New

[Guest guest]

Hi Georgia

I have a dear friend who has been to every doctor appointment with me so far. I am working part time, and am playing it by ear to see how I feel after the treatment. I feel drained from trying to keep an upbeat positive attitude for family and friends. Sometimes I just don't feel everything is going to be fine

ellieMarco or Georgia Mannino wrote:

Just keep putting one foot in front of the other. Some days will be better than others. Do you have some family and/or friends with you for support, Dr. visits, etc? Are you working. How do you feel overall right now? Besides being overwhellmed that is...georgiawingsmom3 wrote: I have just been diagnosed with breast cancer. The last two weeks have been a blur of doctor appointments, bone scans, blood work, etc. My first chemo treatment is Sept. 1. I have everything positive about how I will feel, am I in for a biff surprise?ellie

Do you Yahoo!?Yahoo! Mail Address AutoComplete - You start. We finish. __________________________________________________

[Guest guest]

Hi Georgia

I have a dear friend who has been to every doctor appointment with me so far. I am working part time, and am playing it by ear to see how I feel after the treatment. I feel drained from trying to keep an upbeat positive attitude for family and friends. Sometimes I just don't feel everything is going to be fine

ellieMarco or Georgia Mannino wrote:

Just keep putting one foot in front of the other. Some days will be better than others. Do you have some family and/or friends with you for support, Dr. visits, etc? Are you working. How do you feel overall right now? Besides being overwhellmed that is...georgiawingsmom3 wrote: I have just been diagnosed with breast cancer. The last two weeks have been a blur of doctor appointments, bone scans, blood work, etc. My first chemo treatment is Sept. 1. I have everything positive about how I will feel, am I in for a biff surprise?ellie

Do you Yahoo!?Yahoo! Mail Address AutoComplete - You start. We finish. __________________________________________________

[Guest guest]

Dear Wingsmom --

I'm with you, having been diagnosed in July 2004 with infiltrating ductal carcinoma about 2.5 cm. Am having surgery this week and begin chemo at the end of Sept. I live alone and have only the small strain of having to explain and keep the "upbeat positive attitude" with just a few friends and relatives. I'm probably out of work for the duration with nothing much to do (need ideas for positive activities), so you'll probably see me at this site a lot. See ya', and hope for the best for you and all.

Janie

[Guest guest]

Dear Wingsmom --

I'm with you, having been diagnosed in July 2004 with infiltrating ductal carcinoma about 2.5 cm. Am having surgery this week and begin chemo at the end of Sept. I live alone and have only the small strain of having to explain and keep the "upbeat positive attitude" with just a few friends and relatives. I'm probably out of work for the duration with nothing much to do (need ideas for positive activities), so you'll probably see me at this site a lot. See ya', and hope for the best for you and all.

Janie

[Guest guest]

Dear Wingsmom --

I'm with you, having been diagnosed in July 2004 with infiltrating ductal carcinoma about 2.5 cm. Am having surgery this week and begin chemo at the end of Sept. I live alone and have only the small strain of having to explain and keep the "upbeat positive attitude" with just a few friends and relatives. I'm probably out of work for the duration with nothing much to do (need ideas for positive activities), so you'll probably see me at this site a lot. See ya', and hope for the best for you and all.

Janie

[Guest guest]

These are normal feelings. We all want to make it easier on family and friends. Thats why this place was so important to me when I was starting my journey. I could come here and tell them all my fears and ask questions that no one else could answer unless they were going thru it or had been thru it. I had a wonderful family with lots of loving support. But coming here really gave me a boost!

(((BIG HUG))) ~Lala~ ^^Å^^ ^^å^^Yesterday is the past Tomorrow is the future Today is a "Gift" That is why itis called the "Present"

Hi Georgia

I have a dear friend who has been to every doctor appointment with me so far. I am working part time, and am playing it by ear to see how I feel after the treatment. I feel drained from trying to keep an upbeat positive attitude for family and friends. Sometimes I just don't feel everything is going to be fine

ellie

[Guest guest]

These are normal feelings. We all want to make it easier on family and friends. Thats why this place was so important to me when I was starting my journey. I could come here and tell them all my fears and ask questions that no one else could answer unless they were going thru it or had been thru it. I had a wonderful family with lots of loving support. But coming here really gave me a boost!

