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ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they

pulled it up on the computer there was something in red(abnormal) it was I think

the cbc I dont know but it was + 1,I asked they said it was normal even with

plus one.Whatever.I dont know.When the intern that did my spinal called me and

told me it was negative he said ms is now ruled out,and they are ruling things

out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet)

and low back and neck(wasnt all these a yr.ago it slowly infested my body)

weakness(everywere) makes me short of breath,spasms(arms legs and back)

twitching(arms and legs)stiffness,pain behind my right eye,numbness in my

back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is not rite)

bothers me.Its alot but it all came slow

[lastinline10@...] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for. Crazy what our bodies

do huh..... since my niece had MG I asked for that to be my first test, ruled

that our quick. I know our family history so I started going through it with my

doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They

thought I had had a stroke when I first came in the ER, but without my face

" drooping " on one side they ruled that out fast too. What are your symptoms, I

will look up in some of my medical books I have, some books that are older and

it might help to go back to the basics. Hope your having a good day, I am

watching Victorya turn 20 months old today and getting out everything I put away

this morning......she is such a blast to watch. Winking,

cassandra workmn wrote: Thanks your an

angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and

fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt

explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does

a workup to make sure all blood ok.So my neuro followed my care noticed I was

getting worse says maybe TM then does emg/nerve cond.study,I guess it showed

Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist

did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not

that or anything dymelinating maybe reumo problem seen her again she says

nope,did labs for MD were normal,stil says its neuro.Then the ucd doc tells me

wait for evoked testing on 11th,then we will know for sure if its a neuro

problem,so he discharged me from the clinic said to f/u with pcp and my neuro

and reumo docs.Thats it for short.Luckily my pcp is

great,and has a heart.lol.and the reumo said she will see

me again and try to help if they dnt

[lastinline10@...] wrote:

Cassy, I can't take those sites. Not that I don't want to care, just I can't

take it. I would be horrible if one of my kids had something. I would be a

basket case, I can't stand for them to have the flu....rather it be me. I would

cry everyday I know, I get real emotional when one of my kids say soemthing

about maybe they have MS...thinking it is inhertited. scares me to death

thinking that one of them might go through this. I worry alot anyway. Surely

they will find out what is wrong with you soon, limbo is not a good place. I

knew when I was younger that there was something wrong with me....in the back of

my mind even when I was healthy. What all have they tested you for and what have

they ruled out??? Maybe one of us can come up with the correct DX. or at least

help.

cassandra workmn wrote: Thanks for sharing .How

horrible.It breaks my heart when kids get sick,I am so thankful it is me and not

my....

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My spinal tap came back negative, but I definitely have MS. Kathi

lets figure out what Cassy has.

Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning......she is such a blast to watch. Winking, cassandra workmn <payngabby72> wrote:

Thanks your an angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does a workup to make sure all blood ok.So my neuro followed my care noticed I was getting worse says maybe TM then does emg/nerve cond.study,I guess it showed Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not that or anything dymelinating maybe reumo problem seen her again she says nope,did labs for MD were normal,stil says its neuro.Then the ucd doc tells me wait for evoked testing on 11th,then we will know for sure if its a neuro problem,so he discharged me from the clinic said to f/u with pcp and my neuro and reumo docs.Thats it for short.Luckily my pcp is great,and has a heart.lol.and the reumo said she will seeme again and try to help if they dnt[lastinline10] wrote:Cassy, I can't take those sites. Not that I don't want to care, just I can't take it. I would be horrible if one of my kids had something. I would be a basket case, I can't stand for them to have the flu....rather it be me. I would cry everyday I know, I get real emotional when one of my kids say soemthing about maybe they have MS...thinking it is inhertited. scares me to death thinking that one of them might go through this. I worry alot anyway. Surely they will find out what is wrong with you soon, limbo is not a good place. I knew when I was younger that there was something wrong with me....in the back of my mind even when I was healthy. What all have they tested you for and what have they ruled out??? Maybe one of us can come up with the correct DX. or at least help. cassandra workmn <payngabby72> wrote: Thanks for sharing .How horrible.It breaks my heart when kids get sick,I am so thankful it is me and not my girls.IT is just to sad.I joined a devics support group when my neuro said she believed I had Devics.Well its an awful disease and ther is a little 5 yr. Old girl that has it.I email with her mom,they are so grateful to still have her,she is blind and has had TM and has been very sick.She is on this post pals site or something.Her mom sent the link,anyways its for sick children and they have pics on ther and a place were you can send them gifts.There are all these babies and kids with chronic or terminal illness.All fighting for there lives with there info about it.I couldnt handle reading it anymore I was crying it did more than break my heart.Its just awful what we all go threw and to think children battling the same things is to much.I dont know what is wrong with me but I really feel like imdying(something I can only share here) I dont get why they havntfound it or can not help me any way.[lastinline10] wrote:Yeah. I had never heard of this MG until this. My neice was a good kid, always smiling and a joy to be around. I always thought of her as an angel, just a joy to be with. Her name is deloris after her grandma on her dads side. She was a great lady too, she also died of cancer and if my memorie is right it was in her pancrease too. I hope they get you a DX soon, I know I only waited 2 months knowing something was wrong, but it was a long 2 months can't imagine what you must be going thru...... Sending good thoughts and high hopes your way!!!!!! cassandra workmn <payngabby72> wrote:That is beyond awful.im so sorry.I have a friend with MG,it is a scary disease.That is a horrible thing.Your poor sis.I dont think I could ever get over sumthn like that either,im so glad the Cymbalta is helping her.My sisters name is Dee Dee,short for maygan dee,my grandmas name was Dee.She was named after my granma who passed from cancer in her pancreas.She went to the doc for a few yrs. Complaining of symptoms,they always told her nothing was wrong and said maybe its this or that and....

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A negative spinal tap doesn't rule out MS. My neuro told me if a person is going into, or out of, and attack then they could have screwy results. I'm positive on one band, if I remember correctly. Sharon Re: lets figure out what Cassy has.

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever. I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms( arms legs and back) twitching(arms and legs)stiffness, pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp

is not rite)

bothers me.Its alot but it all came slow

[lastinline10@ yahoo.com] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning..... .she is such a blast to watch. Winking,

cassandra workmn <payngabby72@ yahoo.com> wrote: Thanks your an angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does a workup to make sure all blood ok.So my neuro followed my care noticed I was getting worse says maybe TM then does emg/nerve cond.study,I guess it showed Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not that or anything dymelinating maybe reumo problem seen her again she says nope,did labs for MD were normal,stil says its neuro.Then the ucd doc tells me wait for evoked testing on 11th,then we will know for sure if its a neuro problem,so he discharged me from the clinic

said to f/u with pcp and my neuro and reumo docs.Thats it for short.Luckily my pcp is

great,and has a heart.lol.and the reumo said she will see

me again and try to help if they dnt

[lastinline10@ yahoo.com] wrote:

Cassy, I can't take those sites. Not that I don't want to care, just I can't take it. I would be horrible if one of my kids had something. I would be a basket case, I can't stand for them to have the flu....rather it be me. I would cry everyday I know, I get real emotional when one of my kids say soemthing about maybe they have MS...thinking it is inhertited. scares me to death thinking that one of them might go through this. I worry alot anyway. Surely they will find out what is wrong with you soon, limbo is not a good place. I knew when I was younger that there was something wrong with me....in the back of my mind even when I was healthy. What all have they tested you for and what have they ruled out??? Maybe one of us can come up with the correct DX. or at least help.

cassandra workmn <payngabby72@ yahoo.com> wrote: Thanks for sharing .How horrible.It breaks my heart when kids get sick,I am so thankful it is me and not my....

