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Lori,

My Jill (who is nine and developmentally delayed) also reenacts what has

happened to her during the day. Usually she uses her dolly to repeat the

day's events. She has been doing this for many years. I don't know if it's

normal or not but I wanted to let you know Alycia is not the only one.

Actually sometimes I listen in on her conversations with dolly and I get a

better idea of how her day at school was than if I had asked Jill directly.

I have wondered if this is her way of sorting out the day's events.

Sometimes I think there is too much going on at once for Jill and she needs

to go through it later, in the quiet of her own room.

.

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In a message dated 6/9/1999 5:33:26 PM Eastern Daylight Time,

jdowns@... writes:

> She does interact with her peers and the adults in her life so this

> habit isn't excluding " real " conversation.

>

> It is really sort of getting on my nerves but at least if I knew it

> were normal, it wouldn't concern me so much.

Hi, :Lori --

I think you'd have more to be concerned about it she did not have

interactions with peers and adults. My hunch is that she is simply

processing her interactions...and that she is an awfully creative kid.

If you're concerned about whether it's normal, you might check with someone

in child psychology just to make sure it's not highly correlated with some

potential problem you're not aware of. If I had to wager a guess, I'd guess

it's not, but I know a lot more about grownups and adolescents than the

little ones.

-

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In a message dated 99-06-09 17:33:27 EDT, you write:

<< Is this normal? All I can picture are those poor old folks with

dementia walking around having conversations with themselves. This is

essentially what she is doing.

She does interact with her peers and the adults in her life so this

habit isn't excluding " real " conversation.

It is really sort of getting on my nerves but at least if I knew it

were normal, it wouldn't concern me so much.

Lori >>

I can't comment on Alecia's behavior, but I can tell you that our daughter,

Amy does, indeed have third-stage dementia and talks to her self in these

conversations. She also is able to interact with peers. The big difference

I see is that didn't start with Amy untill she was 16 years old. A child

Alecia's age is still in that stage where they work things out via fantacy

playing. Books like The Frog prince and Cinerella all are popular with five

your olds due to the fantacy aspect. Draggons and Princices Pirates and

farries can be almost real to a five year old and often help them cope with

things that often concern the child.

Another idea is that you might want Alecia to be regularly (By-yearly or

more) by a Neuro-Psycologist. Amy saw one regularly and I found it extreamly

helpfull to gageing her development and skill levil. This was covered by our

HMO at the time, Kaiser Permanente, and this Dr was probably the ONLY kaiser

Doc that I actually liked!

I know what you mean about getting on your nerves...me too :)

Ahhh, the challenge of living with a loved one with cronic illness...the fun

never ends!

Lynnie

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In a message dated 99-06-09 19:06:16 EDT, you write:

<< Sometimes I think there is too much going on at once for Jill and she

needs

to go through it later, in the quiet of her own room. >>

Oh ,

I think this is true for our Amy as well. She can't take it when our 14 & 16

year old are in the room. She says that they are too noisey- heck, their to

noisey for me!

Amy also covers her ears when I turn the left-right turn signal on in the

car. She says the noise is too loud. Amy has third-stage dementia and when

things get going to fast for her she gets angry and confused and begins to

halucinate and experence parinoia. We have learned what the triggers are and

we take care not to put her in a position that will trigger the problems. We

find safe ways for her to express herself- like your daughter and her doll

and Alecia and her toe conversations.

We liken Amy's brain to a computer with a short. The infomation she draws

sometimes is unaccessable and the screen often plays things that she doesn't

want or expect. We think she is a joy to us and often her humor is

priceless! I feel for her though, it gets rough at times.

Lynnie

Wife, Mother, Advocate

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In a message dated 99-06-09 19:06:16 EDT, you write:

<< Sometimes I think there is too much going on at once for Jill and she

needs

to go through it later, in the quiet of her own room. >>

Oh ,

I think this is true for our Amy as well. She can't take it when our 14 & 16

year old are in the room. She says that they are too noisey- heck, their to

noisey for me!

Amy also covers her ears when I turn the left-right turn signal on in the

car. She says the noise is too loud. Amy has third-stage dementia and when

things get going to fast for her she gets angry and confused and begins to

halucinate and experence parinoia. We have learned what the triggers are and

we take care not to put her in a position that will trigger the problems. We

find safe ways for her to express herself- like your daughter and her doll

and Alecia and her toe conversations.

