(unknown)

[Guest guest]

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[Guest guest]

Nerida,

Welcome to the list. I joined the list two days ago, and I'm glad that I did.

I suffer from vulvodynia. The only suggestion that I can give you to help you

with your appt is to make a list of all the questions that you have, and then

add others as you think of them. After that just hand the list to your dr for

them to read so that you won't have to try real hard to remember what it is that

you need to ask.

Also please feel free to drop me a line privately any time that you want to

talk.

I do hope that this is of some help to you.

Kristy

ville, FL

==

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

It's the little things that count: candy, flowers, finding an ob/gyn who will

listen, and finding a cure for endometriosis, vulvodynia, and polycystic ovarian

syndrome.

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[Guest guest]

In a message dated 3/15/2000 3:32:11 PM Pacific Standard Time,

nerida_v@... writes:

<<

Already it has been good reading your postings and seeing how proactive you

are.... I look forward to more of your commentary =)

Nerida >>

Welcome Nerida, Although I'm sorry for the reason you have to be here there

is a lot of great information and support from some very informed women

(mostly women) in this group. At least now you have something to call it

and can look for answers. Take a deep breath, go slowly, and try the things

that make the most sense to you, one at a time. Warm regards, Donna

[Guest guest]

Nerida, Yes, knowledge is power and keeps us from feeling like such a

victim. Hugs, Donna

[Guest guest]

Thanks for the kind words Donna, I will keep on laying my hands on any info

I can get....I'm not going stumble along cluelessley if I can help it =)

Warm fuzzies,

Nerida

>From: White4Art@...

>Reply-To: VulvarDisordersonelist

>To: VulvarDisordersonelist

>Subject: Re: (unknown)

>Date: Thu, 16 Mar 2000 12:01:29 EST

>

>In a message dated 3/15/2000 3:32:11 PM Pacific Standard Time,

>nerida_v@... writes:

>

><<

> Already it has been good reading your postings and seeing how proactive

>you

> are.... I look forward to more of your commentary =)

>

> Nerida >>

>Welcome Nerida, Although I'm sorry for the reason you have to be here

>there

>is a lot of great information and support from some very informed women

>(mostly women) in this group. At least now you have something to call it

>and can look for answers. Take a deep breath, go slowly, and try the things

>that make the most sense to you, one at a time. Warm regards, Donna

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[Guest guest]

>I KNow I am new to this but what exactly is biofeedback?

OK, I know there is a more specific description of it, but from what I

understood from my doctor, it's basically physical therapy for your pelvis.

It helps to eliminate the spasms in your pelvis (e.g. during intercourse).

I'm sure someone else has a better explanation than I do! :-)

Chantal

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[Guest guest]

>I KNow I am new to this but what exactly is biofeedback?

OK, I know there is a more specific description of it, but from what I

understood from my doctor, it's basically physical therapy for your pelvis.

It helps to eliminate the spasms in your pelvis (e.g. during intercourse).

I'm sure someone else has a better explanation than I do! :-)

Chantal

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

>I KNow I am new to this but what exactly is biofeedback?

OK, I know there is a more specific description of it, but from what I

understood from my doctor, it's basically physical therapy for your pelvis.

It helps to eliminate the spasms in your pelvis (e.g. during intercourse).

I'm sure someone else has a better explanation than I do! :-)

Chantal

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Deidre... if it makes you feel any better I don't quite know myself!!

katie

> (unknown)

>

> I KNow I am new to this but what exactly is biofeedback?

>

> Thanks,

> DEidre

[Guest guest]

Deidre... if it makes you feel any better I don't quite know myself!!

katie

> (unknown)

>

> I KNow I am new to this but what exactly is biofeedback?

>

> Thanks,

> DEidre

[Guest guest]

Deidre... if it makes you feel any better I don't quite know myself!!

katie

> (unknown)

>

> I KNow I am new to this but what exactly is biofeedback?

