Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 --- You wrote: Hi everyone... please forgive me if these questions seem repetitive or simple, but we're new to all this and keep getting more and more info to digest (I promise, this won't be the last of the questions from me!). We spoke with a friend of our who has a profoundly deaf child and was telling us some horror stories about costs for insuring hearing aids against loss/theft/etc. She told us it's like $500 /year for that... times 2 kids. Does that sound like the right figure? Also, ear molds. how often can we expect to have new molds made for the kids (5 year old and 16 month old) and how much, ballpark of course, are we talking about there? And lastly, this friend of ours was talking about the various materials that are used for part of the aids that goes in the ear. Do they vary? Is one better than another? She kept talking about a " softer " material, moisture resistant, etc. --- end of quote --- HI Marc - when your child first gets his/her hearing aids, they have at least a one year warranty (the Siemans aids actually have a two year) so you don't need to even think about insurance for that period of time. There are lots of options after that. There are a couple of companies - ESCO and Midwest - that are in the hearing aid insurance business. For programmable aids, it costs around $200 a set for insurance. We have insurance for both our boys' hearing aids from the vendors (in our case, Siemans and Phonak) for them. It covers repairs as well as loss. Ear molds - my kids have had to have ear molds made as much as every three months and one time, Tom went for almost a year on one set. It depends on their growth.... Yes, there are different materials for ear molds. I think there's something in Kay's site (of course!) that talks about this. We switched to the CFA4 molds for Tommy and they have helped with higher frequencies somewhat. Others are more " up " on this. Don't apologize for asking questions - we've all been there! Take care Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 --- You wrote: << Our ear molds are $30 each and considering how young and continuously growing your kids are, i would expect at least 2-3 a year. >> Jake gets special CFA molds that are roughly $40 each. He is six and has had the same mold since about Feb. of 1998. When he was smaller we got them around 3-5 times a year as he grew so FAST! Just remember when you do get a pair and think they aren't fitting right....all the companies we dealt with remade them without charge within 90 days(I think) if the audi could buff them and make them fit better. --- end of quote --- Wow - our earmolds are $50 each! Amazing the difference in prices around the country! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 $30-50? I am *so* jealous. We pay $85 at Stanford. We're also paying over $2 a gallon for gas. California isn't always everything it's cracked up to be. Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 We have Ashleigh's hearing aids insured through our homeowner's (State Farm) insurance. It is on a separate policy all by itself, it is on a fire policy, but it is a separate rider. The cost is $8 per month for REPLACEMENT cost! We had to use the policy in October when the aids were lost. The original purchase price was around $2400, replacement was over $3,000! We received the full replacement cost!! Definitely worth it!!!!! karin Re: Digest Number 454 > From: Barbara.T.Mellert@... > > --- You wrote: > Hi everyone... please forgive me if these questions seem repetitive or > simple, but we're new to all this and keep getting more and more info to > digest (I promise, this won't be the last of the questions from me!). We > spoke with a friend of our who has a profoundly deaf child and was telling > us some horror stories about costs for insuring hearing aids against > loss/theft/etc. She told us it's like $500 /year for that... times 2 kids. > Does that sound like the right figure? > > Also, ear molds. how often can we expect to have new molds made for the > kids (5 year old and 16 month old) and how much, ballpark of course, are we > talking about there? > > And lastly, this friend of ours was talking about the various materials > that are used for part of the aids that goes in the ear. Do they vary? Is > one better than another? She kept talking about a " softer " material, > moisture resistant, etc. > --- end of quote --- > HI Marc - when your child first gets his/her hearing aids, they have at least a > one year warranty (the Siemans aids actually have a two year) so you don't need > to even think about insurance for that period of time. There are lots of > options after that. There are a couple of companies - ESCO and Midwest - that > are in the hearing aid insurance business. For programmable aids, it costs > around $200 a set for insurance. We have insurance for both our boys' hearing > aids from the vendors (in our case, Siemans and Phonak) for them. It covers > repairs as well as loss. > > Ear molds - my kids have had to have ear