Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 In a message dated 7/2/99 9:37:16 AM Eastern Daylight Time, sawyer@... writes: << Shoffner and we discussed the family history, he mentioned to me that he frequently sees, ADD or ADHD in siblings of the kids that he is evalutating for mitochondrial disease. >> My older son Jake, Clayton's brother is ADHD and Dr. Kelley also asked about this as he too sees this often in siblings. Love, Sharon - mom to Jake (6 - ADHD), Cole (2 - and Clayton's fraternal twin - NDA), and Clayton (2 - mito - presumed to be complex I) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 Then I wonder why these Dr.s aren't interested in testing these ADHD kids for mito so we can have proof and they can have more help! S. Re: ADD/ADHD and Mito >From: SDidinsky@... > >In a message dated 7/2/99 9:37:16 AM Eastern Daylight Time, sawyer@... >writes: > ><< Shoffner and we discussed the family history, he mentioned to me that he >frequently sees, ADD or ADHD in > siblings of the kids that he is evalutating for mitochondrial disease. >> > >My older son Jake, Clayton's brother is ADHD and Dr. Kelley also asked about >this as he too sees this often in siblings. > >Love, >Sharon - mom to Jake (6 - ADHD), Cole (2 - and Clayton's fraternal twin - >NDA), and Clayton (2 - mito - presumed to be complex I) > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 Then I wonder why these Dr.s aren't interested in testing these ADHD kids for mito so we can have proof and they can have more help! S. Re: ADD/ADHD and Mito >From: SDidinsky@... > >In a message dated 7/2/99 9:37:16 AM Eastern Daylight Time, sawyer@... >writes: > ><< Shoffner and we discussed the family history, he mentioned to me that he >frequently sees, ADD or ADHD in > siblings of the kids that he is evalutating for mitochondrial disease. >> > >My older son Jake, Clayton's brother is ADHD and Dr. Kelley also asked about >this as he too sees this often in siblings. > >Love, >Sharon - mom to Jake (6 - ADHD), Cole (2 - and Clayton's fraternal twin - >NDA), and Clayton (2 - mito - presumed to be complex I) > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 wrote: > Then I wonder why these Dr.s aren't interested in testing these ADHD kids > for mito so we can have proof and they can have more help! S. . I think it may be because there are many many other reasons for ADHD besides mito. I don't think it would be feasible to test every child or adult with ADHD for mito disease. Worse yet, I doubt that insurance would pay for it. It's sort of like head aches and brain tumors. If you have a brain tumor you can have frequent headaches, but if you have frequent headaches it doesn't necessarily mean that you have a brain tumor. Nor do they evaluate everyone with headaches for a brain tumor. With mito disease it is a collection of symptoms that leads to the suspicion of a metabolic/mito evaluation - not just one in particular. Jeannine, mom to Dalton, 20 yrs, ADD, LD, Presumed Complex IV Genny, 17 yrs, Dysautonomia, Presumed Complex IV Caitlin, 11 yrs, Dysautonomia, CIDP, Complex IV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 wrote: > Then I wonder why these Dr.s aren't interested in testing these ADHD kids > for mito so we can have proof and they can have more help! S. . I think it may be because there are many many other reasons for ADHD besides mito. I don't think it would be feasible to test every child or adult with ADHD for mito disease. Worse yet, I doubt that insurance would pay for it. It's sort of like head aches and brain tumors. If you have a brain tumor you can have frequent headaches, but if you have frequent headaches it doesn't necessarily mean that you have a brain tumor. Nor do they evaluate everyone with headaches for a brain tumor. With mito disease it is a collection of symptoms that leads to the suspicion of a metabolic/mito evaluation - not just one in particular. Jeannine, mom to Dalton, 20 yrs, ADD, LD, Presumed Complex IV Genny, 17 yrs, Dysautonomia, Presumed Complex IV Caitlin, 11 yrs, Dysautonomia, CIDP, Complex IV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 I know what you are saying Laurie but when you get a child like who is also suicidal, how much is a human life worth? Dieing of illness itself or killing oneself is equally dead. S. Re: ADD/ADHD and Mito > > >- > >It could be a cost factor. Since the rule of thumb is: at least three organ systems need to be involved >to think mito, not all ADD kids would even be considered. At $10,000 to $40,000 for a mito evaluation, >not every ADD child should be considered for evaluation of mito, unless someone in the family already has >a mito diagnosis. > >Just my opinion. > >Laurie > >> Then I wonder why these Dr.s aren't interested in testing these ADHD kids >> for mito so we can have proof and they can have more help! S. >> > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 