Re: Autism Speaks Video

May 16, 2006

That was the best docu video I have seen to date.

Although I think I've cried so much in the past 10

years that I wasn't weeping while watching, it was

like a reproduction of my life since children.

Especially since it showed families with more than one

affected child. I just forwarded the link to everyone

in our family. They all live far away, and I sometimes

wonder whether they think about our day to day lives

at all -- while they rush around to soccer, ballet,

cub scouts, restaurants, vacations, to bed at a decent

hour to get a full night's rest so they can do it all

all over again with clear heads and healthy bodies.

And now I need to get ready to go and apply for

respite services from the state. Even though I HATE

leaving Casey with anyone. My husband and I haven't

been out together in a year. It's time.

--- ds2400 wrote:

>

> This is the best video on what it's like to be a

> parent in the world

> of autism that I've ever watched. It's 13 minutes

> long and on the

> Autism Speaks website (in case the link below

> doesn't work). Prepare

> yourself beforehand. I'm sitting here typing with

> tears streaming

> down my face. Even though I live it, to see it on

> the screen takes

> your breath away.

>

> Diane ('s Mom)

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

>

__________________________________________________

May 16, 2006

God, I know.... I saw it for the first time a few days ago. I was

totally blown away and practically drowning in my own tears. Every

single word out of the mouths of those moms could have been spoken by

me. It was unreal.

I particularly related to the mom who said it was like waking up with

a hangover every day, only you didn't have any fun the night before.

Or the mom who said her friends with typical kids were always asking

her to go out for a bagel, and she said, " Yeah, in another life, I'll

go have a bagel with you! So true.... my " bagel " friends just

don't get it at all....

I sent that video to every single person I know. The responses have

been amazing. Most have told me they had no clue what it was like

and that when they see a kid having a meltdown, out of control,

instead of judging the moms, they'll say a prayer for them instead.

Right on!

>

> This is the best video on what it's like to be a parent in the world

> of autism that I've ever watched. It's 13 minutes long and on the

> Autism Speaks website (in case the link below doesn't work). Prepare

> yourself beforehand. I'm sitting here typing with tears streaming

> down my face. Even though I live it, to see it on the screen takes

> your breath away.

>

> Diane ('s Mom)

>

> http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

May 16, 2006

Is that the one where the mother talks about killing

herself and her autistic child in front of said

autistic child?

That makes me cry for the child, for living in such an

unaccepting environment.

Kassiane

--- ds2400 wrote:

>

> This is the best video on what it's like to be a

> parent in the world

> of autism that I've ever watched. It's 13 minutes

> long and on the

> Autism Speaks website (in case the link below

> doesn't work). Prepare

> yourself beforehand. I'm sitting here typing with

> tears streaming

> down my face. Even though I live it, to see it on

> the screen takes

> your breath away.

>

> Diane ('s Mom)

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

>

__________________________________________________

May 16, 2006

Yes and the sibling of her to also shared she wishes she had a

sister who didnt have of autism. sad. but in all the film itself was

of excellant portayal of classical autism in a variety of

presentations.

Sondra

In Autism_in_Girls , Kassi

wrote:

>

> Is that the one where the mother talks about killing

> herself and her autistic child in front of said

> autistic child?

>

> That makes me cry for the child, for living in such an

> unaccepting environment.

>

> Kassiane

>

> --- ds2400 wrote:

>

> >

> > This is the best video on what it's like to be a

> > parent in the world

> > of autism that I've ever watched. It's 13 minutes

> > long and on the

> > Autism Speaks website (in case the link below

> > doesn't work). Prepare

> > yourself beforehand. I'm sitting here typing with

> > tears streaming

> > down my face. Even though I live it, to see it on

> > the screen takes

> > your breath away.

> >

> > Diane ('s Mom)

> >

> http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> >

>

> __________________________________________________

>

May 16, 2006

We had this discussion on the EOHarm board. I said for goodness sakes,

if a parent feels the need to discuss such feelings to not do it in

front of the kid. At the same time, she makes a valid point at how

exhausting it is to be changing diapers of 6yr old+, getting hit and

slapped all day long, etc.