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yep.And I read so many stories.Some people are dx'd by spinal,some mri,some

evoked,and so on.I still dont get how they can rule ms out.I seen the spinal

result on the computer there was 1 abnormal but only plus one so they said it

didnt matter,but they said the ms panel was normal.I dont think they know

crap,or more like they dont wanna help me find out.I really hope the evoked

potentials shows something.As it is they havnt even done the mri's accurate

enough.It will never make sense to me.

[wobbletowalk@...] wrote:

A negative spinal tap doesn't rule out MS. My neuro told me if a person is

going into, or out of, and attack then they could have screwy results. I'm

positive on one band, if I remember correctly.

Sharon

Re: lets figure out what Cassy has.

ah.thats sweet.Yes I have had a spinal.They said it was negative,but

when they pulled it up on the computer there was something in red(abnormal) it

was I think the cbc I dont know but it was + 1,I asked they said it was normal

even with plus one.Whatever. I dont know.When the intern that did my spinal

called me and told me it was negative he said ms is now ruled out,and they are

ruling things out as they go.My symptoms are Pain,in my arms(all and hands)

legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly

infested my body) weakness(everywere) makes me short of breath,spasms( arms legs

and back) twitching(arms and legs)stiffness, pain behind my right eye,numbness

in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is

not rite)

bothers me.Its alot but it all came slow

[lastinline10@ yahoo.com] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for. Crazy what our bodies

do huh..... since my niece had MG I asked for that to be my first test, ruled

that our quick. I know our family history so I started going through it with my

doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They

thought I had had a stroke when I first came in the ER, but without my face

" drooping " on one side they ruled that out fast too. What are your symptoms, I

will look up in some of my medical books I have, some books that are older and

it might help to go back to the basics. Hope your having a good day, I am

watching Victorya turn 20 months old today and getting out everything I put away

this morning..... .she is such a blast to watch. Winking,

cassandra workmn <payngabby72@ yahoo.com> wrote: Thanks your an

angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and

fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt

explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does

a workup to make sure all blood ok.So my neuro followed my care noticed I was

getting worse says maybe TM then does emg/nerve cond.study,I guess it showed

Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist

did spinal....

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Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn wrote: ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I

asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms(arms legs and back) twitching(arms and legs)stiffness,pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp is not rite)bothers me.Its alot but it all came slow[lastinline10] wrote:Good gracious, Have you had a spinal tap?

That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning......she is such a blast to watch. Winking, cassandra workmn <payngabby72> wrote: Thanks your an angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does a workup to make sure all blood ok.So my neuro followed my care noticed I was getting worse says maybe TM then does emg/nerve cond.study,I guess it showed Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not that or anything dymelinating maybe reumo problem seen her again she says nope,did labs for MD were normal,stil says its neuro.Then the ucd doc tells me wait for evoked testing on 11th,then we will know for sure if its a neuro problem,so he discharged me from the clinic said to f/u with pcp and my neuro and reumo docs.Thats it for

short.Luckily my pcp isgreat,and has a heart.lol.and the reumo said she will seeme again and try to help if they dnt[lastinline10] wrote:Cassy, I can't take those sites. Not that I don't want to care, just I can't take it. I would be horrible if one of my kids had something. I would be a basket case, I can't stand for them to have the flu....rather it be me. I would cry everyday I know, I get real emotional when one of my kids say soemthing about maybe they have MS...thinking it is inhertited. scares me to death thinking that one of them might go through this. I worry alot anyway. Surely they will find out what is wrong with you soon, limbo is not a good place. I knew when I was younger that there was something wrong with me....in the back of my mind even when I was healthy. What all have they tested you for and what have they ruled out??? Maybe one of us can come up with the correct DX. or at

least help. cassandra workmn <payngabby72> wrote: Thanks for sharing .How horrible.It breaks my heart when kids get sick,I am so thankful it is me and not my....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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for 10 years my problem was "Probable MS" or a "suffers from a de-mylanating condition". The medical version of it looks like a duck, has web feet like a duck, swims like a duck, quacks like a duck, but not quite sure that it's a duck. Just over a year ago I was told of a wonderful neuro at Henry Ford hospital in W. Bloomfield. I expected a wait for an appointment but not quite 4 weeks after calling, I was in his office. After looking at my MRI's, he said the only way to explain the changes is MS. Couldn't believe what I was hearing ! FINALLY someone willing to say "It's MS"

a ...... in Michigan

Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

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My spinal tap only showed on Ogling band (sp). but that how they concluded that I have MS, Crazy how they come up with these things. In 2004 when I was having Migraines, they said I had liaisons on my brain but they were inconclusive to "migraines" But they showed that there was none in my MRI's in 2002 when I was very sick with migraines. i think I was having an attack, but they didn't look for it soooooo. Kathi Benedict wrote: My spinal tap came back negative, but I definitely have MS. Kathi lets figure out what Cassy has. Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro

then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning......she is such a blast to watch. Winking, cassandra workmn <payngabby72> wrote: Thanks

your an angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does a workup to make sure all blood ok.So my neuro followed my care noticed I was getting worse says maybe TM then does emg/nerve cond.study,I guess it showed Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not that or anything dymelinating maybe reumo problem seen her again she says nope,did labs for MD were normal,stil says its neuro.Then the ucd doc tells me wait for evoked testing on 11th,then we will know for sure if its a neuro problem,so he discharged me from the clinic said to f/u with pcp and my neuro and reumo docs.Thats it for short.Luckily my pcp is great,and has a heart.lol.and the reumo said she will seeme

again and try to help if they dnt[lastinline10] wrote:Cassy, I can't take those sites. Not that I don't want to care, just I can't take it. I would be horrible if one of my kids had something. I would be a basket case, I can't stand for them to have the flu....rather it be me. I would cry everyday I know, I get real emotional when one of my kids say soemthing about maybe they have MS...thinking it is inhertited. scares me to death thinking that one of them might go through this. I worry alot anyway. Surely they will find out what is wrong with you soon, limbo is not a good place. I knew when I was younger that there was something wrong with me....in the back of my mind even when I was healthy. What all have they tested you for and what have they ruled out??? Maybe one of us can come up with the correct DX. or at least help. cassandra workmn <payngabby72> wrote: Thanks for sharing .How horrible.It breaks my heart when kids get sick,I am so thankful it is me and not my girls.IT is just to sad.I joined a devics support group when my neuro said she believed I had Devics.Well its an awful disease and ther is a little 5 yr. Old girl that has it.I email with her mom,they are so grateful to still have her,she is blind and has had TM and has been very sick.She is on this post pals site or something.Her mom sent the link,anyways its for sick children and they have pics on ther and a place were you can send them gifts.There are all these babies and kids with chronic or terminal illness.All fighting for there lives with there info about it.I couldnt handle reading it anymore I was crying it did more than break my heart.Its just awful what we all go threw and to think children battling the same things is to much.I dont know what is wrong with me but I really

