Guest guest Report post Posted October 24, 2007 Great thanks so much that helps a little more I appreciate that. Sandie > > > > & g t ; > > > > > > > > > Hi all, > > > > > > > > > > > > > > My name is Sandie and I was just diagnosed with > Pulmonary > > > > > Fibrosis, > > > > > > > waiting to go to the Mayo Clinic because I also have RA > and > > I am > > > > > > unable > > > > > > > to fight off infections. I am 36 years old. > > > > > > > > > > > > > > My questions are this. Since I have hounded doctors to > > listen to > > > > > me > > > > > > > that something is wrong finally one of them sent me in > for > > all > > > > > these > > > > > > > tests and found the minimal honeycombing on my lung. He > > said its > > > > > > > minimal and I am not dieing yet nonetheless its still > > pulmonary > > > > > > > fibrosis and because everyone is so different they just > > have to > > > > > watch > > > > > > > and see what will happen. I dont think thats right > because > > what > > > I > > > > > have > > > > > > > read is that once it goes into advanced stage there is > > nothing > > > > > they > > > > > & g t; can > > > > > > > do because there is no cure. What should I be doing now? > > > > > > > > > > > > > > Thanks so much > > > > > > > > > > > > > > Sandie > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 24, 2007 Great thanks so much that helps a little more I appreciate that. Sandie > > > > & g t ; > > > > > > > > > Hi all, > > > > > > > > > > > > > > My name is Sandie and I was just diagnosed with > Pulmonary > > > > > Fibrosis, > > > > > > > waiting to go to the Mayo Clinic because I also have RA > and > > I am > > > > > > unable > > > > > > > to fight off infections. I am 36 years old. > > > > > > > > > > > > > > My questions are this. Since I have hounded doctors to > > listen to > > > > > me > > > > > > > that something is wrong finally one of them sent me in > for > > all > > > > > these > > > > > > > tests and found the minimal honeycombing on my lung. He > > said its > > > > > > > minimal and I am not dieing yet nonetheless its still > > pulmonary > > > > > > > fibrosis and because everyone is so different they just > > have to > > > > > watch > > > > > > > and see what will happen. I dont think thats right > because > > what > > > I > > > > > have > > > > > > > read is that once it goes into advanced stage there is > > nothing > > > > > they > > > > > & g t; can > > > > > > > do because there is no cure. What should I be doing now? > > > > > > > > > > > > > > Thanks so much > > > > > > > > > > > > > > Sandie > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 24, 2007 Great thanks so much that helps a little more I appreciate that. Sandie > > > > & g t ; > > > > > > > > > Hi all, > > > > > > > > > > > > > > My name is Sandie and I was just diagnosed with > Pulmonary > > > > > Fibrosis, > > > > > > > waiting to go to the Mayo Clinic because I also have RA > and > > I am > > > > > > unable > > > > > > > to fight off infections. I am 36 years old. > > > > > > > > > > > > > > My questions are this. Since I have hounded doctors to > > listen to > > > > > me > > > > > > > that something is wrong finally one of them sent me in > for > > all > > > > > these > > > > > > > tests and found the minimal honeycombing on my lung. He > > said its > > > > > > > minimal and I am not dieing yet nonetheless its still > > pulmonary > > > > > > > fibrosis and because everyone is so different they just > > have to > > > > > watch > > > > > > > and see what will happen. I dont think thats right > because > > what > > > I > > > > > have > > > > > > > read is that once it goes into advanced stage there is > > nothing > > > > > they > > > > > & g t; can > > > > > > > do because there is no cure. What should I be doing now? > > > > > > > > > > > > > > Thanks so much > > > > > > > > > > > > > > Sandie > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 24, 2007 Kim, Please know that all of us here are pulling for Tom. If and when he gets the call, please have someone call one of us so that we can post it to the board. Prayers do help. Take care of each other. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > > & g t ; > >> > > > > > > Hi all,> > > > > > >> > > > > > > My name is Sandie and I was just diagnosed with > Pulmonary> > > > > Fibrosis,> > > > > > > waiting to go to the Mayo Clinic because I also have RA > and > > I am> > > > > > unable> > > > > > > to fight off infections. I am 36 years old.> > > > > > >> > > > > > > My questions are this. Since I have hounded doctors to > > listen to> > > > > me> > > > > > > that something is wrong finally one of them sent me in > for > > all> > > > > these> > > > > > > tests and found the minimal honeycombing on my lung. He > > said its> > > > > > > minimal and I am not dieing yet nonetheless its still > > pulmonary> > > > > > > fibrosis and because everyone is so different they just > > have to> > > > > watch> > > > > > > and see what will happen. I dont think thats right > because > > what> > > I> > > > > have> > > > > > > read is that once it goes into advanced stage there is > > nothing> > > > > they> > > > > & g t; can> > > > > > > do because there is no cure. What should I be doing now?> > > > > > >> > > > > > > Thanks so much> > > > > > >> > > > > > > Sandie> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 24, 2007 Kim, Please know that all of us here are pulling for Tom. If and when he gets the call, please have someone call one of us so that we can post it to the board. Prayers do help. Take care of each other. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > > & g t ; > >> > > > > > > Hi all,> > > > > > >> > > > > > > My name is Sandie and I was just diagnosed with > Pulmonary> > > > > Fibrosis,> > > > > > > waiting to go to the Mayo Clinic because I also have RA > and > > I am> > > > > > unable> > > > > > > to fight off infections. I am 36 years old.> > > > > > >> > > > > > > My questions are this. Since I have hounded doctors to > > listen to> > > > > me> > > > > > > that something is wrong finally one of them sent me in > for > > all> > > > > these> > > > > > > tests and found the minimal honeycombing on my lung. He > > said its> > > > > > > minimal and I am not dieing yet nonetheless its still > > pulmonary> > > > > > > fibrosis and because everyone is so different they just > > have to> > > > > watch> > > > > > > and see what will happen. I dont think thats right > because > > what> > > I> > > > > have> > > > > > > read is that once it goes into advanced stage there is > > nothing> > > > > they> > > > > & g t; can> > > > > > > do because there is no cure. What should I be doing now?> > > > > > >> > > > > > > Thanks so much> > > > > > >> > > > > > > Sandie> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Share this post Link to post Share on other sites
