Introduction

March 26, 2005

Hi Karis, I understand things like that happen, So now we get to have you as a member! Welcome aboard! I can already tell you will fit right in, in no time! Hi , I was a Moderator in my last group and though I will not get into specifics, I will say that there were tensions amongst the Management Team, and I felt it was best to leave, rather then have it cause stress for myself or any of our members. Karis Hi Karis, Your so welcome! It is difficult you never quite know if you will offend anyone, or step on any toes! But I went in here full barrel! And everyone has been awesome! Why did you leave your last group? Hi ; Thank you for the warm welcome, it is very difficult to move into a new group ... I hope that I am able to find my own little space within this established group/family. I am sure that everyone is very friendly and supportive - its just hard starting over. Karis HI KARIS, I am new too, and so far this group has made me feel very welcome! I hope you feel the same! Soft Hug... Hello everyone; My name is Karis, I'm a 36y/o single mother of a teenage daughter, living in Toronto Ontario. I am 6yrs diagnosed with FM-CFS, though have suffered the symptoms much longer. Additionally, I also have RLS, Sciatica, PTSD, Depression, Chronic Insomnia.. etc etc etc. And the 99 symptoms and side effects which go along with each of my illnesses. I have been on pretty much every medication known to man lol .. currently I am on the Duragesic Patch 25mcg for chronic pain around the clock, though I am having it increased to 50mcg - because of severe breakthrough pain, which I am taking Tylenol 4's for. This is in addition to muscle relaxants, CNS relaxants, etc etc etc. I am currently trying to shift as much of my prescription meds over to supplements as much as possible, at the moment, I am taking Vitamin D - 1200IU/day .. Magnesium 900mg/day ... B-Complex 100 and Glucosamine Sulfate 1500mg/day. I am looking forward to starting D-Ribose in the next week, as well. In my former group, there were many members who had wonderful results with D-Ribose, so I hope to share in those and find the relief I need. I also have severe swelling in my feet - I am fearful that I may have Gout - so, I will be having the urik acid testing done for that next week as well. ~seems I am forever being tested for one thing or another~ *ugh* lol Luckily, my most recent test have shown that I do not have Lupus. Which I am VERY thankful for. As I said, I have recently left my former support group, of which I was a Moderator... and though I will miss many of the members there, most of whom I have become quite close with, I am in search of a new 'home'. I am hopeful that I will be able to find the support I require within your group. I know the importance of sharing fears/concerns/experiences with ones who "know" what I am going through. And hopefully I can share with you some of my personal experiences as well. I look forward to getting to know each of you, over time .. as I am with great hopes that I may be able to become part of your 'family'. <warm hugs> Karis 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

March 26, 2005

Hi Kathleen,

Thank you for the welcome, I actually have been jumping in, I've made a few posts now, but I believe I am still being moderated - so my posts aren't coming up until hours after the fact. Sort of difficult to piece them to any relevant conversation. lol

Karis

Re: Introduction

Hi Karis,

I must have missed your post when you introduced yourself. Anyway, welcome to the group. It is a good group of people who share a common bond. That means everything, considering the conflicts we endure because of this disease.

I look forward to getting to know you. Just jump in any time!

Kathleen1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

March 26, 2005

Hi Kathleen,

Thank you for the welcome, I actually have been jumping in, I've made a few posts now, but I believe I am still being moderated - so my posts aren't coming up until hours after the fact. Sort of difficult to piece them to any relevant conversation. lol

Karis

Re: Introduction

Hi Karis,

I must have missed your post when you introduced yourself. Anyway, welcome to the group. It is a good group of people who share a common bond. That means everything, considering the conflicts we endure because of this disease.

I look forward to getting to know you. Just jump in any time!

Kathleen1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

March 26, 2005

Hi Kathleen,

Thank you for the welcome, I actually have been jumping in, I've made a few posts now, but I believe I am still being moderated - so my posts aren't coming up until hours after the fact. Sort of difficult to piece them to any relevant conversation. lol

Karis

Re: Introduction

Hi Karis,

I must have missed your post when you introduced yourself. Anyway, welcome to the group. It is a good group of people who share a common bond. That means everything, considering the conflicts we endure because of this disease.

I look forward to getting to know you. Just jump in any time!

Kathleen1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

March 26, 2005

Hi ;

I know how difficult it is for so many who suffer with FMS and associated illnesses, I am fortunate that way, that I can actually spend many hours at the computer - and do - lol ... while working on web sites etc,

In my former group, partially because I was a Moderator - and partially because it was Really active - I could be on for 12hrs a day. Now mind you that isn't straight... I leave my computer on all day and it is in the livingroom - so I am able to hop on and off through the day.

Karis

Re: Introduction

Hi Karis,

Your so welcome! It is difficult you never quite know if you will offend anyone, or step on any toes! But I went in here full barrel! And everyone has been awesome! Why did you leave your last group?

Hi ;

Thank you for the warm welcome, it is very difficult to move into a new group ... I hope that I am able to find my own little space within this established group/family. I am sure that everyone is very friendly and supportive - its just hard starting over.

Karis

HI KARIS,

I am new too, and so far this group has made me feel very welcome!

I hope you feel the same!

Soft Hug...

Hello everyone;

My name is Karis, I'm a 36y/o single mother of a teenage daughter, living in Toronto Ontario. I am 6yrs diagnosed with FM-CFS, though have suffered the symptoms much longer. Additionally, I also have RLS, Sciatica, PTSD, Depression, Chronic Insomnia.. etc etc etc. And the 99 symptoms and side effects which go along with each of my illnesses.

I have been on pretty much every medication known to man lol .. currently I am on the Duragesic Patch 25mcg for chronic pain around the clock, though I am having it increased to 50mcg - because of severe breakthrough pain, which I am taking Tylenol 4's for. This is in addition to muscle relaxants, CNS relaxants, etc etc etc.

I am currently trying to shift as much of my prescription meds over to supplements as much as possible, at the moment, I am taking Vitamin D - 1200IU/day .. Magnesium 900mg/day ... B-Complex 100 and Glucosamine Sulfate 1500mg/day. I am looking forward to starting D-Ribose in the next week, as well.

In my former group, there were many members who had wonderful results with D-Ribose, so I hope to share in those and find the relief I need.

I also have severe swelling in my feet - I am fearful that I may have Gout - so, I will be having the urik acid testing done for that next week as well. ~seems I am forever being tested for one thing or another~ *ugh* lol

Luckily, my most recent test have shown that I do not have Lupus. Which I am VERY thankful for.

As I said, I have recently left my former support group, of which I was a Moderator... and though I will miss many of the members there, most of whom I have become quite close with, I am in search of a new 'home'.

I am hopeful that I will be able to find the support I require within your group. I know the importance of sharing fears/concerns/experiences with ones who "know" what I am going through. And hopefully I can share with you some of my personal experiences as well.

I look forward to getting to know each of you, over time .. as I am with great hopes that I may be able to become part of your 'family'.

Karis

1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

March 26, 2005