Re: lets figure out what Cassy has.

[Guest guest]

.My 3 yr.old has alot of trouble with sleep.She can wake up at 7:30 am,and

at night when we lay down at 9 or before,it is sometimes horendous to get her to

sleep.She dosnt take naps anymore,It got to the point were Id have to physically

try and hold her down,and shed fight it everystep of the way.Now Shes stronger

than me so its something I cannot do.At night if I put her to bed with her sis

it dosnt matter how tired she seems,by 3 in the mornin shes in our bed.We have a

strict routine.The 3 of us get up together to get my 9 yr.old off to school.I

try to keep routine.I have learned alot from my nephew and SIL,and from

researching.My mom says dont worry she'll outgrow it but im not to sure.Some

things get easier,but some get tougher.I feel bad cuz here I am trying to hunt

down my own dx,so I can be here to be a good mom so the thought of hunting 2

dx's together is so overwelming.Sometimes the quilt eats me up.I know shes

special in many ways,but I cant help but know a

dx would help in many ways.

[dixmstx@...] wrote:

Plain old children's benadryl works wonders. Kaleb took it at bedtime and it

helped with his allergies and helped him fall asleep. He takes 50mg (adult

dose)now since he weighs 95 lbs and he takes 3 to 6mg of melatonin when needed

but our pedi told him not to exceed 6 and to take the 3 and try to get by with

that then take the other 3 if it doesn't work. He has a problem shutting down.

Always has. When he was a newborn he would sleep from midnight to 6am and then 2

hrs during the day(2 ihr naps) all my friends had these babies that layed down

for 12 hrs at night and would sleep half the day. Meg's able to put herself to

sleep so it's alot better with her. That's why Kaleb slept with me till he was 7

is because I'd fall asleep before him and didn't feel safe with him awake so he

stayed in my room with me.

cassandra workmn wrote:

Hey .Im so worried.I hope everything is ok.Please let us know how

tomorow goes,and tuesday.Oh.your poor baby.Shes had a tough time hu?What a

trooper! GETS it from her mommy!Dont we all just have wonderful kids on here?Me

and my sis in law were talkn about her journey to get her son an accurate

dx,PDD(pervasive development disorder(sp?) an autism spectrum.She was saying how

in the beggining she felt kinda bad,like sorry for him and her,and she was very

sensitive about what people said to her about him.You know like family,or when

they go out.Now she just says hes autistic,or go to hell.lol.Did anyone watch

Oprah yesterday?it was about Autism.I think my 3 yr.old possibly has a spectrum

of autism,do you think I need to pursue a dx?I refuse to medicate her.My sis in

law gives my nephew melatonin.When she was here I gave my daughter a tiny amount

compared to what he takes and she was way to sleepy.It is just so hard,shes a

handful,and taking her out is usually

very hard.She

screams and crys and its hard.

[dixmstx@...] wrote:

Yes. They thought I ws kidding when I said I have my medical records since 1999

but in truth, I actually have them from 1996. I was even having " wierd stuff "

back then.

Had my Radioactive uptake test today. I asked how it looked and he said, I

really didn't take a look Tony was developing them(It's a digital system) So

there's no telling what it shows. I go back tomorrow morning at 9:30am for the

geiger counter testTo see how much radioactive material is still in the thyroid)

And will hopefully know something by Tuesday.

is doing alot better. The pediatric periodontist milked her saliva gland

and it was flowing so he then looked around her teeth. The dentist had only

looked at the lower jaw and knew if anything needed to be done it would probably

be traumatic and this guy uses the conscious sedation or twilight meds so the

kids are rested and don't remember. He touched one of her top teeth and it

wiggled, it was soo abcessed she had a black eye from swelling around her eye.

The dentist sent us across the street to her pediatrician and he....