I know what you are saying Laurie but when you get a child like who is also suicidal, how much is a human life worth? Dieing of illness itself or killing oneself is equally dead. S. Re: ADD/ADHD and Mito > > >- > >It could be a cost factor. Since the rule of thumb is: at least three organ systems need to be involved >to think mito, not all ADD kids would even be considered. At $10,000 to $40,000 for a mito evaluation, >not every ADD child should be considered for evaluation of mito, unless someone in the family already has >a mito diagnosis. > >Just my opinion. > >Laurie > >> Then I wonder why these Dr.s aren't interested in testing these ADHD kids >> for mito so we can have proof and they can have more help! S. >> > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 I know what you are saying Laurie but when you get a child like who is also suicidal, how much is a human life worth? Dieing of illness itself or killing oneself is equally dead. S. Re: ADD/ADHD and Mito > > >- > >It could be a cost factor. Since the rule of thumb is: at least three organ systems need to be involved >to think mito, not all ADD kids would even be considered. At $10,000 to $40,000 for a mito evaluation, >not every ADD child should be considered for evaluation of mito, unless someone in the family already has >a mito diagnosis. > >Just my opinion. > >Laurie > >> Then I wonder why these Dr.s aren't interested in testing these ADHD kids >> for mito so we can have proof and they can have more help! S. >> > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 But, Jeannine, if the person and esp if multiple persons in the family show other mito symptoms then it is feasable to me and well worth it. If one has a severly afflicted ADHD child it is not a simple thing like having a child with say a reading disability and nothing else. When you have kids on a daily basis spitting at each other screaming and destroying things trying to jump out of the car on the freeway refusing seatbelts throwing dangerous objects at one another cussing like sailers climbing on roofs, thinking they can fix your car engine or repair an electrical socket, depressed to attempting suicide and you see they are doing these things in response to reactions to fds and chemicals and they have had odd other symtoms like suddenly can't walk or projectile vomiting for no reason, I could go on and on and on-THEN it is worth the testing. I am currently on so many pills myself it's crazy to survive them and not abuse them while I try to find answers to help them. Did you know the incidence of ADHDers in prisons and juvinile detention centers? These people are drug and alcohol abusers, murderers, suicide victims, auto accident causers as well as causing many other accidents for themselves and others, When they are little many of them are the ones who stop breathing, turn blue, can't tolerate any formula you try, scream day and night.......... If they (the medical community) would open their eyes and test just a few like this and find the connection with mito the whole ADHD community would find help. They are also the ones many times with learning disabilities even tho they are many times the extremely gifted ones-but the giftedness along with the problems is sometimes a horrible combination (while sometimes it makes heros in many ways). These are the kids getting abused and killed in child abuse cases as well as the ones who do the abusing. It is an awful vicsious circle, they are also many of the kids that end up in adoptions-the parents are messed up and then the kids are messed up both by the ADHD itself and then by the parents. SOrry, but NOONE will ever change my mind about how adamant I feel that ADHD is a very serious disorder and that much of it is mito caused and that is should be tested and proved or disproved so these people at least have a change at a better life for themselves and those around them. I was hoping yest. a cop would pull me over and I would jump out and put my arms behind my back and thank him for please hauling me off to jail. I could also tell him drive down the road just 15 min with these kids and let's see how you drive! When I went to bed the other nite I told my husband I felt like a warden in an insame asylum walking around thinking out if everyone had all the medication they should and needed and what had they eaten or been exposed to that day so I could even guess at being prepared with how they might wake up the following morning. I know this post is attached to yours Jeannine but this is to everyone. It's just my soapbox about ADHD to the whole world. One thing tho aboyut the headache analagy, is if a person ahs constant headaches and they test for and try everything else and nothing else works or helps or shows anything they WILL finally look for anything including brain tumors. They looked for a pituitary tumor in me when I was around 30 