Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 I'm going to have to double check that T3 number when I get home. May be a typo. I don't remember the lab report noting anything abnormal other than the TSH. > The Free T3 is the one that's bugging me, though my Free T3 is up that high right now, as of last testing. But in her case, there may be something very different going on there, being as I'm still seeing plenty of constant stimulation of the thyroid going on. I'm thinking that that T3 isn't all coming from the Levoxyl. Every time I see a higher T3, with a lower T4, I'm thinking hot nodule somewhere there, as she is on a synthetic T4, not on Armour. Those readings would be typical of someone on Armour, not on a T4 med. That is not a Free T4, but still, to be a sum total of T4, it's awfully low. I'm thinking that she would be undertreated, and she is, but there is an extra amt of T3 coming from out of nowhere, so it looks like two problems, and she definitely needs some picture taking here, again. I would certainly still be holding at that dose, and I'm thinking that the doctor is testing often, just to see how often and how much that's bouncing around. I think that the doctor is also thinking Hashi's, but I would still be on the phone to him/her. If there are no nodules, bet the antibodies are doing flips everywhere. > > > > Re: Update > > > Try to hold out for the antibody tests.. since they are about 2 weeks away... hold at the same dose.. to keep the tests as accurate as possible. > > You've been following posts... you may be seeing what I am.. that you have Hashi's.. that would account for the swings.... but you need the antibody results to confirm Hashi's... > > It's so frustrating to hear how many of us had symptoms for years that were never considered.... > > Muscle twitching and tingling is often the muscles reacting to the excess hormone in the system... keep track of your pulse and breathing... it that starts getting way out of line.... I think I'd be calling up the doc and saying the you need to get the blood drawn right away so that you can reduce your dose while waiting for the results and going from there.... > > IMHO, of course. > > Topper () > > On Fri, 06 Aug 2004 17:29:29 -0000 " briggy1997 " <briggy1997@y...> writes: > I posted last month as a new member. I have since found additial > info that I would like input on. I have enjoyed reading the posts > and they have really helped. > > > 6/21 TSH 9.06 (Range 0.32-5.00) > Prolactin 36.8 (Range 3.4-24.1) > Free T4 .9 (Range 0.7-1.9) > > 6/24 TSH 4.66 (Range 0.32-5.00) > Free T4 .88 (Range 0.7-1.9) > > 7/8 TSH (3rd Generation) 6.954 (Range 0.35-5.50) > Tree Thyroixing Index (T7) 7.2 (Range 6.0-11.4) > Total T4 7.4 (Range 6.5-10.5) > T3 Uptake 30.98 (Range 24.4-39.1) > Triiodothyronine Free (Free T3) 4.3 (Range 2.3-4.2) > > NEW INFORMATION: > I was going thru my files, and found that back in 1995, my GP at the > time sent me in for thyroid labs due to enlarged thyroid from the > cliical exam. I don't have the results for that. > > In 2001, I had lab work done due to an enlarged thyroid. TSH was 4. > something and T4 was 1.somthing. Ultrasound was normal. I was very > sick at this time. I lost 10 pounds over a months time (I am thin to > begin with), lost appetite. Face/hand tingling, muscle twitching. > Scared me to death! I recovered slowly on my own. I feel like the > same thing is happening to me now, I'm just not as scared. > > So here I am, nine years later on Levoxyl .025. I have been taking > it for about three weeks. This week I noticed tingling in my > hands/face, increased hunger. My indigestion that I had the first > week has mostly gone away. I understand about adrenal support. > > My question: Could my new symptoms mean that I am going hyper? > Could the meds be causing my tingling? I had this tingling in 2001 > when they sent me for labs/ultrasound on my thyroid and everything > was normal. I also had a CT and MRI. All ok. Could my symptoms > back then have been hyper? > > I will be getting the antibody tests done on 8/19 when I go see my > new GP. > > Thank you all for reading this and giving me your advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 I'm going to have to double check that T3 number when I get home. May be a typo. I don't remember the lab report noting anything abnormal other than the TSH. > The Free T3 is the one that's bugging me, though my Free T3 is up that high right now, as of last testing. But in her case, there may be something very different going on there, being as I'm still seeing plenty of constant stimulation of the thyroid going on. I'm thinking that that T3 isn't all coming from the Levoxyl. Every time I see a higher T3, with a lower T4, I'm thinking hot nodule somewhere there, as she is on a synthetic T4, not on Armour. Those readings would be typical of someone on Armour, not on a T4 med. That is not a Free T4, but still, to be a sum total of T4, it's awfully low. I'm thinking that she would be undertreated, and she is, but there is an extra amt of T3 coming from out of nowhere, so it looks like two problems, and she definitely needs some picture taking here, again. I would certainly still be holding at that dose, and I'm thinking that the doctor is testing often, just to see how often and how much that's bouncing around. I think that the doctor is also thinking Hashi's, but I would still be on the