feel like imdying(something I can only share here) I dont get why they havntfound it or can not help me any way.[lastinline10] wrote:Yeah. I had never heard of this MG until this. My neice was a good kid, always smiling and a joy to be around. I always thought of her as an angel, just a joy to be with. Her name is deloris after her grandma on her dads side. She was a great lady too, she also died of cancer and if my memorie is right it was in her pancrease too. I hope they get you a DX soon, I know I only waited 2 months knowing something was wrong, but it was a long 2 months can't imagine what you must be going thru...... Sending good thoughts and high hopes your way!!!!!! cassandra workmn <payngabby72> wrote:That is beyond awful.im so sorry.I have a friend with MG,it is a scary disease.That is a horrible

thing.Your poor sis.I dont think I could ever get over sumthn like that either,im so glad the Cymbalta is helping her.My sisters name is Dee Dee,short for maygan dee,my grandmas name was Dee.She was named after my granma who passed from cancer in her pancreas.She went to the doc for a few yrs. Complaining of symptoms,they always told her nothing was wrong and said maybe its this or that and.... No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started. Internal Virus Database is out-of-date.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.11/723 - Release Date: 3/15/2007 11:27 AM Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

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Thanks for sharing a.I couldnt help but laugh when you said walks like a

duck,ect..lol.The doc at UCSF says I dont have any dymelinating disease.But I

have read enough and researched enough to know it is still possible.I have had 1

brain mri w/out contrast,then 4 mons later a thoracic w/out contrast,then 6 mons

later a lumbar w/out contrast,then 4 mons later a cervical w/contrast.Do you

think the docs take that into consideration?Nope.dosnt matter to them,I have

been studying for over 3 yrs. AND i know darned well they havnt done it

right.And what about silent lesions?They dont mention that either!ughh.

big hugzz,cassy

[paulacoon@...] wrote:

for 10 years my problem was " Probable MS " or a " suffers from a de-mylanating

condition " . The medical version of it looks like a duck, has web feet like a

duck, swims like a duck, quacks like a duck, but not quite sure that it's a

duck. Just over a year ago I was told of a wonderful neuro at Henry Ford

hospital in W. Bloomfield. I expected a wait for an appointment but not quite 4

weeks after calling, I was in his office. After looking at my MRI's, he said the

only way to explain the changes is MS. Couldn't believe what I was hearing !

FINALLY someone willing to say " It's MS "

a ...... in Michigan

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

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Posted
Posted

wow renee,really?See they didnt even tell me anything.I seen it in read and was

like whats that?and why?and there like nothing its only 1 its

normal.ughhh.insane! What was plus one on yours?I need to get my records from

there but I think it was one of the cell counts.Have you had evoked potentials

done?

[dixmstx@...] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but

when they pulled it up on the computer there was something in red(abnormal) it

was I think the cbc I dont know but it was + 1,I asked they said it was normal

even with plus one.Whatever.I dont know.When the intern that did my spinal

called me and told me it was negative he said ms is now ruled out,and they are

ruling things out as they go.My symptoms are Pain,in my arms(all and hands)

legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly

infested my body) weakness(everywere) makes me short of breath,spasms(arms legs

and back) twitching(arms and legs)stiffness,pain behind my right eye,numbness in

my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is not

rite)

bothers me.Its alot but it all came slow

[lastinline10@...] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for. Crazy what our bodies

do huh..... since my niece had MG I asked for that to be my first test, ruled

that our quick. I know our family history so I started going through it with my

doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They

thought I had had a stroke when I first came in the ER, but without my face

" drooping " on one side they ruled that out fast too. What are your symptoms, I

will look up in some of my medical books I have, some books that are older and

it might help to go back to the basics. Hope your having a good day, I am

watching Victorya turn 20 months old today and getting out everything I put away

this morning......she is such a blast to watch. Winking,

cassandra workmn wrote: Thanks your an angel.Well

I dont know if I can make this short.lol.I was mis dx'd arthritis and

fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt

explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does

a workup to make sure all blood ok.So my neuro followed my care noticed I was

getting worse says maybe TM then does emg/nerve cond.study,I guess it showed

Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist

did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not

that or anything dymelinating maybe reumo problem seen her again she says

nope,did....

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Posted
Posted

I would recommend that everyone get copies of their medical records, tests, and MRI films. It's always a good idea to have them. Cassy -- get your records!Sharon Re: lets figure out what Cassy has.

wow renee,really? See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh. insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?

[dixmstxyahoo (DOT) com] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn <payngabby72@ yahoo.com> wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever. I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms( arms legs and back) twitching(arms and legs)stiffness, pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp is

not

rite)

bothers me.Its alot but it all came slow

[lastinline10@ yahoo.com] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning..... .she is such a blast to watch. Winking,

cassandra workmn <payngabby72@ yahoo.com> wrote: Thanks your an angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does a workup to make sure all blood ok.So my neuro followed my care noticed I was getting worse says maybe TM then does emg/nerve cond.study,I guess it showed Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not that or anything dymelinating maybe reumo problem seen her again she says nope,did....

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Posted
Posted

thanks sharon,I have most of my records,jus dont understand most of em.lol.

[wobbletowalk@...] wrote:

I would recommend that everyone get copies of their medical records, tests, and

MRI films. It's always a good idea to have them. Cassy -- get your records!

Sharon

Re: lets figure out what Cassy has.

wow renee,really? See they didnt even tell me anything.I seen it in

read and was like whats that?and why?and there like nothing its only 1 its

normal.ughhh. insane! What was plus one on yours?I need to get my records from

there but I think it was one of the cell counts.Have you had evoked potentials

done?

[dixmstxyahoo (DOT) com] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn <payngabby72@ yahoo.com> wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but

when they pulled it up on the computer there was something in red(abnormal) it

was I think the cbc I dont know but it was + 1,I asked they said it was normal

even with plus one.Whatever. I dont know.When the intern that did my spinal

called me and told me it was negative he said ms is now ruled out,and they are

ruling things out as they go.My symptoms are Pain,in my arms(all and hands)

legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly

infested my body) weakness(everywere) makes me short of breath,spasms( arms legs

and back) twitching(arms and legs)stiffness, pain behind my right eye,numbness

in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is

not

rite)

bothers me.Its alot but it all came slow

[lastinline10@ yahoo.com] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for. Crazy what our bodies

do huh..... since my niece had MG I asked for that to be my first test, ruled

that our quick. I know our family history so I started going through it with my

doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They

thought I had had a stroke when I first came in the ER, but without my face

" drooping " on one side they ruled that out fast too. What are your symptoms, I

will look up in some of my medical books I have, some books that are older and

it might help to go back to the basics. Hope your having a good day, I am

watching Victorya turn 20 months old today and getting out everything I put away

this....

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Posted
Posted

I still gotta get UCD's records,and they want me to go down there,its exhausting

so have to wait til next week when I can get a ride down.I wish I had a

scanner,id scan what I got and show all you.Trust you guys more than the damn

docs,maybe once I get those Ill try and find a scanner,and ya'l can come up with

a dx,then we will make a new report from msers life,it could say this pt has

been through hell and she has a probable ms dx.lol.I wish! Lol.but I really am

gonna try my hardest next week so I can post some of the info here on the

group,maybe there is more of those oh its only plus one so it dosnt count on

there.HOpe everyones havn a good day.big hugzz,cassy

[payngabby72@...] wrote:

thanks sharon,I have most of my records,jus dont understand most of em.lol.

