Help

November 17, 2003

i have one but the problem is he needs to have pressure on the back of his noggin he had a long and narrow head and to round it back out they said to leave him on his back as much as possible since he sleeps on his belly with his head to the left side well we did that they suggested his infant carseat soo for napping i was putting him in that and now he is freaking after 3 days and wont let me put him down at all no way h is head is ever gonna change now sigh

help

well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 17, 2003

Do you have a swing? I noticed Ting's head is getting whacked from her swing - but whacked in the way your need your little one's head to go!

What about bribing him into the car seat? Feed him (unless you b/f - might be hard) into it. Juice with water? Pedialyte? popsicle? to distract him while you put him in it and until he settles down?

Deb

help

well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 17, 2003

well he isnt on food yet and i tried with his bottle , yah we had a swing but he hated it so i gave it away , and he almost never was in his carseat much haha hence how his head got all loopy, i finally was able to lay him down on his pillow on the floor but he sleeps on his belly i wonder if now that he is bigger if he would use a swing he is 16lbs i wonder for how long he could use one maybe i should buy him one?

help

well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 17, 2003

I'll tell you what I did to get my son OUT of his carseat... pacifier

and lots of attention. When he cried, I picked him up, soothed him

and put him back down on his side in the crib. I massaged him, he

likes his legs rubbed. Or I rocked him in a chair and then put him

in crib when he was asleep.

When Luke was an infant, my DH developed this ridiculous way to get

him to sleep... swinging the carseat by the arm. Boy it was heavy too

but it made Luke stop crying immediately. We developed some muscles

and Luke developed flat head.

Jane and Luke, 5 months

Repo'ing for now

Boston, MA area

--- In Plagiocephaly , " Steve Barlow " <sbarlow@m...>

wrote:

> well my son has be forced to his carseat for his napping for trying

to round out his head well today he will not let me put him down and

he screams when he sees his carseat any ideas?

November 17, 2003

hum well he hates it sitting still maybe i should try to swing it around haha it might help flatten his head i truely feel silly saying i want to flatten my kids head when soo many are here because of that reason it seems at this point like it wont work and he just live like he is i just try to reduce it getting worse i suppose he hasnt grown much soo maybe he will hit a growth spurt and it will round out on its own when to babys tyipcally have growth spurts his head was 80% at birth and its now like under the 20th it was 15inches at birth its 16 1/4th now so a bit over an inch since he was born

hillary in kcmo

Re: help

I'll tell you what I did to get my son OUT of his carseat... pacifier and lots of attention. When he cried, I picked him up, soothed him and put him back down on his side in the crib. I massaged him, he likes his legs rubbed. Or I rocked him in a chair and then put him in crib when he was asleep.When Luke was an infant, my DH developed this ridiculous way to get him to sleep... swinging the carseat by the arm. Boy it was heavy too but it made Luke stop crying immediately. We developed some muscles and Luke developed flat head.Jane and Luke, 5 monthsRepo'ing for nowBoston, MA area> well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 20, 2003

Hi Hillary,

I am very, very far behind in reading these posts so I apologize in advance if

what I

am posting has already been discussed. I am certainly no expert when it comes to

plagio but I wanted to comment on a couple of things. First, I believe that your

son is

the one with the slightly scaphy headshape. The difficult thing for comparison

is if

you are looking at photos of plagio children on this site. Many plagio children

retain a

brachycephalic configuration to their heads even after treatment for plagio.

What I

mean by this is that our plagio children often have heads that are shorter and

wider

than normal, even after treatment for plagio. Their heads after treatment are

symmetrical so they look pretty good even though their heads are somewhat

shorter

and wider than the norm, in fact they really do not look abnormal even with this

headshape. One person said to me when we were discussing this scenario about

what is normal that " normal is changing " in the sense that due to backsleeping

heads

are becoming shorter and wider a bit (I guess because so many kids are affected

to

some degree). I guess my point is that comparing a headshape to the shapes on

this

site (even after treatment) is probably not the best measuring stick. I'm not

sure if

you were doing that comparison but I wanted to mention this.

