New Member

[Guest guest]

Hi Dawna,

What worked for me was:

Smaller meals, 6x a day.

Low-Glycemic, lower carb diet. I eat between 40% carb, 30% protein, 30%

fat to 25% carb, 40% protein, 35% fat.

Exercise focusing on weight training. Weight training 3x a week on

alternating days, and cardio on the other days. I do shorter times of

cardio and make sure the exercise is intense so it counts - no walking

on a threadmill for hours like a mouse on a wheel.

Mixing it up. Changing the type of cardio, the calories and the ratios

in my eating often, to keep the body from plateauing.

Not eating too little. I eat a ton by most people's standards, it is the

quality of the food that is different.

Jan

Dawna wrote:

>HI all was diagnoised with Hypothyroidisim 3 years ago. Every 3 to 6

>months at every blood draw my levels go low and I go on a higher

>level of meds, only twice since I started meds has my level been back

>to normal only to loose it again at the next blood draw..did this

>happen to anyone eles and does it ever become not fustrating? I am so

>ready to be over it and the constant fight. On top of the weight gain

>driving me insane, I have always been on the heavy side but could

>regulate my weight until thoes 3 years ago and now (this week) I

>started looking at myself and starting thinking about how bad I look

>and I hate it. Eat like a bird and gain weight...so unfair and yet

>here it is for us to deal with...How does one deal with it. You would

>think the meds would help you loose weight but that has worked for me

>at all..so question have any of you lost weight and are there any

>tips that can get me started on trying...I don't want to be unhealthy

>and this weight gain is starting to scare me?

>

>

>

>

>

>

[Guest guest]

Hi Dawna,

What worked for me was:

Smaller meals, 6x a day.

Low-Glycemic, lower carb diet. I eat between 40% carb, 30% protein, 30%

fat to 25% carb, 40% protein, 35% fat.

Exercise focusing on weight training. Weight training 3x a week on

alternating days, and cardio on the other days. I do shorter times of

cardio and make sure the exercise is intense so it counts - no walking

on a threadmill for hours like a mouse on a wheel.

Mixing it up. Changing the type of cardio, the calories and the ratios

in my eating often, to keep the body from plateauing.

Not eating too little. I eat a ton by most people's standards, it is the

quality of the food that is different.

Jan

Dawna wrote:

>HI all was diagnoised with Hypothyroidisim 3 years ago. Every 3 to 6

>months at every blood draw my levels go low and I go on a higher

>level of meds, only twice since I started meds has my level been back

>to normal only to loose it again at the next blood draw..did this

>happen to anyone eles and does it ever become not fustrating? I am so

>ready to be over it and the constant fight. On top of the weight gain

>driving me insane, I have always been on the heavy side but could

>regulate my weight until thoes 3 years ago and now (this week) I

>started looking at myself and starting thinking about how bad I look

>and I hate it. Eat like a bird and gain weight...so unfair and yet

>here it is for us to deal with...How does one deal with it. You would

>think the meds would help you loose weight but that has worked for me

>at all..so question have any of you lost weight and are there any

>tips that can get me started on trying...I don't want to be unhealthy

>and this weight gain is starting to scare me?

>

>

>

>

>

>

[Guest guest]

Hi Dawna,

What worked for me was:

Smaller meals, 6x a day.

Low-Glycemic, lower carb diet. I eat between 40% carb, 30% protein, 30%

fat to 25% carb, 40% protein, 35% fat.

Exercise focusing on weight training. Weight training 3x a week on

alternating days, and cardio on the other days. I do shorter times of

cardio and make sure the exercise is intense so it counts - no walking

on a threadmill for hours like a mouse on a wheel.

Mixing it up. Changing the type of cardio, the calories and the ratios

in my eating often, to keep the body from plateauing.

Not eating too little. I eat a ton by most people's standards, it is the

quality of the food that is different.

Jan

Dawna wrote:

>HI all was diagnoised with Hypothyroidisim 3 years ago. Every 3 to 6

>months at every blood draw my levels go low and I go on a higher

>level of meds, only twice since I started meds has my level been back

>to normal only to loose it again at the next blood draw..did this

>happen to anyone eles and does it ever become not fustrating? I am so

>ready to be over it and the constant fight. On top of the weight gain

>driving me insane, I have always been on the heavy side but could

>regulate my weight until thoes 3 years ago and now (this week) I

>started looking at myself and starting thinking about how bad I look

>and I hate it. Eat like a bird and gain weight...so unfair and yet

>here it is for us to deal with...How does one deal with it. You would

>think the meds would help you loose weight but that has worked for me

>at all..so question have any of you lost weight and are there any

>tips that can get me started on trying...I don't want to be unhealthy

>and this weight gain is starting to scare me?

>

>

>

>

>

>

[Guest guest]

hi, I'm . I still get those burning sensations

espacialy in my feet. I have a problem spelling. Has

that happen to you yet? I'm tired all the time. I

can't work or drive. I have diabetes to plus other

medical problems. If you ever want to talk I'm home

most of the time, unless I have a doctors appiontment.

