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YOU WERE AWESOME!!!! It's so wonderful to have such a calm, cool and collected

parent like you representing all of us. THANK YOU!

Tammy

Mike Bernoski wrote:

Man! something like that is hard to do... I am not sure I took a

breath

for 5 minutes, and of course I only got 20% of my points checked off my

list. Oh well, thank you for your prayers...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

________________________________

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Mara LaViola

Sent: Wednesday, November 01, 2006 6:52 AM

To: Texas-Autism-Advocacy

Subject: Re: Update

Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this

morning - I prayed for you anyway --- but you did not need it -- you

were fantastic...honestly, I was concerned -- if Imus went on a rampage

it would be easy to get caught up in it - but he remained calm cause YOU

set the tone - you were awesome

Mike Bernoski <mike.bernoski@...

<mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office

called me back and said they were unable to fit me in

before the election.

I resubmitted a request for between now and the start of the

congressional session.

Say a prayer for me to say the right thing on Imus at 6:29am our time in

the morning...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

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Thanks Tammy,

I have already been flamed by the national biomed folks for not

screaming " Vaccines are killing our children " and for mentioning the

dreaded ABA word.

I sometimes think the extremism represented in the autism community is

its own worst enemy, and our opponents are laughing all the way to the

bank...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

________________________________

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Todd Snively

Sent: Wednesday, November 01, 2006 10:00 AM

To: Texas-Autism-Advocacy

Subject: RE: Update

YOU WERE AWESOME!!!! It's so wonderful to have such a calm, cool and

collected parent like you representing all of us. THANK YOU!

Tammy

Mike Bernoski <mike.bernoski@...

<mailto:mike.bernoski%40sekureconnekt.com> > wrote:

Man! something like that is hard to do... I am not sure I took a breath

for 5 minutes, and of course I only got 20% of my points checked off my

list. Oh well, thank you for your prayers...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

________________________________

From: Texas-Autism-Advocacy

<mailto:Texas-Autism-Advocacy%40yahoogroups.com>

[mailto:Texas-Autism-Advocacy

<mailto:Texas-Autism-Advocacy%40yahoogroups.com> ] On Behalf Of Mara

LaViola

Sent: Wednesday, November 01, 2006 6:52 AM

To: Texas-Autism-Advocacy

<mailto:Texas-Autism-Advocacy%40yahoogroups.com>

Subject: Re: Update

Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this

morning - I prayed for you anyway --- but you did not need it -- you

were fantastic...honestly, I was concerned -- if Imus went on a rampage

it would be easy to get caught up in it - but he remained calm cause YOU

set the tone - you were awesome

Mike Bernoski <mike.bernoski@...

<mailto:mike.bernoski%40sekureconnekt.com>

<mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office

called me back and said they were unable to fit me in

before the election.

I resubmitted a request for between now and the start of the

congressional session.

Say a prayer for me to say the right thing on Imus at 6:29am our time in

the morning...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

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Wow Mike, that makes me so sad that they would do that. Thanks again

for your courage and the generosity of your time.

S.

Re: Update

Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this

morning - I prayed for you anyway --- but you did not need it -- you

were fantastic...honestly, I was concerned -- if Imus went on a rampage

it would be easy to get caught up in it - but he remained calm cause YOU

set the tone - you were awesome

Mike Bernoski <mike.bernoski@...

<mailto:mike.bernoski%40sekureconnekt.com>

<mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office

called me back and said they were unable to fit me in

before the election.

I resubmitted a request for between now and the start of the

congressional session.

Say a prayer for me to say the right thing on Imus at 6:29am our time in

the morning...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

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Could not agree more.......You have camps for:

ABA vs. TEACH vs. floor time vs. whatever

Tomatoes vs. Bernard

GFCF vs. SCD

Enzymes vs. diet vs. no diet

biomedical vs. behavior

.........etc.

The bottom line is what works for one may not work for the other, and in my

opinion Autism is caused by multiple things. It is a condition, a symptom

of an underlining cause (so) that no one really knows for sure....

