Medication question

June 16, 2009

They may offer to try another NSAID but if there is still disease activity after

that long you will need to move on to something else---and as so many others

have said Methotrexate is generally the next step. Our daughter started on the

oral then was switched to the injectable but she has become extremely needle

phobic and was went back to the oral which she is very happy about. She used to

complain about taking all the pills--I think it is like 8 or 10---but now she is

very happy about (number of pills is based on dosage and weight I believe so

don't freak out there). It is a once a week medication. If your daughter is

still having that much pain, swelling, etc I would call the doctor and see if

you can do something sooner than the end of July. That is a long time to wait

when your miserable. Let us know what you find out and I hope you find something

quickly to help.

e, mom to 'joe' 22 poly/lupus

From: Billie-jo Jary <Beamjary@...>

Subject: Medication Question

Date: Tuesday, June 16, 2009, 5:03 AM

I don't post a lot... but I read a ton! My 11 year old daughter a

has been on Naproxen since last July. It has become apparent that it's not

doing the trick. My question is did your Dr's try another NSAID or change to

another type of medication or add something? I know every case is different but

I'm trying to prepare myself. We go back to the ped rheumy on the 26th.

Thank you!

Billie-jo

June 16, 2009

Naprosyn didn't work for my daughter either although she remained on it for 8

months (long story...bad rheumy bordering on malpractice in my opinion...).

Anyway, if it's clear to you that it's not controlling her inflammation then

definitely ask about trying another medication. For some weird reason just

plain old Ibuprofen worked well for my daughter (3 doses per day). She didn't

have nearly the amount of upset stomach aches/vomiting as she did on the

Naprosyn, but more importantly it controlled her swelling and joint pain. So

definitely ask about switching.

>

> I don't post a lot... but I read a ton! My 11 year old daughter a has

been on Naproxen since last July. It has become apparent that it's not doing

the trick. My question is did your Dr's try another NSAID or change to another

type of medication or add something? I know every case is different but I'm

trying to prepare myself. We go back to the ped rheumy on the 26th.

> Thank you!

> Billie-jo

>

June 16, 2009

My daughter was on Naprosyn in the beginning but after 3 months of it not

working our rheumy switched her to Celebrex. She said Celebrex was also easier

on the stomach. At the same time that she started the Celebrex she also started

MTX and that is the combo that put her in remission.

(Abby-2 pauci)

From: kim_j_williams@... <kim_j_williams@...>

Subject: Re: Medication Question

Date: Tuesday, June 16, 2009, 1:48 PM

Hello,

My daughter Abby is pauci/ana + was placed on Naproxen for over a year and when

it didn't help and other joints became affected, I switched rheumys. He

immediately placed her on Methotrexate, a weekly injection. She has been on it

for ten months and appears to have no active disease at this time. There were no

side effects except for the trauma of the weekly injection. She has actually

dealt with pretty well. We had the option of the pill form, but the injections

are better. The absorption rate can vary with pill form. It will probably depend

on the situation and progressiveness of the arthritis. Fortunately at this time,

my daughter is not in pain and was taken off of the Naproxen as well. The other

rheumy had mentioned taking MXT with Naproxen, depends too on the docs. They

never mentioned taking another type of NSAID in our situation, just as an

addition to it.

>

> I don't post a lot... but I read a ton! My 11 year old daughter a has been

on Naproxen since last July. It has become apparent that it's not doing the

trick. My question is did your Dr's try another NSAID or change to another type

of medication or add something? I know every case is different but I'm trying to

prepare myself. We go back to the ped rheumy on the 26th.

> Thank you!

> Billie-jo

>

June 17, 2009

I have found that Naproxin causes my daughter dreadful loose stools

xxxxxx

From: [mailto: ] On Behalf

Of Crawford

Sent: 16 June 2009 23:35

Subject: Re: Re: Medication Question

My daughter was on Naprosyn in the beginning but after 3 months of it not

working our rheumy switched her to Celebrex. She said Celebrex was also

easier on the stomach. At the same time that she started the Celebrex she

also started MTX and that is the combo that put her in remission.

