Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 In a message dated 3/18/00 11:33:19 AM Eastern Standard Time, debgben@... writes: << bout dry aids...we just purchased the electrical kind and it is terrific. We still have the jar for trips, but we use the one or the other every night. We were told that it can only do good things, including adding to the life of the hearind aid. >> What is the electrical kind, where can I buy it? Is it much better than the jar? Thanks Tammy Norman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 At 03:17 PM 3/20/00 -0500, you wrote: >From: dtnorm@... > >In a message dated 3/18/00 11:33:19 AM Eastern Standard Time, debgben@... >writes: > ><< bout dry aids...we just purchased the electrical kind and it is terrific. > We still have the jar for trips, but we use the one or the other every >night. > We were told that it can only do good things, including adding to the life > of the hearind aid. >> > >What is the electrical kind, where can I buy it? Is it much better than the >jar? http://vhost1.zfx.com/comm/eartech/ No comparison. With two sets of hearing aids in the house, it is indispensable. Chris << Christofer deHahn.........Information Technology Manager >> << Chiliad Publishing.............Amherst, Massachusetts, USA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 In a message dated 3/18/00 8:10:36 AM Eastern Standard Time, CMSteph98@... writes: << Also, those of you whose children have a sensorineural loss, do you still go to an ENT regularly, I haven't found a need, but wasn't sure if I needed to find one. >> I was told to have my daughter see her ENT at least once a year. My daughter's loss is sensorineural, bilateral, severe-profound. I would suggest that you make an appointment with the ENT and ask him/her how regularly your child needs to be seen. Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Hi Tammy, Sorry its a little bit late, but the phone number to call about the Dry & Store is . We purchased our from our audiologist, but this might be a cheaper route. It is supposed to add life to the battery, but I wouldn't know because we put in a new battery every Monday so there is no chance of the battery dying at an inopportune moment. I do notice that it dose a great job of clearing the moisture. About AVT, I do think that you can " graduate " from the therapy. It is my understanding that the main purpose is to maximize use of residual hearing and to enable children to rely on their ears first, eyes second. Once your child is hearing all the sounds, it is possible to move on to regular speech therapy. is 100% auditory and at this point we encourage him to supplement what he hears with visual cues. Question for you - have you ever been told not to aid your son's profound ear? Although wore two aids for 5 years to stimulate whatever hearing he did have in his left ear, we have recently cut back to one. He likes it better this way, and the audiologist thought that at this point it didn't matter all that much. In fact, she said that the noise coming from that ear might even detract from the clear speech coming from the other ear. If we ever need an implant though, it was good to stimulate that ear, since that would probably be the ear implanted. Have you received any advice about this either way? I have been reading about the surgically implanted hearing aid (BAHA) and wondered if anyone had heard anything about it. Wouldn't it be wonderful if it could replace hearing aids one day. Short of a cure, it is what I always hoped for. One last note, I just heard of a Web site that might help Marc and some others who are looking for sources for aids, information and leads to professionals. It is WWW.hearbetternet.com I haven't visited it myself yet, but plan to as soon as I can find the time. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 In a message dated 3/21/00 12:01:24 PM Eastern Standard Time, debgben@... writes: << Question for you - have you ever been told not to aid your son's profound ear? Although wore two aids for 5 years to stimulate whatever hearing he did have in his left ear, we have recently cut back to one. He likes it better this way, and the audiologist thought that at this point it didn't matter all that much. In fact, she said that the noise coming from that ear might even detract from the clear speech coming from the other ear. If we ever need an implant though, it was good to stimulate that ear, since that would probably be the ear implanted. Have you received any advice about this either way? >> Debbie, I have not heard of this but will ask my audiologist if that may be recommended in the future. And about AVT, I am getting the impression that will " graduate " from it before kindergarten. And at that point get just speech or nothing other than monitoring. The next 2 years (he is 3) will be very important. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Hi Pam, I am just getting caught up from being behind on reading my emails. I haven't been able to actually read my emails this whole month so I was like 638 behind. I was determined to read them this weekend and I am finally caught up. My daughter le (18 months HOH and Other Issues) also goes to CHOP for audiology. Who is your audie, we see Dawne Rainey. We too are approx 25-30 minutes away from Philadelphia. We live in Delaware County, (Glenolden). Where are you located? le also had tubes replaced twice. She has had reoccurring ear infections it was a constant battle with infections. Since the second set of tubes however she only has had one infection. le was identified at birth, she was born 7 weeks premature, it was mandated on all NICU babies. However I just got word last week that the hospital she was born in is now testing all babies. She had 4 conflicting brainstem and at that time we went to Dupont Hospital for Children for another opinion because at the age of 7 months le still wasn't aided and we were very concerned. We stayed with Dupont for a couple months and now switched back to CHOP. We also have been very satisfied since we switched back. le is now 18 months old and is aided. She benefits well from her aids, she just test 15-20 aided. So we are thrilled. They called her the complicated kid because she didn't fit into any genetic syndrome and has so many issues. We have been through Genetics three times and they can't place her in any genetic syndrome. We were on a constant roller coaster ride for approx. 13 months. Should I said I was. I will honestly say, it's been the longest 18 months of my life, but it has paid off. We battled for almost 7 months getting ear molds to fit. Then it was a battle to keep them in. They finally made to hypo allergenic molds and she leaves them in most of the day now. I never thought we would see that day. We just received the molds on Monday and all week, for the first time she has not touched or pulled out her aids. She will pull them out when she is tired. I am still convinced that she was allergic to the other ear mold material and that also contributed to the 16 ear infections she had. I have always went with my gut on all her specials needs. I will look forward to hearing from you. Email me privately if you prefer. Colleen mom to le 18 months, HOH,reflux,asthma,s Anomaly,etc mom to 6 years. Hearing. Asthma and severe allergies. rem1130pfm@... wrote: > From: rem1130pfm@... > > HI! > > I just wanted to share what a wonderful ENT we have. Granted, many people > may not have the use for one like we do, but he has been a blessing for us. > He has put two sets of tubes in Meghan's ears. She also has a fluctuating > loss so she is monitored closely by the audiologist and himself. The really > work together as a team for us. Meghan had a hearing drop last summer and we > saw the ENT and audiologist weekly while she was on steroids and tapering > off. We fax or mail info to each other about medicines, treatments and other > issues. He will even call us at home (from his home) if there is something > we feel is important to discuss. It's so nice to have someone we trust as an > expert to be available to us when we need him. I know it sounds like I must > be from a small town where it might be easier to get more personal service, > but I'm talking about Children's Hospital in Philadelphia. Our ENT is also a > part of the cochlear implant team. We are not at that point, but if we ever > are, I'll be glad to of had a history with the doctor. > > Pam > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > http://click./1/975/1/_/440511/_/953405248/ > ------------------------------------------------------------------------ > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
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