Re: Good things are coming!

February 3, 2008

Sounds like a fine idea to me!

> > > >

> > > > Treatment is a good thing... " CURE " has such negative connotations

> > > > that I find it totally and outrageously demeaning and

> condescedning.

> > >

> >

>

February 3, 2008

That could be much more difficult than you think, and I'm speaking as

one who has had to fight alone for ages, especially against " experts " .

> >

> > Good thing I don't let them taint me and fight against them being

> > allowed to taint others, then.

>

February 3, 2008

When people talk of fixing someone's genes mutations, that reminds me

a bit too much of Nazi Germany, Hitler & Mengele and ethnic cleansing.

I am all for enhancing gifts, but I am not for taking away the very

thing(s) that might bring those gifts in the first place. And that's

not what cure means just to me - it's what cure means to many people.

I also was giving my own point of view, not speaking for others,

although others have an alarming tendency at times to speak for me, at

me, and around me rather than to me. :-)

> >

> > Pro-cure means abolishing the " curse " that " kidnaps " children and

> > holds families " hostage. " Anti-cure is not anti-treatment - treat my

> > symptoms, but by no means rob me of my gifts.

>

February 3, 2008

That's the ultimate goal, isn't it?

>

> In a message dated 2/3/08 7:06:45 A.M. Eastern Standard Time,

> bubbetta@... writes:

>

> Let's figure out a way to all be on the same side so we can all put our

> energy into helping the kids instead of fighting one another.

>

> i am so glad that we are asking what words mean instead of yelling.

i think

> this is some wonderful progress and will help us 'to be on the same

side'

> doing all we can for our kids

> eric abbys dad

>

> **************Biggest Grammy Award surprises of all time on AOL

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> 48)

>

February 3, 2008

Thank you - I just wish these words weren't even necessary...

>

> In a message dated 2/3/08 2:50:38 A.M. Eastern Standard Time,

> sharisajoy@... writes:

>

> Pro-cure means abolishing the " curse " that " kidnaps " children and

> holds families " hostage. " Anti-cure is not anti-treatment - treat my

> symptoms, but by no means rob me of my gifts.

>

> excellent use of words.

> Abby's dad

>

> **************Biggest Grammy Award surprises of all time on AOL

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>

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> 48)

>

February 3, 2008

Thank you - I just wish these words weren't even necessary...

>

> In a message dated 2/3/08 2:50:38 A.M. Eastern Standard Time,

> sharisajoy@... writes:

>

> Pro-cure means abolishing the " curse " that " kidnaps " children and

> holds families " hostage. " Anti-cure is not anti-treatment - treat my

> symptoms, but by no means rob me of my gifts.

>

> excellent use of words.

> Abby's dad

>

> **************Biggest Grammy Award surprises of all time on AOL

Music.

>

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

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> 48)

>

February 3, 2008

As one whose picture has been painted and tainted with the

brushstrokes of prejudice and discrimination, I can only agree.

>

> In a message dated 2/3/08 11:18:33 A.M. Eastern Standard Time,

> fightingautism@... writes:

>

> Some researchers in

> the autism community have had a horribly untrue picture painted about

> them, just as people with autism often get horribly untrue pictures

> painted about them.

>

> this is truly difficult.

> eric abbys dad

>

> **************Biggest Grammy Award surprises of all time on AOL

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>

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> 48)

>

February 3, 2008

As one whose picture has been painted and tainted with the

brushstrokes of prejudice and discrimination, I can only agree.

>

> In a message dated 2/3/08 11:18:33 A.M. Eastern Standard Time,

> fightingautism@... writes:

>

> Some researchers in

> the autism community have had a horribly untrue picture painted about

> them, just as people with autism often get horribly untrue pictures

> painted about them.

>

> this is truly difficult.

> eric abbys dad

>

> **************Biggest Grammy Award surprises of all time on AOL

Music.

>

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

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> 48)

>

February 3, 2008

Sondra,

Although that's sadly true, we must never stop trying to co-exist

peacefully with other people rather than trying to destroy the planet

we all share.

>

> there is not ever going to be a way to express teh multiple views on

> autism because it varies as much as the religions of this world, as the

> cultures of this world and so there is never going to be of a complete

> accepatance of others views just as there will never be of one religion

> or belief system for the entire world because people will be to cling

> to their own belief system no matter what the words or terminology is

> to be.

> Sondra

>

February 3, 2008

Sondra,

Although that's sadly true, we must never stop trying to co-exist

peacefully with other people rather than trying to destroy the planet

we all share.

>

> there is not ever going to be a way to express teh multiple views on

> autism because it varies as much as the religions of this world, as the

> cultures of this world and so there is never going to be of a complete

> accepatance of others views just as there will never be of one religion

> or belief system for the entire world because people will be to cling

> to their own belief system no matter what the words or terminology is

> to be.