(Abby-2 pauci)

From: kim_j_williams@... <mailto:kim_j_williams%40sbcglobal.net>

<kim_j_williams@... <mailto:kim_j_williams%40sbcglobal.net> >

Subject: Re: Medication Question

<mailto: %40>

Date: Tuesday, June 16, 2009, 1:48 PM

Hello,

My daughter Abby is pauci/ana + was placed on Naproxen for over a year and

when it didn't help and other joints became affected, I switched rheumys. He

immediately placed her on Methotrexate, a weekly injection. She has been on

it for ten months and appears to have no active disease at this time. There

were no side effects except for the trauma of the weekly injection. She has

actually dealt with pretty well. We had the option of the pill form, but the

injections are better. The absorption rate can vary with pill form. It will

probably depend on the situation and progressiveness of the arthritis.

Fortunately at this time, my daughter is not in pain and was taken off of

the Naproxen as well. The other rheumy had mentioned taking MXT with

Naproxen, depends too on the docs. They never mentioned taking another type

of NSAID in our situation, just as an addition to it.

>

> I don't post a lot... but I read a ton! My 11 year old daughter a has

been on Naproxen since last July. It has become apparent that it's not doing

the trick. My question is did your Dr's try another NSAID or change to

another type of medication or add something? I know every case is different

but I'm trying to prepare myself. We go back to the ped rheumy on the 26th.

> Thank you!

> Billie-jo

>

June 17, 2009

Good afternoon!

Our daughter also tried Naprosyn, Ibuprofen, and CELEBREX, before visiting our

Pediactric Rheumotologist at Nemour's clinic

who put her on SULINDAC

along with Methotrexate and Predisone.

They worked miraculously!

Sulindac relieved her pain and is an anti-infammatory like Naprosyn & Ibuprofen.

SHe is also on Prevacid for her stomach lining,

so her tummy doesn't hurt.

hope this helps!

this group is a blessing!

> >

> > I don't post a lot... but I read a ton! My 11 year old daughter a has

been on Naproxen since last July. It has become apparent that it's not doing

the trick. My question is did your Dr's try another NSAID or change to another

type of medication or add something? I know every case is different but I'm

trying to prepare myself. We go back to the ped rheumy on the 26th.

> > Thank you!

> > Billie-jo

> >

September 23, 2009

Hi!

We have tried anti-anxiety meds. They were quite a trip...for him.

He saw cheeseburger all over the yard...in reality they were dog piles...he was

happy but found the idea tooooo scarey for me not knowing what he would put in

his mouth thinking it would be good to eat.

I know you said yeast was ok....but I would sure ramp it up some more. Yeast

has a way of making things worse...and unless he's chelated...he has

it...period. He used lots of GABA, magnesium, calcium, and hylands never

tonic...and those helped..but the biggest things for us were getting phenols

under control, yeast and chelation. Amino acids are also helpful....we used a

brand called

Brainlink by pain and stress center. It had whey in it that he was really

allergic to....but he needed it so bad that he did excellently on it....not that

I recommend feeding your kiddo allergens! We now use Country Life Max

Aminos...not a high a dose but still very helpful. B complex and B12 have also

helped my other kiddos as did SAMe and low dose lithium. It kinda depends on

what they are needing that is causing the anxiety. Chelation and gf/cf were the

real busters for us tho.

Ronni

> Hello:

>

> Has anyone have their child on anti-anxiety medication? Our 10yo son has been

short tempered, has anxiety and become sometimes aggressive so our doctor wants

to put him on a very low dose. We have tried everything as far as protocols,

behavior plans, etc at school but it seems he just can't help himself, he does

realize he blew because he does loose all his favorite games, PS2, computer,

etc. The issues are mostly at school because the work is getting harder, more

homework. The problem is the non-preferred subjects is were he has the behavior

problems, the school has been very accommodating but our son since to start

whining and hitting. It's not yeast nor bacteria because I always rule that

out, could it be puberty?