I have three IMs trcy96 for yahoo, tls65 for aol, and

sunshine17 for windows.

--- emgm42000 wrote:

>

>

> Hi Everyone,

>

> A friend of mine sent me your link and I joined. I

> have never found

> anyone with fibro that has this lovely " new " symptom

> I have. I will

> try to keep it short and not that I wish this

> symptom on anyone, it

> would sure help to know where this is coming from

> since like the

> rest of you I have other conditions. A few years

> ago my face

> started " stinging " and " burning " . Since I have a

> skin condition

> known as cea I assumed it was that. As days and

> weeks

> progressed this burning went to my upper arms, head,

> neck.

> Eventually my entire body was involved. I will try

> to describe, as

> best I can. There are a few things that come to

> mind. It felt sort

> of like a really bad sunburn. It felt mostly like I

> was covered in

> Noxema (for you girls who remember using it) or

> BenGay. At one

> point there was a slight rash on my cheeks and

> throat. It lasted a

> few weeks. When next it rared its ugly head it

> lasted a month and I

> was completely debilitated. I could only bear the

> least amount of

> clothing touching me. Showers were horrendous. I

> could not use any

> products........not even the topical cea

> medicine. It developed

> into this weird burning/cold/hot/mentholated

> feeling. My skin

> actually felt " tacky " or " sticky to the touch to me.

> It repulsed

> me. At one point my eyeballs actually felt hot. But

> you would look

> at me and I looked perfectly normal. Some areas

> began to " burn "

> more than others. It was truely weird. My lips, my

> eyes, under

> arms, inner thighs and feet, would all burn so much

> hotter than the

> rest of me. In the end, Each of my doctors concured

> that it was a

> new presentation of the fibro. After that month

> long horror it has

> so far never come back with that

> intensity.........until a few days

> ago.......although, as awful as it is right now, it

> still is not as

> bad as then (if I can put clothes on and do a small

> amount of chores

> I am so grateful). So, that is where I am. Do

> these symptoms sound

> familiar to anyone? Is this REALLY part of fibro.

> You know, I

> figure someday I'll just die of something because I

> just chalk up

> everything as a new fibro symptom LOL! Funny, but

> not really.

> Seriously though, I can handle a lot! But this is

> the one symptom

> that I so cannot handle. I am always hot anyway, so

> this just makes

> everything worse. Oh, well, so much for keeping it

> short........sorry Also, what about

> natural things? I

> have seen so much drugs posted but all I am on for

> the fibro is

> 20mg. of Elavil (amitryptaline)and I go to the

> Chiropractor. Also,

> about exercise........HOW??!!! My husband just

> bought me this

> really expensive bike and wants me to do this with

> him....I cannot

> imagine hopping on a bike.......do any of you ride a

> bike??!!

> Thanks.

>

> God Bless you all,

> Elena (I live in the U.S.A.....Massachusettes)

>

>

>

>

>

>

>

__________________________________

Celebrate Yahoo!'s 10th Birthday!

Yahoo! Netrospective: 100 Moments of the Web

http://birthday.yahoo.com/netrospective/

[Guest guest]

hi, I'm . I still get those burning sensations

espacialy in my feet. I have a problem spelling. Has

that happen to you yet? I'm tired all the time. I

can't work or drive. I have diabetes to plus other

medical problems. If you ever want to talk I'm home

most of the time, unless I have a doctors appiontment.

I have three IMs trcy96 for yahoo, tls65 for aol, and

sunshine17 for windows.

--- emgm42000 wrote:

>

>

> Hi Everyone,

>

> A friend of mine sent me your link and I joined. I

> have never found

> anyone with fibro that has this lovely " new " symptom

> I have. I will

> try to keep it short and not that I wish this

> symptom on anyone, it

> would sure help to know where this is coming from

> since like the

> rest of you I have other conditions. A few years

> ago my face

> started " stinging " and " burning " . Since I have a

> skin condition

> known as cea I assumed it was that. As days and

> weeks

> progressed this burning went to my upper arms, head,

> neck.

> Eventually my entire body was involved. I will try

> to describe, as

> best I can. There are a few things that come to

> mind. It felt sort

> of like a really bad sunburn. It felt mostly like I

> was covered in

> Noxema (for you girls who remember using it) or

> BenGay. At one

> point there was a slight rash on my cheeks and

> throat. It lasted a

> few weeks. When next it rared its ugly head it

> lasted a month and I

> was completely debilitated. I could only bear the

> least amount of

> clothing touching me. Showers were horrendous. I

> could not use any

> products........not even the topical cea

> medicine. It developed

> into this weird burning/cold/hot/mentholated

> feeling. My skin

> actually felt " tacky " or " sticky to the touch to me.