We liken Amy's brain to a computer with a short. The infomation she draws

sometimes is unaccessable and the screen often plays things that she doesn't

want or expect. We think she is a joy to us and often her humor is

priceless! I feel for her though, it gets rough at times.

Lynnie

Wife, Mother, Advocate

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Hi ,

I would say Alycia is doing the same thing as . Sorting out her day in

the quiet of her room. I

too hear some interesting things about Alycia's day and about Alycia's point of

view of certain situations

when I listen to her talk to herself. Sometimes I get a not so good glimpse of

myself but I take it

constructively and try to change the way I do things. For example, she may have

the " mommy foot " yell at

the " Alycia " foot then have the Alycia foot say " mommy, don't yell at me so

much " . It makes me realize

that I need to tone my voice down and work on my patience if she is feeling that

I am yelling at her. It

is certainly insightful to hear our kids talk out their day!

I think your theory about there being too much going on at once for these kids

such that they have to

process it later makes a lot of sense. I know that Alycia will re-work social

situations with her peers

and she seems to learn from her little self conversations.

Alycia is almost 5 and is also developmentally delayed by about a year and a

half or more.

Thanks for your input.

Jill sounds like a little cutie!

Lori

McGarry wrote:

>

>

> Lori,

> My Jill (who is nine and developmentally delayed) also reenacts what has

> happened to her during the day. Usually she uses her dolly to repeat the

> day's events. She has been doing this for many years. I don't know if it's

> normal or not but I wanted to let you know Alycia is not the only one.

> Actually sometimes I listen in on her conversations with dolly and I get a

> better idea of how her day at school was than if I had asked Jill directly.

> I have wondered if this is her way of sorting out the day's events.

> Sometimes I think there is too much going on at once for Jill and she needs

> to go through it later, in the quiet of her own room.

> .

>

> ------------------------------------------------------------------------

> Have you entered ONElist's " Grow to Give " program?

> http://www.onelist.com

> Deadline is June 19. Join now to win $5000 for your charity of choice.

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by mitochondrial disease.

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In a message dated 6/10/1999 8:53:39 AM Eastern Daylight Time,

nmnett@... writes:

> My son is 17 months old, and although he can't talk yet, he is

> obsessed with his feet. I'm sure some of it may be typical toddler

> stuff. But his feet are reactive with his emotions. When he gets

> excited, he twirls them, when he's mad he curls his toes, etc.

You know, I'm no neurologist, but it seems to me that all this is pretty

normal. I remember going to the dentist recently and seeing the

receptionist's baby girl, who had to come to work with mommie because the

sitter was sick. She sat in her walker and yelled for attention, all the time

hands AND feet twirling! Sometimes I see myself so much in terms of this

disease that I forget that most of me is normal -- we have a running joke in

the family -- " Do you ever [fill in the blank]? " " Yes, sometimes. " " You know,

it's a symptom! " With the receptionist's little girl, I doubt there was any

mito involved -- and I'll bet your little fellow would twirl those feet, mito

or not. :)

-

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My son is 17 months old, and although he can't talk yet, he is

obsessed with his feet. I'm sure some of it may be typical toddler

stuff. But his feet are reactive with his emotions. When he gets

excited, he twirls them, when he's mad he curls his toes, etc. Also when

he has " downtime " he will stare at them amd make noises at them. Maybe

it's normal. I think all kids have imaginary friends, and I would guess

that your daughters feet are more accessible than dolls, toys, etc.

Perhaps they are just her forever handy friends! Then again, I'm pretty

new at all this mito stuff....

Good Luck,

, wife to , mommie to

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How weird is this, replying to my own email. I am now retracting what I

said, after reading the other emails (re: scripting). Now I have to

wonder if is doing something similar...but without using words. He

has some sensory integration issues, so I wonder if he uses his

interactions with his feet to kind of center himself, like they are

calming or something...

Hmmmm.....anybody have any ideas on this? I too, thought he was just

being cute.

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How weird is this, replying to my own email. I am now retracting what I

said, after reading the other emails (re: scripting). Now I have to

wonder if is doing something similar...but without using words. He

has some sensory integration issues, so I wonder if he uses his

interactions with his feet to kind of center himself, like they are

calming or something...

