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Very good, sound advice .

 

Lee: You definitely need to really research and get second opinion. Consider all

the pros and cons of each treatment.

My husband had prostetectomy and we have no doubts it was the best TREATMENT FOR

HIM. He was 64 and cancer was also caught very early. There are many factors to

consider when making this decision. It was one of the most difficult times of

our life.

Each PCa patient must make his own decision and then don't look back.

You will never know how another treatment would have turned out.

 

Best of luck to you. Feel free to email me if you have any questions you'd like

to ask about our experience.

 

hugs

 

Debbie

Subject: (unknown)

To: ProstateCancerSupport

Date: Tuesday, January 27, 2009, 12:01 PM

Hi Lee, Definitely step back and get another opinion.  I am 63, had mine done at

age 60, DaVinci/Robotic Prostatectomy, and still have PSAs of 0,  but everyone

is different, and need to make a decision for yourself, based on lots of info,

input.  I'd suggest seeing all practitioners, including radiation folks.  At 37,

I think radiation seems like a poor choice, without knowing all the numbers,

etc.  It is more problematic that he is so young, his testosterone levels are

higher, he has more years for it to recur, etc.  I am a nurse anesthetist, so

having surgery was not a problem(well mostly not, lol), but I just wanted it

out.  Nerve sparing procedure did not work for me, have now had an implant,

which I love, but erectile function is more likely to return with good rehab

program post op for a young man.  Second opinion, multiple disciplines having

input, absolutely, in the end it is his choice, but choose someone who is

experienced.  Make sure

you understand all the components of treating with radiation, Lupron for a year

or two?  No small hit there for some. 

WRite if you wish, or call, I'd be happy to talk on the phone,

Life's journey is not to go to the grave in a perfectly preserved body, but to

slide in sideways, totally worn out yelling. Good God What A Ride!!

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Guest guest

Very good, sound advice .

 

Lee: You definitely need to really research and get second opinion. Consider all

the pros and cons of each treatment.

My husband had prostetectomy and we have no doubts it was the best TREATMENT FOR

HIM. He was 64 and cancer was also caught very early. There are many factors to

consider when making this decision. It was one of the most difficult times of

our life.

Each PCa patient must make his own decision and then don't look back.

You will never know how another treatment would have turned out.

 

Best of luck to you. Feel free to email me if you have any questions you'd like

to ask about our experience.

 

hugs

 

Debbie

Subject: (unknown)

To: ProstateCancerSupport

Date: Tuesday, January 27, 2009, 12:01 PM

Hi Lee, Definitely step back and get another opinion.  I am 63, had mine done at

age 60, DaVinci/Robotic Prostatectomy, and still have PSAs of 0,  but everyone

is different, and need to make a decision for yourself, based on lots of info,

input.  I'd suggest seeing all practitioners, including radiation folks.  At 37,

I think radiation seems like a poor choice, without knowing all the numbers,

etc.  It is more problematic that he is so young, his testosterone levels are

higher, he has more years for it to recur, etc.  I am a nurse anesthetist, so

having surgery was not a problem(well mostly not, lol), but I just wanted it

out.  Nerve sparing procedure did not work for me, have now had an implant,

which I love, but erectile function is more likely to return with good rehab

program post op for a young man.  Second opinion, multiple disciplines having

input, absolutely, in the end it is his choice, but choose someone who is

experienced.  Make sure

you understand all the components of treating with radiation, Lupron for a year

or two?  No small hit there for some. 

WRite if you wish, or call, I'd be happy to talk on the phone,

Life's journey is not to go to the grave in a perfectly preserved body, but to

slide in sideways, totally worn out yelling. Good God What A Ride!!

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Hi Lee,I had a standard nerve sparing prostetectomy a year ago. I agree with . Get all the information that you can before having the procedure. Radiation is not an end all and should the beast return, surgery may not be an option.

Andy

Very good, sound advice .

Lee: You definitely need to really research and get second opinion. Consider all the pros and cons of each treatment.

My husband had prostetectomy and we have no doubts it was the best TREATMENT FOR HIM. He was 64 and cancer was also caught very early. There are many factors to consider when making this decision. It was one of the most difficult times of our life.

Each PCa patient must make his own decision and then don't look back.

You will never know how another treatment would have turned out.

