Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Nerida, Welcome to the list. I joined the list two days ago, and I'm glad that I did. I suffer from vulvodynia. The only suggestion that I can give you to help you with your appt is to make a list of all the questions that you have, and then add others as you think of them. After that just hand the list to your dr for them to read so that you won't have to try real hard to remember what it is that you need to ask. Also please feel free to drop me a line privately any time that you want to talk. I do hope that this is of some help to you. Kristy ville, FL == http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html It's the little things that count: candy, flowers, finding an ob/gyn who will listen, and finding a cure for endometriosis, vulvodynia, and polycystic ovarian syndrome. _____________________________________________________________ Email Powered by Everyone.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 In a message dated 3/15/2000 3:32:11 PM Pacific Standard Time, nerida_v@... writes: << Already it has been good reading your postings and seeing how proactive you are.... I look forward to more of your commentary =) Nerida >> Welcome Nerida, Although I'm sorry for the reason you have to be here there is a lot of great information and support from some very informed women (mostly women) in this group. At least now you have something to call it and can look for answers. Take a deep breath, go slowly, and try the things that make the most sense to you, one at a time. Warm regards, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 Nerida, Yes, knowledge is power and keeps us from feeling like such a victim. Hugs, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 Thanks for the kind words Donna, I will keep on laying my hands on any info I can get....I'm not going stumble along cluelessley if I can help it =) Warm fuzzies, Nerida >From: White4Art@... >Reply-To: VulvarDisordersonelist >To: VulvarDisordersonelist >Subject: Re: (unknown) >Date: Thu, 16 Mar 2000 12:01:29 EST > >In a message dated 3/15/2000 3:32:11 PM Pacific Standard Time, >nerida_v@... writes: > ><< > Already it has been good reading your postings and seeing how proactive >you > are.... I look forward to more of your commentary =) > > Nerida >> >Welcome Nerida, Although I'm sorry for the reason you have to be here >there >is a lot of great information and support from some very informed women >(mostly women) in this group. At least now you have something to call it >and can look for answers. Take a deep breath, go slowly, and try the things >that make the most sense to you, one at a time. Warm regards, Donna ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 >I KNow I am new to this but what exactly is biofeedback? OK, I know there is a more specific description of it, but from what I understood from my doctor, it's basically physical therapy for your pelvis. It helps to eliminate the spasms in your pelvis (e.g. during intercourse). I'm sure someone else has a better explanation than I do! :-) Chantal ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 >I KNow I am new to this but what exactly is biofeedback? OK, I know there is a more specific description of it, but from what I understood from my doctor, it's basically physical therapy for your pelvis. It helps to eliminate the spasms in your pelvis (e.g. during intercourse). I'm sure someone else has a better explanation than I do! :-) Chantal ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 >I KNow I am new to this but what exactly is biofeedback? OK, I know there is a more specific description of it, but from what I understood from my doctor, it's basically physical therapy for your pelvis. It helps to eliminate the spasms in your pelvis (e.g. during intercourse). I'm sure someone else has a better explanation than I do! :-) Chantal ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Deidre... if it makes you feel any better I don't quite know myself!! katie > (unknown) > > I KNow I am new to this but what exactly is biofeedback? > > Thanks, > DEidre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Deidre... if it makes you feel any better I don't quite know myself!! katie > (unknown) > > I KNow I am new to this but what exactly is biofeedback? > > Thanks, > DEidre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Deidre... if it makes you feel any better I don't quite know myself!! katie > (unknown) > > I KNow I am new to this but what exactly is biofeedback? > > Thanks, > DEidre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Deidre, it's not an odd question at all! Most of us here have to deal with wanting or not wanting to have sex to some degree. It's hard to want to have sex when that part of the body hurts so much. However, it's important to remember that intimacy is different from intercourse. There's a lot to be gained from just being intimate together, and while sex is a great expression of love, it's not the only expression that counts. Also, there's lots of things that the two of you can do for each