[Guest guest]

How old is your daughter? Does she have outbursts as well?hugsSharon Re: lets figure out what Cassy has.

oh my.This is your ex your talkn about?6-8 beers at night?My fiance was recently dx'd bi-polar.He use to drink(about a lil over 4 yrs.ago)then I jus thought he was crazy.lol.for drinkn like a fish it was a rocky road for us.He is constantly up and down even with meds.No abuse,but I swear sometimes I really feel like im on a roller coaster ride with him and his moods.My daughter is very clingy if she isnt around someone she is close with it seems to effect her alot.The other day it took me 15 minutes to go the doc cuz she was so upset I was leaving I literally had to tear her off my leg,sit her down and explain.Sometimes it takes an hr. To get her ready everything we do is a process or chore.Its exhausting.She is very whiney,if something isnt right to her it can be a half hr. To an hr. Of insanity.screaming, crying,throwing things.I always hear,whats wrong with her,or she needs disciplined, or shes to attached.I have learned to just ignore it Im workn with her

alot but it is

difficult,to say the least.hugzzz

[dixmstxyahoo (DOT) com] wrote:

I also forgot to say, if you think there is something wrong pursue it. Kaleb's Elementary school counselor had the nerve to say to me when I was pregnant with Meg "That is soo good, now you won't concentrate on Kaleb as much" I knew something was wrong with Kaleb. He started reading at 2 1/2 and knew about sesquential numbers, things you really can't teach he got, but he still can't tie his shoes the way you and I do. I pushed and pushed, made them test him then took him to a neuropsychologist that dx'd himin the autistic spectrum. The schools attitude was as long as he making good grades, why rock the boat. I spoke to our regions special ed coordinator and found out my rights, gifted children fall under special ed also, and he was in speech so the had do do an ARD for him. Finally I took him to a Psychologist in Dallas that was the regions expert on Asperger's and had him evaluated.

All I can tell you is to go with your gut. You'll have people tell you to let it go, why make a big deal about it but I firmly believe the reason Kaleb is able to function in school as well as he does instead of being anti-social is because I pushed for the best treatment options. And we did use Concerta for awhile, only when his grades were dropping and he could not concentrate. When I divorced his dad, he tried to put it in the divorce decree I could not take Kaleb to anymore specialist. His lawyer told me that. I told him I would report both of them to child endangerment because Kaleb's treatment was overseen by a Dr and I felt his opinion was better than their's. He said "Oh it's a Dr not a psychologist. " And I said Yea, I guess must have tleft that out. He didn't believe in any of the treatments. But then a Dr had dx'd him with bi-polar and he refused to take the meds. He liked the manic parts and he would drink 6-8 beers at night to put himself to sleep.

cassandra workmn <payngabby72@ yahoo.com> wrote:

Hey .Im so worried.I hope everything is ok.Please let us know how tomorow goes,and tuesday.Oh.your poor baby.Shes had a tough time hu?What a trooper! GETS it from her mommy!Dont we all just have wonderful kids on here?Me and my sis in law were talkn about her journey to get her son an accurate dx,PDD(pervasive development disorder(sp? ) an autism spectrum.She was saying how in the beggining she felt kinda bad,like sorry for him and her,and she was very sensitive about what people said to her about him.You know like family,or when they go out.Now she just says hes autistic,or go to hell.lol.Did anyone watch Oprah yesterday?it was about Autism.I think my 3 yr.old possibly has a spectrum of autism,do you think I need to pursue a dx?I refuse to medicate her.My sis in law gives my nephew melatonin.When she was here I gave my daughter a tiny amount compared to what he takes and she was way to sleepy.It is just so hard,shes a handful,and taking her out is usually

very hard.She

screams and crys and its hard.

[dixmstxyahoo (DOT) com] wrote:

Yes. They....

8:00? 8:25? 8:40? Find a flick in no time with theYahoo! Search movie showtime shortcut.

