Re: PLEASE ANSWER.......

[Guest guest]

We are the parents of Marilyn Ogan. Our son-in-law is Rick. We are the

grandparents of (CHARGER) 8 years and Kenny 11 years. They live in

Indianapolis IN. We live in Wabash IN. Marilyn has had to drop off the

list for a while because she is up to her ears in plans for the 2001 CHARGE

Conference in Indianapolis. When I find a post that I think she needs to

see I forward it on to her.

While I am on tonight I would like to take the time to encourage

Grandparents to attend the conference. I went to Boston and we both went to

Houston. We learned so much. Hope to see many grandparents there.

Liz Young and Dick

> -------------------------------------------------------------------->

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

, my name is sherry and we live in Kaufman Texas about 50 miles from

Dallas. Our child with charge is 10 almost 11 his name is Zachary. I don't

mind anyone knowing who we are or where we live , I think it's a great idea.

Thanks for the e-mail

PLEASE ANSWER.......

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

, my name is sherry and we live in Kaufman Texas about 50 miles from

Dallas. Our child with charge is 10 almost 11 his name is Zachary. I don't

mind anyone knowing who we are or where we live , I think it's a great idea.

Thanks for the e-mail

PLEASE ANSWER.......

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

, Iam sherry we live in Kaufman Texas, I have two children Candace 13-

Zachary 10.Zachary has charge , I would to hear from you , and to know about

your children-sherry LeBlanc

Re: PLEASE ANSWER.......

> I am in Kentucky near paducah...(corner of the four

> states Il.Mo.Tn.Ky.)....I'm Ralston,mother of

> amanda 17 and trist-mae 13(charger)...I don't post

> much,but do like to read all the messages..I do post

> when I see something interesting,or can relate

> too..but seems like the regular people that do post

> all have younger kids with the early problems and

> surgeries that we've already been through....

> --- mary saunders wrote:

> > I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON

> > THE LIST AND THE AGE

> > AND SEX OF YOUR CHILD WITH CHARGE...

> >

> > IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE

> > KNOWING WHAT STATE AND

> > COUNTRY U R IN.....PLEASE REPLY BACK..

> >

> > THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE

> > MOST PART, MOST OF

> > US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R

> > LOCATED...AND I KNOW SOME

> > PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS

> > AS THEM..

> >

> > JUST A THOUGHT..

> >

> > THANKS,

> > MARY, IN PENNSYLVANIA

> > MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

> >

> > -------------------------- eGroups Sponsor

> >

> > " 5th CHARGE Syndrome International Conference,

> > Indianapolis, Indiana, July

> > 20-22, 2001. Information will be available first in

> > CHARGE Accounts, the

> > CHARGE Syndrome Foundation's newsletter. "

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the

> > newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

> >

>

>

> __________________________________________________

>

[Guest guest]

, Iam sherry we live in Kaufman Texas, I have two children Candace 13-

Zachary 10.Zachary has charge , I would to hear from you , and to know about

your children-sherry LeBlanc

Re: PLEASE ANSWER.......

> I am in Kentucky near paducah...(corner of the four

> states Il.Mo.Tn.Ky.)....I'm Ralston,mother of

> amanda 17 and trist-mae 13(charger)...I don't post

> much,but do like to read all the messages..I do post

> when I see something interesting,or can relate

> too..but seems like the regular people that do post

> all have younger kids with the early problems and

> surgeries that we've already been through....

> --- mary saunders wrote:

> > I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON

> > THE LIST AND THE AGE

> > AND SEX OF YOUR CHILD WITH CHARGE...

> >

> > IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE

> > KNOWING WHAT STATE AND

> > COUNTRY U R IN.....PLEASE REPLY BACK..

> >

> > THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE

> > MOST PART, MOST OF

> > US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R

> > LOCATED...AND I KNOW SOME

> > PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS

> > AS THEM..

> >

> > JUST A THOUGHT..

> >

> > THANKS,

> > MARY, IN PENNSYLVANIA

> > MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

> >

> > -------------------------- eGroups Sponsor

> >

> > " 5th CHARGE Syndrome International Conference,

> > Indianapolis, Indiana, July

> > 20-22, 2001. Information will be available first in

> > CHARGE Accounts, the

> > CHARGE Syndrome Foundation's newsletter. "

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the

> > newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi,we are , Sherry, Candace-13, Zach-10 Zach has charge, we live in

Kaufman Texas.

