Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 Hi , I dont know how much I can help except to offer what I know as I have had spina bifida for 33 years <GRIN> so maybe some of my experience could help. If you just want to vent thats ok too. Have a great day, Laurie in Illinois (unknown) > I am a mother of Two Children with Spina Bifida. I am looking for support and people to share my concerns and tears with. I need help looking up conditions on the Internet as I am very new to this area. I have always gone to the books and now I have this wonderful piece of equipment to help me help my children. Looking to talk to anyone > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 Hi , I dont know how much I can help except to offer what I know as I have had spina bifida for 33 years <GRIN> so maybe some of my experience could help. If you just want to vent thats ok too. Have a great day, Laurie in Illinois (unknown) > I am a mother of Two Children with Spina Bifida. I am looking for support and people to share my concerns and tears with. I need help looking up conditions on the Internet as I am very new to this area. I have always gone to the books and now I have this wonderful piece of equipment to help me help my children. Looking to talk to anyone > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 not me wade..........never experienced that one.......sorry {{{{Hugs}}}} bren...............})i({ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 In a message dated 06/20/2000 10:24:16 PM Eastern Daylight Time, mper913954@... writes: << Does anyone else get hiccups alot? >> This question comes across the list every once in a while. From my understanding, consistent hiccups can be a sign of brainstem compression. I'm not sure exactly what would determine that. gets hiccups alot. When she gets them, they come on real quick and are very hard hiccups. Then they stop real suddenly. It seems that when she gets them, it will be several times within a day and this can happen for several days during a week and then she can go awhile without any. I've never told a doctor about this - guess I've thought the worst in what their reaction might be to me saying she has a problem with hiccups. Last year, I had her teacher keep a log on how many times per day she had them and how many days every week. Didn't seem to be a pattern to them. Tory ('s mom) 18ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus, growth hormone (weighs 53lbs.) and thyroid deficient, blind, severly delayed, choanial atresia, optic nerve hypoplasia, artificial tear duct, 12-P chromosome deletion, sensory integration disorder, latex allergy, ACM II w/30mm herniation, basilar impression. June10, 98' suboccipital craniectomy and lamenectomy of C1 & C2. Aug. 10, 98' dura graft. History of 37 surgeries. (and musically talented) SUCH A SPECIAL LITTLE GIRL! ----------> <A HREF= " http://www.pressenter.com/~chip/heather.htm " ></A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 Hello, ~ i haven't experienced hiccups, just MAJOR back pain when i get up.....thats why i fight my sleep. It is very possible the brain stem has alot to do with it. Pray u find a cure......i'm sure its annoying. Sorry i can't offer any suggestions but i will research it. bren...........})i({ {{{HUGS}}} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2000 Report Share Posted June 20, 2000 Not hiccups, but constant yawning. It pulls on my scar. ick! (unknown) Does anyone else get hiccups alot?Also I need the name of a neurosurgeon that knows about ACM1.I live in the Dallas area. Thanks Help section: /help/ NOTE: NCC refers to posts with No Chiari Content Unsubscribe Yourself: chiari-unsubscribeegroups WACMA Home: www.pressenter.com/~wacma WACMA List: www.eGroups.com/group/chiari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2000 Report Share Posted June 21, 2000 I get hard hiccups about 2 to 3 times a week. I get them a few times a day for a few days then they stop. I started getting them after surgery. I have never asked a doc about them tho. (unknown) > Does anyone else get hiccups alot?Also I need the name of a > neurosurgeon that knows about ACM1.I live in the Dallas > area. > Thanks > > > > > Help section: /help/ > > NOTE: NCC refers to posts with No Chiari Content > > Unsubscribe Yourself: chiari-unsubscribeegroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 Hi, I wouldn't say I get them alot, but when I do get them they are hard to get under control. Also, after my last Detethering, I think a day or 2 after it, I had a horrible case of Hiccups. I have a feeling that it happened because the Chiari was aggervated during Surgery for Tethered Cord. Take Care, Brande mymocha@... > Does anyone else get hiccups alot? _____________________________________________ NetZero - Defenders of the Free World Click here for FREE Internet Access and Email http://www.netzero.net/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2000 Report Share Posted June 24, 2000 I also had a large syrinx when I had my decompression surgery. T3 to T6. For one thing they don't want to do both surgeries at the same time. And there is always the chance that the syrinx will shrink. My syrinx did shrink for almost 2 years and then it was shunted. I was supposed to be " fixed " ya right. 