New to the Group

[Guest guest]

Welcome. I hope you can get the seizures under control, I've read

puberty is a common age of seizure onset.

Debi

[Guest guest]

In a message dated 1/15/08 10:58:14 PM Eastern Standard Time,

shybutcute599@... writes:

She is aslo going to have the 48 hour

EEG done next monday and I am praying that she will be ok with it.

I really believe that she is having seizures because some of her

rages lately are not like they use to be, and after she comes down

from the rage her pupils go from small to big and then she is so hot

and then she goes limp.

so sorry your going though all this. does she sleep for an hour or 2 after.

our abby always was sleepy after.

eric abbys dad

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

I'm venturing to guess it's because & Gammeltoft seem to be idiots.

<g>

Glad to see you here!

Debi

>

> Is your daughter taking any medications? Our daughter (PDD-NOS, 8 in

April) had an abnormal EEG. I suspected seizures (absence ones-zoning

out), but the pediatrician and psychiatrist didn't see it. Lo and

behold she was having them, we had just tried a new medication, so we

stopped it, and started her on Carnosine - supplement that her

pediatrician and DAN doctor both thought was worth trying. It has

helped tremendously! No more seizure activity (normal EEG) and

increase in socialization AND language.

>

>

>

>

[Guest guest]

, Sometimes she will sleep for like a hour, but there are days

where my daughter will come home from school and sleep from 5 pm to

6:30 the next morning. But I know I am going to have problems on

monday I am so ready for the meltdowns for the EEG.

Dawn

>

>

> In a message dated 1/15/08 10:58:14 PM Eastern Standard Time,

> shybutcute599@... writes:

>

> She is aslo going to have the 48 hour

> EEG done next monday and I am praying that she will be ok with

it.

> I really believe that she is having seizures because some of her

> rages lately are not like they use to be, and after she comes

down

> from the rage her pupils go from small to big and then she is so

hot

> and then she goes limp.

>

>

> so sorry your going though all this. does she sleep for an hour

or 2 after.

> our abby always was sleepy after.

> eric abbys dad

>

>

>

> **************Start the year off right. Easy ways to stay in

shape.

> http://body.aol.com/fitness/winter-exercise?

NCID=aolcmp00300000002489

>

>

>

[Guest guest]

Will she be full inclusion? Visit the school and find out who her teacher will

be. Chances are, they they already have an idea of whose class she will be in.

Will she need an assistant? If she is in preschool now, that teacher probably

knows the best match for her K teacher. Is she verbal? potty trained? Make sure

the teacher has a visual schedule posted each day.

lisa

_____________________________________________________________

Click for free info on online degrees and make up to $150K/ year.

http://thirdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4ugvZ7dekm3tiH8yvdNJJJKXf7p\

hi8o3G2UJv1CKSV4BjHPb/

[Guest guest]

Just make sure the school knows what they are doing. It can be a disaster if

the do not. A teacher needs to:

Understand she or he knows nothing about what is going on inside the child's

mind so don't try to look for motives,

Understand that this child will be the most challenging and yet most fragile

student they will have,

Give up the idea of having control over the child.

Good Luck

julie_hornok wrote:

Hi,

I am new to the group. I have a 5 year old daughter with autism.

Right now, I am in a mad panic to make sure she is prepared for

kindergarten in the fall. I would love any advice!

Thanks,

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

The thing is, because you " outgrew " them does not mean another child

will. If someone starts spontaneously being able to communicate,

that's great, but that doesn't mean another will without lots and lots

of work, and even then may not be able to. What is the statistic,

about 10% of the autism population do not show any signs of

" improvement? " I love to tell parents things get better, but I would

imagine for about 10%, that's a painful lie. I know one little guy, 10

yrs old, still having as much painful diarrhea as he ever did, still

is like a tazmanian devil when he enters the room, still seeks out the

weakest to physically attack, etc. Of course, he's had little in the

way of " real " therapy, and i think he needs some serious biomed, mom

is poor & refuses to consider it.

Debi

[Guest guest]

The thing is, because you " outgrew " them does not mean another child

will. If someone starts spontaneously being able to communicate,

that's great, but that doesn't mean another will without lots and lots

of work, and even then may not be able to. What is the statistic,

about 10% of the autism population do not show any signs of

" improvement? " I love to tell parents things get better, but I would

imagine for about 10%, that's a painful lie. I know one little guy, 10

yrs old, still having as much painful diarrhea as he ever did, still

is like a tazmanian devil when he enters the room, still seeks out the

weakest to physically attack, etc. Of course, he's had little in the

way of " real " therapy, and i think he needs some serious biomed, mom

is poor & refuses to consider it.