> It repulsed

> me. At one point my eyeballs actually felt hot. But

> you would look

> at me and I looked perfectly normal. Some areas

> began to " burn "

> more than others. It was truely weird. My lips, my

> eyes, under

> arms, inner thighs and feet, would all burn so much

> hotter than the

> rest of me. In the end, Each of my doctors concured

> that it was a

> new presentation of the fibro. After that month

> long horror it has

> so far never come back with that

> intensity.........until a few days

> ago.......although, as awful as it is right now, it

> still is not as

> bad as then (if I can put clothes on and do a small

> amount of chores

> I am so grateful). So, that is where I am. Do

> these symptoms sound

> familiar to anyone? Is this REALLY part of fibro.

> You know, I

> figure someday I'll just die of something because I

> just chalk up

> everything as a new fibro symptom LOL! Funny, but

> not really.

> Seriously though, I can handle a lot! But this is

> the one symptom

> that I so cannot handle. I am always hot anyway, so

> this just makes

> everything worse. Oh, well, so much for keeping it

> short........sorry Also, what about

> natural things? I

> have seen so much drugs posted but all I am on for

> the fibro is

> 20mg. of Elavil (amitryptaline)and I go to the

> Chiropractor. Also,

> about exercise........HOW??!!! My husband just

> bought me this

> really expensive bike and wants me to do this with

> him....I cannot

> imagine hopping on a bike.......do any of you ride a

> bike??!!

> Thanks.

>

> God Bless you all,

> Elena (I live in the U.S.A.....Massachusettes)

>

>

>

>

>

>

>

__________________________________

Celebrate Yahoo!'s 10th Birthday!

Yahoo! Netrospective: 100 Moments of the Web

http://birthday.yahoo.com/netrospective/

[Guest guest]

hi, I'm . I still get those burning sensations

espacialy in my feet. I have a problem spelling. Has

that happen to you yet? I'm tired all the time. I

can't work or drive. I have diabetes to plus other

medical problems. If you ever want to talk I'm home

most of the time, unless I have a doctors appiontment.

I have three IMs trcy96 for yahoo, tls65 for aol, and

sunshine17 for windows.

--- emgm42000 wrote:

>

>

> Hi Everyone,

>

> A friend of mine sent me your link and I joined. I

> have never found

> anyone with fibro that has this lovely " new " symptom

> I have. I will

> try to keep it short and not that I wish this

> symptom on anyone, it

> would sure help to know where this is coming from

> since like the

> rest of you I have other conditions. A few years

> ago my face

> started " stinging " and " burning " . Since I have a

> skin condition

> known as cea I assumed it was that. As days and

> weeks

> progressed this burning went to my upper arms, head,

> neck.

> Eventually my entire body was involved. I will try

> to describe, as

> best I can. There are a few things that come to

> mind. It felt sort

> of like a really bad sunburn. It felt mostly like I

> was covered in

> Noxema (for you girls who remember using it) or

> BenGay. At one

> point there was a slight rash on my cheeks and

> throat. It lasted a

> few weeks. When next it rared its ugly head it

> lasted a month and I

> was completely debilitated. I could only bear the

> least amount of

> clothing touching me. Showers were horrendous. I

> could not use any

> products........not even the topical cea

> medicine. It developed

> into this weird burning/cold/hot/mentholated

> feeling. My skin

> actually felt " tacky " or " sticky to the touch to me.

> It repulsed

> me. At one point my eyeballs actually felt hot. But

> you would look

> at me and I looked perfectly normal. Some areas

> began to " burn "

> more than others. It was truely weird. My lips, my

> eyes, under

> arms, inner thighs and feet, would all burn so much

> hotter than the

> rest of me. In the end, Each of my doctors concured

> that it was a

> new presentation of the fibro. After that month

> long horror it has

> so far never come back with that

> intensity.........until a few days

> ago.......although, as awful as it is right now, it

> still is not as

> bad as then (if I can put clothes on and do a small

> amount of chores

> I am so grateful). So, that is where I am. Do

> these symptoms sound

> familiar to anyone? Is this REALLY part of fibro.

> You know, I

> figure someday I'll just die of something because I

> just chalk up

> everything as a new fibro symptom LOL! Funny, but

> not really.

> Seriously though, I can handle a lot! But this is

> the one symptom

> that I so cannot handle. I am always hot anyway, so

> this just makes

> everything worse. Oh, well, so much for keeping it

> short........sorry Also, what about

> natural things? I

> have seen so much drugs posted but all I am on for

> the fibro is

> 20mg. of Elavil (amitryptaline)and I go to the

> Chiropractor. Also,

> about exercise........HOW??!!! My husband just

> bought me this

> really expensive bike and wants me to do this with

> him....I cannot

> imagine hopping on a bike.......do any of you ride a

> bike??!!

> Thanks.

>

> God Bless you all,

> Elena (I live in the U.S.A.....Massachusettes)

>

>

>

>

>

>

>

__________________________________

Celebrate Yahoo!'s 10th Birthday!

