Question

[Guest guest]

Robin,

Welcome.

Good question. Last time I saw my ob/gyn, his nurse

told me I have TLS also.

I am planning my TR for early next year.

__________________________________________________

[Guest guest]

Robin,

Welcome.

Good question. Last time I saw my ob/gyn, his nurse

told me I have TLS also.

I am planning my TR for early next year.

__________________________________________________

[Guest guest]

Robin,

Welcome.

Good question. Last time I saw my ob/gyn, his nurse

told me I have TLS also.

I am planning my TR for early next year.

__________________________________________________

[Guest guest]

--Wish I would have known about the TLS syndrome and a reversal at

tax season,could've used that money for the TR. Now it's gonna seem

like ages before it ever happens. If I would have known of TLS before

the TL I would have never let the family talk me into it to begin

with. I understand that there is no 100 percent chance of ever

conceiving even after a TR but if god wishes who this not to happen

at least I will be whole again and hopefully the TLS will diminish.

robin

- In TubalLigationReversal@y..., &

<lorak2000@y...> wrote:

> Robin,

> Welcome.

> Good question. Last time I saw my ob/gyn, his nurse

> told me I have TLS also.

>

> I am planning my TR for early next year.

>

>

>

>

> __________________________________________________

>

[Guest guest]

--Wish I would have known about the TLS syndrome and a reversal at

tax season,could've used that money for the TR. Now it's gonna seem

like ages before it ever happens. If I would have known of TLS before

the TL I would have never let the family talk me into it to begin

with. I understand that there is no 100 percent chance of ever

conceiving even after a TR but if god wishes who this not to happen

at least I will be whole again and hopefully the TLS will diminish.

robin

- In TubalLigationReversal@y..., &

<lorak2000@y...> wrote:

> Robin,

> Welcome.

> Good question. Last time I saw my ob/gyn, his nurse

> told me I have TLS also.

>

> I am planning my TR for early next year.

>

>

>

>

> __________________________________________________

>

[Guest guest]

--Wish I would have known about the TLS syndrome and a reversal at

tax season,could've used that money for the TR. Now it's gonna seem

like ages before it ever happens. If I would have known of TLS before

the TL I would have never let the family talk me into it to begin

with. I understand that there is no 100 percent chance of ever

conceiving even after a TR but if god wishes who this not to happen

at least I will be whole again and hopefully the TLS will diminish.

robin

- In TubalLigationReversal@y..., &

<lorak2000@y...> wrote:

> Robin,

> Welcome.

> Good question. Last time I saw my ob/gyn, his nurse

> told me I have TLS also.

>

> I am planning my TR for early next year.

>

>

>

>

> __________________________________________________

>

[Guest guest]

AF is Aunt Flo or your period. I'm still learning too. It is like another

language.

question

What is AF ive still not got all the abrev. down pack yet lol .

And another question ........How do u know if your still Oing and how u can

tell when u are ? lol im slow to lol just got up

---------------------------------

[Guest guest]

AF is Aunt Flo or your period. I'm still learning too. It is like another

language.

question

What is AF ive still not got all the abrev. down pack yet lol .

And another question ........How do u know if your still Oing and how u can

tell when u are ? lol im slow to lol just got up

---------------------------------

[Guest guest]

Hi , You can buy a basal body thermometer for

pretty cheap at the most pharmacys. You should start

taking your temp on the first day after you get your

period. Take you temp by mouth after at least 4 hours

of steady sleep, before you get up at all. There is a

book you can get at the library called " Taking charge

of your fertility " that explains how to chart, among

other things, that will teach you so much. I learned

when I O and how long my cycles were etc.. I hope this

has helped! Luv,

TR 08/12/02 (8 days!!)

__________________________________________________

[Guest guest]

Hi , You can buy a basal body thermometer for

pretty cheap at the most pharmacys. You should start

taking your temp on the first day after you get your

period. Take you temp by mouth after at least 4 hours

of steady sleep, before you get up at all. There is a

book you can get at the library called " Taking charge

of your fertility " that explains how to chart, among

other things, that will teach you so much. I learned

when I O and how long my cycles were etc.. I hope this

has helped! Luv,

TR 08/12/02 (8 days!!)

