Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Do all NIDS require SSRI prescriptions? --- ToniTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Your " nagging " is very helpful. After I got the information from Marcia and listened to what you guys are saying and did some more investigation by listening to Dr. goldberg's talk and Pierre Fontaine's podcast and reading his books I am now convinced that my son's issues are an virus and immune related. Since then I stopped all of his suppliments this week except the Valtrex, Diflucan, OLE, and Lomatium. He has been in a very bad mood, lots of tantrums for the last few weeks. I had him on so much stuff. Now I took it all away including taking away chelation (which made him twitch at night) and he is so happy. His eye contact is fantastic. And he is saying things like " I am " , Yes I want to do that.... etc.... amazing. In homeopathy they too believe it is a disease and heal from that perspective as well. THere are 2 leading healers out there that have come to the same conclusion. I don't think we can ignore this. Thanks for all the nagging it has really changed my approach to my son's recovery. Nadia > > Sloan, > > I think everything you said in your post is true. My son is recovered as a > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > fact, I flew across the country to see Sidney Baker who started the DAN > protocol. Although what he did helped my son, it was not even close to the > improvement my son saw with Dr. Goldberg. > > My son is now recovered as a result of the medical treatment Dr. Goldberg > provided. is 21, in college, has friends and even had a girlfriend. > It is hard to believe this is the same kid who was in the third percentile > for speech when he started Kindergarten. Back then I wouldn't have believed > that someday my son would be one of the people I find most interesting to > talk to and be able to make me laugh uncontrollably. When he was first > diagnosed, I was just hoping for an independent life not in a group home or > institution. > > > > I ache for parents whose children are not recovered like mine. Sloan, I > feel your same frustration because we found the way to help our children and > want that for all kids. Unfortunately other parents are not there yet and > continue to waste valuable time. > > > > We both know the parents on this list are desperately trying to help their > children but just don't realize yet that what they are doing will not have > the long term effects they are hoping for. I just hope they realize time is > of the essence. The older a child is when they start with a doctor like > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > recovery is. The longer a child is sick, the longer it takes for him/or her > to get better. Unfortunately, there are some parents who work tirelessly, do > the medical and behavioral interventions and their children's immune systems > are too compromised to have complete recovery. But the children I hurt most > for are the ones whose parents haven't given them a shot by trying the > medical because they are too afraid to give their kids the medications they > need. > > > > Instead, these parents are stuffing them with hundreds of supplements that > ultimately will cost thousands of dollars and not get the job done. Our > kids are extremely ill and it takes serious medicines to help them get > better. In the beginning I too was afraid of the long term effects of the > medications, but now I know without them my son would have never had > recovered. When I was afraid of the medications. Dr. G asked me " If your > child had diabetes would you give them insulin? " It is the same with our > kids. They are really ill and need strong medicine to help them. Then > there are the parents who finally realize the right path and start the > medical with Dr. Goldberg or Dr. their kids too old to recover > completely. This does not happen because their parents weren't trying to > help them but because they were wasting time on doing other things because > those were all they knew about. I guess we can tell parents about the > successes of our children, but ultimately they must decide the what they > think is right for their children. > > > > But keep talking. If our nagging helps even one child it is worth it. > > Best, > > Marcia Hinds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 What is SSRI???Sorry to ask.To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 18:07:27 -0700Subject: Re: Dr. Goldberg Do all NIDS require SSRI prescriptions? --- ToniTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?” It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 DidoI took everything away from my son since Sunday after reading all your suggestions. I wrote to Elyse to see when her husband was giving appointments for, if not I will try Dr. as Marcia suggested.To: mb12 valtrex From: nonorati@...Date: Fri, 13 Aug 2010 01:15:28 +0000Subject: Re: Dr. Goldberg Your "nagging" is very helpful. After I got the information from Marcia and listened to what you guys are saying and did some more investigation by listening to Dr. goldberg's talk and Pierre Fontaine's podcast and reading his books I am now convinced that my son's issues are an virus and immune related. Since then I stopped all of his suppliments this week except the Valtrex, Diflucan, OLE, and Lomatium. He has been in a very bad mood, lots of tantrums for the last few weeks. I had him on so much stuff. Now I took it all away including taking away chelation (which made him twitch at night) and he is so happy. His eye contact is fantastic. And he is saying things like " I am ", Yes I want to do that.... etc.... amazing. In homeopathy they too believe it is a disease and heal from that perspective as well. THere are 2 leading healers out there that have come to the same conclusion. I don't think we can ignore this. Thanks for all the nagging it has really changed my approach to my son's recovery. Nadia > > Sloan, > > I think everything you said in your post is true. My son is recovered as a > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > fact, I flew across the country to see Sidney Baker who started the DAN > protocol. Although what he did helped my son, it was not even close to the > improvement my son saw with Dr. Goldberg. > > My son is now recovered as a result of the medical treatment Dr. Goldberg > provided. is 21, in college, has friends and even had a girlfriend. > It is hard to believe this is the same kid who was in the third