Re: PLEASE ANSWER.......

> Hi, Our names are and Debbie Cachia,and our daughter`s name is

> Patton Cachia, she is 3 years old and we live in Harcourt

> Ontario, Canada.

>

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

Hi,we are , Sherry, Candace-13, Zach-10 Zach has charge, we live in

Kaufman Texas.

Re: PLEASE ANSWER.......

> Hi, Our names are and Debbie Cachia,and our daughter`s name is

> Patton Cachia, she is 3 years old and we live in Harcourt

> Ontario, Canada.

>

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

Hi, we are , Sherry, Candace-13, Zach-10(charge), we live in Kaufman Texas

Re: Re: PLEASE ANSWER.......

HI My family is myself (robin) my husband (alan) and our two children - Ally who has charge and is 26 mths and Carson (healthy) who is 3 weeks. We live in Bristol VA (the major boonies) which is in Southwest VA 2 hrs south of Roanoke VA and 1 1/2 hrs north of Knoxville TN in the Appalachian Mountains (and 3 hrs from a decent hosptial LOL) "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Hi, we are , Sherry, Candace-13, Zach-10(charge), we live in Kaufman Texas

Re: Re: PLEASE ANSWER.......

HI My family is myself (robin) my husband (alan) and our two children - Ally who has charge and is 26 mths and Carson (healthy) who is 3 weeks. We live in Bristol VA (the major boonies) which is in Southwest VA 2 hrs south of Roanoke VA and 1 1/2 hrs north of Knoxville TN in the Appalachian Mountains (and 3 hrs from a decent hosptial LOL) "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

My name is Naoko Kondo andI live in Matsumoto City, Japan.

I have a daughter, 2 year and 2 months old,who is diagnosed as having

CHARGE association with coloboma of choroid, ventricular septal defect,

growth and developmental delay, hard of hearing,cleft lip and palate,

facial palsy and others.

******************************************

e-mail: naonao.kondo@...

???http://homepage2.nifty.com/CHARGE-shoko/

******************************************

PLEASE ANSWER.......

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

[Guest guest]

My name is Naoko Kondo andI live in Matsumoto City, Japan.

I have a daughter, 2 year and 2 months old,who is diagnosed as having

CHARGE association with coloboma of choroid, ventricular septal defect,

growth and developmental delay, hard of hearing,cleft lip and palate,

facial palsy and others.

******************************************

e-mail: naonao.kondo@...

???http://homepage2.nifty.com/CHARGE-shoko/

******************************************

PLEASE ANSWER.......

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

[Guest guest]

-

We live near Austin, TX and our daughter Sara was born 11 days ago (10/25)

with CHARgE. We have another child, , who is 5 and doesn't have CHARGE.

BTW Sara will have her heart surgery on Tuesday morning for her truncus

arteriosus with interrupted aortic arch and VSD.

Debbie & Lenny Tropiano

From the keyboard of mary saunders:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

--

+=== Debbie Tropiano ==== Mommy to Elliot & Sara ===+

| " Mom " to Nickie (the psychotic mutt) and Lusi (sweetie pup). |

| " Stepmom " to Piper (the sable sheltie) and Dawn (tri-black sheltie). |

+= debbie@... ==================== URL http://www.icus.com/~debbie/ =+

[Guest guest]

-

We live near Austin, TX and our daughter Sara was born 11 days ago (10/25)

with CHARgE. We have another child, , who is 5 and doesn't have CHARGE.

BTW Sara will have her heart surgery on Tuesday morning for her truncus

arteriosus with interrupted aortic arch and VSD.

Debbie & Lenny Tropiano

From the keyboard of mary saunders:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

--

+=== Debbie Tropiano ==== Mommy to Elliot & Sara ===+

| " Mom " to Nickie (the psychotic mutt) and Lusi (sweetie pup). |

| " Stepmom " to Piper (the sable sheltie) and Dawn (tri-black sheltie). |

+= debbie@... ==================== URL http://www.icus.com/~debbie/ =+

[Guest guest]

My name is Michele Hatfield and my daughter Berkeley (CHARgE) is 17mo. My

son is 5.

We live in Bakersfield , CA, USA

PLEASE ANSWER.......

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

My name is Michele Hatfield and my daughter Berkeley (CHARgE) is 17mo. My

son is 5.