Best of luck to you. Feel free to email me if you have any questions you'd like to ask about our experience.

hugs

Debbie

Subject: (unknown)

To: ProstateCancerSupport

Date: Tuesday, January 27, 2009, 12:01 PM

Hi Lee, Definitely step back and get another opinion. I am 63, had mine done at age 60, DaVinci/Robotic Prostatectomy, and still have PSAs of 0, but everyone is different, and need to make a decision for yourself, based on lots of info, input. I'd suggest seeing all practitioners, including radiation folks. At 37, I think radiation seems like a poor choice, without knowing all the numbers, etc. It is more problematic that he is so young, his testosterone levels are higher, he has more years for it to recur, etc. I am a nurse anesthetist, so having surgery was not a problem(well mostly not, lol), but I just wanted it out. Nerve sparing procedure did not work for me, have now had an implant, which I love, but erectile function is more likely to return with good rehab program post op for a young man. Second opinion, multiple disciplines having input, absolutely, in the end it is his choice, but choose someone who is experienced. Make sure

you understand all the components of treating with radiation, Lupron for a year or two? No small hit there for some.

WRite if you wish, or call, I'd be happy to talk on the phone,

Life's journey is not to go to the grave in a perfectly preserved body, but to slide in sideways, totally worn out yelling. Good God What A Ride!!

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Hi Lee,I had a standard nerve sparing prostetectomy a year ago. I agree with . Get all the information that you can before having the procedure. Radiation is not an end all and should the beast return, surgery may not be an option.

Andy

Very good, sound advice .

Lee: You definitely need to really research and get second opinion. Consider all the pros and cons of each treatment.

My husband had prostetectomy and we have no doubts it was the best TREATMENT FOR HIM. He was 64 and cancer was also caught very early. There are many factors to consider when making this decision. It was one of the most difficult times of our life.

Each PCa patient must make his own decision and then don't look back.

You will never know how another treatment would have turned out.

Best of luck to you. Feel free to email me if you have any questions you'd like to ask about our experience.

hugs

Debbie

Subject: (unknown)

To: ProstateCancerSupport

Date: Tuesday, January 27, 2009, 12:01 PM

Hi Lee, Definitely step back and get another opinion. I am 63, had mine done at age 60, DaVinci/Robotic Prostatectomy, and still have PSAs of 0, but everyone is different, and need to make a decision for yourself, based on lots of info, input. I'd suggest seeing all practitioners, including radiation folks. At 37, I think radiation seems like a poor choice, without knowing all the numbers, etc. It is more problematic that he is so young, his testosterone levels are higher, he has more years for it to recur, etc. I am a nurse anesthetist, so having surgery was not a problem(well mostly not, lol), but I just wanted it out. Nerve sparing procedure did not work for me, have now had an implant, which I love, but erectile function is more likely to return with good rehab program post op for a young man. Second opinion, multiple disciplines having input, absolutely, in the end it is his choice, but choose someone who is experienced. Make sure

you understand all the components of treating with radiation, Lupron for a year or two? No small hit there for some.

WRite if you wish, or call, I'd be happy to talk on the phone,

Life's journey is not to go to the grave in a perfectly preserved body, but to slide in sideways, totally worn out yelling. Good God What A Ride!!

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would you explain a little more.

I use injections (caverjet 20) i have tryed the vacuum device but it did no work well. Caverjet 20 works ok but not great----Original Message----From: grrich2763@...Date: 28/01/2009 11:43 To: <ProstateCancerSupport >Subj: (unknown)----Original Message----From: grrich2763@...Date: 28/01/2009 11:43 To: <ProstateCancerSupport >Subj: (unknown)----Original Message----From: grrich2763@...Date: 28/01/2009 11:43 To: <ProstateCancerSupport >Subj: (unknown)----Original Message----From: grrich2763@...Date: 28/01/2009 11:43 To: <ProstateCancerSupport >Subj: (unknown)

Sounds good, and very familiar. My only suggestion, daily use of VED. I believe it was key in helping me to maintain good stretch in my erection for my implant, 8 months ago, and now have erections I love, which are as big as before this all started. Life's journey is not to go to the grave in a perfectly preserved body, but to slide in sideways, totally worn out yelling. Good God What A Ride!! Navarro Miñarro

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To quote my 12yr old son: " Rock on Gregg! " , you too Laurel!!

I don't know what happened to the subject line box?