percentile > for speech when he started Kindergarten. Back then I wouldn't have believed > that someday my son would be one of the people I find most interesting to > talk to and be able to make me laugh uncontrollably. When he was first > diagnosed, I was just hoping for an independent life not in a group home or > institution. > > > > I ache for parents whose children are not recovered like mine. Sloan, I > feel your same frustration because we found the way to help our children and > want that for all kids. Unfortunately other parents are not there yet and > continue to waste valuable time. > > > > We both know the parents on this list are desperately trying to help their > children but just don't realize yet that what they are doing will not have > the long term effects they are hoping for. I just hope they realize time is > of the essence. The older a child is when they start with a doctor like > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > recovery is. The longer a child is sick, the longer it takes for him/or her > to get better. Unfortunately, there are some parents who work tirelessly, do > the medical and behavioral interventions and their children's immune systems > are too compromised to have complete recovery. But the children I hurt most > for are the ones whose parents haven't given them a shot by trying the > medical because they are too afraid to give their kids the medications they > need. > > > > Instead, these parents are stuffing them with hundreds of supplements that > ultimately will cost thousands of dollars and not get the job done. Our > kids are extremely ill and it takes serious medicines to help them get > better. In the beginning I too was afraid of the long term effects of the > medications, but now I know without them my son would have never had > recovered. When I was afraid of the medications. Dr. G asked me " If your > child had diabetes would you give them insulin?" It is the same with our > kids. They are really ill and need strong medicine to help them. Then > there are the parents who finally realize the right path and start the > medical with Dr. Goldberg or Dr. their kids too old to recover > completely. This does not happen because their parents weren't trying to > help them but because they were wasting time on doing other things because > those were all they knew about. I guess we can tell parents about the > successes of our children, but ultimately they must decide the what they > think is right for their children. > > > > But keep talking. If our nagging helps even one child it is worth it. > > Best, > > Marcia Hinds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Anti-depressant, serotonin reuptake inhibitor... I son't know why it's two S's. Maybe "sustained" ?? LOL I guess I could check google. --- ToniTo: mb12 valtrex Sent: Thu, August 12, 2010 11:20:15 PMSubject: RE: Dr. Goldberg What is SSRI???Sorry to ask.To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 18:07:27 -0700Subject: Re: Dr. Goldberg Do all NIDS require SSRI prescriptions? --- ToniTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Thank you Toni, I see so many abbreviations like the LOL that I don't know what they mean that I need to start asking so that I can feel more informed. One of my daughters tell me that LOL means "Laugh out Loud" but of course they could be very wrong and that may only be in their texting world.Good night and thanks again,To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 20:27:07 -0700Subject: Re: Dr. Goldberg Anti-depressant, serotonin reuptake inhibitor... I son't know why it's two S's. Maybe "sustained" ?? LOL I guess I could check google. --- ToniTo: mb12 valtrex Sent: Thu, August 12, 2010 11:20:15 PMSubject: RE: Dr. Goldberg What is SSRI???Sorry to ask.To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 18:07:27 -0700Subject: Re: Dr. Goldberg Do all NIDS require SSRI prescriptions? --- ToniTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?” It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 LOL is laugh out loud. --- ToniTo: mb12 valtrex Sent: Thu, August 12, 2010 11:38:13 PMSubject: RE: Dr. Goldberg Thank you Toni, I see so many abbreviations like the LOL that I don't know what they mean that I need to start asking so that I can feel more informed. One of my daughters tell me that LOL means "Laugh out Loud" but of course they could be very wrong and that may only be in their texting world.Good night and thanks again,To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 20:27:07 -0700Subject: Re: Dr. Goldberg Anti-depressant, serotonin reuptake inhibitor... I son't know why it's two S's. Maybe "sustained" ?? LOL I guess I could check google. --- ToniTo: mb12 valtrex Sent: Thu, August 12, 2010 11:20:15 PMSubject: RE: Dr. Goldberg What is SSRI???Sorry to ask.To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 18:07:27 -0700Subject: Re: Dr. Goldberg Do all NIDS require SSRI prescriptions? --- ToniTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Selective Serotonin Reuptake Inhibitor, I believe.Like Sloan, our son has been seeing Dr. Goldberg since April, and he is doing very well. Talking. Singing. Drawing. Wanting friends. We are really optimistic. We were looking at some before and after videos this evening, and in just a few months he is clearly doing better. Or son has been what folks might call a "non-responder", but he's responding to the NIDS protocol. He's on the NIDS diet, which is pretty different from just GF/CF, as well as Famvir, anti-fungal and SSRI. No supplements beyond a conventional multi-vitamin. It's all very simple, straightforward and manageable. Tammy K. Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I'm sorry, but one more post like this and I will remove you, Marcia. I've made it clear that you are welcome to discuss NIDS and Dr. G but insulting parents that are actually doing very well, whether you care to believe it or not isn't going to continue. This is the last time I say this. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ Sloan,I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?” It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it.Best,Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth. > > > > > Sloan, > > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin? " It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > Best, > > > > Marcia Hinds > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 "We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for."Sounds pretty insulting to me. --- ToniTo: mb12 valtrex Sent: Fri, August 13, 2010 12:32:58 AMSubject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth. > > > > > Sloan, > > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > Best, > > > > Marcia Hinds > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 what is ssri? can any one tell more about nids protocol and is nids protocols for all autistic kid? how do i know if nids protocol is for my kid. thanks De: Tammy Koupal Para: mb12 valtrex Enviado: vie,13 agosto, 2010 06:20Asunto: Re: Dr. Goldberg Selective Serotonin Reuptake Inhibitor, I believe.Like Sloan, our son has been seeing Dr. Goldberg since April, and he is doing very well. Talking. Singing. Drawing. Wanting friends. We are really optimistic. We were looking at some before and after videos this evening, and in just a few months he is clearly doing better. Or son has been what folks might call a "non-responder", but he's responding to the NIDS protocol. He's on the NIDS diet, which is pretty different from just GF/CF, as well as Famvir, anti-fungal and SSRI. No supplements beyond a conventional multi-vitamin. It's all very simple, straightforward and manageable. Tammy K. Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010  My vote is "not insulting". "We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for."Sounds pretty insulting to me. --- Toni To: mb12 valtrex Sent: Fri, August 13, 2010 12:32:58 AMSubject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I agree it is not insulting at all. She is being truthful and realistic and I never understood that these supps could be dangerous and yield short term positive results. What she is saying is NO different than when parents with autistic children tell other parents to watch for vaccines etc... we too can be very passionate about these things we know have created the " autistic " environment. Sometimes we need to use more direct words to get a message across and we should not be focused necessarily on the wording within the email but the intent. Her intent is NOT to insult but to inform!!!! She is inform out of her passion for this topic. The emotional lines get blurred. We are in this together so if someone brings more information and yes it may contradict what we are doing and yes we may second guess ourselves be grateful not hateful for it Also I did not know we can be removed from the lists for speaking our minds. I did not know we were suppose to censor ourselves.... These groups are about free speech and conversation and just because we get " insulted " does not mean that what she is saying is invalid. BTW, I am one of those mom doing everything possible to recover he 4 year old son so I really welcome the information. Nadia > > > > > > > > Sloan, > > > > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin? " It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > Best, > > > > > > Marcia Hinds > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I agree. I don't feel insulted. She is being helpful. I appreciate any information I can get. Sent from my Verizon Wireless BlackBerrySender: mb12 valtrex Date: Fri, 13 Aug 2010 04:32:58 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth.> > > > > Sloan,> > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin? " It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children.> > > > > > > > But keep talking. If our nagging helps even one child it is worth it.> > > > Best,> > > > Marcia Hinds> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I am hearing your nagging and you've definitely got my attention. So how would this be a better option over homeopathy? Some of those links regarding SSRIs are heavy duty stuff. What would be his alternative for people who can not tolerate SSRI? My son is making nice steady gains on a small number of supps. His language is well established and thankfully, we've never had any GI issues, so I might consider another holiday away from supps for a while, but I'd need to hear a great argument for ssri and a back up plan when that is not tolerated.Thanks!-TammyTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi ,Your daughter is right about lol. When I first signed on to this board, I spent the first two weeks deciphering all the abbreviations...things became much more clear after that. There's another board where people refer to their husbands as DH (dear husband) for the longest time, I thought it was "dumb husband" hahaha. -TammyTo: mb12 valtrex Sent: Thu, August 12, 2010 11:38:13 PMSubject: RE: Dr. Goldberg Thank you Toni, I see so many abbreviations like the LOL that I don't know what they mean that I need to start asking so that I can feel more informed. One of my daughters tell me that LOL means "Laugh out Loud" but of course they could be very wrong and that may only be in their texting world.Good night and thanks again,To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 20:27:07 -0700Subject: Re: Dr. Goldberg Anti-depressant, serotonin reuptake inhibitor... I son't know why it's two S's. Maybe "sustained" ?? LOL I guess I could check google. --- ToniTo: mb12 valtrex Sent: Thu, August 12, 2010 11:20:15 PMSubject: RE: Dr. Goldberg What is SSRI???Sorry to ask.To: mb12 valtrex From: gkmt50@...Date: Thu, 12 Aug 2010 18:07:27 -0700Subject: Re: Dr. Goldberg Do all NIDS require SSRI prescriptions? --- ToniTo: Sloan_smith@...; mb12 valtrex Sent: Thu, August 12, 2010 8:51:53 PMSubject: Dr. Goldberg Sloan, I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn’t have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. We both know the parents on this list are desperately trying to help their children but just don’t realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me “ If your child had diabetes would you give them insulin?†It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren’t trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our children, but ultimately they must decide the what they think is right for their children. But keep talking. If our nagging helps even one child it is worth it. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I can only speak for myself personally when I say I rely on this board not only for other's personal experiences and knowledge, but for the *support and encouragement* that comes along with it. We're swimming up hill here and the majority of us get no support from our family, friends, school systems and pediatrcians because they understand little, if anything at all, about recovering our children. In most instances, sharing a success story is more than enough to get a parent's attention here to start asking questions about the approach. There really isn't much need to plea with people or scare them that what they're doing is harmful especially when so many are experiencing wonderful results. We can get that at our pediatrician's office when we decline vaccinations and at family functions when we won't allow our children to eat foods that cause them terrible harm. This is why it is so terribly important to get our medical establishment on board. We would have to do much less shooting in the dark if our pediatricians were more educated and willing to run simple tests. I know when I first encountered biomedical, I was shooting blindly and wildly because my son has a pediatrician who believes nothing can be done and an insurance company more than willing to agree. After 8 years of life, my son *finally* showed an outward physical symptom that gave me a clue as to what we were facing. If it was not for this board, I would have missed that sign completely and I can promise you his pedi would've recommended an anti itch cream and sent the kid packing. I hope people continue to share their victories and setbacks. So many children are relying on it. For now we can only rely on each other and I don't feel that there is any room or time for bashing or guilt tripping.. I wish everyone extraordinary success and pray for each and every single one of you every day!-TammyTo: mb12 valtrex Sent: Fri, August 13, 2010 7:58:26 AMSubject: Re: Re: Dr. Goldberg I agree. I don't feel insulted. She is being helpful. I appreciate any information I can get. Sent from my Verizon Wireless BlackBerry Sender: mb12 valtrex Date: Fri, 13 Aug 2010 04:32:58 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Dr. Goldberg Again, how is what she is saying insulting? I myself spend upwards of $25,000 on doctors and supplements. None of it helped. We are telling our truth. > > > > > Sloan, > > > > I think everything you said in your post is true. My son is recovered as a result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I flew across the country to see Sidney Baker who started the DAN protocol. Although what he did helped my son, it was not even close to the improvement my son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg provided. is 21, in college, has friends and even had a girlfriend. It is hard to believe this is the same kid who was in the third percentile for speech when he started Kindergarten. Back then I wouldn't have believed that someday my son would be one of the people I find most interesting to talk to and be able to make me laugh uncontrollably. When he was first diagnosed, I was just hoping for an independent life not in a group home or institution. > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel your same frustration because we found the way to help our children and want that for all kids. Unfortunately other parents are not there yet and continue to waste valuable time. > > > > > > > > We both know the parents on this list are desperately trying to help their children but just don't realize yet that what they are doing will not have the long term effects they are hoping for. I just hope they realize time is of the essence. The older a child is when they start with a doctor like Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The longer a child is sick, the longer it takes for him/or her to get better. Unfortunately, there are some parents who work tirelessly, do the medical and behavioral interventions and their children's immune systems are too compromised to have complete recovery. But the children I hurt most for are the ones whose parents haven't given them a shot by trying the medical because they are too afraid to give their kids the medications they need. > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that ultimately will cost thousands of dollars and not get the job done. Our kids are extremely ill and it takes serious medicines to help them get better. In the beginning I too was afraid of the long term effects of the medications, but now I know without them my son would have never had recovered. When I was afraid of the medications. Dr. G asked me " If your child had diabetes would you give them insulin?" It is the same with our kids. They are really ill and need strong medicine to help them. Then there are the parents who finally realize the right path and start the medical with Dr. Goldberg or Dr. their kids too old to recover completely. This does not happen because their parents weren't trying to help them but because they were wasting time on doing other things because those were all they knew about. I guess we can tell parents about the successes of our childr en, but ultimately they must decide the what they think is right for their children. > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > Best, > > > > Marcia Hinds > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 , If you want I can privately email you some information. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I agree with Toni - sounded like an ad campaign for Goldberg, Goldberg, and Associates. All of our children are different and have different needs, while his protocol may work for some, I can assure you there are some it doesn't - no different than Buttar, Neubrander, etc. In reference to " but just don't realize yet that what they are doing will not have the long term effects they are hoping for " , the man who started this site (Stan Kurtz) didn't use Goldberg to recover his son (not to my knowledge), hence the name mb12 valtrex - it's not called mb12 valtrexgoldberg now is it. > >> > >> > > >> > Sloan, > >> > > >> > I think everything you said in your post is true. My son is recovered as a > >>result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > >>flew across the country to see Sidney Baker who started the DAN protocol. > >>Although what he did helped my son, it was not even close to the improvement my > >>son saw with Dr. Goldberg. > >> > >> > > >> > My son is now recovered as a result of the medical treatment Dr. Goldberg > >>provided. is 21, in college, has friends and even had a girlfriend. It is > >>hard to believe this is the same kid who was in the third percentile for speech > >>when he started Kindergarten. Back then I wouldn't have believed that someday > >>my son would be one of the people I find most interesting to talk to and be able > >>to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > >>for