We live in Bakersfield , CA, USA

PLEASE ANSWER.......

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

Our family consists of my husband Mark and myself (Nicol) and our two

children-- 6 CHARGEr and Jordan 2. We live in Milwaukee, WI.

--

On Sun, 05 Nov 2000 15:46:36

mary saunders wrote:

>I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

>AND SEX OF YOUR CHILD WITH CHARGE...

>

>IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

>COUNTRY U R IN.....PLEASE REPLY BACK..

>

>THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

>US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

>PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

>JUST A THOUGHT..

>

>THANKS,

>MARY, IN PENNSYLVANIA

>MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

Get FREE Email/Voicemail with 15MB at Lycos Communications at

http://comm.lycos.com

I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

AND SEX OF YOUR CHILD WITH CHARGE...

IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

COUNTRY U R IN.....PLEASE REPLY BACK..

THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

JUST A THOUGHT..

THANKS,

MARY, IN PENNSYLVANIA

MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

" 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

20-22, 2001. Information will be available first in CHARGE Accounts, the

CHARGE Syndrome Foundation's newsletter. "

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

[Guest guest]

Our family consists of my husband Mark and myself (Nicol) and our two

children-- 6 CHARGEr and Jordan 2. We live in Milwaukee, WI.

--

On Sun, 05 Nov 2000 15:46:36

mary saunders wrote:

>I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

>AND SEX OF YOUR CHILD WITH CHARGE...

>

>IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

>COUNTRY U R IN.....PLEASE REPLY BACK..

>

>THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

>US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

>PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

>JUST A THOUGHT..

>

>THANKS,

>MARY, IN PENNSYLVANIA

>MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

Get FREE Email/Voicemail with 15MB at Lycos Communications at

http://comm.lycos.com

I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

AND SEX OF YOUR CHILD WITH CHARGE...

IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

COUNTRY U R IN.....PLEASE REPLY BACK..

THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

JUST A THOUGHT..

THANKS,

MARY, IN PENNSYLVANIA

MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

" 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

20-22, 2001. Information will be available first in CHARGE Accounts, the

CHARGE Syndrome Foundation's newsletter. "

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

[Guest guest]

on 11/5/00 2:46 PM, mary saunders at marebear@... wrote:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

I think this is a good idea. My child is 15, and we're in Missouri.

[Guest guest]

on 11/5/00 2:46 PM, mary saunders at marebear@... wrote:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

I think this is a good idea. My child is 15, and we're in Missouri.

[Guest guest]

on 11/5/00 2:46 PM, mary saunders at marebear@... wrote:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

I've posted on this, but I would like to see, too, where our kids are

educated. Thanks. Martha

[Guest guest]

Hi ,

My name is le Cote, and my son Caleb, who has CHARGE, was born on June

28th, 1998. We are from Hanmer, Ontario, Canada.

Hope this helps.

le

mary saunders wrote:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

Dear Naoko, I don't know very much about CHARGE. I do know one thing. You have

come to the right place. These parents and children know and experience CHARGE

everyday in their lives, they can help you much more than I can. I would just

say " welcome " and you are where you need to be. God bless! Great-aunt

Rose, 23 days old AND DOING WELL!

???????????? wrote:

> My name is Naoko Kondo andI live in Matsumoto City, Japan.

> I have a daughter, 2 year and 2 months old,who is diagnosed as having

> CHARGE association with coloboma of choroid, ventricular septal defect,

> growth and developmental delay, hard of hearing,cleft lip and palate,

> facial palsy and others.

>

> ******************************************

> e-mail: naonao.kondo@...

> ???http://homepage2.nifty.com/CHARGE-shoko/

> ******************************************

> PLEASE ANSWER.......

>

> > I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> > AND SEX OF YOUR CHILD WITH CHARGE...

> >

> > IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> > COUNTRY U R IN.....PLEASE REPLY BACK..

> >

> > THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> > US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> > PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

> >

> > JUST A THOUGHT..

> >

> > THANKS,

> > MARY, IN PENNSYLVANIA

> > MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

> >

> >

> > " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> > 20-22, 2001. Information will be available first in CHARGE Accounts, the

> > CHARGE Syndrome Foundation's newsletter. "

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

> >

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

Debbie and Lenny,

Do you have Family members near you that can assist with ? Is in

kindergarten? Do yawl need assistance? I CAN COME and help yawl if you want.