Hmmmm.....anybody have any ideas on this? I too, thought he was just

being cute.

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How weird is this, replying to my own email. I am now retracting what I

said, after reading the other emails (re: scripting). Now I have to

wonder if is doing something similar...but without using words. He

has some sensory integration issues, so I wonder if he uses his

interactions with his feet to kind of center himself, like they are

calming or something...

Hmmmm.....anybody have any ideas on this? I too, thought he was just

being cute.

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Ya know, guys, even adults can do this sort of thing. I've always had a good

imagination to get me through horrible things. Yest. when I was so upset

(with the aspiriation this morning and my daughter-in-law called me to say

she abused my grandson and please come get him, she can't take anymore-I

said I will keep him until we find help and she has no choice now) BUT while

I waited in the car for her to run in the store for something before I left

I sat and played with the stuffed toys with the other child, not for him as

much as for my nerves. I HAD to have some way to filter out the chaos

inside. So I suspect you are all right on with these kids doing this to calm

down and sort out things. I think it's very creative and good and I would

encourage it as long as they also interact with others.

S.

Re: scripting

From: nmnett@... (nicole nett)

How weird is this, replying to my own email. I am now retracting what I

said, after reading the other emails (re: scripting). Now I have to

wonder if is doing something similar...but without using words. He

has some sensory integration issues, so I wonder if he uses his

interactions with his feet to kind of center himself, like they are

calming or something...

Hmmmm.....anybody have any ideas on this? I too, thought he was just

being cute.

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At 05:23 PM 6/9/99 -0400, you wrote:

>

>Then the feet will

>have a conversation which is very frequently a re-working of a

>converstation had earlier between the two identies.

I recently read in Child magazine that rehashing conversations and role

playing is a normal early childhood activity--and is important for the

development of language (and probably cognitive/emotional/social) skills.

The article also commented on how much kids this age talk and talk and talk

to the point that parents would like them to be quiet--but shouldn't tell

them to. I think it may have been listed as common for 3 year olds, but I

can't swear to an age range. I know my healthy 3-year old does this a lot.

It's great that Alycia has such a good memory that she repeats the

conversations verbatim!

Suzanne in CT

mom to twins (Complex IV deficiency) & Hannah L., age 3

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Hi ,

Thanks for the reassurance and on Alycia's behalf, thanks for the compliment.

It is pretty funny that she

uses her feet as " people " !

I will be seeing the mito specialist next week. I will ask him if he thinks

anything deeper is going on

but my hunch is with you.....it's just a kid processing her day. Probably much

the way I think about my

own day only I do it privately in my thoughts....she just hasn't learned to keep

her thoughts private

which is a good thing I think.

Lori

Arrants@... wrote:

> From: Arrants@...

>

> In a message dated 6/9/1999 5:33:26 PM Eastern Daylight Time,

> jdowns@... writes:

>

> > She does interact with her peers and the adults in her life so this

> > habit isn't excluding " real " conversation.

> >

> > It is really sort of getting on my nerves but at least if I knew it

> > were normal, it wouldn't concern me so much.

>

> Hi, :Lori --

>

> I think you'd have more to be concerned about it she did not have

> interactions with peers and adults. My hunch is that she is simply

> processing her interactions...and that she is an awfully creative kid.

>

> If you're concerned about whether it's normal, you might check with someone

> in child psychology just to make sure it's not highly correlated with some

> potential problem you're not aware of. If I had to wager a guess, I'd guess

> it's not, but I know a lot more about grownups and adolescents than the

> little ones.

>

> -

>

> ------------------------------------------------------------------------

> Having difficulty getting " in synch " with list members?

> http://www.onelist.com

> Try ONElist's Shared Calendar to organize events, meetings and more!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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Hi ,

Thanks for the reassurance and on Alycia's behalf, thanks for the compliment.

It is pretty funny that she

uses her feet as " people " !

I will be seeing the mito specialist next week. I will ask him if he thinks

anything deeper is going on

but my hunch is with you.....it's just a kid processing her day. Probably much

the way I think about my

own day only I do it privately in my thoughts....she just hasn't learned to keep

her thoughts private

which is a good thing I think.

Lori

Arrants@... wrote:

> From: Arrants@...

