Re: (unknown)

[Guest guest]

Hey Meg!

I'm JEALOUS! I'm freezing my freaking a** off this a.m...it's reading 31 on

my thermometer in my porch! Brrrrrrr!

Don't worry about the seatbelt, that will change honey! Every time I fly, I

don't ask for an extension, but where an oversized shirt to cover the belt,

and make it look as though it's buckled..I figure god forbid the plane went

down or something, my butt was so suctioned in the seat, that I would have

the entire seat to become afloat anyway!

Enjoy the warm weather, PLEASE put some in a jar for me and send it my way!

BTW: I have a friend who had WLS 3 yrs ago, and she often said to me last

winter " Do you notice yourself any colder yet? " . Last year I didn't, but

I'm dreading this year with my insulation that's diminishing! I'm already

freezing, and it's only September!!! Looks like I may give in an actually

wear a hat, scarf, mittens, thermals, turtleneck, wool sweater, and a bank

robbers mask....who cares about the hair this year, nobody will be able to

tell who I am anyways with all that paraphernalia on!

ENJOY!!!

Dawn

(unknown)

Hi guys,

believe it or not I'm emailing from Jax, FLA!!!I flew

down today with my sister. One of our other sisters

is graduating from college tomorrow so we came for the

weekend. I went to info mtg on the surgery at Lahey

and have my appt on Friday. I will get my surgery date

then!!! It sucked not being able to buckle the

seatbelt in the plane

Llyssa I hope you are in less pain this weekend.

Congrats to Maura on being on the other side!! I'm

sitting in my sister's new home just built with palm

trees out front - it is 80 degrees here!! Take care

all:) Meg

[Guest guest]

My lower back has been horrible lately with the legs wavering back and forth!

Ed

-----Original Message-----From: jnumber1us Sent: Friday, December 14, 2001 10:42 PMTo: OurMyositis Subject: (unknown)No, I didn't get to see Oprah. Was it about, perhaps, holiday stress or something along those lines? Just taking a wild guess.Yes, Vicki, what I read was part of this year's conference. Another thing the doctor said was that -more or less- once a myositis patient, one should always be considered a myositis patient, remission or no. I found THAT interesting! Sort a conflicts with doctors I've seen. At least, I think it does. Boy, I felt kind of "weaker" today, but my lower back and legs still bothering me.I di dmake a batch of cookies this afternoon- butter cookies, to be exact, in the shape of Santas and trees. They turned out wonderful, and I only ate 2. So far. Seems like when I bake cookies, the process takes up much of the day- make dough, chill, roll, etc. Is it worth it? Most of the time 11 more days-yikes. Ed, Eudora lied to you. She really did. She told me so. How, you ask? Well, that's my secret:) And why would she, you ask? So your bubble won't burst. How are you feeling today? <3

[Guest guest]

Ed... I've always felt that the weakness and pain with myositis is

migratory. It seems to travel from muscle group to muscle group. There's

never a time when everything is working well all at once. Annette

(unknown)

I was afraid Endora was just trying to spare my feelings LOL!! *darn

her* Today has actually been a wierd day (yea like we don't have

those ALL THE TIME). My upper arms and forearms have actually felt

weaker than my legs. The lower back is still acting up quite a bit

and the hips seem to be feeling a little weaker every day. Tired.

Tired of being tired. Tired of being tired of being tired. It just

goes on and on ....

Good news!! The Clonazepam I was given for the restless leg business

seems to work pretty good. It's take as needed.

Geez. Seems like just when we get used to one part being weak it

goes and moves on us. It's not fair!!!

Ed

> No, I didn't get to see Oprah. Was it about, perhaps, holiday

stress

> or something along those lines? Just taking a wild guess.

> Yes, Vicki, what I read was part of this year's conference. Another

> thing the doctor said was that -more or less- once a myositis

> patient, one should always be considered a myositis patient,

> remission or no. I found THAT interesting! Sort a conflicts with

> doctors I've seen. At least, I think it does. Boy, I felt kind

> of " weaker " today, but my lower back and legs still bothering me.

> I di dmake a batch of cookies this afternoon- butter cookies, to be

> exact, in the shape of Santas and trees. They turned out wonderful,

> and I only ate 2. So far. Seems like when I bake cookies, the

process

> takes up much of the day- make dough, chill, roll, etc. Is it worth

> it? Most of the time 11 more days-yikes.

> Ed, Eudora lied to you. She really did. She told me so. How, you

ask?