Debi

May 16, 2006

Yep, I shared with my SIL about how got me thinking

about the importance of Allie feeling confident and able. My SIL

responded (she's got one typical son who's almost 17) that it's not an

issue related to autism or just girls. Now I know she has her battles

and I definitely don't wanna get into a " woe is me' contest, but to

say it's the same is not at all. She's arguing with her son over the

amount of time he spends with girls. We don't know if our girls will

have that opportunity. While she's worrying about him driving, we're

worrying about how our kids will be able to get around. It's just not

anywhere near the same. I'm blessed to have both NT and autism kids,

and I can tell you, it's profoundly different. But, NT families just

don't get it. I prefer being with the autism community over the NT

community any day.

Debi

So true.... my " bagel " friends just

> don't get it at all....

>

May 17, 2006

I was in a live parent chat w/ Dr Sheely one Tues night, where we were

talking about the importance of all children, including a child w/ asd

developing a sense of competence. Dr Sheely called it " a personal

attitude of competence " .

>

> Yep, I shared with my SIL about how got me thinking

> about the importance of Allie feeling confident and able.

May 17, 2006

It made for a more understandable format for people

not affected by ASD to see all those things at the

same time. Not only are we slapped, constantly chasing

children who seem to not hear us, responsible for

other children,...but we also have to think coherently

and communicate effectively ourselves while sometimes

exhausted beyond sanity. Sometimes we just don't have

the time to be elsewhere to communicate about the

child being discussed. I really think that folks who

make statements like " You shouldn't discuss the child

while he/she is present " don't get that if he/she is

not present -- Where the heck is he/she and what the

heck is happening to her, and excuse me if I can't

ever finish a sentence, but I am just an atomaton who

chases this same kid all day long so why don't you

just get off your butt and follow ME for a change!

There. My spew of the day.

--- Debi wrote:

> We had this discussion on the EOHarm board. I said

> for goodness sakes,

> if a parent feels the need to discuss such feelings

> to not do it in

> front of the kid. At the same time, she makes a

> valid point at how

> exhausting it is to be changing diapers of 6yr old+,

> getting hit and

> slapped all day long, etc.

>

> Debi

>

__________________________________________________

May 17, 2006

Kassiane,

I think the point was to convey how very depressed the

caring selfless parents who spend all of their

resources can get. That woman loves her daughter very

much and is doing everything she can learn to help her

be happy and healthy.

--- Kassi wrote:

> Is that the one where the mother talks about killing

> herself and her autistic child in front of said

> autistic child?

>

> That makes me cry for the child, for living in such

> an

> unaccepting environment.

>

> Kassiane

>

> --- ds2400 wrote:

>

> >

> > This is the best video on what it's like to be a

> > parent in the world

> > of autism that I've ever watched. It's 13 minutes

> > long and on the

> > Autism Speaks website (in case the link below

> > doesn't work). Prepare

> > yourself beforehand. I'm sitting here typing with

> > tears streaming

> > down my face. Even though I live it, to see it on

> > the screen takes

> > your breath away.

> >

> > Diane ('s Mom)

> >

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> >

>

> __________________________________________________

>

May 17, 2006

If one can't get away from the child, then don't make those sorts of

statements. The kid's dignity should come before complaining.

Debi

really think that folks who

> make statements like " You shouldn't discuss the child

> while he/she is present " don't get that if he/she is

> not present -- Where the heck is he/she and what the

> heck is happening to her, and excuse me if I can't

> ever finish a sentence, but I am just an atomaton who

> chases this same kid all day long so why don't you

> just get off your butt and follow ME for a change!

> There. My spew of the day.

>

May 17, 2006

I to agree and there is better ways to share ones grief and pains

over the frustrations of not beeing well supported to help care for

the child. And if one feels compelled to still voice it out then

balance it well with the positives of the child. But my guess was

they did not want of balance because they wanted to portray real

life challenges they cope with daily. I to sensed the families did

really care and love of them kids and no doubt I to feel this mother

does love of her child why else would she feel desperate to run and

end it for both , she did not want to send her alone to her death

but to go with her but still the comment should not be maked as it

can to me confuse of the other child as well as the autistic child

int he delema of the sense of loss is pending and so will continue

to see the autism as a huge monster to fear. and yet while it is ot

be on some ways it still can be tamed and become functional to some

degrees in others.