>

> In a message dated 6/9/1999 5:33:26 PM Eastern Daylight Time,

> jdowns@... writes:

>

> > She does interact with her peers and the adults in her life so this

> > habit isn't excluding " real " conversation.

> >

> > It is really sort of getting on my nerves but at least if I knew it

> > were normal, it wouldn't concern me so much.

>

> Hi, :Lori --

>

> I think you'd have more to be concerned about it she did not have

> interactions with peers and adults. My hunch is that she is simply

> processing her interactions...and that she is an awfully creative kid.

>

> If you're concerned about whether it's normal, you might check with someone

> in child psychology just to make sure it's not highly correlated with some

> potential problem you're not aware of. If I had to wager a guess, I'd guess

> it's not, but I know a lot more about grownups and adolescents than the

> little ones.

>

> -

>

> ------------------------------------------------------------------------

> Having difficulty getting " in synch " with list members?

> http://www.onelist.com

> Try ONElist's Shared Calendar to organize events, meetings and more!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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Guest guest

Hi ,

Thanks for the reassurance and on Alycia's behalf, thanks for the compliment.

It is pretty funny that she

uses her feet as " people " !

I will be seeing the mito specialist next week. I will ask him if he thinks

anything deeper is going on

but my hunch is with you.....it's just a kid processing her day. Probably much

the way I think about my

own day only I do it privately in my thoughts....she just hasn't learned to keep

her thoughts private

which is a good thing I think.

Lori

Arrants@... wrote:

> From: Arrants@...

>

> In a message dated 6/9/1999 5:33:26 PM Eastern Daylight Time,

> jdowns@... writes:

>

> > She does interact with her peers and the adults in her life so this

> > habit isn't excluding " real " conversation.

> >

> > It is really sort of getting on my nerves but at least if I knew it

> > were normal, it wouldn't concern me so much.

>

> Hi, :Lori --

>

> I think you'd have more to be concerned about it she did not have

> interactions with peers and adults. My hunch is that she is simply

> processing her interactions...and that she is an awfully creative kid.

>

> If you're concerned about whether it's normal, you might check with someone

> in child psychology just to make sure it's not highly correlated with some

> potential problem you're not aware of. If I had to wager a guess, I'd guess

> it's not, but I know a lot more about grownups and adolescents than the

> little ones.

>

> -

>

> ------------------------------------------------------------------------

> Having difficulty getting " in synch " with list members?

> http://www.onelist.com

> Try ONElist's Shared Calendar to organize events, meetings and more!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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Hi Lynnie,

Joanne mentioned the benefits of a neuro-psycologist as well. It seems like a

good idea.

I am sorry to hear of Amy's decline. It must be such a heart ache for you.

<<<HUGS>>>>

Lori

GOLYNIE@... wrote:

> From: GOLYNIE@...

>

> In a message dated 99-06-09 17:33:27 EDT, you write:

>

> << Is this normal? All I can picture are those poor old folks with

> dementia walking around having conversations with themselves. This is

> essentially what she is doing.

>

> She does interact with her peers and the adults in her life so this

> habit isn't excluding " real " conversation.

>

> It is really sort of getting on my nerves but at least if I knew it

> were normal, it wouldn't concern me so much.

>

>

> Lori >>

>

> I can't comment on Alecia's behavior, but I can tell you that our daughter,

> Amy does, indeed have third-stage dementia and talks to her self in these

> conversations. She also is able to interact with peers. The big difference

> I see is that didn't start with Amy untill she was 16 years old. A child

> Alecia's age is still in that stage where they work things out via fantacy

> playing. Books like The Frog prince and Cinerella all are popular with five

> your olds due to the fantacy aspect. Draggons and Princices Pirates and

> farries can be almost real to a five year old and often help them cope with

> things that often concern the child.

>

> Another idea is that you might want Alecia to be regularly (By-yearly or

> more) by a Neuro-Psycologist. Amy saw one regularly and I found it extreamly

> helpfull to gageing her development and skill levil. This was covered by our

> HMO at the time, Kaiser Permanente, and this Dr was probably the ONLY kaiser

> Doc that I actually liked!

>

> I know what you mean about getting on your nerves...me too :)

> Ahhh, the challenge of living with a loved one with cronic illness...the fun

> never ends!

