Help

[Guest guest]

Moria, thank you so very much, you always seem to come through and help when

it is needed, thanks again, Vicki

[Guest guest]

> Hi my name is Vicki, I have been a member to this group for 3

months, and

> yesterday I some how deleted something accidentally on my computer,

so I had

> to reinstall my AOL today.Now I ended up losing my websites on

> Autism,Mercury, Rhogam,Bernview,Dana's site,

Here is my site, it also includes many [but not all] of the sites you

are requesting.

http://www.autismchannel.net/dana/

Dana

[Guest guest]

>Hi my name is Vicki, I have been a member to this group for 3 months, and

>yesterday I some how deleted something accidentally on my computer, so I had

>to reinstall my AOL today.Now I ended up losing my websites on

>Autism,Mercury, Rhogam,Bernview,Dana's site,and every other source of

>information I had on Autism.Can anyone who knows the basic websites to Andy

>Cutler, and everything else just start throwing them out here at me, I would

>appreciate it so much!!Thanks

>Vicki

Hi Vicki,

You can get SOME of the " basics " by going here:

/links

Here are the ones I keep handy to past into stuff I'm writing:

Dana's website: http://www.autismchannel.net/dana/

http://www.dmpsbackfire.com/default.shtml

http://hometown.aol.com/noamalgam/

http://www.autism.com/ari/mercurydetox.html

/files/HOW_TO_hair_test

/files/Counting%2BRules

/files/Andy_dose_sched

/files/ANDY_INDEX

/files/LOVE_LETTERS

/files/Mercury-Autism%20FAQ

/files/POLLS

/files/HOW_TO_buy_DMSA

/files/Glossary

best wishes,

Moria

p.s. the ari site should have a link for doctor list, form here:

http://www.autism.com/ari/

[Guest guest]

,

Oral-Motor speech therapy is frequently most beneficial for children

with muscle weakness and motor planning problems. I have used this

therapy with children like Kay. You may want to look at our website:

talktoolstm.com

I have worked with a therapist in Holland who is trained in this type

of therapy. Her name is Pamela Iverson. She works at The American

School of the Hague. Her e-mail address is: piverson@...

(piverson at ash.nl)

Oral-Motor therapy may be appropriate for Kay but it is important

that a speech pathologist be involved in the diagnosis and then

treatment of the problem.

I hope this helps,

Sara Rosenfeld-

http://www.oromotorsp.com

Advisor CHERAB

> Hi ,

>

> Nothing seems to help for Kay's verbal improvement. Kay has

problems

> with planning, he can not produce words. His muscles in mouth are

not

> the biggest problems. It is a brain-dysfunction. A combination

> dyspraxia/dysfasia.

>

> Kay is 8 years old and he speaks only approx. 20 words. It is for

> crying. He is developmental delayed and he has motor-planning

> problems on his whole body (Clumbsiness).

>

> can you look for me for experience in USA.

>

> Thank you

> Greatings,

>

> Holland

[Guest guest]

Randi,

What problems does your son have with poops? Is he loose or constipated? My

son had chronic loose stools until we added probiotics and enzymes.

I give the clo in the morning and split out the zinc and minerals throughout the

day. I don't do the promter but thought others say they split it out and give

twice a day? I would not suggest DMSA everyday. Some would say that is a bad

thing and may cause more problems. I would suggest doing some research on

different protocols and the various pros and cons associated so you feel more

comfortable deciding what to do.

I think it is great that he speaks (even if only a little;).

(Ian's mom)

[ ] help

I'm either not doing something right or something.

first of all ,my son zinc is very high. we are doing our 1st round

of promter. He is speeding like crazy , can you please tell me if I

have this right.

I was told by June(nurse) to do primer in morning and zinc in mid

day so he will have zinc he's 31/2 does not speak (one word if that).

When does every give the other Supplements(CLO,Minerals,yeast

control)

What about poops any change? Any response is helpful.

Also when doing DMSA our son talkes so clear(when he does) ,Dr.

Boris has maybe we should give every day a low does far away form

Minerals. ANy coments on this. I know every child is different but

there must be a child that is Great on DMSA. I've tried the MSM

route and NAC he is not good.

Please respone

Thanks Randi

[Guest guest]

> i am taking my son to the dr. today to get heavy metal testing done.

they

> will not do it in his office i will have to go next door to the

hospital lab.