Debi

[Guest guest]

someone long time ago told me that behavior is language

try to figure out what triggers these impulsive behaviors, my guess she needs

constant attention

she is probably getting it by negative behavior, don't reinforce the negative

behavior by addressing it, how about only acknowledging the good behavior and

ignoring everything else until she is consistently good

also check her yeast overgrowth... that WILL make anyone real edgy

New to the group

Hello, I would love for someone to be able

to tell me everything will

get easier!!! My daughter Haley is 8yrs. very very impulsive... hands

never stop touching, grabbing everything in her view, we have to keep

everything out of reach and all doors locked, she will get into

everything. Does not play with anything of hers, always hitting or

pushing us. Can't sit at all!, always on the go. Thanks for reading

Ronda

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

someone long time ago told me that behavior is language

try to figure out what triggers these impulsive behaviors, my guess she needs

constant attention

she is probably getting it by negative behavior, don't reinforce the negative

behavior by addressing it, how about only acknowledging the good behavior and

ignoring everything else until she is consistently good

also check her yeast overgrowth... that WILL make anyone real edgy

New to the group

Hello, I would love for someone to be able

to tell me everything will

get easier!!! My daughter Haley is 8yrs. very very impulsive... hands

never stop touching, grabbing everything in her view, we have to keep

everything out of reach and all doors locked, she will get into

everything. Does not play with anything of hers, always hitting or

pushing us. Can't sit at all!, always on the go. Thanks for reading

Ronda

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

Rhonda,

Welcome to the group, I know where you are coming from, I have a

daughter that never sits still, always into everything. I have to put

all my valuables away because she would throw them, Have you tried

visuale cards. Like having one that says and a picture on it that read

NO, then one with NO Hitting, and so on? I did try those and it

worked.

Dawn

>

> Hello, I would love for someone to be able to tell me everything

will

> get easier!!! My daughter Haley is 8yrs. very very

impulsive...hands

> never stop touching, grabbing everything in her view, we have to

keep

> everything out of reach and all doors locked, she will get into

> everything. Does not play with anything of hers, always hitting or

> pushing us. Can't sit at all!, always on the go. Thanks for reading

>

> Ronda

>

[Guest guest]

Rhonda,

Welcome to the group, I know where you are coming from, I have a

daughter that never sits still, always into everything. I have to put

all my valuables away because she would throw them, Have you tried

visuale cards. Like having one that says and a picture on it that read

NO, then one with NO Hitting, and so on? I did try those and it

worked.

Dawn

>

> Hello, I would love for someone to be able to tell me everything

will

> get easier!!! My daughter Haley is 8yrs. very very

impulsive...hands

> never stop touching, grabbing everything in her view, we have to

keep

> everything out of reach and all doors locked, she will get into

> everything. Does not play with anything of hers, always hitting or

> pushing us. Can't sit at all!, always on the go. Thanks for reading

>

> Ronda

>

[Guest guest]

I think it is safe to say some things will get easier and some things

will get harder...but it won't always be like it is now!

Is she in any therapies? School? Does she have an appropriate way to

communicate (verbal, written words, signs, pictures)? Communication is

always key to sorting out any behavior problem. If she can ask for

things, she'll be less likely to just grab at them, if she can ask

before she touches/grabs/hugs, people are more willing to let her and

not be bothered by it, etc.

Amnesty

>

> Hello, I would love for someone to be able to tell me everything will

> get easier!!! My daughter Haley is 8yrs. very very impulsive...hands

> never stop touching, grabbing everything in her view, we have to keep

> everything out of reach and all doors locked, she will get into

> everything. Does not play with anything of hers, always hitting or

> pushing us. Can't sit at all!, always on the go. Thanks for reading

>

> Ronda

>

[Guest guest]

I think it is safe to say some things will get easier and some things

will get harder...but it won't always be like it is now!

Is she in any therapies? School? Does she have an appropriate way to

communicate (verbal, written words, signs, pictures)? Communication is

always key to sorting out any behavior problem. If she can ask for

things, she'll be less likely to just grab at them, if she can ask

before she touches/grabs/hugs, people are more willing to let her and

not be bothered by it, etc.

Amnesty

>

> Hello, I would love for someone to be able to tell me everything will

> get easier!!! My daughter Haley is 8yrs. very very impulsive...hands

> never stop touching, grabbing everything in her view, we have to keep

> everything out of reach and all doors locked, she will get into

> everything. Does not play with anything of hers, always hitting or

> pushing us. Can't sit at all!, always on the go. Thanks for reading

>

> Ronda

>

[Guest guest]

The only way things ever get better is by doing something about them -

I never " outgrew " my autism and never will nor do I wish to do so.

