Re: (unknown)

[Guest guest]

You can post now, Kim. Welcome to the group.

Pam in Niceville

From: kroberts10@...

Date: 2002/09/04 Wed PM 12:12:30 EDT

To: GastricBypass-InfoCentral

Subject: (unknown)

[Guest guest]

Personally, my suggestion is to wait until the new program is released by

Weight Watchers.... According to the last WW magazine, their next issue will

explain the new system. It doesn't sound like it will be changing all that

much. It still uses the points system, just that we have a total daily

points and that we can use " flex " points instead of banking points.

Basically, they've banked the points over the total daily number and we can

use them whenever.

> (unknown)

>

>

> ok I'm confused..with this new system!!!! I just don't get it.

>

>

>

>

[Guest guest]

Personally, my suggestion is to wait until the new program is released by

Weight Watchers.... According to the last WW magazine, their next issue will

explain the new system. It doesn't sound like it will be changing all that

much. It still uses the points system, just that we have a total daily

points and that we can use " flex " points instead of banking points.

Basically, they've banked the points over the total daily number and we can

use them whenever.

> (unknown)

>

>

> ok I'm confused..with this new system!!!! I just don't get it.

>

>

>

>

[Guest guest]

Just a thought Dan.....groin pain can sometimes emanate from the hip. My

son, who possibly has IGAN, has juvenile arthritis and his hip arthritis

and excess fluid in the hip joints manifests itself in groin pain.

, RN

On Fri, 10 Oct 2003 20:24:01 -0000 " dan02254 "

writes:

>

> > Welcome back, Dan.

> >

> > Good luck with your latest lab results. I don't know about the

> weight loss.

> > A well-managed IgAN patient shouldn't be losing weight. Eating

> enough

> > protein and calories? Not sure what the groin pain could be, but I

>

> guess I

> > had vaguely similar pain when I had a prostate infection.

> >

> > Pierre

> >

> > -------------------------------------------------------------

> Hi Pierre, very nice to hear from you again and best wishes.

> Life must be very difficult on dialysis and I really admire

> your courage and great will to fight on. May God be with you.

> I wish I had only a fraction of your determination.

>

> I am afraid this weight loss and groin pain of mine do not emanate

> from my IgAN. Rather I am extremely worried lest something more

> serious is underway. I have recently checked up my bladder and

> prostate with a urologist and it appears these are fine. Then I paid

> a

> visit to a gastroenterologist for colorectal screening and he

> suggested a colonoscopy. I am still thinking about it. I know I have

>

> to do it eventually because such symptoms are somehow quite serious,

>

> but then I hesitate to undergo such abominable treatment. I pray to

>

> God this isn't after all something more serious than the kidney

> disease I already have. I also told my neph about it(at a state

> owned

> hospital)and he prescribed some blood tests to determine the value

> of

> some so called tumour markers in my serum. These tests are carried

> out

> by the Radio-Isotope department of the hospital and, believe it or

> not, results, they told me, will be out in about a month from now!!

>

> Some public health service indeed exists in this country! I hope I

> may

> still be alive by then

>

> Best regards and wishes to all,

> Dan.

>

>

>

>

>

>

[Guest guest]

Dan,

I had a colonoscopy done a while back. It's no big deal really. The actual

procedure doesn't take long either - fast in, fast out

Pierre

(unknown)

-------------------------------------------------------------

> Hi Pierre, very nice to hear from you again and best wishes.

> Life must be very difficult on dialysis and I really admire

> your courage and great will to fight on. May God be with you.

> I wish I had only a fraction of your determination.

>

> I am afraid this weight loss and groin pain of mine do not emanate

> from my IgAN. Rather I am extremely worried lest something more

> serious is underway. I have recently checked up my bladder and

> prostate with a urologist and it appears these are fine. Then I paid a

> visit to a gastroenterologist for colorectal screening and he

> suggested a colonoscopy. I am still thinking about it. I know I have

> to do it eventually because such symptoms are somehow quite serious,

> but then I hesitate to undergo such abominable treatment. I pray to

> God this isn't after all something more serious than the kidney

> disease I already have. I also told my neph about it(at a state owned

> hospital)and he prescribed some blood tests to determine the value of

> some so called tumour markers in my serum. These tests are carried out

> by the Radio-Isotope department of the hospital and, believe it or

> not, results, they told me, will be out in about a month from now!!

> Some public health service indeed exists in this country! I hope I may

> still be alive by then

>

> Best regards and wishes to all,

> Dan.

>

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Welcome to the group, .

Sounds a bit like my early years with IgAN.