> i want to make sure the dr. writes an order for every test that

needs to be

> done. so what are the tests i need to make sure we get. please help

my appt

> is at 2:45 today

Get a Doctor's Data hair elements test. Please read the

beginning part of this file, where this test is described in

more detail:

/files/HOW_TO_hair_test

This is not " every test that needs to be done " but it will help

with determining if your child is metal toxic.

Moria

[Guest guest]

Do you have any links regarding melatonin?

[Guest guest]

I had this same problem with my son a few weeks ago. I know how tired you

must be. What we finally started doing is waking him up at 10:30 PM to go

potty. He is now sleeping until 7 AM again (after going to bed at 7 PM).

We figured out that it was his urge to potty that would wake him up so early

and then he had enough sleep behind him that he had a hard time going back

to sleep. It might be that he just got over the problem when we imposed our

strategy. Maybe it was school jitters.

Just our experience.

Tricia

Illinois

Hi

OK Will is killing me, he won't sleep past 3 am, and he goes to sleep

between

8 - 8:30. The pedi-neuro keeps telling me that, he needs more sleep at night

because he isn't getting enough. Going to sleep at 8 he needs to sleep at

least until 5 am that would be 10 hours. We know it is because we are taking

him off the depakote but I fight with him to stay up a little later and he

still doesn't sleep later then 3 well 4 am has been the latest. So while he

is getting 6-8 hours sleep at night I'm only getting 4 and I don't require a

lot but I need more then 4. Any suggestions?

Thanks

Take Care

Lori

[Guest guest]

> Hi

> OK Will is killing me, he won't sleep past 3 am, and he goes to

>sleep between 8 - 8:30.>>>>>>>>>>>>>>

I don't know if you make sure that his room is dark cause my dd would

get up early and then I hung a sheet at her window so that her room

was dark and she usually will get up later.

Marj

[Guest guest]

Melatonin: works wonders

----- Original Message -----

Hi

OK Will is killing me, he won't sleep past 3 am, and he goes to sleep between

8 - 8:30. The pedi-neuro keeps telling me that, he needs more sleep at night

because he isn't getting enough. Going to sleep at 8 he needs to sleep at

least until 5 am that would be 10 hours. We know it is because we are taking

him off the depakote but I fight with him to stay up a little later and he

still doesn't sleep later then 3 well 4 am has been the latest. So while he

is getting 6-8 hours sleep at night I'm only getting 4 and I don't require a

lot but I need more then 4. Any suggestions?

Thanks

Take Care

Lori

[Guest guest]

Hi ,

I give Will Coromega because of all the issue's with EPO and Omega 6, Will

has seizures so I play it really safe.

> Is your child on any EFAs?

Thank you I will check out the sites you gave me.

I'm so tired most days I can't stand up.

Take Care

Lori

[Guest guest]

Lori - talk to your ped neuro about using melatonin. I suspect some

of these kids don't produce enough or don't assimilate it correctly.

If you've never used it, give it a try yourself to see how your body

reacts to it.

One more thing: my son (tho not on medications like depakote) used

to get up at about 3 -4 every day. It was killing us. We told him

that he could not get out of bed except to pee until the alarm in his

room went off. It worked.

Good luck - Marina

[Guest guest]

> Do you have any links regarding melatonin?

>

www.kirkmanlabs.com

Our daughter who is apraxic among other issues does not sleep well

between approx. 11-4. She either lays awake or tries to go back to

sleep and wakes continuously. (she initially falls asleep around 730

and stays asleep until about 11 and then when she finally goes back

to sleep around 3-4 she has to be woken up around 8 am) Since we

tried melatonin she still wakes up a couple times during this time

frame (11-4), but w/ a little pat she goes right back to sleep.

We've only been using using it for 4 days, but it is working so far.

We ordered ours from kirkman labs and according to research it is

not dangerous because the body already produces it and it will just

get rid of it if it doesn't need it. You can read articles about it

at the above website.

Good luck from a tired mom! Traci

>

>

[Guest guest]

Hi Lori!

There is a book called 'Sleeping Through The Night' written by Dr.

Jodi A. Mindell, the Pediatric Clinical Director of the Sleep

Disorders Center at Allegheny University of the Health Sciences in

Philadelphia. http://www.comeunity.com/parenting/sleep-interview.html

or

http://www.yourbabytoday.com/amazingbabyclub/newbaby/newbaby_yourlife/

sleep_deprivation.html

Also (surprise surprise it's good for this too!)not sure if the

following just published findings from Reuters on EFAs are also

clinically proven to help after birth -however anecdotally I have

heard it does. Is your child on any EFAs?