Yahoo! Netrospective: 100 Moments of the Web

http://birthday.yahoo.com/netrospective/

[Guest guest]

Really ??!! So then you think it is part of the fibro? I am just so confused about this symptom. I have the rosacea too and it feels so much like the hot flushing feeling of the rosacea (except that it is through the whole entire body) that I am so confused. Today, my muscles just feel like they are tightening up inch by inch and between the pain and the burning I don't know which way to turn. Do you do anything spacific about this? Is there anything that helps? Can you trace it to anything that brings it on? Sometimes I just feel like there has to be something else this is because it just doesn't make sense. I have been checked for Lupus four times now and it always comes back okay, but I hear that is a hard disease to diagnose. It's not that I want to have that, it's just sometimes you think if you had some "known" and "understood" disease, then you could be treated and get on with your life. I hate this

"mysterious" illness crap that has on end, real treatments, and with every new complaint it just gets tossed into the "oh, it's just probably another symptom of the fibro. You know we don't know much about this disease........" I'm just so sick of it. Sorry, bad day.

God Bless,

Elena

wrote:

hi, I'm . I still get those burning sensationsespacialy in my feet. I have a problem spelling. Hasthat happen to you yet? I'm tired all the time. Ican't work or drive. I have diabetes to plus othermedical problems. If you ever want to talk I'm homemost of the time, unless I have a doctors appiontment.I have three IMs trcy96 for yahoo, tls65 for aol, andsunshine17 for windows.--- emgm42000 wrote:> > > Hi Everyone,> > A friend of mine sent me your link and I joined. I> have never found > anyone with fibro that has this lovely "new" symptom> I have. I will > try to keep it short and not that I wish this> symptom on anyone, it > would sure help to know where this is coming from> since like the > rest of you I

have other conditions. A few years> ago my face > started "stinging" and "burning". Since I have a> skin condition > known as cea I assumed it was that. As days and> weeks > progressed this burning went to my upper arms, head,> neck. > Eventually my entire body was involved. I will try> to describe, as > best I can. There are a few things that come to> mind. It felt sort > of like a really bad sunburn. It felt mostly like I> was covered in > Noxema (for you girls who remember using it) or> BenGay. At one > point there was a slight rash on my cheeks and> throat. It lasted a > few weeks. When next it rared its ugly head it> lasted a month and I > was completely debilitated. I could only bear the> least amount of > clothing touching me. Showers were

horrendous. I> could not use any > products........not even the topical cea> medicine. It developed > into this weird burning/cold/hot/mentholated> feeling. My skin > actually felt "tacky" or "sticky to the touch to me.> It repulsed > me. At one point my eyeballs actually felt hot. But> you would look > at me and I looked perfectly normal. Some areas> began to "burn" > more than others. It was truely weird. My lips, my> eyes, under > arms, inner thighs and feet, would all burn so much> hotter than the > rest of me. In the end, Each of my doctors concured> that it was a > new presentation of the fibro. After that month> long horror it has > so far never come back with that> intensity.........until a few days > ago.......although, as awful as it is right now, it>

still is not as > bad as then (if I can put clothes on and do a small> amount of chores > I am so grateful). So, that is where I am. Do> these symptoms sound > familiar to anyone? Is this REALLY part of fibro. > You know, I > figure someday I'll just die of something because I> just chalk up > everything as a new fibro symptom LOL! Funny, but> not really. > Seriously though, I can handle a lot! But this is> the one symptom > that I so cannot handle. I am always hot anyway, so> this just makes > everything worse. Oh, well, so much for keeping it > short........sorry Also, what about> natural things? I > have seen so much drugs posted but all I am on for> the fibro is > 20mg. of Elavil (amitryptaline)and I go to the>

Chiropractor. Also, > about exercise........HOW??!!! My husband just> bought me this > really expensive bike and wants me to do this with> him....I cannot > imagine hopping on a bike.......do any of you ride a> bike??!! > Thanks.> > God Bless you all,> Elena (I live in the U.S.A.....Massachusettes)> > > > > > > __________________________________ Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web http://birthday.yahoo.com/netrospective/1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are

dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web

[Guest guest]

Really ??!! So then you think it is part of the fibro? I am just so confused about this symptom. I have the rosacea too and it feels so much like the hot flushing feeling of the rosacea (except that it is through the whole entire body) that I am so confused. Today, my muscles just feel like they are tightening up inch by inch and between the pain and the burning I don't know which way to turn. Do you do anything spacific about this? Is there anything that helps? Can you trace it to anything that brings it on? Sometimes I just feel like there has to be something else this is because it just doesn't make sense. I have been checked for Lupus four times now and it always comes back okay, but I hear that is a hard disease to diagnose. It's not that I want to have that, it's just sometimes you think if you had some "known" and "understood" disease, then you could be treated and get on with your life. I hate this

"mysterious" illness crap that has on end, real treatments, and with every new complaint it just gets tossed into the "oh, it's just probably another symptom of the fibro. You know we don't know much about this disease........" I'm just so sick of it. Sorry, bad day.