an independent life not in a group home or institution. > >> > >> > > >> > > >> > > >> > I ache for parents whose children are not recovered like mine. Sloan, I feel > >>your same frustration because we found the way to help our children and want > >>that for all kids. Unfortunately other parents are not there yet and continue > >>to waste valuable time. > >> > >> > > >> > > >> > > >> > We both know the parents on this list are desperately trying to help their > >>children but just don't realize yet that what they are doing will not have the > >>long term effects they are hoping for. I just hope they realize time is of the > >>essence. The older a child is when they start with a doctor like Dr. Goldberg > >>in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > >>longer a child is sick, the longer it takes for him/or her to get better. > >>Unfortunately, there are some parents who work tirelessly, do the medical and > >>behavioral interventions and their children's immune systems are too compromised > >>to have complete recovery. But the children I hurt most for are the ones whose > >>parents haven't given them a shot by trying the medical because they are too > >>afraid to give their kids the medications they need. > >> > >> > > >> > > >> > > >> > Instead, these parents are stuffing them with hundreds of supplements that > >>ultimately will cost thousands of dollars and not get the job done. Our kids > >>are extremely ill and it takes serious medicines to help them get better. In > >>the beginning I too was afraid of the long term effects of the medications, but > >>now I know without them my son would have never had recovered. When I was > >>afraid of the medications. Dr. G asked me " If your child had diabetes would > >>you give them insulin? " It is the same with our kids. They are really ill and > >>need strong medicine to help them. Then there are the parents who finally > >>realize the right path and start the medical with Dr. Goldberg or Dr. > >>their kids too old to recover completely. This does not happen because their > >>parents weren't trying to help them but because they were wasting time on doing > >>other things because those were all they knew about. I guess we can tell > >>parents about the successes of our children, but ultimately they must decide the > >>what they think is right for their children. > >> > > >> > > >> > > >> > But keep talking. If our nagging helps even one child it is worth it. > >> > > >> > Best, > >> > > >> > Marcia Hinds > >> > > >> > > >> > > >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I read this post and was not insulted in the least...perhaps because my son too WAS a non-responder. He is close to recovery, and we have three DAN's. I think you will be insulted if you a. don't have a non-responder to DAN protocol, or b. don't know it yet. After four years of disparate DAN protocols making my son worse, we turned to homeopathy and IVIG. IVIG is working for us, but we continue to get the root of the issue...and I firmly believe it is strep, viral, or both. So...I tirelessly try to figure this puzzle out so he can experience full recovery as he goes into first grade this year. I feel the clock ticking as we get closer to that 'window'-if it so exists. We haven't gone to Goldberg yet, but I am on a mission to get to the bottom of his viral issue, so I can't say that he won't be our next stop. Thank you Marcia for this post-I appreciate it so much, I will repost on my blog. Warmly, Kersten www.chicagonow.com/fightingautism www.thefarrellfoundation.org > > > > > > Sloan, > > > > > > I think everything you said in your post is true. My son is recovered as a > > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > > > fact, I flew across the country to see Sidney Baker who started the DAN > > > protocol. Although what he did helped my son, it was not even close to the > > > improvement my son saw with Dr. Goldberg. > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > provided. is 21, in college, has friends and even had a girlfriend. > > > It is hard to believe this is the same kid who was in the third percentile > > > for speech when he started Kindergarten. Back then I wouldn't have believed > > > that someday my son would be one of the people I find most interesting to > > > talk to and be able to make me laugh uncontrollably. When he was first > > > diagnosed, I was just hoping for an independent life not in a group home or > > > institution. > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I > > > feel your same frustration because we found the way to help our children and > > > want that for all kids. Unfortunately other parents are not there yet and > > > continue to waste valuable time. > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their > > > children but just don't realize yet that what they are doing will not have > > > the long term effects they are hoping for. I just hope they realize time is > > > of the essence. The older a child is when they start with a doctor like > > > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > > > recovery is. The longer a child is sick, the longer it takes for him/or her > > > to get better. Unfortunately, there are some parents who work tirelessly, do > > > the medical and behavioral interventions and their children's immune systems > > > are too compromised to have complete recovery. But the children I hurt most > > > for are the ones whose parents haven't given them a shot by trying the > > > medical because they are too afraid to give their kids the medications they > > > need. > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > > ultimately will cost thousands of dollars and not get the job done. Our > > > kids are extremely ill and it takes serious medicines to help them get > > > better. In the beginning I too was afraid of the long term effects of the > > > medications, but now I know without them my son would have never had > > > recovered. When I was afraid of the medications. Dr. G asked me " If your > > > child had diabetes would you give them insulin? " It is the same with our > > > kids. They are really ill and need strong medicine to help them. Then > > > there are the parents who finally realize the right path and start the > > > medical with Dr. Goldberg or Dr. their kids too old to recover > > > completely. This does not happen because their parents weren't trying to > > > help them but because they were wasting time on doing other things because > > > those were all they knew about. I guess we