I did a rough measurement of your son's cephalic index(width divided by length)

from

his photos and it appears his index is about 73. This is on the scaphy side of

things

but is also within one standard deviation from the mean of 78 for 6-12 month old

boys so this would likely be considered normal being only 5 from the mean. You

mentioned CT told you that his head was 5 off and that insurance likely wouldn't

pay

unless it was more than 15. I wonder if it was the cephalic index they were

talking

about and not the cranial vault asymmetry.

Finally, I encourage you not to use any type of inclined seat to reposition your

child.

Scaphy bands hold growth front and back and allow the head to widen uniformly.

By

just forcing a scaphy child onto his/her back it would flatten the back of the

head and

give a somewhat triangular look to the head when viewed from above. I'm not sure

you could really reposition a scaphy headshape. Furthermore, the inclined seats

may

cause the back of the head to not only flatten, but to grow vertically as well,

giving

increased posterior head height which is not aesthetically pleasing. My son has

some

of this posterior height due to a bouncy seat which we thought was too soft to

do

damage. We were wrong :-(. I was recently in the grocery store and saw a little

girl

who was probably 18 months (with very little hair) and her head was somewhat

long

and narrow but the back of her head was flattened and pushed up. It did look a

bit

odd (not her longer head shape, the back of her head). I immediately assumed

that

she had spent a fair amount of time in swing/bouncy seat/carseat etc.

Please note that all this is simply my opinion. I commend your efforts to do the

best

for your child. Best of luck with your appointments. The experts will certainly

help

you if you see plagio-knowledgeable ones.

Mark ('s dad)

> well my son has be forced to his carseat for his napping for trying to round

out his

head well today he will not let me put him down and he screams when he sees his

carseat any ideas?

November 20, 2003

thank you , big words i really did try to understand i am very new to this and have no clue about alot of this but i sort of understood what your saying and i do agree, that told me to not let him lay with his head on the side i dont think it will change i have let him go back to being happy, the dr i saw yesterday said that even if we decided to band him not to expect alot of change in the over all shape he said it wil round out a bit but he didnt think the temples will that it would only be to correct his mild forehead assymserty , but others are saying that it wont help i dont understand, i am leaning towards not doing it but at this point unsure of what i am suppose to do i suppse to just let him be

but i have to say thanks soo much for your info and help

i am thinking i will delete my memembership and move on

but thank you very much

hillary

Re: help

Hi Hillary,I am very, very far behind in reading these posts so I apologize in advance if what I am posting has already been discussed. I am certainly no expert when it comes to plagio but I wanted to comment on a couple of things. First, I believe that your son is the one with the slightly scaphy headshape. The difficult thing for comparison is if you are looking at photos of plagio children on this site. Many plagio children retain a brachycephalic configuration to their heads even after treatment for plagio. What I mean by this is that our plagio children often have heads that are shorter and wider than normal, even after treatment for plagio. Their heads after treatment are symmetrical so they look pretty good even though their heads are somewhat shorter and wider than the norm, in fact they really do not look abnormal even with this headshape. One person said to me when we were discussing this scenario about what is normal that "normal is changing" in the sense that due to backsleeping heads are becoming shorter and wider a bit (I guess because so many kids are affected to some degree). I guess my point is that comparing a headshape to the shapes on this site (even after treatment) is probably not the best measuring stick. I'm not sure if you were doing that comparison but I wanted to mention this. I did a rough measurement of your son's cephalic index(width divided by length) from his photos and it appears his index is about 73. This is on the scaphy side of things but is also within one standard deviation from the mean of 78 for 6-12 month old boys so this would likely be considered normal being only 5 from the mean. You mentioned CT told you that his head was 5 off and that insurance likely wouldn't pay unless it was more than 15. I wonder if it was the cephalic index they were talking about and not the cranial vault asymmetry.Finally, I encourage you not to use any type of inclined seat to reposition your child. Scaphy bands hold growth front and back and allow the head to widen uniformly. By just forcing a scaphy child onto his/her back it would flatten the back of the head and give a somewhat triangular look to the head when viewed from above. I'm not sure you could really reposition a scaphy headshape. Furthermore, the inclined seats may cause the back of the head to not only flatten, but to grow vertically as well, giving increased posterior head height which is not aesthetically pleasing. My son has some of this posterior height due to a bouncy seat which we thought was too soft to do damage. We were wrong :-(. I was recently in the grocery store and saw a little girl who was probably 18 months (with very little hair) and her head was somewhat long and narrow but the back of her head was flattened and pushed up. It did look a bit odd (not her longer head shape, the back of her head). I immediately assumed that she had spent a fair amount of time in swing/bouncy seat/carseat etc.Please note that all this is simply my opinion. I commend your efforts to do the best for your child. Best of luck with your appointments. The experts will certainly help you if you see plagio-knowledgeable ones.Mark ('s dad)> well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 20, 2003

