Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Heidi, What did you see with Vit A and Bethanacol? Subject: Re: Dr. GoldbergTo: mb12 valtrex Date: Friday, August 13, 2010, 10:25 AM If your son did well on Flagyl, suspect protozoa and/or bad bacteria. Zithromax kills some of the same thing Flagyl does, so that is also an idea. But, there are also many herbals and such to address bad bacteria and protozoa.Love and prayers,Heidi N"Of all the things we have tried these made a noticable, positive difference:1. Secretin infusions (porcine)2. No-Phenol3. Peptidase4. Vit A and Bethanocol5. Colostrum Gold6. Flagyl"> >> > I am hearing your nagging and you've definitely got my attention. So how would > > this be a better option over homeopathy? Some of those links regarding SSRIs > > are heavy duty stuff. What would be his alternative for people who can not > > tolerate SSRI? My son is making nice steady gains on a small number of supps. > > His language is well established and thankfully, we've never had any GI issues, > > so I might consider another holiday away from supps for a while, but I'd need to > > hear a great argument for ssri and a back up plan when that is not tolerated.> > Thanks!> > -Tammy> > > > > > > > > > > > > > ________________________________> > From: and Marcia Hinds <hindssite@>> > To: Sloan_smith@; mb12 valtrex > > Sent: Thu, August 12, 2010 8:51:53 PM> > Subject: Dr. Goldberg> > > > > > Sloan,> > I think everything you said in your post is true. My son is recovered as a > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > > flew across the country to see Sidney Baker who started the DAN protocol. > > Although what he did helped my son, it was not even close to the improvement my > > son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > provided. is 21, in college, has friends and even had a girlfriend. It is > > hard to believe this is the same kid who was in the third percentile for speech > > when he started Kindergarten. Back then I wouldn’t have believed that someday > > my son would be one of the people I find most interesting to talk to and be able > > to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > > for an independent life not in a group home or institution. > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel > > your same frustration because we found the way to help our children and want > > that for all kids. Unfortunately other parents are not there yet and continue > > to waste valuable time. > > > > > > We both know the parents on this list are desperately trying to help their > > children but just don’t realize yet that what they are doing will not have the > > long term effects they are hoping for. I just hope they realize time is of the > > essence. The older a child is when they start with a doctor like Dr. Goldberg > > in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > > longer a child is sick, the longer it takes for him/or her to get better. > > Unfortunately, there are some parents who work tirelessly, do the medical and > > behavioral interventions and their children's immune systems are too compromised > > to have complete recovery. But the children I hurt most for are the ones whose > > parents haven't given them a shot by trying the medical because they are too > > afraid to give their kids the medications they need. > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > ultimately will cost thousands of dollars and not get the job done. Our kids > > are extremely ill and it takes serious medicines to help them get better. In > > the beginning I too was afraid of the long term effects of the medications, but > > now I know without them my son would have never had recovered. When I was > > afraid of the medications. Dr. G asked me “ If your child had diabetes would > > you give them insulin?†It is the same with our kids. They are really ill and > > need strong medicine to help them. Then there are the parents who finally > > realize the right path and start the medical with Dr. Goldberg or Dr. > > their kids too old to recover completely. This does not happen because their > > parents weren’t trying to help them but because they were wasting time on doing > > other things because those were all they knew about. I guess we can tell > > parents about the successes of our children, but ultimately they must decide the > > what they think is right for their children.> > > > But keep talking. If our nagging helps even one child it is worth it.> > Best,> > Marcia Hinds> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I guess the insulting part was just the "these parents have no idea the damage they are doing to their kids." Perhaps a few people are damaging their children but of the time I have been on these lists, I see that we are all pretty sensitive to how supps are affecting our kids... and most of us are taking the same stuff at the same time, or before, giving it to our kids.... Knowing that many of the people on this list use SSRI, I am sure it wouldn't be too polite for me to come here saying "you all have no idea the harm you are causing your child" in reference to SSRI. Because it is obvious to me that for some people, those SSRI are wonderful. I am not going to generalize and say ALL people using them are doing damage, just as to me all people doing *whatever* are harming their kids... I am not even out there telling everyone not to vaccinate... I just emphasize to pay attention, hey if your kid has a bad reaction to a vaccine, don't keep vaccinating.... I don't like hearing any doctor bad mouth some other medical field. I have a surgeon who thinks vitamins are a waste of money. I don't go to him asking vitamin advice LOL !!! Anyway, I am glad so many are seeing benefit from NIDS and I am also intrigued but since I've just started with DAN, I am not to the point of "nothing is working, let me go to this *other* doctor." I am also glad to hear that even when faced with a doctor who likes to bash DAN, the moms are able to get over it for the benefit of helping their kid(s)!Cheryl, sorry this topic keeps degenerating. I am glad to have more knowledge about a non-DAN practitioner. :-) --- ToniTo: mb12 valtrex Sent: Fri, August 13, 2010 12:32:08 PMSubject: Re: Dr. Goldberg I read this post and was not insulted in the least...perhaps because my son too WAS a