something. And they have proven the blood and glucose flow in the brains of ADHDers is not normal (nor is it in mito patients as I understand it-at least some), it does seem metabolic, as in mito patients, they do react odd to things like normal medications, as do mito patients. I myself think that their is quite a huge collection of symptoms of metabolic, mito in the ADHDers and when other family members have already been diagnosed with mito then those seem like the most logical patients to test. I think some of these places should test for free as research to attempt to link the 2 diseases. What the heck are they called research universities or institutions for anyway? They spend millions if not billions of dollars researching every other thing on earth, trying to find cures for things that not even as many people have as ADHD and the numbers and severity of ADHD is rising daily. Why haven't they gone on and tested any of your (people on the groulp) other children who have been diagnosed with ADHD and have diagnosed mito siblings??? S. Re: ADD/ADHD and Mito > > > wrote: > >> Then I wonder why these Dr.s aren't interested in testing these ADHD kids >> for mito so we can have proof and they can have more help! S. > >. > >I think it may be because there are many many other reasons for ADHD besides mito. I don't think it would >be feasible to test every child or adult with ADHD for mito disease. Worse yet, I doubt that insurance >would pay for it. > >It's sort of like head aches and brain tumors. If you have a brain tumor you can have frequent headaches, >but if you have frequent headaches it doesn't necessarily mean that you have a brain tumor. Nor do they >evaluate everyone with headaches for a brain tumor. > >With mito disease it is a collection of symptoms that leads to the suspicion of a metabolic/mito >evaluation - not just one in particular. > >Jeannine, mom to >Dalton, 20 yrs, ADD, LD, Presumed Complex IV >Genny, 17 yrs, Dysautonomia, Presumed Complex IV >Caitlin, 11 yrs, Dysautonomia, CIDP, Complex IV > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 But, Jeannine, if the person and esp if multiple persons in the family show other mito symptoms then it is feasable to me and well worth it. If one has a severly afflicted ADHD child it is not a simple thing like having a child with say a reading disability and nothing else. When you have kids on a daily basis spitting at each other screaming and destroying things trying to jump out of the car on the freeway refusing seatbelts throwing dangerous objects at one another cussing like sailers climbing on roofs, thinking they can fix your car engine or repair an electrical socket, depressed to attempting suicide and you see they are doing these things in response to reactions to fds and chemicals and they have had odd other symtoms like suddenly can't walk or projectile vomiting for no reason, I could go on and on and on-THEN it is worth the testing. I am currently on so many pills myself it's crazy to survive them and not abuse them while I try to find answers to help them. Did you know the incidence of ADHDers in prisons and juvinile detention centers? These people are drug and alcohol abusers, murderers, suicide victims, auto accident causers as well as causing many other accidents for themselves and others, When they are little many of them are the ones who stop breathing, turn blue, can't tolerate any formula you try, scream day and night.......... If they (the medical community) would open their eyes and test just a few like this and find the connection with mito the whole ADHD community would find help. They are also the ones many times with learning disabilities even tho they are many times the extremely gifted ones-but the giftedness along with the problems is sometimes a horrible combination (while sometimes it makes heros in many ways). These are the kids getting abused and killed in child abuse cases as well as the ones who do the abusing. It is an awful vicsious circle, they are also many of the kids that end up in adoptions-the parents are messed up and then the kids are messed up both by the ADHD itself and then by the parents. SOrry, but NOONE will ever change my mind about how adamant I feel that ADHD is a very serious disorder and that much of it is mito caused and that is should be tested and proved or disproved so these people at least have a change at a better life for themselves and those around them. I was hoping yest. a cop would pull me over and I would jump out and put my arms behind my back and thank him for please hauling me off to jail. I could also tell him drive down the road just 15 min with these kids and let's see how you drive! When I went to bed the other nite I told my husband I felt like a warden in an insame asylum walking around thinking out if everyone had all the medication they should and needed and what had they eaten or been