> I sometimes think the extremism represented in the autism community is

> its own worst enemy, and our opponents are laughing all the way to the

> bank...

>

> Regards,

>

> Mike Bernoski

>

>

>

> *** The future belongs to those who believe

> *** in the beauty of their dreams...

>

> ________________________________

>

> From: Texas-Autism-Advocacy

> [mailto:Texas-Autism-Advocacy ] On Behalf Of Todd Snively

> Sent: Wednesday, November 01, 2006 10:00 AM

> To: Texas-Autism-Advocacy

> Subject: RE: Update

>

>

>

> YOU WERE AWESOME!!!! It's so wonderful to have such a calm, cool and

> collected parent like you representing all of us. THANK YOU!

> Tammy

>

> Mike Bernoski <mike.bernoski@...

> <mailto:mike.bernoski%40sekureconnekt.com> > wrote:

> Man! something like that is hard to do... I am not sure I took a breath

> for 5 minutes, and of course I only got 20% of my points checked off my

> list. Oh well, thank you for your prayers...

>

> Regards,

>

> Mike Bernoski

>

> *** The future belongs to those who believe

> *** in the beauty of their dreams...

>

> ________________________________

>

> From: Texas-Autism-Advocacy

> <mailto:Texas-Autism-Advocacy%40yahoogroups.com>

> [mailto:Texas-Autism-Advocacy

> <mailto:Texas-Autism-Advocacy%40yahoogroups.com> ] On Behalf Of Mara

> LaViola

> Sent: Wednesday, November 01, 2006 6:52 AM

> To: Texas-Autism-Advocacy

> <mailto:Texas-Autism-Advocacy%40yahoogroups.com>

> Subject: Re: Update

>

> Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this

> morning - I prayed for you anyway --- but you did not need it -- you

> were fantastic...honestly, I was concerned -- if Imus went on a rampage

> it would be easy to get caught up in it - but he remained calm cause YOU

> set the tone - you were awesome

>

> Mike Bernoski <mike.bernoski@...

> <mailto:mike.bernoski%40sekureconnekt.com>

> <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office

> called me back and said they were unable to fit me in

> before the election.

>

> I resubmitted a request for between now and the start of the

> congressional session.

>

> Say a prayer for me to say the right thing on Imus at 6:29am our time in

> the morning...

>

> Regards,

>

> Mike Bernoski

>

> *** The future belongs to those who believe

> *** in the beauty of their dreams...

>

>

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Mike,

I saw the Youtube video and saw you at the Autism Silent Protest in

and appreciate all that you are doing for our ASD

families. It does not surprize me that you have been " flamed " .

This is something I slowly learned as I became more knowledgeable of

Autism - biomed, ABA, different therapies, different groups, so on

and on..........

Hey, I hope your company appreciates what you are doing. If you get

any negative stuff there, please post or email off-line. I would

just LOVE to express to your company your great American values and

service as a spokesman for Autism.

********clip from previous post

" I am also going to have to give back last weeks salary to my

employer. "

********

I would also like to offer money if in anyway you actually have

to " give back " any money. I sincerely mean it too.

I also look forward to listening to Imus on MSNBC when I find the

link........ :>)

Mark Colditz

Carrollton, Texas

19 year old, quiet Asperger son in the Autism spectrum

Hastert's

office

> called me back and said they were unable to fit me in

> before the election.

>

> I resubmitted a request for between now and the start of the

> congressional session.

>

> Say a prayer for me to say the right thing on Imus at 6:29am our

time in

> the morning...

>

> Regards,

>

> Mike Bernoski

>

> *** The future belongs to those who believe

> *** in the beauty of their dreams...

>

>

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Just an observation but there are so many enviromental toxins as well as the

ones in the vaccines. Our foods and the air we breathe just for example. I

applaude Mike for standing up for all of us.

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I just have to add something on this one.

I urge everyone who is single-minded as to what they believe the

" cause " of their child's autism might be, to PLEASE remember that we

just sometimes DONT know everything.