non-responder. He is close to recovery, and we have three DAN's. I think you will be insulted if you a. don't have a non-responder to DAN protocol, or b. don't know it yet. After four years of disparate DAN protocols making my son worse, we turned to homeopathy and IVIG. IVIG is working for us, but we continue to get the root of the issue...and I firmly believe it is strep, viral, or both. So...I tirelessly try to figure this puzzle out so he can experience full recovery as he goes into first grade this year. I feel the clock ticking as we get closer to that 'window'-if it so exists. We haven't gone to Goldberg yet, but I am on a mission to get to the bottom of his viral issue, so I can't say that he won't be our next stop. Thank you Marcia for this post-I appreciate it so much, I will repost on my blog. Warmly, Kersten www.chicagonow.com/fightingautism www.thefarrellfoundation.org > > > > > > Sloan, > > > > > > I think everything you said in your post is true. My son is recovered as a > > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > > > fact, I flew across the country to see Sidney Baker who started the DAN > > > protocol. Although what he did helped my son, it was not even close to the > > > improvement my son saw with Dr. Goldberg. > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > provided. is 21, in college, has friends and even had a girlfriend. > > > It is hard to believe this is the same kid who was in the third percentile > > > for speech when he started Kindergarten. Back then I wouldn't have believed > > > that someday my son would be one of the people I find most interesting to > > > talk to and be able to make me laugh uncontrollably. When he was first > > > diagnosed, I was just hoping for an independent life not in a group home or > > > institution. > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I > > > feel your same frustration because we found the way to help our children and > > > want that for all kids. Unfortunately other parents are not there yet and > > > continue to waste valuable time. > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their > > > children but just don't realize yet that what they are doing will not have > > > the long term effects they are hoping for. I just hope they realize time is > > > of the essence. The older a child is when they start with a doctor like > > > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > > > recovery is. The longer a child is sick, the longer it takes for him/or her > > > to get better. Unfortunately, there are some parents who work tirelessly, do > > > the medical and behavioral interventions and their children's immune systems > > > are too compromised to have complete recovery. But the children I hurt most > > > for are the ones whose parents haven't given them a shot by trying the > > > medical because they are too afraid to give their kids the medications they > > > need. > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > > ultimately will cost thousands of dollars and not get the job done. Our > > > kids are extremely ill and it takes serious medicines to help them get > > > better. In the beginning I too was afraid of the long term effects of the > > > medications, but now I know without them my son would have never had > > > recovered. When I was afraid of the medications. Dr. G asked me " If your > > > child had diabetes would you give them insulin?" It is the same with our > > > kids. They are really ill and need strong medicine to help them. Then > > > there are the parents who finally realize the right path and start the > > > medical with Dr. Goldberg or Dr. their kids too old to recover > > > completely. This does not happen because their parents weren't trying to > > > help them but because they were wasting time on doing other things because > > > those were all they knew about. I guess we can tell parents about the > > > successes of our children, but ultimately they must decide the what they > > > think is right for their children. > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > Best, > > > > > > Marcia Hinds > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 That is NOT right. Dr. Kendal discovered this first. Ask Dr. Goldberg who Dr. is. He knows him very well. Ask around.... http://www.drkendalstewart.com/ Anyways... what is the point of your argument or Marcia's? What are you trying to accomplish here? > > > >> > > > >> > > > > >> > Sloan, > > > >> > > > > >> > I think everything you said in your post is true. My son is recovered as a > > > >>result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > > > >>flew across the country to see Sidney Baker who started the DAN protocol. > > > >>Although what he did helped my son, it was not even close to the improvement my > > > >>son saw with Dr. Goldberg. > > > >> > > > >> > > > > >> > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > >>provided. is 21, in college, has friends and even had a girlfriend. It is > > > >>hard to believe this is the same kid who was in the third percentile for speech > > > >>when he started Kindergarten. Back then I wouldn't have believed that someday > > > >>my son would be one of the people I find most interesting to talk to and be able > > > >>to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > > > >>for an independent life not in a group home or institution. > > > >> > > > >> > > > > >> > > > > >> > > > > >> > I ache for parents whose children are not recovered like mine. Sloan, I feel > > > >>your same frustration because we found the way to help our children and want > > > >>that for all kids. Unfortunately other parents are not there yet and continue > > > >>to waste valuable time. > > > >> > > > >> > > > > >> > > > > >> > > > > >> > We both know the parents on this list are desperately trying to help their > > > >>children but just don't realize yet that what they are doing will not have the > > > >>long term effects they are hoping for. I just hope they realize time is of the > > > >>essence. The older a child is when they start with a doctor like Dr. Goldberg > > > >>in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > > > >>longer a child is sick, the longer it takes for him/or her to get better. > > > >>Unfortunately, there are some parents who work tirelessly, do the medical and > > > >>behavioral