(((BIG HUG))) ~Lala~ ^^Å^^ ^^å^^Yesterday is the past Tomorrow is the future Today is a "Gift" That is why itis called the "Present"

Hi Georgia

I have a dear friend who has been to every doctor appointment with me so far. I am working part time, and am playing it by ear to see how I feel after the treatment. I feel drained from trying to keep an upbeat positive attitude for family and friends. Sometimes I just don't feel everything is going to be fine

ellie

[Guest guest]

After signing up for the Orange County plastic surgery website I was

directed to this site.

Has anyone had plastic surgery? Can you share your surgeons name and

prices for a self pay.

Where you at your goal weight? I am 35 pounds to goal but stuck at a

year long plateau.

What are the best kind of breast implants to get. Has anyone gotten

saline and regretted it. Are silicone implants still available in the

US?

What about plastic surgery out of the country?

Kristy

[Guest guest]

Really a plateau. I am 25 from goal and thought it was not exercising, along

with some poor choices I have made with food.

Haven't had PS.

Darcy

homie_hawaiian wrote:

After signing up for the Orange County plastic surgery website I was

directed to this site.

Has anyone had plastic surgery? Can you share your surgeons name and

prices for a self pay.

Where you at your goal weight? I am 35 pounds to goal but stuck at a

year long plateau.

What are the best kind of breast implants to get. Has anyone gotten

saline and regretted it. Are silicone implants still available in the

US?

What about plastic surgery out of the country?

Kristy

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please stay with us!

Any questions?

Please contact Group Creator/Moderator

Robyn@...

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

[Guest guest]

Really a plateau. I am 25 from goal and thought it was not exercising, along

with some poor choices I have made with food.

Haven't had PS.

Darcy

homie_hawaiian wrote:

After signing up for the Orange County plastic surgery website I was

directed to this site.

Has anyone had plastic surgery? Can you share your surgeons name and

prices for a self pay.

Where you at your goal weight? I am 35 pounds to goal but stuck at a

year long plateau.

What are the best kind of breast implants to get. Has anyone gotten

saline and regretted it. Are silicone implants still available in the

US?

What about plastic surgery out of the country?

Kristy

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please stay with us!

Any questions?

Please contact Group Creator/Moderator

Robyn@...

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

[Guest guest]

Really a plateau. I am 25 from goal and thought it was not exercising, along

with some poor choices I have made with food.

Haven't had PS.

Darcy

homie_hawaiian wrote:

After signing up for the Orange County plastic surgery website I was

directed to this site.

Has anyone had plastic surgery? Can you share your surgeons name and

prices for a self pay.

Where you at your goal weight? I am 35 pounds to goal but stuck at a

year long plateau.

What are the best kind of breast implants to get. Has anyone gotten

saline and regretted it. Are silicone implants still available in the

US?

What about plastic surgery out of the country?

Kristy

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please stay with us!

Any questions?

Please contact Group Creator/Moderator

Robyn@...

To visit your group on the web, go to:

http://groups.yahoo.com/group/GastricBypass-LOSERS/

[Guest guest]

Thanks Joyce I appreciate your welcome and kindness. What bothers me

is no one seems to be overly worried about this accept me. They just

say I am not dieing and that we will watch it. Well the point is I

want to catch it before it goes anywhere.

Yes I have experience with disease. I was diagnosed with RA in 2001

which was 6 months after i got out of the hospital with Flesh Eating

Bacteria, I was very sick and that scar on my arm was my daily

reminder that life is too short. Maybe I didnt learn enough from

that because then the RA came, then Fibromyalgia, then all these

infections that require me to be hospitalized. Then the Pulmonary

Fibrosis.

I plan on being around for a long time to be here when my children

get married and my 2 grandsons graduate from high school and so

forth, I am stubborn so I will do what I have to so I can make it.

It I have to hound a 100 million doctors until then I will.

My question is should I be hounding them NOW or do I just sit and

watch this?

Thanks so much!

Sandie

> >

> > Hi all,

> >

> > My name is Sandie and I was just diagnosed with Pulmonary

Fibrosis,

> > waiting to go to the Mayo Clinic because I also have RA and I am

> unable

> > to fight off infections. I am 36 years old.

> >

> > My questions are this. Since I have hounded doctors to listen to

me

> > that something is wrong finally one of them sent me in for all

these

> > tests and found the minimal honeycombing on my lung. He said its

> > minimal and I am not dieing yet nonetheless its still pulmonary

> > fibrosis and because everyone is so different they just have to

watch

> > and see what will happen. I dont think thats right because what I

have

> > read is that once it goes into advanced stage there is nothing

they

> can

> > do because there is no cure. What should I be doing now?