[Guest guest]

hey sharon.She is 3,well almost 3 1/2,she turned 3 in october.Yes she has

outbursts.Alot.all threw the day,some are big some are small.Usually they are

for no reason.I can be in 1 room and hear her screaming and throwing herself

around,when I go to her it is usually due to sumthn small,say like if her

cartoon show ended.Some days she wants to watch the same dvd all day,if I switch

it or turn it off its devaststing to her and me so it stays.The other day she

couldnt get her arm in her shirt sleeve and you woulda thought it was the end of

the world.And she popped her ball and threw her body and wined and cryd for

almost an hr.She didnt understand why it happened(she did it with her kid play

scizzors) I tried to hold her to explain but she was throwing her body and

kicking and the tears were jus pouring out.It is like this everyday.Big or small

it is always a huge deal to her.

[wobbletowalk@...] wrote:

How old is your daughter? Does she have outbursts as well?

hugs

Sharon

Re: lets figure out what Cassy has.

oh my.This is your ex your talkn about?6-8 beers at night?My fiance

was recently dx'd bi-polar.He use to drink(about a lil over 4 yrs.ago)then I jus

thought he was crazy.lol.for drinkn like a fish it was a rocky road for us.He is

constantly up and down even with meds.No abuse,but I swear sometimes I really

feel like im on a roller coaster ride with him and his moods.My daughter is very

clingy if she isnt around someone she is close with it seems to effect her

alot.The other day it took me 15 minutes to go the doc cuz she was so upset I

was leaving I literally had to tear her off my leg,sit her down and

explain.Sometimes it takes an hr. To get her ready everything we do is a process

or chore.Its exhausting.She is very whiney,if something isnt right to her it can

be a half hr. To an hr. Of insanity.screaming, crying,throwing things.I always

hear,whats wrong with her,or she needs disciplined, or shes to attached.I have

learned to just ignore it Im workn with her

alot but it is

difficult,to say the least.hugzzz

[dixmstxyahoo (DOT) com] wrote:

I also forgot to say, if you think there is something wrong pursue it. Kaleb's

Elementary school counselor had the nerve to say to me when I was pregnant with

Meg " That is soo good, now you won't concentrate on Kaleb as much " I knew

something was wrong with Kaleb. He started reading at 2 1/2 and knew about

sesquential numbers, things you really can't teach he got, but he still can't

tie his shoes the way you and I do. I pushed and pushed, made them test him then

took him to a neuropsychologist that dx'd himin the autistic spectrum. The

schools attitude was as long as he making good grades, why rock the boat. I

spoke to our regions special ed coordinator and found out my rights, gifted

children fall under special ed also, and he was in speech so the had do do an

ARD for him. Finally I took him to a Psychologist in Dallas that was the regions

expert on Asperger's and had him evaluated.

All I can tell you is to go with your gut. You'll have people tell you to let

it go, why make a big deal about it but I firmly believe the reason Kaleb is

able to function in school as well as he does instead of being anti-social is

because I pushed for the best treatment options. And we did use Concerta for

awhile, only when his grades were dropping and he could not concentrate. When I

divorced his dad, he tried to put it in the divorce decree I could not take

Kaleb to anymore specialist. His lawyer told me that. I told him I would report

both of them to child endangerment because Kaleb's treatment was overseen by a

Dr and I felt his opinion was better than their's. He said " Oh it's a Dr not a

psychologist. " And I said Yea,....

[Guest guest]

hey katie.I know what you mean.Before I got this weakness I was exercising and

lost a good amount.I loved it.then I got sicker and weaker and gained some of

what I lost back.I could go on any diet and still not lose unless I exercise.I

can barely lift my leg,let alone legsss.lol.I can only manage stretching I lost

mine with the tony little Gazelle.This thing is amaxine.You glide back and forth

like your sking.Feels like your skiing and flying,its awesome,its in my garage

collecting dust.Oh I miss it sooooo much.I really hope I get to use it again.Im

losing all my muscle,but of course the fat stays.lol.

