Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 na: I have never had dizziness with my PLS. But, I just feel off balance now and then. You very likely have an inner ear infection, or something like that. Take care, Laurel dizziness has any one suffered with dizzyness i had this a few times a couple of years ago and to day for no reason it just came over me at work and i couldnt shake it off so had to come home but before i go to my doctor and my neuron visit on the 20 this month i wanted to ask you,s first because they fob every thing off as nothing to do with p.l.s na Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 My husband also had problems with being dizzy went to the hospital a few times for falls and had to get sewn up. Doctors did some test and found that it was his vassal vatic nerve which is something we all have some are just more sensitive then others is what causes some people to get dizzy when in church or in a crowd. Was really bad for him as a child was a good catholic so spend a lot of time in church smelling the incense burning. With him meant he was outside most of the time. So he now takes a medication for this which is really an antidepressant. So not sure if there is a connection there also. Will don't know if this helps anyone just thought I would send the info along. Thanks Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 na, I am dizzy a lot. I think it has a lot to do with all the falls and hitting my head, but my family thinks I may have always been dizzy or maybe they think I am just ditzy. I fell a few weeks ago and I have had trouble ever sense. Of resent I have only felt safe in my wheel chair out side my home. When I hit my head this time I was nocked out in the garage and it took my 2 hours to get 10 feet back into the house. I had to call someone to get back up and I was sick for a few days. I am so scared to go in the garage now that I get quite dizzy just looking at. I also get dizzy if I don't eat properly (even just sitting). I have found that I need to make myself eat something (healthy) every couple hours. Take care, B. Oregon ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 I've had this happen recently. Dr. said I could be hypoglycemic (sp?), and need to eat a snack around 10am and 3 pm. It eliminated that problem. But now I'm putting on more weight! Alan Kirk dizziness has any one suffered with dizzyness i had this a few times a couple of years ago and to day for no reason it just came over me at work and i couldnt shake it off so had to come home but before i go to my doctor and my neuron visit on the 20 this month i wanted to ask you,s first because they fob every thing off as nothing to do with p.l.s na Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 , Thanks for caring! No I didn't go to the Dr.. They really don't care! I am going to a new Dr. on the 28th so will see if she thinks any thing is wrong. I have had low blood pressure most of my life. I was told to just move slowly. I have no choice now but I still get dizzy. My head still hurts so I will take it easy and use my wheel chair more. I have been using my Jazzy on the main floor of the house. The woodwork, walls, and cupboards are taking a beating but I am getting better every day. My daughter and I will be going to Disney Land and Sea World for Spring brake. Do you live close and would you like to meet ? March 22-28th Thank You again and take care, B. Oregon ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 When I hit my head this time I was nocked out in > the garage and it took my 2 hours to get 10 feet back into the house. PLEASE..PLEASE...PLEASE...will all of us,with this balance (dizzy) problem get a cell phone and carry it 24 hours a day. The consultant from the local ALS society suggested this to me. I had already had one, but didn't always have it with me. Now when I fall I can call someone to help me. it is never out of my pocket!! I think that balance is probably my worst problem. it only makes my walking worse since I am staggering and bouncing off everything in my path. And then I often get the inner ear problem and that makes the dizziness/balance even worse. Please take great care with this particular part of our PLS. when you can't walk well and add dizziness and lack of balance to the mix we can find ourselves getting terribly hurt. maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 , My P.T. suggested eating salted peanuts to help with my blood pressure problem. It worked! I don't eat much salt to begin with so it wasn't worried about that. I would love to see you and your daughter while you are here. You'll have to go withing spittin distance of my house on your way to Sea World. We will have to get together while you are here. Where are you staying? Good luck with the new doctor. It is their job to care! If they don't care, then it really is time to find someone who does. Thomson ===== Thomson, Solana Beach, CA www.als-pls.org www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 When I was dizzy it was because of low blood pressure. And Zanaflex was causing that. So now I take a lower dose of it when I have to be up and about. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 I had long standing experience with incapacitating dizziness. Mine was successfully treated by my physical therapist (just two sessions) with the Epley maneuver. It was very easy, not uncomfortable nor unpleasant. Not all PTs are familiar with the maneuver, so you may have to do some searching for one who is skilled in that procedure. It seems that debris collects in the inner ear, causing a condition called Benign Paroxysmal Positional Vertigo (BPPV). When you change position these little flecks (of calcium carbonate) move causing symptoms of lightheadedness, dizziness, imbalance and nausea. You can also do vestibular exercises at home. There is a good explanation BPPV at the web-site www.physicaltherapy.about.com Go to the list at the left and click on to Vestibular Rehab. Actually, there is lots of interesting stuff on the physical therapy site. I hope this will be the answer for some of the folks who have this condition. I know it is an awful feeling. Dolores Carron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 , My computer died and Juno will no let me send so I will keep trying. Thank you for the reply. I will be staying at the Anaheim Hilton. We are going to Sea World on the 23rd,24th or the 25th. I think we will make it a day trip or we could stay over night. If you have sometime on one of these days we can plan a time to meet. It would be nice to meet you. I will try the nuts but I have a weight problem and I also try to stay away from salt. I don't think I could stop at just a few nuts. Thank you so much for all of you help! B. Oregon ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
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