> >

> > Thanks so much

> >

> > Sandie

> >

>

[Guest guest]

Thanks Joyce I appreciate your welcome and kindness. What bothers me

is no one seems to be overly worried about this accept me. They just

say I am not dieing and that we will watch it. Well the point is I

want to catch it before it goes anywhere.

Yes I have experience with disease. I was diagnosed with RA in 2001

which was 6 months after i got out of the hospital with Flesh Eating

Bacteria, I was very sick and that scar on my arm was my daily

reminder that life is too short. Maybe I didnt learn enough from

that because then the RA came, then Fibromyalgia, then all these

infections that require me to be hospitalized. Then the Pulmonary

Fibrosis.

I plan on being around for a long time to be here when my children

get married and my 2 grandsons graduate from high school and so

forth, I am stubborn so I will do what I have to so I can make it.

It I have to hound a 100 million doctors until then I will.

My question is should I be hounding them NOW or do I just sit and

watch this?

Thanks so much!

Sandie

> >

> > Hi all,

> >

> > My name is Sandie and I was just diagnosed with Pulmonary

Fibrosis,

> > waiting to go to the Mayo Clinic because I also have RA and I am

> unable

> > to fight off infections. I am 36 years old.

> >

> > My questions are this. Since I have hounded doctors to listen to

me

> > that something is wrong finally one of them sent me in for all

these

> > tests and found the minimal honeycombing on my lung. He said its

> > minimal and I am not dieing yet nonetheless its still pulmonary

> > fibrosis and because everyone is so different they just have to

watch

> > and see what will happen. I dont think thats right because what I

have

> > read is that once it goes into advanced stage there is nothing

they

> can

> > do because there is no cure. What should I be doing now?

> >

> > Thanks so much

> >

> > Sandie

> >

>

[Guest guest]

Thanks Joyce I appreciate your welcome and kindness. What bothers me

is no one seems to be overly worried about this accept me. They just

say I am not dieing and that we will watch it. Well the point is I

want to catch it before it goes anywhere.

Yes I have experience with disease. I was diagnosed with RA in 2001

which was 6 months after i got out of the hospital with Flesh Eating

Bacteria, I was very sick and that scar on my arm was my daily

reminder that life is too short. Maybe I didnt learn enough from

that because then the RA came, then Fibromyalgia, then all these

infections that require me to be hospitalized. Then the Pulmonary

Fibrosis.

I plan on being around for a long time to be here when my children

get married and my 2 grandsons graduate from high school and so

forth, I am stubborn so I will do what I have to so I can make it.

It I have to hound a 100 million doctors until then I will.

My question is should I be hounding them NOW or do I just sit and

watch this?

Thanks so much!

Sandie

> >

> > Hi all,

> >

> > My name is Sandie and I was just diagnosed with Pulmonary

Fibrosis,

> > waiting to go to the Mayo Clinic because I also have RA and I am

> unable

> > to fight off infections. I am 36 years old.

> >

> > My questions are this. Since I have hounded doctors to listen to

me

> > that something is wrong finally one of them sent me in for all

these

> > tests and found the minimal honeycombing on my lung. He said its

> > minimal and I am not dieing yet nonetheless its still pulmonary

> > fibrosis and because everyone is so different they just have to

watch

> > and see what will happen. I dont think thats right because what I

have

> > read is that once it goes into advanced stage there is nothing

they

> can

> > do because there is no cure. What should I be doing now?

> >

> > Thanks so much

> >

> > Sandie

> >

>

[Guest guest]

Never just sit and watch.......it all passes you by

You've definitely had more than your share of disease. Continue to

hound all of us and doctors and anyone else you need to in order to

manage and live your life the best you possibly can. If we sit and

watch we feel like victims, we lose all our sense of empowerment. I'm

new to this but I learn more every day. I know I don't ultimately

control my death.....no one does. My control of my medical condition

is also limited. However, there is no limit to my control over how I

choose to live my life. I shall learn everything possible, listen,

ask questions, hound (even if I have to change doctors to one more

acceptable to hounding).

> > >

> > > Hi all,

> > >

> > > My name is Sandie and I was just diagnosed with Pulmonary

> Fibrosis,

> > > waiting to go to the Mayo Clinic because I also have RA and I am

> > unable

> > > to fight off infections. I am 36 years old.

