Guest guest Posted June 12, 1999 Report Share Posted June 12, 1999 The way I judge what is normal or not is by the differances during the 4 days of total breakthrough I got in 1981 when the Mellaril almost killed me and then things suddenly worked " normally " in my body and mind. It was such a dramatic differance that it is etched in my mind in very exact detailed memory forever. It was not a high as some people may think since I have never felt so relaxed yet had more energy -normal -consistent -natural energy, and an ability to rest like I had never known but that matches " normal " explanations of sleep and rest I hear people talk about like " Todays a new day, how refreshing it is to wake in the morning, etc. " Sometimes I think that was the worst curse a person could have to suddenly experience normalcy and then get thrown back into chronic illness forevermore. Other times I am grateful to know I do not have to blame myself for being such a failure or not able to operate up to par like people without chronic illness or disabilities. It is hard to see others esp. children hurting when I can see it is clearly out of their control and others think I am making excuses for them. I had to try and explain to Tylynn this morning how his feelings of everything in life for him is work and a struggle and how unhappy he is into how he has chronic low level depression because of chemical imbalances in his body. I told him within several weeks he will get this SPECT scan (which he is excited over) and life will feel more cheerful to him and it will become easier with the right medicine and knowing how to work with his particular chemistry with learning aids and environmental changes. He kind of gets it. Does anyone know of any organizations that would help Connie financially get the SPECT scan, like Shriners etc. since she is an adult? S. Re: scripting From: nmnett@... (nicole nett) I know you're right, but you know how it goes, EVERYTHING is a symptom. It kinda makes you feel crazy sometimes. ------------------------------------------------------------------------ What do lizards and rock music have in common? http://www.onelist.com They both have communities at ONElist. Find yours today! ------------------------------------------------------------------------ Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 1999 Report Share Posted June 12, 1999 The way I judge what is normal or not is by the differances during the 4 days of total breakthrough I got in 1981 when the Mellaril almost killed me and then things suddenly worked " normally " in my body and mind. It was such a dramatic differance that it is etched in my mind in very exact detailed memory forever. It was not a high as some people may think since I have never felt so relaxed yet had more energy -normal -consistent -natural energy, and an ability to rest like I had never known but that matches " normal " explanations of sleep and rest I hear people talk about like " Todays a new day, how refreshing it is to wake in the morning, etc. " Sometimes I think that was the worst curse a person could have to suddenly experience normalcy and then get thrown back into chronic illness forevermore. Other times I am grateful to know I do not have to blame myself for being such a failure or not able to operate up to par like people without chronic illness or disabilities. It is hard to see others esp. children hurting when I can see it is clearly out of their control and others think I am making excuses for them. I had to try and explain to Tylynn this morning how his feelings of everything in life for him is work and a struggle and how unhappy he is into how he has chronic low level depression because of chemical imbalances in his body. I told him within several weeks he will get this SPECT scan (which he is excited over) and life will feel more cheerful to him and it will become easier with the right medicine and knowing how to work with his particular chemistry with learning aids and environmental changes. He kind of gets it. Does anyone know of any organizations that would help Connie financially get the SPECT scan, like Shriners etc. since she is an adult? S. Re: scripting From: nmnett@... (nicole nett) I know you're right, but you know how it goes, EVERYTHING is a symptom. It kinda makes you feel crazy sometimes. ------------------------------------------------------------------------ What do lizards and rock music have in common? http://www.onelist.com They both have communities at ONElist. Find yours today! ------------------------------------------------------------------------ Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.