Seizures

[Guest guest]

Magnesium, Calcium and Potassium all play a large role in nervous system

health. Lack of any of the three can cause seizures, if I remember

correctly. Magnesium is depleted during stress, along with Vitamin D which

is what helps calcium absorbtion.

-Lana

On 8/10/06, haecklers <haecklers@...> wrote:

>

> Magnesium supplementation might help as well, as I was looking for

> references for the lecithin supplements, I came across several about

> magnesium reducing the frequency of seizures, here's a typical

> reference

>

> http://www.life-enthusiast.com/twilight/research_magnesiumchloride.htm

>

[Guest guest]

--- In , " haecklers " <haecklers@...>

wrote:

>

> Magnesium supplementation might help as well...

Anecdotally, I had a good friend with epilepsy that began after an

alleged viral infection. He'd been on a three-year merry-go-round of

doctors and pharmaceuticals when we met. High-fat *really* helped.

Coconut cream and egg yolk shakes, heh. Over the next three years,

after increasing fats, he was able to greatly reduce meds, and

hopefully has quit them. He has extremely low body fat.

Also, he frequently got those eyelid twitches that would subside with

magnesium supplementation. Skipping meals/low blood sugar led to

seizures every time. FWIW Aajonus says you can stop seizures with

(raw) adequate fat intake.

B.

[Guest guest]

My 21 yr old. son is epileptic, diagnosed at age 16. From age 16 to recently, he

experienced grand mal seizures on the average of once per year. (He has never

been on seizure medication.)Shockingly two months ago, he began having grand mal

seizures 3 to 4 times per week along with hundreds of petit mal seizures during

the same period. He was seen by a very good Naturopathic doctor in our area who

did a Body Scan on him and found that he is deficient in Vitamin D, magnesium

and has " malabsorption syndrome " . For six weeks now, he's been on a gluten-free

diet and taking a variety of supplements daily to address these deficiencies.

However, the seizures stopped the day he started taking valerian root (capsule

form made by Nature's Way with 0.8% valerenic acids). He takes 3 capsules in the

morning and 3 in the evening.(He takes one more than the recommended amount

because of his weight.) Since last week, he also starting using " The Super Brain

Unit " designed by Dr. Philpott, M.D., a proponent of magnetic therapy. I

would suggest she considers Valerian root and the Super Brain Unit. I wish her

well!!!

Sal

Seizures

The daughter of a friend of mine is having seizures after a car

accident, and I'm wondering what to recommend besides a low-carb,

high-fat diet. Any thoughts? References?

-

[Guest guest]

The daughter of a friend of mine is having seizures after a car

accident, and I'm wondering what to recommend besides a low-carb,

high-fat diet. Any thoughts? References?

-

OK, I'm going to beat Heidi's drum and suggest gluten. After reading " Dangerous

Grains " we now understand why so many of my husband's family members have

epileptic or " unexplained " seizures His sister died from her last seizure, in

her 40's. He and our children are the only ones in our family avoiding gluten,

since being diagnosed with Celiac/gluten intolerance, but several of them suffer

with these seizures. Now, unfortunately, it's his neices and nephews which are

starting to have them, all in their 20's/30's.

Rebekah

---------------------------------

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[Guest guest]

I'm wondering if it's still the magnesium deficiency/GABA deficiency

thing. Eating something that causes an immune reaction and

inflammation of the gut and destroys the balance of probiotics that

protect each other and the mucus lining and produce the GABA, while

also interfering with the absorption of minerals like magnesium; and

the stress of the immune reaction further depletes the magnesium; so

eating any allergen, whether it be gluten or pasteurized dairy or

chocolate could cause the same magnesium/GABA crash.

--- In , Rebekah Dowd <rmd1019@...>

wrote:

>>

> OK, I'm going to beat Heidi's drum and suggest gluten. After

reading " Dangerous Grains " we now understand why so many of my

husband's family members have epileptic or " unexplained " seizures

His sister died from her last seizure, in her 40's. He and our

children are the only ones in our family avoiding gluten, since

being diagnosed with Celiac/gluten intolerance, but several of them

suffer with these seizures. Now, unfortunately, it's his neices and

nephews which are starting to have them, all in their 20's/30's.

>

> Rebekah

>

>

> ---------------------------------

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call rates.

>

>

[Guest guest]

, was there a head injury?

http://www.alternativementalhealth.com/articles/headinjury.htm

Makes sense, Sal! Natural active constituents of valerian is what is

pharmaceutically reproduced for diazapam (valium) an anti seizure medication.