>

> Thanks,

> DEidre

[Guest guest]

Deidre, it's not an odd question at all! Most of us here have to deal with

wanting or not wanting to have sex to some degree. It's hard to want to

have sex when that part of the body hurts so much. However, it's important

to remember that intimacy is different from intercourse. There's a lot to

be gained from just being intimate together, and while sex is a great

expression of love, it's not the only expression that counts. Also, there's

lots of things that the two of you can do for each other manually. Be

creative! But whatever you do, sexually or otherwise, let it be an

expression of your love. And HAVE FUN!! If you and your loving husband can

keep your collective sense of humor, it will help both of you both sexually

and especially emotionally.

Hope that gives you some ideas and encouragement!

>I have a very odd question for everyone. Isince I have been experiencing

>the pain during intercourse it is very hard for me to get turned on or

>really have a desire for sex. Does anyone have any suggestions to help

>me?? I love my husband so much and of course want to have a wonderful

>intimate sex life however sometimes it is just too unbearable! HELP!!

>Thanks!!

>

>Deidre

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[Guest guest]

Deidre, it's not an odd question at all! Most of us here have to deal with

wanting or not wanting to have sex to some degree. It's hard to want to

have sex when that part of the body hurts so much. However, it's important

to remember that intimacy is different from intercourse. There's a lot to

be gained from just being intimate together, and while sex is a great

expression of love, it's not the only expression that counts. Also, there's

lots of things that the two of you can do for each other manually. Be

creative! But whatever you do, sexually or otherwise, let it be an

expression of your love. And HAVE FUN!! If you and your loving husband can

keep your collective sense of humor, it will help both of you both sexually

and especially emotionally.

Hope that gives you some ideas and encouragement!

>I have a very odd question for everyone. Isince I have been experiencing

>the pain during intercourse it is very hard for me to get turned on or

>really have a desire for sex. Does anyone have any suggestions to help

>me?? I love my husband so much and of course want to have a wonderful

>intimate sex life however sometimes it is just too unbearable! HELP!!

>Thanks!!

>

>Deidre

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

,

Thank you so much for emailing me so soon and answering my questions. I

think that I too will try to go off the birth control. It just seems odd

that It began after I started the birth control. Thank you also for your

suggestions about my other question. Sometimes it just gets really

frustrating and I almost feel like I am letting my husband down. Luckily

he is very sensitive, supportive, and encouraging! I am hoping for the

best and willing to try anything!

Thanks,

Deidre

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[Guest guest]

Dierdre

Hi! i too have found my sexual desire depleating... i have found

recently that reducing attempts and increasing foreplay, and intimacies such

as talking have gotten me ecited and allowed me to have intercourse with

decreased pain... still pain, but at least if i get really excited before

hand it helps!

good luck... we understand!

katie

[Guest guest]

Dierdre

Hi! i too have found my sexual desire depleating... i have found

recently that reducing attempts and increasing foreplay, and intimacies such

as talking have gotten me ecited and allowed me to have intercourse with

decreased pain... still pain, but at least if i get really excited before

hand it helps!

good luck... we understand!

katie

[Guest guest]

don't worry about your forwardness! It is nice to have someone

understand! I hope for all of us we can conquer this! Good luck to you

too!!

DEidre

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[Guest guest]

don't worry about your forwardness! It is nice to have someone

understand! I hope for all of us we can conquer this! Good luck to you

too!!

DEidre

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

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Try it today - there's no risk! For your FREE software, visit:

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[Guest guest]

I am pursuing an evaluation with a Dr. Nezhat in Atlanta to see what my options are regarding myomectomy vs hysterectomy - I'm under the impression the myoma is intramural and not encapsulated making it easier to remove through myomectomy- if I have a hysterectomy my overies will stay, they are fine. Why would I want to keep my cervix? It's my understanding that the cervix is merely the bottom portion of the uterus and would have to be severed to leave in? Am I misinformed?

Jeanne

re: (unknown)

"Jeanne Eisenstein" wrote:<<>>Good Day,<<I have recently been diagnosed with a myoma. My doctor has recommended that I have a hysterectomy. I am 43 with no children and fertility is not a concern. I am not emotionally attached to my uterus. However, I am seeking information from others that have been down this road. I would prefer to have a vaginal rather than an abdominal hysterectomy. The procedure would probably have to be a laparoscopic-assisted vaginal hysterectomy. However, my uterus is 17cm (or 20-week size) and my myoma is 10cm. Has anyone with a uterus and myoma at these sizes had a laparoscopic-assisted or just a vaginal hysterectomy? I've been told my uterus and myoma are too big without taking GNRH agonists and I do not consider that as an option.<<>>

I think your uterus and fibroid are indeed too big for vaginal hysterectomy and/or laparoscopy. Someone did write here about having laporoscopy for myomectomy of a 10 cm fibroid and others were very impressed that her doctor could manage to do it. Usually a bigger incision would be needed for such a large fibroid. The operation took 5 hours.