Hillary good luck and best wishes in whatever you decide to do.

Angie and Jenna(STAR grad Missouri)

Re: help

Hi Hillary,I am very, very far behind in reading these posts so I apologize in advance if what I am posting has already been discussed. I am certainly no expert when it comes to plagio but I wanted to comment on a couple of things. First, I believe that your son is the one with the slightly scaphy headshape. The difficult thing for comparison is if you are looking at photos of plagio children on this site. Many plagio children retain a brachycephalic configuration to their heads even after treatment for plagio. What I mean by this is that our plagio children often have heads that are shorter and wider than normal, even after treatment for plagio. Their heads after treatment are symmetrical so they look pretty good even though their heads are somewhat shorter and wider than the norm, in fact they really do not look abnormal even with this headshape. One person said to me when we were discussing this scenario about what is normal that "normal is changing" in the sense that due to backsleeping heads are becoming shorter and wider a bit (I guess because so many kids are affected to some degree). I guess my point is that comparing a headshape to the shapes on this site (even after treatment) is probably not the best measuring stick. I'm not sure if you were doing that comparison but I wanted to mention this. I did a rough measurement of your son's cephalic index(width divided by length) from his photos and it appears his index is about 73. This is on the scaphy side of things but is also within one standard deviation from the mean of 78 for 6-12 month old boys so this would likely be considered normal being only 5 from the mean. You mentioned CT told you that his head was 5 off and that insurance likely wouldn't pay unless it was more than 15. I wonder if it was the cephalic index they were talking about and not the cranial vault asymmetry.Finally, I encourage you not to use any type of inclined seat to reposition your child. Scaphy bands hold growth front and back and allow the head to widen uniformly. By just forcing a scaphy child onto his/her back it would flatten the back of the head and give a somewhat triangular look to the head when viewed from above. I'm not sure you could really reposition a scaphy headshape. Furthermore, the inclined seats may cause the back of the head to not only flatten, but to grow vertically as well, giving increased posterior head height which is not aesthetically pleasing. My son has some of this posterior height due to a bouncy seat which we thought was too soft to do damage. We were wrong :-(. I was recently in the grocery store and saw a little girl who was probably 18 months (with very little hair) and her head was somewhat long and narrow but the back of her head was flattened and pushed up. It did look a bit odd (not her longer head shape, the back of her head). I immediately assumed that she had spent a fair amount of time in swing/bouncy seat/carseat etc.Please note that all this is simply my opinion. I commend your efforts to do the best for your child. Best of luck with your appointments. The experts will certainly help you if you see plagio-knowledgeable ones.Mark ('s dad)> well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 20, 2003