__________________________________________________

[Guest guest]

Hi , You can buy a basal body thermometer for

pretty cheap at the most pharmacys. You should start

taking your temp on the first day after you get your

period. Take you temp by mouth after at least 4 hours

of steady sleep, before you get up at all. There is a

book you can get at the library called " Taking charge

of your fertility " that explains how to chart, among

other things, that will teach you so much. I learned

when I O and how long my cycles were etc.. I hope this

has helped! Luv,

TR 08/12/02 (8 days!!)

__________________________________________________

[Guest guest]

karen

at the drug store or walmart they have bbt , body bazil thom. and it will

have charts in with it and instructions,

start the temp firts day of af and do it same time every morning before you

get up , smoke, or bathroom, youll think this is a hassle but after a couple

of weeks youll be doing it in your sleep. also im me when we get on togather

and ill send you to a chart on line , its free and you can see it alot better

and it cal the 0 time and af time,

hope this helps love ya judy

[Guest guest]

karen

at the drug store or walmart they have bbt , body bazil thom. and it will

have charts in with it and instructions,

start the temp firts day of af and do it same time every morning before you

get up , smoke, or bathroom, youll think this is a hassle but after a couple

of weeks youll be doing it in your sleep. also im me when we get on togather

and ill send you to a chart on line , its free and you can see it alot better

and it cal the 0 time and af time,

hope this helps love ya judy

[Guest guest]

karen

at the drug store or walmart they have bbt , body bazil thom. and it will

have charts in with it and instructions,

start the temp firts day of af and do it same time every morning before you

get up , smoke, or bathroom, youll think this is a hassle but after a couple

of weeks youll be doing it in your sleep. also im me when we get on togather

and ill send you to a chart on line , its free and you can see it alot better

and it cal the 0 time and af time,

hope this helps love ya judy

[Guest guest]

A Basal thermometer is more accurate. I preferred to take it by mouth and I did

take it every day of the month to get a clear picture.

in MI

DD 4/91

DD 6/94

TL 6/94

TR 4/02

EDD 3/03

Question

Does anyone know what type of thermometer I should use and should I use it by

mouth or how? I know I use it before I move in the morning. I want to start

charting. My savings are growning (some) and I want to get a good idea of

when I O. I also need to learn how many days my cycle is. Also do you check

your temp everyday of the month or just certain days? Thanks for helping me

out in advance. Huggs, ~

[Guest guest]

I was curious about the Nissen procedure. The doctors decided against it for

my son, . He has done very well with the J-tube. His feeding tube

by-passes his stomach completely. He had reflux so terrible. He was

constantly throwing up when he was a new born and up until about 5 months of

age. He has continuely improved since the tube was placed into his

intestines and out from his nose. The NJ tube was horrible. Very traumatic

each and every time we had to replace the tape or when it happened to get

pulled out.

Any information regarding this would be helpful. I am also not too informed

on atresia. does not suffer from this.

God bless to all.

Lynda Dean, charger mom

dean2313@...

dean2313@...

[Guest guest]

Lynda,

I am not sure if this post was addressed to me but I thought I

would answer it to make sure. Brittney only had a g-tube and back in

Febuary she had the NISSEN (a twisting of the stomach to stop acid

reflux from coming back up) I will say that it has completely

stopped the acid reflux and toned down the secretions alot. When she

gets a cold they start back up again but that is normal. When Britt

got the Nissen I could start to tell a big difference in her, the

only thing, she got dumping from it.. But she is gaining weight now

it is just taking some time. I hope that something I said answers

the ? that you were looking for, just let me know if you need

anything!! I will try to help!!

Tina Deskins

mom to Cody 2yrs, Brittney 1yr CHARgE, and wife to

Bristol, TN

> I was curious about the Nissen procedure. The doctors decided

against it for

> my son, . He has done very well with the J-tube. His

feeding tube

> by-passes his stomach completely. He had reflux so terrible. He

was

> constantly throwing up when he was a new born and up until about 5

months of

> age. He has continuely improved since the tube was placed into

his

> intestines and out from his nose. The NJ tube was horrible. Very

traumatic

> each and every time we had to replace the tape or when it happened

to get

> pulled out.

>

> Any information regarding this would be helpful. I am also not

too informed

> on atresia. does not suffer from this.

>

> God bless to all.