If you don't have a lot of fibroids and the myoma is in a suitable position, myomectomy may well be feasible for you. But the doctor might want you to take a GnRH agonist beforehand (I don't know if RU-486 is being used for this purpose yet).

There may be an advantage in having abdominal rather than vaginal hysterectomy if you can conserve your cervix with the abdominal surgery. I hope you will retain your ovaries as well.

[Guest guest]

I am pursuing an evaluation with a Dr. Nezhat in Atlanta to see what my options are regarding myomectomy vs hysterectomy - I'm under the impression the myoma is intramural and not encapsulated making it easier to remove through myomectomy- if I have a hysterectomy my overies will stay, they are fine. Why would I want to keep my cervix? It's my understanding that the cervix is merely the bottom portion of the uterus and would have to be severed to leave in? Am I misinformed?

Jeanne

re: (unknown)

"Jeanne Eisenstein" wrote:<<>>Good Day,<<I have recently been diagnosed with a myoma. My doctor has recommended that I have a hysterectomy. I am 43 with no children and fertility is not a concern. I am not emotionally attached to my uterus. However, I am seeking information from others that have been down this road. I would prefer to have a vaginal rather than an abdominal hysterectomy. The procedure would probably have to be a laparoscopic-assisted vaginal hysterectomy. However, my uterus is 17cm (or 20-week size) and my myoma is 10cm. Has anyone with a uterus and myoma at these sizes had a laparoscopic-assisted or just a vaginal hysterectomy? I've been told my uterus and myoma are too big without taking GNRH agonists and I do not consider that as an option.<<>>

I think your uterus and fibroid are indeed too big for vaginal hysterectomy and/or laparoscopy. Someone did write here about having laporoscopy for myomectomy of a 10 cm fibroid and others were very impressed that her doctor could manage to do it. Usually a bigger incision would be needed for such a large fibroid. The operation took 5 hours.

If you don't have a lot of fibroids and the myoma is in a suitable position, myomectomy may well be feasible for you. But the doctor might want you to take a GnRH agonist beforehand (I don't know if RU-486 is being used for this purpose yet).

There may be an advantage in having abdominal rather than vaginal hysterectomy if you can conserve your cervix with the abdominal surgery. I hope you will retain your ovaries as well.

[Guest guest]

I am pursuing an evaluation with a Dr. Nezhat in Atlanta to see what my options are regarding myomectomy vs hysterectomy - I'm under the impression the myoma is intramural and not encapsulated making it easier to remove through myomectomy- if I have a hysterectomy my overies will stay, they are fine. Why would I want to keep my cervix? It's my understanding that the cervix is merely the bottom portion of the uterus and would have to be severed to leave in? Am I misinformed?

Jeanne

re: (unknown)

"Jeanne Eisenstein" wrote:<<>>Good Day,<<I have recently been diagnosed with a myoma. My doctor has recommended that I have a hysterectomy. I am 43 with no children and fertility is not a concern. I am not emotionally attached to my uterus. However, I am seeking information from others that have been down this road. I would prefer to have a vaginal rather than an abdominal hysterectomy. The procedure would probably have to be a laparoscopic-assisted vaginal hysterectomy. However, my uterus is 17cm (or 20-week size) and my myoma is 10cm. Has anyone with a uterus and myoma at these sizes had a laparoscopic-assisted or just a vaginal hysterectomy? I've been told my uterus and myoma are too big without taking GNRH agonists and I do not consider that as an option.<<>>

I think your uterus and fibroid are indeed too big for vaginal hysterectomy and/or laparoscopy. Someone did write here about having laporoscopy for myomectomy of a 10 cm fibroid and others were very impressed that her doctor could manage to do it. Usually a bigger incision would be needed for such a large fibroid. The operation took 5 hours.