[lastinline10@...] wrote:

I am taking synthroid too, I told my doc that maybe if they increased the dose I

would lose some of the weight I have put back on from having a " sluggish "

thyroid. He said it doesn't work like that. I need a doc that will just suck the

fat right out of me, I hate being heavy, With out exercising I know I am losing

muscle. If I exercise I can forget doing anything else in the day or sometimes 2

days. If you figure out a solution let me know.

cassandra workmn wrote: I hope it turns out

ok.What med do you take?I take synthroid 25 mg. They always check and its ok but

I wonder if the mg's were more if it would be easier to lose.I swear I can go on

a strict diet and still not lose,because of not enough exercise I think.I either

stay the same or gain.ugh.How have been feeling aside from all this?

[dixmstx@...] wrote:

The tumor in my thyroid. I've finally been off my thyroid med for long enough

for the uptake test and from there if it's hot, I'll have to take the

radioactive pills to kill the thyroid or if it's cold I'll have to have a fine

needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2

months being off my meds. I was down to 150 and my goal was 140 and now I weigh

180. I've had to be new clothes and I'm eating less than 1200 cals a day

in Texas

cassandra workmn wrote:

Yes you do need your medical paid for.I hope everything works out .What

tests are they gonna be doing?So your neuro turned it over to you Pcp?What does

that mean?Will your neuro still be seeing you? HOw is megan?

[dixmstx@...] wrote:

no...I think they are tired of poking on me for now.My work called today to ask

again when I was coming back and I said the Neuro turned it over to my PCP and

we won't know anything till after these tests. I need my medical paid for as

long as possible!

'

cassandra workmn wrote:

wow renee,really?See they didnt even tell me anything.I seen it in read and was

like whats that?and why?and there like nothing its only 1 its

normal.ughhh.insane! What was plus one on yours?I need to get my records from

there but I think it was one of the cell counts.Have you had evoked potentials

done?

[dixmstx@...] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they

pulled it up on the computer there was something in red(abnormal) it was I think

the cbc I dont know but it was + 1,I asked they said it was normal even with

plus one.Whatever.I dont know.When the intern that did my spinal called me and

told me it was negative he said ms is now ruled out,and they are ruling things

out as they go.My symptoms....

[Guest guest]

The test showed no cancer. It said my thyroid was a little hot (overproducing) but nothing to worry about. Ok, then why have I gained thirty pounds. 15 from the steroids while in the hospital and another 15 while out. I started stretching in the morning and I have my yoga supplies but my tape isn't here yet. So no cancer but still some unknown neurological disorder that acts just like MS but since I only have one lesion and one band it's not. But the MS specialist still wants to follow my case. HUH? LOLOLOLOLOL! Ya gotta to laugh. Hey nne,(hope I got it right or is it Marilynblame the ms) I got me a whole bunch of crochet supplies today and fixin to start tonight. I used to crochet with my grandma and I've really been missing her lately and I thought that might help. in Texascassandra workmn

wrote: hey katie.I know what you mean.Before I got this weakness I was exercising and lost a good amount.I loved it.then I got sicker and weaker and gained some of what I lost back.I could go on any diet and still not lose unless I exercise.I can barely lift my leg,let alone legsss.lol.I can only manage stretching I lost mine with the tony little Gazelle.This thing is amaxine.You glide back and forth like your sking.Feels like your skiing and flying,its awesome,its in my garage collecting dust.Oh I miss it

sooooo much.I really hope I get to use it again.Im losing all my muscle,but of course the fat stays.lol.[lastinline10] wrote:I am taking synthroid too, I told my doc that maybe if they increased the dose I would lose some of the weight I have put back on from having a "sluggish" thyroid. He said it doesn't work like that. I need a doc that will just suck the fat right out of me, I hate being heavy, With out exercising I know I am losing muscle. If I exercise I can forget doing anything else in the day or sometimes 2 days. If you figure out a solution let me know. cassandra workmn <payngabby72> wrote: I hope it turns out ok.What med do you take?I take synthroid 25 mg. They always check and its ok but I wonder if the mg's were more if it would be easier to lose.I swear I can go on a strict diet and still not lose,because of