I to be to feel horrible for the parents and siblings too I to

really do because they want to connect, they want to understand but

they like us are born with a huge barrier that is not allowing a

mutual connect in ways they can feel it and or seek it . It is of

sad to worry every moment if you child will escape and be to get of

hit or drowned or stolen and the dangers out there to such childrens

leaves them more vulnerable to preditors of childrens. a huge worry

in todays world for the kids. So as parent I to see both sides to

this.

Sondra

In Autism_in_Girls , " Debi "

wrote:

>

> If one can't get away from the child, then don't make those sorts

of

> statements. The kid's dignity should come before complaining.

>

> Debi

>

> really think that folks who

> > make statements like " You shouldn't discuss the child

> > while he/she is present " don't get that if he/she is

> > not present -- Where the heck is he/she and what the

> > heck is happening to her, and excuse me if I can't

> > ever finish a sentence, but I am just an atomaton who

> > chases this same kid all day long so why don't you

> > just get off your butt and follow ME for a change!

> > There. My spew of the day.

> >

>

May 17, 2006

I guess it's ok to talk about killing people in front

of them then? When did that happen?? You can get

arressted for that in BOTH states I've lived in.

Poor poor autism parents. Waaaaah.

Yes, that was cranky. I don't care. If parents care

about their children's happiness they can start by NOT

TALKING ABOUT KILLING THEM IN FRONT OF THEM.

Kassiane

--- McKinless wrote:

> Kassiane,

> I think the point was to convey how very depressed

> the

> caring selfless parents who spend all of their

> resources can get. That woman loves her daughter

> very

> much and is doing everything she can learn to help

> her

> be happy and healthy.

>

> --- Kassi wrote:

>

> > Is that the one where the mother talks about

> killing

> > herself and her autistic child in front of said

> > autistic child?

> >

> > That makes me cry for the child, for living in

> such

> > an

> > unaccepting environment.

> >

> > Kassiane

> >

> > --- ds2400 wrote:

> >

> > >

> > > This is the best video on what it's like to be a

> > > parent in the world

> > > of autism that I've ever watched. It's 13

> minutes

> > > long and on the

> > > Autism Speaks website (in case the link below

> > > doesn't work). Prepare

> > > yourself beforehand. I'm sitting here typing

> with

> > > tears streaming

> > > down my face. Even though I live it, to see it

> on

> > > the screen takes

> > > your breath away.

> > >

> > > Diane ('s Mom)

> > >

> >

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> > >

> >

> > __________________________________________________

> >

May 17, 2006

Kassi,

I will no longer be a part of a list where I am

attacked in this manner. It has been nice knowing you

this short time, and I wish you well. Your comments

here deserve absolutely no response beyond this.

Sincerely

--- Kassi wrote:

> I guess it's ok to talk about killing people in

> front

> of them then? When did that happen?? You can get

> arressted for that in BOTH states I've lived in.

>

> Poor poor autism parents. Waaaaah.

> Yes, that was cranky. I don't care. If parents care

> about their children's happiness they can start by

> NOT

> TALKING ABOUT KILLING THEM IN FRONT OF THEM.

>

> Kassiane

>

> --- McKinless wrote:

>

> > Kassiane,

> > I think the point was to convey how very depressed

> > the

> > caring selfless parents who spend all of their

> > resources can get. That woman loves her daughter

> > very

> > much and is doing everything she can learn to help

> > her

> > be happy and healthy.

> >

> > --- Kassi wrote:

> >

> > > Is that the one where the mother talks about

> > killing

> > > herself and her autistic child in front of said

> > > autistic child?

> > >

> > > That makes me cry for the child, for living in

> > such

> > > an

> > > unaccepting environment.

> > >

> > > Kassiane

> > >

> > > --- ds2400 wrote:

> > >

> > > >

> > > > This is the best video on what it's like to be

> a

> > > > parent in the world

> > > > of autism that I've ever watched. It's 13

> > minutes

> > > > long and on the

> > > > Autism Speaks website (in case the link below

> > > > doesn't work). Prepare

> > > > yourself beforehand. I'm sitting here typing

> > with

> > > > tears streaming

> > > > down my face. Even though I live it, to see

> it

> > on

> > > > the screen takes

> > > > your breath away.