molds made as much as every three > months and one time, Tom went for almost a year on one set. It depends on their > growth.... > > Yes, there are different materials for ear molds. I think there's something in > Kay's site (of course!) that talks about this. We switched to the CFA4 molds > for Tommy and they have helped with higher frequencies somewhat. Others are > more " up " on this. > > Don't apologize for asking questions - we've all been there! > > Take care > Barbara > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/1/_/440511/_/953324812/ > ------------------------------------------------------------------------ > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 Wow Sheri, glad we dont live in Cali anymore. We're paying $56 and $1.69 for gas in CT. J. --- sbyrne1281@... wrote: > $30-50? I am *so* jealous. We pay $85 at Stanford. > We're also paying over $2 a gallon for gas. > California isn't always everything it's cracked up > to be. > > Sheri > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Over $2.00 is for the very premium. And today, with the windows open to let the breeze in, the sun shining in my windows, 20 minutes from the beach and fresh strawberries waiting for us at the Farmer's Market - I love Calif. Gas prices seemed to be higher in No Cal than So Cal...was up there last weekend. >From: sbyrne1281@... >Reply-To: Listen-Uponelist >To: Listen-Uponelist >Subject: Re: Digest Number 454 >Date: Fri, 17 Mar 2000 21:28:01 EST > >$30-50? I am *so* jealous. We pay $85 at Stanford. We're also paying >over $2 a gallon for gas. California isn't always everything it's cracked >up to be. > >Sheri ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 I loved Groton the one time I went there. I was right by one of the SSNs by the Thames River...the first time I saw a sub floating by someone's office window! I spent the first evening at Fox Woods, and the second at Mystic and stayed at a great Bed and Breakfast with a round barn. Was up in Monterey last weekend and gone all this week for my work; and the chowder up there was good every place we went. The artichokes were four for $5.00...I thought a little high. You sound like you're doing well. ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi , I had to laugh when I read your posting because it seems the more I read here the more questions I have also. I thought I was doing everything I could for , but as I learn more I find I am rethinking some of the things I had taken for granted. An example of this would be your question on ENT visits...we also just see hem when there is a medical problem, which is ahrdly ever. However, he is sent all of hearing evaluations so that he is always up to date. Now I am wondering if I should call him regarding tympanagrams - although they usually " peak " he always has negative pressure. I don't know if this has any effect on his hearing. Does anybody alse have this issue? About dry aids...we just purchased the electrical kind and it is terrific. We still have the jar for trips, but we use the one or the other every night. We were told that it can only do good things, including adding to the life of the hearind aid. Hope you get the answers you are looking for Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 In a message dated 3/18/2000 8:11:08 AM Eastern Standard Time, CMSteph98@... writes: << The pediatrician could not get it out so she just gave me a prescription for cortisporin(sp). >> Cortisporin is what they gave Jake for Otitis Externa. The ear canal was red about a month after he was implanted and they did it for safe measure. I'm a nurse so I know that Cortisporin is a topical steroid, cortisone and two antibiotics all together in one solution. I don't see how that can help with ear wax. Here is info about it. http://www.realage.com/connect/healthadvisor/medication/ma/nepohoti.htm Elaine B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Negative pressure will cause (or increase) conductive loss. The negative pressure causes the drum to be " sucked in " (I think the technical term is retracted) and the drum cannot vibrate as well. Has anyone ever suggested tubes? Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi All ..... I was wondering if anyone on the list's child was involved in sensory integration? And if so could you share any information about what it is and why they are using it. Thank you, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 HI! I just wanted to share what a wonderful ENT we have. Granted, many people may not have the use for one like we do, but he has been a blessing for us. He has put two sets of tubes in Meghan's ears. She also has a fluctuating loss so she is monitored closely by the audiologist and himself. The really work together as a team for us. Meghan had a hearing drop last summer and we saw the ENT and audiologist weekly while she was on steroids and tapering off. We fax or mail info to each other about medicines, treatments and other issues. He will even call us at home (from his home) if there is something we feel is important to discuss. It's so nice to have someone we trust as an expert to be available to us when we need him. I know it sounds like I must be from a small town where it might be easier to get more personal service, but I'm talking about Children's Hospital in Philadelphia. Our ENT is also a part of the cochlear implant team. We are not at that point, but if we ever are, I'll be glad to of had a history with the doctor. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Ann, I used to work at a school for special ed. At the school, the occupational therapists (OTs) would use sensory integration with many of the PDD or autistic students. Some of the therapy consisted of wearing weighted vests, brushing techniques, pressure massages, bouncing, rolling.... Different things worked for different students. The idea was to help organize, or integrate their senses. This helped them to relax and/or focus better. Sometimes if a student was upset, they could go to the sensory integration room, but mostly they had scheduled sessions (besides having OT). These types of activities are usually done with younger children- preschool and elementary age. By middle school, if there are still sensory integration issues, an OT and teacher would try and look for more " socially acceptable " methods. In other words, finding something maybe the child could do himself that was as intrusive to a class as brushing, for this may embarrass an adolescent. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 and , Groton is wonderful. I still miss the area. Would love to move back there. Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 In a message dated 3/18/00 12:36:41 PM Eastern Standard Time, AVHear2@... writes: > Hi All ..... > > I was wondering if anyone on the list's child was involved in > sensory integration? And if so could you share any information about what > it > is and why they are using it. > Thank you, > Ann > Hi, , my son has sensory integration disorder. With him, he has a low functioning proprioceptive system and needs lots of stimulation to get feedback (for example, he spent almost an hour running down the length of the house this morning and then veering off to slam himself into the sofa!) after an activity like that, he relaxes and can sit still without too much effort. His vestibular system also needs a lot of stimulation and he is tactile defensive and has some oral motor issues with food also. His sense of smell is hyper active and his sense of taste is hypo active! He appears to have an extremely, almost dangerously high pain threshold. When he broke his arm this past summer, he only cried for about 5 mins and then at intervals over the next two days. He also has trouble discriminating hot from cold! Hate that. At bedtime a routine of bath, rubdown with lotion, wilbarger brushing method and joint compression and then deep pressure massage and he goes out like a light for HOURS. If I miss even one component, he can take up to two hours of tossing and turning before he settles. We started him with hippotherapy last week, for those not in the know, it is physical therapy on horseback! I thought it would be so much more fun for him, what I wasn't prepared for was how effective it was for his needs. He has low muscle tone in his trunk - VERY low - and he needed to use these muscles to balance himself. He rode around a little trail and had to throw balls in baskets, rings on poles, carry items from a to b and back, all while maintaining his balance. His vestibular system is off too, but we are not 100% sure if it is related to his ears or to his proprioceptive system. I remember after his CI surgery, he was very wobbly for about 3 days, even more so than usual. If you want to know A LOT about sensory integration, there is a very good book called Sensory Integration and the Child. I think you can get it through Kay's website. It is not phenomenally expensive, I think I paid $11 or $12 for it and i found it very informative, written in plain english, not too many fancy medical terms and easy to understand. After my son has a SI therapy or the hippotherapy, he is much more relaxed and more able to sit and attend. He is not ADD, but he moves constantly in the search for feedback for his proprioceptive system. If you need more info, let me know, hope the girls are doing well, Orla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 , My son has a sensorineural loss and this past Mon was the first time hes been to an ENT in over a year. We just wanted a CT scan done to rule things out. After this I'm sure we wont see the ENT again for a while. We use the dri aid container every night. We live in CT and it gets pretty humid in the summers but we continue putting it in the container throughout the year because of all the natural body oils that may get on it and just moisture that may build up from everyday activities. J. --- CMSteph98@... wrote: > > In a message dated 3/17/00 7:15:51 PM, > Listen-Uponelist writes: > > << When I first joined, I learned so much stuff. > From how > > earwax cause problems with hearing aids, and that > you have to dry the > > hearing aids out at night in little containers, >> > > Hi, > > 's right ear as wax that needs to come out. > The pediatrician could not > get it out so she just gave me a prescription for > cortisporin(sp). If anyone > has used this, does it work fast. Is there a over > the counter product that > will work well? Is it better to use it during the > day or at night when her > aids are not in. Also, those of you whose children > have a sensorineural > loss, do you still go to an ENT regularly, I haven't > found a need, but wasn't > sure if I needed to find one. > > One more, Those dry aid containers. Are they to be > used every night? I know > in the summer I use them more, but not daily. > Thanks. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 , Thats one of the few things I miss in CA, the little farmer stands of fruit and stuff you could get by the ocean. I used to go to Half Moon Bay up near San Fran and get my hubby artichokes, he loves those! But at least here I get go to the shacks and get my clams! Yummy!! --- " E. Mapa " wrote: > Over $2.00 is for the very premium. And today, with > the windows open to let > the breeze in, the sun shining in my windows, 20 > minutes from the beach and > fresh strawberries waiting for us at the Farmer's > Market - I love Calif. Gas > prices seemed to be higher in No Cal than So > Cal...was up there last > weekend. > > > >From: sbyrne1281@... > >Reply-To: Listen-Uponelist > >To: Listen-Uponelist > >Subject: Re: Digest Number 454 > >Date: Fri, 17 Mar 2000 21:28:01 EST > > > >$30-50? I am *so* jealous. We pay $85 at > Stanford. We're also paying > >over $2 a gallon for gas. California isn't always > everything it's cracked > >up to be. > > > >Sheri > > ______________________________________________________ > Get Your Private, Free Email at > http://www.hotmail.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 hMMM, We only had to get earwax removed once and the pediatric nurse dredged the ears with water using a waterpick. That was all; she has a physical on Tuesday so we'll see if anything else has come up. mary > >Reply-To: Listen-Uponelist >To: <Listen-Uponelist> >Subject: Re: Digest Number 454 >Date: Sat, 18 Mar 2000 17:02:00 -0800 > >Ashleigh has had an awful time with ear wax. We tried the cortisporin, but >it foamed and she complained it hurt. She ended up being put under general >anesthetic for the ENT to remove it. Although we didn't like that idea >there >was no alternative. And, she came out of it worse than the tube insertions! >Her equilibrium was off and ended up puking for 12 hours straight! >Since that one surgical removal though, no problems at all.... >karin > Re: Digest Number 454 > > > > From: CMSteph98@... > > > > > > In a message dated 3/17/00 7:15:51 PM, Listen-Uponelist writes: > > > > << When I first joined, I learned so much stuff. From how > > > > earwax cause problems with hearing aids, and that you have to dry the > > > > hearing aids out at night in little containers, >> > > > > Hi, > > > > 's right ear as wax that needs to come out. The pediatrician >could >not > > get it out so she just gave me a prescription for cortisporin(sp). If >anyone > > has used this, does it work fast. Is there a over the counter product >that > > will work well? Is it better to use it during the day or at night when >her > > aids are not in. Also, those of you whose children have a sensorineural > > loss, do you still go to an ENT regularly, I haven't found a need, but >wasn't > > sure if I needed to find one. > > > > One more, Those dry aid containers. Are they to be used every night? I >know > > in the summer I use them more, but not daily. Thanks. > > > > > > > > ------------------------------------------------------------------------ > > PERFORM CPR ON YOUR APR! > > Get a NextCard Visa, in 30 seconds! Get rates as low as > > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > > Apply NOW! > > http://click./1/2121/1/_/440511/_/953385018/ > > ------------------------------------------------------------------------ > > > > All messages posted to this list are private and confidential. Each >post >is the intellectual property of the author and therefore subject to >copyright restrictions. > > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 , The subs sure are something arent they? I've gone up to Foxwoods a few times but I'm too cheap to gamble Unfortunately there was a big fire in downtown Mystic 2 weeks ago and it wiped out 8 businesses. It took quite a bit of time to put it out, the fire just moved too quickly. We may be in Southern CA for a week or so this summer, not sure as how thats going to work out at the moment, but if we do make it out maybe we can meet up somewhere? We're just enjoying things one day at a time, you know? But we love Groton also, and plan on settling out here. Mainly because we're just smitten with the area but 's services are great here and we love the Groton school system, they've been really good to us. --- " E. Mapa " wrote: > I loved Groton the one time I went there. I was > right by one of the SSNs by > the Thames River...the first time I saw a sub > floating by someone's office > window! I spent the first evening at Fox Woods, and > the second at Mystic > and stayed at a great Bed and Breakfast with a round > barn. Was up in > Monterey last weekend and gone all this week for my > work; and the chowder up > there was good every place we went. The artichokes > were four for $5.00...I > thought a little high. > > You sound like you're doing well. > > > > > ______________________________________________________ > Get Your Private, Free Email at > http://www.hotmail.