not enough exercise I think.I either stay the same or gain.ugh.How have been feeling aside from all this?[dixmstx] wrote:The tumor in my thyroid. I've finally been off my thyroid med for long enough for the uptake test and from there if it's hot, I'll have to take the radioactive pills to kill the thyroid or if it's cold I'll have to have a fine needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2 months being off my meds. I was down to 150 and my goal was 140 and now I weigh 180. I've had to be new clothes and I'm eating less than 1200 cals a day in Texascassandra workmn <payngabby72> wrote:Yes you do need your medical paid for.I hope everything works out .What tests are they gonna be doing?So your neuro turned it over to you Pcp?What does that mean?Will your neuro still be seeing you?

HOw is megan?[dixmstx] wrote:no...I think they are tired of poking on me for now.My work called today to ask again when I was coming back and I said the Neuro turned it over to my PCP and we won't know anything till after these tests. I need my medical paid for as long as possible!'cassandra workmn <payngabby72> wrote:wow renee,really?See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh.insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstx] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a

definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

WOO HOO! no cancer.Thank god.So an unknown neuro disease but dont know about

ms.hmmm.we sure get the crappy end of the stick hu? So what,do they wanna do

the lets wait and see theory?This is crazy.When was your last spine mri?oh hey I

got a question ,is there a difference between doing a spinal mri,and the

cervical,thoracic and lumbar?Is a spine mri different?or does that mean they do

it all at once?Have you had ON? Im sure youve mentioned but I also have a bad

memory.lol.

[dixmstx@...] wrote:

The test showed no cancer. It said my thyroid was a little hot (overproducing)

but nothing to worry about. Ok, then why have I gained thirty pounds. 15 from

the steroids while in the hospital and another 15 while out. I started

stretching in the morning and I have my yoga supplies but my tape isn't here

yet.

So no cancer but still some unknown neurological disorder that acts just like

MS but since I only have one lesion and one band it's not. But the MS specialist

still wants to follow my case. HUH?

LOLOLOLOLOL! Ya gotta to laugh.

Hey nne,(hope I got it right or is it Marilynblame the ms) I got me a

whole bunch of crochet supplies today and fixin to start tonight. I used to

crochet with my grandma and I've really been missing her lately and I thought

that might help.

in Texas

cassandra workmn wrote:

hey katie.I know what you mean.Before I got this weakness I was

exercising and lost a good amount.I loved it.then I got sicker and weaker and

gained some of what I lost back.I could go on any diet and still not lose unless

I exercise.I can barely lift my leg,let alone legsss.lol.I can only manage

stretching I lost mine with the tony little Gazelle.This thing is amaxine.You

glide back and forth like your sking.Feels like your skiing and flying,its

awesome,its in my garage collecting dust.Oh I miss it sooooo much.I really hope

I get to use it again.Im losing all my muscle,but of course the fat stays.lol.

[lastinline10@...] wrote:

I am taking synthroid too, I told my doc that maybe if they increased the dose I

would lose some of the weight I have put back on from having a " sluggish "

thyroid. He said it doesn't work like that. I need a doc that will just suck the

fat right out of me, I hate being heavy, With out exercising I know I am losing

muscle. If I exercise I can forget doing anything else in the day or sometimes 2

days. If you figure out a solution let me know.

cassandra workmn wrote: I hope it turns out ok.What med

do you take?I take synthroid 25 mg. They always check and its ok but I wonder if

the mg's were more if it would be easier to lose.I swear I can go on a strict

diet and still not lose,because of not enough exercise I think.I either stay the

same or gain.ugh.How have been feeling aside from all this?