interventions and their children's immune systems are too compromised > > > >>to have complete recovery. But the children I hurt most for are the ones whose > > > >>parents haven't given them a shot by trying the medical because they are too > > > >>afraid to give their kids the medications they need. > > > >> > > > >> > > > > >> > > > > >> > > > > >> > Instead, these parents are stuffing them with hundreds of supplements that > > > >>ultimately will cost thousands of dollars and not get the job done. Our kids > > > >>are extremely ill and it takes serious medicines to help them get better. In > > > >>the beginning I too was afraid of the long term effects of the medications, but > > > >>now I know without them my son would have never had recovered. When I was > > > >>afraid of the medications. Dr. G asked me " If your child had diabetes would > > > >>you give them insulin? " It is the same with our kids. They are really ill and > > > >>need strong medicine to help them. Then there are the parents who finally > > > >>realize the right path and start the medical with Dr. Goldberg or Dr. > > > >>their kids too old to recover completely. This does not happen because their > > > >>parents weren't trying to help them but because they were wasting time on doing > > > >>other things because those were all they knew about. I guess we can tell > > > >>parents about the successes of our children, but ultimately they must decide the > > > >>what they think is right for their children. > > > >> > > > > >> > > > > >> > > > > >> > But keep talking. If our nagging helps even one child it is worth it. > > > >> > > > > >> > Best, > > > >> > > > > >> > Marcia Hinds > > > >> > > > > >> > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 What about Dr. Singh? Dr. Wakefield? > > > >> > > > >> > > > > >> > Sloan, > > > >> > > > > >> > I think everything you said in your post is true. My son is recovered as a > > > >>result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > > > >>flew across the country to see Sidney Baker who started the DAN protocol. > > > >>Although what he did helped my son, it was not even close to the improvement my > > > >>son saw with Dr. Goldberg. > > > >> > > > >> > > > > >> > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > >>provided. is 21, in college, has friends and even had a girlfriend. It is > > > >>hard to believe this is the same kid who was in the third percentile for speech > > > >>when he started Kindergarten. Back then I wouldn't have believed that someday > > > >>my son would be one of the people I find most interesting to talk to and be able > > > >>to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > > > >>for an independent life not in a group home or institution. > > > >> > > > >> > > > > >> > > > > >> > > > > >> > I ache for parents whose children are not recovered like mine. Sloan, I feel > > > >>your same frustration because we found the way to help our children and want > > > >>that for all kids. Unfortunately other parents are not there yet and continue > > > >>to waste valuable time. > > > >> > > > >> > > > > >> > > > > >> > > > > >> > We both know the parents on this list are desperately trying to help their > > > >>children but just don't realize yet that what they are doing will not have the > > > >>long term effects they are hoping for. I just hope they realize time is of the > > > >>essence. The older a child is when they start with a doctor like Dr. Goldberg > > > >>in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > > > >>longer a child is sick, the longer it takes for him/or her to get better. > > > >>Unfortunately, there are some parents who work tirelessly, do the medical and > > > >>behavioral interventions and their children's immune systems are too compromised > > > >>to have complete recovery. But the children I hurt most for are the ones whose > > > >>parents haven't given them a shot by trying the medical because they are too > > > >>afraid to give their kids the medications they need. > > > >> > > > >> > > > > >> > > > > >> > > > > >> > Instead, these parents are stuffing them with hundreds of supplements that > > > >>ultimately will cost thousands of dollars and not get the job done. Our kids > > > >>are extremely ill and it takes serious medicines to help them get better. In > > > >>the beginning I too was afraid of the long term effects of the medications, but > > > >>now I know without them my son would have never had recovered. When I was > > > >>afraid of the medications. Dr. G asked me " If your child had diabetes would > > > >>you give them insulin? " It is the same with our kids. They are really ill and > > > >>need strong medicine to help them. Then there are the parents who finally > > > >>realize the right path and start the medical with Dr. Goldberg or Dr. > > > >>their kids too old to recover completely. This does not happen because their > > > >>parents weren't trying to help them but because they were wasting time on doing > > > >>other things because those were all they knew about. I guess we can tell > > > >>parents about the successes of our children, but ultimately they must decide the > > > >>what they think is right for their children. > > > >> > > > > >> > > > > >> > > > > >> > But keep talking. If our nagging helps even one child it is worth it. > > > >> > > > > >> > Best, > > > >> > > > > >> > Marcia Hinds > > > >> > > > > >> > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 This came in just before my last post so let me reiterate: I'm asking that this not get answered. I'm asking because then someone will feel compelled to respond to your response and it will just continue further down the drain. Please, no more on this thread.Cheryl What are you trying to accomplish here? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 It was my son that did the Vit A and Bethanachol. Calmer, better eye contact, more verbal, better appetite, basically just less autistic. > > > > > > I am hearing your nagging and you've definitely got my attention. So how would > > > this be a better option over homeopathy? Some of those links regarding SSRIs > > > are heavy duty stuff. What would be his alternative for people who can not > > > tolerate SSRI? My son is making nice steady gains on a small number of supps. > > > His language is well established and thankfully, we've never had any GI issues, > > > so I might consider another holiday away from supps for a while, but I'd need to > > > hear a great argument for ssri and a back up plan when that is not tolerated. > > > Thanks! > > > -Tammy > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: and Marcia Hinds <hindssite@> > > > To: Sloan_smith@; mb12 valtrex > > > Sent: Thu, August 12, 2010 8:51:53 PM > > > Subject: Dr. Goldberg > > > > > > > > > Sloan, > > > I think everything you said in your post is true. My son is recovered as a > > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > > > flew across the country to see Sidney Baker who started the DAN protocol. > > > Although what he did helped my son, it was not even close to the improvement my > > > son saw with Dr. Goldberg. > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > provided. is 21, in college, has friends and even had a girlfriend. It is > > > hard to believe this is the same kid who was in the third percentile for speech > > > when he started Kindergarten. Back then I wouldn’t have believed that someday > > > my son would be one of the people I find most interesting to talk to and be able > > > to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > > > for an independent life not in a group home or institution. > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel > > > your same frustration because we found the way to help our children and want > > > that for all kids. Unfortunately other parents are not there yet and continue > > > to waste valuable time. > > > > > > > > > We both know the parents on this list are desperately trying to help their > > > children but just don’t realize yet that what they are doing will not have the > > > long term effects they are hoping for. I just hope they realize time is of the > > > essence. The older a child is when they start with a doctor like Dr. Goldberg > > > in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > > > longer a child is sick, the longer it takes for him/or her to get better. > > > Unfortunately, there are some parents who work tirelessly, do the medical and > > > behavioral interventions and their children's immune systems are too compromised > > > to have complete recovery. But the children I hurt most for are the ones whose > > > parents haven't given them a shot by trying the medical because they are too > > > afraid to give their kids the medications they need. > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > > ultimately will cost thousands of dollars and not get the job done. Our kids > > > are extremely ill and it takes serious medicines to help them get better. In > > > the beginning I too was afraid of the long term effects of the medications, but > > > now I know without them my son would have never had recovered. When I was > > > afraid of the medications. Dr. G asked me “ If your child had diabetes would > > > you give them insulin?†It is the same with our kids. They are really ill and > > > need strong medicine to help them. Then there are the parents who finally > > > realize the right path and start the medical with Dr. Goldberg or Dr. > > > their kids too old to recover completely. This does not happen because their > > > parents weren’t trying to help them but because they were wasting time on doing > > > other things because those were all they knew about. I guess we can tell > > > parents about the successes of our children, but ultimately they must decide the > > > what they think is right for their children. > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > Best, > > > Marcia Hinds > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Some get great, immediate improvements and some get nothing. I think Vit. A is needed, and supposedly only animal sources of Vit. A get absorbed in many with autism. But, with digestive aids, this may allow the plant sources to be absorbed. I think most benefit from supplementing with the animal sources, like cod liver oil. I do see some people report permanent improvements with the high dose Vit. A treatment, but not recoveries from it. So, whatever it's killing isn't enough for recovery, if your child is lucky enough to respond to it. Love and prayers, Heidi N Heidi, What did you see with Vit A and Bethanacol? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 If I could a) convince my husband and had the money (as health insurance won't cover)....I would RUN, not walk to a homeopath. It is not only the least expensive (when paying out of pocket), it seems to be the gentlest approach out of all the options out there.To: mb12 valtrex Sent: Fri, August 13, 2010 12:32:08 PMSubject: Re: Dr. Goldberg I read this post and was not insulted in the least...perhaps because my son too WAS a non-responder. He is close to recovery, and we have three DAN's. I think you will be insulted if you a. don't have a non-responder to DAN protocol, or b. don't know it yet. After four years of disparate DAN protocols making my son worse, we turned to homeopathy and IVIG. IVIG is working for us, but we continue to get the root of the issue...and I firmly believe it is strep, viral, or both. So...I tirelessly try to figure this puzzle out so he can experience full recovery as he goes into first grade this year. I feel the clock ticking as we get closer to that 'window'-if it so exists. We haven't gone to Goldberg yet, but I am on a mission to get to the bottom of his viral issue, so I can't say that he won't be our next stop. Thank you Marcia for this post-I appreciate it so much, I will repost on my blog. Warmly, Kersten www.chicagonow.com/fightingautism www.thefarrellfoundation.org > > > > > > Sloan, > > > > > > I think everything you said in your post is true. My son is recovered as a > > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > > > fact, I flew across the country to see Sidney Baker who started the DAN > > > protocol. Although what he did helped my son, it was not even close to the > > > improvement my son saw with Dr. Goldberg. > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > provided. is 21, in college, has friends and even had a girlfriend. > > > It is hard to believe this is the same kid who was in the third percentile > > > for speech when he started Kindergarten. Back then I wouldn't have believed > > > that someday my son would be