>

> Lynnie

>

> ------------------------------------------------------------------------

> Campaign 2000 is here!

> http://www.onelist.com

> Discuss your thoughts; get informed at ONElist. See our homepage.

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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HI ,

Alycia did the same as at that age. She has been talking to her toes

before she could talk. I

probably is normal but I have nothing to guage the difference between normal and

abnormal since Alycia is

my only child. I have no baseline for comparison. Maybe what I need to do is

ask this question of

parents with typically developing kids.

I guess feet make pretty handy toys since they are always there for you.

is clearly figuring that

out I would say. :o)

Lori

nicole nett wrote:

> From: nmnett@... (nicole nett)

>

> My son is 17 months old, and although he can't talk yet, he is

> obsessed with his feet. I'm sure some of it may be typical toddler

> stuff. But his feet are reactive with his emotions. When he gets

> excited, he twirls them, when he's mad he curls his toes, etc. Also when

> he has " downtime " he will stare at them amd make noises at them. Maybe

> it's normal. I think all kids have imaginary friends, and I would guess

> that your daughters feet are more accessible than dolls, toys, etc.

> Perhaps they are just her forever handy friends! Then again, I'm pretty

> new at all this mito stuff....

>

> Good Luck,

> , wife to , mommie to

>

> ------------------------------------------------------------------------

> How has ONElist changed your life?

> Share your story with us at http://www.onelist.com

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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Hi Suzanne,

This is encouraging to hear except that Alycia is almost 5. On the other hand,

I know that

cognatively/academically she is about 3 or 3 1/2 so your theory actually makes

perfect sense. She's just

doing this a little later than her peers did it but this is ok with me. If it

is going to help her learn

language and social skills she can talk to her feet all day long!

As for her memory, she is an enigma. She can remember conversations verbatim,

she'll remember the name of

a person that she met once a full year ago, she remembers places that she went,

she remembers who gave her

certain toys and she memorizes the spellings of names for people who are

important to her. But......try

to get her to learn a nursery rhyme, her address, her telephone number, a song

and there is no hope. She

just can't do it. Wierd, huh?

During her speech evaluation last week, she couldn't repeat back very simple 6-7

word sentences. She has

trouble with short term memory but once it makes it to long term, it is there

solid as a rock. Really

strange.

Lori

Suzanne Eggleston wrote:

>

>

> At 05:23 PM 6/9/99 -0400, you wrote:

> >

> >Then the feet will

> >have a conversation which is very frequently a re-working of a

> >converstation had earlier between the two identies.

>

> I recently read in Child magazine that rehashing conversations and role

> playing is a normal early childhood activity--and is important for the

> development of language (and probably cognitive/emotional/social) skills.

> The article also commented on how much kids this age talk and talk and talk

> to the point that parents would like them to be quiet--but shouldn't tell

> them to. I think it may have been listed as common for 3 year olds, but I

> can't swear to an age range. I know my healthy 3-year old does this a lot.

> It's great that Alycia has such a good memory that she repeats the

> conversations verbatim!

>

> Suzanne in CT

> mom to twins (Complex IV deficiency) & Hannah L., age 3

>

> ------------------------------------------------------------------------

> Looking for a new hobby? Want to make a new friend?

> http://www.onelist.com

> Come join one of over 165,000 e-mail communities at ONElist!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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Hi Suzanne,

This is encouraging to hear except that Alycia is almost 5. On the other hand,

I know that

cognatively/academically she is about 3 or 3 1/2 so your theory actually makes

perfect sense. She's just

doing this a little later than her peers did it but this is ok with me. If it

is going to help her learn

language and social skills she can talk to her feet all day long!

As for her memory, she is an enigma. She can remember conversations verbatim,

she'll remember the name of

a person that she met once a full year ago, she remembers places that she went,

she remembers who gave her

certain toys and she memorizes the spellings of names for people who are

important to her. But......try

to get her to learn a nursery rhyme, her address, her telephone number, a song

and there is no hope. She

just can't do it. Wierd, huh?

During her speech evaluation last week, she couldn't repeat back very simple 6-7

word sentences. She has

trouble with short term memory but once it makes it to long term, it is there

solid as a rock. Really

strange.

Lori

Suzanne Eggleston wrote:

>

>

> At 05:23 PM 6/9/99 -0400, you wrote:

> >

> >Then the feet will

> >have a conversation which is very frequently a re-working of a

> >converstation had earlier between the two identies.