I wanted to let folks know that my husband Gregg's latest PSA test

came in at .85. He finished his proton beam radiation therapy (PBRT)

at Loma University Medical Center, 23 months ago and we have

been holding our breath all the while waiting for it to drop to under

one. I know that there in nothing really magic in that, and certainly

is not a guarantee. But his PSA has been hovering between 1.2 and 1.4

with a one time bounce up to 1.7 for about 20 months. His first PSA

four months after completing his treatment was 1.2. This was a drop

from his pre-treatment PSA of 4.9

I can tell you that his sexual function is undiminshed. He had about

10 months of minor, infrequent rectal bleeding starting about a year

after treatment. This seems to be a thing of the past as he has not

had any for several months. He has reduced amounts of ejaculate.

Sometimes more than others but as he says, " that door hasn't closed

yet " .

Gregg just tured 60 and life is indeed good at the moment.

Laurel

-- Emersonwww.flhw.org

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> Have to say I am totally overwhelmed and so confused!

Welcome to the club.

We're here to help; bring it on.

Regards,

Steve J

" Know your enemy. Get educated. But also know that it won't be easy. It

will be confusing, overwhelming and depressing. That is the nature of

cancer and thus the very educational process as you regain control. "

-- Young, PCa Mentor

Phoenix 5

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Guest guest

> Have to say I am totally overwhelmed and so confused!

Welcome to the club.

We're here to help; bring it on.

Regards,

Steve J

" Know your enemy. Get educated. But also know that it won't be easy. It

will be confusing, overwhelming and depressing. That is the nature of

cancer and thus the very educational process as you regain control. "

-- Young, PCa Mentor

Phoenix 5

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Guest guest

Hi-

ADA's Nutrition Entreprenuers and SCAN DPGs are fabulous for keeping up with

the info out there. Still will have a bit of politics here and there, but I

imagine you find that anywhere :)

On Thu, Jun 23, 2011 at 11:57 AM, Gilpin <

jenniferschmerge@...> wrote:

> **

>

>

> Are there any other RD professional groups out there that are not so

> political? I respect everyone's opinion and desire to debate, but this is

> not at all what I am looking for. I am really looking for good solid

> professional RD information that will help me keep up in the field.

> Thanks!

>

>

>

>

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Hi-

ADA's Nutrition Entreprenuers and SCAN DPGs are fabulous for keeping up with

the info out there. Still will have a bit of politics here and there, but I

imagine you find that anywhere :)

On Thu, Jun 23, 2011 at 11:57 AM, Gilpin <

jenniferschmerge@...> wrote:

> **

>

>

> Are there any other RD professional groups out there that are not so

> political? I respect everyone's opinion and desire to debate, but this is

> not at all what I am looking for. I am really looking for good solid

> professional RD information that will help me keep up in the field.

> Thanks!

>

>

>

>

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As an ADA member I'm sure you can join the ADA sponsored groups and any of

the DPGs you belong to.

Digna

From: rd-usa [mailto:rd-usa ] On Behalf Of

Gilpin

Sent: Thursday, June 23, 2011 11:58 AM

To: rd-usa

Subject: (unknown)

Are there any other RD professional groups out there that are not so

political? I respect everyone's opinion and desire to debate, but this is

not at all what I am looking for. I am really looking for good solid

professional RD information that will help me keep up in the field.

Thanks!

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As an ADA member I'm sure you can join the ADA sponsored groups and any of

the DPGs you belong to.

Digna

From: rd-usa [mailto:rd-usa ] On Behalf Of

Gilpin

Sent: Thursday, June 23, 2011 11:58 AM

To: rd-usa

Subject: (unknown)

Are there any other RD professional groups out there that are not so

political? I respect everyone's opinion and desire to debate, but this is

not at all what I am looking for. I am really looking for good solid

professional RD information that will help me keep up in the field.

Thanks!

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Guest guest

I would be interested to know of other groups as well that don't require ADA

membership since I work in Portugal and I don't plan to be an ADA member.

I don't mind the politics in this group and the discussion but it is always good

to know other info sources.

Catia Borges

>

> As an ADA member I'm sure you can join the ADA sponsored groups and any of

> the DPGs you belong to.

>

>

>

> Digna

>

>

>

> From: rd-usa [mailto:rd-usa ] On Behalf Of

> Gilpin

> Sent: Thursday, June 23, 2011 11:58 AM

> To: rd-usa

> Subject: (unknown)

>

>

>

>

>

> Are there any other RD professional groups out there that are not so

> political? I respect everyone's opinion and desire to debate, but this is

> not at all what I am looking for. I am really looking for good solid

> professional RD information that will help me keep up in the field.