I do NOT disagree with anyone who believes their child's autism was

created by vaccinations.

I have 4 other family members, all male and all sons/grandsons of my

aunt (my mother's sister).

My daughter experienced severe problems breathing on her own after she

was born, and this happened without warning as the pregnancy and birth

were uneventful, and she went full-term (38 weeks).

My daughter was pathetically behind on her vaccinations until last

August. I mean really behind, as in did not have but the first round.

Another thanks for Mike and all of you who have worked so hard trying

to get something going in a positive direction.

Much appreciated here in southeast Texas.

>

> Just an observation but there are so many enviromental toxins as

well as the ones in the vaccines. Our foods and the air we breathe

just for example. I applaude Mike for standing up for all of us.

>

>

>

>

>

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Thank you Mike!

Anne

-- Re: Update

Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this

morning - I prayed for you anyway --- but you did not need it -- you

were fantastic...honestly, I was concerned -- if Imus went on a rampage

it would be easy to get caught up in it - but he remained calm cause YOU

set the tone - you were awesome

Mike Bernoski <mike.bernoski@...

<mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office

called me back and said they were unable to fit me in

before the election.

I resubmitted a request for between now and the start of the

congressional session.

Say a prayer for me to say the right thing on Imus at 6:29am our time in

the morning...

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

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HI Brett,

I am one of the wifes that is dealing with a dragon infested husband

and I thought I write and give you my point of view and how we feel at

time! Maybe it will help.First of all: I would never ever leave my

husband, I love hima and we are together in sickness and health. We

only had 2 good years when I first met him and then he got sick and it

was bad from the start. I been taking care of him now since 1999 and it

has been a rollercoaster of a life. (I dont like rollercoasters)

Sometimes I feel life has dealed us a rough blow and sometimes I dont

know how to go on with it. But for Kim's sake I have too. By now I am

on antidepressant " s and my health is going down fast too, but I have to

go on. I get moody and sometimes even resentful and I am sure Kim feels

like I am thinking about leaving. That thought has never entered my

mind. If you love a person, and that person gets sick and badly sick,

one feels the pain with that person and sometimes even more then the

sick one itself. It is not easy on us wifes to watch the loved one

hurting so sometime we come accross a little harsh. In order to not let

Kim get to a point where he lets the sickness take over his life, I

have to be hard and make him do things he does not want to do. That is

not an easy thing to do for either one of us.

I guess what I am trying to say is that sometimes things look different

then what they really are. It is called " tough Love " and it is not the

ideal thing for a marriage.

Your wife has stuck it out for this long, I think she will stick it out

all the way. I know I will, not because I have to, but because I love

my husband.

I pray you have a good day.

Jenaka

>

> I haven't posted for a while so I thought I would check in. I went on

medical leave in May and my long term disability and SSI were approved,

for that I feel blessed. After leaving work I went into a deep

depression and I was over medicating not on just the pain meds but also

had a bad reaction to xanax and amitripilyne.

My marriage has been rocky from the start but since I got stills it

has got worse. I am getting counseling now but I fear it might be to

late. We sold our house the end of Sep. and move to a apartment on the

Puyallup river.

>

> Brett, from Puyallup WA.

>

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HI Brett,

I am one of the wifes that is dealing with a dragon infested husband

and I thought I write and give you my point of view and how we feel at

time! Maybe it will help.First of all: I would never ever leave my

husband, I love hima and we are together in sickness and health. We

only had 2 good years when I first met him and then he got sick and it

was bad from the start. I been taking care of him now since 1999 and it

has been a rollercoaster of a life. (I dont like rollercoasters)

Sometimes I feel life has dealed us a rough blow and sometimes I dont

know how to go on with it. But for Kim's sake I have too. By now I am

on antidepressant " s and my health is going down fast too, but I have to

go on. I get moody and sometimes even resentful and I am sure Kim feels

like I am thinking about leaving. That thought has never entered my

mind. If you love a person, and that person gets sick and badly sick,

one feels the pain with that person and sometimes even more then the

sick one itself. It is not easy on us wifes to watch the loved one

hurting so sometime we come accross a little harsh. In order to not let

Kim get to a point where he lets the sickness take over his life, I

have to be hard and make him do things he does not want to do. That is

not an easy thing to do for either one of us.