If you don't have a lot of fibroids and the myoma is in a suitable position, myomectomy may well be feasible for you. But the doctor might want you to take a GnRH agonist beforehand (I don't know if RU-486 is being used for this purpose yet).

There may be an advantage in having abdominal rather than vaginal hysterectomy if you can conserve your cervix with the abdominal surgery. I hope you will retain your ovaries as well.

[Guest guest]

Leonie I have always wondered about this. Thanks for clarifying it. Unless it

is a life threatening situation, I will NOT lose the uterus. That was a

beautuful explanation.

Beth

In a message dated 11/3/00 5:45:05 AM Pacific Standard Time,

finkell@... writes:

<< Jeanne, many women report pleasurable sensations during intercourse

related to

the pressure of the penis on the cervix. This will be missing if the cervix

is

removed. Also, when the cervix is removed, the vagina is now open at the

top.

Most commonly, the vagina is folded over during surgery to make a cuff,

making a

closed end there. This usually results in shortening of the vagina, which

can

result in painful intercouse. I believe that many of the ligaments which

support the bladder and the pelvic floor are also attached to the cervix.

Removing the cervix means these are severed and must be reattached elsewhere,

and can result in other problems as the normal suspension system of the body

is

disrupted. Remember the old song: " the thigh bone's connected to the hip

bone " ? Everything in our bodies are connected to something else. Removing

one

part affects many other parts. Leonie

>>

[Guest guest]

Leonie I have always wondered about this. Thanks for clarifying it. Unless it

is a life threatening situation, I will NOT lose the uterus. That was a

beautuful explanation.

Beth

In a message dated 11/3/00 5:45:05 AM Pacific Standard Time,

finkell@... writes:

<< Jeanne, many women report pleasurable sensations during intercourse

related to

the pressure of the penis on the cervix. This will be missing if the cervix

is

removed. Also, when the cervix is removed, the vagina is now open at the

top.

Most commonly, the vagina is folded over during surgery to make a cuff,

making a

closed end there. This usually results in shortening of the vagina, which

can

result in painful intercouse. I believe that many of the ligaments which

support the bladder and the pelvic floor are also attached to the cervix.

Removing the cervix means these are severed and must be reattached elsewhere,

and can result in other problems as the normal suspension system of the body

is

disrupted. Remember the old song: " the thigh bone's connected to the hip

bone " ? Everything in our bodies are connected to something else. Removing

one

part affects many other parts. Leonie

>>

[Guest guest]

Leonie I have always wondered about this. Thanks for clarifying it. Unless it

is a life threatening situation, I will NOT lose the uterus. That was a

beautuful explanation.

Beth

In a message dated 11/3/00 5:45:05 AM Pacific Standard Time,

finkell@... writes:

<< Jeanne, many women report pleasurable sensations during intercourse

related to

the pressure of the penis on the cervix. This will be missing if the cervix

is

removed. Also, when the cervix is removed, the vagina is now open at the

top.

Most commonly, the vagina is folded over during surgery to make a cuff,

making a

closed end there. This usually results in shortening of the vagina, which

can

result in painful intercouse. I believe that many of the ligaments which

support the bladder and the pelvic floor are also attached to the cervix.

Removing the cervix means these are severed and must be reattached elsewhere,

and can result in other problems as the normal suspension system of the body

is

disrupted. Remember the old song: " the thigh bone's connected to the hip

bone " ? Everything in our bodies are connected to something else. Removing

one

part affects many other parts. Leonie

>>

[Guest guest]

Jeanne, many women report pleasurable sensations during intercourse related to

the pressure of the penis on the cervix. This will be missing if the cervix is

removed. Also, when the cervix is removed, the vagina is now open at the top.

Most commonly, the vagina is folded over during surgery to make a cuff, making a

closed end there. This usually results in shortening of the vagina, which can

result in painful intercouse. I believe that many of the ligaments which

support the bladder and the pelvic floor are also attached to the cervix.

Removing the cervix means these are severed and must be reattached elsewhere,

and can result in other problems as the normal suspension system of the body is

disrupted. Remember the old song: " the thigh bone's connected to the hip

bone " ? Everything in our bodies are connected to something else. Removing one

part affects many other parts. Leonie

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