Just email me back and let me know the hospital, I can either drive Natan to his

school or come to the hospital and hold your hands. Let me know. God bless.

Debbie Tropiano wrote:

> -

>

> We live near Austin, TX and our daughter Sara was born 11 days ago (10/25)

> with CHARgE. We have another child, , who is 5 and doesn't have CHARGE.

>

> BTW Sara will have her heart surgery on Tuesday morning for her truncus

> arteriosus with interrupted aortic arch and VSD.

>

> Debbie & Lenny Tropiano

>

> >From the keyboard of mary saunders:

> > I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> > AND SEX OF YOUR CHILD WITH CHARGE...

> >

> > IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> > COUNTRY U R IN.....PLEASE REPLY BACK..

> >

> > THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> > US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> > PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

> >

> > JUST A THOUGHT..

> >

> > THANKS,

> > MARY, IN PENNSYLVANIA

> > MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

> --

> +=== Debbie Tropiano ==== Mommy to Elliot & Sara ===+

> | " Mom " to Nickie (the psychotic mutt) and Lusi (sweetie pup). |

> | " Stepmom " to Piper (the sable sheltie) and Dawn (tri-black sheltie). |

> += debbie@... ==================== URL http://www.icus.com/~debbie/ =+

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

Debbie and Lenny, I must appologize. I have 67 messages to read and respond or

not respond to. I have been very interested in Sara's birth, first of all

because

she was born right after our Great-neice, Rose and second of all because yawl

live

around Austin, which is close to where we live now. My husband and I spent a

lot

of time in Austin. We love Austin!

I logged on tonight and read your message, thinking it was for me, " " . BIG

mistake! However, if yawl need a hand to hold your hand, I would be more than

happy to come and hold it.

I feel so stupid for my previous message. I sure hope Sara is doing well, or

the

very best she can be doing. I hope is too! I can only imagine how

difficult it is for the older sibblings. Take care and God Bless!

Debbie Tropiano wrote:

> -

>

> We live near Austin, TX and our daughter Sara was born 11 days ago (10/25)

> with CHARgE. We have another child, , who is 5 and doesn't have CHARGE.

>

> BTW Sara will have her heart surgery on Tuesday morning for her truncus

> arteriosus with interrupted aortic arch and VSD.

>

> Debbie & Lenny Tropiano

>

> >From the keyboard of mary saunders:

> > I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> > AND SEX OF YOUR CHILD WITH CHARGE...

> >

> > IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> > COUNTRY U R IN.....PLEASE REPLY BACK..

> >

> > THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> > US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> > PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

> >

> > JUST A THOUGHT..

> >

> > THANKS,

> > MARY, IN PENNSYLVANIA

> > MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

> --

> +=== Debbie Tropiano ==== Mommy to Elliot & Sara ===+

> | " Mom " to Nickie (the psychotic mutt) and Lusi (sweetie pup). |

> | " Stepmom " to Piper (the sable sheltie) and Dawn (tri-black sheltie). |

> += debbie@... ==================== URL http://www.icus.com/~debbie/ =+

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

-

From the keyboard of bearchil@...:

> Debbie and Lenny, I must appologize. I have 67 messages to read and respond

or

> not respond to. I have been very interested in Sara's birth, first of all

because

> she was born right after our Great-neice, Rose and second of all because yawl

live

> around Austin, which is close to where we live now. My husband and I spent a

lot

> of time in Austin. We love Austin!

>

> I logged on tonight and read your message, thinking it was for me, " " .

BIG

> mistake! However, if yawl need a hand to hold your hand, I would be more than

> happy to come and hold it.

>

> I feel so stupid for my previous message. I sure hope Sara is doing well, or

the

> very best she can be doing. I hope is too! I can only imagine how

> difficult it is for the older sibblings. Take care and God Bless!

Oh, please don't feel that way!! We loved your message and offer of help.

And, we'd love to meet you very soon.

We live in Cedar Park (just NW of Austin). Where near Austin are you at?

Debbie

--

+=== Debbie Tropiano ==== Mommy to Elliot & Sara ===+

| " Mom " to Nickie (the psychotic mutt) and Lusi (sweetie pup). |

| " Stepmom " to Piper (the sable sheltie) and Dawn (tri-black sheltie). |

+= debbie@... ==================== URL http://www.icus.com/~debbie/ =+