I guess what I am trying to say is that sometimes things look different

then what they really are. It is called " tough Love " and it is not the

ideal thing for a marriage.

Your wife has stuck it out for this long, I think she will stick it out

all the way. I know I will, not because I have to, but because I love

my husband.

I pray you have a good day.

Jenaka

>

> I haven't posted for a while so I thought I would check in. I went on

medical leave in May and my long term disability and SSI were approved,

for that I feel blessed. After leaving work I went into a deep

depression and I was over medicating not on just the pain meds but also

had a bad reaction to xanax and amitripilyne.

My marriage has been rocky from the start but since I got stills it

has got worse. I am getting counseling now but I fear it might be to

late. We sold our house the end of Sep. and move to a apartment on the

Puyallup river.

>

> Brett, from Puyallup WA.

>

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Jenaka

Loved your letter to Brett .I wish my ex had felt as you do. She

divorced me after I got stills. Did this about a year later. She left me

with nothing to even get by with. It is nice to know there are good

people that stand by there other half and believe in the vows better or

worse. That covers it all including in sickness and health. I now have a

woman in my life that is like that only she never got to know me before

stills when I could do things and still work and enjoy life fuller then

I do now days. Saddest part in it all is it is not only the wife/

husband but the kids and they seam to fair worse then any one other. My

son is still hurting after it all and worries all the time about me. At

lest we see each other may be once a year and talk all the time my

daughter after two years now dose not talk to me at all in any way shape

or form. This is just what her mother wanted. Her mother also told her I

was cheating on here because I went out and started to date one month

before the divorce was to be final but did not tell her she gave me no

option for ever coming back even thou I begged her to go to go to family

and individual concealing with me at lest one time each month. I beloved

then and still do that the time to work on it (a Marriage) is before a

divorce not after as I also let her know if she went ahead and finished

it off then she was letting me know there was nothing to work on . That

is just what she did as a two week later I got a letter that said she

wanted every thing including all right to my kids taken from me blaming

my stills and depression for the reasons. Well that is just what the

judge gave her also every thing and me nothing but debt. This all came

down because I got ill and could not work. What I also know now is I was

nothing more then a pay check coming into the house. I also know she did

some thing I never could have done and it is with great pleasure that I

have some one in my life like that now and to read there are more out

there like you and her. Thank you for letting us know yes it is not easy

but some times doing what is right is neither easy nor popular

Hugs all

Marty

Re: update

HI Brett,

I am one of the wifes that is dealing with a dragon infested husband

and I thought I write and give you my point of view and how we feel at

time! Maybe it will help.First of all: I would never ever leave my

husband, I love hima and we are together in sickness and health.

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Hey Lauri..they sometimes think about that with me too and then come back to

Stills. Don't go..stay...let us know how you are. By the way. Do you have a

positive ANA ? How high, if you know. I hope you feel bettter Liz NJ

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Lauri,

You are always welcome here, Stills diagnosis or not. Lupus is our

cousin and many of the issues similar.

What made him change the diagnosis to Lupus? I'm glad you are getting

a second opinion. It can't hurt to have someone else weigh in. I know

every time I see a new rheumy they check me for Lupus just to make

sure my diagnosis is right.

Let us know what's going on.

