Re: PLEASE ANSWER.......

[Guest guest]

Debbie and Lenny and and Sara, we live in Katy, northwest of Houston (on

I-10

west). Our family homes are in Killeen and that's where we " hail " from. I'm

thrilled

yawl have the family and friends to assist yawl and support yawl. Our Rose is

" way up "

in Michigan. Thanks for your kind words. God bless,

Debbie Tropiano wrote:

> -

>

> >From the keyboard of bearchil@...:

> > Debbie and Lenny, I must appologize. I have 67 messages to read and

respond or

> > not respond to. I have been very interested in Sara's birth, first of all

because

> > she was born right after our Great-neice, Rose and second of all because

yawl live

> > around Austin, which is close to where we live now. My husband and I spent

a lot

> > of time in Austin. We love Austin!

> >

> > I logged on tonight and read your message, thinking it was for me, " " .

BIG

> > mistake! However, if yawl need a hand to hold your hand, I would be more

than

> > happy to come and hold it.

> >

> > I feel so stupid for my previous message. I sure hope Sara is doing well,

or the

> > very best she can be doing. I hope is too! I can only imagine how

> > difficult it is for the older sibblings. Take care and God Bless!

>

> Oh, please don't feel that way!! We loved your message and offer of help.

> And, we'd love to meet you very soon.

>

> We live in Cedar Park (just NW of Austin). Where near Austin are you at?

>

> Debbie

> --

> +=== Debbie Tropiano ==== Mommy to Elliot & Sara ===+

> | " Mom " to Nickie (the psychotic mutt) and Lusi (sweetie pup). |

> | " Stepmom " to Piper (the sable sheltie) and Dawn (tri-black sheltie). |

> += debbie@... ==================== URL http://www.icus.com/~debbie/ =+

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

My nephew is 8 months old, and lives in Chicago, IL.

[Guest guest]

Hi, Our names are Analia and Dario Novillo,and our daughter`s name is

Candela, she is 7 months and we live in Santa Fe, Argentina.

[Guest guest]

This reminds me of a funny commercial I saw once... Im reading the

names in the same songish way... wish I could remember the comertial.

I think it was a radio commercial on 680 news... or maby CHFI...

Im Chantelle (22- CHARGEr) from Ontario Canada

[Guest guest]

This reminds me of a funny commercial I saw once... Im reading the

names in the same songish way... wish I could remember the comertial.

I think it was a radio commercial on 680 news... or maby CHFI...

Im Chantelle (22- CHARGEr) from Ontario Canada

[Guest guest]

We are Debbie, Bill, -3 w/CHARGE, 6, andra 15 mths, we live in Northern New Jersey.

[Guest guest]

KAren,

I believe they are advertisements...

Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

Re: Re: PLEASE ANSWER.......

Hi there, Why are some of our e mails coming across like they have attachments?? V "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

KAren,

I believe they are advertisements...

Mom to Kennedy 2.5yr old CHARGEr, 11, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

Re: Re: PLEASE ANSWER.......

Hi there, Why are some of our e mails coming across like they have attachments?? V "5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July20-22, 2001. Information will be available first in CHARGE Accounts, theCHARGE Syndrome Foundation's newsletter."For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter)please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Our names are and Fice.

Our CHARGER is 2yrs.old. His name is .

We are located in Bowmanville, Ontario, Canada

[Guest guest]

Hi, I am living in Utah right now, but we will soon be moving back to

Portalnd Oregon.

Nichole is 9 months old.

Mother to Nichole 9 mos.(CHARGEr) & Carlie 2 yrs

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[Guest guest]

Hi ,

Jackie kenley here is San Francisco, CA. was born on FEb. 25, 1985.

Good luck,

Jackie

le Cote wrote:

>

> Hi ,

> My name is le Cote, and my son Caleb, who has CHARGE, was born on June

> 28th, 1998. We are from Hanmer, Ontario, Canada.

> Hope this helps.

> le

>

> mary saunders wrote:

>

> > I AM TRYING TO FIGURE OUT WHERE EVERYONE IS FROM ON THE LIST AND THE AGE

> > AND SEX OF YOUR CHILD WITH CHARGE...

> >

> > IF ANYONE IS INTERESTED AND IS OK WITH PEOPLE KNOWING WHAT STATE AND

> > COUNTRY U R IN.....PLEASE REPLY BACK..

> >

> > THEIR R SOME OF U WHO DO POST IT REGULAR BUT FOR THE MOST PART, MOST OF

> > US DON'T AND IT IS HARD TO TELL WHERE PEOPLE R LOCATED...AND I KNOW SOME

> > PEOPLE R LOOKING FOR PEOPLE WITH THE SAME AGED KIDS AS THEM..

> >

> > JUST A THOUGHT..

> >

> > THANKS,

> > MARY, IN PENNSYLVANIA

> > MOTHER OF GRANT(12), BLAKE(12), AND TROY(8) CHARGER

> >

> >

> > " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> > 20-22, 2001. Information will be available first in CHARGE Accounts, the

> > CHARGE Syndrome Foundation's newsletter. "

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

>

>

> " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July

> 20-22, 2001. Information will be available first in CHARGE Accounts, the

> CHARGE Syndrome Foundation's newsletter. "

>

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

--

Jackie Kenley, CDBS

(inside CA only)

ext 21

hm.

[Guest guest]

We're Tom and Brownie Shott from Katy, Texas (a suburb of Houston) and we have

2 boys. is 10 and , who has CHARGE, is 7. He is included in

Kindergarten in the morning and 1st grade in the afternoon with a full-time

aide.

Brownie

[Guest guest]

Hi all,

I am from NY and I have 4 1/2 year old Identical chargers!

Jill

[Guest guest]

Hi! I am Colleen, my husband is Phil and our daughter is . She turned

3 on Oct. 5th. We live in Ardsley, Pa, just outside of Philadelphia.

attends an integrated preschool where she has pt, ot, st, and will have

vision and hearing support services when her IEP is done. She loves it!!

_________________________________________________________________________

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[Guest guest]

Hi! I am Colleen, my husband is Phil and our daughter is . She turned

3 on Oct. 5th. We live in Ardsley, Pa, just outside of Philadelphia.

attends an integrated preschool where she has pt, ot, st, and will have

vision and hearing support services when her IEP is done. She loves it!!

_________________________________________________________________________

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Share information about yourself, create your own public profile at

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[Guest guest]

In a message dated 11/9/00 5:17:29 PM Pacific Standard Time,

lydiarivers@... writes:

<<

Bless you! There is another family on the list that has identical twin

chargers. I have twins but mine are fraternal and only one has charge. I

would love to hear more about your twins. My girls will be 15 on New Years

Eve. I guess in a way some things have gotten a little easier with my

charger, that is, after major medical issues were resolved but new issues are

always coming up. For instance, she has to have PE tubes put back in next

month after going 3 years without them. She will have to have them the rest

of her life. Puberty is a real thriller. Take care. Lydia

mom to chrgr Kim 14, Alia 14, 16, 19

>>

Lydia,

Thanks for the encouragement. It is good to know that moms really survive

all of this!

My boys are 4 1/2yr and they are both involved. It is a real challenge but,

they are a real pleasure to take care of and love. I am very lucky -- but,

we all have our days! Good-luck with puberty! Love, Jill