one of the people I find most interesting to > > > talk to and be able to make me laugh uncontrollably. When he was first > > > diagnosed, I was just hoping for an independent life not in a group home or > > > institution. > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I > > > feel your same frustration because we found the way to help our children and > > > want that for all kids. Unfortunately other parents are not there yet and > > > continue to waste valuable time. > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their > > > children but just don't realize yet that what they are doing will not have > > > the long term effects they are hoping for. I just hope they realize time is > > > of the essence. The older a child is when they start with a doctor like > > > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > > > recovery is. The longer a child is sick, the longer it takes for him/or her > > > to get better. Unfortunately, there are some parents who work tirelessly, do > > > the medical and behavioral interventions and their children's immune systems > > > are too compromised to have complete recovery. But the children I hurt most > > > for are the ones whose parents haven't given them a shot by trying the > > > medical because they are too afraid to give their kids the medications they > > > need. > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > > ultimately will cost thousands of dollars and not get the job done. Our > > > kids are extremely ill and it takes serious medicines to help them get > > > better. In the beginning I too was afraid of the long term effects of the > > > medications, but now I know without them my son would have never had > > > recovered. When I was afraid of the medications. Dr. G asked me " If your > > > child had diabetes would you give them insulin?" It is the same with our > > > kids. They are really ill and need strong medicine to help them. Then > > > there are the parents who finally realize the right path and start the > > > medical with Dr. Goldberg or Dr. their kids too old to recover > > > completely. This does not happen because their parents weren't trying to > > > help them but because they were wasting time on doing other things because > > > those were all they knew about. I guess we can tell parents about the > > > successes of our children, but ultimately they must decide the what they > > > think is right for their children. > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > Best, > > > > > > Marcia Hinds > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 My sons also does well on Adderall *at times*. Sometimes, it makes all the difference in the world. Other times, he turns into a maniac which leads me to believe that there is something unstable and fluxuating going on with his system. He does not seem to tolerate b vitamins well, either. What I wouldn't give for a doctor who would give me five minutes to help me connect the dots.Currently we are on probiotics, vitamin c, GSE, l -carnitine, tmg and zinc. Also epsom baths have helped tremedously. Things are better than ever. I will see if his teachers agree in September.-TammyTo: mb12 valtrex Sent: Fri, August 13, 2010 1:58:03 PMSubject: Re: Dr. Goldberg My son took Prozac for two months with nothing good to report. I think behavior was worse, but I'm not sure it was the Prozac. He became manic and crazy on Strattera. He was drugged on Risperadal. Adderral allows him to concentrate and maintain his composure at school. Of all the things we have tried these made a noticable, positive difference: 1. Secretin infusions (porcine) 2. No-Phenol 3. Peptidase 4. Vit A and Bethanocol 5. Colostrum Gold 6. Flagyl 7. Homedics Homeopathy 8. Removing dairy and rice 9. Auditory Training (Berard method) Those are the things we did that caused less bowel problems, weight gain (badly needed), calmer behavior, language spikes, and improved eye contact/joint attention. I would love to get the imput of Dr. Goldberg, but will never be able to afford it. While I'm sure I've wasted a lot of money on various supplements, I don't think we did any damage in trying them. I take the supplements my son takes as well, so that I am aware of how they can effect him. > > I am hearing your nagging and you've definitely got my attention. So how would > this be a better option over homeopathy? Some of those links regarding SSRIs > are heavy duty stuff. What would be his alternative for people who can not > tolerate SSRI? My son is making nice steady gains on a small number of supps. > His language is well established and thankfully, we've never had any GI issues, > so I might consider another holiday away from supps for a while, but I'd need to > hear a great argument for ssri and a back up plan when that is not tolerated. > Thanks! > -Tammy > > > > > > > ________________________________ > > To: Sloan_smith@...; mb12 valtrex > Sent: Thu, August 12, 2010 8:51:53 PM > Subject: Dr. Goldberg > > > Sloan, > I think everything you said in your post is true. My son is recovered as a > result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > flew across the country to see Sidney Baker who started the DAN protocol. > Although what he did helped my son, it was not even close to the improvement my > son saw with Dr. Goldberg. > > My son is now recovered as a result of the medical treatment Dr. Goldberg > provided. is 21, in college, has friends and even had a girlfriend. It is > hard to believe this is the same kid who was in the third percentile for speech > when he started Kindergarten. Back then I wouldn’t have believed that someday > my son would be one of the people I find most interesting to talk to and be able > to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > for an independent life not in a group home or institution. > > I ache for parents whose children are not recovered like mine. Sloan, I feel > your same frustration because we found the way to help our children and want > that for all kids. Unfortunately other parents are not there yet and continue > to waste valuable time. > > > We both know the parents on this list are desperately trying to help their > children but just don’t realize yet that what they are doing will not have the > long term effects they are hoping for. I just hope they realize time is of the > essence. The