Houston

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Sorry about your Grandma. Your family is in my thoughts. Love and

gentle hugs Sharon xxoo

> I have been offline for awhile wow 600 emails and at least few new

> members :) welcome to the Island.I see alot of members who used to

> be active checking in thats cool.I have been doing well,but

> yesterday someone stole my Truck damn Bandits Cops still havent

> found it :).Ohh well im drivin in style they can keep it.My Grandma

> is not doing well at the moment though,doctors dont think she will

> be with us long but she proved them wrong before :).Take care

> everyone. d.Canada

>

>

>

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Hay Gail..how maddening !! Let me know how you do this week. Many hugs my

friend Liz NJ

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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((()))

Wish I knew what to say. My son does not have seizures so I don't

understand that part of what you are going thought. BUT my heart does go out to

you. I have different things that we deal with. Please know I will be praying

for Mojo, you and your family.

Kami

" The Lord bless you and keep you;

The Lord make His face shine upon

you, And be gracious to you;

The Lord lift up His countenance upon

you, And give you peace. "

numbers 6:24

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Kami

Thank you for your kind words, opps (flood gates open again)

I hope you are able to find the answers you need to sort out your difficulties.

God Bless you and all your family

To: polymicrogyria@...: jkdyers@...: Wed, 5 Dec

2007 16:07:43 -0800Subject: Re: update

((()))Wish I knew what to say. My son does not have seizures so I

don't understand that part of what you are going thought. BUT my heart does go

out to you. I have different things that we deal with. Please know I will be

praying for Mojo, you and your family.Kami " The Lord bless you and keep you;The

Lord make His face shine uponyou, And be gracious to you;The Lord lift up His

countenance upon you, And give you peace. " numbers 6:24[Non-text portions of this

message have been removed]

_________________________________________________________________

Who's friends with who and co-starred in what?

http://www.searchgamesbox.com/celebrityseparation.shtml

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so sorry to hear that you are going through this. I would be crying to if I was

in your situation. It has to be so hard to deal with and see your child deal

with it. Hope things get better.

lisa166284 wrote: Hi all

Just a quick email to keeo you up todate with Mojo.

Well we are due to go back in to hospital again tomorrow!:(

his seizures have becone so bad that he has to go into hospitsl sgsin!!

I'm so tried of going back and forth and never getting any where, i

just want to cry all the time!don't get me wrong this really is nothing

new, he is consantly in and out of hopspital, but some days i really

don't feel i can keep putting him throught this! he hardly sleeps

because the seizure are sleep triggerd! (great eh!)

he's so tired because of all the seizures and his schooling is being

seriously effected and for that matter, so am I!

were maxied out on the emergency meds. because were having to use it

sooo often.

he had 4 major fits yesterday plus several drop attacks, and repeated

abcences.

Sorry to moan but i needed to get it out of my system before i am awake

at 3am again dealing with more seizures!! sorry if there are any typo's

but this is the only time i can get the crying out without upsetting

the rest of thr house and it's becoming harder to type through the

tears.(DON'T WoRRY I'LL BE FINE I THE MORNING!) LOL

i think we all have these days.

But on a good note!!

MERRY CHRISTMAS EVERYONE LETS HOPE THAT 2008 IS KIND TO US ALL!!

Mom 2 Evan Left Spastic Hemiplegia 3yrs old, 6.5yrs nda and SM to

15.5yrs

www.justinichfamily.blogspot.com

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

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I'm so sorry you're going through all this. It just wears you down. I

hope you get some rest, real rest, soon. I'll be thinking of you.

Hugs and prayers,

mom to 5

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Hi ,

We all have those days, don't we?

I will pray that God strenghtens you and renew you tonight. I always ask for

wisdom on my son's treatment and I ask Him to guide me by my hand, He is the

only One that really knows how each one of us feel and the only One who can

confort and guide us.

God Bless you.

Deborah

lisa166284 wrote:

Hi all

Just a quick email to keeo you up todate with Mojo.

Well we are due to go back in to hospital again tomorrow!:(

his seizures have becone so bad that he has to go into hospitsl sgsin!!

I'm so tried of going back and forth and never getting any where, i

just want to cry all the time!don't get me wrong this really is nothing

new, he is consantly in and out of hopspital, but some days i really

don't feel i can keep putting him throught this! he hardly sleeps

because the seizure are sleep triggerd! (great eh!)

he's so tired because of all the seizures and his schooling is being

seriously effected and for that matter, so am I!

were maxied out on the emergency meds. because were having to use it

sooo often.

he had 4 major fits yesterday plus several drop attacks, and repeated

abcences.