Gluten too. High blood plasma glutamic acid vs. low taurine (made from GABA)

found in these seizure studies.

http://www.lef.org/protocols/abstracts/abstr-txt/t-abstr-142.html

Wanita

My 21 yr old. son is epileptic, diagnosed at age 16. From age 16 to recently, he

experienced grand mal seizures on the average of once per year. (He has never

been on seizure medication.)Shockingly two months ago, he began having grand mal

seizures 3 to 4 times per week along with hundreds of petit mal seizures during

the same period. He was seen by a very good Naturopathic doctor in our area who

did a Body Scan on him and found that he is deficient in Vitamin D, magnesium

and has " malabsorption syndrome " . For six weeks now, he's been on a gluten-free

diet and taking a variety of supplements daily to address these deficiencies.

However, the seizures stopped the day he started taking valerian root (capsule

form made by Nature's Way with 0.8% valerenic acids). He takes 3 capsules in the

morning and 3 in the evening.(He takes one more than the recommended amount

because of his weight.) Since last week, he also starting using " The Super Brain

Unit " designed by Dr.

Philpott, M.D., a proponent of magnetic therapy. I would suggest she considers

Valerian root and the Super Brain Unit. I wish her well!!!

Sal

Seizures

The daughter of a friend of mine is having seizures after a car

accident, and I'm wondering what to recommend besides a low-carb,

high-fat diet. Any thoughts? References?

-

[Guest guest]

Funny you should mention glutamic acid - we're currently having a mini

discussion on sugar types and fermentation on one of my other lists.

Apparently glucose turns into glutamic acid where fructose turns into acetic

acid. I wonder if more fructose based ferments would be in order?

-Lana

On 8/10/06, Wanita <wanitawa@...> wrote:

>

> , was there a head injury?

> http://www.alternativementalhealth.com/articles/headinjury.htm

>

> Makes sense, Sal! Natural active constituents of valerian is what is

> pharmaceutically reproduced for diazapam (valium) an anti seizure

> medication. Gluten too. High blood plasma glutamic acid vs. low taurine

> (made from GABA) found in these seizure studies.

> http://www.lef.org/protocols/abstracts/abstr-txt/t-abstr-142.html

>

> Wanita

>

[Guest guest]

Renate-

>You probably already know this, but raw milk contains a lot to aid in

>nervous system growth.

I'm pretty sure the daughter's already drinking raw milk, as her

mom's a dairy farmer.

>I have a distant cousin whose daughter lost some 80% of her brain at 2

>months from an anyrism. They've tried all kinds of stuff to help her

>brain re-grow and heal. And they've had some success, she's not a

>vegetable in fact they have hopes of getting her somewhat mobile on

>her own and she can communicate a little.

Jeez, what a nightmare!

>They even found some outfit

>that will sell you sheep's brain to inject into the kids - somehow the

>injected brain cells help the body to re-grow brain cells.

Sounds positively ensteinian!

-

[Guest guest]

Renate-

>As far as the GABA supplementation, as far as I could tell from my

>brief review, it's more likely to be a problem for the 50% of people

>born with epilepsy, though keeping the GABA levels up will certainly

>help those who have seizures from injury.

Hmm, maybe supplementation with l-theanine might help, then.

-

[Guest guest]

Thanks Carol. I will try those things. Anything to help is appreciated.

-- [ ] seizures

A few of my thoughts; does anyone else have any input on these issues?

To the parent who is stressed and having seizures: I've read some studies

that indicate that B6 can eliminate seizures in autistic children and in

non-autistic people. You may want to research this for yourself, and check

on suggested dosages. It seems to me that ASD kids and their parents seem to

need extra B vitamins in general (and they are good for stress!) Dr. Bernard

Rimland believed that many ASD kids showed significant improvement with the

addition of B6. If you continue to have problems with seizures, there's also

a ketagenic diet (see s Hopkins for info), but it MUST be done under the

close supervision of a knowledgable doctor. I have also read that substances

such as MSG and artificial sugar substitutes such as aspartame (found in

diet sodas and other products) can also trigger seizures in people who are

susceptible- and it makes sense to me that we, as parents, would have some

of the same weaknesses as our children.

Also, for the teen who won't take fish oils;perhaps you would have more

success with some other form of EFAs. What do you think about flaxseed oil?