>

> Lynda Dean, charger mom

> dean2313@a...

> dean2313@y...

>

>

>

[Guest guest]

Lynda,

I am not sure if this post was addressed to me but I thought I

would answer it to make sure. Brittney only had a g-tube and back in

Febuary she had the NISSEN (a twisting of the stomach to stop acid

reflux from coming back up) I will say that it has completely

stopped the acid reflux and toned down the secretions alot. When she

gets a cold they start back up again but that is normal. When Britt

got the Nissen I could start to tell a big difference in her, the

only thing, she got dumping from it.. But she is gaining weight now

it is just taking some time. I hope that something I said answers

the ? that you were looking for, just let me know if you need

anything!! I will try to help!!

Tina Deskins

mom to Cody 2yrs, Brittney 1yr CHARgE, and wife to

Bristol, TN

> I was curious about the Nissen procedure. The doctors decided

against it for

> my son, . He has done very well with the J-tube. His

feeding tube

> by-passes his stomach completely. He had reflux so terrible. He

was

> constantly throwing up when he was a new born and up until about 5

months of

> age. He has continuely improved since the tube was placed into

his

> intestines and out from his nose. The NJ tube was horrible. Very

traumatic

> each and every time we had to replace the tape or when it happened

to get

> pulled out.

>

> Any information regarding this would be helpful. I am also not

too informed

> on atresia. does not suffer from this.

>

> God bless to all.

>

> Lynda Dean, charger mom

> dean2313@a...

> dean2313@y...

>

>

>

[Guest guest]

sue,

I just wnated to say that Sierra's continual recurrences with illnesses

is typical for CHARGE kids. My son was in and out of the intensive care all

the time for the first two years. In the beginning, the kids tend to be so

sick and there bodies are weak so they catch everything. Surgeries also

compromise their strength and their ability to ward off viruses. I remember

how careful we were to keep Bryce away from anyone with even a cold, but he

still ended up back in the PICU every 2-3 weeks for a while. BUT THE GOOD

NEWS IS, now he is almost never sick. Really, since he was 2 1/2 (he is now

5) he is quite healthy. He gets a lot of sinus infections so still needs

anti-biotics for those but that is due to his cleft palate anatomy. Almost

all CHARGERs are very sick in the beginning but then take a dramatic turn for

the better after the first year or two. Then the little CHARGERS start to

charm the pants off of everyone. The first years are really tough.

Deedee

[Guest guest]

As far as the suctioning goes we have a lot of experience. Unfortunately,

the only way to get Jillyan's airway clear was with the suction machine. If

you are concerned about introducing germs you can change out the suctioning

catheter every time after each use. With Jillyan's choanal atresia the bulb

suction was a waste of our time if we wanted some sleep -- and if she wanted

some sleep. Her secretions remained quite thick and constant for about the

first six months. Then after that we probably suctioned her in the morning

and at night. At about 8 months of age we gave back the suction machine and

the very next day she got an upper respiratory infection requiring an ER

visit because we could not clear her airway with the bulb syringe and after

that we got a nebulizer to open her up. Starting in June all of a sudden

her secretions went away -- or she learned to deal with them -- either way

it has been great. Of course this is all after two laser surgeries to

reopen her nose (1 was 1 month after her tubes came out and the other was 6

months later -- both times the scar tissue began to block her nose again).

Best of luck.

Huggins

Wife to Robin, Mom to Hailey (5), Jillyan (15 months)

Question

My granddaughter Sierra has gone home from the hospital twice now and

within 22 hours (the first time, 48 the second time) she is back in the

NICU. It seems Sierra can't stay well more than 5 or 6 days. She has had

a

UTI, NEC, sinus infection, blood infections and numerous operations. My

daughter in law asked me to write and ask all of you if any of your little

CHARGERs have elevated white cell counts because their systems are always

fighting something or is this just Sierra with her immune system.(other

words is this normal for CHARGE) It has been really frustrating to my

daughter in law and son that everytime they think Sierra is healthy enough

to come home and then something else comes up. We thought for sure she

was

ready to come home this time and so did all the nurses and doctors in the

NICU and here she is back in the hospital within 48 hours of her being

discharged.

