> 2. Will enzymes help with his learning problems at all? I intend to

pursue

> other roads here...I think he may have some learning disabilities

that need

> diagnosis and treatment. But will enzymes help with the ADHD aspect

of his

> learning?

>

> 3. Where do I start? From my reading, I think that starting

Peptizyde on the

> low and slow method is what I should do first. Correct? Then adding

> Zyme-Prime in slowly as well? I'm thinking I should avoid fruit

based

> enzymes, due to his salicylate sensitivity...correct?

>

> 4. When should I try the No-Phenol for the salicylate foods that

Feingold

> eliminates in Stage 2. He currently does not tolerate any stage 2

items, but

> just being able to add these in would be like heaven for us. I can

live the

> rest of our lives without artificials, but would love to add in all

the

> stage 2 fruits and veggies. Anyone using No-Phenol for sals, would

love you

> experience and input here.

>

> 5. I'm assuming I should start with the Houston Nutriceuticals

products

> here. They were the ones mentioned most often in the book, and seem

to be

> the gold standard. Any reason not to?

>

> 6. I also want to start him on regular Culturelle...any good online

> resources for the cheapest price? I've used it before for myself,

but always

> bought it at Walgreens..very expensive.

>

> Thank you all SO much for indulging all my questions. Much thanks in

> advance...and more questions to come, I'm sure.

>

> in CA

> Wife of 9 years to Phil

> Mother to Emma (8), Jack (6), baby Graham b/d 6-2-05, and Liam

> (11 months)

> Homeschooling for our 4th year

>

> Our blog about our kids: http://philhalpin.com/blog/kidsstuff.html

>

> " Be gentle to all, and stern with yourself. " --St. Theresa of Avila

>

March 1, 2007

My best advise for parents beginning this journey is to find a good

DAN doctor (there are sites that list them by state. Google 'DAN

doctor'). Whether or not your child is on the Autism Spectrum or

some other diagnosis, the symptoms and problems overlap. A DAN

doctor can really help serve as a guide, but will not replace your

need to constantly read and research. Best of luck,

Kim

Western Michigan University

Office of University Relations

300 Walwood Hall

387-8404

Fax: 387-8422

>>> otis_floyd <lrfwood@...> 03/01/07 11:09 AM >>>

Hi ,

Welcome. I have been here for just a month or so and am facing the

same challenges you are. Your son sounds just like my 7 yr old who

can learn but doesn't care to in any conventional way. Hates to

write