That would be self-denial and suicide of the self.

>

> The thing is, because you " outgrew " them does not mean another child

> will. If someone starts spontaneously being able to communicate,

> that's great, but that doesn't mean another will without lots and lots

> of work, and even then may not be able to. What is the statistic,

> about 10% of the autism population do not show any signs of

> " improvement? " I love to tell parents things get better, but I would

> imagine for about 10%, that's a painful lie. I know one little guy, 10

> yrs old, still having as much painful diarrhea as he ever did, still

> is like a tazmanian devil when he enters the room, still seeks out the

> weakest to physically attack, etc. Of course, he's had little in the

> way of " real " therapy, and i think he needs some serious biomed, mom

> is poor & refuses to consider it.

>

> Debi

>

[Guest guest]

The only way things ever get better is by doing something about them -

I never " outgrew " my autism and never will nor do I wish to do so.

That would be self-denial and suicide of the self.

>

> The thing is, because you " outgrew " them does not mean another child

> will. If someone starts spontaneously being able to communicate,

> that's great, but that doesn't mean another will without lots and lots

> of work, and even then may not be able to. What is the statistic,

> about 10% of the autism population do not show any signs of

> " improvement? " I love to tell parents things get better, but I would

> imagine for about 10%, that's a painful lie. I know one little guy, 10

> yrs old, still having as much painful diarrhea as he ever did, still

> is like a tazmanian devil when he enters the room, still seeks out the

> weakest to physically attack, etc. Of course, he's had little in the

> way of " real " therapy, and i think he needs some serious biomed, mom

> is poor & refuses to consider it.

>

> Debi

>

[Guest guest]

Ronda --

I know a lot of folks on this board would rather not give their child

medication, which is fine. But I'll tell you what worked for us. My boy

was a runner and extremely impulsive. It was really really hard to keep

him safe. When he was 7 we started him on Adderall and it worked

wonders to help him control his impulses. Later we switched him to

Strattera and Prozac (for axiety and impulse control). For us meds are

a godsend. It was like opening a window so all the behavioral stuff we

were doing finally started sinking in. The meds can't do it by

themselves -- behavioral therapy has to be done at the same time -- but

without the meds we were really spinning our wheels.

-- Cassie

ronnie906 wrote:

> Hello, I would love for someone to be able to tell me everything will

> get easier!!! My daughter Haley is 8yrs. very very impulsive...hands

> never stop touching, grabbing everything in her view, we have to keep

> everything out of reach and all doors locked, she will get into

> everything. Does not play with anything of hers, always hitting or

> pushing us. Can't sit at all!, always on the go. Thanks for reading

>

> Ronda

>

>

[Guest guest]

Welcome, Marilyn.  I think you'll find the topics of discussion very helpful. 

New to the group

Just wanted to introduce myself. I live in Everett Washington. I have

a 7 year old son with Bilateral Polymicrogyria. I also have 3 other

children a boy 3 and 2 girls ages 9 and 6. My son is non verbal, low

tone and tube fed. He goes to school and loves his sports on TV. We

learned of our son disability when he was just 10 months old. I am

hoping to meet other families close to me and learn from the whole group.

Marilyn

[Guest guest]

Hi, good to hear the therapy is making a difference. When OCD seems to just

start, get so bad so fast, it's hard that therapy can take so long, even with

progress. Day by day is right.

You mentioned he's on an antibiotic, any difference with that at all since you

may stop it? Is it the PANDAS OCD you're treating him for then?

How is the therapist having him work on the thoughts and the compulsions? Is he

trying to limit how often he confesses to you, or doing any exposures to his

thoughts?

>

> Just wanted to say hi and say that my son was diagnosed with OCD in

April.....it has been a roller coaster ride to he'll and back. He ended up

hospitalized in a mental hospital for 2weeks because I didn't know what was

happening to him. It was the hardest thing that I have ever had to do as a mom.

He was put on Risperdal which did not help.....he gained 20 lbs in 6 months

Prozac was added and that put him over the edge. I had to switch psychiatrists

to find one who would get him off the psych meds. He is currently only on an

antibiotic that I may stop. He goes to CBT and that has made a world of

difference. it breaks my heart to see him suffer daily. He has intrusive

thoughts and the compulsions seem to be reassurance and constantly telling me

his every bad thought. He has come a long way but it is day by day. Any advice

would be great. Sorry for the typos.....my iPad has a mind of its own. My son is

11.