Fatty Acid Intake During Late Pregnancy Influences Neonatal Sleep

Patterns

By Alison McCook

NEW YORK (Reuters Health) Aug 23 - Newborns whose mothers consume

adequate amounts of docosahexaenoic acid during the last 3 months of

pregnancy exhibit healthier sleep patterns than others, US

researchers report.

The amount of time infants spend in different stages of sleep may

indicate whether they are experiencing normal brain development.

Consequently, mothers who consume adequate amounts of docosahexaenoic

acid (DHA) may also be enhancing their infants' cognitive

development, according to Dr. B. Thoman and colleagues, from

the University of Connecticut in Storrs.

" The results of this study are strongly suggestive of the importance

of DHA levels during the last trimester, " Dr. Thoman told Reuters

Health.

In the current study, Dr. Thoman's team measured the plasma DHA

levels of 17 women when they delivered their infants. The authors

then monitored the sleeping patterns of the infants during their

first two days of life, using a sensor pad to record how the infant

was breathing and moving while asleep.

The authors found that infants born to mothers with high DHA levels

were more likely to demonstrate mature sleeping patterns than infants

born to mothers with lower levels.

The current findings, published in the September issue of the

American Journal of Clinical Nutrition, are not the first to suggest

a link between DHA levels and brain development. Previous reports

have shown that infants who received DHA-rich breast milk exhibit

more mature brain development than their formula-fed peers.

There is also evidence that early DHA levels may influence the risk

of heart disease later in life. In animal studies, low DHA levels

have been associated with the development of high blood pressure.

Am J Clin Nutr 2002;76:608-613.

http://www.medscape.com/viewarticle/440567?mpid=3145

=====

[Guest guest]

Clondine also works well. My daughter used to be able to maintain herself on

about 4yrs of sleep. She is autistic & safety is a big concern of ours. She

take 15mg of clondine @ bedtime. It took us awhile to get the correct dosage

but now she sleeps 10-11hrs at night. She weaned herself from naps @ 22mos.

[Guest guest]

Hi Lori!

You do sound exhausted -so I have a few more links below!

In regards to the EFAs -Coromega is a good brand for a pure Omega 3.

Only thing missing is the teeny amount of GLA -Omega 6 which has the

anti inflammatory properties that for some reason most of us found

was needed or the Omega 3 (DHA and/or EPA) alone didn't seem to " work " . We

have quite a few members who have children prone to seizures who

under the care of their child's doctor have them on the Omega 3/6

oils and doing great.

And since the focus has now turned to a high in the B's vitamin.

Keep in mind that everything can be searched at google and sometimes

you'll find that...

" Folate(B9), like Vitamin B6, decreases homocysteine levels. Supplements

can mask the anemia associated with Vitamin B12 deficiency (probably

rare), may increase the risk of seizures in people with seizure

disorders and can interfere with the action of prescription drugs

like methotrexate, trimethoprim and sulfasalazine.... "

http://www.acsu.buffalo.edu/~shlevy/vitamin.htm (They also have GLA

there and no warning of seizures -then again since in small doses it

may help stop seizures...)

On another track -did you see the studies done by pediatric

neurologist Dr. Mike Chez with carnosine? They were originally done

for those children who are prone to seizures. I love the carnosine

for my boys and found it to be a wonderful addition to the EFAs. I

only add things one at a time with months or years in between -and

when I added the carnosine there was within a week an increase in

imaginative speech that was amazing -and beautiful. I would say

that carnosine is worth looking into in your child's case before the

higher EPA since it's not only proven to be good for speech -but may

also be a good addition to help lower the chance of seizures too for

your child. You can show the trial information up at the CHERAB

website http://www.shop-in-service.com/carnosine.htm to your child's

doctor.

" Baby Go To Sleep Tapes " Help infants and children up to 6 years old

sleep through the night. The Tapes were developed during two years

of interactive research with major hospitals. An actual human

heartbeat is the rhythm (drums) for special arrangements of

traditional lullabies, nursery songs and Christian children's songs.

Three equally effective versions of musical therapy are available to

stop children from crying, soothe symptoms of colic and help get

children to sleep through the night without having to let them cry.

http://www.babygotosleep.com/index.html

Are You Sleeping?