[dixmstx@...] wrote:

The tumor in my thyroid. I've finally been off my thyroid med for long enough

for the uptake test and from there if it's hot, I'll have to take the

radioactive pills to kill the thyroid or if it's cold I'll have to have a fine

needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2

months being off my meds. I was down to 150 and my goal was 140 and now I weigh

180. I've had to be new clothes and I'm eating less than 1200 cals a day

in Texas

cassandra workmn wrote:

Yes you do need your medical paid for.I hope everything works out .What

tests are they....

[Guest guest]

Hi , You got it right. Its nne. What are you going to crochet?

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlAnxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my ornaments at:www.geocities.com/chucky5741/bcornament.htmlThe Cancer Clubwww.cancerclub.com

Re: lets figure out what Cassy has.

The test showed no cancer. It said my thyroid was a little hot (overproducing) but nothing to worry about. Ok, then why have I gained thirty pounds. 15 from the steroids while in the hospital and another 15 while out. I started stretching in the morning and I have my yoga supplies but my tape isn't here yet.

So no cancer but still some unknown neurological disorder that acts just like MS but since I only have one lesion and one band it's not. But the MS specialist still wants to follow my case. HUH?

LOLOLOLOLOL! Ya gotta to laugh.

Hey nne,(hope I got it right or is it Marilynblame the ms) I got me a whole bunch of crochet supplies today and fixin to start tonight. I used to crochet with my grandma and I've really been missing her lately and I thought that might help.

in Texascassandra workmn <payngabby72> wrote:

hey katie.I know what you mean.Before I got this weakness I was exercising and lost a good amount.I loved it.then I got sicker and weaker and gained some of what I lost back.I could go on any diet and still not lose unless I exercise.I can barely lift my leg,let alone legsss.lol.I can only manage stretching I lost mine with the tony little Gazelle.This thing is amaxine.You glide back and forth like your sking.Feels like your skiing and flying,its awesome,its in my garage collecting dust.Oh I miss it sooooo much.I really hope I get to use it again.Im losing all my muscle,but of course the fat stays.lol.[lastinline10] wrote:I am taking synthroid too, I told my doc that maybe if they increased the dose I would lose some of the weight I have put back on from having a "sluggish" thyroid. He said it doesn't work like that. I need a doc that will just suck the fat right out of me, I hate being heavy, With out exercising I know I am losing muscle. If I exercise I can forget doing anything else in the day or sometimes 2 days. If you figure out a solution let me know. cassandra workmn <payngabby72> wrote: I hope it turns out ok.What med do you take?I take synthroid 25 mg. They always check and its ok but I wonder if the mg's were more if it would be easier to lose.I swear I can go on a strict diet and still not lose,because of not enough exercise I think.I either stay the same or gain.ugh.How have been feeling aside from all this?[dixmstx] wrote:The tumor in my thyroid. I've finally been off my thyroid med for long enough for the uptake test and from there if it's hot, I'll have to take the radioactive pills to kill the thyroid or if it's cold I'll have to have a fine needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2 months being off my meds. I was down to 150 and my goal was 140 and now I weigh 180. I've had to be new clothes and I'm eating less than 1200 cals a day in Texascassandra workmn <payngabby72> wrote:Yes you do need your medical paid for.I hope everything works out .What tests are they gonna be doing?So your neuro turned it over to you Pcp?What does that mean?Will your neuro still be seeing you? HOw is megan?[dixmstx] wrote:no...I think they are tired of poking on me for now.My work called today to ask again when I was coming back and I said the Neuro turned it over to my PCP and we won't know anything till after these tests. I need my medical paid for as long as possible!'cassandra workmn <payngabby72> wrote:wow renee,really?See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh.insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstx] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms....

' in Texas

Courage is not being fearless, courage is facing your fears and ot running for cover!