other manually. Be creative! But whatever you do, sexually or otherwise, let it be an expression of your love. And HAVE FUN!! If you and your loving husband can keep your collective sense of humor, it will help both of you both sexually and especially emotionally. Hope that gives you some ideas and encouragement! >I have a very odd question for everyone. Isince I have been experiencing >the pain during intercourse it is very hard for me to get turned on or >really have a desire for sex. Does anyone have any suggestions to help >me?? I love my husband so much and of course want to have a wonderful >intimate sex life however sometimes it is just too unbearable! HELP!! >Thanks!! > >Deidre ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Deidre, it's not an odd question at all! Most of us here have to deal with wanting or not wanting to have sex to some degree. It's hard to want to have sex when that part of the body hurts so much. However, it's important to remember that intimacy is different from intercourse. There's a lot to be gained from just being intimate together, and while sex is a great expression of love, it's not the only expression that counts. Also, there's lots of things that the two of you can do for each other manually. Be creative! But whatever you do, sexually or otherwise, let it be an expression of your love. And HAVE FUN!! If you and your loving husband can keep your collective sense of humor, it will help both of you both sexually and especially emotionally. Hope that gives you some ideas and encouragement! >I have a very odd question for everyone. Isince I have been experiencing >the pain during intercourse it is very hard for me to get turned on or >really have a desire for sex. Does anyone have any suggestions to help >me?? I love my husband so much and of course want to have a wonderful >intimate sex life however sometimes it is just too unbearable! HELP!! >Thanks!! > >Deidre ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 , Thank you so much for emailing me so soon and answering my questions. I think that I too will try to go off the birth control. It just seems odd that It began after I started the birth control. Thank you also for your suggestions about my other question. Sometimes it just gets really frustrating and I almost feel like I am letting my husband down. Luckily he is very sensitive, supportive, and encouraging! I am hoping for the best and willing to try anything! Thanks, Deidre ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Dierdre Hi! i too have found my sexual desire depleating... i have found recently that reducing attempts and increasing foreplay, and intimacies such as talking have gotten me ecited and allowed me to have intercourse with decreased pain... still pain, but at least if i get really excited before hand it helps! good luck... we understand! katie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 Dierdre Hi! i too have found my sexual desire depleating... i have found recently that reducing attempts and increasing foreplay, and intimacies such as talking have gotten me ecited and allowed me to have intercourse with decreased pain... still pain, but at least if i get really excited before hand it helps! good luck... we understand! katie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 don't worry about your forwardness! It is nice to have someone understand! I hope for all of us we can conquer this! Good luck to you too!! DEidre ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2000 Report Share Posted July 24, 2000 don't worry about your forwardness! It is nice to have someone understand! I hope for all of us we can conquer this! Good luck to you too!! DEidre ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 I am pursuing an evaluation with a Dr. Nezhat in Atlanta to see what my options are regarding myomectomy vs hysterectomy - I'm under the impression the myoma is intramural and not encapsulated making it easier to remove through myomectomy- if I have a hysterectomy my overies will stay, they are fine. Why would I want to keep my cervix? It's my understanding that the cervix is merely the bottom portion of the uterus and would have to be severed to leave in? Am I misinformed? Jeanne re: (unknown) "Jeanne Eisenstein" wrote:<<>>Good Day,<<I have recently been diagnosed with a myoma. My doctor has recommended that I have a hysterectomy. I am 43 with no children and fertility is not a concern. I am not emotionally attached to my uterus. However, I am seeking information from others that have been down this road. I would prefer to have a vaginal rather than an abdominal hysterectomy. The procedure would probably have to be a laparoscopic-assisted vaginal hysterectomy. However, my uterus is 17cm (or 20-week size) and my myoma is 10cm. Has anyone with a uterus and myoma at these sizes had a laparoscopic-assisted or just a vaginal hysterectomy? I've been told my uterus and myoma are too big without taking GNRH agonists and I do not consider that as an option.