Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hi , I'm certain I had it as a child, precipitated by the stress of losing an older brother to a train accident. Although GD in children is rarely diagnosed, the number of children diagnosed with GD appears to be escalating. This could be due, though, to better testing. For instance, thyroid lab tests were very crude, with only a test for protein bound iodine available until the 1970's. I hadn't ever heard of the onset usually being late in life. The usual onset is women between the ages of 20-40. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hi Amy, I'm so happy you were able to talk to , keeping my fingers crossed that he's home real soon!!!!! Good luck at your doctor's appointment, and have a fun weekend!!!! maria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 > Hi , > I'm certain I had it as a child, precipitated by the stress of losing an older brother to a train accident. > I hadn't ever heard of the onset usually being late in life. The usual onset is women between the ages of 20-40. Hi Elaine, I'm very sorry for your loss. It's a very hard thing when children die. It's just not supposed to be that way, you know? What kind of things do you remember that make you feel you had it back then? I didn't mean to say the onset was usually late in life, I said usually later in life. Meaning later in life than childhood. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hi , I had severe light sensitivity as a child and a hyper immune system. When I began having periods, I never had more than once a year. My neighborhood doctor told me to have my basal metabolism rate tested, but I never did. And I had the typical Graves' stare so people, especially teachers, always commented that I looked like I was going to cry. I think my worst symptoms were in my mid 20's after having my children. Then, at 5'8 " my weight dropped to 112. I developed high blood pressure but my doc only ordered a T4 (TSH's were pretty new then). My T4 was high, but in the normal range so he put me on diuretics which helped my puffy eyes and beta blockers which reduced my palpitations. By the time I was diagnosed with Graves' most of my hyper symptoms were gone. My weight was normal and I was off all blood pressure meds. When I was eventually diagnosed with Graves' my T4 and T3 were both on the high side of normal, but my TSH was suppressed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hi , It was me that lost a child. After that and we moved back east I just started not feeling good...constant colds, then tremors all the hyper stuff that I ignored...I'm one that firmly believe(s)(ed) one can talk themselves out of most things...but not this. But when I was a child my heat sensitivity, an unexplained illness that kept me out of school for 2 months with no answers and my eyes have always been ultra sensitve to any light...so I think it is a possiblily that I have had it since childhood... Undiagnosed GD may also be the reason my pregnancies were never easy. Something new I have been thinking about. Have a good weekend. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Elaine, What's this? I was a super skinny kid, and spent a lot of time staring, so much so that it was frequently commented upon. I always thought it psychological, part of the attempt to deal with a totally miserable childhood by walling myself off and " closing " my vision to see only what was directly in front of me. Somehow that was comforting. It was also the only time my jiggly legs were quiet, I think. Terry > From: daisyelaine@... > Reply-To: graves_support > Date: Sat, 28 Apr 2001 22:54:34 EDT > To: graves_support > Subject: Re: Re: (unknown) > > I had the typical Graves' stare Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 Hi Terry, That stare you mention sounds typically Gravesian. So do the jiggly legs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 What do ya'll mean by " jiggly legs " ?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 I see (and I understand!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 Elaine, Very very interesting. Thanks for documenting that. I think we should all document things like that. We could work on addressing the fact that GD is rarely considered in children if we could show evidence that there are a group of early symptoms. Light sensitivity is a good one. I wonder if others had that symptom as children? I didn't. What do you mean by a hyper immune system? What would be the symptoms of that? Interesting about the lack of peroids. I always had plenty of them and heavy. Yes, the worst seems to come in full womanhood. I am 5'8 " too and when I stopped working I was 111 lbs. I remember the doctor at work (public health) said my blood levels were those they would expect to see in a starving person. And there was a long peroid of time there that I felt I was dying. There is no need for this, if we can get diagnosed earlier! I would like to see if we can find a way to identify this much earlier for future generations. Our grand kids need us to work on this. > Hi , > I had severe light sensitivity as a child and a hyper immune system. When I > began having periods, I never had more than once a year. My neighborhood > doctor told me to have my basal metabolism rate tested, but I never did. And > I had the typical Graves' stare so people, especially teachers, always > commented that I looked like I was going to cry. I think my worst symptoms > were in