Sorry to moan but i needed to get it out of my system before i am awake

at 3am again dealing with more seizures!! sorry if there are any typo's

but this is the only time i can get the crying out without upsetting

the rest of thr house and it's becoming harder to type through the

tears.(DON'T WoRRY I'LL BE FINE I THE MORNING!) LOL

i think we all have these days.

But on a good note!!

MERRY CHRISTMAS EVERYONE LETS HOPE THAT 2008 IS KIND TO US ALL!!

---------------------------------

Never miss a thing. Make Yahoo your homepage.

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--

Best of luck as you undertake this! I'm thinking of you and ,

and looking forward to hearing about his progress.

Blessings,

mom to 5

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They wanted me to do treatment for Hep C before my transplant even though my

cirrhosis was decompensated, but I wasn't stable enough to handle it at that

time. Is your brother's cirrhosis compensated or decompensated? I don't

remember if you said he had ascites (fluid in abdomen), varices, encephalopathy

(confusion), or jaundice which would make his cirrhosis decompensated. I have a

friend who did treatment two times while having compensated cirrhosis (last

treatment in 2002), and it didn't work for her, but it seemed to help a little

since she is still in pretty good shape and still compensated.

Penny

>

> My sister emailed me about . She's called his social worker and told

them about how he's still eating too much sodium. They are going to see if

is cabable of learning about this, and also explain to our parents that

sow sodium diet is not a sometimetimes thing and tell them places they could go

to eat out. They usually eat out at least once a week. She told me that she

does not believe will get a liver transplant because of other problems.

The doctors still don't know if he also has MS or not. With Hep C Stage 4 and

Cirrosis of the Liver, how long does a person usually live without treatment for

Hep C? Do they treat Hep C prior to liver transplant if the patient also has

cirrosis of the liver? also has an enlarged spleen.

>

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They removed a large amount of liquid sometime ago, but not recently. He does

have confusion. Not sure if it is compressed or not. The liquid removal is why

they restricted his sodium.

---- preciouspenny3 wrote:

> They wanted me to do treatment for Hep C before my transplant even though my

cirrhosis was decompensated, but I wasn't stable enough to handle it at that

time. Is your brother's cirrhosis compensated or decompensated? I don't

remember if you said he had ascites (fluid in abdomen), varices, encephalopathy

(confusion), or jaundice which would make his cirrhosis decompensated. I have a

friend who did treatment two times while having compensated cirrhosis (last

treatment in 2002), and it didn't work for her, but it seemed to help a little

since she is still in pretty good shape and still compensated.

>

> Penny

>

>

>

>

> >

> > My sister emailed me about . She's called his social worker and told

them about how he's still eating too much sodium. They are going to see if

is cabable of learning about this, and also explain to our parents that

sow sodium diet is not a sometimetimes thing and tell them places they could go

to eat out. They usually eat out at least once a week. She told me that she

does not believe will get a liver transplant because of other problems.

The doctors still don't know if he also has MS or not. With Hep C Stage 4 and

Cirrosis of the Liver, how long does a person usually live without treatment for

Hep C? Do they treat Hep C prior to liver transplant if the patient also has

cirrosis of the liver? also has an enlarged spleen.

> >

>

>

>

>

> ------------------------------------

>

> It's a pleasure having you join in our conversations. We hope you have found

the support you need with us.

>

> If you are using email for your posts, for easy access to our group, just

click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

>

> Happy Posting

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hi Penny. you have been through so much the last couple of years. when you got

your transplant in jan '08 why did your viral count seem so low? mine was

7,500,000 and my liver numbers were just a little above normal. is it because

your old liver just gave up trying? is that de-compensating? how is your new

liver? i know treatment is a drag but how are you feeling?

sorry for so many questions.

(((hugs)))

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