50% is not as bad as it could be, but it does indicate you've already lost a

fair amount of kidney function. People are often diagnosed sooner nowadays,

but there's often nothing to find until about 50% kidney function, so many

people end up being diagnosed with IgAN when they are at that level of

function. Before that, it's too easy to dismiss small amounts of blood

and/or protein in the urine as not being of any great significance. It's at

about that point that they first found my BP was high and that I had my

biopsy in '93.

Pierre

(unknown)

> I was diagnosed with IgA earlier this year. I was not aware of any

> health problems but a routine medical 12 years ago picked up blood

> in my urine and I had a kidney biopsy. At the time I was told there

> was nothing wrong and I was not put on any medication nor was there

> any follow up. Eighteen months ago another routine medical indicated

> that I now have high blood pressure. Eventually IgA was diagnosed,

> though I have not yet had the biopsy needed to confirm the diagnosis.

>

> I feel fit and take medication for blood pressure, plus asprin and

> fish oil. At my last appointment I was told that my kidneys are

> performing at about 50%. Not sure if this good or bad. All this has

> been quite a shock and rather perplexing.

>

> Thank you for the site. It's good hear how others cope with the

> disease. Any comments would be very welcome.

>

> (London U.K.)

>

[Guest guest]

Hi ,

Welcome! I'm sorry you have reason to be here, but very glad you found your

way here. I don't have anything to add to Pierre's analysis - I just wanted

to say I hope you find this site as helpful as I have over the past year.

The folks here have been enormously helpful on my journey with this disease

(my 12 year old - also named - is the kidney patient). I trust you

will find this a warm and friendly place.

May I ask what the aspirin is about?

Cy

Re: (unknown)

>

> ----- >

> > I was diagnosed with IgA earlier this year. I was not aware of any

> > health problems but a routine medical 12 years ago picked up blood

> > in my urine and I had a kidney biopsy. At the time I was told there

> > was nothing wrong and I was not put on any medication nor was there

> > any follow up. Eighteen months ago another routine medical indicated

> > that I now have high blood pressure. Eventually IgA was diagnosed,

> > though I have not yet had the biopsy needed to confirm the diagnosis.

> >

> > I feel fit and take medication for blood pressure, plus asprin and

> > fish oil. At my last appointment I was told that my kidneys are

> > performing at about 50%. Not sure if this good or bad. All this has

> > been quite a shock and rather perplexing.

> >

> > Thank you for the site. It's good hear how others cope with the

> > disease. Any comments would be very welcome.

> >

> > (London U.K.)

> >

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

Hi

[Guest guest]

24 hour blood pressure monitor is a really interesting thing. I wore one

twice over a 10 year period. Both times, I averaged out at about 170/110.

But the interesting part was seeing the graph, and how BP follows a regular

pattern over 24 hours.

Pierre

(unknown)

> Thank you for all the messages of welcome. It's good to hear about

> the experiences of others and to be heard.

>

> I'll certainly enquire about the asprin at my next appointment.

>

> Arran, Thanks for the information about St 's. I'm currnetly at

> Charing Cross Hammersmith but I get to see a different Registrar

> every time I go (I've been attending a year and have met the

> Consultant only once.)Recently a mistake was made with my medication

> and it caused me to question the professional advice I am receiving.

> Not sure what, if anything, I should do.

>

> Last Thursday I wore a 24hour blood pressure monitor and am waiting

> to hear how that went.

>

> Best wishes,

>

[Guest guest]

Hi Shobha,

That is fantastic news that you are free of IgAN symptoms! You must be

overjoyed!

It is nice to have lurkers posting, so I wanted to just say welcome to our

rather large UK contingency.

[Guest guest]

Just go to the page for the group --

http://groups.yahoo.com/groups/iga-nephropathy

<http://groups.yahoo.com/groups/iga-nephropathy> and click on Join

Group -- then you can send messages. However, you will be moderated for

a few days until we are sure that you understand the kinds of discourse

that we can allow.

Walt

_____

From: Melli Shpinelli

Sent: Thursday, November 20, 2003 3:45 PM

To: iga-nephropathy

Subject: (unknown)

I would like to start sending messages to this group

Thank you.

_________________________________________________________________

Tired of spam? Get advanced junk mail protection with MSN 8.

http://join.msn.com/?page=dept/bcomm

<http://join.msn.com/?page=dept/bcomm & pgmarket=en-ca & RU=http%3a%2f%2fjoi

n.msn.com%2f%3fpage%3dmisc%2fspecialoffers%26pgmarket%3den-ca>

& pgmarket=en-ca & RU=http%3a%2f%2fjoin.msn.com%2f%3fpage%3dmisc%2fspecialo

ffers%26pgmarket%3den-ca

[Guest guest]

Dear Melli,

Welcome, Welcome, Welcome to the Group. There are many people who are

on this site for various reasons. Some because a love on has IGA, some

because they have it and some who are going to be donors. Whatever the

reason you have for joining just know that you are welcome to chime in

anytime that you feel the urge. We are a welcoming and supportive group

here. It would be interesting to know your relationship with the

disease. If you have IGA it would help us to know what your creatinine

level is. I think it is also interesting to know how it was found that

you have the disease. BUT it is your decision on how much you want to

share. You can be involved with this group in what ever way that you

want. We have some very knowledgeable members in this group who can

give you some very good information.

