Re: PLEASE ANSWER.......

[Guest guest]

,

We are in Michigan, and my CHARGE'r Mark is 17. V.

[Guest guest]

HI

My family is myself (robin) my husband (alan) and our two children - Ally who has charge and is 26 mths and Carson (healthy) who is 3 weeks.

We live in Bristol VA (the major boonies) which is in Southwest VA 2 hrs south of Roanoke VA and 1 1/2 hrs north of Knoxville TN in the Appalachian Mountains (and 3 hrs from a decent hosptial LOL)

[Guest guest]

HI

My family is myself (robin) my husband (alan) and our two children - Ally who has charge and is 26 mths and Carson (healthy) who is 3 weeks.

We live in Bristol VA (the major boonies) which is in Southwest VA 2 hrs south of Roanoke VA and 1 1/2 hrs north of Knoxville TN in the Appalachian Mountains (and 3 hrs from a decent hosptial LOL)

[Guest guest]

Hi there,

Why are some of our e mails coming across like they have attachments?? V

[Guest guest]

Hi there,

Why are some of our e mails coming across like they have attachments?? V

[Guest guest]

Hi

My daughter Caitlin is nine years old and we live in southern New Jersey, usa.

Mayer

[Guest guest]

Hi

My daughter Caitlin is nine years old and we live in southern New Jersey, usa.

Mayer

[Guest guest]

We live in Livonia, Mi and I have a daugher, (13) and Bradley (10

Charge). My name is and my husband is Tom. It looks like there are a

few 10 year olds and older out there!

[Guest guest]

We live in Livonia, Mi and I have a daugher, (13) and Bradley (10

Charge). My name is and my husband is Tom. It looks like there are a

few 10 year olds and older out there!

[Guest guest]

Hi ,

My daughter Eileen is a female born on June 18, 2000 and has CHARgE with

a trach. My name is and we are in Knoxville, TN.

, Jerry, Marissa 9, Christian 3, Eileen 4 1/2 months

[Guest guest]

Hi ,

My daughter Eileen is a female born on June 18, 2000 and has CHARgE with

a trach. My name is and we are in Knoxville, TN.

, Jerry, Marissa 9, Christian 3, Eileen 4 1/2 months

[Guest guest]

Hi, Our names are and Debbie Cachia,and our daughter`s name is

Patton Cachia, she is 3 years old and we live in Harcourt

Ontario, Canada.

[Guest guest]

Hi, Our names are and Debbie Cachia,and our daughter`s name is

Patton Cachia, she is 3 years old and we live in Harcourt

Ontario, Canada.

[Guest guest]

I am in Kentucky near paducah...(corner of the four

states Il.Mo.Tn.Ky.)....I'm Ralston,mother of

amanda 17 and trist-mae 13(charger)...I don't post

much,but do like to read all the messages..I do post

when I see something interesting,or can relate

too..but seems like the regular people that do post

all have younger kids with the early problems and

surgeries that we've already been through....

--- mary saunders wrote:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON

> THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE

> KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE

> MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R

> LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS

> AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

> -------------------------- eGroups Sponsor

>

> " 5th CHARGE Syndrome International Conference,

> Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in

> CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the

> newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

__________________________________________________

[Guest guest]

I am in Kentucky near paducah...(corner of the four

states Il.Mo.Tn.Ky.)....I'm Ralston,mother of

amanda 17 and trist-mae 13(charger)...I don't post

much,but do like to read all the messages..I do post

when I see something interesting,or can relate

too..but seems like the regular people that do post

all have younger kids with the early problems and

surgeries that we've already been through....

--- mary saunders wrote:

> I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON

> THE LIST AND THE AGE

> AND SEX OF YOUR CHILD WITH CHARGE...

>

> IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE

> KNOWING WHAT STATE AND

> COUNTRY U R IN.....PLEASE REPLY BACK..

>

> THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE

> MOST PART, MOST OF

> US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R

> LOCATED...AND I KNOW SOME

> PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS

> AS THEM..

>

> JUST A THOUGHT..

>

> THANKS,

> MARY, IN PENNSYLVANIA

> MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

>

> -------------------------- eGroups Sponsor

>

> " 5th CHARGE Syndrome International Conference,

> Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in

> CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the

> newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

__________________________________________________

[Guest guest]

Lydia,

I tried one of those pads with Mark and he promptly ripped it off and threw it out We don't see the new urologist until Nov 15. I hope we will find something out then. Thanks for asking I will keep you posted.