[wobbletowalk@...] wrote:

I would recommend that everyone get copies of their medical records, tests, and

MRI films. It's always a good idea to have them. Cassy -- get your records!

Sharon

Re: lets figure out what Cassy has.

wow renee,really? See they didnt even tell me anything.I seen it in

read and was like whats that?and why?and there like nothing its only 1 its

normal.ughhh. insane! What was plus one on yours?I need to get my records from

there but I think it was one of the cell counts.Have you had evoked potentials

done?

[dixmstxyahoo (DOT) com] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn <payngabby72@ yahoo.com> wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but

when they pulled it up on the computer there was something in red(abnormal) it

was I think the cbc I dont know but it was + 1,I asked they said it was normal

even with plus one.Whatever. I dont know.When the intern that did my spinal

called me and told me it was negative he said ms is now ruled out,and they are

ruling things out as they go.My symptoms are Pain,in my arms(all and hands)

legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly

infested my body) weakness(everywere) makes me short of breath,spasms( arms legs

and back) twitching(arms and legs)stiffness, pain behind my right eye,numbness

in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is

not

rite)

bothers me.Its alot but it all came slow

[lastinline10@ yahoo.com] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for. Crazy what our bodies

do huh..... since my niece had MG I asked for that to be my first test, ruled

that our quick. I know our family history so I started going through it with my

doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They

thought I had had a stroke when I first came in the ER, but without my face

" drooping " on one side they ruled that out fast too. What are your symptoms, I

will look up in some of my medical books I have, some books that are older and

it might help to go back to the basics. Hope your having a....

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Posted
Posted

If you have a Office Depot or Kinko near

by they can fax for you.

G

From:

MSersLife [mailto:MSersLife ] On Behalf Of cassandra workmn

Sent: Wednesday, April 04, 2007

10:43 AM

To: MSersLife

Subject: Re: lets figure

out what Cassy has.

I still

gotta get UCD's records,and they want me to go down there,its exhausting so

have to wait til next week when I can get a ride down.I wish I had a scanner,id

scan what I got and show all you.Trust you guys more than the damn docs,maybe

once I get those Ill try and find a scanner,and ya'l can come up with a dx,then

we will make a new report from msers life,it could say this pt has been through

hell and she has a probable ms dx.lol.I wish! Lol.but I really am gonna try my

hardest next week so I can post some of the info here on the group,maybe there

is more of those oh its only plus one so it dosnt count on there.HOpe everyones

havn a good day.big hugzz,cassy

[payngabby72]

wrote:

thanks sharon,I

have most of my records,jus dont understand most of em.lol.

[wobbletowalk]

wrote:

I would recommend that everyone get copies of their medical records, tests, and

MRI films. It's always a good idea to have them. Cassy -- get your records!

Sharon

Re: lets figure out what Cassy has.

wow renee,really? See they didnt even tell me anything.I seen it in read and

was like whats that?and why?and there like nothing its only 1 its normal.ughhh.

insane! What was plus one on yours?I need to get my records from there but I

think it was one of the cell counts.Have you had evoked potentials done?

[dixmstxyahoo (DOT) com] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn <payngabby72@ yahoo.com> wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they

pulled it up on the computer there was something in red(abnormal) it was I

think the cbc I dont know but it was + 1,I asked they said it was normal even

with plus one.Whatever. I dont know.When the intern that did my spinal called

me and told me it was negative he said ms is now ruled out,and they are ruling

things out as they go.My symptoms are Pain,in my arms(all and hands) legs(all

and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my

body) weakness(everywere) makes me short of breath,spasms( arms legs and back)

twitching(arms and legs)stiffness, pain behind my right eye,numbness in my

back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is

not

rite)

bothers me.Its alot but it all came slow

[lastinline10@ yahoo.com] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs

point to Neuro then that's what they should be testing you for. Crazy what our

bodies do huh..... since my niece had MG I asked for that to be my first test,

ruled that our quick. I know our family history so I started going through it

with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few

days. They thought I had had a stroke when I first came in the ER, but without

my face " drooping " on one side they ruled that out fast too. What are

your symptoms, I will look up in some of my medical books I have, some books

that are older and it might help to go back to the basics. Hope your having

a....

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Posted
Posted

thanks gary.Yes I have those near by,but it is like 25 cents a page and theres

at least 50 pages I think.But if I go down there it will be free.Thanks so much.

Big hugz,cassy

[grgriffith@...] wrote:

If you have a Office Depot or Kinko near by they can fax for you.

G

_____

From: MSersLife [mailto:MSersLife ] On Behalf

Of cassandra workmn

Sent: Wednesday, April 04, 2007 10:43 AM

To: MSersLife

Subject: Re: lets figure out what Cassy has.

I still gotta get UCD's records,and they want me to go down there,its

exhausting so have to wait til next week when I can get a ride down.I wish I

had a scanner,id scan what I got and show all you.Trust you guys more than

the damn docs,maybe once I get those Ill try and find a scanner,and ya'l can

come up with a dx,then we will make a new report from msers life,it could

say this pt has been through hell and she has a probable ms dx.lol.I wish!

Lol.but I really am gonna try my hardest next week so I can post some of the

info here on the group,maybe there is more of those oh its only plus one so

it dosnt count on there.HOpe everyones havn a good day.big hugzz,cassy

[payngabby72@ <mailto:payngabby72%40yahoo.com> yahoo.com] wrote:

thanks sharon,I have most of my records,jus dont understand most of em.lol.

[wobbletowalk@ <mailto:wobbletowalk%40yahoo.com> yahoo.com] wrote:

I would recommend that everyone get copies of their medical records, tests,

and MRI films. It's always a good idea to have them. Cassy -- get your

records!

Sharon

Re: lets figure out what Cassy has.

wow renee,really? See they didnt even tell me anything.I seen it in read and

was like whats that?and why?and there like nothing its only 1 its

normal.ughhh. insane! What was plus one on yours?I need to get my records

from there but I think it was one of the cell counts.Have you had evoked

potentials done?

[dixmstxyahoo (DOT) com] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again

cassie, being just under the mark for a definitive dx. and they can not tell

you you don't have MS as long as you are having symtoms. MS remains a

possibility.

in Texas

cassandra workmn <payngabby72@ yahoo.com> wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when

they pulled it up on the computer there was something in red(abnormal) it

was I think the cbc I dont know but it was + 1,I asked they said it was

normal even with plus one.Whatever. I dont know.When the intern that did my

spinal called me and told me it was negative he said ms is now ruled out,and

they are ruling things out as they go.My symptoms are Pain,in my arms(all

and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago

it slowly infested my body) weakness(everywere) makes me short of

breath,spasms( arms legs and back) twitching(arms and legs)stiffness, pain

behind my right eye,numbness in my back,feet,hands and....