exposed to that day so I could even guess at being prepared with how they might wake up the following morning. I know this post is attached to yours Jeannine but this is to everyone. It's just my soapbox about ADHD to the whole world. One thing tho aboyut the headache analagy, is if a person ahs constant headaches and they test for and try everything else and nothing else works or helps or shows anything they WILL finally look for anything including brain tumors. They looked for a pituitary tumor in me when I was around 30 something. And they have proven the blood and glucose flow in the brains of ADHDers is not normal (nor is it in mito patients as I understand it-at least some), it does seem metabolic, as in mito patients, they do react odd to things like normal medications, as do mito patients. I myself think that their is quite a huge collection of symptoms of metabolic, mito in the ADHDers and when other family members have already been diagnosed with mito then those seem like the most logical patients to test. I think some of these places should test for free as research to attempt to link the 2 diseases. What the heck are they called research universities or institutions for anyway? They spend millions if not billions of dollars researching every other thing on earth, trying to find cures for things that not even as many people have as ADHD and the numbers and severity of ADHD is rising daily. Why haven't they gone on and tested any of your (people on the groulp) other children who have been diagnosed with ADHD and have diagnosed mito siblings??? S. Re: ADD/ADHD and Mito > > > wrote: > >> Then I wonder why these Dr.s aren't interested in testing these ADHD kids >> for mito so we can have proof and they can have more help! S. > >. > >I think it may be because there are many many other reasons for ADHD besides mito. I don't think it would >be feasible to test every child or adult with ADHD for mito disease. Worse yet, I doubt that insurance >would pay for it. > >It's sort of like head aches and brain tumors. If you have a brain tumor you can have frequent headaches, >but if you have frequent headaches it doesn't necessarily mean that you have a brain tumor. Nor do they >evaluate everyone with headaches for a brain tumor. > >With mito disease it is a collection of symptoms that leads to the suspicion of a metabolic/mito >evaluation - not just one in particular. > >Jeannine, mom to >Dalton, 20 yrs, ADD, LD, Presumed Complex IV >Genny, 17 yrs, Dysautonomia, Presumed Complex IV >Caitlin, 11 yrs, Dysautonomia, CIDP, Complex IV > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 But, Jeannine, if the person and esp if multiple persons in the family show other mito symptoms then it is feasable to me and well worth it. If one has a severly afflicted ADHD child it is not a simple thing like having a child with say a reading disability and nothing else. When you have kids on a daily basis spitting at each other screaming and destroying things trying to jump out of the car on the freeway refusing seatbelts throwing dangerous objects at one another cussing like sailers climbing on roofs, thinking they can fix your car engine or repair an electrical socket, depressed to attempting suicide and you see they are doing these things in response to reactions to fds and chemicals and they have had odd other symtoms like suddenly can't walk or projectile vomiting for no reason, I could go on and on and on-THEN it is worth the testing. I am currently on so many pills myself it's crazy to survive them and not abuse them while I try to find answers to help them. Did you know the incidence of ADHDers in prisons and juvinile detention centers? These people are drug and alcohol abusers, murderers, suicide victims, auto accident causers as well as causing many other accidents for themselves and others, When they are little many of them are the ones who stop breathing, turn blue, can't tolerate any formula you try, scream day and night.......... If they (the medical community) would open their eyes and test just a few like this and find the connection with mito the whole ADHD community would find help. They are also the ones many times with learning disabilities even tho they are many times the extremely gifted ones-but the giftedness along with the problems is sometimes a horrible combination (while sometimes it makes heros in many ways). These are the kids getting abused and killed in child abuse cases as well as the ones who do the abusing. It is an awful vicsious circle, they are also many of the kids that end up in adoptions-the parents are messed up and then the kids are messed up both by the ADHD itself and then by the parents. SOrry, but NOONE will ever change my mind about how adamant I feel that ADHD is a very serious disorder and that much of it is mito caused and that is should be tested and proved or disproved so these people at least