Again welcome

(unknown)

I would like to start sending messages to this group

Thank you.

_________________________________________________________________

Tired of spam? Get advanced junk mail protection with MSN 8.

http://join.msn.com/?page=dept/bcomm

<http://join.msn.com/?page=dept/bcomm & pgmarket=en-ca & RU=http%3a%2f%2fjoi

n.msn.com%2f%3fpage%3dmisc%2fspecialoffers%26pgmarket%3den-ca>

& pgmarket=en-ca & RU=http%3a%2f%2fjoin.msn.com%2f%3fpage%3dmisc%2fspecialo

ffers%26pgmarket%3den-ca

[Guest guest]

Oh heck, Walt. We are only followed for a few days?

:-)

(unknown)

I would like to start sending messages to this group

Thank you.

_________________________________________________________________

Tired of spam? Get advanced junk mail protection with MSN 8.

http://join.msn.com/?page=dept/bcomm

<http://join.msn.com/?page=dept/bcomm

<http://join.msn.com/?page=dept/bcomm & pgmarket=en-ca & RU=http%3a%2f%2fjoi

> & pgmarket=en-ca & RU=http%3a%2f%2fjoi

n.msn.com%2f%3fpage%3dmisc%2fspecialoffers%26pgmarket%3den-ca>

& pgmarket=en-ca & RU=http%3a%2f%2fjoin.msn.com%2f%3fpage%3dmisc%2fspecialo

ffers%26pgmarket%3den-ca

[Guest guest]

Hi Melli,

It's always good to have new member! If you feel comfortable and you have

a chance, can you please " introduce yourself " ? When were you diagnosed?

Where is your disease at now?

We look forward to hearing from you!

Cy

(unknown)

> I would like to start sending messages to this group

> Thank you.

>

> _________________________________________________________________

> Tired of spam? Get advanced junk mail protection with MSN 8.

>

http://join.msn.com/?page=dept/bcomm & pgmarket=en-ca & RU=http%3a%2f%2fjoin.msn.com\

%2f%3fpage%3dmisc%2fspecialoffers%26pgmarket%3den-ca

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

[Guest guest]

> Hi H Stuthridge,

Welcome to our group. We look forward to getting to know you!

[Guest guest]

Welcome Helen.

All you have to do is to start replying to messages, or to create and send

your own. If you run into any problems, don't hesitate to let us know.

Looking forward to hearing from you.

Pierre

(unknown)

> This is to confirm that I would like to start sending

> emails in your group.

>

> Thank you

>

> H Stuthridge

>

[Guest guest]

Thanks Martha. I'll give that a go when I've finished doing the work I

have to

> Stay away from lots of salts while feet are swollen and see your

> doctor you might need water pills to help control the swelling. as of

> yet i haven't found anything that works fast. But if you lay with

> your feet above your head that helps.

> martha

[Guest guest]

Try a pancake rolled up around the pressed cottage cheese. That gets some

protein into it. Cook it a while longer on low heat to warm the cheese then

top with honey.

> I made the peanut butter pancakes for Zach today and he gobbled them

> up!!!  Very yummy with a little honey on top.

Carol F.

---------

Toronto , Celiac SCD 2 3/4 years

There is no substitute for the right food!

[Guest guest]

I've never tried honeydew, and this doesn't say what category of

salicylates it would have, but this Feingold lists it under allowable, so

it's worth a try - I might try it with Luke, we could use more variety, too.

Feingold's recommendations don't always hold true for Luke so some things

are just trial and error with your child.

http://www.energywave.com/what_ails_you/diets_and_weight_loss/feingold_associati\

on_elimination.htm

GL!

in NC, USA

mom to Luke, 5, Asperger's/low-salicylate;

, 3;,22 mos;

SCD going since 1/26/04

No Mom is an island. but sometimes she needs one!

[Guest guest]

I've never tried honeydew, and this doesn't say what category of

salicylates it would have, but this Feingold lists it under allowable, so

it's worth a try - I might try it with Luke, we could use more variety, too.