my mid 20's after having my children. Then, at 5'8 " my weight dropped > to 112. I developed high blood pressure but my doc only ordered a T4 (TSH's > were pretty new then). My T4 was high, but in the normal range so he put me > on diuretics which helped my puffy eyes and beta blockers which reduced my > palpitations. By the time I was diagnosed with Graves' most of my hyper > symptoms were gone. My weight was normal and I was off all blood pressure > meds. When I was eventually diagnosed with Graves' my T4 and T3 were both on > the high side of normal, but my TSH was suppressed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 I guess I have had GD since a very, very young age then. Thanks, Terry > From: daisyelaine@... > Reply-To: graves_support > Date: Sun, 29 Apr 2001 10:55:05 EDT > To: graves_support > Subject: Re: Re: (unknown) > > Hi Terry, > That stare you mention sounds typically Gravesian. So do the jiggly legs. > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 The always-moving-drive-your-mother-mad, swinging perpetual motion machine. > From: k9mom1@... > Reply-To: graves_support > Date: Sun, 29 Apr 2001 11:02:44 EDT > To: graves_support > Subject: Re: Re: (unknown) > > What do ya'll mean by " jiggly legs " ?? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 OMG!!! The jiggly legs are Gravesian?!?!?! I have done that since I could walk and whenever I was sitting and my feet touched the ground they were going a mile a minute!!! They still do at times, even when I'm sitting cross legged on the couch I can get them going LOL Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 Terry, Mine are not the swinging...my are toes to the floor and bouncing LOL but your right, it was a drive you mother mad and everyone else along with her moment :-) Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 Talking about maybe having symptoms as a child. I never was real thin, but I wasn't an overweight child. My sister tells me I was just perfect. I never was one to sleep well, always up late because I couldn't sleep. I was active always doing something When I ran alot I would get side aches. Would drive my parents nuts with cleaning because I had to keep busy. Now, when my illness got bad that's when I, my husband and family knew something was wrong, because I couldn't keep order. This neat, perfect, picky person couldn't organize because I couldn't think straight. Also I had the light sensitive eyes as a child and irregular periods. Never had a regular period until I was on ATD's. I can't turn back the clock and say, " Oh, if only I would have listened to my sister, my husband, my family and friends. " But, I didn't and that can't be changed now. What I can do is tell people my story and hope and pray they don't have to go through what I did. The biggest thing I think when it comes to not really seeking better medical help, is I was convinced that I was dying and I didn't want to find a better doctor to tell me the truth. Now I've experienced that part in my life, a doctor telling me I could die. It wasn't easy, but I survived the ordeal and can go on. Somehow you always seem to deal with what life gives you. But I hope I can say it's made me stronger, I know a little more than I did than. Most important I learned I can " fire " a doctor if I don't like what they are doing. My whole purpose of being here is if just one person don't have to suffer like I did, it is worth telling them and I hope I know more now than I did than. The biggest thing I've found is having support. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 Hi , By hyper immune system I mean that I had allergies to lots of things. Every summer I would get poison ivy and I had many episodes of anaphylaxis. I still have a hyper immune system, but now I have an idea of what to avoid and I always carry my epinephrine kit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 Hi Elaine, If your immune system was hyper and was causing allergies, would that make allergies an autoimmune disease? Laren > Hi , > By hyper immune system I mean that I had allergies to lots of things. Every > summer I would get poison ivy and I had many episodes of anaphylaxis. I still > have a hyper immune system, but now I have an idea of what to avoid and I > always carry my epinephrine kit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 Hi , Allergies aren't recognized as autoimmune diseases although unless allergic asthma develops. Allergic asthma is an autoimmune disease. Also, allergies are known to trigger autoimmune disease and exacerbate symptoms. In Japan, allergies to cedar pollen are considered the primary trigger for Graves' disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 lol, this is soooo funny. my legs have bounced like this since i was little. my mother always went nuts about it, especially at the dinner table. it still drives my hubby nuts because sometimes i shake the whole couch or bed and even after almost 20 years of exposure, he's still can't handle it. lol donna --- Jody Spitale wrote: > OMG!!! The jiggly legs are Gravesian?!?!?! I have > done that since I could > walk and whenever I was sitting and my feet touched > the ground they were > going a mile a minute!!! They still do at times, > even when I'm sitting > cross legged on the couch I can get them going LOL > Jody > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Donna!!!!!!!!!!!! Is that what has happened to mine too? If I drag it back up where it should be...do you think my middle will go down? LOL You make me smile, thanks! I do hope all is well for you, so don't you forgot to follow up please! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Hi Sara, Yes most of us have and some still do, the headaches. What has your husband been diagnosed with? Would you like to share his other symptoms with us? We are a wonderful group here and lots of caring and knowledgeable people who will do all they can to help answer your questions. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Well, he has not be diagnosed, because doctors have been saying since he was 13 that it is one thing or another, and the closest diagnosis has been Lupus, but he does not quite fit that either. They just put him there because they couldn't decide on anything else, and it seems to be somesort of autoimmune problem. He does not have headaches, in the plural sense. He has had one headache since around puberty. He is very thin, not emaciated tho. He has constant diahrrea(sp?) and stomach upset, has a dairy allergy, sometimes the skin around his eyes turns scaley, dry and puffy, for some unknown reason. He has arthritis, lots of trouble sleeping, tho that and the stomach problems COULD be associated with a constant headache. The doctors don't know where to go and he has given up. So since I'm relatively new to this, I've started my own search. Into everything I can. And since I've already had one " One in a million " disease touch my life, I'm hoping this will be something known, and I can help my husband in anyway that I can. Sara > Hi Sara, > Yes most of us have and some still do, the headaches. What has your husband > been diagnosed with? Would you like to share his other symptoms with us? > > We are a wonderful group here and lots of caring and knowledgeable people > who will do all they can to help answer your questions. > > Take care, > Jody > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Sara, Get ALL of your husbands lab tests and share them. There are others here who may be able to at least point you in the right direction. It can not have been a fun life for him if he has been struggling with all of this since his teenage years. Do you know if they have done a full thyroid panel (not just a tsh) on him, or antibody testing, if so for which ones? It will take some doing to get copies of his lab tests for as far back as you possibly can...and from now on, when he has blood drawn, make sure they know you want a copy of them. We have to go and pick them up at the lab here...and hubby can't pick mine up nor can I get his...but I get them regularly now. Hang in there Sara and I will keep you and hubby in my prayers. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Sara, I dont' know where you are, but if there's a good acupuncturist/herbalist (not just acupuncturist; he needs the herbs the most) you should be able to get him treated and healed. This kind of stuff, that the docs have no clue about, is what Chinese medicine seems to most effectively treat. If you're anywhere near the SF bay area, I will recommend my husband, who's one of the best. Terry > From: sneezr@... > Reply-To: graves_support > Date: Wed, 06 Jun 2001 22:41:12 -0000 > To: graves_support > Subject: Re: (unknown) > > Well, he has not be diagnosed, because doctors have been saying since > he was 13 that it is one thing or another, and the closest diagnosis > has been Lupus, but he does not quite fit that either. They just put > him there because they couldn't decide on anything else, and it seems > to be somesort of autoimmune problem. He does not have headaches, in > the plural sense. He has had one headache since around puberty. He > is very thin, not emaciated tho. He has constant diahrrea(sp?) and > stomach upset, has a dairy allergy, sometimes the skin around his > eyes turns scaley, dry and puffy, for some unknown reason. He has > arthritis, lots of trouble sleeping, tho that and the stomach > problems COULD be associated with a constant headache. The doctors > don't know where to go and he has given up. So since I'm relatively > new to this, I've started my own search. Into everything I can. And > since I've already had one " One in a million " disease touch my life, > I'm hoping this will be something known, and I can help my husband in > anyway that I can. > Sara > > >> Hi Sara, >> Yes most of us have and some still do, the headaches. What has > your husband >> been diagnosed with? Would you like to share his other symptoms > with us? >> >> We are a wonderful group here and lots of caring and knowledgeable > people >> who will do all they can to help answer your questions. >> >> Take care, >> Jody >> _________________________________________________________________ >> Get your FREE download of MSN Explorer at http://explorer.msn.com > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2001 Report Share Posted June 7, 2001 Terry, Does your husband work with GO? F > >> Hi Sara, > >> Yes most of us have and some still do, the headaches. What has > > your husband > >> been diagnosed with? Would you like to share his other symptoms > > with us? > >> > >> We are a wonderful group here and lots of caring and knowledgeable > > people > >> who will do all they can to help answer your questions. > >> > >> Take care, > >> Jody > >> _________________________________________________________________ > >> Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not > > intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.