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Posted
Posted

Yes. They thought I ws kidding when I said I have my medical records since 1999 but in truth, I actually have them from 1996. I was even having "wierd stuff" back then. Had my Radioactive uptake test today. I asked how it looked and he said, I really didn't take a look Tony was developing them(It's a digital system) So there's no telling what it shows. I go back tomorrow morning at 9:30am for the geiger counter testTo see how much radioactive material is still in the thyroid) And will hopefully know something by Tuesday. is doing alot better. The pediatric periodontist milked her saliva gland and it was flowing so he then looked around her teeth. The dentist had only looked at the lower jaw and knew if anything needed to be done it would probably be traumatic and this guy uses the conscious sedation or twilight meds so the kids are rested and don't remember. He touched one of her top teeth and it

wiggled, it was soo abcessed she had a black eye from swelling around her eye. The dentist sent us across the street to her pediatrician and he gave her 1 GM Rocephin and she is taking Augmentin at adult strength and we go back next Thursday to pull the tooth and to put a spacer in the spot. The swelling is really down today. My mom saw her and said my poor baby, your soo swollen. I said Mom if you think she's swollen now, you should have seen her Tuesday. Soo it's been a busy week here. In just 2 1/2 days I have 150 emails to read! I just can't delete without reading ' in Texas cassandra workmn wrote: thanks sharon,I have most of my records,jus dont understand most of em.lol.[wobbletowalk] wrote:I would recommend that everyone get copies of their medical records, tests, and MRI films. It's always a good idea to have them. Cassy -- get your records!Sharon Re: lets figure out what Cassy has.wow renee,really? See they didnt even tell me anything.I seen it in read and was like whats

that?and why?and there like nothing its only 1 its normal.ughhh. insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstxyahoo (DOT) com] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72@ yahoo.com> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever. I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they

go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms( arms legs and back) twitching(arms and legs)stiffness, pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency) and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp isnotrite)bothers me.Its alot but it all came slow[lastinline10@ yahoo.com] wrote:Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first

test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this....'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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no...I think they are tired of poking on me for now.My work called today to ask again when I was coming back and I said the Neuro turned it over to my PCP and we won't know anything till after these tests. I need my medical paid for as long as possible! 'cassandra workmn wrote: wow renee,really?See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh.insane! What was

plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstx] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out

as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms(arms legs and back) twitching(arms and legs)stiffness,pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp is notrite)bothers me.Its alot but it all came slow[lastinline10] wrote:Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do

huh..... since my niece had MG I asked for that to be my first test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning......she is such a blast to watch. Winking, cassandra workmn <payngabby72> wrote: Thanks your an angel.Well I dont know if I can make this short.lol.I was mis dx'd arthritis and fibromyalgia in the beginning.Then got worse symptoms and the fibro wasnt

explaining it.Seen a reumo she said no way fibro,its neuro for sure.So ahe does a workup to make sure all blood ok.So my neuro followed my care noticed I was getting worse says maybe TM then does emg/nerve cond.study,I guess it showed Radiculopathy she finally tells me she is pretty sure its Devics,seen specialist did spinal and nmo (for devics) blood test.bith normal,seen ucsf doc he says not that or anything dymelinating maybe reumo problem seen her again she says nope,did....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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Posted
Posted

Yes you do need your medical paid for.I hope everything works out .What

tests are they gonna be doing?So your neuro turned it over to you Pcp?What does

that mean?Will your neuro still be seeing you? HOw is megan?

[dixmstx@...] wrote:

no...I think they are tired of poking on me for now.My work called today to ask

again when I was coming back and I said the Neuro turned it over to my PCP and

we won't know anything till after these tests. I need my medical paid for as

long as possible!

'

cassandra workmn wrote:

wow renee,really?See they didnt even tell me anything.I seen it in

read and was like whats that?and why?and there like nothing its only 1 its

normal.ughhh.insane! What was plus one on yours?I need to get my records from

there but I think it was one of the cell counts.Have you had evoked potentials

done?

[dixmstx@...] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they

pulled it up on the computer there was something in red(abnormal) it was I think

the cbc I dont know but it was + 1,I asked they said it was normal even with

plus one.Whatever.I dont know.When the intern that did my spinal called me and

told me it was negative he said ms is now ruled out,and they are ruling things

out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet)

and low back and neck(wasnt all these a yr.ago it slowly infested my body)

weakness(everywere) makes me short of breath,spasms(arms legs and back)

twitching(arms and legs)stiffness,pain behind my right eye,numbness in my

back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is not

rite)

bothers me.Its alot but it all came slow

[lastinline10@...] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for. Crazy what our bodies

do huh..... since my niece had MG I asked for that to be my first test, ruled

that our quick. I know our family history so I started going through it with my

doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They

thought I had had a stroke when I first came in the ER, but without my face

" drooping " on one side they ruled that out fast too. What are your symptoms, I

will look up in some of my medical books I have, some books that are older and

it might help to go back to the basics. Hope your having a good day, I am

watching Victorya turn 20 months old today and getting out everything I put away

this morning......she is such a blast to watch. Winking,

cassandra workmn wrote: Thanks ....

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The tumor in my thyroid. I've finally been off my thyroid med for long enough for the uptake test and from there if it's hot, I'll have to take the radioactive pills to kill the thyroid or if it's cold I'll have to have a fine needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2 months being off my meds. I was down to 150 and my goal was 140 and now I weigh 180. I've had to be new clothes and I'm eating less than 1200 cals a day in Texascassandra workmn wrote: Yes you do need your medical paid for.I hope everything works out .What tests are they gonna be doing?So your neuro turned it over to you Pcp?What does that mean?Will your neuro still be seeing you? HOw is megan?[dixmstx] wrote:no...I think they are tired of poking on me for now.My work called today to ask again when I was coming back and I said the Neuro turned it over to my PCP and we won't know anything till after these tests. I need my medical paid for as long as possible!'cassandra workmn <payngabby72> wrote:wow renee,really?See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh.insane! What was plus one on yours?I need to get my records from there but

I think it was one of the cell counts.Have you had evoked potentials done?[dixmstx] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms are Pain,in my arms(all and hands)

legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms(arms legs and back) twitching(arms and legs)stiffness,pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp is notrite)bothers me.Its alot but it all came slow[lastinline10] wrote:Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for. Crazy what our bodies do huh..... since my niece had MG I asked for that to be my first

test, ruled that our quick. I know our family history so I started going through it with my doc in the hospital, they did 3-4 cat's and 4-5 MRI's in just a few days. They thought I had had a stroke when I first came in the ER, but without my face "drooping" on one side they ruled that out fast too. What are your symptoms, I will look up in some of my medical books I have, some books that are older and it might help to go back to the basics. Hope your having a good day, I am watching Victorya turn 20 months old today and getting out everything I put away this morning......she is such a blast to watch. Winking, cassandra workmn <payngabby72> wrote: Thanks ....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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Hey .Im so worried.I hope everything is ok.Please let us know how tomorow

goes,and tuesday.Oh.your poor baby.Shes had a tough time hu?What a trooper! GETS

it from her mommy!Dont we all just have wonderful kids on here?Me and my sis in

law were talkn about her journey to get her son an accurate dx,PDD(pervasive

development disorder(sp?) an autism spectrum.She was saying how in the beggining

she felt kinda bad,like sorry for him and her,and she was very sensitive about

what people said to her about him.You know like family,or when they go out.Now

she just says hes autistic,or go to hell.lol.Did anyone watch Oprah yesterday?it

was about Autism.I think my 3 yr.old possibly has a spectrum of autism,do you

think I need to pursue a dx?I refuse to medicate her.My sis in law gives my

nephew melatonin.When she was here I gave my daughter a tiny amount compared to

what he takes and she was way to sleepy.It is just so hard,shes a handful,and

taking her out is usually very hard.She

screams and crys and its hard.