THANKS I THINK WE WONT DO ANYTHING AT THIS POINT UNTIL AT LEAST I AM LESS CONFUSED BY ALL THE CONTRDICATION I AM GETTING FROM THE PED, CT AND THE CRAINAL DR I AM TOTALLY LOST AT THIS POINT I DONT EVEN KNOW WHO TO CONSULT ANYMORE I JUST THINK I WILL SIT AND WAIT AND HOPE ITS FOR THE BEST I TYPCIALLY AM NOT VERY MEDICALLY ACTIVE I DONT TYPICALLY USE ALOT OF ANTIBOTICS OR WHAT NOT I JUST DONT BELEIVE IN ALOT OF THINGS ANYMORE AND TOO MANY DRS DONT SEEM TO REALLY KNOW WHICH IS THEIR HEAD AND WHICH IS THEIR BUTTS I HAVE BEEN MISLEAD MEDICALLY MYENTIRE LIFE WASNT EVEN PROPERLY DIGANOISED UNTIL ADULTHOOD AND I JUST SORT OF FED UP AT THIS POINT, THE CT LADYSAID SHE DIDNT THINK HE WOULD RECEIVE MUCH BENIFIT SHE DIDNT SAY ANY I AM NOT SURE WHAT I SAID BEFORE I AM TIRED AND NOT RELAYING INFO WELL I THINK I AM TRYING TO REMEMBER IT ALL AND I CAM GETTING IT CONFUSED WITH KIDS YELLING MOMMMM MOOMMMMMM at me while i am trying to typei thought that when they said to keep him on his back that the carseat was what i should use its the only way to keep him on the back of his head, i was kidding about carseat torture he hates sitting his carseat or on his back for prolonged periods he wants to be on his belly soo i dont know if it will onlymake his head flat i dont want that, and what little time he is on his back he lays on the left back part is what the crainal dr said it why that side of his forehead protrudes but i dont see a flat spot so i dont know if he has no flat spot god i cant even try to pick this apart any moer i am way to worn out by this and worrying i am no doing something right enough people are it seems always looking for me to screw up to say see see has too many kids can look that last one poor fellow soo neglected the stupid ped nurse actually told me he was overeatin because he wanted attentiion, not that he had reflux, she said all babys have reflux he just doign that becue he likes the attention he is getting, funny as soon he started zantac and we got differnt bottles he is back to normal 4 bottles a day not 10 a day and pukeing all day long anyho w i am sorry i am ranting and venting i am lost and frustrated and sad

hillary in kcmo

Re: help

Hi Hillary,I am very, very far behind in reading these posts so I apologize in advance if what I am posting has already been discussed. I am certainly no expert when it comes to plagio but I wanted to comment on a couple of things. First, I believe that your son is the one with the slightly scaphy headshape. The difficult thing for comparison is if you are looking at photos of plagio children on this site. Many plagio children retain a brachycephalic configuration to their heads even after treatment for plagio. What I mean by this is that our plagio children often have heads that are shorter and wider than normal, even after treatment for plagio. Their heads after treatment are symmetrical so they look pretty good even though their heads are somewhat shorter and wider than the norm, in fact they really do not look abnormal even with this headshape. One person said to me when we were discussing this scenario about what is normal that "normal is changing" in the sense that due to backsleeping heads are becoming shorter and wider a bit (I guess because so many kids are affected to some degree). I guess my point is that comparing a headshape to the shapes on this site (even after treatment) is probably not the best measuring stick. I'm not sure if you were doing that comparison but I wanted to mention this. I did a rough measurement of your son's cephalic index(width divided by length) from his photos and it appears his index is about 73. This is on the scaphy side of things but is also within one standard deviation from the mean of 78 for 6-12 month old boys so this would likely be considered normal being only 5 from the mean. You mentioned CT told you that his head was 5 off and that insurance likely wouldn't pay unless it was more than 15. I wonder if it was the cephalic index they were talking about and not the cranial vault asymmetry.Finally, I encourage you not to use any type of inclined seat to reposition your child. Scaphy bands hold growth front and back and allow the head to widen uniformly. By just forcing a scaphy child onto his/her back it would flatten the back of the head and give a somewhat triangular look to the head when viewed from above. I'm not sure you could really reposition a scaphy headshape. Furthermore, the inclined seats may cause the back of the head to not only flatten, but to grow vertically as well, giving increased posterior head height which is not aesthetically pleasing. My son has some of this posterior height due to a bouncy seat which we thought was too soft to do damage. We were wrong :-(. I was recently in the grocery store and saw a little girl who was probably 18 months (with very little hair) and her head was somewhat long and narrow but the back of her head was flattened and pushed up. It did look a bit odd (not her longer head shape, the back of her head). I immediately assumed that she had spent a fair amount of time in swing/bouncy seat/carseat etc.Please note that all this is simply my opinion. I commend your efforts to do the best for your child. Best of luck with your appointments. The experts will certainly help you if you see plagio-knowledgeable ones.Mark ('s dad)> well my son has be forced to his carseat for his napping for trying to round out his head well today he will not let me put him down and he screams when he sees his carseat any ideas?For more plagio info