>

> I recently read in Child magazine that rehashing conversations and role

> playing is a normal early childhood activity--and is important for the

> development of language (and probably cognitive/emotional/social) skills.

> The article also commented on how much kids this age talk and talk and talk

> to the point that parents would like them to be quiet--but shouldn't tell

> them to. I think it may have been listed as common for 3 year olds, but I

> can't swear to an age range. I know my healthy 3-year old does this a lot.

> It's great that Alycia has such a good memory that she repeats the

> conversations verbatim!

>

> Suzanne in CT

> mom to twins (Complex IV deficiency) & Hannah L., age 3

>

> ------------------------------------------------------------------------

> Looking for a new hobby? Want to make a new friend?

> http://www.onelist.com

> Come join one of over 165,000 e-mail communities at ONElist!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those affected

by mitochondrial disease.

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Guest guest

Hi Suzanne,

This is encouraging to hear except that Alycia is almost 5. On the other hand,

I know that

cognatively/academically she is about 3 or 3 1/2 so your theory actually makes

perfect sense. She's just

doing this a little later than her peers did it but this is ok with me. If it

is going to help her learn

language and social skills she can talk to her feet all day long!

As for her memory, she is an enigma. She can remember conversations verbatim,

she'll remember the name of

a person that she met once a full year ago, she remembers places that she went,

she remembers who gave her

certain toys and she memorizes the spellings of names for people who are

important to her. But......try

to get her to learn a nursery rhyme, her address, her telephone number, a song

and there is no hope. She

just can't do it. Wierd, huh?

During her speech evaluation last week, she couldn't repeat back very simple 6-7

word sentences. She has

trouble with short term memory but once it makes it to long term, it is there

solid as a rock. Really

strange.

Lori

Suzanne Eggleston wrote:

>

>

> At 05:23 PM 6/9/99 -0400, you wrote:

> >

> >Then the feet will

> >have a conversation which is very frequently a re-working of a

> >converstation had earlier between the two identies.

>

> I recently read in Child magazine that rehashing conversations and role

> playing is a normal early childhood activity--and is important for the

> development of language (and probably cognitive/emotional/social) skills.

> The article also commented on how much kids this age talk and talk and talk

> to the point that parents would like them to be quiet--but shouldn't tell

> them to. I think it may have been listed as common for 3 year olds, but I

> can't swear to an age range. I know my healthy 3-year old does this a lot.

> It's great that Alycia has such a good memory that she repeats the

> conversations verbatim!

>

> Suzanne in CT

> mom to twins (Complex IV deficiency) & Hannah L., age 3

>

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The way I judge what is normal or not is by the differances during the 4

days of total breakthrough I got in 1981 when the Mellaril almost killed me

and then things suddenly worked " normally " in my body and mind. It was such

a dramatic differance that it is etched in my mind in very exact detailed

memory forever. It was not a high as some people may think since I have

never felt so relaxed yet had more energy -normal -consistent -natural

energy, and an ability to rest like I had never known but that matches

" normal " explanations of sleep and rest I hear people talk about like

" Todays a new day, how refreshing it is to wake in the morning, etc. "

Sometimes I think that was the worst curse a person could have to suddenly

experience normalcy and then get thrown back into chronic illness

forevermore. Other times I am grateful to know I do not have to blame myself

for being such a failure or not able to operate up to par like people

without chronic illness or disabilities.

It is hard to see others esp. children hurting when I can see it is clearly

out of their control and others think I am making excuses for them.

I had to try and explain to Tylynn this morning how his feelings of

everything in life for him is work and a struggle and how unhappy he is into

how he has chronic low level depression because of chemical imbalances in

his body. I told him within several weeks he will get this SPECT scan (which

he is excited over) and life will feel more cheerful to him and it will

become easier with the right medicine and knowing how to work with his

particular chemistry with learning aids and environmental changes. He kind

of gets it.

Does anyone know of any organizations that would help Connie financially get

the SPECT scan, like Shriners etc. since she is an adult? S.

Re: scripting

From: nmnett@... (nicole nett)

I know you're right, but you know how it goes, EVERYTHING is a symptom.

It kinda makes you feel crazy sometimes.

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