Is sleeping all night just a dream at your house because your baby or

toddler doesn't sleep through the night? The NO TEARS approach taught

in the Sleep Tight Video© has been developed by pediatrician

Hull, M.D. and used successfully for years in his private medical

practice, and now is used by parents all over the world with his help

over the Internet. And unlike the advice in baby magazines and books -

IT WORKS - backed up by a 30 DAY MONEY BACK GUARANTEE and unlimited

personal email support and counsel by Dr. Hull.

http://www.drhull.com/

" Andyroo " Children's sleep tapes that are unlike any others! They

are designed to help your child relax and fall asleep in their own

dreamworld. These audio sleep tapes for children really work!

Andyroo's Dream Tapes combine stories, sounds, and music on a level

any child can enjoy. They also help build vocabulary and develop

imagination. Some samples of these bedtime tapes to listen to at:

http://www.andyroo.com/Products/samples.html

" It's Sleepy Time " , demonstrates bedtime rituals for parents to

follow in putting infants and young children to sleep for the night.

Approximate running time : 30 minutes.

Created with the experts at Duke University Medical Center, " It's

Sleepy Time " also guides children through nightime fears and shows

parents how to handle problem sleepers.

Toddlers and youngsters love to copy Max and as they prepare

for bed.

When your child watches " It's Sleepy Time " , they're reassured by, and

learn healthy sleeping habits from Max and his friends. The songs and

story guide you in handling the common sleep problems that occur from

infancy through the early school years. "

http://www.zipmall.com/teach-kids/sleepy.htm

How long has this gone on and has any of the doctors suggested a

sleep study?

Hope something works to help you and your child sleep more!

=====

[Guest guest]

> Clondine also works well. My daughter used to be able to maintain

>herself on about 4yrs of sleep. She is autistic & safety is a big concern of

>ours. She take 15mg of clondine @ bedtime.

What's clondine?

Traci

[Guest guest]

Traci, Adults use clondine for blood pressure. The doctors have found that

it helps children sleep & stay asleep. I can get the exact family name for

you tomorrow. Hubby (firefighter/paramedic) can help me get what family it

comes from. It has worked wonders for my daughter. She is sleeping a normal

child. She is able to focus better because she is getting the rest she

needs. She is so energetic !!

----- Original Message -----

> > Clondine also works well. My daughter used to be able to maintain

> >herself on about 4yrs of sleep. She is autistic & safety is a big concern

of

> >ours. She take 15mg of clondine @ bedtime.

>

> What's clondine?

>

> Traci

[Guest guest]

Barbara,

Thank you I will consider it. Hey I always had a TV and my room growing up

and my Mom was great. I'M Sure You Are Too.

Take Care

Lori

[Guest guest]

I bought some from Carn A Ware. Is that where you get yours from?

Thank

Lori

[Guest guest]

Hey Barbara!!

The good mommy award goes to someone who will do anything to make

sure their child is getting what they need. If they need rest - then

letting them watch TV to make sure they lay still is a great idea!!!

Find what works, then follow through....I think you deserve the

award!!

> Oh my goodness - I got tired just thinking about you only getting 4

hours of

> sleep - that's really difficult. I remember reading Dr. Ferber's

book about

> children's sleep problems for my " typical " older son - I think it

was called

> " How to Solve Your Child's Sleep Problems " and it was very

helpful. I know

> it may not be the greatest habit in the world, but if all else

fails, would

> you consider a TV and VCR in his room and let him watch a video and

perhaps

> fall back to sleep? When my daughter was going through a recent

difficult

> phase when she was not ready to give up her nap, but then couldn't

sleep at

> night if she napped, I let her watch TV in her bed in her room.

Maybe I

> won't win the good mommy award, but I'm not very pleasant to be

around when I

> don't get enough sleep.

> Good luck!

> Barbara

[Guest guest]

-HI Lori,

Here is something that I do. Epsom Salt Baths, The first night I did

them (To Help Calm him to go to sleep) I used 1/2 cup at first and he

fell asleep at imediatley. Just a thought.

Eileen

-- In @y..., PL9071@a... wrote:

> Hi

> OK Will is killing me, he won't sleep past 3 am, and he goes to

sleep between

> 8 - 8:30. Any suggestions?