can tell parents about the > > > successes of our children, but ultimately they must decide the what they > > > think is right for their children. > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > Best, > > > > > > Marcia Hinds > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Dear Marcia, It's been a week now that I took away all my sons supplements. He has been getting better with his attention and eye contact. the thing is that he's stimming non stop! it's either he's jumping around with no purpose, or he NEEDS to be fiddling with anything he can get his hands on! He gets moody and angry if we try to redirect him. For the past 6 days all I have been giving him is: Taurine: 1000mg/2wice a day Pro-biotics:(Mind Links) 1/2 tsp 2wice a day Vitamins C+ selenium: 1/4 tsp Diflucan: 2ml/Day MB12(shot e/3days Spay on his off days) Melatonin: 2-3 mg to help him sleep (even though he still wakes up from time to time and stay up way too long) The reason why I re-started the diflucan, is that I really think that his stimming is due to a huge yeast infection due to antibiotics(he was hospitalized with pneumonia back in June and was given 3 kinds of antibiotics for 20days!) We did a course of Valtrex/Diflucan for 3 months (March, April & june) that was before his hospitalization and I saw so much improvement from this especially when we upped his mb12 intake with it, but when we stopped and after all this! he went down the hill again with his stimming and non attention I mean he can NOT sit for 20 seconds at a time without moving something in his boddy!! Please tell me what did you do exactly with your son? what did you give him and what were the doses. we are seeing his DAN! dr on the 18th and I would like to give her my suggestions for once! and ways that will start recovering my son! he's been on the biomed approach for 2.5 years, he will be 6 in November! GFCF (Low carbs Diet) you name it! and the poor kid is still struggling with his sensory and anxieties, very little speech and his speech consist on videos phrases, internet games phrases, when he wants a drink he will say( drink drink) lately he's been very emotional, he cries when he sees other kids/me crying. I am so sick and tired of all this to tell you the truth! I just want my son to get better! Not throw a supplement on him everytime we go to his Dan, I was the one that suggested the Valtrex! she didn't even hear about it! I am sorry I think you can hear my frustration and there is no way we can go see Dr. Goldberg! so please what was the plan that recovered your son? supplements? medications? diet? Thank you so much! Rania > > > > > > > > > > Sloan, > > > > > > > > > > I think everything you said in your post is true. My son is recovered as a > > > > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of > > > > > fact, I flew across the country to see Sidney Baker who started the DAN > > > > > protocol. Although what he did helped my son, it was not even close to the > > > > > improvement my son saw with Dr. Goldberg. > > > > > > > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > > > > provided. is 21, in college, has friends and even had a girlfriend. > > > > > It is hard to believe this is the same kid who was in the third percentile > > > > > for speech when he started Kindergarten. Back then I wouldn't have believed > > > > > that someday my son would be one of the people I find most interesting to > > > > > talk to and be able to make me laugh uncontrollably. When he was first > > > > > diagnosed, I was just hoping for an independent life not in a group home or > > > > > institution. > > > > > > > > > > > > > > > > > > > > I ache for parents whose children are not recovered like mine. Sloan, I > > > > > feel your same frustration because we found the way to help our children and > > > > > want that for all kids. Unfortunately other parents are not there yet and > > > > > continue to waste valuable time. > > > > > > > > > > > > > > > > > > > > We both know the parents on this list are desperately trying to help their > > > > > children but just don't realize yet that what they are doing will not have > > > > > the long term effects they are hoping for. I just hope they realize time is > > > > > of the essence. The older a child is when they start with a doctor like > > > > > Dr. Goldberg in Tarzana or Dr. in Port Arkansas, TX the harder > > > > > recovery is. The longer a child is sick, the longer it takes for him/or her > > > > > to get better. Unfortunately, there are some parents who work tirelessly, do > > > > > the medical and behavioral interventions and their children's immune systems > > > > > are too compromised to have complete recovery. But the children I hurt most > > > > > for are the ones whose parents haven't given them a shot by trying the > > > > > medical because they are too afraid to give their kids the medications they > > > > > need. > > > > > > > > > > > > > > > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > > > > ultimately will cost thousands of dollars and not get the job done. Our > > > > > kids are extremely ill and it takes serious medicines to help them get > > > > > better. In the beginning I too was afraid of the long term effects of the > > > > > medications, but now I know without them my son would have never had > > > > > recovered. When I was afraid of the medications. Dr. G asked me " If your > > > > > child had diabetes would you give them insulin? " It is the same with our > > > > > kids. They are really ill and need strong medicine to help them. Then > > > > > there are the parents who finally realize the right path and start the > > > > > medical with Dr. Goldberg or Dr. their kids too old to recover > > > > > completely. This does not happen because their parents weren't trying to > > > > > help them but because they were wasting time on doing other things because > > > > > those were all they knew about. I guess we can tell parents about the > > > > > successes of our children, but ultimately they must decide the what they > > > > > think is right for their children. > > > > > > > > > > > > > > > > > > > > But keep talking. If our nagging helps even one child it is worth it. > > > > > > > > > > Best, > > > > > > > > > > Marcia Hinds > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 FYI: Stan Kurtz DID use Dr. Goldberg to recover his son. Ask him. In fact, Dr. Goldberg was the first doctor to recognize chronic viral activity in " autistic " children. > > >> > > >> > > > >> > Sloan, > > >> > > > >> > I