<<>> I think your uterus and fibroid are indeed too big for vaginal hysterectomy and/or laparoscopy. Someone did write here about having laporoscopy for myomectomy of a 10 cm fibroid and others were very impressed that her doctor could manage to do it. Usually a bigger incision would be needed for such a large fibroid. The operation took 5 hours. If you don't have a lot of fibroids and the myoma is in a suitable position, myomectomy may well be feasible for you. But the doctor might want you to take a GnRH agonist beforehand (I don't know if RU-486 is being used for this purpose yet). There may be an advantage in having abdominal rather than vaginal hysterectomy if you can conserve your cervix with the abdominal surgery. I hope you will retain your ovaries as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 I am pursuing an evaluation with a Dr. Nezhat in Atlanta to see what my options are regarding myomectomy vs hysterectomy - I'm under the impression the myoma is intramural and not encapsulated making it easier to remove through myomectomy- if I have a hysterectomy my overies will stay, they are fine. Why would I want to keep my cervix? It's my understanding that the cervix is merely the bottom portion of the uterus and would have to be severed to leave in? Am I misinformed? Jeanne re: (unknown) "Jeanne Eisenstein" wrote:<<>>Good Day,<<I have recently been diagnosed with a myoma. My doctor has recommended that I have a hysterectomy. I am 43 with no children and fertility is not a concern. I am not emotionally attached to my uterus. However, I am seeking information from others that have been down this road. I would prefer to have a vaginal rather than an abdominal hysterectomy. The procedure would probably have to be a laparoscopic-assisted vaginal hysterectomy. However, my uterus is 17cm (or 20-week size) and my myoma is 10cm. Has anyone with a uterus and myoma at these sizes had a laparoscopic-assisted or just a vaginal hysterectomy? I've been told my uterus and myoma are too big without taking GNRH agonists and I do not consider that as an option.<<>> I think your uterus and fibroid are indeed too big for vaginal hysterectomy and/or laparoscopy. Someone did write here about having laporoscopy for myomectomy of a 10 cm fibroid and others were very impressed that her doctor could manage to do it. Usually a bigger incision would be needed for such a large fibroid. The operation took 5 hours. If you don't have a lot of fibroids and the myoma is in a suitable position, myomectomy may well be feasible for you. But the doctor might want you to take a GnRH agonist beforehand (I don't know if RU-486 is being used for this purpose yet). There may be an advantage in having abdominal rather than vaginal hysterectomy if you can conserve your cervix with the abdominal surgery. I hope you will retain your ovaries as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 I am pursuing an evaluation with a Dr. Nezhat in Atlanta to see what my options are regarding myomectomy vs hysterectomy - I'm under the impression the myoma is intramural and not encapsulated making it easier to remove through myomectomy- if I have a hysterectomy my overies will stay, they are fine. Why would I want to keep my cervix? It's my understanding that the cervix is merely the bottom portion of the uterus and would have to be severed to leave in? Am I misinformed? Jeanne re: (unknown) "Jeanne Eisenstein" wrote:<<>>Good Day,<<I have recently been diagnosed with a myoma. My doctor has recommended that I have a hysterectomy. I am 43 with no children and fertility is not a concern. I am not emotionally attached to my uterus. However, I am seeking information from others that have been down this road. I would prefer to have a vaginal rather than an abdominal hysterectomy. The procedure would probably have to be a laparoscopic-assisted vaginal hysterectomy. However, my uterus is 17cm (or 20-week size) and my myoma is 10cm. Has anyone with a uterus and myoma at these sizes had a laparoscopic-assisted or just a vaginal hysterectomy? I've been told my uterus and myoma are too big without taking GNRH agonists and I do not consider that as an option.<<>> I think your uterus and fibroid are indeed too big for vaginal hysterectomy and/or laparoscopy. Someone did write here about having laporoscopy for myomectomy of a 10 cm fibroid and others were very impressed that her doctor could manage to do it. Usually a bigger incision would be needed for such a large fibroid. The operation took 5 hours. If you don't have a lot of fibroids and the myoma is in a suitable position, myomectomy may well be feasible for you. But the doctor might want you to take a GnRH agonist beforehand (I don't know if RU-486 is being used for this purpose yet). There may be an advantage in having abdominal rather than vaginal hysterectomy if you can conserve your cervix with the abdominal surgery. I hope you will retain your ovaries as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Leonie I have always wondered about this. Thanks for clarifying it. Unless it is a life threatening situation, I will NOT lose the uterus. That was a beautuful explanation. Beth In a message