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Re: ADD/ADHD and Mito

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Hi Sharon,

I'm sure I don't have to tell you this, but I am anyway. :)) Make sure

the lab does the lactic acid test correctly, same with the pyruvate. We

waited 30 minutes for APL to read how to do the tests (they aren't your run

of the mill tests) and the they still messed it up. When we got home with

two screaming hungry kids, they called and wanted us to come all the way

back because the red tube was the one that the blood was supposed to go in.

The gray was OK, red was preferred. I told them they could stick their

tubes I was NOT going back! :)) Plus the lactic has to be drawn free

flowing and put on ice immediately if not sooner. This is just friendly

advice so you won't have to go through it all again. :)) The fasting was a

pain, but keeping those little pee bags on the kids was worse! :) I had to

take the urine back a few days later. :) Good luck...

Sue ( & Jack)-worn out parents to the greatest kids on earth--

Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker

-7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach

tube (tracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb

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In a message dated 7/6/99 8:56:33 PM Eastern Daylight Time, jscb@...

writes:

<< Make sure

the lab does the lactic acid test correctly, same with the pyruvate. >>

This much I was advised of and actually knew - so if it is not drawn in

Baltimore I was given the lab in Philly to use - the only placehe will let me

have it done up here. SOme labs do not even put it on ice and others use a

turniquest to draw the blood - 2 big no nos. Thanks for the for the friendly

advise.

Love,

Sharon

mommy to Jake (6)(ADHD and too smart for his own good) and fraternal twins

(3/30/97) - Cole -(nda and cute as a button) and Clayton (mitochondrial

disorder (presumed to be complex I), eosinophilic gastroenteritis, food

allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, DD,

sensory integration disorder, tremors, etc........., and the world's best

smile)

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