phone to him/her. If there are no nodules, bet the antibodies are doing flips everywhere. > > > > Re: Update > > > Try to hold out for the antibody tests.. since they are about 2 weeks away... hold at the same dose.. to keep the tests as accurate as possible. > > You've been following posts... you may be seeing what I am.. that you have Hashi's.. that would account for the swings.... but you need the antibody results to confirm Hashi's... > > It's so frustrating to hear how many of us had symptoms for years that were never considered.... > > Muscle twitching and tingling is often the muscles reacting to the excess hormone in the system... keep track of your pulse and breathing... it that starts getting way out of line.... I think I'd be calling up the doc and saying the you need to get the blood drawn right away so that you can reduce your dose while waiting for the results and going from there.... > > IMHO, of course. > > Topper () > > On Fri, 06 Aug 2004 17:29:29 -0000 " briggy1997 " <briggy1997@y...> writes: > I posted last month as a new member. I have since found additial > info that I would like input on. I have enjoyed reading the posts > and they have really helped. > > > 6/21 TSH 9.06 (Range 0.32-5.00) > Prolactin 36.8 (Range 3.4-24.1) > Free T4 .9 (Range 0.7-1.9) > > 6/24 TSH 4.66 (Range 0.32-5.00) > Free T4 .88 (Range 0.7-1.9) > > 7/8 TSH (3rd Generation) 6.954 (Range 0.35-5.50) > Tree Thyroixing Index (T7) 7.2 (Range 6.0-11.4) > Total T4 7.4 (Range 6.5-10.5) > T3 Uptake 30.98 (Range 24.4-39.1) > Triiodothyronine Free (Free T3) 4.3 (Range 2.3-4.2) > > NEW INFORMATION: > I was going thru my files, and found that back in 1995, my GP at the > time sent me in for thyroid labs due to enlarged thyroid from the > cliical exam. I don't have the results for that. > > In 2001, I had lab work done due to an enlarged thyroid. TSH was 4. > something and T4 was 1.somthing. Ultrasound was normal. I was very > sick at this time. I lost 10 pounds over a months time (I am thin to > begin with), lost appetite. Face/hand tingling, muscle twitching. > Scared me to death! I recovered slowly on my own. I feel like the > same thing is happening to me now, I'm just not as scared. > > So here I am, nine years later on Levoxyl .025. I have been taking > it for about three weeks. This week I noticed tingling in my > hands/face, increased hunger. My indigestion that I had the first > week has mostly gone away. I understand about adrenal support. > > My question: Could my new symptoms mean that I am going hyper? > Could the meds be causing my tingling? I had this tingling in 2001 > when they sent me for labs/ultrasound on my thyroid and everything > was normal. I also had a CT and MRI. All ok. Could my symptoms > back then have been hyper? > > I will be getting the antibody tests done on 8/19 when I go see my > new GP. > > Thank you all for reading this and giving me your advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 One that is producing it's own T3 thyroid hormone, without the help of the gland. This is not " fake " hormone as some have said, just separate from the gland, and it pours out into the system the same as what the gland produces. Re: Update > What is a " hot nodule " ? And what does it mean? > > > > The Free T3 is the one that's bugging me, though my Free T3 is up > that high right now, as of last testing. But in her case, there may > be something very different going on there, being as I'm still seeing > plenty of constant stimulation of the thyroid going on. I'm thinking > that that T3 isn't all coming from the Levoxyl. Every time I see a > higher T3, with a lower T4, I'm thinking hot nodule somewhere there, > as she is on a synthetic T4, not on Armour. Those readings would be > typical of someone on Armour, not on a T4 med. That is not a Free > T4, but still, to be a sum total of T4, it's awfully low. I'm > thinking that she would be undertreated, and she is, but there is an > extra amt of T3 coming from out of nowhere, so it looks like two > problems, and she definitely needs some picture taking here, again. I > would certainly still be holding at that dose, and I'm thinking that > the doctor is testing often, just to see how often and how much > that's bouncing around. I think that the doctor is also thinking > Hashi's, but I would still be on the phone to him/her. If there are > no nodules, bet the antibodies are doing flips everywhere. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Mine was over and above slightly, but it was not flagged, just the 0.06 TSH, teehee. Evidently their lab standards really don't believe that a little bit higher Free T3 is abnormal, even though the so called medical standard does. However, I KNOW, beyond the shadow of a doubt that they would have flagged it if the Free T4 was over and above because that is the main hormone that the thyroid produces, and supposedly, in manys minds, the one that represents hyperthyroidism. Good idea to call them, though, they may give an explanation that explains that. Re: Update > I'm going to have to double check that T3 number when I get home. > May be a typo. I don't remember the lab report noting anything > abnormal other than the TSH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Mine was over and above slightly, but it was not flagged, just the 0.06 TSH, teehee. Evidently their lab standards really don't believe that a little bit higher Free