God Bless,

Elena

wrote:

hi, I'm . I still get those burning sensationsespacialy in my feet. I have a problem spelling. Hasthat happen to you yet? I'm tired all the time. Ican't work or drive. I have diabetes to plus othermedical problems. If you ever want to talk I'm homemost of the time, unless I have a doctors appiontment.I have three IMs trcy96 for yahoo, tls65 for aol, andsunshine17 for windows.--- emgm42000 wrote:> > > Hi Everyone,> > A friend of mine sent me your link and I joined. I> have never found > anyone with fibro that has this lovely "new" symptom> I have. I will > try to keep it short and not that I wish this> symptom on anyone, it > would sure help to know where this is coming from> since like the > rest of you I

have other conditions. A few years> ago my face > started "stinging" and "burning". Since I have a> skin condition > known as cea I assumed it was that. As days and> weeks > progressed this burning went to my upper arms, head,> neck. > Eventually my entire body was involved. I will try> to describe, as > best I can. There are a few things that come to> mind. It felt sort > of like a really bad sunburn. It felt mostly like I> was covered in > Noxema (for you girls who remember using it) or> BenGay. At one > point there was a slight rash on my cheeks and> throat. It lasted a > few weeks. When next it rared its ugly head it> lasted a month and I > was completely debilitated. I could only bear the> least amount of > clothing touching me. Showers were

horrendous. I> could not use any > products........not even the topical cea> medicine. It developed > into this weird burning/cold/hot/mentholated> feeling. My skin > actually felt "tacky" or "sticky to the touch to me.> It repulsed > me. At one point my eyeballs actually felt hot. But> you would look > at me and I looked perfectly normal. Some areas> began to "burn" > more than others. It was truely weird. My lips, my> eyes, under > arms, inner thighs and feet, would all burn so much> hotter than the > rest of me. In the end, Each of my doctors concured> that it was a > new presentation of the fibro. After that month> long horror it has > so far never come back with that> intensity.........until a few days > ago.......although, as awful as it is right now, it>

still is not as > bad as then (if I can put clothes on and do a small> amount of chores > I am so grateful). So, that is where I am. Do> these symptoms sound > familiar to anyone? Is this REALLY part of fibro. > You know, I > figure someday I'll just die of something because I> just chalk up > everything as a new fibro symptom LOL! Funny, but> not really. > Seriously though, I can handle a lot! But this is> the one symptom > that I so cannot handle. I am always hot anyway, so> this just makes > everything worse. Oh, well, so much for keeping it > short........sorry Also, what about> natural things? I > have seen so much drugs posted but all I am on for> the fibro is > 20mg. of Elavil (amitryptaline)and I go to the>

Chiropractor. Also, > about exercise........HOW??!!! My husband just> bought me this > really expensive bike and wants me to do this with> him....I cannot > imagine hopping on a bike.......do any of you ride a> bike??!! > Thanks.> > God Bless you all,> Elena (I live in the U.S.A.....Massachusettes)> > > > > > > __________________________________ Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web http://birthday.yahoo.com/netrospective/1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are

dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web

[Guest guest]

Hello Hope,

Welcome to the group. I'm glad you've found us to support you. This is a good group for sharing, venting, and a great shoulder to lean on.

I don't know of any foods to stay away from, myself. I think so much of Fibro is different for everyone. Someone might have certain symptoms and another person has different ones.

If you don't have a good book on FMS I would like to suggest (here I go again) " Fibromyalgia and Chronic Myofascial Pain Syndrome, A Survival Manual" It is the best book I've seen. I've been diagnosed with FMS for over 11 years and this is the first book I bought. I continue to use it today. It's like my Fibro bible! You can get it at places like and Nobels, Copperfields and the like. You might have to order it. You won't loose with this book.

Anyway, Welcome again, and I look forward to getting to know you.

Kathleen in N.C.

[Guest guest]

aloha Hope!

welcome to the family! isn't it sooooo bitter/sweet to finally get the pain diagnosed (and have a doc who takes u seriously?)?? i am so sorry about your sister... my condolences..... must be hard to have had a sibling u never even got to know....

re: foods... they say we're supposed to stay away from caffeine ...that's one thing i've heard (which i do NOT obey) (i NEED my coffee!! LOL!)

hope to hear more from you!

-cheers,

jaana

new member

Hi all,My name is Hope I live in va, I am 36 yrs old. I found out in April of 2004. After 4 of 5 yrs of dealing with pain that I have Fibromyalgia. That on top of other health problems. I also have Homocystinuria. I also had a older sister who died of Lupus before I was born. I am happy to say I have found a doctor who is taking my pains seriously now. I have numbness in my left foot in the two last toes that never goes away.

[Guest guest]

Hello Hope,

Welcome to the group! This is a great group of people who share their ups and downs, joys and heartache. It's a great place to vent too. I look forward to getting to know you.