Or perhaps one of the algae oils (Nueromins, etc). I give my son Barleans

capsules, and I think that it makes a big difference in his behaviours. He

seems much steadier, much less moody. Have you tried Coremega? What about

those fish oil capsules that have a bit of lemon or orange flavor added, and

are supposed to prevent " fish burps " ?

You may want to have some additional allergy testing done. Soy is something

that many people are allergic to, and I've heard that some people who

respond to the Feingold diet can't tolerate almond milk, they get more hyper

Sometimes food avoidance is a protective mechanism to avoid allergens. If

you do some additional testing, you may have a better idea of which foods

are truly acceptable for your teen.

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[Guest guest]

Hi Penny,My son, who is now 19, had petit mal seizures when he was younger. These seizures were pretty mild. He would just stare off into space for 2 to 30 seconds, then emerge somewhat confused. He had them (that we knew about) from about age 8 to about age 16. Then he started getting clean EEGs. He hasn't had one since. Has your son had an EEG? I know that the time when you're tracking alll this down is tough. If I can answer any questions for you, I'd be happy to try.LizOn Jul 6, 2007, at 7:37 PM, coffeenut5 wrote:I was wondering if anyone's AS child has experienced seizures, and ifso, can you tell me exactly how it happens? My 4 yr old son has beengetting head pains on and off, and doctors tell me it may be seizures,so we're in the process of trying to find out. I would like to heardetail of how one happens, so I can determine if they seem like them,or if it's something else entirely. He will grab his head, sometimeseyes tear up and get glassy and/or red, and sometimes has lightsensitivity as well. Bright lights sometimes cause this, also cameraflash, computer, etc. (And sometimes for seemingly no reason, also).I'd like to hear from other parents about this, and your experienceswith seizures in your dear children. Thank you.Penny

[Guest guest]

Hi Liz,

These episodes started out lasting anywhere from 5 to 30 seconds. Now

they're just a few seconds, and sometimes accompanied by head pain.

He's due to have an EEG on the 17th. Did your son have head pain while

having those episodes? And was he sensitive to light, or bothered by

bright or flashing lights? Sometimes he'll get them, and say " help

me " , or " I want to go where it's dark. " I feel so badly for him. And

lastly, what did your son's doctor do for the seizures as far as

treatment? Thanks for responding.

Penny

>

> > I was wondering if anyone's AS child has experienced seizures, and if

> > so, can you tell me exactly how it happens? My 4 yr old son has been

> > getting head pains on and off, and doctors tell me it may be seizures,

> > so we're in the process of trying to find out. I would like to hear

> > detail of how one happens, so I can determine if they seem like them,

> > or if it's something else entirely. He will grab his head, sometimes

> > eyes tear up and get glassy and/or red, and sometimes has light

> > sensitivity as well. Bright lights sometimes cause this, also camera

> > flash, computer, etc. (And sometimes for seemingly no reason, also).

> > I'd like to hear from other parents about this, and your experiences

> > with seizures in your dear children. Thank you.

> >

> > Penny

> >

> >

> >

>

[Guest guest]

>

> having multiple seizures every

> > day,neuro can't seem to find a reason for the sizures,but

put me on

> > Lamyctal anyway,said he did'nt want me to hurt myself or

someone else

> > when I'm driving,also said I should'nt be driving,but thats

how i make

> > my living,as a dump truck driver..I know,not very lady-like

[8-}] lol

>

> Oh, how awful about the seizures. I have epilepsy so I can relate.

How

> much lamictal does he have you on? I'm on 600, the max. It does

really

> help. I know when I need my afternoon dose, I start getting very

> confused and dropping words and such (those are my partial

seizures.)

>

> Personally I think you should be on

> more, lamictal is okay, but I'm on phenobarb and lyrica, too.

(Lyrica's

> for pain, but my neuro said it works for seizures, too.)

>

> Oh, and one of docs is absolutely positive that inflammation

triggers

> seizures (as am I,) so I think that it'd be good if you could

control

> that. More pred? How much are you on? Maybe another anti-

inflammatory,

> too, OTC or prescription...

>

> I really hope you get some relief, please consider the stuff

above...

>

> Take care,

>

>

>

My Neuro has me on 100 mg Lamyctal to see if it slows the seizures

down.I take 20 mg prednisone daily,it really does'nt help either.My

PCP says i'm a real puzzle,lol

Are tremors normal as well?with the seizures and when waking up i

have major tremors.

thank you ,i will check into that ....take care sweety,kathy

[Guest guest]

" these are the names of some nutrients which may help if given in

samll doses;

Magnesium (found in all green food; Vitamin B6; Vitamin B1 Thiamine;

Vitamin B 12; as mentioned previoulsy

I would recommend the parents contact a nutritonist to work out a

diet; she may have subtle mineral or electroylyte imbbalances;

The best thing about low dose vitamins is; they always help health;

and they are completey safe; I'd try the kirkmans' B-Complex powder !