>

[Guest guest]

,

Echoing what Justcallmecal said, the best thing to do is get to a doctor that

knows their stuff with regard to PANDAS/PITAND.

I'd also be happy to share with you the tests that were run on our daughter by

one of the top PANDAS docs when he was trying to determine if PANDAS/PITAND was

the cause.

Read the recent article on Sudden Onset OCD published in the most recent

International OCD Foundation newsletter. Here is a link:

http://www.ocfoundation.org/default.aspx?id=2279 & terms=pandas

Again, if I can answer any questions, just let me know.

Kara

>

> Kara ~ She has had strep a few years ago and she has pneumonia about 2 years

> ago. I will read more on PANDAS and look over her medical record to see what I

> can find.

>

[Guest guest]

Hi yes we see a PANDAS specialist and he was put on the antibiotic in May. We

have seen an improvement but everything I read said the OCD will go away and

then come back is reinfected by strep, a virus etc. We have not been even one

day thought free. I guess it is me who thinks it may just be OCD and the true

test will be to take him off the antibiotic and see how bad it gets. He has

" tools " to use when he is having a thought but he is 11 and immature and doesn't

always use them. He usually comes to me and I have been taught to answer him in

a ridiculous way. Example, " mom, my brain is telling me to kill myself. " I then

answer him, " Cool, how are you going to do it. " At first it was the hardest

thing as a mom for me to do but I will do what I have to to help him. We have

good days and bad......my heart just breaks for him. He isn't supposed to be

relying on me to help him when he gets stuck on a thought, but I want him to

know he can always come to me so I guess we cheat a little with the therapy. We

do exposures if it is a thought about killing himself I will hand him a knife

and he needs to touch his skin. At first I was scared to death but it really

does help him. Our therapist went through special training in OCD and I trust

her 100 percent. Feel free to ask me anything. Sorry my iPad has a mind of it's

own and I see a few typos....sorry

e

Sent from my iPad

> Hi, good to hear the therapy is making a difference. When OCD seems to just

start, get so bad so fast, it's hard that therapy can take so long, even with

progress. Day by day is right.

>

> You mentioned he's on an antibiotic, any difference with that at all since you

may stop it? Is it the PANDAS OCD you're treating him for then?

>

> How is the therapist having him work on the thoughts and the compulsions? Is

he trying to limit how often he confesses to you, or doing any exposures to his

thoughts?

>

>

>

>

> >

> > Just wanted to say hi and say that my son was diagnosed with OCD in

April.....it has been a roller coaster ride to he'll and back. He ended up

hospitalized in a mental hospital for 2weeks because I didn't know what was

happening to him. It was the hardest thing that I have ever had to do as a mom.

He was put on Risperdal which did not help.....he gained 20 lbs in 6 months

Prozac was added and that put him over the edge. I had to switch psychiatrists

to find one who would get him off the psych meds. He is currently only on an

antibiotic that I may stop. He goes to CBT and that has made a world of

difference. it breaks my heart to see him suffer daily. He has intrusive

thoughts and the compulsions seem to be reassurance and constantly telling me

his every bad thought. He has come a long way but it is day by day. Any advice

would be great. Sorry for the typos.....my iPad has a mind of its own. My son is

11.

> >

>

>

[Guest guest]

I don't have any real information for you as I am out the door, but I just

wanted to say welcome and when you say you need support, this is the most

amazing support group ever!  The parents here have a wealth of information

which they share so freely -- and you will find people to mourn with you when

struggling and rejoice with you when your son has a successful moment!  You are

so not alone and I know within a short time you will receive tons of responses

of welcome, support and help.

in WA

To:

Sent: Tuesday, January 31, 2012 9:16 AM

Subject: New to the Group

 

Hi Everyone,

I'm Jan and I have a 10 year son, . He was just recently diagnosed with

Tourettes. He also has been diagnosed with ADHD, OCD, and Dyslexia. I have not

yet tried any meds with him since the end of his 2nd grade year (he would be in

5th grade now) because he had some complications from the meds. I decided to

homeschool him at that point and have ever since. Some of his behaviors

improved, but here recently the tourettes has kicked in plus his OCD is much

worse. I have a call in to his doctor about finding him some help. I have a

couple of questions. First, I feel like I need to learn the best way to help my

son. Has anyone received family counseling to help you find the best way to help

your child or is there a good book I could find about this topic? Also, is it

best to start just with behavior therapy before trying medication? I've never

been a big medication person, but if my son needs it to help him have a better

life with friends and being able to

learn then I will go that route too.