Kathleen

[Guest guest]

WELCOME TO THE GROUP!! Wish I could help you with the sleep problem, But I hardly get any myself...Sometimes a hot bath helps a tad. And of course taking pain meds before bed helps me sometimes. Takes the edge off, Rarely stops the pain completely. Anyway, WELCOME! I just wanted to introduce myself. My name is Keshet, I'm a 27 year old case worker working on my MSW. I've been dealing with depression since I was about 10 but a few years back my mom was diagnosed with fibromyalgia. I've also had sleep problems since I was 15-16 years old and I can't remember exactly when the aches and pains started. I tried for years as my mom did to treat my depression only to have something work for a while and then stop working. Even when I'm feeling good moodwise, my sleep problems and pains have never resolved. So my doctor has ruld out everything else and settled on fibromyalgia. She sent me to a rheumatologist who just wanted to prescribe meds for the pain which didn't help anyway. I was wondering if anyone has found anything to help them sleep. I have frequent awakenings during the night usually from dreams. No sleeping pill has ever helped to keep my asleep. I go for my 4th sleep study in a few weeks. The sleep doctor stated that he wants to rule out narcolepsy because of the early initiation of REM sleep. I get up in the morning and I feel very tired. My doctor has suggested trying stimulants in the morning after the sleep study is completed. Has anyone found anything that helps them to stay asleep or at least to feel more awake during the day? Has anyone had any experience with using stimulants? I'm currently taking Wellbutrin and Zoloft for depression and them help but when I get stressed and/or I really lose a lot of sleep, I start feeling depressed and irritable again. I have a really hard time with my relationship with my boyfriend because I seem to lose interest in sex due to fatigue and pain from being in one position for more than a few minutes. It seems that whatever I do there is some pain somewhere that distracts me. And when I really feel depressed and/or inadequate and I want to cry he doesn't seem to understand my need to just cry sometimes. I noticed that someone mentioend movie theatres. I thought it was just me that found those seats so uncomfortable that I'm constantly having to switch positions. I have found that excercise and going to a chiropractor is helpful. The only problem is that I'm working full time while attending school part time working towards my Masters in Social Work. Add this to the fatigue and it is so hard to motivate myself to do an excercise video or go to the gym as much as I should to be helpful. I do have a wonderful gray and tan cat named andria. She's my little princess. I worry because she is almost 14 though she is in good health. I just couldn't imagine not having her with me. I don't know how many times I've cried in her fur and its the most wonderful thing to wake up and have her cuddled up with me. I'd better get back to work. My boss is out of town and I'm having difficulty getting motivated to do my paperwork though I know I will get it done. Sorry for rambling too much. Keshet "But she sat on five lines cursing the world for the shocks, loving the world because it has jaws, weeping at the absolute unreachable, the fifth line and the voice saying always: have faith, even curses make music." __________________________________________________

[Guest guest]

WELCOME TO THE GROUP!! Wish I could help you with the sleep problem, But I hardly get any myself...Sometimes a hot bath helps a tad. And of course taking pain meds before bed helps me sometimes. Takes the edge off, Rarely stops the pain completely. Anyway, WELCOME! I just wanted to introduce myself. My name is Keshet, I'm a 27 year old case worker working on my MSW. I've been dealing with depression since I was about 10 but a few years back my mom was diagnosed with fibromyalgia. I've also had sleep problems since I was 15-16 years old and I can't remember exactly when the aches and pains started. I tried for years as my mom did to treat my depression only to have something work for a while and then stop working. Even when I'm feeling good moodwise, my sleep problems and pains have never resolved. So my doctor has ruld out everything else and settled on fibromyalgia. She sent me to a rheumatologist who just wanted to prescribe meds for the pain which didn't help anyway. I was wondering if anyone has found anything to help them sleep. I have frequent awakenings during the night usually from dreams. No sleeping pill has ever helped to keep my asleep. I go for my 4th sleep study in a few weeks. The sleep doctor stated that he wants to rule out narcolepsy because of the early initiation of REM sleep. I get up in the morning and I feel very tired. My doctor has suggested trying stimulants in the morning after the sleep study is completed. Has anyone found anything that helps them to stay asleep or at least to feel more awake during the day? Has anyone had any experience with using stimulants? I'm currently taking Wellbutrin and Zoloft for depression and them help but when I get stressed and/or I really lose a lot of sleep, I start feeling depressed and irritable again. I have a really hard time with my relationship with my boyfriend because I seem to lose interest in sex due to fatigue and pain from being in one position for more than a few minutes. It seems that whatever I do there is some pain somewhere that distracts me. And when I really feel depressed and/or inadequate and I want to cry he doesn't seem to understand my need to just cry sometimes. I noticed that someone mentioend movie theatres. I thought it was just me that found those seats so uncomfortable that I'm constantly having to switch positions. I have found that excercise and going to a chiropractor is helpful. The only problem is that I'm working full time while attending school part time working towards my Masters in Social Work. Add this to the fatigue and it is so hard to motivate myself to do an excercise video or go to the gym as much as I should to be helpful. I do have a wonderful gray and tan cat named andria. She's my little princess. I worry because she is almost 14 though she is in good health. I just couldn't imagine not having her with me. I don't know how many times I've cried in her fur and its the most wonderful thing to wake up and have her cuddled up with me. I'd better get back to work. My boss is out of town and I'm having difficulty getting motivated to do my paperwork though I know I will get it done. Sorry for rambling too much. Keshet "But she sat on five lines cursing the world for the shocks, loving the world because it has jaws, weeping at the absolute unreachable, the fifth line and the voice saying always: have faith, even curses make music." __________________________________________________