2 years later I started having more symptoms and went back for more MRIs and found another syrinx in my C-spine. It was shunted within a week of getting back the MRIs. I hope that there are some lucky ACMers out there that there syrinx disappear and never have to be shunted. The way the doctors talk this does happen. Good luck with yours. ACM 1 with syringomyelia 2 Hoffman shunts for syrinx 32 and still kickin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Lucky you, Laverne. I have had a really bad week of eating. I have had several Christmas get togethers and TOM came. I have reached the conclusion that my 10 pounds off goal by the end of the year is not going to happen. That said, I will not give up, just recognize that my mind has to take the first action in reinforcing my desire to take off those last few pounds, then my hand to mouth action will follow. I am not going to let Christmas get too far out of hand, but I am going to give myself " reasonable " slack and then hit it hard once things get back to normal after the New Year. My commitment will be as always - not to go over 5 pounds higher than my lowest weight. That won't give me much freedom since 135 was my lowest weight and I am at 139 now, but I'm not going to pressure myself for the loss either. Jean 190/139/130 12/7/98 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Lucky you, Laverne. I have had a really bad week of eating. I have had several Christmas get togethers and TOM came. I have reached the conclusion that my 10 pounds off goal by the end of the year is not going to happen. That said, I will not give up, just recognize that my mind has to take the first action in reinforcing my desire to take off those last few pounds, then my hand to mouth action will follow. I am not going to let Christmas get too far out of hand, but I am going to give myself " reasonable " slack and then hit it hard once things get back to normal after the New Year. My commitment will be as always - not to go over 5 pounds higher than my lowest weight. That won't give me much freedom since 135 was my lowest weight and I am at 139 now, but I'm not going to pressure myself for the loss either. Jean 190/139/130 12/7/98 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Hi Your right. This time of year is really hard for all especially when we are with family. Tomorrow all my sisters and I are getting together for a christmas tea and I know I will probably eat a few non leagal foods. But hey its christmas. Right! I hope I can make my goal by the end of the year which is to be in the 170's but you never know. Laverne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Hi Your right. This time of year is really hard for all especially when we are with family. Tomorrow all my sisters and I are getting together for a christmas tea and I know I will probably eat a few non leagal foods. But hey its christmas. Right! I hope I can make my goal by the end of the year which is to be in the 170's but you never know. Laverne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Hi Your right. This time of year is really hard for all especially when we are with family. Tomorrow all my sisters and I are getting together for a christmas tea and I know I will probably eat a few non leagal foods. But hey its christmas. Right! I hope I can make my goal by the end of the year which is to be in the 170's but you never know. Laverne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Where is the tea Laverne? Any chance you can sneak in a low carb treat to share? Kirstie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Where is the tea Laverne? Any chance you can sneak in a low carb treat to share? Kirstie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 Where is the tea Laverne? Any chance you can sneak in a low carb treat to share? Kirstie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2000 Report Share Posted December 16, 2000 Hi Kirstie, The Tea party was to be at my sisters but I will not be going now. We decided to cancel it until Dec. 30th because we are supposed to get 6 to 8 inches of snow with 40 mile an hours winds tomorrow. My sister lives in my mother and dads house that was left to us girls. It is always fun to go back home for christmas. Laverne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Nice Truck - when do I get a ride? Jane (unknown) >Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color >is Sunset Orange Metallic > >http://www.ccia.com/~ashley/datruck.jpg > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Nice Truck - when do I get a ride? Jane (unknown) >Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color >is Sunset Orange Metallic > >http://www.ccia.com/~ashley/datruck.jpg > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Nice Truck - when do I get a ride? Jane (unknown) >Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color >is Sunset Orange Metallic > >http://www.ccia.com/~ashley/datruck.jpg > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Well I usually don't open attachments abecause I am so paranoid, but I had to see what Sunset Orange Metallic looked like; It looks a lot better than it sounds! I like the wheels! marie I hope it is running good now! (unknown) >Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color >is Sunset Orange Metallic > >http://www.ccia.com/~ashley/datruck.jpg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Christmas Present??? Way Cool!!! ashley wrote: > Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color > is Sunset Orange Metallic > > http://www.ccia.com/~ashley/datruck.jpg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Christmas Present??? Way Cool!!! ashley wrote: > Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color > is Sunset Orange Metallic > > http://www.ccia.com/~ashley/datruck.jpg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Christmas Present??? Way Cool!!! ashley wrote: > Hey, here's my new 2001 Chevy Silverado Z71. Still need a cap. Color > is Sunset Orange Metallic > > http://www.ccia.com/~ashley/datruck.jpg Quote Link to comment Share on other sites More sharing options...
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