November 20, 2003

ok i sort of under stand waht you mean , so why would a dr recommend by ct tell me he thinks it would i guess i am confused he looked at the same baby as she did , she didnt say it would nt work she said she didnt think he would get a beinfical correction if i beleive was her exact words and he aws soo mild isnruance wouldnt even pay i think ia gree with her as far as his over all head shape but as far as the fore head assymetry i am confuse he agreed with her on that for over all head growth he woldnt receive a huge correction as he said he asid it like this if you have a 15mm baby and you give him a 10 mm correction that is signifcate, if you had a 5 mm and you gave him a 3mm correction it not alot but its still some correction, can that 3mm change his head enough to make his eye look less? that is the question there is a theroy by some that think the two are connected plagio and eye folds, yes downs, aisa, fas baby have them as well but his isnt normal meaning his eye are mismatched, and it could in the furture as his face shifts down be moved enough to effect the vision in that eye. and require surgery to fix not a big one but he would still have to go under and that is always scary does it appear that the eye folds are like that are because of that epi thingy or is it because that side of his forhead and socket are pushed forward and causeing it to appear differnt? i think those are the questions right niow i am trying to get answered if yes it cuaseing it to appear abnormal then maybe i will band, if not its not related at all then no i wont i dont know maybe even if they tell me yes i wont, i dont know i am just trying to figure it all out that is that i am trying to look at the dr told me to go see the ct people again not th ept but the orthist i think that actually make the helmets and or wha tnot he gave me their nams and talk to them as well before i decide about what to do i wil do that i right now am doing nothing soo i think at this point i am taking up your alls time and i am sorry thanks for the help you have been very helpful in helping me try to find info thank you again

hillary

Re: help

Hillary,The reason the person at CT said what she said is because in order for a DOCband to work it has to have holding points. In other words if a baby's head isn't "flat" enough a band won't be able to work. DOCbands are active bands they actually redirect the growth of the head through gentle pressure. It won't be able to do that it doesn't have holding points. > > well my son has be forced to his carseat for his napping for trying to round out his > head well today he will not let me put him down and he screams when he sees his > carseat any ideas?> > > > For more plagio info

November 20, 2003

no i think he meant the ones that fit them here in kc at rehab design , i talked to someone in az today and told him what the dr said he didnt mention he thought it was wrong he infact offered to email me an article on the relation of plagio and the eye folds i havent recieved it yet but i hope maybe he will tomorrow

i wil be happy to pass it on when i get it

hillary

Re: help

Hillary,The people that make the bands are in AZ.> > > well my son has be forced to his carseat for his napping > for trying to round out his > > head well today he will not let me put him down and he > screams when he sees his > > carseat any ideas?> > > > > > > > For more plagio info

November 20, 2003

i saw the pt lady there not the two people he mentioned julie and i think the guy was terry but i could be wrong i would have to call and ask, it wasnt who i saw i think she was one that works with the babys as well but she wasnt who he said soo when he said the oens that actually deal with the bands and the babys,

but i talked to tim as well today on the phone he is the one that offered that article

on the eye theroy i was thinking about who every mentioned that one , sorry i dont remember i have read thru soo many emails today

i think the reason he said that bout corbyn is his isnt correct it isnt how his eye is suppose to be shaped and right now at this point it would require surgery but if as the bride of his nose moves down it can pull that down further and it could keep him from opening that one eye wide enough to see correctly and harm his vison i suppose like having a lazy eye if he cant focus it correctly to read or what it could be a problem i am only thinking outloud i couldnt find info in regaruding this other than its assocated with downs and fas and other birthdefects but that is i think what he was meaning when he said he might require surgery later for it so that it doesnt hinder his vison right now it doesnt, and as he grows its hard to say if it will move down more to be a problem sorry i cant answer better