have a change at a better life for themselves and those around them. I was hoping yest. a cop would pull me over and I would jump out and put my arms behind my back and thank him for please hauling me off to jail. I could also tell him drive down the road just 15 min with these kids and let's see how you drive! When I went to bed the other nite I told my husband I felt like a warden in an insame asylum walking around thinking out if everyone had all the medication they should and needed and what had they eaten or been exposed to that day so I could even guess at being prepared with how they might wake up the following morning. I know this post is attached to yours Jeannine but this is to everyone. It's just my soapbox about ADHD to the whole world. One thing tho aboyut the headache analagy, is if a person ahs constant headaches and they test for and try everything else and nothing else works or helps or shows anything they WILL finally look for anything including brain tumors. They looked for a pituitary tumor in me when I was around 30 something. And they have proven the blood and glucose flow in the brains of ADHDers is not normal (nor is it in mito patients as I understand it-at least some), it does seem metabolic, as in mito patients, they do react odd to things like normal medications, as do mito patients. I myself think that their is quite a huge collection of symptoms of metabolic, mito in the ADHDers and when other family members have already been diagnosed with mito then those seem like the most logical patients to test. I think some of these places should test for free as research to attempt to link the 2 diseases. What the heck are they called research universities or institutions for anyway? They spend millions if not billions of dollars researching every other thing on earth, trying to find cures for things that not even as many people have as ADHD and the numbers and severity of ADHD is rising daily. Why haven't they gone on and tested any of your (people on the groulp) other children who have been diagnosed with ADHD and have diagnosed mito siblings??? S. Re: ADD/ADHD and Mito > > > wrote: > >> Then I wonder why these Dr.s aren't interested in testing these ADHD kids >> for mito so we can have proof and they can have more help! S. > >. > >I think it may be because there are many many other reasons for ADHD besides mito. I don't think it would >be feasible to test every child or adult with ADHD for mito disease. Worse yet, I doubt that insurance >would pay for it. > >It's sort of like head aches and brain tumors. If you have a brain tumor you can have frequent headaches, >but if you have frequent headaches it doesn't necessarily mean that you have a brain tumor. Nor do they >evaluate everyone with headaches for a brain tumor. > >With mito disease it is a collection of symptoms that leads to the suspicion of a metabolic/mito >evaluation - not just one in particular. > >Jeannine, mom to >Dalton, 20 yrs, ADD, LD, Presumed Complex IV >Genny, 17 yrs, Dysautonomia, Presumed Complex IV >Caitlin, 11 yrs, Dysautonomia, CIDP, Complex IV > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 I know Laurie, but what I am saying is I think our family is not the only one with this severe a situation. During the yrs I've interacted with huge numbers of ADHD cases I have heard similar stories to this, we are not that unique among families with ADHD I don't feel. I am not attacking anyone on this list, I just feel so strongly about this issue. S. Re: ADD/ADHD and Mito > > >- > >I was only speaking in general terms. I feel for you and your situation, but I responded in a universal >way. > >Laurie > >> I know what you are saying Laurie but when you get a child like who is >> also suicidal, how much is a human life worth? Dieing of illness itself or >> killing oneself is equally dead. S. >> > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 I know Laurie, but what I am saying is I think our family is not the only one with this severe a situation. During the yrs I've interacted with huge numbers of ADHD cases I have heard similar stories to this, we are not that unique among families with ADHD I don't feel. I am not attacking anyone on this list, I just feel so strongly about this issue. S. Re: ADD/ADHD and Mito > > >- > >I was only speaking in general terms. I feel for you and your situation, but I responded in a universal >way. > >Laurie > >> I know what you are saying Laurie but when you get a child like who is >> also suicidal, how much is a human life worth? Dieing of illness itself or >> killing oneself is equally dead. S. >> > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 1999 Report Share Posted July 3, 1999 I know Laurie, but what I am saying is I think our family is not the only one with this severe a situation. During the yrs I've interacted with huge numbers of ADHD cases I have heard similar stories to