>

> Is there a supplement, I read about St. 's Wort and SAMe but both have

alot of side effects especially stomach which I want to avoid because he has a

sensitive stomach, he's on the organic SCDiet.

>

> Appreciate your thoughts.

>

> Thanks

> Jean

>

September 23, 2009

>

> Hi!

>

> We have tried anti-anxiety meds. They were quite a trip...for him.

> He saw cheeseburger all over the yard...in reality they were dog piles...he

was happy but found the idea tooooo scarey for me not knowing what he would put

in his mouth thinking it would be good to eat.

>

> I know you said yeast was ok....but I would sure ramp it up some more. Yeast

has a way of making things worse...and unless he's chelated...he has

it...period. He used lots of GABA, magnesium, calcium, and hylands never

tonic...and those helped..but the biggest things for us were getting phenols

under control, yeast and chelation. Amino acids are also helpful....we used a

brand called

> Brainlink by pain and stress center. It had whey in it that he was really

allergic to....but he needed it so bad that he did excellently on it....not that

I recommend feeding your kiddo allergens! We now use Country Life Max

Aminos...not a high a dose but still very helpful. B complex and B12 have also

helped my other kiddos as did SAMe and low dose lithium. It kinda depends on

what they are needing that is causing the anxiety. Chelation and gf/cf were the

real busters for us tho.

> Ronni

>

> > Hello:

> >

> > Has anyone have their child on anti-anxiety medication? Our 10yo son has

been short tempered, has anxiety and become sometimes aggressive so our doctor

wants to put him on a very low dose. We have tried everything as far as

protocols, behavior plans, etc at school but it seems he just can't help

himself, he does realize he blew because he does loose all his favorite games,

PS2, computer, etc. The issues are mostly at school because the work is getting

harder, more homework. The problem is the non-preferred subjects is were he has

the behavior problems, the school has been very accommodating but our son since

to start whining and hitting. It's not yeast nor bacteria because I always rule

that out, could it be puberty?

> >

> > Is there a supplement, I read about St. 's Wort and SAMe but both have

alot of side effects especially stomach which I want to avoid because he has a

sensitive stomach, he's on the organic SCDiet.

> >

> > Appreciate your thoughts.

> >

> > Thanks

> > Jean

> >

> > I put my daughter on very low dose geodon (10mg 2x's a day>) Worked

well for my daughter.

> >

September 23, 2009

Did you look into possible adrenal issues? There were lots of discussions on

this subject here, make a search. Anxiety, short temper and lack of motivation

could be result of weak adrenals.

Galina

>

> Hello:

> ï¿½

> Has anyone have their child on anti-anxiety medication?ï¿½ Our 10yo son has

been short tempered, has anxiety and become sometimes aggressive so our doctor

wants to put him on a very low dose.ï¿½ We have tried everything as far as

protocols, behavior plans, etc at school but it seems he just can't help

himself, he does realize he blew because he does loose all his favorite games,

PS2, computer, etc.ï¿½ The issues are mostly at school because the work is

getting harder, more homework.ï¿½ The problem is the non-preferred subjects is

were he has the behavior problems, the school has been very accommodating but

our son since to start whining and hitting.ï¿½ It's not yeast nor bacteria

because I always rule that out, could it be puberty?ï¿½

> ï¿½

> Is there a supplement, I read about St. 's Wort and SAMe but both have

alot of side effects especially stomach which I want to avoid because he has a

sensitive stomach, he's on the organic SCDiet.

> ï¿½

> Appreciate your thoughts.

> ï¿½

> Thanks

> Jean

> ï¿½

>

September 23, 2009

Have you looked at his adrenals? Adrenal Cortex Extract works well.

TJ

________________________________

From: Jeanne <jeannebee2008@...>

chelatingkids2 ;

Sent: Wednesday, September 23, 2009 4:04:24 AM

Subject: [ ] Medication Question

Hello:

Has anyone have their child on anti-anxiety medication? Our 10yo son has been