> > > >

> > > > Diane ('s Mom)

> > > >

> > >

> >

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> > > >

> > >

> __________________________________________________

> > >

May 17, 2006

I wasn't attacking.

I can though, if you wish.

No one ever asks autistics, but damn it's always our

fault when there's disagreement.

-K

--- McKinless wrote:

> Kassi,

> I will no longer be a part of a list where I am

> attacked in this manner. It has been nice knowing

> you

> this short time, and I wish you well. Your comments

> here deserve absolutely no response beyond this.

> Sincerely

>

> --- Kassi wrote:

>

> > I guess it's ok to talk about killing people in

> > front

> > of them then? When did that happen?? You can get

> > arressted for that in BOTH states I've lived in.

> >

> > Poor poor autism parents. Waaaaah.

> > Yes, that was cranky. I don't care. If parents

> care

> > about their children's happiness they can start by

> > NOT

> > TALKING ABOUT KILLING THEM IN FRONT OF THEM.

> >

> > Kassiane

> >

> > --- McKinless wrote:

> >

> > > Kassiane,

> > > I think the point was to convey how very

> depressed

> > > the

> > > caring selfless parents who spend all of their

> > > resources can get. That woman loves her daughter

> > > very

> > > much and is doing everything she can learn to

> help

> > > her

> > > be happy and healthy.

> > >

> > > --- Kassi wrote:

> > >

> > > > Is that the one where the mother talks about

> > > killing

> > > > herself and her autistic child in front of

> said

> > > > autistic child?

> > > >

> > > > That makes me cry for the child, for living in

> > > such

> > > > an

> > > > unaccepting environment.

> > > >

> > > > Kassiane

> > > >

> > > > --- ds2400 wrote:

> > > >

> > > > >

> > > > > This is the best video on what it's like to

> be

> > a

> > > > > parent in the world

> > > > > of autism that I've ever watched. It's 13

> > > minutes

> > > > > long and on the

> > > > > Autism Speaks website (in case the link

> below

> > > > > doesn't work). Prepare

> > > > > yourself beforehand. I'm sitting here

> typing

> > > with

> > > > > tears streaming

> > > > > down my face. Even though I live it, to see

> > it

> > > on

> > > > > the screen takes

> > > > > your breath away.

> > > > >

> > > > > Diane ('s Mom)

> > > > >

> > > >

> > >

> >

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> > > > >

> > > >

> > __________________________________________________

> > > >

May 17, 2006

Come on ladies lets quit the fighting.

This group is for support.

We all have our own feelings about the video but I see no part in spending two

days fighting over it.

If someone shares a video lets just keep our comments to ourselves unless

comments are specifically asked for.

I have recently joined this group and was happy to be here but if there is going

to be all this drama then I myself will leave.

Missy

Check your tiara's at the door girls!!!

This is a DRAMA FREE ZONE!

Re: Autism Speaks Video

I wasn't attacking.

I can though, if you wish.

No one ever asks autistics, but damn it's always our

fault when there's disagreement.

-K

--- McKinless wrote:

> Kassi,

> I will no longer be a part of a list where I am

> attacked in this manner. It has been nice knowing

> you

> this short time, and I wish you well. Your comments

> here deserve absolutely no response beyond this.

> Sincerely

>

> --- Kassi wrote:

>

> > I guess it's ok to talk about killing people in

> > front

> > of them then? When did that happen?? You can get

> > arressted for that in BOTH states I've lived in.

> >

> > Poor poor autism parents. Waaaaah.

> > Yes, that was cranky. I don't care. If parents

> care

> > about their children's happiness they can start by

> > NOT

> > TALKING ABOUT KILLING THEM IN FRONT OF THEM.

> >

> > Kassiane

> >

> > --- McKinless wrote:

> >

> > > Kassiane,

> > > I think the point was to convey how very

> depressed

> > > the

> > > caring selfless parents who spend all of their

> > > resources can get. That woman loves her daughter

> > > very

> > > much and is doing everything she can learn to

> help

> > > her

> > > be happy and healthy.

> > >

> > > --- Kassi wrote:

> > >

> > > > Is that the one where the mother talks about

> > > killing

> > > > herself and her autistic child in front of

> said

> > > > autistic child?