> Well, that's my secret:) And why would she, you ask? So your bubble

> won't burst. How are you feeling today? <3

[Guest guest]

Hey, this sounds terrific! I bet is excitied.

I'll be interested in hearing more.

Lynn

--- Cari Dorsey wrote:

> To all,

> After Bill posted the news that they were still

> looking for " Honorees " for

> the Kili - Climb for a Cure 2002, I thought, " what

> the heck " and wrote

> Laurel Colton about . She e-mailed me an

> application and last night

> e-mailed me that has been chosen and has been

> paired with a 40 year

> old climber from Gray, GA. We are so excited but

> having a hard time trying

> to explain to just how very tall this mountain

> is! I think they are

> still looking for people. I encourage everyone to

> do this. Teddi, Oklahoma

> was still open.

> Thank you Bill for the post. Having not attended

> the conference, I had

> never heard of the climb. Will keep everyone

> posted.

> Cari

>

>

_________________________________________________________________

> Join the world’s largest e-mail service with MSN

> Hotmail.

> http://www.hotmail.com

>

>

>

[Guest guest]

I agree with Annette, Ed! Yesterday I was walking

along, and bam, the right thigh decided it didn't like

the pace. I notice the muscle behind the thigh also

gets a little indignent. So, even with good CPKs and

on meds and stuff, it's a hit and miss kind of disease

and anybody's guess.

You learn pacing quick, I'll tell you! LOL

Lynn

--- Annette Flamand wrote:

> Ed... I've always felt that the weakness and pain

> with myositis is

> migratory. It seems to travel from muscle group to

> muscle group. There's

> never a time when everything is working well all at

> once. Annette

>

> (unknown)

>

>

> I was afraid Endora was just trying to spare my

> feelings LOL!! *darn

> her* Today has actually been a wierd day (yea like

> we don't have

> those ALL THE TIME). My upper arms and forearms

> have actually felt

> weaker than my legs. The lower back is still acting

> up quite a bit

> and the hips seem to be feeling a little weaker

> every day. Tired.

> Tired of being tired. Tired of being tired of being

> tired. It just

> goes on and on ....

>

> Good news!! The Clonazepam I was given for the

> restless leg business

> seems to work pretty good. It's take as needed.

>

> Geez. Seems like just when we get used to one part

> being weak it

> goes and moves on us. It's not fair!!!

>

> Ed

>

>

> > No, I didn't get to see Oprah. Was it about,

> perhaps, holiday

> stress

> > or something along those lines? Just taking a wild

> guess.

> > Yes, Vicki, what I read was part of this year's

> conference. Another

> > thing the doctor said was that -more or less- once

> a myositis

> > patient, one should always be considered a

> myositis patient,

> > remission or no. I found THAT interesting! Sort a

> conflicts with

> > doctors I've seen. At least, I think it does. Boy,

> I felt kind

> > of " weaker " today, but my lower back and legs

> still bothering me.

> > I di dmake a batch of cookies this afternoon-

> butter cookies, to be

> > exact, in the shape of Santas and trees. They

> turned out wonderful,

> > and I only ate 2. So far. Seems like when I bake

> cookies, the

> process

> > takes up much of the day- make dough, chill, roll,

> etc. Is it worth

> > it? Most of the time 11 more days-yikes.

> > Ed, Eudora lied to you. She really did. She told

> me so. How, you

> ask?

> > Well, that's my secret:) And why would she, you

> ask? So your bubble

> > won't burst. How are you feeling today? <3

>

>

>

>

>

>

[Guest guest]

I think what I've learned is not pacing, it's fear, fear that at any time things could go bonkers LOL!!

Have a great day!!