think everything you said in your post is true. My son is recovered as a > > >>result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > > >>flew across the country to see Sidney Baker who started the DAN protocol. > > >>Although what he did helped my son, it was not even close to the improvement my > > >>son saw with Dr. Goldberg. > > >> > > >> > > > >> > My son is now recovered as a result of the medical treatment Dr. Goldberg > > >>provided. is 21, in college, has friends and even had a girlfriend. It is > > >>hard to believe this is the same kid who was in the third percentile for speech > > >>when he started Kindergarten. Back then I wouldn't have believed that someday > > >>my son would be one of the people I find most interesting to talk to and be able > > >>to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > > >>for an independent life not in a group home or institution. > > >> > > >> > > > >> > > > >> > > > >> > I ache for parents whose children are not recovered like mine. Sloan, I feel > > >>your same frustration because we found the way to help our children and want > > >>that for all kids. Unfortunately other parents are not there yet and continue > > >>to waste valuable time. > > >> > > >> > > > >> > > > >> > > > >> > We both know the parents on this list are desperately trying to help their > > >>children but just don't realize yet that what they are doing will not have the > > >>long term effects they are hoping for. I just hope they realize time is of the > > >>essence. The older a child is when they start with a doctor like Dr. Goldberg > > >>in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > > >>longer a child is sick, the longer it takes for him/or her to get better. > > >>Unfortunately, there are some parents who work tirelessly, do the medical and > > >>behavioral interventions and their children's immune systems are too compromised > > >>to have complete recovery. But the children I hurt most for are the ones whose > > >>parents haven't given them a shot by trying the medical because they are too > > >>afraid to give their kids the medications they need. > > >> > > >> > > > >> > > > >> > > > >> > Instead, these parents are stuffing them with hundreds of supplements that > > >>ultimately will cost thousands of dollars and not get the job done. Our kids > > >>are extremely ill and it takes serious medicines to help them get better. In > > >>the beginning I too was afraid of the long term effects of the medications, but > > >>now I know without them my son would have never had recovered. When I was > > >>afraid of the medications. Dr. G asked me " If your child had diabetes would > > >>you give them insulin? " It is the same with our kids. They are really ill and > > >>need strong medicine to help them. Then there are the parents who finally > > >>realize the right path and start the medical with Dr. Goldberg or Dr. > > >>their kids too old to recover completely. This does not happen because their > > >>parents weren't trying to help them but because they were wasting time on doing > > >>other things because those were all they knew about. I guess we can tell > > >>parents about the successes of our children, but ultimately they must decide the > > >>what they think is right for their children. > > >> > > > >> > > > >> > > > >> > But keep talking. If our nagging helps even one child it is worth it. > > >> > > > >> > Best, > > >> > > > >> > Marcia Hinds > > >> > > > >> > > > >> > > > >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 My son took Prozac for two months with nothing good to report. I think behavior was worse, but I'm not sure it was the Prozac. He became manic and crazy on Strattera. He was drugged on Risperadal. Adderral allows him to concentrate and maintain his composure at school. Of all the things we have tried these made a noticable, positive difference: 1. Secretin infusions (porcine) 2. No-Phenol 3. Peptidase 4. Vit A and Bethanocol 5. Colostrum Gold 6. Flagyl 7. Homedics Homeopathy 8. Removing dairy and rice 9. Auditory Training (Berard method) Those are the things we did that caused less bowel problems, weight gain (badly needed), calmer behavior, language spikes, and improved eye contact/joint attention. I would love to get the imput of Dr. Goldberg, but will never be able to afford it. While I'm sure I've wasted a lot of money on various supplements, I don't think we did any damage in trying them. I take the supplements my son takes as well, so that I am aware of how they can effect him. > > I am hearing your nagging and you've definitely got my attention. So how would > this be a better option over homeopathy? Some of those links regarding SSRIs > are heavy duty stuff. What would be his alternative for people who can not > tolerate SSRI? My son is making nice steady gains on a small number of supps. > His language is well established and thankfully, we've never had any GI issues, > so I might consider another holiday away from supps for a while, but I'd need to > hear a great argument for ssri and a back up plan when that is not tolerated. > Thanks! > -Tammy > > > > > > > ________________________________ > > To: Sloan_smith@...; mb12 valtrex > Sent: Thu, August 12, 2010 8:51:53 PM > Subject: Dr. Goldberg > > > Sloan, > I think everything you said in your post is true. My son is recovered as a > result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > flew across the country to see Sidney Baker who started the DAN protocol. > Although what he did helped my son, it was not even close to the improvement my > son saw with Dr. Goldberg. > > My son is now recovered as a result of the medical treatment Dr. Goldberg > provided. is 21, in college, has friends and even had a girlfriend. It is > hard to believe this is the same kid who was in the third percentile for speech > when he started Kindergarten. Back then I wouldn’t have believed that someday > my son would be one of the people I find most interesting to talk to and be able > to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > for an independent life not in a group home or institution. > > I ache for parents whose children are not recovered like mine. Sloan, I feel > your same frustration because we found the way to help our children and want > that for all kids. Unfortunately other parents are not there yet and continue > to waste valuable time. > > > We both know the parents on this list are desperately trying to help their > children but just don’t realize yet that what they are doing will not have the > long term effects they are hoping for. I just hope they realize time is of the > essence. The older a child is when they start with a doctor like Dr. Goldberg > in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > longer a child is sick, the longer it takes for him/or her to get better. > Unfortunately, there are some parents who work tirelessly, do the medical and > behavioral interventions and their children's immune systems are too compromised > to have complete recovery. But the children I hurt most for are the ones whose > parents haven't given them a shot by trying the medical because they are too > afraid to give their kids the medications they need. > > > Instead, these parents are stuffing them with hundreds of supplements that > ultimately will cost thousands of dollars and not get the job done. Our kids > are extremely ill and it takes serious medicines to help them get better. In > the beginning I too was afraid of the long term effects of the medications, but > now I know without them my son would have never had recovered. When I was > afraid of the medications. Dr. G asked me “ If your child had diabetes would > you give them insulin?†It is the same with our kids. They are really ill and > need strong medicine to help them. Then there are the parents who finally > realize the right path and start the medical with Dr. Goldberg or Dr. > their kids too old to recover completely. This does not happen because their > parents weren’t trying to help them but because they were wasting time on doing > other things because those were all they knew about. I guess we can tell > parents about the successes of our children, but ultimately they must decide the > what they think is right for their children. > > But keep talking. If our nagging helps even one child it is worth it. > Best, > Marcia Hinds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 If your son did well on Flagyl, suspect protozoa and/or bad bacteria. Zithromax kills some of the same thing Flagyl does, so that is also an idea. But, there are also many herbals and such to address bad bacteria and protozoa. Love and prayers, Heidi N " Of all the things we have tried these made a noticable, positive difference: 1. Secretin infusions (porcine) 2. No-Phenol 3. Peptidase 4. Vit A and Bethanocol 5. Colostrum Gold 6. Flagyl " > > > > I am hearing your nagging and you've definitely got my attention. So how would > > this be a better option over homeopathy? Some of those links regarding SSRIs > > are heavy duty stuff. What would be his alternative for people who can not > > tolerate SSRI? My son is making nice steady gains on a small number of supps. > > His language is well established and thankfully, we've never had any GI issues, > > so I might consider another holiday away from supps for a while, but I'd need to > > hear a great argument for ssri and a back up plan when that is not tolerated. > > Thanks! > > -Tammy > > > > > > > > > > > > > > ________________________________ > > From: and Marcia Hinds <hindssite@> > > To: Sloan_smith@; mb12 valtrex > > Sent: Thu, August 12, 2010 8:51:53 PM > > Subject: Dr. Goldberg > > > > > > Sloan, > > I think everything you said in your post is true. My son is recovered as a > > result of seeing Dr. Goldberg. I too started with DAN. As a matter of fact, I > > flew across the country to see Sidney Baker who started the DAN protocol. > > Although what he did helped my son, it was not even close to the improvement my > > son saw with Dr. Goldberg. > > > > My son is now recovered as a result of the medical treatment Dr. Goldberg > > provided. is 21, in college, has friends and even had a girlfriend. It is > > hard to believe this is the same kid who was in the third percentile for speech > > when he started Kindergarten. Back then I wouldn’t have believed that someday > > my son would be one of the people I find most interesting to talk to and be able > > to make me laugh uncontrollably. When he was first diagnosed, I was just hoping > > for an independent life not in a group home or institution. > > > > I ache for parents whose children are not recovered like mine. Sloan, I feel > > your same frustration because we found the way to help our children and want > > that for all kids. Unfortunately other parents are not there yet and continue > > to waste valuable time. > > > > > > We both know the parents on this list are desperately trying to help their > > children but just don’t realize yet that what they are doing will not have the > > long term effects they are hoping for. I just hope they realize time is of the > > essence. The older a child is when they start with a doctor like Dr. Goldberg > > in Tarzana or Dr. in Port Arkansas, TX the harder recovery is. The > > longer a child is sick, the longer it takes for him/or her to get better. > > Unfortunately, there are some parents who work tirelessly, do the medical and > > behavioral interventions and their children's immune systems are too compromised > > to have complete recovery. But the children I hurt most for are the ones whose > > parents haven't given them a shot by trying the medical because they are too > > afraid to give their kids the medications they need. > > > > > > Instead, these parents are stuffing them with hundreds of supplements that > > ultimately will cost thousands of dollars and not get the job done. Our kids > > are extremely ill and it takes serious medicines to help them get better. In > > the beginning I too was afraid of the long term effects of the medications, but > > now I know without them my son would have never had recovered. When I was > > afraid of the medications. Dr. G asked me “ If your child had diabetes would > > you give them insulin?†It is the same with our kids. They are really ill and > > need strong medicine to help them. Then there are the parents who finally > > realize the right path and start the medical with Dr. Goldberg or Dr. > > their kids too old to recover completely. This does not happen because their > > parents weren’t trying to help them but because they were wasting time on doing > > other things because those were all they knew about. I guess we can tell > > parents about the successes of our children, but ultimately they must decide the > > what they think is right for their children. > > > > But keep talking. If our nagging helps even one child it is worth it. > > Best, > > Marcia Hinds > > > Quote Link to comment Share on other sites More sharing options...
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