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.446 / Virus Database: 269.0.0/752 - Release Date: 4/8/2007 8:34 PM

[Guest guest]

So I dont understand how they have ruled out MS.They havnt done a spinal MRI on

me or even a brainstem MRI.They didnt even do my cervical,lumbar,or thoracic at

the same time.They dont listen to me what should I do? MY best friend says I

should demand a full body MRI.She said a lady she works with was very sick and

couldnt get dx'd,guess they thought it was endometryosis and when they did an

mri or ct,something inside her stomach somewere,they found a tumor.I told her im

doin the best I can to get these tests,but the docs just dismiss me like its

nothing.Ughhh.

[dixmstx@...] wrote:

No, when they do a spine they have to specify. When they do the brain I think

they also have to specify the brain stem. Does anyone now if the brain stem is

automatically done when a brain is done or do they have to specify

cassandra workmn wrote: WOO HOO! no

cancer.Thank god.So an unknown neuro disease but dont know about ms.hmmm.we sure

get the crappy end of the stick hu? So what,do they wanna do the lets wait and

see theory?This is crazy.When was your last spine mri?oh hey I got a question

,is there a difference between doing a spinal mri,and the cervical,thoracic

and lumbar?Is a spine mri different?or does that mean they do it all at

once?Have you had ON? Im sure youve mentioned but I also have a bad memory.lol.

[dixmstx@...] wrote:

The test showed no cancer. It said my thyroid was a little hot (overproducing)

but nothing to worry about. Ok, then why have I gained thirty pounds. 15 from

the steroids while in the hospital and another 15 while out. I started

stretching in the morning and I have my yoga supplies but my tape isn't here

yet.

So no cancer but still some unknown neurological disorder that acts just like MS

but since I only have one lesion and one band it's not. But the MS specialist

still wants to follow my case. HUH?

LOLOLOLOLOL! Ya gotta to laugh.

Hey nne,(hope I got it right or is it Marilynblame the ms) I got me a whole

bunch of crochet supplies today and fixin to start tonight. I used to crochet

with my grandma and I've really been missing her lately and I thought that might

help.

in Texas

cassandra workmn wrote:

hey katie.I know what you mean.Before I got this weakness I was exercising and

lost a good amount.I loved it.then I got sicker and weaker and gained some of

what I lost back.I could go on any diet and still not lose unless I exercise.I

can barely lift my leg,let alone legsss.lol.I can only manage stretching I lost

mine with the tony little Gazelle.This thing is amaxine.You glide back and forth

like your sking.Feels like your skiing and flying,its awesome,its in my garage

collecting dust.Oh I miss it sooooo much.I really hope I get to use it again.Im

losing all my muscle,but of course the fat stays.lol.

[lastinline10@...] wrote:

I am taking synthroid too, I told my doc that maybe if they increased the dose I

would lose some of the weight I have put back on from having a " sluggish "

thyroid. He said it doesn't work like that. I need a doc that will just suck the

fat right out of me, I hate being heavy, With out exercising I know I am losing

muscle. If I exercise I can forget doing anything else in the day or sometimes 2

days. If you figure out a solution let me know.

cassandra workmn wrote: I hope it turns out ok.What med

do you take?I take synthroid 25 mg. They always check and its ok but I wonder if

the mg's were more if it would be easier to lose.I swear I can go on a strict

diet and still not....

[Guest guest]

I read this whole thread, including , Renne and Cassy~It is a pain ain't it? the not knowing/not being dx'd/so therefore, not being treated. I have to say that I 'felt' like my dx dragged on..but in actuality, it did not...The trigeminal neuralgia however, did drag out. I mean since 1997 I've seen dentists and had root canals and extractions; been on antibiotics cause they thought I had infections in my root canals; have been to neurologists, ENT guys who think I have had chronic sinus infections...finally in 5/05 got the TN dx...Then it all unraveled...the mystery. Finally, my damn younger sis comes to me, as i'm gonna have the brain surgery for the TN pain and tells me she has MS! I could not figure out why the neuro had written up all these scripts for MRI's, lumbar puncture~this is HER neuro, and he suspected from my early-onset TN, that I had MS also. duh! She was dx'd about 5 or 6 yrs ago, but chose not to tell our parents or sisters...but she told all 3 brothers...go figure! I'm sorry if I've told this saga already...anyway, 9/05 1 lesion seen in brain; so, no dx. But somehow, by Dec. of the same year-? 2 lesions. 12/8/05 I got the dx. I feel for anyone who has to go through the agonizing wait for a dx. We want the dx/we don't want MS, but begin to almost want it--because the not 'knowing' is maddening!