> > > >

> > > > That makes me cry for the child, for living in

> > > such

> > > > an

> > > > unaccepting environment.

> > > >

> > > > Kassiane

> > > >

> > > > --- ds2400 wrote:

> > > >

> > > > >

> > > > > This is the best video on what it's like to

> be

> > a

> > > > > parent in the world

> > > > > of autism that I've ever watched. It's 13

> > > minutes

> > > > > long and on the

> > > > > Autism Speaks website (in case the link

> below

> > > > > doesn't work). Prepare

> > > > > yourself beforehand. I'm sitting here

> typing

> > > with

> > > > > tears streaming

> > > > > down my face. Even though I live it, to see

> > it

> > > on

> > > > > the screen takes

> > > > > your breath away.

> > > > >

> > > > > Diane ('s Mom)

> > > > >

> > > >

> > >

> >

>

http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> > > > >

> > > >

> > __________________________________________________

> > > >

May 17, 2006

i to lacked there was of fight here but I to guess it is happening

again. I to be to shayed words that were not right or be to caused it

sorry . Missy welcome but in true i to not get of you words here what

does it to be to mean below/ I to understand girls and or drama but

that is the only big word that brings a visual to me the rest is of

confusing.

> Check your tiara's at the door girls!!!

> This is a DRAMA FREE ZONE!

May 17, 2006

Sondra, that is referring to women who are called " drama queens " .

Picture a woman wearing a crown because she won for most dramatic.

When the term to check the tiara's at the door, that means we should

leave our roles as drama queens outside the message board. In other

words, stop being overly dramatic.

HTH,

Debi

>

> i to lacked there was of fight here but I to guess it is happening

> again. I to be to shayed words that were not right or be to caused it

> sorry . Missy welcome but in true i to not get of you words here what

> does it to be to mean below/ I to understand girls and or drama but

> that is the only big word that brings a visual to me the rest is of

> confusing.

>

> > Check your tiara's at the door girls!!!

> > This is a DRAMA FREE ZONE!

>

May 17, 2006

who was being of overly dramatic i to be confused how one can tell

of ones being drama quen when they cannot be to see the person . how

can words writed be of a drama queen? this is of confuing concepts

yet intriguing because i to be use much word comparisons too life

things too but I to only understand the ones I to create and think

on new ones from others is of foriegn in concepts. i to think this

is one areas i to get so eaily frustrated with self too because even

my own childrens make of fun to me because i to lack getting waht

seems to obvious to others and it just makes ofme feeling stupid

because i to not get it.

Example the husband to come to the room and to ask of me what do i

to want it to be titled? I to be to say what? I to not ahve clue to

hims words but the kids might be to say the CD daddy told yo last

week he will make for you, How can they be to know of this I to lack

as cant associate or infer and this leaves me feeling so very stupid

even to my own childrens. Sondra

In Autism_in_Girls , " Debi "

wrote:

>

> Sondra, that is referring to women who are called " drama queens " .

> Picture a woman wearing a crown because she won for most dramatic.

> When the term to check the tiara's at the door, that means we

should

> leave our roles as drama queens outside the message board. In other

> words, stop being overly dramatic.

>

> HTH,

> Debi

>

> >

> > i to lacked there was of fight here but I to guess it is

happening

> > again. I to be to shayed words that were not right or be to

caused it

> > sorry . Missy welcome but in true i to not get of you words here

what

> > does it to be to mean below/ I to understand girls and or drama

but

> > that is the only big word that brings a visual to me the rest is

of

> > confusing.

> >

> > > Check your tiara's at the door girls!!!

> > > This is a DRAMA FREE ZONE!

> >

>

May 17, 2006

I don't know who was being referred to as dramatic. I know what you

mean on these abstract thoughts. Have you ever seen the commercial

where they say, " It's not the leaning tower of pizza, we don't get

french benefits... " . That's me! My friends always made fun of me for

missing the phrase just slightly. I also say " whop-sided " and I've

been told it's " lop-sided " . What's wrong with a whop side? It's still

off in my eyes. Lol.

Debi

May 17, 2006

Have you ever seen the commercial

where they say, " It's not the leaning tower of pizza, we don't get

french benefits... " .