Also I know I have read about your CHARGERs having secretions. Sierra has

bilateral choanal atresia. At about 6 days old she had it lasered open

and

she wore stints in her nose for over 3 months. They took them out about a

week ago and it seems that her nose is always stuffed up. The blub

suction

just doesn't get the mucus out but we don't want to suction her with the

more invasive with the tube down her nose and throat because it introduces

more bacteria. Do you have any suggestions in what to do?

Also another queston and I know you all talked about this not long ago on

the list. Sierra doesn't seems to tolerate heat very well. How have you

dealt with this? My daughter in law is going to ask the doctor in the NICU

today to test Sierra's thyroid to see if she may have a hypothyroid.

Thanks in advance for the advise

Sue, grandma to Sierra 4 1/2 months (CHARGE)

[Guest guest]

As far as the suctioning goes we have a lot of experience. Unfortunately,

the only way to get Jillyan's airway clear was with the suction machine. If

you are concerned about introducing germs you can change out the suctioning

catheter every time after each use. With Jillyan's choanal atresia the bulb

suction was a waste of our time if we wanted some sleep -- and if she wanted

some sleep. Her secretions remained quite thick and constant for about the

first six months. Then after that we probably suctioned her in the morning

and at night. At about 8 months of age we gave back the suction machine and

the very next day she got an upper respiratory infection requiring an ER

visit because we could not clear her airway with the bulb syringe and after

that we got a nebulizer to open her up. Starting in June all of a sudden

her secretions went away -- or she learned to deal with them -- either way

it has been great. Of course this is all after two laser surgeries to

reopen her nose (1 was 1 month after her tubes came out and the other was 6

months later -- both times the scar tissue began to block her nose again).

Best of luck.

Huggins

Wife to Robin, Mom to Hailey (5), Jillyan (15 months)

Question

My granddaughter Sierra has gone home from the hospital twice now and

within 22 hours (the first time, 48 the second time) she is back in the

NICU. It seems Sierra can't stay well more than 5 or 6 days. She has had

a

UTI, NEC, sinus infection, blood infections and numerous operations. My

daughter in law asked me to write and ask all of you if any of your little

CHARGERs have elevated white cell counts because their systems are always

fighting something or is this just Sierra with her immune system.(other

words is this normal for CHARGE) It has been really frustrating to my

daughter in law and son that everytime they think Sierra is healthy enough

to come home and then something else comes up. We thought for sure she

was

ready to come home this time and so did all the nurses and doctors in the

NICU and here she is back in the hospital within 48 hours of her being

discharged.

Also I know I have read about your CHARGERs having secretions. Sierra has

bilateral choanal atresia. At about 6 days old she had it lasered open

and

she wore stints in her nose for over 3 months. They took them out about a

week ago and it seems that her nose is always stuffed up. The blub

suction

just doesn't get the mucus out but we don't want to suction her with the

more invasive with the tube down her nose and throat because it introduces

more bacteria. Do you have any suggestions in what to do?

Also another queston and I know you all talked about this not long ago on

the list. Sierra doesn't seems to tolerate heat very well. How have you

dealt with this? My daughter in law is going to ask the doctor in the NICU

today to test Sierra's thyroid to see if she may have a hypothyroid.

Thanks in advance for the advise

Sue, grandma to Sierra 4 1/2 months (CHARGE)

[Guest guest]

Thanks for the respnose Tina. Yes, you helped with the ? I appreciate it.

Lynda

mom of charger, 11 months

[Guest guest]

Thanks for the respnose Tina. Yes, you helped with the ? I appreciate it.

Lynda

mom of charger, 11 months

[Guest guest]

My daughter, , just turned two last week. She had bilateral choanal

atresia and now has one side

successfully open. I flush the closed side with a bulb syringe and saline to

keep the drainage down. As for

the open side, she seems to clear it pretty well on her own, however, she does

get " plugs " that she

eventually works. We occasionally flush the open side when it seems to be full

of " ick. " (I heat the saline

a little so it is more comfortable for her.)

had a trach for her eight months of life. She spent the first 6 weeks in

the NICU, and 2 weeks on the

" floor " before she came home for the first time. After that she was in the

hospital for 2 weeks out of every

month due to infections. That lasted for about eight months. After that she

has gotten healthier and

luckily we just go to the hospital for scheduled procedures. I think she was

just weak and very vulnerable

to infection because she had such a rough start!