this, we are not that unique among families with ADHD I don't feel. I am not attacking anyone on this list, I just feel so strongly about this issue. S. Re: ADD/ADHD and Mito > > >- > >I was only speaking in general terms. I feel for you and your situation, but I responded in a universal >way. > >Laurie > >> I know what you are saying Laurie but when you get a child like who is >> also suicidal, how much is a human life worth? Dieing of illness itself or >> killing oneself is equally dead. S. >> > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 1999 Report Share Posted July 4, 1999 - It could be a cost factor. Since the rule of thumb is: at least three organ systems need to be involved to think mito, not all ADD kids would even be considered. At $10,000 to $40,000 for a mito evaluation, not every ADD child should be considered for evaluation of mito, unless someone in the family already has a mito diagnosis. Just my opinion. Laurie > Then I wonder why these Dr.s aren't interested in testing these ADHD kids > for mito so we can have proof and they can have more help! S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 1999 Report Share Posted July 4, 1999 - It could be a cost factor. Since the rule of thumb is: at least three organ systems need to be involved to think mito, not all ADD kids would even be considered. At $10,000 to $40,000 for a mito evaluation, not every ADD child should be considered for evaluation of mito, unless someone in the family already has a mito diagnosis. Just my opinion. Laurie > Then I wonder why these Dr.s aren't interested in testing these ADHD kids > for mito so we can have proof and they can have more help! S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 1999 Report Share Posted July 4, 1999 - It could be a cost factor. Since the rule of thumb is: at least three organ systems need to be involved to think mito, not all ADD kids would even be considered. At $10,000 to $40,000 for a mito evaluation, not every ADD child should be considered for evaluation of mito, unless someone in the family already has a mito diagnosis. Just my opinion. Laurie > Then I wonder why these Dr.s aren't interested in testing these ADHD kids > for mito so we can have proof and they can have more help! S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 1999 Report Share Posted July 4, 1999 - I was only speaking in general terms. I feel for you and your situation, but I responded in a universal way. Laurie > I know what you are saying Laurie but when you get a child like who is > also suicidal, how much is a human life worth? Dieing of illness itself or > killing oneself is equally dead. S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 1999 Report Share Posted July 4, 1999 - I was only speaking in general terms. I feel for you and your situation, but I responded in a universal way. Laurie > I know what you are saying Laurie but when you get a child like who is > also suicidal, how much is a human life worth? Dieing of illness itself or > killing oneself is equally dead. S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 1999 Report Share Posted July 4, 1999 - I was only speaking in general terms. I feel for you and your situation, but I responded in a universal way. Laurie > I know what you are saying Laurie but when you get a child like who is > also suicidal, how much is a human life worth? Dieing of illness itself or > killing oneself is equally dead. S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Hi , I have been noticing your posts in regards to ADHD and would like to give you maybe a different view if I may. I have birthed 4 children. The youngest two were diagnosed early in life as being ADD. They were placed on Ritalin. This was a vicious nightmare. They both did not respond well and other than helping them sleep days were unlivable. One of the girls especially had serious difficulties relating, understanding and just coping was impossible. What we found out was she and her younger sister were both Bipolar - not ADD. Yes, small children can suffer depression. They were literally going through manic episodes and major depressed episodes. This was discovered much later and fortunately for them life has improved. Our whole lives were greatly improved when they were placed on the right meds. Now, they are the best. As I have mentioned before one (maybe both) have possible mito due to the type I have. We did a lot of research and found out that in children depression usually shows up in aggressive, sometimes violent, behavior. You might want to research this avenue. Some doctors will just call it a chemical imbalance. What I do know is these children do not improve unless they are on therapeutic levels of medication for bipolar illness. I will pray for any help or relief you may have. Love, Kathy J. Just remember if this is the case, these children cannot control behavior when they are