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Eleanor, When were you here? Its definitely gorgeous here. I lived in Massachusetts until the age of 12 and still have most family there so I've always considered New England my home. This is definitely the best place we've ever been stationed! J. --- LadyJane50@... wrote: > and , > > Groton is wonderful. I still miss the area. > Would love to move back there. > > Eleanor > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Ashleigh has had an awful time with ear wax. We tried the cortisporin, but it foamed and she complained it hurt. She ended up being put under general anesthetic for the ENT to remove it. Although we didn't like that idea there was no alternative. And, she came out of it worse than the tube insertions! Her equilibrium was off and ended up puking for 12 hours straight! Since that one surgical removal though, no problems at all.... karin Re: Digest Number 454 > From: CMSteph98@... > > > In a message dated 3/17/00 7:15:51 PM, Listen-Uponelist writes: > > << When I first joined, I learned so much stuff. From how > > earwax cause problems with hearing aids, and that you have to dry the > > hearing aids out at night in little containers, >> > > Hi, > > 's right ear as wax that needs to come out. The pediatrician could not > get it out so she just gave me a prescription for cortisporin(sp). If anyone > has used this, does it work fast. Is there a over the counter product that > will work well? Is it better to use it during the day or at night when her > aids are not in. Also, those of you whose children have a sensorineural > loss, do you still go to an ENT regularly, I haven't found a need, but wasn't > sure if I needed to find one. > > One more, Those dry aid containers. Are they to be used every night? I know > in the summer I use them more, but not daily. Thanks. > > > > ------------------------------------------------------------------------ > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2121/1/_/440511/_/953385018/ > ------------------------------------------------------------------------ > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi, Just my .02 worth.. I pay $22.. for 2 earmolds and I pay $1.47 for gas in Utah.. My husband who is a truck driver seen gas advertised in Nevada for 2.02 unlead, 2.22 midgrade and 2.42 premium.... Tahna lisa johansen wrote: > > > Wow Sheri, glad we dont live in Cali anymore. We're > paying $56 and $1.69 for gas in CT. > > J. > > --- sbyrne1281@... wrote: > > $30-50? I am *so* jealous. We pay $85 at Stanford. > > We're also paying over $2 a gallon for gas. > > California isn't always everything it's cracked up > > to be. > > > > Sheri > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 At 07:31 AM 3/18/00 -0600, you wrote: > > > > 's right ear as wax that needs to come out. The pediatrician could >not > > get it out so she just gave me a prescription for cortisporin(sp). If >anyone > > has used this, does it work fast. Is there a over the counter product >that > > will work well? > >I've never heard of that prescribed for ear wax before. It's an antibiotic >used to treat external ear infections. We just use the stuff you can >purchase at the drug store. When we use it with JD, we do it just before >bathtime. If the earwax buildup is really bad and it's really hard, before >bedtime. One thing we have used sparingly, but is particularly effective at the removal of hardened built-up ear wax, is Colace. It is a stool softener, but it will dissolve ear wax. I wouldn't use it on a regular basis, just when the OTC ear wax stuff isn't strong enough. Chris << Christofer deHahn.........Information Technology Manager >> << Chiliad Publishing.............Amherst, Massachusetts, USA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Orla, Thank you so much for you response to my question about sensory integration. I will tell you that this was brought up because my daughter had a temper tantrum because she wanted to skip back to class and the teacher wanted her to walk.....hmmmm....sounds like a typical 6 year old stubborn thing to me...but I will talk to the OT and see what they have to say. Thanks again... Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 We use the Dry and Store, and it has been great, you can get one thru your audie. Debbie -- ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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