Ed

(unknown)> > > I was afraid Endora was just trying to spare my> feelings LOL!! *darn> her* Today has actually been a wierd day (yea like> we don't have> those ALL THE TIME). My upper arms and forearms> have actually felt> weaker than my legs. The lower back is still acting> up quite a bit> and the hips seem to be feeling a little weaker> every day. Tired.> Tired of being tired. Tired of being tired of being> tired. It just> goes on and on ....> > Good news!! The Clonazepam I was given for the> restless leg business> seems to work pretty good. It's take as needed.> > Geez. Seems like just when we get used to one part> being weak it> goes and moves on us. It's not fair!!!> > Ed> > > > No, I didn't get to see Oprah. Was it about,> perhaps, holiday> stress> > or something along those lines? Just taking a wild> guess.> > Yes, Vicki, what I read was part of this year's> conference. Another> > thing the doctor said was that -more or less- once> a myositis> > patient, one should always be considered a> myositis patient,> > remission or no. I found THAT interesting! Sort a> conflicts with> > doctors I've seen. At least, I think it does. Boy,> I felt kind> > of "weaker" today, but my lower back and legs> still bothering me.> > I di dmake a batch of cookies this afternoon-> butter cookies, to be> > exact, in the shape of Santas and trees. They> turned out wonderful,> > and I only ate 2. So far. Seems like when I bake> cookies, the> process> > takes up much of the day- make dough, chill, roll,> etc. Is it worth> > it? Most of the time 11 more days-yikes.> > Ed, Eudora lied to you. She really did. She told> me so. How, you> ask?> > Well, that's my secret:) And why would she, you> ask? So your bubble> > won't burst. How are you feeling today? <3 > > > > > >

[Guest guest]

Hi Cari

I have the application for Oklahoma....just

haven't gotten it sent back yet. Had to look

up some info for it and......well, you know

how it is..................Thanks for reminding

me I WILL get it done today......lol

Teddi

mailto:teddifromok@...

[Guest guest]

Lynn

I was dx in 1996, by 1997 my CPS's were

normal so I was in " remission " . Yeah, right

it's almost 2002 and I still have weakness,

pain, depression, etc. etc., etc. In these

diseases remission sucks!

Teddi

mailto:teddifromok@...

[Guest guest]

Ed

I know what you mean about fear. Sometimes

you even fear good days because you know

that you will pay for them in bad days. I

used to be very independent and now I'm

afraid of so many things. Again, you are

right.....It ain't fair!

Teddi

mailto:teddifromok@...

[Guest guest]

Teddi,

Good! Get that off in the mail. It really sounds like a neat thing.

Cari

>From: TeddiFromOK@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: (unknown)

>Date: Sat, 15 Dec 2001 12:30:08 -0600 (CST)

>

>Hi Cari

>

>I have the application for Oklahoma....just

>haven't gotten it sent back yet. Had to look

>up some info for it and......well, you know

>how it is..................Thanks for reminding

>me I WILL get it done today......lol

>

>

>Teddi

>mailto:teddifromok@...

>

>

>

>

>

>

>

>

>

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Dear Jane,

Congratulations on your surgery date! Happy day! Good luck and God

bless on your WLS journey.

Love,

Trace

[Guest guest]

welcome Deb

TN

(unknown)

>

>

> Hi There,

> I underwent the surgery on 5/30 - have lost 57 lbs - was weighed today

> actually - started out at 292.5 - i am 5'5 without shoes so was very

large.

> I find it amazing - the support in this group. Ppl here are so

incredibly

> friendly - i am 44 - felt like i've missed so much in life. I wish when i

> was 30 this surgery had existed - or i had known about it:) I wish you

all

> the best, and if you ever have any questions - and I am sure no expert,

but

> feel freel to ask, and as i said the ppl are are fantastic. Wherever you

> are - fall should be coming along, which i know i am hoping will be good

> motivation weather for me to walk - i have been a lax about that lately.

> BTW - love the nick LOL

>

> take care,

>

> deb

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

>

>

>

> To Subscribe to 's weekly FREE Newsletter send an email to

GBCookbook-subscribe@...

>

[Guest guest]

Congratulations on beginning a whole new life, . And welcome to our

group. Take care.

Jeanne in WI

Age 39

Open RNY 05/21/2002

314/ 261 /150-175

5' 8 "

djgraves@...

[Guest guest]

Dear ,

Congrats on your surgery date! I'm very excited for you. Good luck

and God bless you on your WLS journey!

Love,

Trace

Starting weight -- 351.2

Current weight -- 342/ /145?

Surgery date -- 9/5/02

Dr. Schechner,

Va. Beach and Norfolk, VA

Gal. 2:20

[Guest guest]

Dear Unobear,

Welcome to the GBIC! Have you visited the website and checked out the

archives/files there...? There is a plethora of info for you and the

before/after pics are a great inspiration.

Good luck and God bless you on your WLS journey.

Love,

Trace

Starting weight -- 351.2

Current weight -- 342/ /145?

Surgery date -- 9/5/02

Dr. Schechner,

Va. Beach and Norfolk, VA

Gal. 2:20

[Guest guest]

Dear ,

::Big hugs for you:: Don't be discouraged, Sweetie! You're getting

there, one step at a time. I'm sure the second opinion will go just fine,

like the first opinion.