Finally, I just want to say it's comforting finding this group. I don't really

have anyone I know who has these types of issues with their kids. I've already

learned a few things just from reading your comments and questions. In fact, I

didn't realize that " confessing " was an OCD type problem. My son has always done

this to some extent, but here lately it's getting worse. I'm not really sure how

to handle that.

[Guest guest]

Thanks for the welcome and encouragement.  I'll definetly check out the

book and probably many others since we live in a rural area and don't have

access to many doctors.  We have to travel quite a ways to get to the better

hospitals and doctors. 

 

Jan K.

From: @...

 

Hi Jan, welcome!!

At age 10, got to wonder if some puberty/hormones are picking up and maybe

causing an increase. Don't know if there is scientific evidence about that, but

it's often been a topic here.

Family counseling - if he receives therapy from an experienced OCD therapist,

then they should include you/family as to the best way to help him, how to

respond at home, what " OCD homework " he has to do, etc. He would still see the

therapist alone, but they should take some time with you too included at some

appointments or at the end of some. A good therapist will. (said since it can be

hard to find a good therapist or one who understands OCD treatment!)

[Guest guest]

As for the confessions, he is probably going to have to start with some behavior

therapy. My daughter has that compulsion and has been in CBT/ERP since

November. Her doctor has been working with her on recognizing when she is

avoiding something because she is afraid and her compulsions and explaining to

her that when she does these rituals she is taking the easy way out and just

putting herself in a cycle to continue to need them. She has been helping her

to understand that facing the fear and riding it out is better because it will

have a more lasting effect. She talked to her about the need to confess

yesterday and explained that she is actually seeking reassurance from me. She

told her that she needs to resist that urge and try to remember that this is

" Buzz " (her name for her OCD) talking and that she doesn't need to do this. I

know it all seems easier than it really is, but I think the more he works with

the therapist the easier it gets.

>

> Hi Everyone,

> I'm Jan and I have a 10 year son, . He was just recently diagnosed with

Tourettes. He also has been diagnosed with ADHD, OCD, and Dyslexia. I have not

yet tried any meds with him since the end of his 2nd grade year (he would be in

5th grade now) because he had some complications from the meds. I decided to

homeschool him at that point and have ever since. Some of his behaviors

improved, but here recently the tourettes has kicked in plus his OCD is much

worse. I have a call in to his doctor about finding him some help. I have a

couple of questions. First, I feel like I need to learn the best way to help my

son. Has anyone received family counseling to help you find the best way to

help your child or is there a good book I could find about this topic? Also, is

it best to start just with behavior therapy before trying medication? I've

never been a big medication person, but if my son needs it to help him have a

better life with friends and being able to learn then I will go that route too.

>

> Finally, I just want to say it's comforting finding this group. I don't

really have anyone I know who has these types of issues with their kids. I've

already learned a few things just from reading your comments and questions. In

fact, I didn't realize that " confessing " was an OCD type problem. My son has

always done this to some extent, but here lately it's getting worse. I'm not

really sure how to handle that.

>

[Guest guest]

Welcome to the group. Our daughter was about that age when she first started

showing signs, but then it would go away for a few years and then come back,

etc.

We are just now in the process of starting therapy. My husband and I have said

many of times the past few months that we wish we would have known more about

this 8 years ago.

We are dealing with the washing hands excessively and the repeating too.

Big Hugs. We just found this group a little while ago and already have learned

so much.

Meg and Jon

Proud parents of 4

14 Daughter who has OCD, 12 year old son, 9 year old son and 7 year old

daughter.

>

> Hello, my son is 6 years old and we don't have an official diagnosis yet, but

we are pretty sure that he has OCD. He just started Kindergarten this year and

that's when some of his strange behaviors started. He would spit on his shirt

most of the day. When I asked him why he did that he would say because his

mouth was dirty and he needed to spit out the dirt. Now it's the handwashing

that's started. He always asks what if questions, a lot. Also, if he gets in

trouble he repeats, I'm sorry, you hate me, you hate me, over and over again.

We don't know how to respond to that. We tell him we don't hate him, but he

doesn't believe us. Then he says he hates himself and it goes on and on. We

want to discpline him for doing something wrong, but we aren't sure if we should

be doing it in a differnt way. It's very frusterating.

>

> We have taken him to a developmental doctor at Children's Hospital to be

evaluated and they tell us it's general anxiety and put him on Sitraline. We do

have another appointment in July for Neurological testing, so hopefully that

will give us some answers.

>

> Any suggestions or help would be appreciated. Thanks!

>