unable to reason because of the chemical imbalance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Hi , I have been noticing your posts in regards to ADHD and would like to give you maybe a different view if I may. I have birthed 4 children. The youngest two were diagnosed early in life as being ADD. They were placed on Ritalin. This was a vicious nightmare. They both did not respond well and other than helping them sleep days were unlivable. One of the girls especially had serious difficulties relating, understanding and just coping was impossible. What we found out was she and her younger sister were both Bipolar - not ADD. Yes, small children can suffer depression. They were literally going through manic episodes and major depressed episodes. This was discovered much later and fortunately for them life has improved. Our whole lives were greatly improved when they were placed on the right meds. Now, they are the best. As I have mentioned before one (maybe both) have possible mito due to the type I have. We did a lot of research and found out that in children depression usually shows up in aggressive, sometimes violent, behavior. You might want to research this avenue. Some doctors will just call it a chemical imbalance. What I do know is these children do not improve unless they are on therapeutic levels of medication for bipolar illness. I will pray for any help or relief you may have. Love, Kathy J. Just remember if this is the case, these children cannot control behavior when they are unable to reason because of the chemical imbalance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 1999 Report Share Posted July 6, 1999 In a message dated 7/3/99 4:04:18 AM Eastern Daylight Time, joelinda@... writes: << Then I wonder why these Dr.s aren't interested in testing these ADHD kids for mito so we can have proof and they can have more help! >> as I was saying pyruvate, and amino acids. They will all being 16 hour fasting tests - if we can do it for that long. Love, sHARON Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 1999 Report Share Posted July 6, 1999 In a message dated 7/6/99 1:59:51 AM Eastern Daylight Time, joelinda@... writes: << Sharon, wonderful. When will this be done and how do you fast little kids for 16 hrs unless most of it is overnite which is probably what you mean? >> Well Jake is 6 so it will not be too hard - he understands and he can have water. Cole is also too young to get food on his own so that should also be ok. Yes you start fasting them around 5 or 6 and then do the blood and urine in the morning. 14 -16 hours is ok. I just do not look forward to the blood sitcks OR trying to get urine from Cole who is not yet potty trained - take his diaper off and he will pee anywhere but in his potty seat. Jake is confirmed ADHD so it will be interesting. Hopefully we will get some answers this fall v- as we will have the blood drawn sometime right before Clayton's visit in September with Dr. Kelley and the urine taken the day before we see Dr. Kelley so that I can bringit down to him Love, Sharon mommy to Jake (6)(ADHD and too smart for his own good) and fraternal twins (3/30/97) - Cole -(nda and cute as a button) and Clayton (mitochondrial disorder (presumed to be complex I), eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, DD, sensory integration disorder, tremors, etc........., and the world's best smile) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 1999 Report Share Posted July 6, 1999 In a message dated 7/6/99 1:59:51 AM Eastern Daylight Time, joelinda@... writes: << Sharon, wonderful. When will this be done and how do you fast little kids for 16 hrs unless most of it is overnite which is probably what you mean? >> Well Jake is 6 so it will not be too hard - he understands and he can have water. Cole is also too young to get food on his own so that should also be ok. Yes you start fasting them around 5 or 6 and then do the blood and urine in the morning. 14 -16 hours is ok. I just do not look forward to the blood sitcks OR trying to get urine from Cole who is not yet potty trained - take his diaper off and he will pee anywhere but in his potty seat. Jake is confirmed ADHD so it will be interesting. Hopefully we will get some answers this fall v- as we will have the blood drawn sometime right before Clayton's visit in September with Dr. Kelley and the urine taken the day before we see Dr. Kelley so that I can bringit down to him Love, Sharon mommy to Jake (6)(ADHD and too smart for his own good) and fraternal twins (3/30/97) - Cole -(nda and cute as a button) and Clayton (mitochondrial disorder (presumed to be complex I), eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, DD, sensory integration disorder, tremors, etc........., and the world's best smile) Quote Link to comment Share on other sites More sharing options...
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