[Guest guest]

WELCOME TO THE GROUP!! Wish I could help you with the sleep problem, But I hardly get any myself...Sometimes a hot bath helps a tad. And of course taking pain meds before bed helps me sometimes. Takes the edge off, Rarely stops the pain completely. Anyway, WELCOME! I just wanted to introduce myself. My name is Keshet, I'm a 27 year old case worker working on my MSW. I've been dealing with depression since I was about 10 but a few years back my mom was diagnosed with fibromyalgia. I've also had sleep problems since I was 15-16 years old and I can't remember exactly when the aches and pains started. I tried for years as my mom did to treat my depression only to have something work for a while and then stop working. Even when I'm feeling good moodwise, my sleep problems and pains have never resolved. So my doctor has ruld out everything else and settled on fibromyalgia. She sent me to a rheumatologist who just wanted to prescribe meds for the pain which didn't help anyway. I was wondering if anyone has found anything to help them sleep. I have frequent awakenings during the night usually from dreams. No sleeping pill has ever helped to keep my asleep. I go for my 4th sleep study in a few weeks. The sleep doctor stated that he wants to rule out narcolepsy because of the early initiation of REM sleep. I get up in the morning and I feel very tired. My doctor has suggested trying stimulants in the morning after the sleep study is completed. Has anyone found anything that helps them to stay asleep or at least to feel more awake during the day? Has anyone had any experience with using stimulants? I'm currently taking Wellbutrin and Zoloft for depression and them help but when I get stressed and/or I really lose a lot of sleep, I start feeling depressed and irritable again. I have a really hard time with my relationship with my boyfriend because I seem to lose interest in sex due to fatigue and pain from being in one position for more than a few minutes. It seems that whatever I do there is some pain somewhere that distracts me. And when I really feel depressed and/or inadequate and I want to cry he doesn't seem to understand my need to just cry sometimes. I noticed that someone mentioend movie theatres. I thought it was just me that found those seats so uncomfortable that I'm constantly having to switch positions. I have found that excercise and going to a chiropractor is helpful. The only problem is that I'm working full time while attending school part time working towards my Masters in Social Work. Add this to the fatigue and it is so hard to motivate myself to do an excercise video or go to the gym as much as I should to be helpful. I do have a wonderful gray and tan cat named andria. She's my little princess. I worry because she is almost 14 though she is in good health. I just couldn't imagine not having her with me. I don't know how many times I've cried in her fur and its the most wonderful thing to wake up and have her cuddled up with me. I'd better get back to work. My boss is out of town and I'm having difficulty getting motivated to do my paperwork though I know I will get it done. Sorry for rambling too much. Keshet "But she sat on five lines cursing the world for the shocks, loving the world because it has jaws, weeping at the absolute unreachable, the fifth line and the voice saying always: have faith, even curses make music." __________________________________________________

[Guest guest]

My Elivil and pain med help me at night to get drowsy...I actually had two dreams this month. That is great for me. Debi YAmy Swinderman wrote:

Welcome Keshet! I have the same sleeping problems. My rheumatologist put me on 10 mg a day of Doxepin to help me sleep.. well I think I have slept less than I ever have. It gives me very lucid and strange dreams, and I wake up frequently. I get up in the morning feeling like I ran a marathon rather than rested. I usually need a nap in the evenings just to survive. No matter how much sleep I get, I still feel like crap. I'm sorry I don't have a solution for you. I go back to my rheumy in May so I will ask more questions then.Keshet Burt-Hedrick wrote:

I was wondering if anyone has found anything to help them sleep. I have frequent awakenings during the night usually from dreams. No sleeping pill has ever helped to keep my asleep. I go for my 4th sleep study in a few weeks. The sleep doctor stated that he wants to rule out narcolepsy because of the early initiation of REM sleep. I get up in the morning and I feel very tired. My doctor has suggested trying stimulants in the morning after the sleep study is completed. Has anyone found anything that helps them to stay asleep or at least to feel more awake during the day? Has anyone had any experience with using stimulants?

Amy Swinderman Live aloha!

__________________________________________________

[Guest guest]

I have no problem feeling drowsy, I just have a

problem with sleeping deeply and staying asleep for a

long period of time.. what the heck can they do to

help that???

--- Deborah Younce wrote:

> My Elivil and pain med help me at night to get

> drowsy...I actually had two dreams this month. That

> is great for me. Debi Y

Amy Swinderman

Live aloha!

__________________________________________________

[Guest guest]

I have no problem feeling drowsy, I just have a

problem with sleeping deeply and staying asleep for a

long period of time.. what the heck can they do to

help that???

--- Deborah Younce wrote:

> My Elivil and pain med help me at night to get

> drowsy...I actually had two dreams this month. That

> is great for me. Debi Y

Amy Swinderman

Live aloha!