older a child is when they start with a doctor like Dr. Goldberg > in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > longer a child is sick, the longer it takes for him/or her to get better. > Unfortunately, there are some parents who work tirelessly, do the medical and > behavioral interventions and their children's immune systems are too compromised > to have complete recovery. But the children I hurt most for are the ones whose > parents haven't given them a shot by trying the medical because they are too > afraid to give their kids the medications they need. > > > Instead, these parents are stuffing them with hundreds of supplements that > ultimately will cost thousands of dollars and not get the job done. Our kids > are extremely ill and it takes serious medicines to help them get better. In > the beginning I too was afraid of the long term effects of the medications, but > now I know without them my son would have never had recovered. When I was > afraid of the medications. Dr. G asked me “ If your child had diabetes would > you give them insulin?†It is the same with our kids. They are really ill and > need strong medicine to help them. Then there are the parents who finally > realize the right path and start the medical with Dr. Goldberg or Dr. > their kids too old to recover completely. This does not happen because their > parents weren’t trying to help them but because they were wasting time on doing > other things because those were all they knew about. I guess we can tell > parents about the successes of our children, but ultimately they must decide the > what they think is right for their children. > > But keep talking. If our nagging helps even one child it is worth it. > Best, > Marcia Hinds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Rania, check my post from earlier this week. My son is on: acylovir 400mg, 5x day Ketilconozole, 100 mg at night 5mg Paxil 1 non-red flintstones vitamin with iron 1 zyrtec at night Probiotic in the a.m. That's it. Most important to the nids protocol is the exclusion of all other supplements. the reason is the same for removing milk and wheat... They can provoke the immune system. some might take an omega. Another step that my son has not gotten to is an " immune modulator " . Immunovir has gotten some attention. If the child is positive for strep/pandas that is something dr. G would probably treat with antibiotics. > > > > > > > > > > > > > > Sloan, > > > > > > > > > > > > > > I think everything you said in your post is true. My son is recovered as a > > > > > > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > > > > > > > fact, I flew across the country to see Sidney Baker who started the DAN > > > > > > > protocol. Although what he did helped my son, it was not even close to the > > > > > > > improvement my son saw with Dr. Goldberg. > > > > > > > > > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > > > > > provided. is 21, in college, has friends and even had a girlfriend. > > > > > > > It is hard to believe this is the same kid who was in the third percentile > > > > > > > for speech when he started Kindergarten. Back then I wouldn't have believed > > > > > > > that someday my son would be one of the people I find most interesting to > > > > > > > talk to and be able to make me laugh uncontrollably. When he was first > > > > > > > diagnosed, I was just hoping for an independent life not in a group home or > > > > > > > institution. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I > > > > > > > feel your same frustration because we found the way to help our children and > > > > > > > want that for all kids. Unfortunately other parents are not there yet and > > > > > > > continue to waste valuable time. > > > > > > > > > > > > > > > > > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their > > > > > > > children but just don't realize yet that what they are doing will not have > > > > > > > the long term effects they are hoping for. I just hope they realize time is > > > > > > > of the essence. The older a child is when they start with a doctor like > > > > > > > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > > > > > > > recovery is. The longer a child is sick, the longer it takes for him/or her > > > > > > > to get better. Unfortunately, there are some parents who work tirelessly, do > > > > > > > the medical and behavioral interventions and their children's immune systems > > > > > > > are too compromised to have complete recovery. But the children I hurt most > > > > > > > for are the ones whose parents haven't given them a shot by trying the > > > > > > > medical because they are too afraid to give their kids the medications they > > > > > > > need. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > > > > > > ultimately will cost thousands of dollars and not get the job done. Our > > > > > > > kids are extremely ill and it takes serious medicines to help them get > > > > > > > better. In the beginning I too was afraid of the long term effects of the > > > > > > > medications, but now I know without them my son would have never had > > > > > > > recovered. When I was afraid of the medications. Dr. G asked me " If your > > > > > > > child had diabetes would you give them insulin? " It is the same with our > > > > > > > kids. They are really ill and need strong medicine to help them. Then > > > > > > > there are the parents who finally realize the right path and start the > > > > > > > medical with Dr. Goldberg or Dr. their kids too old to recover > > > > > > > completely. This does not happen because their parents weren't trying to > > > > > > > help them but because they were wasting time on doing other things because > > > > > > > those were all they knew about. I guess we can tell parents about the > > > > > > > successes of our children, but ultimately they must decide the what they > > > > > > > think is right for their children. > > > > > > > > > > > > > > > > > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > > > > > > > > > Best, > > > > > > > > > > > > > > Marcia Hinds > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Cheryl, I will step out... What I was trying to accomplish was to give some parents some hope that are not finding with their current protocol.... Because of the amazing change in my son. He will be going to regular Kindergarden in the fall with only speech in his iep. I'll admit dr. G's protocol does not allow for many of the things parents on this board are trying... So it's always going to cause controversy because the exclusion of many of the items dr. G regards as one of the most important parts of the protocol. I'll be on the nids board. Best of luck to all, sloan > > This came in just before my last post so let me reiterate: I'm asking that this not get answered. I'm asking because then someone will feel compelled to respond to your response and it will just continue further down the drain. Please, no more on this thread. > > > Cheryl > > > > > > What are you trying to accomplish here? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi Alison,I found this sight long before we had the symptom. What I was trying to say was if it wasn't for this sight, when we DID get the symptom, I would have been clueless and brought him to his pedi who (I am sure) would have dismissed him with an anti-itch cream : )That being said, about a month and a half ago, I noticed a red spot under the bridge of his nose which (almost over night) produced a poc-like spot. Not quite a blister...just a poc like chicken pox or measles. Then another quickly followed right next to it. Around that same time, I started giving him vitamin c and magnesium baths. More spots followed on his chest and back-not many, just a handful. Then they vansihed. The red spot on his nose hasn't produced any other pocs, but it still hasn't completely disappeared, either. It tends to get red and inflamed. It's worth noting that he hardly notices it and does not pick at or rub it to irritate it. I am almost positive I am looking at a herpes strain. I started thinking back.....My husband and I both had mono. Me as a child and my husband as a young adult (he's never quite been the same since). He also has the form of herpes where he gets fever blisters on his mouth from time to time (mostly at times of high stress). Shortly before I became pregnant, hubby woke up one morning with bells-palsy (which he was able to successfully treat with methyl . From what I've read, that can be caused by a virus. When I was into my fourth month of pregnancy, I bled tremendously. Hosp. said it was probably due to low placenta, I've since learned viruses can also cause it to happen. There is a history of autoimmune issues on both my side and my husbands side of the family. My mother had a horrible outbreak of psoriasis and is always battling shingles (she is "fortunate" that they break out one at a time and not all-over). When my son was very young, still nursing, I was caring for my mother who was suffering miserably from a psoriasis treatment that literally burned the skin on her entire body....soon after, her shingles began. I know it's said it can't be passed on, but certain weaknesses may have made him predisposed....or it could be coincidence, I don't know. So more and more I'm convinced I'm dealing with a viral guy here. Before this board, I'd have never in a million years linked it all together. I have so much to be thankful for!HTH atleast a little : )-TammyTo: mb12 valtrex Sent: Fri, August 13, 2010 8:58:53 PMSubject: Re: Re: Dr. Goldberg Tammy, i'm pretty new here, can you tell me what that symptom was that the ped wanted to do itch cream for, that led you to this site....thx, Alison M Re: Re: Dr. Goldberg I agree. I don't feel insulted. She is being helpful. I appreciate any information I can get. Sent from my Verizon Wireless BlackBerrySender: mb12 valtrex Date: Fri, 13 Aug 2010 04:32:58 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our childr en, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Thanks TAmmy Subject: Re: Re: Dr. GoldbergTo: mb12 valtrex Date: Friday, August 13, 2010, 4:58 PM Tammy, i'm pretty new here, can you tell me what that symptom was that the ped wanted to do itch cream for, that led you to this site....thx, Alison M Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successesof our children, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 The post did not bother me at all. When your child is a non-responder it is very important to know that there are other treatment protocols available. It is true that our kids are all VERY different and no ONE approach or type of treatment will heal all, but for those that can use the word RECOVERY - I think it is important to let them share. She is stressing that if you wait too long for the protocol, it may be ineffective, and for anyone that is just starting out, it may be a place to start. DAN is certainly not the only way and it sure is expensive!! > > > > > > > > Sloan, > > > > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin? " It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > Best, > > > > > > Marcia Hinds > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 Thank you so much Tammy, that is exactly why I asked....my son has started to develop these red poc-like bumps they tend to cluster, his itch some when they first form(2 yrs into hard core bio med), some on ankles (Dr. Buie ruled out crohns rash, but wasn't totally positive, wants to see what happens with them), elbows, here and there on trunk, maybe 2 on face...they tend to form a little pustule, then get a tiny red scab and some are scarring. At the same time a few warts appeared on hands. They appeared when we tried Liver Life which my son could not tolerate although we pushed through 6 weeks, terrible regression, I think it was due to phenols.My son probably needs it terribly but we needed to pull him together before we got going on big month of hbot and IV chel. I googled and looked at rash pics until I thought I would throw up. I showed them to people. One nurse thought it could be staph. I thought either measles or chicken pox. I know I have a viral kid...I'm just not sure how to go forward in treating him. I adore my DAN, but he thinks titers are not a good representation of viral load and he thinks anti-virals are a witch hunt. I know that we will need to go after the viruses, and I will, but I'm not sure what to do. My son is lethargic, wants to lie around all day, reserved, passive, shy, scared of everything, sweetheart. My DAN says that Nick's seizures and IgM pos on AC test are the result of measles encephalopathy but doesn't think