[dixmstx@...] wrote:

Yes. They thought I ws kidding when I said I have my medical records since 1999

but in truth, I actually have them from 1996. I was even having " wierd stuff "

back then.

Had my Radioactive uptake test today. I asked how it looked and he said, I

really didn't take a look Tony was developing them(It's a digital system) So

there's no telling what it shows. I go back tomorrow morning at 9:30am for the

geiger counter testTo see how much radioactive material is still in the thyroid)

And will hopefully know something by Tuesday.

is doing alot better. The pediatric periodontist milked her saliva gland

and it was flowing so he then looked around her teeth. The dentist had only

looked at the lower jaw and knew if anything needed to be done it would probably

be traumatic and this guy uses the conscious sedation or twilight meds so the

kids are rested and don't remember. He touched one of her top teeth and it

wiggled, it was soo abcessed she had a black eye from swelling around her eye.

The dentist sent us across the street to her pediatrician and he gave her 1 GM

Rocephin and she is taking Augmentin at adult strength and we go back next

Thursday to pull the tooth and to put a spacer in the spot. The swelling is

really down today. My mom saw her and said my poor baby, your soo swollen. I

said Mom if you think she's swollen now, you should have seen her Tuesday.

Soo it's been a busy week here. In just 2 1/2 days I have 150 emails to read!

I just can't delete without reading

' in Texas

cassandra workmn wrote:

thanks sharon,I have most of my records,jus dont understand most of

em.lol.

[wobbletowalk@...] wrote:

I would recommend that everyone get copies of their medical records, tests, and

MRI films. It's always a good idea to have them. Cassy -- get your records!

Sharon

Re: lets figure out what Cassy has.

wow renee,really? See they didnt even tell me anything.I seen it in read and was

like whats that?and why?and there like nothing its only 1 its normal.ughhh.

insane! What was plus one on yours?I need to get my records from there but I

think it was one of the cell counts.Have you had evoked potentials done?

[dixmstxyahoo (DOT) com] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn <payngabby72@ yahoo.com> wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they

pulled it up on the computer there was something in red(abnormal) it was I think

the cbc I dont know but it was + 1,I asked they said it was normal even with

plus one.Whatever. I dont know.When the intern that did....

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Posted

I hope it turns out ok.What med do you take?I take synthroid 25 mg. They always

check and its ok but I wonder if the mg's were more if it would be easier to

lose.I swear I can go on a strict diet and still not lose,because of not enough

exercise I think.I either stay the same or gain.ugh.How have been feeling aside

from all this?

[dixmstx@...] wrote:

The tumor in my thyroid. I've finally been off my thyroid med for long enough

for the uptake test and from there if it's hot, I'll have to take the

radioactive pills to kill the thyroid or if it's cold I'll have to have a fine

needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2

months being off my meds. I was down to 150 and my goal was 140 and now I weigh

180. I've had to be new clothes and I'm eating less than 1200 cals a day

in Texas

cassandra workmn wrote:

Yes you do need your medical paid for.I hope everything works out

.What tests are they gonna be doing?So your neuro turned it over to you

Pcp?What does that mean?Will your neuro still be seeing you? HOw is megan?

[dixmstx@...] wrote:

no...I think they are tired of poking on me for now.My work called today to ask

again when I was coming back and I said the Neuro turned it over to my PCP and

we won't know anything till after these tests. I need my medical paid for as

long as possible!

'

cassandra workmn wrote:

wow renee,really?See they didnt even tell me anything.I seen it in read and was

like whats that?and why?and there like nothing its only 1 its

normal.ughhh.insane! What was plus one on yours?I need to get my records from

there but I think it was one of the cell counts.Have you had evoked potentials

done?

[dixmstx@...] wrote:

Mine was the same +1 it has to be+2 to be positive. There we go again cassie,

being just under the mark for a definitive dx. and they can not tell you you

don't have MS as long as you are having symtoms. MS remains a possibility.

in Texas

cassandra workmn wrote:

ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they

pulled it up on the computer there was something in red(abnormal) it was I think

the cbc I dont know but it was + 1,I asked they said it was normal even with

plus one.Whatever.I dont know.When the intern that did my spinal called me and

told me it was negative he said ms is now ruled out,and they are ruling things

out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet)

and low back and neck(wasnt all these a yr.ago it slowly infested my body)

weakness(everywere) makes me short of breath,spasms(arms legs and back)

twitching(arms and legs)stiffness,pain behind my right eye,numbness in my

back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said

probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot

in morning,appetite loss,bad cramping in my feet and arms and legs,walking

problems, and the heat(even if my body temp is not

rite)

bothers me.Its alot but it all came slow

[lastinline10@...] wrote:

Good gracious, Have you had a spinal tap? That was the only way they come up

with MS for me. Not a pleasant test, but maybe necessary. If all the signs point

to Neuro then that's what they should be testing you for.....

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Plain old children's benadryl works wonders. Kaleb took it at bedtime and it helped with his allergies and helped him fall asleep. He takes 50mg (adult dose)now since he weighs 95 lbs and he takes 3 to 6mg of melatonin when needed but our pedi told him not to exceed 6 and to take the 3 and try to get by with that then take the other 3 if it doesn't work. He has a problem shutting down. Always has. When he was a newborn he would sleep from midnight to 6am and then 2 hrs during the day(2 ihr naps) all my friends had these babies that layed down for 12 hrs at night and would sleep half the day. Meg's able to put herself to sleep so it's alot better with her. That's why Kaleb slept with me till he was 7 is because I'd fall asleep before him and didn't feel safe with him awake so he stayed in my room with me. cassandra workmn wrote: Hey .Im so worried.I hope everything is ok.Please let us know how tomorow goes,and tuesday.Oh.your poor baby.Shes had a tough time hu?What a trooper! GETS it from her mommy!Dont we all just have wonderful kids on here?Me and my sis in law were talkn about her journey to get her son an accurate dx,PDD(pervasive development disorder(sp?) an autism spectrum.She was saying how in the beggining she felt kinda bad,like sorry for him and her,and she was very sensitive about what people said to her about him.You know like family,or when they go out.Now she just says hes autistic,or go to

hell.lol.Did anyone watch Oprah yesterday?it was about Autism.I think my 3 yr.old possibly has a spectrum of autism,do you think I need to pursue a dx?I refuse to medicate her.My sis in law gives my nephew melatonin.When she was here I gave my daughter a tiny amount compared to what he takes and she was way to sleepy.It is just so hard,shes a handful,and taking her out is usually very hard.Shescreams and crys and its hard.[dixmstx] wrote:Yes. They thought I ws kidding when I said I have my medical records since 1999 but in truth, I actually have them from 1996. I was even having "wierd stuff" back then.Had my Radioactive uptake test today. I asked how it looked and he said, I really didn't take a look Tony was developing them(It's a digital system) So there's no telling what it shows. I go back tomorrow morning at 9:30am for the geiger counter testTo see how much radioactive material is still

in the thyroid) And will hopefully know something by Tuesday. is doing alot better. The pediatric periodontist milked her saliva gland and it was flowing so he then looked around her teeth. The dentist had only looked at the lower jaw and knew if anything needed to be done it would probably be traumatic and this guy uses the conscious sedation or twilight meds so the kids are rested and don't remember. He touched one of her top teeth and it wiggled, it was soo abcessed she had a black eye from swelling around her eye. The dentist sent us across the street to her pediatrician and he gave her 1 GM Rocephin and she is taking Augmentin at adult strength and we go back next Thursday to pull the tooth and to put a spacer in the spot. The swelling is really down today. My mom saw her and said my poor baby, your soo swollen. I said Mom if you think she's swollen now, you should have seen her Tuesday.Soo it's been a busy week here. In just 2 1/2 days I have