Good luck.

Lori Myers

Mother to , 5, and 2 (CHARGE)

" Meckley, Sue " wrote:

> My granddaughter Sierra has gone home from the hospital twice now and

> within 22 hours (the first time, 48 the second time) she is back in the

> NICU. It seems Sierra can't stay well more than 5 or 6 days. She has had a

> UTI, NEC, sinus infection, blood infections and numerous operations. My

> daughter in law asked me to write and ask all of you if any of your little

> CHARGERs have elevated white cell counts because their systems are always

> fighting something or is this just Sierra with her immune system.(other

> words is this normal for CHARGE) It has been really frustrating to my

> daughter in law and son that everytime they think Sierra is healthy enough

> to come home and then something else comes up. We thought for sure she was

> ready to come home this time and so did all the nurses and doctors in the

> NICU and here she is back in the hospital within 48 hours of her being

> discharged.

>

> Also I know I have read about your CHARGERs having secretions. Sierra has

> bilateral choanal atresia. At about 6 days old she had it lasered open and

> she wore stints in her nose for over 3 months. They took them out about a

> week ago and it seems that her nose is always stuffed up. The blub suction

> just doesn't get the mucus out but we don't want to suction her with the

> more invasive with the tube down her nose and throat because it introduces

> more bacteria. Do you have any suggestions in what to do?

>

> Also another queston and I know you all talked about this not long ago on

> the list. Sierra doesn't seems to tolerate heat very well. How have you

> dealt with this? My daughter in law is going to ask the doctor in the NICU

> today to test Sierra's thyroid to see if she may have a hypothyroid.

>

> Thanks in advance for the advise

>

> Sue, grandma to Sierra 4 1/2 months (CHARGE)

>

>

> Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

>

>

[Guest guest]

My daughter, , just turned two last week. She had bilateral choanal

atresia and now has one side

successfully open. I flush the closed side with a bulb syringe and saline to

keep the drainage down. As for

the open side, she seems to clear it pretty well on her own, however, she does

get " plugs " that she

eventually works. We occasionally flush the open side when it seems to be full

of " ick. " (I heat the saline

a little so it is more comfortable for her.)

had a trach for her eight months of life. She spent the first 6 weeks in

the NICU, and 2 weeks on the

" floor " before she came home for the first time. After that she was in the

hospital for 2 weeks out of every

month due to infections. That lasted for about eight months. After that she

has gotten healthier and

luckily we just go to the hospital for scheduled procedures. I think she was

just weak and very vulnerable

to infection because she had such a rough start!

Good luck.

Lori Myers

Mother to , 5, and 2 (CHARGE)

" Meckley, Sue " wrote:

> My granddaughter Sierra has gone home from the hospital twice now and

> within 22 hours (the first time, 48 the second time) she is back in the

> NICU. It seems Sierra can't stay well more than 5 or 6 days. She has had a

> UTI, NEC, sinus infection, blood infections and numerous operations. My

> daughter in law asked me to write and ask all of you if any of your little

> CHARGERs have elevated white cell counts because their systems are always

> fighting something or is this just Sierra with her immune system.(other

> words is this normal for CHARGE) It has been really frustrating to my

> daughter in law and son that everytime they think Sierra is healthy enough

> to come home and then something else comes up. We thought for sure she was

> ready to come home this time and so did all the nurses and doctors in the

> NICU and here she is back in the hospital within 48 hours of her being

> discharged.

>

> Also I know I have read about your CHARGERs having secretions. Sierra has

> bilateral choanal atresia. At about 6 days old she had it lasered open and

> she wore stints in her nose for over 3 months. They took them out about a

> week ago and it seems that her nose is always stuffed up. The blub suction

> just doesn't get the mucus out but we don't want to suction her with the

> more invasive with the tube down her nose and throat because it introduces

> more bacteria. Do you have any suggestions in what to do?

>

> Also another queston and I know you all talked about this not long ago on

> the list. Sierra doesn't seems to tolerate heat very well. How have you

> dealt with this? My daughter in law is going to ask the doctor in the NICU

> today to test Sierra's thyroid to see if she may have a hypothyroid.

>

> Thanks in advance for the advise

>

> Sue, grandma to Sierra 4 1/2 months (CHARGE)

>

>

> Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

>

>