immunovir would be helpful. Sorry to be so long winded and thanks again for responding, I had a hunch you would be good to talk about rashes to.Alison M Re: Re: Dr. Goldberg I agree. I don't feel insulted. She is being helpful. I appreciate any information I can get. Sent from my Verizon Wireless BlackBerrySender: mb12 valtrex Date: Fri, 13 Aug 2010 04:32:58 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our childr en, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 It definitely sounds viral to me - especially the way they come and go. Also, I don't know if it's true of ALL warts, but I know for sure that certain warts are a form of herpes (a young family member of mine had them before). Seizures from encephalopathy makes very good sense here. Do you use GSE (I'm not sure if it's ok with phenol issues) or OLE? Those are two very good antivirals to start with. Take a look at this website, you will find really useful info and links to some great resources: danasview.net -- The woman (Dana) who owns the site can be found on the yahoo group gfcfkids - she is amazing. If you leave her a question, she will answer it or at the very least, give you a good place to find the answer. I agree that you really need to go after the virus. Especially if you're considering chelation. You could also try lysine if it doesn't cause a phenol issue (I don't know anything about phenols except it really sucks when you have a problem with them lol)From what I understand, titers are not always a clear indication of viral loads and (apparently) it's best to do a trial for a few months to see if you get a response. (Though I believe if the titers test low for certain vaccines that were given, then it's very likely that it's an issue because those numbers should show). I think you might be able to find out more about that at the above link. Also, I know vitamin c, b vites and omegas are good anti-inflammatories. Good luck! Toni, if you're here - can you recommend a good phenol -free liver support?Keep us posted!-TammyTo: mb12 valtrex Sent: Sat, August 14, 2010 3:57:24 PMSubject: Re: Re: Dr. Goldberg Thank you so much Tammy, that is exactly why I asked....my son has started to develop these red poc-like bumps they tend to cluster, his itch some when they first form(2 yrs into hard core bio med), some on ankles (Dr. Buie ruled out crohns rash, but wasn't totally positive, wants to see what happens with them), elbows, here and there on trunk, maybe 2 on face...they tend to form a little pustule, then get a tiny red scab and some are scarring. At the same time a few warts appeared on hands. They appeared when we tried Liver Life which my son could not tolerate although we pushed through 6 weeks, terrible regression, I think it was due to phenols.My son probably needs it terribly but we needed to pull him together before we got going on big month of hbot and IV chel. I googled and looked at rash pics until I thought I would throw up. I showed them to people. One nurse thought it could be staph. I thought either measles or chicken pox. I know I have a viral kid...I'm just not sure how to go forward in treating him. I adore my DAN, but he thinks titers are not a good representation of viral load and he thinks anti-virals are a witch hunt. I know that we will need to go after the viruses, and I will, but I'm not sure what to do. My son is lethargic, wants to lie around all day, reserved, passive, shy, scared of everything, sweetheart. My DAN says that Nick's seizures and IgM pos on AC test are the result of measles encephalopathy but doesn't think immunovir would be helpful. Sorry to be so long winded and thanks again for responding, I had a hunch you would be good to talk about rashes to.Alison M Re: Re: Dr. Goldberg I agree. I don't feel insulted. She is being helpful. I appreciate any information I can get. Sent from my Verizon Wireless BlackBerrySender: mb12 valtrex Date: Fri, 13 Aug 2010 04:32:58 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our childr en, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 "My son is lethargic, wants to lie around all day, reserved, passive, shy, scared of everything, sweetheart."Alison,This WAS my son before Valtrex. At around the same time, we also added fermented CLO. Seriously, he is a NEW child.HTH,To: mb12 valtrex Sent: Sat, August 14, 2010 3:57:24 PMSubject: Re: Re: Dr. Goldberg Thank you so much Tammy, that is exactly why I asked....my son has started to develop these red poc-like bumps they tend to cluster, his itch some when they first form(2 yrs into hard core bio med), some on ankles (Dr. Buie ruled out crohns rash, but wasn't totally positive, wants to see what happens with them), elbows, here and there on trunk, maybe 2 on face...they tend to form a little pustule, then get a tiny red scab and some are scarring. At the same time a few warts appeared on hands. They appeared when we tried Liver Life which my son could not tolerate although we pushed through 6 weeks, terrible regression, I think it was due to phenols.My son probably needs it terribly but we needed to pull him together before we got going on big month of hbot and IV chel. I googled and looked at rash pics until I thought I would throw up. I showed them to people. One nurse thought it could be staph. I thought either measles or chicken pox. I know I have a viral kid...I'm just not sure how to go forward in treating him. I adore my DAN, but he thinks titers are not a good representation of viral load and he thinks anti-virals are a witch hunt. I know that we will need to go after the viruses, and I will, but I'm not sure what to do. My son is lethargic, wants to lie around all day, reserved, passive, shy, scared of everything, sweetheart. My DAN says that Nick's seizures and IgM pos on AC test are the result of measles encephalopathy but doesn't think immunovir would be helpful. Sorry to be so long winded and thanks again for responding, I had a hunch you would be good to talk about rashes to.Alison M Re: Re: Dr. Goldberg I agree. I don't feel insulted. She is being helpful. I appreciate any information I can get. Sent from my Verizon Wireless BlackBerryFrom: "Sloan" Sender: mb12 valtrex Date: Fri, 13 Aug 2010 04:32:58 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our childr en, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.