RE: (unknown)

April 30, 2000

Hi , I dont know how much I can help except to offer what I know as

I have had spina bifida for 33 years <GRIN> so maybe some of my experience

could help. If you just want to vent thats ok too. Have a great day, Laurie

in Illinois

(unknown)

> I am a mother of Two Children with Spina Bifida. I am looking for support

and people to share my concerns and tears with. I need help looking up

conditions on the Internet as I am very new to this area. I have always

gone to the books and now I have this wonderful piece of equipment to help

me help my children. Looking to talk to anyone

>

April 30, 2000

Hi , I dont know how much I can help except to offer what I know as

I have had spina bifida for 33 years <GRIN> so maybe some of my experience

could help. If you just want to vent thats ok too. Have a great day, Laurie

in Illinois

(unknown)

> I am a mother of Two Children with Spina Bifida. I am looking for support

and people to share my concerns and tears with. I need help looking up

conditions on the Internet as I am very new to this area. I have always

gone to the books and now I have this wonderful piece of equipment to help

me help my children. Looking to talk to anyone

>

June 20, 2000

not me wade..........never experienced that one.......sorry

{{{{Hugs}}}}

bren...............})i({

June 20, 2000

In a message dated 06/20/2000 10:24:16 PM Eastern Daylight Time,

mper913954@... writes:

<< Does anyone else get hiccups alot? >>

This question comes across the list every once in a while. From my

understanding, consistent hiccups can be a sign of brainstem compression. I'm

not sure exactly what would determine that.

gets hiccups alot. When she gets them, they come on real quick and

are very hard hiccups. Then they stop real suddenly. It seems that when she

gets them, it will be several times within a day and this can happen for

several days during a week and then she can go awhile without any. I've never

told a doctor about this - guess I've thought the worst in what their

reaction might be to me saying she has a problem with hiccups.

Last year, I had her teacher keep a log on how many times per day she had

them and how many days every week. Didn't seem to be a pattern to them.

Tory ('s mom)

18ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus,

growth hormone (weighs 53lbs.) and thyroid deficient, blind, severly delayed,

choanial atresia, optic nerve hypoplasia, artificial tear duct, 12-P

chromosome deletion, sensory integration disorder, latex allergy, ACM II

w/30mm herniation, basilar impression. June10, 98' suboccipital craniectomy

and lamenectomy of C1 & C2. Aug. 10, 98' dura graft. History of 37 surgeries.

(and musically talented) SUCH A SPECIAL LITTLE GIRL!

----------> <A HREF= " http://www.pressenter.com/~chip/heather.htm " ></A>

June 20, 2000

Hello, ~ i haven't experienced hiccups, just MAJOR back pain when i

get up.....thats why i fight my sleep. It is very possible the brain stem

has alot to do with it. Pray u find a cure......i'm sure its annoying.

Sorry i can't offer any suggestions but i will research it.

bren...........})i({ {{{HUGS}}}

June 20, 2000

Not hiccups, but constant yawning. It pulls on my scar. ick!

(unknown)

Does anyone else get hiccups alot?Also I need the name of a

neurosurgeon that knows about ACM1.I live in the Dallas

area.

Thanks

Help section: /help/

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June 21, 2000

I get hard hiccups about 2 to 3 times a week. I get them a few times a day

for a few days then they stop. I started getting them after surgery. I have

never asked a doc about them tho.

(unknown)

> Does anyone else get hiccups alot?Also I need the name of a

> neurosurgeon that knows about ACM1.I live in the Dallas

> area.

> Thanks

>

> Help section: /help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> Unsubscribe Yourself: chiari-unsubscribeegroups

>

> WACMA Home: www.pressenter.com/~wacma

>

> WACMA List: www.eGroups.com/group/chiari

>

June 23, 2000

Hi,

I wouldn't say I get them alot, but when I do get them they are hard to get

under control. Also, after my last Detethering, I think a day or 2 after it,

I had a horrible case of Hiccups. I have a feeling that it happened because

the Chiari was aggervated during Surgery for Tethered Cord.

Take Care,

Brande

mymocha@...

> Does anyone else get hiccups alot?

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June 24, 2000

I also had a large syrinx when I had my decompression surgery. T3 to T6. For

one thing they don't want to do both surgeries at the same time. And there is

always the chance that the syrinx will shrink.

My syrinx did shrink for almost 2 years and then it was shunted. I was

supposed to be " fixed " ya right. 2 years later I started having more symptoms

and went back for more MRIs and found another syrinx in my C-spine. It was

shunted within a week of getting back the MRIs.

I hope that there are some lucky ACMers out there that there syrinx disappear

and never have to be shunted. The way the doctors talk this does happen.

Good luck with yours.

ACM 1 with syringomyelia

2 Hoffman shunts for syrinx

32 and still kickin

December 15, 2000

Lucky you, Laverne. I have had a really bad week of eating. I have had

several Christmas get togethers and TOM came. I have reached the conclusion

that my 10 pounds off goal by the end of the year is not going to happen.

That said, I will not give up, just recognize that my mind has to take the

first action in reinforcing my desire to take off those last few pounds,

then my hand to mouth action will follow. I am not going to let Christmas

get too far out of hand, but I am going to give myself " reasonable " slack

and then hit it hard once things get back to normal after the New Year. My

commitment will be as always - not to go over 5 pounds higher than my lowest

weight. That won't give me much freedom since 135 was my lowest weight and

I am at 139 now, but I'm not going to pressure myself for the loss either.

Jean

190/139/130

12/7/98

December 15, 2000