feeling for you all awaiting a dx. love, kate

> So I dont understand how they have ruled out MS.They havnt done > a spinal MRI on me or even a brainstem MRI.They didnt even do my > cervical,lumbar,or thoracic at the same time.They dont listen to > me what should I do? MY best friend says I should demand a full > body MRI.She said a lady she works with was very sick and > couldnt get dx'd,guess they thought it was endometryosis and > when they did an mri or ct,something inside her stomach > somewere,they found a tumor.I told her im doin the best I can to > get these tests,but the docs just dismiss me like its nothing.Ughhh.> Please visit: http://www.bicycleman.com

awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

Attachment: vcard [not shown]

[Guest guest]

Kate.Thats awful your sis waited so long to tell you.Why did she only tell your

3 brothers for all that time?So,is it just you and her with ms?Or do you have

other relatives with ms to?Thats crazy that your neuro new and suspected you had

it.Well guess it was good because he probably looked harder for it,but to bad

for patient confidentiality in this case hu?Ya.it sucks being so sick and not

knowing why.Its like im fighting for my life everyday.Not fair.but all we can do

is fight.Fight the disease,the sickness,the healthcare system.Whatever we have

to do I guess,but after a certain amount of time its like ok,what the hecks

wrong with me this is ridiculous.lol.

[katelloydkidz@...] wrote:

I read this whole thread, including , Renne and Cassy~It is a pain ain't

it? the not knowing/not being dx'd/so therefore, not being treated. I have to

say that I 'felt' like my dx dragged on..but in actuality, it did not...The

trigeminal neuralgia however, did drag out. I mean since 1997 I've seen dentists

and had root canals and extractions; been on antibiotics cause they thought I

had infections in my root canals; have been to neurologists, ENT guys who think

I have had chronic sinus infections...finally in 5/05 got the TN dx...Then it

all unraveled...the mystery. Finally, my damn younger sis comes to me, as i'm

gonna have the brain surgery for the TN pain and tells me she has MS! I could

not figure out why the neuro had written up all these scripts for MRI's, lumbar

puncture~this is HER neuro, and he suspected from my early-onset TN, that I had

MS also. duh! She was dx'd about 5 or 6 yrs ago, but chose not to tell our

parents or sisters...but she told all 3

brothers...go figure! I'm sorry if I've told this saga already...anyway, 9/05 1

lesion seen in brain; so, no dx. But somehow, by Dec. of the same year-? 2

lesions. 12/8/05 I got the dx. I feel for anyone who has to go through the

agonizing wait for a dx. We want the dx/we don't want MS, but begin to almost

want it--because the not 'knowing' is maddening!

feeling for you all awaiting a dx. love, kate

> So I dont understand how they have ruled out MS.They havnt done

> a spinal MRI on me or even a brainstem MRI.They didnt even do my

> cervical,lumbar,or thoracic at the same time.They dont listen to

> me what should I do? MY best friend says I should demand a full

> body MRI.She said a lady she works with was very sick and

> couldnt get dx'd,guess they thought it was endometryosis and

> when they did an mri or ct,something inside her stomach

> somewere,they found a tumor.I told her im doin the best I can to

> get these tests,but the docs just dismiss me like its nothing.Ughhh.

>

Please visit: http://www.bicycleman.com

awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for

an MS Bike Tour!