i am suppose to go back in 2mos if we dont band him for a check up iw ill be sure to ask all that then

it was just alot of info in a short time i didnt ask enough questions at the time

hillary

Re: help

Isn't that who you saw when you took Corbyn for his evaluation?I'd love to see it, please do pass it on.> > > > well my son has be forced to his carseat for his > napping > > for trying to round out his > > > head well today he will not let me put him down and he > > screams when he sees his > > > carseat any ideas?> > > > > > > > > > > > For more plagio info

December 30, 2003

Hi Lynne,

We live near Manchester and our son is being treated by Dr. Blecher at a

hospital in London.

If you would like some information, either email me;

ianadele@...

Or telephone; 01706 226075.

Regards Ian.

help

> my daughter has this problem ,also tilted jaw with lopsided palete

> and teeth,she also has a squint.she has been seen for this since she

> was 9 weeks old as she had torticollis.as yet she has had no medical

> treatment to rectify any of these problems,no i dont like the ideas

> of any of the mentioned treatments,nor do i like the thought of my 2

> year old suffering later if nothing is corrected.please let me know

> what help is available and if there are any complications that will

> arise from not having anything done. many thanks

>

> For more plagio info

February 18, 2004

Hi - I understand the pain you're going through. My daughter was also

diagnosed at age three, after normal development for 2 1/2 years then massive

regression. We still don't know what caused it, and I've been fighting this

battle for 6 years now. Have tried every remedy and treatment out there, to no

avail, but I'm not giving up. My DAN Dr. recently told me that for this to

happen to girls, something really massive has to attack their systems, since

they

normally have much stronger constitutions than boys. We're still running tests,

etc. etc. Sorry, I wish I could give chelation advice, but I know others

will. I just wanted to sympathize - there no pain like this. I hope you find

your

answer!

>

> My name is Chris

> I am a newbie to this subject. Still weeping and typing badly as fast

> as I can.I was convinced about 72 hrs ago and need a good crash

> course in chelation. My daughter 3 yrs 4 months was diagnosed with

> mild to moderate autism,She had better speaking skills at 1 1/2 yrs

> than now .I am so angered stressed and pressed for time .My wife is

> still skeptical that thimerosal caused this . I have a gut feeling it

> did.My heart aches for me and mine and you and all of your loved ones

> Help me please

> What do I do first

> Is my 5yr old daughter who seems normal at risk of regressing

> I want my baby back

>

> I'll be here all night

>

> Bless you

> Chris

>

February 18, 2004

Chris..I too have a daughter who is now 10,with regression before age 2...You

have many positives on your side:

-It is 2004..there is so much more info

-you found this list and are looking into biomedical help SO early..that is

great (we did behavioral/sensory and didn't know about thimerosal until 2000.

-get your wife to read online with you...you need to be a team..it is so hard I

know to hear the word autism...but change it to " toxic " ...and RESEARCH

-find a doctor to do tests--one who is knowledgable about children who regress

-for your own education--get the book : Children With Starving Brains: A Medical

Treatment Guide for Autism Spectrum Disorder, Second Edition - Jaquelyn

McCandless--it will explain many things/test/biomedical interventions, --Amazon

has it...2nd edition

-stay on this list to learn more..have your questions answered

-try your daughter on a gluten/casein free diet...but read about it as you get a

dr appt

-read the files on how to get a hair test done (mercury and other toxics--but

ask questions here on how, what kind, where etc-

ask questions--your daughter is ill...forget the word autism..it is meaningless

-take care of each other and know that there are many who will help.......All my

best..