Yes this is of my life to words unless stored in my knowing from

much exposure I to ahve no clue and so many commercials are of like

to me a clutter of sound with no meaning. It is like back ground

clutter. i to get very few of them . my kids often have to explain

things to me for me to get it. Same with my fixation to the law and

order, dont get the words much it is just a mass of words that do

not register to me with any meaning. I to nto gain the same insight

that others to maybe watch it for. i to not be of even able to tell

you one character name on the show but i to watch it almost

nightly . I to lack why? yet i to be ever so fixated to it as part

of a routine and so it has to be on. If any to ask of me what is

happening cant tell you . it is like having it go static in sound

and then occasionally the sound will be lcear to only go back out

again is how my brain grasps words. i to hear strands of words often

but can only pick out words that bring a visual but more often than

not a clutter word will jam up the processing of the strand as a

whole.

Sondra

May 17, 2006

oh poor kassi she must be of hurt tyring to be understood and heared

and instead not heared but misunderstood . I to get now what is

happening here again. do some here to know kassi is just a young

girl yet who has much learning to do yet but has much wisdom for a

young girl her age/ kassi saysher thinking and such straight forward

and many do waht i to term skim it and respond without to read it

slowly and to absorb her thinking on things before responding.

I to think one to say she was upset to kassi but lacked why? Yes

kassis heart speaked truth not for all parents but a societal veiw

of those with challenges. Ameirca thinks they are exempt from the

hitler affect but we do our own little hitler affects over history

but hidden to most unless one researches it. some might be to want

to explore disability studies and or the history of policies and

such . because in past those who were disabled , poor or orphaned

were often subjected to cruel fashions of research and they had of

no voice and not rights or protections , some to even be quite

damaged from the research things so over the years ploicies ahve

been maked. even this day i to be to see some cruel things being

done to people of disablity such as the work of a Dr isreal who

likes to use shocks as adversives to people of autism to alter

behavior. It is of sad that no one has been of able to stop this

hitler affect that happens here in America and is rationalized to be

of okay because these childrens are severe???? like that is a legal

right to do this intrusive things to them.

Sondra

May 17, 2006

I can't keep up with Law & Order either. THey have too many characters

on those shows, but I can't get enough, either. Hubby watched like 5

episodes in a row during a marathon on cable. I watched one the other

night that had two brothers, father, MIL, wife, church, pastors, etc.

I never could figure it out until the end because they kept

referencing to too many people. Give me 4-5 characters and I'm good. Lol.

Debi

May 17, 2006

Apparently she thinks I was being overdramatic, since

she replied to my message.

But she's never had her mother tell her she'd rather

be dead than deal with her, suggest that she kill

herself, or gone through what the child in the video

did. I've had the first 2.

Being passionate isn't being a drama queen. it's

having conviction. No tiara here, just sparkly

butterfly hair clips...

Kassiane

--- sondra wrote:

> who was being of overly dramatic i to be confused

> how one can tell

> of ones being drama quen when they cannot be to see

> the person . how

> can words writed be of a drama queen? this is of

> confuing concepts

> yet intriguing because i to be use much word

> comparisons too life

> things too but I to only understand the ones I to

> create and think

> on new ones from others is of foriegn in concepts. i

> to think this

> is one areas i to get so eaily frustrated with self

> too because even

> my own childrens make of fun to me because i to lack

> getting waht

> seems to obvious to others and it just makes ofme

> feeling stupid

> because i to not get it.

>

> Example the husband to come to the room and to ask

> of me what do i

> to want it to be titled? I to be to say what? I to

> not ahve clue to

> hims words but the kids might be to say the CD daddy

> told yo last

> week he will make for you, How can they be to know

> of this I to lack

> as cant associate or infer and this leaves me

> feeling so very stupid

> even to my own childrens. Sondra

>

> In Autism_in_Girls , " Debi "

>

> wrote:

> >

> > Sondra, that is referring to women who are called

> " drama queens " .

> > Picture a woman wearing a crown because she won

> for most dramatic.

> > When the term to check the tiara's at the door,

> that means we

> should

> > leave our roles as drama queens outside the

> message board. In other

> > words, stop being overly dramatic.