(I could help you with her diet; anne_white53@...; have the

mother contact me; 'this is serious) Anne White 'no sales " ...thank-u

> >

> > A friend of mine has a daughter (almost 5 years old) that is on 2

> types

> > of seizure meds (topamax and keppra). The doctor is gonna throw

in a

> > third one med if the 100mg of topamax doesn't work. She has

absence

> > seizures. Before she started the meds she was having around 90-

100

> > seizures a day (even in her sleep). The meds have helped some,

she's

> > not having as many now but the ones she does have are longer.

> >

> > She's now having problems with body odor. Does that mean she's

not

> > tolerating the drugs? My friend is a wreck right now with all the

> meds

> > and nothing is helping her daughter and the thought of another

med!

> >

> > Thanks

> >

> > Amy

>

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

Thanks everyone for your help! I gave her all the info and she's

going to get an appt with her ped. She's going to look into having a

hair test done and try to see a nutritionist. Her daughter is 5 years

old (bday today!) and weighs around 75 pounds. So we think seeing a

nutritionist will help alot! Another thing about her is she's always

hungry. I wonder if that might be a sign of something.

Thanks

Amy

> > >

> > > A friend of mine has a daughter (almost 5 years old) that is on

2

> > types

> > > of seizure meds (topamax and keppra). The doctor is gonna throw

> in a

> > > third one med if the 100mg of topamax doesn't work. She has

> absence

> > > seizures. Before she started the meds she was having around 90-

> 100

> > > seizures a day (even in her sleep). The meds have helped some,

> she's

> > > not having as many now but the ones she does have are longer.

> > >

> > > She's now having problems with body odor. Does that mean she's

> not

> > > tolerating the drugs? My friend is a wreck right now with all

the

> > meds

> > > and nothing is helping her daughter and the thought of another

> med!

> > >

> > > Thanks

> > >

> > > Amy

> >

> >

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

[Guest guest]

I hope the parents don't allow a third AED. If two

don't work, why would three! I can only imagine the

side effects on this poor child. My son suffered

cognitively,had increases in seizure frequency and

severity on certain AEd's. Unfortunately, it is

nothing but one guessing game with neuros.

At the top of the list this child should get all types

of allergy tests done, amino/organic acid (plasma and

urine), stool testing, and try going gluten and casein

free. I agree to add the B vitamins beginning with

B6/mag slowly. Most AEd's deplete B6 so this can only

help. The neuro will of course not offer this info to

the parents. We have been battling seizures with my 4

yr old son nearly all his life. Please let the

parents know they can email directly if they have any

questions. Best of luck,

--- Amy <rnanjnc@...> wrote:

> Thanks everyone for your help! I gave her all the

> info and she's

> going to get an appt with her ped. She's going to

> look into having a

> hair test done and try to see a nutritionist. Her

> daughter is 5 years

> old (bday today!) and weighs around 75 pounds. So we

> think seeing a

> nutritionist will help alot! Another thing about her

> is she's always

> hungry. I wonder if that might be a sign of

> something.

>

> Thanks

>

> Amy

>

>

>

>

>

>

>

> > > >

> > > > A friend of mine has a daughter (almost 5

> years old) that is on

> 2

> > > types

> > > > of seizure meds (topamax and keppra). The

> doctor is gonna throw

> > in a

> > > > third one med if the 100mg of topamax doesn't

> work. She has

> > absence

> > > > seizures. Before she started the meds she was

> having around 90-

> > 100

> > > > seizures a day (even in her sleep). The meds

> have helped some,

> > she's

> > > > not having as many now but the ones she does

> have are longer.

> > > >

> > > > She's now having problems with body odor. Does

> that mean she's

> > not

> > > > tolerating the drugs? My friend is a wreck

> right now with all

> the

> > > meds

> > > > and nothing is helping her daughter and the

> thought of another

> > med!

> > > >

> > > > Thanks

> > > >

> > > > Amy

> > >

> > >

> > >

> > >

> > > _______________________________________________

> > > Join Excite! - http://www.excite.com

> > > The most personalized portal on the Web!

