Re: AMY and KIM

[Guest guest]

Amy and Kim,

Please tell me again the name of the surgeon you are using in Orange

Park. If you wouldn't mind...I'd like to know the cost too. I am really

wanting to get my arms, breasts and tummy done but I will have to start

saving now!! My husband is all for it but wants the details. If you would

like to e-mail me privately with the info...its Tigerchamps01@.... I'm

going to try and make the Orange Park get together on Saturday...but probably

won't know until Thursday if I'll be able to get there or not. Keep your

fingers crossed.

Marie P.

[Guest guest]

His name is Dr. Weiss. I don't know what the costs are, as my

insurance is paying for some, and I am paying for some, etc. I

think you'd have to work that out directly with him. I hope to see

you Saturday Marie!

Amy.

Re: Amy and Kim

Amy and Kim,

Please tell me again the name of the surgeon you are using

in Orange

Park. If you wouldn't mind...I'd like to know the cost too. I am

really

wanting to get my arms, breasts and tummy done but I will have to

start

saving now!! My husband is all for it but wants the details. If

you would

like to e-mail me privately with the info...its

Tigerchamps01@.... I'm

going to try and make the Orange Park get together on

Saturday...but probably

won't know until Thursday if I'll be able to get there or not.

Keep your

fingers crossed.

Marie P.

[Guest guest]

Amy I am thinking of you and praying for best results with no complicatoins

for you!!!:-) Good luck (I am a little jealous I want my boobs and tummy done

too!) Maybe next year. I doubt my insurance is going to help with anything

but who knows.

Busching

[Guest guest]

Hi Amy and Kim:

This is (Rhia's mom). Boy, oh boy do I remember being in the

boat that you two are rowing right now. Not fun.

Amy - I know EXACTLY what you mean when you say that your orthotist

gets mad at you when you go over his head. I actually was threatened

by a PT when I asked about cranial nerves. Yes, threatened. How?

The PT looked at me very intently (one could say angrily) and told

me, and I quote " I think that your daughter is not getting better

because YOU are non-compliant " as she held my daughter's medical

records in her had with her pen poised. This was after I asked her

about cranial nerves, innervation of the SCM muscle (Cranial Nerve

#XI is the nerve that innervates the SCM muscle, and the PT - yes,

the Physcial Therapist whose job it is to work with muscles and

potential brain injured or brain damaged people did not know this.

There are only 12 Cranial Nerves. It's not that much info to

remember.) AFter that meeting I called her supervisor and asked to

NEVER work with her again. I asked if the PT's had any anatomy

training. I asked if the PT's had access to Anatomy books. I asked

if the PT's were required to know mucles, nerve innervations, and

basic kineisiology. I was LIVID that this chick DARE threaten me due

to her lack of knowledge of her own profession! AFter that, I never

attended a meeting with a PT or the surgeon without my anatomy book

and my own notebook. I was sure to write notes in front of everyone

so that they were clear that I was recording as well. Of course,

they laughed at me and tried to make me feel foolish - the talked

really fast, etc. But I could keep up. I had had medical

terminology training so I knew what to ask and how to keep up. After

a while their demeanure changed (when they realized I really did know

what I was doing.)

Good luck to both of you - do what YOU think is best. As my aunt

told me - " Nobody really cares at all about your baby but YOU. " What

she meant is that at the end of the day, YOU are really the only one

that will truly advocate in your baby's behalf. The orthotists,

PT's, OT's, surgeon's, etc. have jobs to do and co-workers to appease

and quotas to fill and insurance companys to deal with and standards

to keep. So it's not really personal against them either. It's just

the way it is.

Best wishes!

, Rhiannon's mom

And that was just another day of many of mistreatment, cajoling, name-

calling, and bullying that I had to endure to get my daughter well.

Astonishing.

> > > > > so sorry to have left so abruptly... booted

> me...grrrrrrr.

> > > > > anyways i was going to let you know...i don't know how far

> it

> > is

> > > > from

> > > > > you but there is a cranial tech in madison and one in

> > milwaukee.

> > > > you

> > > > > can go to their web site to see their map

> > > www.cranialtech.com

> > > > > keep us posted...kelly