> > >

> > > My questions are this. Since I have hounded doctors to listen

to

> me

> > > that something is wrong finally one of them sent me in for all

> these

> > > tests and found the minimal honeycombing on my lung. He said its

> > > minimal and I am not dieing yet nonetheless its still pulmonary

> > > fibrosis and because everyone is so different they just have to

> watch

> > > and see what will happen. I dont think thats right because what

I

> have

> > > read is that once it goes into advanced stage there is nothing

> they

> > can

> > > do because there is no cure. What should I be doing now?

> > >

> > > Thanks so much

> > >

> > > Sandie

> > >

> >

>

[Guest guest]

Never just sit and watch.......it all passes you by

You've definitely had more than your share of disease. Continue to

hound all of us and doctors and anyone else you need to in order to

manage and live your life the best you possibly can. If we sit and

watch we feel like victims, we lose all our sense of empowerment. I'm

new to this but I learn more every day. I know I don't ultimately

control my death.....no one does. My control of my medical condition

is also limited. However, there is no limit to my control over how I

choose to live my life. I shall learn everything possible, listen,

ask questions, hound (even if I have to change doctors to one more

acceptable to hounding).

> > >

> > > Hi all,

> > >

> > > My name is Sandie and I was just diagnosed with Pulmonary

> Fibrosis,

> > > waiting to go to the Mayo Clinic because I also have RA and I am

> > unable

> > > to fight off infections. I am 36 years old.

> > >

> > > My questions are this. Since I have hounded doctors to listen

to

> me

> > > that something is wrong finally one of them sent me in for all

> these

> > > tests and found the minimal honeycombing on my lung. He said its

> > > minimal and I am not dieing yet nonetheless its still pulmonary

> > > fibrosis and because everyone is so different they just have to

> watch

> > > and see what will happen. I dont think thats right because what

I

> have

> > > read is that once it goes into advanced stage there is nothing

> they

> > can

> > > do because there is no cure. What should I be doing now?

> > >

> > > Thanks so much

> > >

> > > Sandie

> > >

> >

>

[Guest guest]

Never just sit and watch.......it all passes you by

You've definitely had more than your share of disease. Continue to

hound all of us and doctors and anyone else you need to in order to

manage and live your life the best you possibly can. If we sit and

watch we feel like victims, we lose all our sense of empowerment. I'm

new to this but I learn more every day. I know I don't ultimately

control my death.....no one does. My control of my medical condition

is also limited. However, there is no limit to my control over how I

choose to live my life. I shall learn everything possible, listen,

ask questions, hound (even if I have to change doctors to one more

acceptable to hounding).

> > >

> > > Hi all,

> > >

> > > My name is Sandie and I was just diagnosed with Pulmonary

> Fibrosis,

> > > waiting to go to the Mayo Clinic because I also have RA and I am

> > unable

> > > to fight off infections. I am 36 years old.

> > >

> > > My questions are this. Since I have hounded doctors to listen

to

> me

> > > that something is wrong finally one of them sent me in for all

> these

> > > tests and found the minimal honeycombing on my lung. He said its

> > > minimal and I am not dieing yet nonetheless its still pulmonary

> > > fibrosis and because everyone is so different they just have to

> watch

> > > and see what will happen. I dont think thats right because what

I

> have

> > > read is that once it goes into advanced stage there is nothing

> they

> > can

> > > do because there is no cure. What should I be doing now?

> > >

> > > Thanks so much

> > >

> > > Sandie

> > >

> >

>

[Guest guest]

To Sandie from Sher...I was diagnosed (Dx) with IPF 3-06 and have had minimal progression since. We are all different. I've asked my Dr. if maybe I DON"T have IPF since there has been no progression. He says I definitely have ILD (interstitial lung disease) but now he's not sure it's IPF. We can't know without a lung-bio and so far I've been unwilling.

I'm sorry to hear you are so young, with this disease to deal with. There are other young people on the board.

Keep reading and asking questions. Get a GOOD Dr. who shows compassion and then just go one day at a time

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

To Sandie from Sher...I was diagnosed (Dx) with IPF 3-06 and have had minimal progression since. We are all different. I've asked my Dr. if maybe I DON"T have IPF since there has been no progression. He says I definitely have ILD (interstitial lung disease) but now he's not sure it's IPF. We can't know without a lung-bio and so far I've been unwilling.