> Thanks!

>

>

>

>

>

>

>

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Guest guest

I would be interested to know of other groups as well that don't require ADA

membership since I work in Portugal and I don't plan to be an ADA member.

I don't mind the politics in this group and the discussion but it is always good

to know other info sources.

Catia Borges

>

> As an ADA member I'm sure you can join the ADA sponsored groups and any of

> the DPGs you belong to.

>

>

>

> Digna

>

>

>

> From: rd-usa [mailto:rd-usa ] On Behalf Of

> Gilpin

> Sent: Thursday, June 23, 2011 11:58 AM

> To: rd-usa

> Subject: (unknown)

>

>

>

>

>

> Are there any other RD professional groups out there that are not so

> political? I respect everyone's opinion and desire to debate, but this is

> not at all what I am looking for. I am really looking for good solid

> professional RD information that will help me keep up in the field.

> Thanks!

>

>

>

>

>

>

>

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Guest guest

> I would be interested to know of other groups as well that don't require ADA

membership since I work in Portugal and I don't plan to be an ADA member.

> I don't mind the politics in this group and the discussion but it is always

good to know other info sources.

You can join Nutrition Reports. It's mainly emailed articles on health,

but we do have a few discussions as well. Yahoo has both web-based and

email-based formats, so you can choose:

1) to receive posts by email, singly or as a daily digest, or

2) you can skip email entirely and choose the web-based format. The Web

format allows you to read online and search archives, without getting

email. This works well for those who don't want a lot of email, as some

days there are up to two dozen messages. Select: " Special Notices -

Receive only important email notices from the group moderator. "

To join, go to:

http://health.groups.yahoo.com/group/Nutrition_Reports/

Next screen, click " Join This Group "

Best,

ne

--

ne Holden, MS

" Ask About Nutrition " www.parkinson.org/

" Nutrition Reports " http://health.groups.yahoo.com/group/Nutrition_Reports/

" Parkinson's disease: Guidelines for Medical Nutrition Therapy "

www.nutritionucanlivewith.com/

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Guest guest

> I would be interested to know of other groups as well that don't require ADA

membership since I work in Portugal and I don't plan to be an ADA member.

> I don't mind the politics in this group and the discussion but it is always

good to know other info sources.

You can join Nutrition Reports. It's mainly emailed articles on health,

but we do have a few discussions as well. Yahoo has both web-based and

email-based formats, so you can choose:

1) to receive posts by email, singly or as a daily digest, or

2) you can skip email entirely and choose the web-based format. The Web

format allows you to read online and search archives, without getting

email. This works well for those who don't want a lot of email, as some

days there are up to two dozen messages. Select: " Special Notices -

Receive only important email notices from the group moderator. "

To join, go to:

http://health.groups.yahoo.com/group/Nutrition_Reports/

Next screen, click " Join This Group "

Best,

ne

--

ne Holden, MS

" Ask About Nutrition " www.parkinson.org/

" Nutrition Reports " http://health.groups.yahoo.com/group/Nutrition_Reports/

" Parkinson's disease: Guidelines for Medical Nutrition Therapy "

www.nutritionucanlivewith.com/

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Guest guest

> I would be interested to know of other groups as well that don't require ADA

membership since I work in Portugal and I don't plan to be an ADA member.

> I don't mind the politics in this group and the discussion but it is always

good to know other info sources.

You can join Nutrition Reports. It's mainly emailed articles on health,

but we do have a few discussions as well. Yahoo has both web-based and

email-based formats, so you can choose:

1) to receive posts by email, singly or as a daily digest, or

2) you can skip email entirely and choose the web-based format. The Web

format allows you to read online and search archives, without getting

email. This works well for those who don't want a lot of email, as some

days there are up to two dozen messages. Select: " Special Notices -

Receive only important email notices from the group moderator. "

To join, go to:

http://health.groups.yahoo.com/group/Nutrition_Reports/

Next screen, click " Join This Group "

Best,

ne

--

ne Holden, MS

" Ask About Nutrition " www.parkinson.org/

" Nutrition Reports " http://health.groups.yahoo.com/group/Nutrition_Reports/

" Parkinson's disease: Guidelines for Medical Nutrition Therapy "

www.nutritionucanlivewith.com/

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