[Guest guest]

Hi ,

is 14, will be 15 in December, and she is a female. We live in Marietta, Georgia, USA. Lydia

mom to chrgr Kim 14, Alia 14, 16, 19

mary saunders wrote:

I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGEAND SEX OF YOUR CHILD WITH CHARGE...IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE ANDCOUNTRY U R IN.....PLEASE REPLY BACK..THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OFUS DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOMEPEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..JUST A THOUGHT..THANKS,MARY, IN PENNSYLVANIAMOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER"5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Hi ,

is 14, will be 15 in December, and she is a female. We live in Marietta, Georgia, USA. Lydia

mom to chrgr Kim 14, Alia 14, 16, 19

mary saunders wrote:

I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGEAND SEX OF YOUR CHILD WITH CHARGE...IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE ANDCOUNTRY U R IN.....PLEASE REPLY BACK..THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OFUS DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOMEPEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..JUST A THOUGHT..THANKS,MARY, IN PENNSYLVANIAMOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER"5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

,

Hi. I was wondering how Mark was doing. Have you been able to find out anything re: testing yet? I was looking through some ads today and saw that Eckerd sells bladder control Guards for men. Have never seen them before, of course I've never looked, but didn't know if Mark would even wear anything like this. Kim won't even wear pads but fortunately we haven't needed them since August. I'm sure that will change. I look forward to hearing from you. Lydia

mom to Kim, Alia, ,

Kav810@... wrote:

, We are in Michigan, and my CHARGE'r Mark is 17. V. "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

,

Hi. I was wondering how Mark was doing. Have you been able to find out anything re: testing yet? I was looking through some ads today and saw that Eckerd sells bladder control Guards for men. Have never seen them before, of course I've never looked, but didn't know if Mark would even wear anything like this. Kim won't even wear pads but fortunately we haven't needed them since August. I'm sure that will change. I look forward to hearing from you. Lydia

mom to Kim, Alia, ,

Kav810@... wrote:

, We are in Michigan, and my CHARGE'r Mark is 17. V. "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Hi, I am Barbra Mousouris, my son has CHaRGE and is 13 YO. we live in

Santa Barbara, California. Good luck!

[Guest guest]

,

My husband Rio and I have 2 children. My child with CHARGE is and

she is 14. Our son is Mitch who is also 14. They are not twins, just born

10 months apart. We live in Central Iowa.

As for education.... is currently not receiving an education. And

that is NOT by choice. We are just resolving a Due Process Hearing about LRE

and Full Continuum of Services. We did prevail and are looking for a program

that meets her needs in a Self Contained Class with Inclusion, in a Gen Ed

School.

Sheryl

[Guest guest]

I am from Pennfield, New Brunswick, Canada, and my daughter Kennedy will be three in January.

Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

PLEASE ANSWER.......

I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGEAND SEX OF YOUR CHILD WITH CHARGE...IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE ANDCOUNTRY U R IN.....PLEASE REPLY BACK..THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OFUS DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOMEPEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..JUST A THOUGHT..THANKS,MARY, IN PENNSYLVANIAMOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER"5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

I am from Pennfield, New Brunswick, Canada, and my daughter Kennedy will be three in January.

Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

PLEASE ANSWER.......

I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGEAND SEX OF YOUR CHILD WITH CHARGE...IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE ANDCOUNTRY U R IN.....PLEASE REPLY BACK..THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OFUS DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOMEPEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..JUST A THOUGHT..THANKS,MARY, IN PENNSYLVANIAMOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER"5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

We are the parents of Marilyn Ogan. Our son-in-law is Rick. We are the

grandparents of (CHARGER) 8 years and Kenny 11 years. They live in

Indianapolis IN. We live in Wabash IN. Marilyn has had to drop off the

list for a while because she is up to her ears in plans for the 2001 CHARGE

Conference in Indianapolis. When I find a post that I think she needs to

see I forward it on to her.

While I am on tonight I would like to take the time to encourage

Grandparents to attend the conference. I went to Boston and we both went to

Houston. We learned so much. Hope to see many grandparents there.

Liz Young and Dick

> -------------------------------------------------------------------->

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>