Feingold's recommendations don't always hold true for Luke so some things

are just trial and error with your child.

http://www.energywave.com/what_ails_you/diets_and_weight_loss/feingold_associati\

on_elimination.htm

GL!

in NC, USA

mom to Luke, 5, Asperger's/low-salicylate;

, 3;,22 mos;

SCD going since 1/26/04

No Mom is an island. but sometimes she needs one!

[Guest guest]

I've never tried honeydew, and this doesn't say what category of

salicylates it would have, but this Feingold lists it under allowable, so

it's worth a try - I might try it with Luke, we could use more variety, too.

Feingold's recommendations don't always hold true for Luke so some things

are just trial and error with your child.

http://www.energywave.com/what_ails_you/diets_and_weight_loss/feingold_associati\

on_elimination.htm

GL!

in NC, USA

mom to Luke, 5, Asperger's/low-salicylate;

, 3;,22 mos;

SCD going since 1/26/04

No Mom is an island. but sometimes she needs one!

[Guest guest]

Hi,

(unknown)

" Did anyone know the answer regarding the honeydew melon - high sal/phenol?

I can't find any info. either and would like to incorporate it into "

foods.

Dana - - 3 in July, no dx - tx for language/sensory stuff - SCD 2

months

We have been Low sal's for quite a while now, way before SCD. Currently I do

not use any uncooked fruit yet. But prior to SCD we always used the Honeydew for

my son without any problems. I never gave a very big serving so I do not know

the point of tolerance. But the main reason of not big servings with any fruit

was due to sugar since we also were watching sugar intake due to yeast. So at

moderate amounts it did not give my son any noticiable reaction.

__________________________________

[Guest guest]

Hi,

(unknown)

" Did anyone know the answer regarding the honeydew melon - high sal/phenol?

I can't find any info. either and would like to incorporate it into "

foods.

Dana - - 3 in July, no dx - tx for language/sensory stuff - SCD 2

months

We have been Low sal's for quite a while now, way before SCD. Currently I do

not use any uncooked fruit yet. But prior to SCD we always used the Honeydew for

my son without any problems. I never gave a very big serving so I do not know

the point of tolerance. But the main reason of not big servings with any fruit

was due to sugar since we also were watching sugar intake due to yeast. So at

moderate amounts it did not give my son any noticiable reaction.

__________________________________

[Guest guest]

Hi,

(unknown)

" Did anyone know the answer regarding the honeydew melon - high sal/phenol?

I can't find any info. either and would like to incorporate it into "

foods.

Dana - - 3 in July, no dx - tx for language/sensory stuff - SCD 2

months

We have been Low sal's for quite a while now, way before SCD. Currently I do

not use any uncooked fruit yet. But prior to SCD we always used the Honeydew for

my son without any problems. I never gave a very big serving so I do not know

the point of tolerance. But the main reason of not big servings with any fruit

was due to sugar since we also were watching sugar intake due to yeast. So at

moderate amounts it did not give my son any noticiable reaction.

__________________________________

[Guest guest]

the thing about speedy weight loss rings true with me. I'm ok if I lose a pound every 1-2 weeks, at this point, as long as i am losing.

-Amie

From: Sent: Monday, January 03, 2005 9:04 PMTo: South-Beach-Diet-Getting-It-Right Subject: (unknown)

Okay, I fell off the wagon quite a while ago and have jumped back on. I have saved some files from attempt #1 that might help beginners:Getting Started: Seven Things To RememberIf you're in Phase 1 or getting ready to begin, print out the following and hang it on your refrigerator next to the list of Foods to Avoid and Enjoy. When you feel like you've gotten a little off track, or you've forgotten the key elements and goals of the South Beach Diet™, take a quick glance to refresh your memory.The South Beach Diet™ is not a low-carb or low-fat diet. Thefocus is on selecting the right carbs and fats. The South Beach Diet™ does not require you to limit portion size, count calories, or count grams of carbohydrates. You can eat until your hunger is satisfied. The South Beach Diet™ is flexible. You don't have to follow themeal plans to the letter—feel free to swap meals and ingredients tosuit your tastes and needs. You can't lose in a day what it took years to put on. Permanent weight loss is a slow process. Eliminating the carbs that cause cravings makes weight loss easier. The South Beach Diet™ allows for the inevitable slipups—thatis why there are three phases. It's okay to fall off the wagon as long as you get right back on. The South Beach Diet™ is a lifestyle change, not just anotherdiet. Because it allows you to eat the way you actually like to eat, you can sustain it for the rest of your life. Weight loss is only one of the benefits of the South Beach Diet™.It will also improve blood chemistry—and lead to a healthier you Reminder: The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet teaches you to rely on the right carbs and the right fats-the good ones-and enables you to live quite happily without the bad carbs and bad fats. For more on this WOE please read "The South Beach Diet" by Arthur Agatston, MD. ISBN 1-57954-814-8