150 emails to read! I just can't delete without reading' in Texascassandra workmn <payngabby72> wrote:thanks sharon,I have most of my records,jus dont understand most of em.lol.[wobbletowalk] wrote:I would recommend that everyone get copies of their medical records, tests, and MRI films. It's always a good idea to have them. Cassy -- get your records!Sharon Re: lets figure out what Cassy has.wow renee,really? See they didnt even tell me anything.I seen it in read and was like whats that?and why?and

there like nothing its only 1 its normal.ughhh. insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstxyahoo (DOT) com] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72@ yahoo.com> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever. I dont know.When the intern that did....'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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I also forgot to say, if you think there is something wrong pursue it. Kaleb's Elementary school counselor had the nerve to say to me when I was pregnant with Meg "That is soo good, now you won't concentrate on Kaleb as much" I knew something was wrong with Kaleb. He started reading at 2 1/2 and knew about sesquential numbers, things you really can't teach he got, but he still can't tie his shoes the way you and I do. I pushed and pushed, made them test him then took him to a neuropsychologist that dx'd himin the autistic spectrum. The schools attitude was as long as he making good grades, why rock the boat. I spoke to our regions special ed coordinator and found out my rights, gifted children fall under special ed also, and he was in speech so the had do do an ARD for him. Finally I took him to a Psychologist in Dallas that was the regions expert on Asperger's and had him evaluated. All I can tell you is to go with your gut. You'll have

people tell you to let it go, why make a big deal about it but I firmly believe the reason Kaleb is able to function in school as well as he does instead of being anti-social is because I pushed for the best treatment options. And we did use Concerta for awhile, only when his grades were dropping and he could not concentrate.When I divorced his dad, he tried to put it in the divorce decree I could not take Kaleb to anymore specialist. His lawyer told me that. I told him I would report both of them to child endangerment because Kaleb's treatment was overseen by a Dr and I felt his opinion was better than their's. He said "Oh it's a Dr not a psychologist." And I said Yea, I guess must have tleft that out. He didn't believe in any of the treatments. But then a Dr had dx'd him with bi-polar and he refused to take the meds. He liked the manic parts and he would drink 6-8 beers at night to put himself to sleep.cassandra workmn

wrote: Hey .Im so worried.I hope everything is ok.Please let us know how tomorow goes,and tuesday.Oh.your poor baby.Shes had a tough time hu?What a trooper! GETS it from her mommy!Dont we all just have wonderful kids on here?Me and my sis in law were talkn about her journey to get her son an accurate dx,PDD(pervasive development disorder(sp?) an autism spectrum.She was saying how in the beggining she felt kinda bad,like sorry for him and her,and she was very sensitive about what people said to her

about him.You know like family,or when they go out.Now she just says hes autistic,or go to hell.lol.Did anyone watch Oprah yesterday?it was about Autism.I think my 3 yr.old possibly has a spectrum of autism,do you think I need to pursue a dx?I refuse to medicate her.My sis in law gives my nephew melatonin.When she was here I gave my daughter a tiny amount compared to what he takes and she was way to sleepy.It is just so hard,shes a handful,and taking her out is usually very hard.Shescreams and crys and its hard.[dixmstx] wrote:Yes. They thought I ws kidding when I said I have my medical records since 1999 but in truth, I actually have them from 1996. I was even having "wierd stuff" back then.Had my Radioactive uptake test today. I asked how it looked and he said, I really didn't take a look Tony was developing them(It's a digital system) So there's no telling what it shows. I go back tomorrow

morning at 9:30am for the geiger counter testTo see how much radioactive material is still in the thyroid) And will hopefully know something by Tuesday. is doing alot better. The pediatric periodontist milked her saliva gland and it was flowing so he then looked around her teeth. The dentist had only looked at the lower jaw and knew if anything needed to be done it would probably be traumatic and this guy uses the conscious sedation or twilight meds so the kids are rested and don't remember. He touched one of her top teeth and it wiggled, it was soo abcessed she had a black eye from swelling around her eye. The dentist sent us across the street to her pediatrician and he gave her 1 GM Rocephin and she is taking Augmentin at adult strength and we go back next Thursday to pull the tooth and to put a spacer in the spot. The swelling is really down today. My mom saw her and said my poor baby, your soo swollen. I said Mom if you think she's swollen now, you should

have seen her Tuesday.Soo it's been a busy week here. In just 2 1/2 days I have 150 emails to read! I just can't delete without reading' in Texascassandra workmn <payngabby72> wrote:thanks sharon,I have most of my records,jus dont understand most of em.lol.[wobbletowalk] wrote:I would recommend that everyone get copies of their medical records, tests, and MRI films. It's always a good idea to have them. Cassy -- get your records!Sharon Re: lets figure out what Cassy has.wow renee,really? See

they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh. insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstxyahoo (DOT) com] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72@ yahoo.com> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever. I dont know.When the intern that

did....'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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I have too much T4. My body doesn't break it down into T3 so I take Armour Thyroid 130mg. It the old Pig thyroid. The synthetics are T4 then your body breaks it down so I can only take Armourcassandra workmn wrote: I hope it turns out ok.What med do you take?I take synthroid 25 mg. They always check and its ok but I wonder if the mg's were more if it would be easier to lose.I swear I can go on a strict diet and still not lose,because of not enough exercise I think.I either stay the same or gain.ugh.How

have been feeling aside from all this?[dixmstx] wrote:The tumor in my thyroid. I've finally been off my thyroid med for long enough for the uptake test and from there if it's hot, I'll have to take the radioactive pills to kill the thyroid or if it's cold I'll have to have a fine needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2 months being off my meds. I was down to 150 and my goal was 140 and now I weigh 180. I've had to be new clothes and I'm eating less than 1200 cals a day in Texascassandra workmn <payngabby72> wrote:Yes you do need your medical paid for.I hope everything works out .What tests are they gonna be doing?So your neuro turned it over to you Pcp?What does that mean?Will your neuro still be seeing you? HOw is megan?[dixmstx] wrote:no...I think they are tired of poking on me for now.My work called today to ask again when I was coming back and I said the Neuro turned it over to my PCP and we won't know anything till after these tests. I need my medical paid for as long as possible!'cassandra workmn <payngabby72> wrote:wow renee,really?See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh.insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstx] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they

can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms(arms legs and back) twitching(arms and legs)stiffness,pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain

(bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp is notrite)bothers me.Its alot but it all came slow[lastinline10] wrote:Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for.....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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Yea, once you gain it from the sluggish thyroid, it doesn't just come off when you get back on, I'll be dieting for a yr to get off wt that I gained in 2 months '"lastinline10@..." wrote: I am taking synthroid too, I told my doc that maybe if they increased the dose I would lose some of the weight I have put back on from having a "sluggish" thyroid. He said it doesn't work like that. I need a doc that will just suck the fat right out of me, I hate

being heavy, With out exercising I know I am losing muscle. If I exercise I can forget doing anything else in the day or sometimes 2 days. If you figure out a solution let me know. cassandra workmn <payngabby72> wrote: I hope it turns out ok.What med do you take?I take synthroid 25 mg. They always check and its ok but I wonder if the mg's were more if it would be easier to lose.I swear I can go on a strict diet and still not lose,because of not enough exercise I think.I either stay the same or gain.ugh.How have been feeling aside from all this?[dixmstx] wrote:The tumor in my thyroid. I've finally been off my thyroid med for long enough for the uptake test and from there if it's hot, I'll have to take the radioactive pills to kill the thyroid or

if it's cold I'll have to have a fine needle biopsy. Then maybe I can get back on my meds. I have gained 30 pds in 2 months being off my meds. I was down to 150 and my goal was 140 and now I weigh 180. I've had to be new clothes and I'm eating less than 1200 cals a day in Texascassandra workmn <payngabby72> wrote:Yes you do need your medical paid for.I hope everything works out .What tests are they gonna be doing?So your neuro turned it over to you Pcp?What does that mean?Will your neuro still be seeing you? HOw is megan?[dixmstx] wrote:no...I think they are tired of poking on me for now.My work called today to ask again when I was coming back and I said the Neuro turned it over to my PCP and we won't know anything till after these tests. I need my medical paid for as long as

possible!'cassandra workmn <payngabby72> wrote:wow renee,really?See they didnt even tell me anything.I seen it in read and was like whats that?and why?and there like nothing its only 1 its normal.ughhh.insane! What was plus one on yours?I need to get my records from there but I think it was one of the cell counts.Have you had evoked potentials done?[dixmstx] wrote:Mine was the same +1 it has to be+2 to be positive. There we go again cassie, being just under the mark for a definitive dx. and they can not tell you you don't have MS as long as you are having symtoms. MS remains a possibility. in Texascassandra workmn <payngabby72> wrote:ah.thats sweet.Yes I have had a spinal.They said it was negative,but when they pulled

it up on the computer there was something in red(abnormal) it was I think the cbc I dont know but it was + 1,I asked they said it was normal even with plus one.Whatever.I dont know.When the intern that did my spinal called me and told me it was negative he said ms is now ruled out,and they are ruling things out as they go.My symptoms are Pain,in my arms(all and hands) legs(all and feet) and low back and neck(wasnt all these a yr.ago it slowly infested my body) weakness(everywere) makes me short of breath,spasms(arms legs and back) twitching(arms and legs)stiffness,pain behind my right eye,numbness in my back,feet,hands and forearms,stomach pain (bad,sometimes vomit) neuro said probly spasms.,bladder trouble (hard to go and finish) bowels(urgency)and alot in morning,appetite loss,bad cramping in my feet and arms and legs,walking problems, and the heat(even if my body temp is notrite)bothers me.Its alot but it all came slow[lastinline10] wrote:Good gracious, Have you had a spinal tap? That was the only way they come up with MS for me. Not a pleasant test, but maybe necessary. If all the signs point to Neuro then that's what they should be testing you for..... Don't get soaked. Take a quick peek at the forecast with theYahoo! Search weather shortcut. '

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

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oh my.This is your ex your talkn about?6-8 beers at night?My fiance was recently

dx'd bi-polar.He use to drink(about a lil over 4 yrs.ago)then I jus thought he

was crazy.lol.for drinkn like a fish it was a rocky road for us.He is constantly

up and down even with meds.No abuse,but I swear sometimes I really feel like im

on a roller coaster ride with him and his moods.My daughter is very clingy if

she isnt around someone she is close with it seems to effect her alot.The other

day it took me 15 minutes to go the doc cuz she was so upset I was leaving I

literally had to tear her off my leg,sit her down and explain.Sometimes it takes

an hr. To get her ready everything we do is a process or chore.Its

exhausting.She is very whiney,if something isnt right to her it can be a half

hr. To an hr. Of insanity.screaming,crying,throwing things.I always hear,whats

wrong with her,or she needs disciplined,or shes to attached.I have learned to

just ignore it Im workn with her alot but it is

difficult,to say the least.hugzzz

[dixmstx@...] wrote:

I also forgot to say, if you think there is something wrong pursue it. Kaleb's

Elementary school counselor had the nerve to say to me when I was pregnant with

Meg " That is soo good, now you won't concentrate on Kaleb as much " I knew

something was wrong with Kaleb. He started reading at 2 1/2 and knew about

sesquential numbers, things you really can't teach he got, but he still can't

tie his shoes the way you and I do. I pushed and pushed, made them test him then

took him to a neuropsychologist that dx'd himin the autistic spectrum. The

schools attitude was as long as he making good grades, why rock the boat. I

spoke to our regions special ed coordinator and found out my rights, gifted

children fall under special ed also, and he was in speech so the had do do an

ARD for him. Finally I took him to a Psychologist in Dallas that was the regions

expert on Asperger's and had him evaluated.

All I can tell you is to go with your gut. You'll have people tell you to let

it go, why make a big deal about it but I firmly believe the reason Kaleb is

able to function in school as well as he does instead of being anti-social is

because I pushed for the best treatment options. And we did use Concerta for

awhile, only when his grades were dropping and he could not concentrate.When I

divorced his dad, he tried to put it in the divorce decree I could not take

Kaleb to anymore specialist. His lawyer told me that. I told him I would report

both of them to child endangerment because Kaleb's treatment was overseen by a

Dr and I felt his opinion was better than their's. He said " Oh it's a Dr not a

psychologist. " And I said Yea, I guess must have tleft that out. He didn't

believe in any of the treatments. But then a Dr had dx'd him with bi-polar and

he refused to take the meds. He liked the manic parts and he would drink 6-8

beers at night to put himself to sleep.

cassandra workmn wrote:

Hey .Im so worried.I hope everything is ok.Please let us know how

tomorow goes,and tuesday.Oh.your poor baby.Shes had a tough time hu?What a

trooper! GETS it from her mommy!Dont we all just have wonderful kids on here?Me

and my sis in law were talkn about her journey to get her son an accurate

dx,PDD(pervasive development disorder(sp?) an autism spectrum.She was saying how

in the beggining she felt kinda bad,like sorry for him and her,and she was very

sensitive about what people said to her about him.You know like family,or when

they go out.Now she just says hes autistic,or go to hell.lol.Did anyone watch

Oprah yesterday?it was about Autism.I think my 3 yr.old possibly has a spectrum

of autism,do you think I need to pursue a dx?I refuse to medicate her.My sis in

law gives my nephew melatonin.When she was here I gave my daughter a tiny amount

compared to what he takes and she was way to sleepy.It is just so hard,shes a

handful,and taking her out is usually

very hard.She

screams and crys and its hard.

[dixmstx@...] wrote:

Yes. They....

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