I'm sorry to hear you are so young, with this disease to deal with. There are other young people on the board.

Keep reading and asking questions. Get a GOOD Dr. who shows compassion and then just go one day at a time

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Sandie,

My opinion is NO, you should not sit around to see what is happening next. If your doctor is reasonably sure that you have pulmonary fibrosis and that honeycombing is already present, then it is time to get your fatigues on and go to war.

You need to find a teaching hospital or at least a pulmonary doctor that is familiar with interstitial lung disease. My rheumatologist and pulmonologist work together. Are you on immunosuppressant drugs? RA (or any autoimmune disease can be vicious). Pulmonary Fibrosis can move slowly or like wildfire. Neither is to be ignored.

Those people who are not "overly worried" are not you. This is your body, this is your life. Be "overly" concerned!

If your medical team is lethargic about your disease progress, then move on. You deserve those grandchildren!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > >> > > Hi all,> > >> > > My name is Sandie and I was just diagnosed with Pulmonary > Fibrosis,> > > waiting to go to the Mayo Clinic because I also have RA and I am> > unable> > > to fight off infections. I am 36 years old.> > >> > > My questions are this. Since I have hounded doctors to listen to > me> > > that something is wrong finally one of them sent me in for all > these> > > tests and found the minimal honeycombing on my lung. He said its> > > minimal and I am not dieing yet nonetheless its still pulmonary> > > fibrosis and because everyone is so different they just have to > watch> > > and see what will happen. I dont think thats right because what I > have> > > read is that once it goes into advanced stage there is nothing > they> > can> > > do because there is no cure. What should I be doing now?> > >> > > Thanks so much> > >> > > Sandie> > >> >>

[Guest guest]

Sandie,

My opinion is NO, you should not sit around to see what is happening next. If your doctor is reasonably sure that you have pulmonary fibrosis and that honeycombing is already present, then it is time to get your fatigues on and go to war.

You need to find a teaching hospital or at least a pulmonary doctor that is familiar with interstitial lung disease. My rheumatologist and pulmonologist work together. Are you on immunosuppressant drugs? RA (or any autoimmune disease can be vicious). Pulmonary Fibrosis can move slowly or like wildfire. Neither is to be ignored.

Those people who are not "overly worried" are not you. This is your body, this is your life. Be "overly" concerned!

If your medical team is lethargic about your disease progress, then move on. You deserve those grandchildren!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > >> > > Hi all,> > >> > > My name is Sandie and I was just diagnosed with Pulmonary > Fibrosis,> > > waiting to go to the Mayo Clinic because I also have RA and I am> > unable> > > to fight off infections. I am 36 years old.> > >> > > My questions are this. Since I have hounded doctors to listen to > me> > > that something is wrong finally one of them sent me in for all > these> > > tests and found the minimal honeycombing on my lung. He said its> > > minimal and I am not dieing yet nonetheless its still pulmonary> > > fibrosis and because everyone is so different they just have to > watch> > > and see what will happen. I dont think thats right because what I > have> > > read is that once it goes into advanced stage there is nothing > they> > can> > > do because there is no cure. What should I be doing now?> > >> > > Thanks so much> > >> > > Sandie> > >> >>

[Guest guest]

Sandie,

My opinion is NO, you should not sit around to see what is happening next. If your doctor is reasonably sure that you have pulmonary fibrosis and that honeycombing is already present, then it is time to get your fatigues on and go to war.

You need to find a teaching hospital or at least a pulmonary doctor that is familiar with interstitial lung disease. My rheumatologist and pulmonologist work together. Are you on immunosuppressant drugs? RA (or any autoimmune disease can be vicious). Pulmonary Fibrosis can move slowly or like wildfire. Neither is to be ignored.

Those people who are not "overly worried" are not you. This is your body, this is your life. Be "overly" concerned!

If your medical team is lethargic about your disease progress, then move on. You deserve those grandchildren!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > >> > > Hi all,> > >> > > My name is Sandie and I was just diagnosed with Pulmonary > Fibrosis,> > > waiting to go to the Mayo Clinic because I also have RA and I am> > unable> > > to fight off infections. I am 36 years old.> > >> > > My questions are this. Since I have hounded doctors to listen to > me> > > that something is wrong finally one of them sent me in for all > these> > > tests and found the minimal honeycombing on my lung. He said its> > > minimal and I am not dieing yet nonetheless its still pulmonary> > > fibrosis and because everyone is so different they just have to > watch> > > and see what will happen. I dont think thats right because what I > have> > > read is that once it goes into advanced stage there is nothing > they> > can> > > do because there is no cure. What should I be doing now?> > >> > > Thanks so much> > >> > > Sandie> > >> >>

[Guest guest]

I'm having my VATS on Wednesday and will share at that point, Sher.