__________________________________________________

[Guest guest]

Welcome , sorry of course for the reason you qualify to be here! I can no longer work either. I live in England with my dog for company like you.. Aren't dogs great:)

Penny UK

On 01/04/2005 02:52:10, fibromyalgia_support_group wrote:> i have had fibro for 3 years. it came on all of a sudden. but i had> > gone through a lot of trauma for many years. now i am unable to work. i> > am divorced and live in vermont with my dog.> > cindy

[Guest guest]

welcome to the group Vicky so glad you are here. EvaSee what's free at AOL.com.

[Guest guest]

welcome to the group Vicky so glad you are here. EvaSee what's free at AOL.com.

[Guest guest]

hello

i am new to the ie concept too! i am in recovery for an eating

disorder and my therapist suggested this method. The thing that u

said about not knowing what u look like really hits home. I know

exactly what u are saying, i try to look and be like ok she is my

size but even knowing that i still feel as if i could never be that

thin or that pretty! ya kno? I get what u are saying about feeling

pathetic and ugly cause that is how i feel all the time too!its a

really lonely feeling because it seems like no one understands and

are just like what are you complaining about you have it really

good. its kinda a subconscious thing like i kno that my life is ok

and i have a lot to be thankful for but the other part of me blames

everything that doesnt work on the fact that i have gained weight.

So believe me miss, you are not pathetic or disgusting because i

have the same problems as u and you are not alone because i will

make u a deal, if u support me ill support u! ok! hang in there!

-- In IntuitiveEating_Support , " eva_bee17 "

wrote:

>

> I read the IE book a few months ago and have really been trying to

> follow it, but I can't seem to get over the fact that I want to be

> thinner. Weight loss is always my ultimate goal -- no matter how

much

> I know that thinking that way won't help me to make peace with

food,

> it somehow never sinks in. I have been binging for about 6 years

now.

> In the past I often purged though excercize or fasting, and

> occasionally though thowing up, but I stopped that 2 years ago. I

was

> pretty thin but healthy (about 17% body fat) up until 2 years ago -

- I

> was an athlete in college -- but when I was done competing I

gained 25

> pounds in 4 months and have been struggling with my weight even

more

> ever since. I can't stop comparing myself to how I used to look,

even

> though much of the time that I was thin I still thought I was

fat. I

> feel like I am constantly on a diet, even though I just keep

gaining

> weight and then losing a little and then dieting more - the

horrible

> cycle. I have such I skewed body image that I don't even know what

I

> look like -- am I " fat, " am I " normal, " am I " attractive " ? I can't

> tell. And it really bothers me how my perception of myself is so

> focused on weight. I have so many incredible things in my life, so

> many opportunities, and so many successes, yet looking back on the

> last 2 years that I have been heavier, I see myself as a failure. I

> have a VERY hard time talking about this, so I think that this

message

> board would be a great way for me to open up and get advice and

feel

> like I am not so alone or pathetic or disgusting because of my

issues

> with food.

>

[Guest guest]

Eva Bee, welcome to this board and rest assured, you are not alone.

I too want to be thinner but I also have come to accept the fact that

dieting will not allow me to become permanently thinner. I know I need

to work through my food/diet issues before I will be able to

permanently release some of my excess baggage.

[Guest guest]

Eva Bee, welcome to this board and rest assured, you are not alone.

I too want to be thinner but I also have come to accept the fact that

dieting will not allow me to become permanently thinner. I know I need

to work through my food/diet issues before I will be able to

permanently release some of my excess baggage.

[Guest guest]

Hi & welcome I too would like to weigh less than I currently am,

but as I have come to apply IE to my eating I am also getting the

'message' more and more that weight is simply the OBVIOUS, but not

real difficulty I must tackle. When I recently finished Overcoming

Overeating I knew that my challenge is to figure out why I am the

'size' I am. If I don't know those reasons, I will never be able to

effectively change how my body is because I will still be subject to them.

So to short cut a bit here's something that you may want to give a go

to - Picture yourself growing fatter and fatter and ask yourself what

benefits you feel if you do that. Also picture yourself growing

thinner and thinner and what does that make you feel like too?

Many people seem to feel more powerful and 'visible' thanks to being

'heavy' while thin scares them for several reasons. So is you can find

and understand the whys of your size(s), then you can focus on those

instead of fighting the ghost enemy of 'food' and control etc.

ehugs, Katcha

[Guest guest]

Hi & welcome I too would like to weigh less than I currently am,

but as I have come to apply IE to my eating I am also getting the

'message' more and more that weight is simply the OBVIOUS, but not

real difficulty I must tackle. When I recently finished Overcoming

Overeating I knew that my challenge is to figure out why I am the

'size' I am. If I don't know those reasons, I will never be able to

effectively change how my body is because I will still be subject to them.

So to short cut a bit here's something that you may want to give a go

to - Picture yourself growing fatter and fatter and ask yourself what

benefits you feel if you do that. Also picture yourself growing

thinner and thinner and what does that make you feel like too?

Many people seem to feel more powerful and 'visible' thanks to being

'heavy' while thin scares them for several reasons. So is you can find

and understand the whys of your size(s), then you can focus on those

instead of fighting the ghost enemy of 'food' and control etc.

ehugs, Katcha