> >

> > HTH,

> > Debi

> >

> > >

> > > i to lacked there was of fight here but I to

> guess it is

> happening

> > > again. I to be to shayed words that were not

> right or be to

> caused it

> > > sorry . Missy welcome but in true i to not get

> of you words here

> what

> > > does it to be to mean below/ I to understand

> girls and or drama

> but

> > > that is the only big word that brings a visual

> to me the rest is

> of

> > > confusing.

> > >

> > > > Check your tiara's at the door girls!!!

> > > > This is a DRAMA FREE ZONE!

> > >

> >

>

__________________________________________________

May 17, 2006

Sondra,

Thank you for understanding. You explained what I

couldn't. Yes, it does hurt to be heard but not

listened to. And it's an every day thing. I'm sure

you're familiar too. But you're a great translator as

well.

The societal Hitler effect is exactly what has me

terrified right now. It's frightening what's done in

the name of " normal " or " bettering society " . The Judge

Rotenburg Center (where Israel is, as Sondra

mentioned) is a prime example of a society far far

behind in human rights for the neurologically

different.

Kassiane

proud to be able to call Sondra a friend

--- sondra wrote:

> oh poor kassi she must be of hurt tyring to be

> understood and heared

> and instead not heared but misunderstood . I to get

> now what is

> happening here again. do some here to know kassi is

> just a young

> girl yet who has much learning to do yet but has

> much wisdom for a

> young girl her age/ kassi saysher thinking and such

> straight forward

> and many do waht i to term skim it and respond

> without to read it

> slowly and to absorb her thinking on things before

> responding.

>

> I to think one to say she was upset to kassi but

> lacked why? Yes

> kassis heart speaked truth not for all parents but a

> societal veiw

> of those with challenges. Ameirca thinks they are

> exempt from the

> hitler affect but we do our own little hitler

> affects over history

> but hidden to most unless one researches it. some

> might be to want

> to explore disability studies and or the history of

> policies and

> such . because in past those who were disabled ,

> poor or orphaned

> were often subjected to cruel fashions of research

> and they had of

> no voice and not rights or protections , some to

> even be quite

> damaged from the research things so over the years

> ploicies ahve

> been maked. even this day i to be to see some cruel

> things being

> done to people of disablity such as the work of a Dr

> isreal who

> likes to use shocks as adversives to people of

> autism to alter

> behavior. It is of sad that no one has been of able

> to stop this

> hitler affect that happens here in America and is

> rationalized to be

> of okay because these childrens are severe???? like

> that is a legal

> right to do this intrusive things to them.

> Sondra

>

__________________________________________________

May 18, 2006

Kassiane,

I think the big problem is that most people don't realize that the

kids can hear what's being said, they seem to be in their own world

sometimes BUT they are hearing what's going on, they do know what's

said. At least that's what I believe. I think it's a little scary

too. Kassi, maybe you could enlighten others on how autistics are

really in there knowing what's going on on the outside even if they

don't seem like it. People do need to know how it really is.

I think one of the worst things about autism is people's

perceptions about what's going on, or not going on in the mind of

the autistic person. I know with my daughter it's hard to know what

she's aware of when. Cause she can't communicate much yet. I have to

keep telling myself to be careful of what I do and say so I don't do

something to hurt her feelings, or embarass her. It's hard. I know

most people think she doesn't know a bit of what's going on. It is

difficult to deal with for me, yes, but that's because I'm always

wondering what she knows, what to say, or how to say it. I'm always

thinking of how she might feel. I think that's the worst part for me

being her parent. The not knowing. Because her feelings are the most

important thing in the world to me. If I could read her mind I'd be

the happiest person in the world and the rest would be cake.

Cristy

> > >

> > > >

> > > > This is the best video on what it's like to be a

> > > > parent in the world

> > > > of autism that I've ever watched. It's 13

> > minutes

> > > > long and on the

> > > > Autism Speaks website (in case the link below

> > > > doesn't work). Prepare

> > > > yourself beforehand. I'm sitting here typing

> > with

> > > > tears streaming

> > > > down my face. Even though I live it, to see it

> > on

> > > > the screen takes

> > > > your breath away.

> > > >

> > > > Diane ('s Mom)

> > > >

> > >

> >

> http://www.autismspeaks.org/sponsoredevents/autism_every_day.php

> > > >

> > >

> > > __________________________________________________

> > >

Sign In

Re: Autism Speaks Video

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