> Thanks

> Take Care

> Lori

[Guest guest]

My son was 6 weeks premature. He went home in 2 days

with me as he weighed 5 lbs 13 oz and seemed fine and

all. At about 6 weeks he was only sleeping one hour

at a time. My sleep deprivation was horrible! He

didn't sleep through one night until he was 14 months

old. He didn't totally start sleeping most nights

until he was 4! That was this past march. He would

be up at 3am jumping on his bed hyper. It was awful.

I was almost to a suicidal point. He was also

throwing horrible tantrums. I mean 3 hour variety

over the stupidest stuff. What did it for us was

removing all of the artificial dyes out of his diet.

The red 40, yellow 5 and 6, blue 1. Those are derived

from the same petroleum that kerosene, asphalt and

crude oil come from. Then it didn't totally come into

focus for us until i found that there are also

preservatives that cross with this,,, those are TBHQ,

BHA and BHT. He also has problems with the artificial

flavor vanillin. That isn't kerosene but a by product

from pulp paper production. Anyway, once we removed

the last parts from his diet, he slept through the

night and on a regular basis. He still gets up to go

potty, but isn't hyper and bouncing off the walls.

When we go out to eat often i come home and throw him

in an epsom salt bath like Eileen does. The salt

detoxes any artificial ingredients he may have that i

didn't know about. I would absolutely not give him

something i know has red 40 in it and then use the

bath for detox. I had to know the source so i didn't

need to use the baths. But i still do. I couldn't

believe how well they worked. We all now follow the

Feingold diet as learning these products can cause

birth defects, hyperactitivity, resemble ADHD

symptoms, cause cancer, insomnia (which is what

brought me to the research), etc. There is more info

on insomnia occurring with these additives at

www.feingold.org. I know this isn't everyone's

problem with insomnia in children, there are a dozen

reasons it can happen, but this is what solved the

problem for us. Thank goodness! My son also once he

wasn't distracted by these additives started learning

to talk better. He still needs a bit brushing up and

that is why i am here. Found the proEFA which i will

try as soon as the mailman delivers it. Good luck to

you from someone who has been there!

--- PL9071@... wrote:

> Hi

> OK Will is killing me, he won't sleep past 3 am, and

> he goes to sleep between

> 8 - 8:30. The pedi-neuro keeps telling me that, he

> needs more sleep at night

> because he isn't getting enough. Going to sleep at 8

> he needs to sleep at

> least until 5 am that would be 10 hours. We know it

> is because we are taking

> him off the depakote but I fight with him to stay up

> a little later and he

> still doesn't sleep later then 3 well 4 am has been

> the latest. So while he

> is getting 6-8 hours sleep at night I'm only getting

> 4 and I don't require a

> lot but I need more then 4. Any suggestions?

> Thanks

> Take Care

> Lori

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

__________________________________________________

[Guest guest]

We are on the feingold program and I think it has helped my older

son w/ digestive issues, but it didn't help my apraxic daughter w/

sleep issues. I also tried the epsom salt baths for a week w/ no

change. We continue w/ the diet because we believe it is a much

healthier way of eating and I believe everyone feels much better

overall w/out all that bad stuff. I know I do!!! The diet made a

world of difference for me. Last night was our 5th night on

melatonin and my daughter woke up multiple times. So, now I'm

figuring the melatonin is not our answer either.

Traci, Hawaii

[Guest guest]

Wow! I'd just have totally lost it if we didn't find

the answer we found. Do you belong to the group

for Feingold? Feingold 4 Us i think is the name of

it. There are so many reasons for insomnia. I have

it and FG didn't help me either. At least my son is

sleeping which was the biggest blessing. I just loved

it when my piers who had babies would ask if he was

sleeping through the night. I wanted to smack them

when they told me theirs were as early as 6 weeks. I

went through HE**! It was awful. Keep trying--

you're bound to find the problem with some

persistance! Good luck--

--- roddyt001 <roddyt001@...> wrote:

> We are on the feingold program and I think it has

> helped my older

> son w/ digestive issues, but it didn't help my

> apraxic daughter w/

> sleep issues. I also tried the epsom salt baths for

> a week w/ no

> change. We continue w/ the diet because we believe

> it is a much

> healthier way of eating and I believe everyone feels

> much better

> overall w/out all that bad stuff. I know I do!!! The

> diet made a

> world of difference for me. Last night was our 5th

> night on

> melatonin and my daughter woke up multiple times.

> So, now I'm

> figuring the melatonin is not our answer either.

>

> Traci, Hawaii