However, I would advise you to do the same based on my research

(let's see if I still feel that way on Thursday...lol). VATS is not

as bad as Open Lung Biopsies were and is 97% conclusive. It would be

great if you don't have IPF, but a shame if you have something

treatable and aren't getting treatment. Others on here who had VATS

helped reassure me as did my surgeon and his willingness to answer

all my questions at length. I'll let you know first hand experience

soon. Thank god for all the laparoscopic surgery here now. I had a

colon resection that way two years ago and it was nothing and now the

VATS. I might have passed had it still been traditional.

>

> To Sandie from Sher...I was diagnosed (Dx) with IPF 3-06 and have

had minimal progression since. We are all different. I've asked my

Dr. if maybe I DON " T have IPF since there has been no progression. He

says I definitely have ILD (interstitial lung disease) but now he's

not sure it's IPF. We can't know without a lung-bio and so far I've

been unwilling.

> I'm sorry to hear you are so young, with this disease to deal with.

There are other young people on the board.

> Keep reading and asking questions. Get a GOOD Dr. who shows

compassion and then just go one day at a time

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

[Guest guest]

I'm having my VATS on Wednesday and will share at that point, Sher.

However, I would advise you to do the same based on my research

(let's see if I still feel that way on Thursday...lol). VATS is not

as bad as Open Lung Biopsies were and is 97% conclusive. It would be

great if you don't have IPF, but a shame if you have something

treatable and aren't getting treatment. Others on here who had VATS

helped reassure me as did my surgeon and his willingness to answer

all my questions at length. I'll let you know first hand experience

soon. Thank god for all the laparoscopic surgery here now. I had a

colon resection that way two years ago and it was nothing and now the

VATS. I might have passed had it still been traditional.

>

> To Sandie from Sher...I was diagnosed (Dx) with IPF 3-06 and have

had minimal progression since. We are all different. I've asked my

Dr. if maybe I DON " T have IPF since there has been no progression. He

says I definitely have ILD (interstitial lung disease) but now he's

not sure it's IPF. We can't know without a lung-bio and so far I've

been unwilling.

> I'm sorry to hear you are so young, with this disease to deal with.

There are other young people on the board.

> Keep reading and asking questions. Get a GOOD Dr. who shows

compassion and then just go one day at a time

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

[Guest guest]

Joyce, what are immune suppressant drugs? My doctor has not mentioned any to me.

Kay

Re: New

Sandie,

My opinion is NO, you should not sit around to see what is happening next. If your doctor is reasonably sure that you have pulmonary fibrosis and that honeycombing is already present, then it is time to get your fatigues on and go to war.

You need to find a teaching hospital or at least a pulmonary doctor that is familiar with interstitial lung disease. My rheumatologist and pulmonologist work together. Are you on immunosuppressant drugs? RA (or any autoimmune disease can be vicious). Pulmonary Fibrosis can move slowly or like wildfire. Neither is to be ignored.

Those people who are not "overly worried" are not you. This is your body, this is your life. Be "overly" concerned!

If your medical team is lethargic about your disease progress, then move on. You deserve those grandchildren!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

& g t ; > >> > > Hi all,> > >> > > My name is Sandie and I was just diagnosed with Pulmonary > Fibrosis,> > > waiting to go to the Mayo Clinic because I also have RA and I am> > unable> > > to fight off infections. I am 36 years old.> > >> > > My questions are this. Since I have hounded doctors to listen to > me> > > that something is wrong finally one of them sent me in for all > these> > > tests and found the minimal honeycombing on my lung. He said its> > > minimal and I am not dieing yet nonetheless its still pulmonary> > > fibrosis and because everyone is so different they just have to > watch> > > and see what will happen. I dont think thats right because what I > have> > > read is that once it goes into advanced stage there is nothing > they> & g t; can> > > do because there is no cure. What should I be doing now?> > >> > > Thanks so much> > >> > > Sandie> > >> >>