> Sondra

>

February 3, 2008

I am certain some will view this as heresy, and some will not, but I can not

help but ask that people consider something.

Many people tell me, it must be very difficult to have an autistic child. She

is very lucky to have you as a father. WRONG! I know that every day is a

struggle for her, but in reality, I am the one who is lucky to have her. She

has a perception about life that I don't even begin to understand. She has an

intellect that never ceases trying to learn. At an age when most girls begin to

become click oriented, she will take the time to teach me how to be a kid again.

Although she can be very violent, she can be equally compasionate.

Treat the symptoms, of course, but let's fully understand what we are dealing

with before we try to genetically abolish it. You can only understand the

sunshine because it also rains.

Sharisa Joy Kochmeister wrote:

I support researchers who seek to treat people's symptoms as symptoms

of something. I don't support those who want to cleanse the race of

people with autism... as for my own stance, it is my stance and mine

alone - if people agree with me, fine; if not, also fine... but I will

still speak out as someone who values freedom of speech even more

after I spent almost 12 years with no way to communicate.

> >

> > Let's figure out a way to all be on the same side so we can all

put our

> > energy into helping the kids instead of fighting one another. The

more

> > I read the words of the anti-cure " camps " , the more I sense that a

large

> > proportion of both sides actually AGREE, except that the " camps " are

> > using radically different terminology, and it's the terminology that

> > needs to be updated and agreed upon.

>

---------------------------------

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February 3, 2008

My father who has always felt the same way you do and I applaud you

and tell you that you're lucky to have each other!

Sharisa Joy

> > >

> > > Let's figure out a way to all be on the same side so we can all

> put our

> > > energy into helping the kids instead of fighting one another. The

> more

> > > I read the words of the anti-cure " camps " , the more I sense that a

> large

> > > proportion of both sides actually AGREE, except that the " camps " are

> > > using radically different terminology, and it's the terminology that

> > > needs to be updated and agreed upon.

> >

>

> ---------------------------------

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Try it now.

>

February 3, 2008

I to agree we must not stop trying but was saying that this is of the

norms there is of too many voices and too many views and perceptions

for it to ever become really unified as a one view or one voice or

perceptions.

Some insist that ALL autism is vaccine realted.

Then some will say ALL autism is environmental

Then some say lets CURE them ALL

And some say dont CURE ME

And some see it as a curese from God

And some see it as a blessing from God

Some say autism = retardation

Some see those on spectrum as little geniuses

Some insiste teh diet is of the only way

Others dispute it

Some say ABA is the only way

Others say NO RDI is?

Some say no Biromedical interventions are

Some say Autism does not exist it is of just a catch all for everyone

who is different

Some say those with aspergers or HFA are not of autism but just

acting rude and spoiled

Some say those with real autism are non verbal creatures who do not

interact, relate and self stim in isolates states of being

So you see how complex it is of to get a unified voice when there is

of too much ideas out there to change... and no matter the voice many

will not let go of their own to expand the learning of their own

beings to see others points of view.

But if we stay silent we do not allow a differnet perspective to be

explored, if we stay silent we do not build our own ideas and

thinking to expand it, if we stay silent we subcomb to the full

beliefs of others so in true Sharisa we cant stay silent this is of

true///

Sondra

February 3, 2008

I to wanted to add the sunshine and rain.... Her in the USA we

take for granted the snow.... some see it as a disaster, some enjoy

it and love to do sports and or play in it, some love the beauty that

the snow can bring but regardless each winter many of the states know

it will snow to some extent......

But those who never ever get snow like Cuba only can imagine snow...

the one author of a book titled Waiting for Snow in Havanna tells of

hims life as a cuban and then later as an exiled boy to america. he

comes to say that the most oppressed countries and poor contries are

those who have no snow.... because snow means seasons which means

crops and foods of variety and it means prosperity to hae of the

wealth of food always available ....

So in autism those who never get to experience it never know what it

is of truely like.... they can only imagine of it.... But if the

family is of healthy they will be prosporous in diversity and

understand of hte unique beauty that autism can bring for their

families. But some days just like old snow it needs to be cleaned up

and it gets sloshy and dirty and does not hold the beauty again until

the next snow fall. that is because autism or not NO one person ever

holds perfection and reflects only positive emotions, healthy

thinking, compassions and such.... because some days they do reflect

like old snow.... but because we have experienced the beauty of the

new snow we can anticipate those days with fair expectations.

Just my rambling this day.

Sondra

February 3, 2008

Thank you Sondra. I never meant to indicate that no days had their bad sides,

i.e. the waiting to see who your child bit or kicked today. How many times she

was physically hauled out of class to an isolation room, and how many times I

get hit or kicked when she melts down. What I do mean to say is I will take it

all for the privilage of having my daughter. She is the single greatest moment

in my life.

sondra wrote: I to wanted to add the

sunshine and rain.... Her in the USA we