Don't give up and be encouraged. We're rooting for you.

Love,

Trace

Starting weight -- 351.2

Current weight -- 342/ /145?

Surgery date -- 9/5/02

Dr. Schechner,

Va. Beach and Norfolk, VA

Gal. 2:20

[Guest guest]

try to keep jumping thru their hoops it is so worth the hoops

TN

(unknown)

> Well I had my personal dr's medical letter, accepted by the surgeon, and

" passed " the psych dr. But now my company wants me to get a second opionon!

>

> I was told yesterday that they will cover it if I go to Cleveland,

Pittsburgh or Columbus and get a second dr's approval.

>

> The run around started July 5th, and each time I get a step closer

something takes me a step back. The company is paying the out of pocket

expenses for the second opionon.

>

> I am getting so discouraged

>

>

>

>

> To Subscribe to 's weekly FREE Newsletter send an email to

GBCookbook-subscribe@...

>

[Guest guest]

Dawn just try to be patient you want all the needed test done so you are

safe . It will work out Hon keep us posted

TN

(unknown)

> I'm less than 2 weeks from my surgery date and my insurance sent me

> to have a cardio/pulmonary consult who wants me to have a 2D echo

> done of my heart. I'm extremely frustated and I've got this feeling

> at the last minute the insurance is going to say no.

> Just need to vent

>

>

>

> To Subscribe to 's weekly FREE Newsletter send an email to

GBCookbook-subscribe@...

>

[Guest guest]

Dear Dawn,

You're allowed to vent, sweetie. Hope everything goes well. We're

rooting for you.

Love,

Trace

Starting weight -- 351.2

Current weight -- 342/ /145?

Surgery date -- 9/5/02

Dr. Schechner,

Va. Beach and Norfolk, VA

Gal. 2:20

[Guest guest]

Thanks for coming out and saying hi, Amy. Nice to have you with us.

Jeanne in WI

Age 39

Open RNY 05/21/2002

314/ 259.5 /150-175

5' 8 "

djgraves@...

[Guest guest]

Amy good luck with approval

(unknown)

> " NOT nice mommy! I play well with others. It said so

> on my report cards

> from grade school!!!!! " ..........Betty S in TX

>

> Rumor has it she runs with scissors!

>

> Just kidding!

> I have been hanging back watching the posts and I have

> learned quite a bit of information. I have ordered

> some different samples from Vitalady. I cannot wait to

> receive them.

> I have my letter and other approval from my PCP and I

> am trying to schedule my psych eval. That is the only

> thing I am having trouble with. Wish me luck!

> I have my appt. with the surgeon on October 29th and I

> cannot wait. Hopefully it will not take long to get my

> insurance approval and a date for surgery. I am very

> excited.

> Thanks for all of your useful info and humor. You guys

> are great.

> Amy

> auntany2@...

>

>

> __________________________________________________

>

[Guest guest]

Depends on what kind of surgery you have. And how expert your doc is at

it.

Pam in Niceville

preop

Lap RNY 11/20/02

Dr. Champion/Atlanta

Eileen asks:

HELLO,

I HAVE A FEW QUESTIONS.

HOW LONG IS THE SURGERY??

HOW LONG OFF WORK??

UNOBEAR92105

---------------------------------

[Guest guest]

depend if it is open or lap how long you are off and most take three hours

some more and some less

TN

(unknown)

>

> HELLO,

>

> I HAVE A FEW QUESTIONS.

>

> HOW LONG IS THE SURGERY??

>

> HOW LONG OFF WORK??

>

> UNOBEAR92105

>

>

>

> ---------------------------------

>

[Guest guest]

HOW LONG IS THE SURGERY??= Depends on the surgeon some take an 1 1/2

hrs and others take 3 hrs?

HOW LONG OFF WORK??= Again depends on your job type. I persona work in

an office and my job was very supportive and I was off 2 wks. I was

very tired when I went back to work and sometimes wish I had taken

longer off.

Theresa~

*The most beautiful things in the world can not be

seen or even touched. They must be felt with the

heart. ~Helen Keller~

[Guest guest]

Kim, you can post any time you want. If you have questions ask. You've come

to the right place.

in Sacramento

Dr. in Burlingame

Surgery 9/16 @ 11:00 am PST

Starting weight 380

Current weight 313

Goal 130