crueton7 <crueton7@...> wrote: My name is Chris

I am a newbie to this subject. Still weeping and typing badly as fast

as I can.I was convinced about 72 hrs ago and need a good crash

course in chelation. My daughter 3 yrs 4 months was diagnosed with

mild to moderate autism,She had better speaking skills at 1 1/2 yrs

than now .I am so angered stressed and pressed for time .My wife is

still skeptical that thimerosal caused this . I have a gut feeling it

did.My heart aches for me and mine and you and all of your loved ones

Help me please

What do I do first

Is my 5yr old daughter who seems normal at risk of regressing

I want my baby back

I'll be here all night

Bless you

Chris

=======================================================

February 18, 2004

Hello Chris. My heart aches just thinking about how you are feeling

right now. I can still remember when I first made the connection,

too, that this is not some incurable problem that my child was " born

with " per se, or just " runs in the family " . I can remember that I

didn't know whether to shout for joy that I had learned something

important or to cry for what had happened to my child.

In terms of your wife and her skepticism. Well, for me and my dh,

he's not as involved in any of this as I am and that's OK. He trusts

my decisions and so at least try to get your wife to at least trust

that you are making good decisions for your child. It's difficult

for some people to imagine that there could be something in a vaccine

that could harm the kids. Encourage her to just take some time to

read on the issue. Somewhere there is a downloadable video of what

thimerosal does to the myelin sheath with cultured neurons-- it

erodes it right before your eyes. I'm sure someone still has links

to Geier's presentation at the IOM last week... that'll open your

eyes. And there'll be more information forthcoming for her to read,

I'm sure. Mercury is toxic, period. Tell her to think about how it

was removed from contact lens products in the 80's. Why was it

removed? Because so many people had bad problems with it. It set up

a response in the body and made people's eyes act like they were

trying to reject the contact lens. I was one of them! I can still

remember when they removed it from all solutions. And get this, they

removed it from dog vaccines in the early 90's. Yes, dogs were more

important to protect than our kids, I guess. Our eyes, and our

dogs.

We could wait an eternity for the IOM to declare that yes, there is a

link. Or we could remember that we already have enough evidence

before us as parents and just move on and get to the task at hand and

help our kids. Let the IOM and the CDC and the FDA continue to try

to protect our vaccine manufacturers from being held liable in the

biggest iatrogenic problem ever put upon our children. It's *very*

important that your wife understand that there are a lot of

motivators out there, especially green and made of paper, to keep

telling the public that thimerosal is safe. Meanwhile, let's check

out all the studies that document that it was and is a real problem

for people...

For your 5 year old daughter who seems normal-- is she fine? Most

likely... although some kids have milder " sensory " issues, some go on

to develop attention span/learning problems. It's just something to

watch for, but not to stress out about at this point if you are not

seeing anything right now. It sounds like your main priority is your

little one right now. As you learn things from the boards, you may

begin to notice things with your older daughter and you can learn

things that can help her too.

If you have time, go to the Files section on the board and begin

reading the files. Spend some time reading the Love Letters section

to give yourself some hope. You always have to have hope. Many kids

have been helped by chelation and other treatments for autism. What

works great for some may have only barely noticeable changes for

others. Each child is unique. It's important to read up as much as

you can to help you make decisions about what to do.

W

> My name is Chris

> I am a newbie to this subject. Still weeping and typing badly as

fast

> as I can.I was convinced about 72 hrs ago and need a good crash

> course in chelation. My daughter 3 yrs 4 months was diagnosed with

> mild to moderate autism,She had better speaking skills at 1 1/2

yrs

> than now .I am so angered stressed and pressed for time .My wife is

> still skeptical that thimerosal caused this . I have a gut feeling

it

> did.My heart aches for me and mine and you and all of your loved

ones

> Help me please

> What do I do first

> Is my 5yr old daughter who seems normal at risk of regressing

> I want my baby back

>

> I'll be here all night

>

> Bless you

> Chris

February 18, 2004

,

(and you) can find the Calgary video, Geiers presentation, Dr. Haley,

Dr. Bradstreet, Dr. Baskin, Dr. Aposhian, Dr. Deth, Lyn Redwood, etc on

http://www.NoMercury.org

Also copies of Simpsonwood minutes (all 286 pages), internal CDC e-mails,

WXYZ investigations by Steve , and lots more evidence and information.

Lujene

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