> > >

> >

>

>

>

________________________________________________________________________________\

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[Guest guest]

Dear Amy; Please send her this information if you can; ps those drugs

cause Weight Gain also; so may be due in part to that also; poor kid @

Certain drugs such as Dilantin depelte FOLIC ACID; called Folate.

You may want to do a stool test to see if she has internal parasites;

I know people don't want to think of their child as having internal

parasites but wouldn't it be better to know and get rid of the

parasites then let the child suffer?

for examples; any type of parasite can acutally cause seizures; and

being hungry CAN be a sing of parasites.

Parasites also deplete VITAMIN B12 big time; do a stool test a.s.a.p.

ps Did yuou know even jUST CONSTIPATION CAN CAUSE A " SEIXURE IN A

YOUNG CHILD? I'd get her on a daily bowl of Oatmeal imemdiealty.

may sound like a small step but one has to begin somewhere. Thank U.

> > > > >

> > > > > A friend of mine has a daughter (almost 5

> > years old) that is on

> > 2

> > > > types

> > > > > of seizure meds (topamax and keppra). The

> > doctor is gonna throw

> > > in a

> > > > > third one med if the 100mg of topamax doesn't

> > work. She has

> > > absence

> > > > > seizures. Before she started the meds she was

> > having around 90-

> > > 100

> > > > > seizures a day (even in her sleep). The meds

> > have helped some,

> > > she's

> > > > > not having as many now but the ones she does

> > have are longer.

> > > > >

> > > > > She's now having problems with body odor. Does

> > that mean she's

> > > not

> > > > > tolerating the drugs? My friend is a wreck

> > right now with all

> > the

> > > > meds

> > > > > and nothing is helping her daughter and the

> > thought of another

> > > med!

> > > > >

> > > > > Thanks

> > > > >

> > > > > Amy

> > > >

> > > >

> > > >

> > > >

> > > > _______________________________________________

> > > > Join Excite! - http://www.excite.com

> > > > The most personalized portal on the Web!

> > > >

> > >

> >

> >

> >

>

>

>

>

______________________________________________________________________

______________

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> know-it-all with Mobile. Try it now.

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>

[Guest guest]

> > > > > Some find the ketogenic diet helpful.

The Atkins diet seems to work just as well and is easier to comply with. Takes

a couple of

weeks to work.

If you can make the meds work that is far easier than any diet.

Andy

[Guest guest]

passing along

_____

Subject: FW: seizures

passing this along.

Toni

_____

From: GLENNA HAMMOND [mailto:duncan-dimitri@...]

Sent: Wednesday, December 19, 2007 9:46 AM

W. Fauria; Toni , RAINWEB.ORG; mary boettcher; Sanderfer;

linda dosey; joyce; Jnranthis@...; jan; ISABEL C COOL; christen lind;

angella falco

Subject: seizures

i have a contact for someone who is studing seizures. if you are interested

contact lillan waters about the seizure study @ family ties 1-866-326-8437.

Glenna Hammond

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[Guest guest]

passing along

_____

Subject: FW: seizures

passing this along.

Toni

_____

From: GLENNA HAMMOND [mailto:duncan-dimitri@...]

Sent: Wednesday, December 19, 2007 9:46 AM

W. Fauria; Toni , RAINWEB.ORG; mary boettcher; Sanderfer;

linda dosey; joyce; Jnranthis@...; jan; ISABEL C COOL; christen lind;

angella falco

Subject: seizures

i have a contact for someone who is studing seizures. if you are interested

contact lillan waters about the seizure study @ family ties 1-866-326-8437.

Glenna Hammond

_____

Don't get caught with egg on your face. Play Chicktionary! Check it out!

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[Guest guest]

My kids seizures were triggered by calcium. I had to make sure all foods

were not calcium fortified and avoid all milk substitues too. After a

year of healing my kids can tolerate calcium rich foods like green leafy

vegetables but not calcium fortified anything.

bty18626645 wrote:

> Hi I suspect that my dd is having small seizures what we used to call

> petit mal and I wondered what people think are the best ways of getting

> help with these.I am not in the US but I would be interested to know

> what medications people have used successfully with these types of

> seizures.I am hoping that there is something that could control the

> fits but not act as a chemical cosh if you know what I mean? Any

> thoughts? Have you had your child diagnosed with an EEG or any other

> way? Any input very gratefully received em in UK

>

>

> ------------------------------------

>

> =======================================================

>

[Guest guest]

My dd had 3 EEG's and they said she has some stuff going on that

suggests that she has seizuress.. The only thing I see are mood

swings and she doesnt sleep. Most times the doctors say the behavours

aren't due to the seizures. <sigh> She has gotten worse with

Trileptal and I saw no good come from Gabapentin. The best results

thus far have been from Diflucan and other yeast fighters and from

doing rounds of ALA. I do very low doses with the ALA.... per Andy's

recommendation.