dated 11/3/00 5:45:05 AM Pacific Standard Time, finkell@... writes: << Jeanne, many women report pleasurable sensations during intercourse related to the pressure of the penis on the cervix. This will be missing if the cervix is removed. Also, when the cervix is removed, the vagina is now open at the top. Most commonly, the vagina is folded over during surgery to make a cuff, making a closed end there. This usually results in shortening of the vagina, which can result in painful intercouse. I believe that many of the ligaments which support the bladder and the pelvic floor are also attached to the cervix. Removing the cervix means these are severed and must be reattached elsewhere, and can result in other problems as the normal suspension system of the body is disrupted. Remember the old song: " the thigh bone's connected to the hip bone " ? Everything in our bodies are connected to something else. Removing one part affects many other parts. Leonie >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Leonie I have always wondered about this. Thanks for clarifying it. Unless it is a life threatening situation, I will NOT lose the uterus. That was a beautuful explanation. Beth In a message dated 11/3/00 5:45:05 AM Pacific Standard Time, finkell@... writes: << Jeanne, many women report pleasurable sensations during intercourse related to the pressure of the penis on the cervix. This will be missing if the cervix is removed. Also, when the cervix is removed, the vagina is now open at the top. Most commonly, the vagina is folded over during surgery to make a cuff, making a closed end there. This usually results in shortening of the vagina, which can result in painful intercouse. I believe that many of the ligaments which support the bladder and the pelvic floor are also attached to the cervix. Removing the cervix means these are severed and must be reattached elsewhere, and can result in other problems as the normal suspension system of the body is disrupted. Remember the old song: " the thigh bone's connected to the hip bone " ? Everything in our bodies are connected to something else. Removing one part affects many other parts. Leonie >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Leonie I have always wondered about this. Thanks for clarifying it. Unless it is a life threatening situation, I will NOT lose the uterus. That was a beautuful explanation. Beth In a message dated 11/3/00 5:45:05 AM Pacific Standard Time, finkell@... writes: << Jeanne, many women report pleasurable sensations during intercourse related to the pressure of the penis on the cervix. This will be missing if the cervix is removed. Also, when the cervix is removed, the vagina is now open at the top. Most commonly, the vagina is folded over during surgery to make a cuff, making a closed end there. This usually results in shortening of the vagina, which can result in painful intercouse. I believe that many of the ligaments which support the bladder and the pelvic floor are also attached to the cervix. Removing the cervix means these are severed and must be reattached elsewhere, and can result in other problems as the normal suspension system of the body is disrupted. Remember the old song: " the thigh bone's connected to the hip bone " ? Everything in our bodies are connected to something else. Removing one part affects many other parts. Leonie >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Jeanne, many women report pleasurable sensations during intercourse related to the pressure of the penis on the cervix. This will be missing if the cervix is removed. Also, when the cervix is removed, the vagina is now open at the top. Most commonly, the vagina is folded over during surgery to make a cuff, making a closed end there. This usually results in shortening of the vagina, which can result in painful intercouse. I believe that many of the ligaments which support the bladder and the pelvic floor are also attached to the cervix. Removing the cervix means these are severed and must be reattached elsewhere, and can result in other problems as the normal suspension system of the body is disrupted. Remember the old song: " the thigh bone's connected to the hip bone " ? Everything in our bodies are connected to something else. Removing one part affects many other parts. Leonie ______________________________________ This message, together with any attachments, is intended only for the use of the individual or entity to which it is addressed and may contain information that is legally privileged, confidential and exempt from disclosure. If you are not the intended recipient, you are hereby notified that any dissemination, distribution, or copying of this message,or any attachment, is strictly prohibited. If you have received this message in error, please notify the original sender (or the WSPR Help Desk) immediately by telephone () or by return E-mail and delete the message, along with any attachments, from your computer. Thank you. Quote Link to comment Share on other sites More sharing options...
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