T3 is abnormal, even though the so called medical standard does. However, I KNOW, beyond the shadow of a doubt that they would have flagged it if the Free T4 was over and above because that is the main hormone that the thyroid produces, and supposedly, in manys minds, the one that represents hyperthyroidism. Good idea to call them, though, they may give an explanation that explains that. Re: Update > I'm going to have to double check that T3 number when I get home. > May be a typo. I don't remember the lab report noting anything > abnormal other than the TSH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Mine was over and above slightly, but it was not flagged, just the 0.06 TSH, teehee. Evidently their lab standards really don't believe that a little bit higher Free T3 is abnormal, even though the so called medical standard does. However, I KNOW, beyond the shadow of a doubt that they would have flagged it if the Free T4 was over and above because that is the main hormone that the thyroid produces, and supposedly, in manys minds, the one that represents hyperthyroidism. Good idea to call them, though, they may give an explanation that explains that. Re: Update > I'm going to have to double check that T3 number when I get home. > May be a typo. I don't remember the lab report noting anything > abnormal other than the TSH. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 I just wanted to give an update and ask a question. I feel so good. Better than I ever thought I would again. I am on 87.5 T3 Im at my normal wieght as before I was sick and all the swelling is gone. My temperature feels great.My heart pain goes away with each dose. I juggle a little each day with either 4 isocort, or 10 drops of adrenal aide, or many days nothing at all. I go by my energy level. I feel so good that sometimes I almost forget my thyroid dose. Yesterday, I even felt kinda hyper for part of the day. This is the opposite of how I used to feel. Question; Will I be able to lower my thyroid dose? Also, Will I always need to take it the 3 times a day that I do now. I would really love to only have to remember 2 times a day! Leisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Okay...would you say that the longer your on it...do those people become more stored up...or able to go longer between doses. I do feel yawny and more tired after 7 hrs. Im hoping that as time goes the levels build up? Subject: Re: UpdateTo: RT3_T3 Date: Monday, March 2, 2009, 8:14 AM I have heard some people that only take T3 once a day so you will just have to experiment and see what works for you. I have to take it 3-4 times a day to feel even. But thtais juts me and you may easily be differnt. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Oh..I hadnt even thought of this. So as some more time goes by..I might try to add a bit of armour...but I would also be adding more t3 with that. hmm. Doesnt seem worth it to rock the boat. Also, how would you know if the bit of t4 is turning to rt3 again? Subject: Re: UpdateTo: RT3_T3 Date: Monday, March 2, 2009, 8:34 AM I do notthink so, but you may find a small bit of T4 wiht it, either Armour or compounded, may help level oyu out a that is what T4 does, it works as back up for when you run low in T3. Once RT3 is cleared there is not reason to not introduce soem T4 back onto the picture especuially if oyu have corrected the cause of your RT3 you had before. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Oh..I hadnt even thought of this. So as some more time goes by..I might try to add a bit of armour...but I would also be adding more t3 with that. hmm. Doesnt seem worth it to rock the boat. Also, how would you know if the bit of t4 is turning to rt3 again? Subject: Re: UpdateTo: RT3_T3 Date: Monday, March 2, 2009, 8:34 AM I do notthink so, but you may find a small bit of T4 wiht it, either Armour or compounded, may help level oyu out a that is what T4 does, it works as back up for when you run low in T3. Once RT3 is cleared there is not reason to not introduce soem T4 back onto the picture especuially if oyu have corrected the cause of your RT3 you had before. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Oh..I hadnt even thought of this. So as some more time goes by..I might try to add a bit of armour...but I would also be adding more t3 with that. hmm. Doesnt seem worth it to rock the boat. Also, how would you know if the bit of t4 is turning to rt3 again? Subject: Re: UpdateTo: RT3_T3 Date: Monday, March 2, 2009, 8:34 AM I do notthink so, but you may find a small bit of T4 wiht it, either Armour or compounded, may help level oyu out a that is what T4 does, it works as back up for when you run low in T3. Once RT3 is cleared there is not reason to not introduce soem T4 back onto the picture especuially if oyu have corrected the cause of your RT3 you had before. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 If you start feeling more hypo again it would be a sign the RT3 is rising. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 If you start feeling more hypo again it would be a sign the RT3 is rising. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 If you start feeling more hypo again it would be a sign the RT3 is rising. Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ Quote Link to comment Share on other sites More sharing options...
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