On Nov 4, 2008, at 3:33 AM, bty18626645 wrote:

> Hi I suspect that my dd is having small seizures what we used to call

> petit mal and I wondered what people think are the best ways of

> getting

> help with these.I am not in the US but I would be interested to know

> what medications people have used successfully with these types of

> seizures.I am hoping that there is something that could control the

> fits but not act as a chemical cosh if you know what I mean? Any

> thoughts? Have you had your child diagnosed with an EEG or any other

> way? Any input very gratefully received em in UK

>

>

>

[Guest guest]

I use trileptal. I like it, it controls his seizures well. We had to do an

increase and that magnified alot of his behaviors so we had to back off a bit,

but as far as managing the seizures it does a good job. He had a sleep deprived

EEG and he had no seizures. We have also used Keppra but it was terrible. He had

all these behaviors, bitting, kicking, hitting things that have never been a big

problem and he had alot of mood swings. One minute fine the next minute

terrible. It is hard because non autisic children are hard to find the right

seizure meds for, you throw in autism and it makes it ten times harder,

unfortunatly its hard. Just my experiance, yours could be different and others

could have had good luck with Keppra.

Best of luck to you

a

kkbmc@...

>

> what seizures meds has anyone ever used, and have ANY ever worked?

>

[Guest guest]

Trileptal made by dd sooo much worse. Andy said it is not good for

absence seizures.

On May 14, 2009, at 10:01 AM, kkbmc wrote:

>

>

>

> I use trileptal. I like it, it controls his seizures well. We had

> to do an increase and that magnified alot of his behaviors so we

> had to back off a bit, but as far as managing the seizures it does

> a good job. He had a sleep deprived EEG and he had no seizures. We

> have also used Keppra but it was terrible. He had all these

> behaviors, bitting, kicking, hitting things that have never been a

> big problem and he had alot of mood swings. One minute fine the

> next minute terrible. It is hard because non autisic children are

> hard to find the right seizure meds for, you throw in autism and it

> makes it ten times harder, unfortunatly its hard. Just my

> experiance, yours could be different and others could have had good

> luck with Keppra.

>

> Best of luck to you

> a

> kkbmc@...

>

>

> >

> > what seizures meds has anyone ever used, and have ANY ever worked?

> >

>

>

>

[Guest guest]

All five we tried were terrible for us.

Started with Trileptal - he would start dropping on the floor and unable to move

(all cramped up) for a few minutes from that ne.

Depakote - controlled seizures but was lethargic at the target level. Started

poking his eyes out on that one. I heard it can deplete Ca? Not sure.

Topomax: we had more generalized seizures from the Topomax. Quit it immediately.

Lamictal: helped first, at a very low dose, then as we increased he became

uncontrollable, giggling like crazy, culd not even go for a walk so out of

control. Could not follow directions on that one at all. Did make him happier

though, overall.

Klonopin: helps with seizure control but we are now backing off due to side

effects such as throwing, kicking,uncontrollable obsessive throwing of anything.

More affectionate on it though and responsive - we have not been noting any

seziures lately in a way that he would not respond (we use ID touch head. He

always touches head now.)On the higeher dose he seemed to be having more

seizures and even pee accidents outside. But he still has his episodic events

that seem like seizures (he would have sometimes pee or bm accidents) as he does

not seem to know what he is doing, appeares confused, chomps, twists own legs,

hits, and have lately been doing some head banging too. This happens 4-5 times a

day and 1-2 at night. Not sure if these are seizures or from the withdrawal as

we are tapering the Klonopin, or the increased Clonidine at the same time (for

anxiety and sleep). Or the higher pollen count? Or fertilizer on the ground? Or

the moon? :-)

????????

We are thinking about a form of Ativan to use next that could be compounded and

we could avoid possible side effects due to the fillers not necessarily the drug

itself.

Each kid is different....differrent issues...so the drugs will effect them

differently, I have been told.

Best of luck to you - hope you have more of it than we did!!

> > >

> > > what seizures meds has anyone ever used, and have ANY ever worked?

> > >

> >

> >

> >

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